LOOKING BACK IS TOO HARD

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  • Опубліковано 16 жов 2024
  • IN THIS VIDEO:
    THE WEEKS BEFORE DANIEL PASSED AWAY. LIFE WAS SO FULL OF JOY AND BLESSINGS. HARD TO BELIEVE HOW IT HAPPENED IN A FLASH.
    I MISS HIM SO MUCH. GRIEF IS BEYOND COMPREHENSION. LOSING A CHILD. ALL OF IT. MY WORLD IS STILL UPSIDE DOWN. ITS BEEN LIKE 3 MONTHS NOW. (TODAY IS APRIL 18, 2024)
    SOMEHOW, IN THE DARKEST MOMENTS, I FEEL THE LIGHT AND LIFT OF DANIEL'S LOVE. AND MY LOVE. BUT GRIEF IS LIKE A SPIRAL, NOT A LINEAR THING. THEREFORE, IN THE BEGINNING, IT FEELS LIKE YOU ARE IN A WAR EMOTIONALLY.
    I HAVE MUCH TO SHARE. I HAVE HOPE, AND A BEAUTIFUL FAMILY. THIS, HOWEVER, HAS REALLY CHANGED ME IN SO MANY WAYS.
    I WANT TO REMEMBER THE LOVELY SPIRIT THAT DANIEL HAD. HE WAS SIMPLY, PURELY, GOODNESS AND KINDNESS.
    Welcome to my channel...
    Adapting. Thriving. Changing. Growing. Facing the unknown every waking day. This is my story, and I hope that you find encouragement, community, friendship here. A journey of life with a child who was born with severe disabilities, and how we are making our way through the ups and downs.
    Daniel was born with a rare condition called Polymicrogyria. It was caused by the virus, CMV (cytomegalovirus). Daniel has extensive medical problems and disabilities, but we have created a loving support structure for him, and the 5 of us, and our pets, find lots of joy and love. A very unique family dynamic for sure!
    The Adapted Life Podcast, by Julie Hasselberger. listen !
    theadaptedlife...
    Music licensed by Epidemic sound and Premium Beat
    filmed with Canon G7X Mark II
    #caregiver #specialneedsmom #medicalcare #inspire #juliehasselberger
    #cerebralpalsy#disabledchild

КОМЕНТАРІ • 46

  • @katiehargrove852
    @katiehargrove852 6 місяців тому +5

    Hugs! Thank you for sharing Daniel and his story.

    • @jhasselberger
      @jhasselberger  5 місяців тому +2

      Your welcome. And thank you. I have had such incredible support. I am so grateful. I never thought his life would end so abruptly like this. It’s been rough. But somehow I feel drawn to share the grief too, hoping that maybe someone else is grieving and somehow we can help eachother. Even if it is just through a video. Sending hugs

  • @danielleg-tube4561
    @danielleg-tube4561 6 місяців тому +3

    I still miss seeing Daniel in your videos 😢

  • @LifewithSandy
    @LifewithSandy 6 місяців тому +3

    Such a beautiful memorial

  • @tiarasarjeant5649
    @tiarasarjeant5649 6 місяців тому +6

    I still miss seeing Daniel in your videos... His smiles made everyone's day. Crazy that my aunt (my father's sister) passed away from breast cancer on February 1st and it hit me hard. My family can't even imagine life without me since everyone loves me so much probably because I have something to do with my name witch I'm very grateful. I wish I can give you a big hug even though I only know you on UA-cam. I know Daniel is watching over you right now.

    • @alvinguzman9985
      @alvinguzman9985 4 місяці тому +1

      Al vin Gu 😢😢😢🎉

    • @fever_spike
      @fever_spike 4 місяці тому +1

      So very sorry for your loss. 🙏🏻♥️

  • @rebeccamccready1135
    @rebeccamccready1135 2 місяці тому +1

    Just subscribed to your channel and I’m very sorry about the passing of your son sending love and hugs and prayers to your family and friends ♥️♥️♥️

    • @jhasselberger
      @jhasselberger  Місяць тому

      Hi there. Welcome!! And thank you so much. My channel, like my life, is trying to figure out its direction and sharing what it looks like to be walking forward after such a tragic loss. So nice to meet you.

  • @EmilysLifeOnWheels
    @EmilysLifeOnWheels 6 місяців тому +2

    I’m still sad and in disbelief everyday ❤❤❤

  • @olesyaclark3753
    @olesyaclark3753 5 місяців тому +2

    You are in my thoughts, Julie. I am grieving with you.

  • @joycew3086
    @joycew3086 6 місяців тому +1

    I cried through this entire video!❤

  • @jerrilynnhenry4942
    @jerrilynnhenry4942 5 місяців тому +3

    My thoughts and Prayers are with you. You were a great mother. So sorry for your loss. I believe he is smiling down on you from up above. Take care

    • @jhasselberger
      @jhasselberger  5 місяців тому +1

      Thank you. So much. I miss him so much. It’s so hard.

  • @melaniet6367
    @melaniet6367 6 місяців тому +2

    Julie I feel so sorry for you and your family. You are an amazingly strong women, now and and all those years past

  • @randywindsor6674
    @randywindsor6674 6 місяців тому +2

    We love you and your family thank you for making your videos

  • @TheSchoenLife
    @TheSchoenLife 6 місяців тому +2

    I miss seeing your videos of your beautiful family. Praying for you my friend.

  • @xingcat
    @xingcat 6 місяців тому +2

    Oh, Julie. I've been checking in from time to time on your channel since we met at the UA-cam space all those years ago. Thank you so much for sharing all you have about your life with Daniel. I'm so sorry to hear about his passing. Much love to you and your family.

    • @jhasselberger
      @jhasselberger  6 місяців тому

      Thank you so much!! I remember you and the puppets! It’s been a rough 3 months dealing with the pain. I’m trying to follow my heart towards a new purpose. It’s a slow process. Grief is insane. Thanks again , I hope you are doing well

  • @PiebirdFilms
    @PiebirdFilms 6 місяців тому +1

    Thank you for sharing this difficult time with us.

  • @EmilysLifeOnWheels
    @EmilysLifeOnWheels 6 місяців тому +2

    He is a beautiful soul Julie love you all ❤

  • @Tinkerbell-g5g
    @Tinkerbell-g5g Місяць тому

    I am so sorry😢😢😢 rip beautiful angel 🙏😇

  • @kristypaul8067
    @kristypaul8067 6 місяців тому +2

    Such precious memories with Daniel ❤

  • @DomPlaysPS4
    @DomPlaysPS4 6 місяців тому +1

    Hello Julie, I’m so sorry to hear about Daniel I can’t imagine what you and your family are feeling right now. I sadly lost my younger brother back during Covid and to this day I still miss him. But my condolences and prayers go out to you and your family

  • @amarinarichards2358
    @amarinarichards2358 5 місяців тому +1

    I am so sorry for your guys loss of Daniel we will miss him so much and he is an amazing man he will be in our hearts forever ♾️
    (rip Daniel).

  • @fever_spike
    @fever_spike 4 місяці тому

    So very sorry for your loss…Daniel was a beautiful boy. 🙏🏻♥️

  • @jenng3649
    @jenng3649 6 днів тому

    💔❤️💔❤️

  • @annettepurtle3757
    @annettepurtle3757 6 місяців тому +1

    Oh Julie,I’m so sorry for your pain. But I miss Daniels smile when you go in his room and sing and dance for him.hed gethe biggest smile and laugh ! He loved when you acted a little goofey at him. RIP Daniel 🙏🏼 Julie blessings to you dear friend 🙏🏼😀😍🤗👋I’m here for you 😊

  • @dominiquepilon5910
    @dominiquepilon5910 5 місяців тому +1

    Im so sorry i didnt know Daniel passed away that very sad my condolences to all the family

  • @PaulAylward
    @PaulAylward 6 місяців тому +1

    Love Daniel very much and I miss him

  • @annettepurtle3757
    @annettepurtle3757 5 місяців тому +1

    Hi Julie 👋 I was just wondering how your doing ? I sure hope and pray things will get better for you and John,family 🙏🏼🙏🏼🥰Just thinking about you and the family. God bless you all 🙏🏼🙏🏼🎉🥰😍👋

  • @LisaClamp
    @LisaClamp 6 місяців тому +1

    I still miss Daniel

  • @catpotter9503
    @catpotter9503 6 місяців тому +1

    Hi Julie I miss Daniel so much ❤❤❤

  • @shawnafsworld7431
    @shawnafsworld7431 6 місяців тому +1

    Each Day was a Real Blessing With Daniel, Although we all Miss Him
    I Hope He Is Happy In Heaven he’s Now able
    to Talk , Walk. It’s hard I Knows he’s Watching over you all & Cheering you on. I’m Sure you will have dreams of him As he Makes sure you are doing Good. He Would Want you All To Take Good care of Yourselves too. Jon , Sarah , Thomas Julie , Henry and Holly , Daniel will always be with you all. I Hope Thomas Is Okay
    too and that Thomas Doesn’t Feel
    Guilty About Dans passing it wasn’t Anyone’s Fault, I’m sure it Was God Calling Daniel back home to Heaven to be with him. Bless you all during this difficult time in your lives. But most importantly Daniel Knows that You
    All Love him.
    ***** I wonder if You had Been their with him
    , Would He still have passed away from the illness ? ***** HE Looks Physically Tired in the Video, God bless You Daniel he Has Family in Heaven too now who are with him Surrounding Him With Love
    Not Every Family or Every Parents Are Able to do what you all Have done , Some People Aren’t as Lucky God Blessed you all With 26 Beautiful years with Daniel and your Beautiful Family,
    BUT he Looks at Peace With you. In these video shots Bless Your Family Julie it’s Very Difficult when you Loose a Loved one. I’ve lost so many people through out my
    32 Years so far of living it Doesn’t get Any easier. My Sincere Condolences To You all During this Difficult Chapter through Your life.
    - All of The FIRST Holidays are Harder
    when you lose someone
    I lost my Dad in 2006 17 Year ago I Was barely
    15 Years old then

  • @randyscott9952
    @randyscott9952 5 місяців тому +1

    Sorry Julie family we had this happen last year

  • @laurawhite1679
    @laurawhite1679 6 місяців тому +1

    I miss seeing Daniel in your videos now

  • @yeseniaestrada1746
    @yeseniaestrada1746 2 місяці тому

    Aww how sad when did he pass away. My condolences to you and your family.and how old was he?He was so handsome and smart.God has gained another angel in heaven always remember he is looking down on you,and always remember you are a strong person. God bless and give you strength in these hard times. Hugs and much love to you and your family from California.

    • @jhasselberger
      @jhasselberger  Місяць тому

      He passed away on Friday January 12, 2024

  • @alvinguzman9985
    @alvinguzman9985 4 місяці тому

    Al vin Gu zman love 🎉 man

  • @blueamenaa749
    @blueamenaa749 5 місяців тому

    ❤❤❤❤❤

  • @mjcompas
    @mjcompas 6 місяців тому +1

    I look at boys like my fake little brothers it like I watch them grow up

  • @JustCand
    @JustCand 4 місяці тому

    What happened

  • @bradleyburgoon623
    @bradleyburgoon623 4 місяці тому

    Sorry i Would have guess uti?

    • @jhasselberger
      @jhasselberger  3 місяці тому

      Probably. He only had one or two his whole life and they were not easily detected. 😢

  • @alvinguzman9985
    @alvinguzman9985 4 місяці тому

    Al y