Cluster Headaches - A Comparison to Migraine

Gary W. Jay, MD, DAAPM, FAAPM

[@cosmicthespider7974]

I've had many cluster headaches and I always described it to my doctor as someone stabbing me the eye with a hot ice pick. I never knew that was such a common description

[@user-Alhashemi]

Before bed, drink 3 tablespoons of olive oil
And also 3 tablespoons before the fly
For 3 days

[@leewoods1030]

Same!!!!

[@Gachaproncess]

that’s what it feels like to me too

[@bettiechambers408]

I've had them since I was 18 and I'm now 58. I always described it as someone digging in my temple with a screwdriver.

[@T_S_x_x]

i feel so sorry for all the victims of this npainfull headache. truly.

[@thelonelyislands1]

The difference I experience is there is no throbbing, no respite, no remorse from the creature. It just strikes and devours every milisecond until eventually it backs off, but it leaves a mark on you, your night is ruined and head pangs with the memory.

[@arcticspirals]

As a cluster head thank you for speaking out. I have hit my head on walls, once my husband was taking me to er I opened the car door because hitting the pavement was better than what I was experiencing but I couldn’t think anything through, he closed the door and and was awe struck and continued to the hospital. I was given oxygen to abort the headache but the second headache could not be avoided or medicated. We need more research into cluster headaches

[@mmoran3]

Yes!!!! As a sufferer of cluster headaches, I would literally pull my hair so hard that I was ripping it out, somehow the pulling of the hair and the extreme rubbing my left eye would (not take the pain away) but I guess try and redirect my attention from the excruciating pain in my eyeball!! The worst pain I've ever felt and when it goes away your completely exhausted mentally and physically!I was put on steroids which did nothing.. The only thing that helped was imitrex.. only the injection would help, the pill form did nothing! Unfortunately each shot cost 100$ (with insurance) and when your in a cluster cycle that lasts a month (mine anyway) that's 30 headaches A month at 100$a shot.. The whole situation sucks ugh!!

[@ricdavid7476]

Hello chaps I am having a very bad one I split my injections and have had 5 this attack so can't safetly take any more they have not touched this attack so next step is the emergency department but what for I know they can't help and my wife is a nurse there and I don't want to embarrass her I'm 65 and I've had these for 35 years and to be honest death sometimes seems like not such a bad thing. I am a chronic sufferer so get them pretty much constantly . It's New Years eve and my wife is on a night shift . I have had an attack fir the last 12 hours I split my immigrants injections and have had 5 shots today probably over the recommended dose but 5 is a record for me perhaps it's a New Years gift from the devil. God bless all you CH sufferers out there

[@mmoran3]

@@ricdavid7476 Buddy, my heart goes out to you. My cycle only lasts a little over a month each year. I would only get 1 headache a night for 30/40 days during a cycle and I couldn't bear that!😣 I couldn't imagine having to go thru what your going Thru! I only got 1 headache a night and I was completely exhausted all the time during my cycle. God bless you buddy I'll pray that they let up soon for you!👏 Much love!

[@ricdavid7476]

​@@mmoran3 Cheers Mike I think you are in the good old US of A so are a few hours behind us. 2019 is only a about an hour away now from us here so have a great 2019 Mike. We have a great organisation called OUCH here in the UK it is a self help group started and run by CH sufferers please pass the name around they are great. I was just looking at some of the info on it.
My last injection about an hour and half ago seemed to have had some effect or else the cycle was gearing down whatever I have managed to stop screaming and stopped bashing my head around so that I can try and be vaguely human again but I feel like I have been through 12 rounds with mike Tyson in his prime and I am a 12 stone weakling.
God bless

[@mmoran3]

@@ricdavid7476 God bless you buddy, I know what pain you feel !! It's the worst, I wish with my soul that you go into 2019 pain free!! Love you buddy!! As 2 people that have never met, we share one common enemy!!

[@mikeyg6631]

I have had clusterheadache for 24 years now. I would not wish this disease on my worst enemy. They are not life threatening, however they are life changing. Especially in a cycle. Pain free wishes to the one who is suffering 🙏

[@defiscanner1927]

I've had them at least 6 years now and it's an excruciating pain which paralyzes me every time

[@DrRyanHooker]

I screamed into a pillow all night. It was the purest feeling I've ever experienced. No love, no hate, no sadness, no happiness, nothing was as pure as this. It was a thin laser of pain shot through me from the top of my head, through my left eye, out the bottom of my jaw. As soon as one went away, I had about 10 min before it all started over again, all night, over and over again. A cracked tooth triggered something horrible. I ended up taking a hard bristled toothbrush and physically scrubbing the nerve from my tooth out of my head. That wasn't so bad, it was my head and my eye that hurt, not the horror movie removal of the nerve.

[@vangoghsseveredear]

That sounds terrible, but not a cluster headache. Cluster headaches occur randomly, and aren't caused by something like that... they also don't last hours like you said. In my case, I get two a day, almost on the clock, but they disappear for hours. Then one day they just stop happening until the next year. Your account of the pain sounds pretty similar though. Hope you're alright now dude

[@michaelbone1066]

That's my go to....screaming into a pillow,I've suffered from clusters for many years, I hate when someone says they get migrains they understand...I'm like bullshit you have no clue

[@andresi126]

@@michaelbone1066 True, noone seems to understand how painful it really is. I have cracked my skull open and some other stuff, but nothing will ever come close to one of these headaches.

[@TH-bj1pb]

When I had my first round of attacks, I had my dentist de-root a healthy tooth and pull two wisdom teeth out. I was diagnosed with CH after the second and currently last round of attacks. The feeling you describe resonates very much with me. The color I can add to this description is pitch black with veils of red, it was like a insane trip. 100% guaranteed when I went to bed, I would get stabs inside my skull and lightning strikes down my jawline to make sure I couldn't sleep or rest my body. The stinging pain behind the eye, the right side of my head, by the upper jaw and ear, felt inflamed and warm. I was so fixated on my teeth that I avoided any sugar, I deep cleaned my teeth multiple times a day in fear of getting this severe pain back. The days after the attacks finally ended, it all felt very distant and unreal. I have always cleaned my teeth carefully, and the problem was never with my teeth, though I clean my teeth even more carefully now.

[@bigmoose99]

@@michaelbone1066 my dad had them I have them and he told me he would rather be back in Vietnam than have a cluster headache

[@ilyasster]

I had Cluster Headache attack that lasted for 3 months, each day 4-5 attack x 1-2 hours lasting. I was about to suicide because none of the painkillers I've tried worked or helped to relief the pain, and I started to afraid of the idea to continue my life with this terrible headache. Thanks god it vanished after 3 months slowly. But few years later I would still scared if it will come back or not.

[@BooBones]

It will come back one day it's inside you waiting biding it's time

[@josephharrison9600]

That's the stigma here, it gives one the fear of subsequent attacks

[@gdgf154]

My headaches are this same way.. they have been gone for about a year now and I just started getting them again 3 days ago now I'll have to go through 3 months of torture.. I get about 2-3 a day tho not 4-5

[@rounaqjahan944]

Going through this headache for about 12 years now it was misdiagnosed as chronic migraine but nothing worked it comes after every year typicaly but this time now it came early just after 8 months..I changed my doctor he listened to me and told me it is cluster headache and prescribed me varapamil tablet for prophylixis and asked me to inhale 100% Oxygen when I get headache and thank God it is working. Its my fourth day without a headache

[@Goodboy0953]

Hot shower with water hitting right on the spot. Best to have highest water pressure like from a wand. Take it from me it does help a great deal. I would run the water out on the master bathroom then head upstairs and do the same.

[@ricdavid7476]

very interesting but the music is giving me a migraine

[@barry5643]

ric david AGREED! Who puts that kind of noise & tempo in ANY headache video?? "Please make it STOP!!"

[@barry5643]

The EDNC Huh? ( Im a cluster & migraine sufferer, not a doc. I agree w/your frustration over 'white coat experts'. I found 1 good cluster doc in ~27 years.)

[@TheEDNC]

Barry I was referring to the guy in the video! Sorry for the confusion, I was simply answering your question.

[@ricdavid7476]

@@TheEDNC I think the guy in the video is a good man he is trying to help people like myself who is a chronic CH sufferer without good unique people like this bloke who obviously loves the subject and is a compassionate human being then we will never get a cure for this horrible condition. he is one of the good guys in my book

[@mikeyg6631]

Ha haa!

[@yunrunng2000]

I have cluster headache too. Once the pain left, the relief I felt is immense...

[@defiscanner1927]

100%

[@karynhuber3118]

I get both Cluster headaches & Migraines! I have hit my head on walls. I much prefer the feeling of an “ice cream headache” to any of my migraines or cluster headaches. I had migraines 6 days a week for seven years straight!!!! Because my Doctors didn’t believe me.

[@silversnow-gamingchannel]

And what is more painful? I do only have migraines

[@karynhuber3118]

@@silversnow-gamingchannel Oh I’m so sorry that you suffer too. They both can drive you nuts. People think the cluster headaches are worse. But they are similar in so many ways. Hard to choose

[@silversnow-gamingchannel]

@@karynhuber3118 Could you tell me what it feels like? I mean I can watch Videos but can't understand the pain. what is it like? My migraines, pain whise, are like someone is hitting my eye and side of head with a burning knife again and again and moving it around there. My head vain swells and eye gets watering. Sometimes I am not able to speak or walk anymore and if I have to walk I need multiple minutes for like 5 steps. Sometimes I may hit my head with my hand to get another pain cause I need to not move. What is it like whit cluster?
And yes so sorry for you as well! I also suffer from Fibromyalgia, I am 20, life isnt easy with chronic deseases

[@DevinEggert]

I have cluster headaches and this is a great explanation, it literally feels like a weird mix of the most horrible stabbing and electricity above my right eye. I can even feel a ball of something when it happens if I press. I literally imagine cutting my eye out to cope. (Which sounds horrible, but that's the only thing that helps.)

[@3rdStageTruth]

think what’s the worst about these headaches is the despair. This is something you can’t sleep through, you can’t medicate through. If you are sleeping, even with sleep aids, it will wake you up and by that point you’re up with the most severe of the pain. There have been weeks gone without sleep. the despair is knowing it’s coming. It’s groundhogs day, and you know exactly how bad it’s going to be. And there’s no stopping it.
The thought of being out, driving, getting groceries, and every little head throb triggering the panic of wondering “is this the start of another one”. Mine are timed to the same hour of each day, and each cluster cycle is a different time. Currently it is the 10am hour. It’s been 2pm a previous cycle. It’s been 11pm on another cycle. You remember the times, you remember the pain, and you anticipate it, you prepare for it and then it hits and it remains the worst feeling of your life. I’ve ripped through my mattress with my toes just trying drive my face into my pillow. The yiu throw away the pillow and try the harder mattress. Then you make a fist and drive your eye into your fist. You just want to take a serrated ice cream scoop to your eye socket and just remove everything. You can’t touch the pain, it’s too deep. It pulses, and it tricks into thinking it’s subsiding, a split second of relief that feels like forever until it just grabs you again and squeezes, crushes, slowly, worse and worse until it lets go for another split second.

[@Phoerocks]

Blimey, I hope you are okay. We need more medical research into this.

[@jmeboil]

I hear this and at least know you’re not alone. I get 2-3 good months a year but typically by 6 months into a cycle I’m almost out of my mind and all I can repeat is the word “relentless”. I try to tell myself “you have to stay calm” but it’s hard. It’s really hard. A nerve block will by me a week of relief but insurance won’t pay. It’s worth it if you’re about to lose your mind tho, ha.

[@mouseinthehouse67]

UPDATE:
my hand on bible try micro dosing of shrooms. It saved my life. So desperate 4 help i took 1 tiny piece the size of a number 2 pencil eraser 10 months ago and NO CLUSTERS SINCE.
Micro dose only.

[@yohaAlt]

Hey I tried microdosing for other stuff and for me personally, it didn’t help much. But microdosing is a very healthy treatment options for lots of stuff so I encourage people to try!

[@jezzasmokin1802]

Just because you know, doesn’t mean you understand.

[@experimentalelemental92]

Many ppl have undiagnosed Arachnoid Cysts. Drs do not want to treat them. They only show up on MRI scans & can be small, but depending where they are, can cause all sorts of symptoms, including imbalance, chronic headaches & vomiting.
Arachnoid Cyst Awareness groups do exist.
Sometimes a bag of frozen peas has worked just as well as their pills & potions, & hasnt made me sick or turned my gut into a battle ground.
Iv suffered 30years. If anyone finds a good uk Dr or Neurologist, please share.

[@caligulamaximus6186]

I have never had a cluster headache, nor have any of my loved ones had any history of them.
But Jesus, the stories that I've heard of, it really makes me sick to my fucking stomach that people have to go through this. Sitting up for hours, sometimes double digits in length, just DEALING with apparently the worst pain KNOWN TO MAN.
Just being related to someone with cluster headaches must be terrible to deal with, knowing that there is most likely literally nothing that you can do for your loved one except, be there, must be a sucky ass feeling.
Edit: also, the videos I've seen of people having cluster headaches, that shit is staying with me for a long time.

[@zepho100]

I’m going through a cluster cycle now and this comment made me feel so happy, that some empathy exists for us. Thank you. It’s such a horrid awful affliction. The pain is intense and it takes an emotional toll.

[@victorrosas9082]

All I have to say is I would never wish this pain on anybody it's been a year and a half since my last clusters no joke

[@bigburrito2325]

I’ve been having cluster headaches all of my life thee the only types of headaches I can have anymore I only recently found out why there was pain behind my eye when I had a headache and I have to say I had no idea they were this bad to people who haven’t been having them all there life and I need to say I’m sorry to everybody whose had them who never grew up with them

[@mudjashorts1766]

@@zepho100 Hey James, did you stop having headaches?

[@zepho100]

@@mudjashorts1766 hey, I’ve them every year since I was 15 (I’m 32 now). I think the only effective treatment is Psilocybe but they’re not available where I live

[@manifestgtr]

This is how I describe cluster headaches to people who have no reference for such a sensation…it’s like an ice cream headache behind one of your eyes, only it’s hot and it lasts for an hour. That description typically snaps people out of the typical “oh yeah, I get migraines…I feel your pain” rap. It’s not even about trying to “one up” someone and collect victim points. I just want people to understand why I HAVE TO disappear sometimes and be by myself for a while a few weeks out of the year.

[@gdgf154]

Yeah I hate that people don't understand how truly severe the pain is. I get migraines too and I'm happy if it's a migraine instead of a cluster headache. But like 95% of the time they are cluster headaches they are no joke you just have to deal with the pain

[@heroicjourney2508]

If this can help anyone, then great!
I have suffered with "hortons headache syndrome - cluster headaches etc." for 15 years plus...my personal combination for relief (sometimes stopping it completely if you can catch it early enough!) is...open the windows and doors to oxygenate the room and get some airflow going on if possible, place an ice pack to the affected side of the head to constrict the vessels / dull the nerves, take a few blasts on a quality sinus relief up the affected nostril, taken with 3 Sumatriptan 50mg, plus 2 500mg co-codamol...you will still experience "dull" pain, but reduced pain, only provided you catch it early doors. But as said, early enough, and you can stop it fully manifesting - I also turn the lights out...however, I'm not to sure that this accomplishes anything other than calming me down.
Everyone is going to describe the pain differently due to repertoire of language / ability to express themselves eloquently and accurately etc. so you cant rely on these forms of description. Simply...if you know the pain, and you legitimately suffer from this, then your number one priority should be helping yourselves and others through experienced, tried and tested methods of relief. It is the worst pain that you could possibly endure (within your head) and without a shadow of doubt, the worst kind of headache to exist...its not called suicide headache for effect. There are other methods out there for sure, do some research, but my personal experience is during seasons of activity - nothing "really" works (I have tried everything - side affects and all)...the above is just my method for "dulling" the pain - but as said, every so often, I'm lucky enough to catch it cold. Good luck!

[@rederickfroders1978]

Im having a migraine right now, but I feel so much more sorry for people suffering from cluster headaches. Im suffering, but I'm really, really happy that it isnt a cluster headache...
Best of luck and health to you cluster headache sufferers. Nobody deserves this pain! Nobody deserves migraines either

[@eliasacka]

Thanks for the support. I know the difference between a migraine and a cluster headache. I can assure you, cluster are like 20 times painful than a migraine. I even hit me face against a concrete wall trying to that new pain from the hitting will mask the pain of the cluster. I believe everyone that suffer of Cluster H had done pretty weird stuff trying yo get rid of that pain

[@charger771]

Since my early teens I would get these cluster headaches every year for like 2 to 3 months straight and this year I get them in the middle of the night. They are so bad that it feels like someone put a giant hot C clamp on your head and is cranking it down hard while someone else is stabbing the inside of your right eye and your nose with a hot needle. You can't look at any source of light and you cannot lay down because it'll get 100 times worse than standing up. You do want to slam your head against the wall and want to yell out the pain because this type of headache is no joke. They last 20 to 40 minutes and when the cycle ends its like a snap of a finger, everything is gone, no more pain. It's so weird

[@jimmy2k4o]

It’s almost euphoric when it snaps away I’ve been crying and punching walls to manically laughing in seconds because I’m so greatful the pain has passed and I’m clear for another hour or so

[@defiscanner1927]

They can last much longer even an entire day

[@robertrondholz436]

Mine feels like I'm being electrocuted where my brain meets the left eye and each jolt is cracking my skull above the eye this is my eighth year. I pray you have long remissions, we hit the pain jackpot clusterheads.

[@user-Alhashemi]

Before bed, drink 3 tablespoons of olive oil
And also 3 tablespoons before the fly
For 3 days

[@marialimas1839]

The last medication they given me is Indomethacin 25 mg it has helped some but I am afraid of taken them because of the side affect if a doctor reads this tell me it is safe.Thank you Cluster Headaches Go Alway

[@BillyJeanIsNotMyMother]

The worst thing is that any legal treatment available costs more money than is reasonable. I've had them since I was 8. They won't kill you, so you live with them, if you can call it that.

[@Theemptythroneistaken]

It feels like someone has stuck a bike pump into the head and is just pumping vast amounts of air in and your heads just expanding.

[@DrakusRecords]

I think I get a combination of cluster headaches and migraines. There are times where I can't lie down, have to walk around and hit my head against the wall like he described. Other times it's more mild but lasts all day and just have to lie down in a dark room and just vomit all day. Both are terrible.

[@mostlypeacefulslav1663]

Same. Do you get a lot more of the "migraines" and less of these? or something similar? I admit,, they don't exactly know what I deal with, outside of the migraines I mean, but it is VERY close in description to a cluster headache, very. I get like 4 attacks a year though, and apparently, that is not very common, so they are somewhat unsure. They even thought trigeminal neuralgia, which has relation to migraines and cluster also?(I think, I highly admit I could be wrong here). Anyway, I was in a headache program years ago, moved, and just got back into one. Migraines, I get weekly.

[@DrakusRecords]

@@mostlypeacefulslav1663 I don't get them as much as I used to. But I find drinking a lot of water and takin pain killers with caffeine the moment I feel it coming on prevents most of them.

[@experimentalelemental92]

Many ppl have undiagnosed Arachnoid Cysts. Drs do not want to treat them. They only show up on MRI scans & can be small, but depending where they are, can cause all sorts of symptoms, including imbalance, chronic headaches & vomiting.
Arachnoid Cyst Awareness groups do exist.
Sometimes a bag of frozen peas has worked just as well as their pills & potions, & hasnt made me sick or turned my gut into a battle ground.
Iv suffered 30years. If anyone finds a good uk Dr or Neurologist, please share.

[@julliano2310]

Had to quit my job wheni got the CH... It always occur at the same time everyday and it's on my work hour, my boss can see my suffering when he look at my face my nostril start running and my eye starts tearing and my half face is red and sweating

[@carlosvejar3896]

WTF!!! I get aura migraines with the most horrible pain that the only description I have been able to come up with is... “a huge nail going through my eye and out my occipital lobe or base of the back of my head”. I find myself pulling on my eyebrows and applying harmful pressure on my eyes over my eye lids to redirect the pain somehow. I have to walk crouched like im going to fall head first onto the floor because lifting my head causes the headache to pulse like someone is tugging at what feels like a metal rod going through my eye. When needing to vomit, the pressure caused by the initial gagging also makes my head pulse and just have to try and not pass out while puking. I’ve had these since the age of 8 and am 43 now. So many jobs and relationships lost because of this hellish desease.

[@MSM4U2POM]

*"So many jobs and relationships lost because of this hellish desease."* Ditto, my friend. No-one is going to hire you when you can't do the simplest things for three to six months a year. And you're right about relationships, too: you find out who your real friends are when you have an attack in front of them, don't you? All the best, bro. You are not alone.

[@miriam4235]

Yes, so recognisable.

[@LlamasAreCuteAndFat]

One common misconception about cluster headaches is that they only last 1-3 hours. Mine are usually anywhere between 2-7 hours long

[@stephencooper7459]

They evolve the headaches . Hard to treat. I got general occipital nerve blocks. It saved my life to be honest still on meds . But it's different life .it's worth looking into . There's episodic then you've got chronic if that happens you're really fucked. Good luck with you're fight .

[@defiscanner1927]

100% true!! they can even last an entire day

[@gdgf154]

Mine for about 1-2 hours but sometimes I will get 2-3 day

[@christiansigrist9244]

​@DeFi Detective à couple of weeks ago I had one that stopped after 3 days.

[@BillyJeanIsNotMyMother]

What I've noticed is that there will be times when it stops for a minute or lets up a bit, and then that monkey with a crowbar stabs you in the eyeball again.

[@johnnybizzle2748]

I can tell you they are excruciating and peculiar. They'll occur at the same time of day sometimes for days in a row, maybe longer. They'll come on fast and hit like a freight train, like a hot poker searing the inside of your brain from your eye to about your ear on one side of your head. Your eye may droop and water. Your nose may run. You may begin to rock back and forth and hit your head on something, maybe as a natural reaction to disrupt the feeling if only for a second. You might groan and moan and hit things. Sometimes it's hard to be still; it feels like you have to move and have to rock back and forth. It's very intense and very painful. I've used oxygen for the last couple clusters I've had, and I think it works to get the headache to go away more quickly. Not much else seemed to for me, but I may not have tried as many treatments as others. I get the clusters about once every 2 years, and I just started one last night - had a precursor headache around midnight that woke me up and then another a couple hours later that was more like a normal cluster headache. If you suffer from them, don't give up. I know terrible thoughts may enter your mind when you're having one, but remember, it won't last forever, and yes, you are stronger. Hang in there. Be tough. Love you guys.

[@dontboyr]

I always thought cluster headaches were migraines since i had them at the age from 5-10 but it stopped (it comes back every 4-12 month) but when i had migraines i was like bro it isnt even bad i

[@luckymanhndrsn7222]

As a cluster headache sufferer, mines comes in the fall months for about two yrs straight, then it goes into remission for a yr or two then comes back with a vengeance. I have about 5 minutes from the 1st sign of it coming then it’s over !! I get ice packs stick on the back of my head and suffer thru it praying it’s not a brain aneurysm then if it goes on for too long a get a knife or fork and start stabbing my leg ,to divert the pain. To no avail. I pray there a cure for us sufferers.😢

[@susanjune9637]

Soooooo smart!!! You know about us! Thank you!!

[@wolfyds]

I came here to learn about headaches and i am clicking out because the background music made my migraine worse 😭

[@omrihaim]

Wow, never knew George Lucas was an MD! Respect!

[@Ihatewarmpillows256]

Thank you, I never knew what these were called so now I can tell my doctor and it well clear things up much more

[@bjac1000]

Imigran! Go get it immediately. It's a nasal spray, horrible taste but the cluster headache is gone very quickly. Life changer for me

[@MSM4U2POM]

Yep. Takes five to ten minutes to work, but it stops the pain dead in its tracks. It's got some nasty side-effects if you overuse it, so be careful.

[@DJ-dn2bw]

I've never hit my head against a wall and I can sleep when I get then but this is answering my questions

[@ClusterHeadSurvivor]

I get 4. Chroic Tension Chronic Migraines and Chronic Cluster Headaches...and now and undiagnosed one :(
yes universaly we will all answer the exact same description of an attack of CH

[@CiggyButtBoi]

I wanna kill myself because of cluster headaches. My life has been ruined by them. I've lost friends, jobs, my happiness...

[@CiggyButtBoi]

I'm so so sorry you have to go through that my heart goes out to you

[@mouseinthehouse67]

I hear each and every one of u. Im a sufferer with frickn cluster frickn
Migraines. Your eyes your teeth. Your jaw line your frickn ear. Im so sick of having this. My head is usually soooo soar after one i cant brush my hair.
Does anyone else get a HIGH PITCH IN EAR?.
Im sorry 4 all of us. Our lives suck. The depression that grabs you after having this an trying everything to no avail an knowing its coming AGAIN....
GOD HELP ALL OF US.
GOD BLESS ALL OF US.

[@user-Alhashemi]

Before bed, drink 3 tablespoons of olive oil
And also 3 tablespoons before the fly
For 3 days

[@ashleycrutchfield6575]

You're the first one I've seen describe those additional symptoms, like I have: teeth pain, jaw pain, ear pain and ringing in the ear on the side of the cluster. :(

[@eliasacka]

Maybe you have more than a problem. I have cluster and trigéminal neuralgia, both on my right side. On the back of my ear is an electric shock while my face is suffering the attack of cluster, both at the same time. It’s frustrating. Depressing. Exhausting. At the moment am trying q new med, if doesn’t work I have to go to surgery

[@crystalkittycat8517]

Thought I had a cluster headache but after watching this video yeah I don’t. I have a migraine cluster headaches sound worse then migraines. I can sleep with my migraines which is uncomfortable but I don’t come to that area where I want to hit my head hard against a wall.

[@eliasacka]

I already banged my head against a concrete walll. I’ve done but doesn’t solve the problem.

[@sly_cat]

I’ve had one before, It felt exactly like how he described it, the pain made it literally impossible to walk.

[@MrHanvin375]

Yep. Hot poker analogy is very accurate. Had them for 20 yrs. Been free for 9 yrs.

[@eliasacka]

After the attacks ends you don’t feel happy. You’re exhausted physically and emotionally, at this moment September 2023 I find a med is working so far.

[@aayushivasnik]

Yes it feels like there's someone inside trying to poke their way out, when I first got them I described them jokingly as athena trying to be born. Ughh it's been 4 days, I'm exhausted. But I don't feel like moving when i get them

[@miguelsousinha2613]

I found my cure, there is a treatment. [e-mail] miguelsousinha instagram.

[@dr.dankytp8683]

@@miguelsousinha2613 dont lie you scum bag

[@miguelsousinha2613]

@@dr.dankytp8683 why would I lie? And why are you calling me scum bag? it is just my personal experience. It worked with me. If you need some evidences feel free to ask. But apparently your Cluster Headaches come from madness, there is no cure for you.

[@dr.dankytp8683]

@@miguelsousinha2613 ohhhh sorry I know what you mean now you mean that you found a cure sorry about that I thought you were lying and giving your self clout

[@miguelsousinha2613]

@@dr.dankytp8683 well next time be aware that some people are honest people. I would never joke about this. This illness ruined my life more than 10 years. I did around 30 head surgeries and I am now 15 months pain free. I am/was chronic, having 8 attacks daily, one year cycle, no gaps.

[@Christian-rn1ur]

I never see anywhere mention the physical sensitivity in migraines, was honestly starting to think I was the only one. Imagine if you could feel each individual pore on your skin, each individual hair on your head, as of they were alive. You can't sleep, you can't relax, you can't even wear clothes because it's too uncomfortable.

[@MSM4U2POM]

Allodynia is mentioned in the video starting at 02:13.

[@birdlife4065]

You know what's messed up every time when I tell someone I'm suffering from a cluster headache attack they make fun of me and they act like I'm just having a headache we need to change the name of cluster headache that's my personal opinion

[@lestki]

ditto. "Oh it can't be that bad, not as bad as migraines". etc. etc. I don't tell anyone anymore because no one listens and they don't want to know. Especially those who have migraines. At least that's what I've found.

[@MSM4U2POM]

That's a common reaction from non-sufferers. I once had an attack at work and got a bollocking from my so-called boss, who told me to 'man up' and informed me there was no room for drama-queens in his department. Just shows what we are up against: what can you do against such a force-field of ignorance?

[@silversnow-gamingchannel]

@@lestki I do suffer from aura migraines and I want to understand what Cluster is like. I mean I can watch Videos but can't understand the pain. what is it like? My migraines, pain whise, are like someone is hitting my eye and side of head with a burning knife again and again and moving it around there. My head vain swells and eye gets watering. Sometimes I am not able to speak or walk anymore and if I have to walk I need multiple minutes for like 5 steps. Sometimes I may hit my head with my hand to get another pain cause I need to not move. What is it like whit cluster?

[@DarkGrayson]

Oh good, thanks for the conference boost. I’m sure this will be like a walk in the park

[@cassiep811]

I used to get these..it took all my strength not to scoop my eye ball out with a spoon because I thought it would feel better.

[@Zabarotropitili]

That's I never close my eyes to stay with my pain alone. People like me run, lift heavy weights, scream, hit themselves to distract from the cluster headache.

[@guaranteedallauthentic6074]

The Back ground MUSIC gives me a lot of migraines

[@Loungemermaid]

Mine have never been that severe but does feel like my eye is gonna explode

[@kevinucount8686]

Hey, I have the same problem, mine are not severe, they typically last 15 to 20 mins, but my eye is 70% my eye is popped out.

[@kevinucount8686]

Do you have some info on possible solution, or even the correct diagnosis ?

[@theepicmemes9891]

So it's two options, you are in a starting stage that will be stronger with time, or it's not a cluster headache.
I lasts for an hour or more sometimes, it's repeated and the extreme pain is in the eye like a hot poker rod going through your eye.
I tear, nose blocks and can't breathe when it comes, I feel like vomiting and can't stay still anywhere. I hit my head in the wall hard, put cold wet towel on my eye, put the AC on my face, tear like crazy in extreme pain for an hour and 15 min when it comes. I've been having it for 3 years now, each fall, and I got my 4th within two days just 5 hours ago. Am expecting it tonight when I sleep and that's pure SH*T feeling!!

[@Loungemermaid]

@@theepicmemes9891 sending good thoughts and peace! And they’re getting worse for me :(

[@kevinucount8686]

@@theepicmemes9891 Have you tried beta blockers? I took them only for a couple of weeks, and my migraines have been better since then. Other than that, do you smoke ? How is your diet, what have you tried so far? For me it gets worse when the weather is shitty. What really fucks me up now is my eye, and the fact that no doctor knows what the problem is. Have courage brother.

[@SmellGoodOnion]

I hit my head on the wall, actually smashed a hole in my door two days ago from it, laid on the floor screaming and asking the man up above why this happens. They go away for a few months then come back months later every single day for a month, multiple times a day. Like I knife jabbing my eye ball and it swells shut. Actually have one at this exact moment . Currently trying not to break my phone out of pain

[@xostephy1]

I hope you're okay!! :( Have you tried any medication yet for this? I recently was diagnosed just on the weekend and i'm trying out steroids now

[@SmellGoodOnion]

Stephanie Yung I use excedrin but I have a doctor appointment scheduled next week so hopefully everything works good. They’re the worst when they come back. I get them everyday at least 3 times a day. Really hurt. How do the steroids help

[@experimentalelemental92]

Many ppl have undiagnosed Arachnoid Cysts. Drs do not want to treat them. They only show up on MRI scans & can be small, but depending where they are, can cause all sorts of symptoms, including imbalance, chronic headaches & vomiting.
Arachnoid Cyst Awareness groups do exist.
Sometimes a bag of frozen peas has worked just as well as their pills & potions, & hasnt made me sick or turned my gut into a battle ground.
Iv suffered 30years. If anyone finds a good uk Dr or Neurologist, please share.

[@ilqar887]

@@experimentalelemental92 where is yours located?

[@ilqar887]

@@experimentalelemental92 our shit I had infection in my frontal sinus very bad one(frontittis) could that be the case?

[@techtiger8]

I have ora vision loss plus numb mouth or cheek pain is behind my left eye I have thrown up feels like someone gonna knock my eye out 37 plus years didn't have one for yrs woke up with one today panicked don't want this anymore ruins ecerything

[@caslone88]

Had my work cluster headache last night. Was hitting my head on the carpet floor because I didn’t know what to to. Sitting on the shower floor with a hot shower helps me just relax through the pain.

[@ashleycrutchfield6575]

Does anyone have worsening, shooting pains with the use of ice? Also, worsening or 'build up' of pain, with each "jolt"?

[@TheEDNC]

I too suffer from these, and I greatly suspect they are brought on as a result of accumulated antibiotic neurotoxic sensitivities from childhood to adulthood.

[@samuraisoul1043]

I have too . I understand the beast. You perked my interest what do you mean by neurotic antibiotics. Just curios .

[@izachu904]

I have diagnosed by cluster headaches first time in my 23 and weirdly last month i have used 20 pills of amoxicillin for various treatments. This puts a suspicion

[@TheEDNC]

@@izachu904 Yes, accumulated pharmacologic toxicity is real, ask any PharmD specialist. The actual drug(s) in question are irrelevant. That’s because as some drugs may be harmless to some people but not if your CNS or vascular system is sensitive to the toxic effects of the drug in question. So every time you’re given the drug by a doctor to ingest, it’s possible that it will make you more susceptible over time, say a lifetime and thus more vulnerable to injury until it actually does send you over the cliff.

[@TheEDNC]

@@izachu904 Tell your doctor you believe the antibiotics may be triggering your cluster headaches

[@brianc1481]

It is the worst pain I have ever experienced.. I didn't know it could get that bad.. The ONLY saving grace is mine last 20 to 25 minutes.. they turn off like someone hit a switch.. They come on twice a year.. when the heat is cranked and in the summer when I'm spending a lot of time in air conditioning.

[@Quick-Silver206]

My right ear enjoyed this.
For real though. Cluster headaches are like the Dead Space 2 eye poke machine death.

[@justabi3417]

Here's me trying to figure out what the lightning dragon claws clutching my left eyeball are about...

[@eliasacka]

Nice description. Very accurate. Mine is like a demond with a hot fork trying to pump out my eye.

[@mutatednut]

My girlfriend is going through this I think. She is in the hospital right now and she has all the symptoms of a cluster headache. I can’t imagine her pain. I am scared.

[@jackqueslack2339]

I am so sorry.

[@jimmy2k4o]

I have CH my advice when she has an attack around you. Don’t panic or freak out or make her feel embarrassed for crying or screaming.
Just hold her, and rub her forehead, temple, scalp in a circular massaging fashion.
Or keep an ice pack in your freezer at all times and gently rub that on affected side (right or left)
Tell her she’s brave, she’s strong! Tell her you researched these headaches and you’re impressed at how well she’s handling them (even if she isn’t)

[@mutatednut]

@@jimmy2k4o Thank you for your advice but she’s better now and hasn’t had one for months ❤️

[@BooBones]

@@mutatednut don't worry they'll be back

[@mutatednut]

@@BooBones They didn’t. 🖕

[@MoeReesee]

Tiger Balm Extra Strength + warm dark room + rock back-and-forth = current treatment …helps to know I’m not suffering alone.

[@Србомбоница86]

Tiger balm is awesome ,i always use it for neck pain

[@giovanni685]

Magic Mushrooms PERIOD

[@bain5872]

This man is correctly describes what I call the tourment!

[@mamakaka73]

Like someone using my eye as a trampoline wearing stilletto heals is what I imagined....

[@mbods5705]

how truly 100% you described my Cluster headache. This type of headache is a really bad news.

[@marialimas1839]

I have cluster headaches I have had them for 2 years the doctors have given me different medications and they don’t work.Some times I feel that my husband does not believe me because they come and go. My life has taken a toll. I can never make plans to go out because I never know when I am going to get them. Last medication they have given me i

[@iamtheking9418]

Mushrooms. I’ve had cluster attacks for the last 20 years, and have almost ended my life a number of times. Mushrooms are the only thing that keeps me out of cycles. Mushrooms keep the beast at bay....1.5-2 grams steeped in hot tea every 4-6 weeks, and i haven’t had a cluster a track for well over a year. I’d get two cycles a year almost every year prior to that

[@HakuCell]

how does psilocybin remove the cluster headache? i don't get it. i guess it depends on the causes of the cluster headache.

[@experimentalelemental92]

Many ppl have undiagnosed Arachnoid Cysts. Drs do not want to treat them. They only show up on MRI scans & can be small, but depending where they are, can cause all sorts of symptoms, including imbalance, chronic headaches & vomiting.
Arachnoid Cyst Awareness groups do exist.
Sometimes a bag of frozen peas has worked just as well as their pills & potions, & hasnt made me sick or turned my gut into a battle ground.
Iv suffered 30years. If anyone finds a good uk Dr or Neurologist, please share.

[@NetworkLimited]

Let's admit that we have this disease. My advice would be to stay away from fermented drinks and foods. Beer, wine and bread are among them. Especially the bread you will eat for dinner is very dangerous. In my experience, sourdough and cereal bread does not cause pain.
Please share your experiences and recommendations too.
Turkish: Bu hastalığa yakalandığımızı kabul edelim. Benim tavsiyem mayalı içecek ve yiyeceklerden uzak durmanız olacaktır. Bira, şarap ve ekmek bunların başında geliyor. Özellikle akşam yemeğinde yiyeceğiniz ekmek çok tehlikeli. Benim deneyimde ekşi mayalı ve tahıllı ekmek ağrıya sebep olmuyor.
Siz de lütfen deneyimlerinizi ve önerilerinizi paylaşın.

[@danhitchcock727]

I have ripped toe nails off whilst having them just to feel pain somewhere else other than the head/eye. Stupid idea but you're not thinking straight sometimes when you have them.

[@lula7982]

Wrong! My attacks would start as soon as I awoke until late evening! They were diagnosed as cluster headaches with a migraine tendency.

[@miguelsousinha2613]

I found my cure.. miguelsousinha Instagram

[@Србомбоница86]

Those are not typical clusters

[@jameseddine8627]

i'm 27 and i have been dealing with this shiit for 7years everyday for 2 hours it hits me can't work can't do shiit

[@BKDBut]

Fantastically unhelpful for regular people (not doctors) trying to get an idea of the differences
Shakiness becomes so bad even my phone's autocorrect has no idea what I'm writing. I have epilepsy with scar tissue all over my brain. When I have these headaches I can't do anything. I've certainly punched myself in the temple. I'll sit in the shower for an hour for the sensation to distract from the headache. Ice packs. Nothing seems to help, can only distract the sensation. I think it's mostly my right eye but I haven't been tracking. I'm going to start

[@ponzo1967]

One way to relate the pain would be having a moller extracted without novacaine. I can't think of anything else that hurts that much without rendering you unconscious. I never really understood why I don't pass out or even die. Its more than the brain can comprehend. Don't smoke, dont drink alcohol, take vitamin D3 and Magnesium.

[@ethanferrucci3684]

I'm not sure if I have them yet or not, but I heard it could be anywhere around your eye, not just in it. I've had a headache above my left eye for 5 days now, and I also heard that piercing is the most common kind but throbbing is still possible (which mine has been). Can anyone who's experienced one themselves confirm this? I also experienced my eyes tearing up for about 15 minutes today before tears just started pouring out and abruptly stopped.

[@gdgf154]

You probably have them you should definitely be able to tell by looking up different types of headaches.. but if it's like a burning feeling by your temple and behind your eye it's a cluster headache.. mine magically go away for about a year and come back around the same time for about 4-6 months then disappear again

[@zk8738]

@@gdgf154I wouldn’t say he does unless the pain stops and starts again. Not constant

[@bigmoose99]

Toughest crew in the world.

[@sl-lin0bi529]

If feels like someone has a lobotomy pick and their jabbing into your socket ever so slightly like they’re probing and it’s soo excruciating.

[@birdlife4065]

And if you're having a cluster headache attack I use a hot bath help me with the pain I promise you I will help you

[@miguelsousinha2613]

I did the bath treatment for 10 years until I found my cure. I am/was chronic 8 attacks everyday of the year, no gaps, one year cycle. I am now 15 months pain free after my last treatment. I don't take any kind of drugs or medication, no 02.

[@MSM4U2POM]

Tried it - made it ten times worse! CH isn't just a huge pain in the head, it's also a complete pain in the arse trying to find a cure.

[@mouseinthehouse67]

HE KNOWS ...WHAT HE SPEAKS IS TRUTH

[@mostlypeacefulslav1663]

It is unclear with me, if this is what I am suffering exactly. They can't quite figure it out. I definitely also get standard migraines, but I get something else that fits the cluster description very closely, but my patterns are apparently very strange. I don't get this very often (whatever it is, a very severe migraine, maybe they are cluster, I don't know) usually less than 4 per year, but I had three straight years without any, ending about 4 years ago. And they are very random for me, sometimes a few in a couple weeks, then nothing for months, but never has been more than 4 attacks per year, usually about 2. It is terrible, and I really feel for anybody who suffers this as, at any frequency. I have Ehler Danlos, and can handle pain, but these are something else.

[@experimentalelemental92]

Many ppl have undiagnosed Arachnoid Cysts. Drs do not want to treat them. They only show up on MRI scans & can be small, but depending where they are, can cause all sorts of symptoms, including imbalance, chronic headaches & vomiting.
Arachnoid Cyst Awareness groups do exist.
Sometimes a bag of frozen peas has worked just as well as their pills & potions, & hasnt made me sick or turned my gut into a battle ground.
Iv suffered 30years. If anyone finds a good uk Dr or Neurologist, please share.

[@eliasacka]

I had cluster headache since 5 years ago. Multiple attacks per day. It’s like a Demond or alien living inside my skull. Opioids doesn’t work, and the meds that work don’t last more than 4 hours. Migraine are easy, but if you have cluster headache and trigémina neuralgia is living in hell on earth.

[@mrteacup8781]

I suffer cluster symptoms, but they can last 24 to 48 hours, most painkillers don't touch the pain, hot and cold compresses can help.

[@eliasacka]

Naproxen help a little bit. Ice help to down the pain

[@andysmith3518]

I describe it as a red hot poker being pushed in my eye while having a bullet fired in my temple while being hit on the top of my head with a baseball bat all at the same time all that pain just constant

[@randyjack77]

Almost sounds like mine, lying down writhing just makes it worse.. but uh, mine last like weeks on end just varying in intensity... but uh I had a car accident.. I was the man, and now I'm... life sucks.

[@bigmoose99]

I don’t use the hot poker analogy I tell everyone that it feels like my left eyeball is being pumped with air and is about to pop.

[@eliasacka]

I feel like an alien is trying to pump o out my eye with a burning hot spoon. Watery eye. My face gets hot and the pain is unbearable

[@bigmoose99]

@@eliasacka the only solace is that all other pain pales in comparison. Check out nurtec dissolvable tablets. It cut my time in half. Which is still too long for our pain.

[@bigmoose99]

@@eliasacka stay strong

[@cocospops9351]

Love me some groovy jazz when I have a headache

[@Testimony4Jesus144]

I have 10 years cluster hradches.. with throwing up of the pain .. going insane ... but im lucky i got it only 6weeks long in a year .. every april or may .. like now...
I got my attack now. Pray to Jesus our Lord.

[@vojkanilic3759]

Mee too 6_7 weeks but im scereed to converrt to hronic

[@Testimony4Jesus144]

@@vojkanilic3759 Da li pricas Srpski???? Pozdrav

[@aubriemahoney3022]

is he referring to amitriptyline?

[@MrClusters2009]

No. He's referring to "Triptans" such as Imitrex. Please see: migraine.com/migraine-treatment/triptans/
"Thank God For Imitrex" !! :-)

[@chuckrutkowski1072]

Thank God for Imitrex injections!
I would have thrown myself in front of a moving train years ago!
I couldn't believe his description of the pain. It is almost word for word my description to people trying to explain to them just what they feel like.

[@birdlife4065]

Same here the pain is unreal

[@James-pf9su]

So we use the most strobe like filter on this video for people with a migraine watching this.

[@jamesroyal1159]

Why the base in the background, it's kinda given me a headache, lol Good info though

[@smalik4854]

Does ibux help?

[@clintonperrins4528]

Great info,but that music is horrible in the background

[@hailhydra1180]

Fuck, sometimes my cluster headache happen during sleeping, and I'm only 25 years old😢

[@turk539]

Bonken aan de rechter kant van mijn hoofd , tintelingen en jeuk begint vanuit de keel toe trekken naar de rechteroog en rechts van mijn hoofd. Tranen en soms misselijkheid , het is bij mij in combinatie met migraine. Kort geleden zuurstofmasker gekregen van 14 liter. Bij elk aanval 10-15 minuten opzetten (moet het nog gebruiken , sinds gisteren toevallig) zal zien of het gaat helpen. Heb gisteren hersenscan gehad en nog 2 afspraken in januari en februari. Heb net mijn vastedienstverband gekregen op het werk en kamp nu met meerdere aanvallen en klachten vaker op elkaar. Kan niet meer werken erdoor , maar zodra de pijn wel stopt heb ik opeens ook helemaal niets (lijkt het) en soms houd het suffigheid en downie erover. Ben im vermoeid enof doe ik heel rustig aan.

[@giovanniayala9199]

I’ve had clusters that lasted 7 hours

[@defiscanner1927]

They can even last an entire day

[@keithmckay8620]

Wtf
Was this a cluster headache or migraine video 😠
I'm 42 and have had clusters since I was 19. It just frustrates me that no one understands what we go through.
I've tried suicide twice god damn it

[@miguelsousinha2613]

I found my cure bro.. miguelsousinha Instagram

[@keithmckay8620]

@Emircan Cura still suffering

[@keithmckay8620]

@@miguelsousinha2613 what?

[@miguelsousinha2613]

@@keithmckay8620 I found a treatment that saved me. I am/was chronic having 8 attacks daily, one year cycle, no gaps. I am now 15 months pain free after my last treatment. I don't take any drugs or medication or O2. I can smoke, drink, everything I could not do before. I just don't have the attacks anymore. If wanna know more about me feel free to approach me on my Instagram, miguelsousinha Instagram

[@keithmckay8620]

No artificial love gonna be able to back this up

[@mikesanders8621]

Jazz George Lucas knows what's up.

[@JonhHarvest]

I just got diagnosed with that and my friends told me it was this severe. I just tried to ignore it and thought it was a regular migraine

[@zk8738]

Hi as someone who gets cluster headaches some clusters can be worse than others and some can be not as bad it just depends sometimes for people

[@JonhHarvest]

@@zk8738 The first time I got them it was really bad but I fucked up because I took too many painkillers to try and stop the pain and ended up getting sick so maybe I didn't get to feel the whole thing. They've been milder ever since I started taking the prescribed pills my doctor gave me, but the pain and pressure on my head is there 24/7. It just gets either milder or worse. Is that normal?

[@zk8738]

@@JonhHarvest I stopped taking painkillers and found no difference because they’re not strong enough to or quick enough to do anything. Did you or do you get attacks everyday? Sometimes you can get rebound headaches which is basically 2 cluster headaches in a row when you take too many painkillers as well. And unfortunately it’s pretty normal but there was ways to make them not last as long

[@JonhHarvest]

@@zk8738 They've been on and off for over a month now, on friday I have a magnetic resonance to check my brain. How long should they last?

[@zk8738]

@@JonhHarvest the most useful thing for most people is usually oxygen therapy and triptans which is you should google and have a proper little research for yourself and maybe suggest it to your doctors if they haven’t tried you in them already. I get 1-3 every day for about a month every year sometimes 2 months. Mine usually go for anywhere from 30 minutes to 3 hours but if you get a rebound it can be 6 hours of straight attacks

[@bigmoose99]

Not to be a jerk but I would like to give everyone a short cluster headache just so they know how horrible they are.

[@ramsesosirus]

I often say this as well!

[@bigmoose99]

@@ramsesosirus the only silver lining is all other pain is much easier to deal with. It makes you tougher.

[@ramsesosirus]

@@bigmoose99 Definitely agree with this! When they eventually stop, just being "normal" is heavenly

[@bigmoose99]

@@ramsesosirus yes. I feel euphoric when they subside

[@ramsesosirus]

@@bigmoose99 Same, just had a bad one this morning and it's similar to getting high when the "normal" finally kicks in

[@mommycjpagala]

😢 why me! 😭

[@SmellGoodOnion]

I get this shit all the fuckin time. Excedrin extra strength only helps for so long

[@Gachaproncess]

they hurt so bad 😢

[@downstream1152]

since kindergarten