Life with Angelman Syndrome: Maintaining Hope | Ovid

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  • Опубліковано 3 лис 2024

КОМЕНТАРІ • 37

  • @EmEmEm579
    @EmEmEm579 4 місяці тому

    Sydney is beautiful ❤ hope there will be treatment soon

  • @shanimarais9695
    @shanimarais9695 2 роки тому +16

    Sydney looks just like her mother. Her features aren't out of the ordinary.

  • @Senseii795
    @Senseii795 Рік тому +7

    I have a son with Angel man syndrome and he is now 31 yrs old .. and he was genetically tested when he was two years old. That’s when I found out what he had. We all love him so very much. I hope you have lots of support ❤

  • @katehickcox5048
    @katehickcox5048 2 роки тому +28

    I am a therapeutic horseback riding instructor and I have worked with a few children with Angelman syndrome. While they may have impaired communication, I have noticed that they really love to share their happiness with others. A boy I teach had recently learned how to do zippers. It made him so excited that he spent much of his lesson unzipping and then rezipping his vest. It kind of derailed my plan for that lesson, but he was so clearly just trying to share his happiness with me. He was very excited with what he could do and he just couldn't keep his excitement to himself. The only time he ever acts sad is if something is physically wrong.

  • @AngryAquarius
    @AngryAquarius Рік тому +1

    I could never have the patience to deal with this at home. All the credit in the world to you.

  • @stevenhulbert7540
    @stevenhulbert7540 3 роки тому +21

    I can't imagine the pain that the parents felt knowing that the child and they have to deal with. These and all other parents who have kids with special needs are to be commended for their patience, encouragement and perseverance in raising them, especially during this pandemic!

  • @Attik76
    @Attik76 4 роки тому +20

    Hi my Girl got ANGELMAN'S SYNDROME, she's 12 years old. For sleep she's loves bubble wrap, and her favorite story ALL night long, try Alvin and Chipmunks, or Talking tom and Friends!!!!!!GOOD LUCK

    • @thejudderman8265
      @thejudderman8265 3 роки тому +1

      I work with a young boy who has AS and he is a beautiful child, he has an obsession with water and it is the only thing that calms him down but he is very very special!

    • @KyuubiSam
      @KyuubiSam 3 роки тому +1

      @@thejudderman8265 I have read that many individuals with AS have an affinity to water. While special, he also shares traits with other humans in the world :)

  • @m.z.7518
    @m.z.7518 4 роки тому +9

    Hello, very nice video)) thank you for sharing. My son is 5 years old and also has Angelman's syndrome. And I know how special our children are ❤️ blessed be 🙏

  • @Moffeliten
    @Moffeliten Рік тому +1

    They're angels on earth ❤❤❤

  • @muackisaid9123
    @muackisaid9123 3 роки тому +4

    Many people with autism have problems falling asleep, gastrointestinal problems, behaviour problems, some have intellectual disabilities and other comorbidities. I wonder if there is a gen there that hasn't been discovered yet.

    • @teijaflink2226
      @teijaflink2226 2 роки тому +2

      There are some genetic conditions that can cause or cause autism but autism doesn't seem to come from just one genetic condion so there probably are genes that haven't been discovered and maybe sometimes it isn't even genetic. Makes me wonder if autism comes from some part of the brain that isn't working properly.

  • @qammararshad6891
    @qammararshad6891 3 роки тому +5

    Baby. God bless you. Amen

  • @nicosorce6919
    @nicosorce6919 4 роки тому +5

    Beautiful family, touching truly

  • @lightningstar6668
    @lightningstar6668 Рік тому +1

    Sydney is so beautiful. As a parent of 2 special needs children i kno hope is good to hang onto and the little steps are huge. So celebrate and be happy for any step forward.

  • @kathrynbuller8314
    @kathrynbuller8314 2 роки тому +5

    She’s absolutely gorgeous.. my baby has angelman syndrome and she’s smashing every obstacle xx

    • @lesliholt3004
      @lesliholt3004 2 роки тому +2

      My grand daughter was just diagnosed. We have so much hope and so many questions. Where are you located? I would love some first hand answers if you don’t mind me reaching out.

    • @HaruUraHH20
      @HaruUraHH20 Рік тому

      What is agnelmani I’m confused
      (I zon speak English well 🇯🇵)

  • @denishellums5692
    @denishellums5692 6 років тому +21

    These Angels have so much potential and love that even 10 percent improvement would make a world of difference..

  • @lilacscentedfushias1852
    @lilacscentedfushias1852 3 роки тому +17

    Who the heck dislikes this video? Weird people, what’s to dislike?
    Thank you for sharing your life story c

    • @CaptainSiCo
      @CaptainSiCo 2 роки тому +3

      Perhaps it’s meant as empathy. I “dislike” the fact you’re going through this.

  • @adriennewilliams6614
    @adriennewilliams6614 5 років тому +10

    She's just an angel sent from above

    • @ethanc1719
      @ethanc1719 2 роки тому +5

      Nothing to do with religion

  • @mollyAllison10
    @mollyAllison10 2 роки тому

    2 of my friends it I have a microcephaly

  • @marciafaria9160
    @marciafaria9160 4 роки тому +3

    Lindo♡

  • @TheSuperlee34
    @TheSuperlee34 3 роки тому +1

    Well.. Hope is all gone now. OVID failed phase 3

    • @KyuubiSam
      @KyuubiSam 3 роки тому +2

      Don't give up so quickly. There are many possibilities, and each trial informs future ones.
      Besides, where OV101 was unsuccessful, OV882 looks promising.

  • @eileensteele2497
    @eileensteele2497 3 роки тому +1

    Dont be so sad there is lo at therets of hope

  • @tigresse2856
    @tigresse2856 3 роки тому +2

    Beauty💗💖💖

  • @Jonakaiii
    @Jonakaiii 2 роки тому

    The mom is bangin though…

  • @Pegasus_Spirit
    @Pegasus_Spirit Рік тому

    Is she vaccinated? 😒

    • @serverelfrogue9597
      @serverelfrogue9597 11 місяців тому

      No it’s a genetic condition both parents have to carry it it’s not from a vaccine 🤦‍♀️

    • @GPC712
      @GPC712 5 місяців тому

      Educate yourself before asking an ignorant question. Angelman Syndrome is a genetic condition and is present at the moment of conception. It isn't caused by a vaccine of any kind🤦‍♀️.