I wish, sir you would educate the doctors out there, sadly so many people are not diagnosed and left to fend for themselves. Sadly, I had to get prednisone from Mexico on my trips. There are other countries in order to treat myself.
Thank you for this information. I live with PMR and this helps me to understand the disease. My Rheumatologist is putting me on Kevzara to get me off of a long term treatment with prednisone.
Thank you for this talk on PMR. I am taking prednisone - second time around and tapering 1mg per month down to zero. I am intrigued by your comment on tapering every two months below 5mg and will ask my doctor about that.
Sadly. So many doctors don’t know or are not aware to look at these symptoms.. I would tell them I went from 48 to 90 and some mornings I was in such pain.. morning gs were awful.. day it would be better, but after sitting for a while it was painful and not easy.. thank god by coincidence my foot doctor gave me prednisone pack and first two pills helped
I have some confusion about the tapering process. As you are decreasing the amount of prednisone, what is the PMR doing? Is the point of all this to lower the inflammation and that will lower the effectiveness or intensity of pmr?
I'm not a doctor... The taper is to see if your system is recovering and able to supply its own cortisol. As you slowly reduce the amount of prednisone, you are testing whether you are ready to taper, and coaxing your system to start producing on its own. The PMR is doing what it is doing. You taper to know when it is ending.
@topbuilder3790 thanks for responding. I'm not a doctor either, but if you're tapering down the amount of medicine that controls the inflammation pain, doesn't that mean that the PMR is also slowly going into remission even if it might take months or years? I just don't get the correlation
@@Richie07a1 The longer term goal, is to be on the least amount of Prednisone that controls the PMR for the shortest duration. So, for me, after a couple months of 40mg/day (2x20) I started a taper to find out what my body actually needed. Fast forward 3 months, my limit is 10x2mg /day. Life is much better at the level where you hardly know you are taking it! I have tried to go lower twice. Did not go well. So, post holiday events and family staying with us, I will try going down 1/2 mg at a time. Yes, I believe as you are able to go lower this is in concert with your body producing it's own cortisol and PMR going into remission. My uncle had PMR for two years before he was able to get off the Prednisone completely. I have been warned of the possibility that some people end up on a maintenance dose for life.
I wish, sir you would educate the doctors out there, sadly so many people are not diagnosed and left to fend for themselves. Sadly, I had to get prednisone from Mexico on my trips. There are other countries in order to treat myself.
Thank you for this information. I live with PMR and this helps me to understand the disease. My Rheumatologist is putting me on Kevzara to get me off of a long term treatment with prednisone.
If you think prednisone side affects are bad make sure you read Kevzaras!🙏
Thank you for this talk on PMR. I am taking prednisone - second time around and tapering 1mg per month down to zero. I am intrigued by your comment on tapering every two months below 5mg and will ask my doctor about that.
Sadly. So many doctors don’t know or are not aware to look at these symptoms.. I would tell them I went from 48 to 90 and some mornings I was in such pain.. morning gs were awful.. day it would be better, but after sitting for a while it was painful and not easy.. thank god by coincidence my foot doctor gave me prednisone pack and first two pills helped
Thank you very much!
I have some confusion about the tapering process. As you are decreasing the amount of prednisone, what is the PMR doing? Is the point of all this to lower the inflammation and that will lower the effectiveness or intensity of pmr?
I'm not a doctor... The taper is to see if your system is recovering and able to supply its own cortisol. As you slowly reduce the amount of prednisone, you are testing whether you are ready to taper, and coaxing your system to start producing on its own. The PMR is doing what it is doing. You taper to know when it is ending.
@topbuilder3790 thanks for responding. I'm not a doctor either, but if you're tapering down the amount of medicine that controls the inflammation pain, doesn't that mean that the PMR is also slowly going into remission even if it might take months or years? I just don't get the correlation
@@Richie07a1 The longer term goal, is to be on the least amount of Prednisone that controls the PMR for the shortest duration. So, for me, after a couple months of 40mg/day (2x20) I started a taper to find out what my body actually needed. Fast forward 3 months, my limit is 10x2mg /day. Life is much better at the level where you hardly know you are taking it! I have tried to go lower twice. Did not go well. So, post holiday events and family staying with us, I will try going down 1/2 mg at a time. Yes, I believe as you are able to go lower this is in concert with your body producing it's own cortisol and PMR going into remission. My uncle had PMR for two years before he was able to get off the Prednisone completely. I have been warned of the possibility that some people end up on a maintenance dose for life.