MS Prodrome Symptoms - What Are They?!?

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  • Опубліковано 4 лип 2024
  • MS Prodrome Symptoms - What Are They? Did you have symptoms in the years leading up to your first discernable relapse or demyelinating multiple sclerosis (MS) event? Did you have prodromal symptoms? In this video I talk about MS prodrome. A prodrome can be a period where we have symptoms before we are diagnosed that could possibly last for years.
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    #MS #MultipleSclerosis #LivingWithMS #EvenSoItIsWell, #VickieHadge
    00:00 MS Prodrome Symptoms - What Are They?
    00:29 Selma Blair - MS Symptoms
    01:15 Definition of Prodrome
    01:44 Population Studies on MS Prodrome
    02:33 Cognitive Changes Prior to MS
    03:13 Symptoms Leading Up To MS
    03:37 Alzheimer's and Parkinson's Prodrome
    03:47 Rheumatoid Arthritis and Diabetes Prodrome
    03:57 Biomarkers of Prodromal Phase
    04:37 Identifying MS in Prodromal Stage
    05:32 Machine Learning & Artificial Intelligence
    06:57 What We Know About Prodromal MS

КОМЕНТАРІ • 23

  • @EvenSoItIsWell
    @EvenSoItIsWell  5 місяців тому

    Sign up for my newsletter evensoitiswell.subscribemenow.com/

  • @lindahaynes3475
    @lindahaynes3475 5 місяців тому +7

    I had Fatique, memory problems i also had 4 children before i had MRI . I was 41 years old by time i got MS diagnosis .

    • @EvenSoItIsWell
      @EvenSoItIsWell  5 місяців тому +2

      Thanks for watching Linda. It seems like a lot of us had similar experiences.

  • @AlexByrdfurnsculpt
    @AlexByrdfurnsculpt 5 місяців тому +5

    After researching possible symptoms of MS I think I had a form of seizure around 2000, Pseudobulbar affect 2007, and slowly increasing cognitive issues over the years, vision/balance/walking issues in 2020, but 2022-present I have hand numbness and tremors added on and started going to the doctor to be diagnosed August 2023 with MS.

    • @EvenSoItIsWell
      @EvenSoItIsWell  5 місяців тому +1

      Thanks for sharing your story Alex. It is amazing, in hindsight, how the symptoms all point to MS.

  • @cassdevericks3422
    @cassdevericks3422 5 місяців тому +4

    I was diagnosed with overactive bladder when I was 24 years old. Although, they couldn’t figure out what the cause was. I stopped taking treatment to have babies. Then my symptoms returned in 2020 and continued to be intermittent but worsened within the last 9 months. My urologist believes this was an early symptom to the MS diagnosis 11 years later. I also was diagnosed with other fibromyalgia around the same time, though I feel like that could have very well be MS too. Unexplained whole body pain then…I have that same pain now, but it’s clearly MS. I began experiencing severe dizziness in 2017-2018 but just thought as a newer mom I was just not getting proper sleep. All of these looking back now were pointing to MS. Wish I would have recognized them sooner!

    • @EvenSoItIsWell
      @EvenSoItIsWell  5 місяців тому +1

      Hindsight sometimes makes it seem obvious doesn’t it. I am hopeful that with the ongoing studies that they may be able to help people in the future.

  • @josephvered3991
    @josephvered3991 5 місяців тому +4

    Hi from Israel interesting video it makes me so engry if I was aware about the symptomps and if the neurologist that treated my daughter was more attentive to her and pay attention to her complains 4 years before she got her treatment ....

    • @EvenSoItIsWell
      @EvenSoItIsWell  5 місяців тому

      Thanks for watching. Try not to be angry. Autoimmune diseases are tremendously difficult to diagnose. Some of the symptoms are not definitive and they are still working on how to better identify and treat them. I hope your daughter is doing better.

  • @JustWatchMeDoThis
    @JustWatchMeDoThis 5 місяців тому +4

    I think its early symptoms, not some pre-stage of MS. My medical records have had fibromayalgia all over them and still do to this day because I was trying to explain my nerve pain and so doctors just slapped that label on it.
    I also used the term migrains to explain my eye pain and headaches that were so bad that sometimes I needed the shots they give in the ER for migraines. It turns out it is optic nueritus, the feeling of being stabbed through the pupil with an icepick and hit above the brow with a baseball bat.
    Basically all those prodrome symptoms sound like actual MS symptoms as we try to describe them whem we have no idea what is really going on.
    I had symptoms from adolescents at least but only found out last year at age 53 that it is MS even though I had an MRI on my brain over 11 years ago that showed the lesions after falling, hitting my head and having all sorts of symptoms including what I now know was severe optic neuritis pain in both eyes and a host of balance issues and lack of proprioception. And then now I even realize the fall was in part caused by a lack of proprioception. Lots of my falls in adulthood were... plus the foot drop I didnt realize I had.
    All these symptoms that even complaints to doctors, never got addressed properly. They just mark fibromayalgia ir headache or whatever.

    • @EvenSoItIsWell
      @EvenSoItIsWell  5 місяців тому +1

      Thanks for watching. I am so sorry you experienced all that. I think there are many of us that experienced the same or something similar.

    • @mikeshanermusic
      @mikeshanermusic 5 місяців тому +1

      I just typed a bunch of stuff, but decided to delete it and just say, I can relate. 🤦‍♂

    • @EvenSoItIsWell
      @EvenSoItIsWell  5 місяців тому

      @@mikeshanermusic thanks Mike! So many of us can relate.

  • @mariavaradi3169
    @mariavaradi3169 5 місяців тому +4

    I was 16 when I had symptoms that now I know were MS. I had the first MRI 2023 when finally diagnosed with PPMS. I was 67. Except seizures I had all the symptoms for decades. Not knowing what is wrong with me destroyed my life.

    • @EvenSoItIsWell
      @EvenSoItIsWell  5 місяців тому +1

      Oh no! I am so sorry that happened. I hope you have been able to rebuild it a bit.

  • @valeriemoen4441
    @valeriemoen4441 5 місяців тому +3

    I didn’t realize it until you spoke about these symptoms. In my late 20s, early 30s I could not say Detroit Red Wings. I grew up, here in Canada, saying the names of hockey team with no problem. Until one day I couldn’t say Red Wings without stuttering and getting tongue tied. I thought it was odd, but now that I think about it. Could this have been the beginning of MS?

    • @EvenSoItIsWell
      @EvenSoItIsWell  5 місяців тому

      Thanks for watching and sharing. It is possible. I look back and had some odd symptoms as well. I bet it won't be long before they can definitely say there is. Prodromal phase of MS.

  • @djbro785
    @djbro785 5 місяців тому +3

    Just recently diagnosed with Ms at 69 yo but I remember my first sympton I remember was at age 34 and it was my handwriting I couldn’t sign my name legible. I thought it was a nervous problem. Ever hear of that?

    • @EvenSoItIsWell
      @EvenSoItIsWell  5 місяців тому

      Thanks for watching. Yes! I have definitely heard of that. One of the questions my doctors asked during the diagnosis of my MS was how is your handwriting? Has it gotten worse?

    • @djbro785
      @djbro785 4 місяці тому +1

      @@EvenSoItIsWell no not really. It’s bad. But printing not so bad.

  • @penelopeskilton3855
    @penelopeskilton3855 4 місяці тому +3

    I have lots of MS symptoms plus other autoimmune illnesses. I paid private for an MRI but no lesions were found. Can an MRI sometimes miss small lesions? I can no longer walk even with an aid. But the Drs don’t even care?

    • @EvenSoItIsWell
      @EvenSoItIsWell  4 місяці тому +1

      Thanks for watching Penelope. I am sorry you are experiencing such debilitating symptoms. I can’t give medical advice but typically MRIs are very good at picking up lesions. That said, it could be possible. Keep advocating for yourself. Perhaps asking for another doctor to take a look at your MRIs?