Staying Behind While Family Takes A Trip | THE AUSPICIOUS FAMILY

This is such a difficult journey, missing out on family trips really sucks, but we love our kids so much that we are willing to sacrifice it all for them. On this episode I stay behind while my wife and cousins surprise Noah with a trip to Universal Studios for Spring Break! I really missed out but i get to show you guys what my routine is with Nathan. Enjoy :)
GO FUND ME: gofund.me/84b99816
Mutation: medlineplus.gov/download/gene...
Cutis Laxa: www.cutislaxa.org/what-is-cut...
pubmed.ncbi.nlm.nih.gov/26829...
www.omim.org/entry/616603
rarediseases.org/rare-disease...
moviecultists.com/what-is-cut...
Nathan needs 24/7 care, we left out careers in order to care for him, if you'd like to donate towards his fund, the link is below. thank you.
GO FUND ME: gofund.me/84b99816
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How it all started:
www.kget.com/news/local-news/...
How we found a diagnosis (Project Baby Bear):
www.youtube.com/watch?v=-Nm8_...
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contact info:
📩 [e-mail]
#MEDICALLYFRAGILE #SPECIALNEEDS #CUTISLAXA #DEBARSYSYNDROME #SPECIALNEEDSPARENTS #FAMILY #CREATOR #UA-camFAMILY #NICUPARENTS #MEDICALJOURNEY #RAREDISEASE

[@dawnportousa]

Good morning Auspicious family and Happy Easter to all of you! I am happy that Noah was able to go and enjoy a special day and on the flip side It makes me sad that you all couldnt go as a family to enjoy this day together. It is 100% understandable and unfortunate that these things are going to happen. I hope that the trip was a nice well deserved break for her and it was so nice she and Noah had some nice quality uninterrupted time together! I hope that you guys have a nice Easter Sunday nd may you be blessed in every way! Sending you all my love!!

[@maryross4488]

Happy easter to you all. Poor nathan. He must have a lot of pain in his hip. Must ve so uncomfortable for him. Im proud of noah with his school work and art. Bless you all ❤

[@ochoaliliybeth9680]

I will most definitely share 🧡🧡🧡🙏🏼 for awareness so many blessing and love to your family and prayers

[@luciennes1979]

Well done Noah keep it up! Well done mando for the weight loss you look much younger. And Pam you deserve a nice break. Xxxxx

[@bruceshepherd609]

Blessings to you all, it always breaks my heart to watch these videos but thank you for sharing and building awareness. Kia Kaha (stay strong) xxoo

[@donettacreamer9435]

Always praying for guys. 🥰💙💜💙💙 XOXO

[@eprohoda]

The, bonjournice ot meet you~nice , goodbye!, 🤗

[@clumsynelly]

Mando you have lost so much weight wow I need some tips, very proud of Noah doing great in school !

[@TheAuspiciousFamily]

thank you

[@LTilli313]

I'm no dr or anything and def a hard decision and *your decision* , but just another perspective- my nephew had his hip popping out of socket and had to have hip surgery and be in a Spica cast. It actually wasn't that bad for him. Aside for first few days after surgery, he def had pain, but they gave pain meds.
The worst part was the Spica cast bc it's a pain. But his drs explained its excruciating pain once it does pop out of socket, and that it would. Maybe Nathan's won't, but it almost seems unrealistic to just think u won't ever , or he won't ever, move his leg or u will try not to. Again it's diff kids and diff life situations, and a huge hard decision for you all 😔
Poor guy, he goes through so much!!! It seems like every few months something else major comes up for him :( I pray he has no pain and gets some peace 💚
He did look like he was improving somewhat in some tik tok videos I saw of Nathan playing with a toy w his nurse, so that was great!!

[@saragomez4991]

Happy Easter