Hey, my name is Emma too! I think I've been dealing with PPPD for almost a year now (November 25th, 2022) and I'm trying my best to get better by watching these videos made by others who suffered just like I am. Thank you for your advice, and best of luck to everyone else in our boat!
Hey Emma 👋🏼 great name 😉 it's funny how we all remember the date our lives changed forever. I'm glad you are focusing on healing and using lots of my info to help you to heal. If you have any questions feel free to reach out ❤️🫶
Thank you so much for posting this. This has completely my taken over my life. Almost everything I do I’m anxious about because I don’t want to be dizzy.
Hi Emma, I am more dizzy when I am standing still. It is horrible. Standing in line is unbearable. I've been experiencing symptom's for over a year, but just recently found PPPD information. Thank you so much for your videos I am glad to hear you are healed. I am using every video I can to improve and appreciate your information. So far doctors do not seem to understand PPPD. I have not had any luck using that route.
I was exactly the same. Standing in line at a supermarket was excruciating for me at times so I totally relate to you. To find your steadiness you need to do alot of exercises with eyes closed, stood or sat still. Find your inner steadiness using your core and finding parts of your body that feel more still. It may be harder to find as the dizziness is more dominant, but calmer sensations are there if you look for and notice them. Anxiety management and working on fear in the environments that make you feel worse is also key. I hope that helps and I wish you a healthy recovery 🫶❤️🙏
I have been dealing with all these symptoms for three years off and on, mostly on, and have been diagnosed with all kinds of things that don't make sense with all the symptoms the way this makes sense with all the symptoms. I am so glad I found your channel, and I'm going to mention PPPD when I see my neurologist next month. Somehow I think that having an actual diagnosis that makes sense and finally knowing what is going on will help in and of itself. Thank you for creating this channel!!!
@@balanceyourlifenow1651 you didn't mention derealization.. I notice alot of people have this with pppd. Did you? I hope your still active on these videos Emma
Thank you so much for this! I have every symptom and feel very seen. Doctors have been useless and have ultimately made me feel like i'm going bonkers! This has given me some hope and reassurance xx
I got triple PD October 2021. For 8 months I've been struggling with vestibular migraines, GERD, dizziness, feeling faint, lightheaded, nausea. Was on Xanax and hydroxyzine for a while. Just a Band-Aid. Not on those anymore. It was at the beginning when I was so so desperate. I've been to so many doctors. Got my gallbladder removed April 2022. Finally got off of Prilosec. Was starting to feel better, then got covid end of May 2022. What a setback. It really affected my triple PD. Had to start Prilosec as every time I got nauseated it would affect my nervous and digestive system. My anxiety is not as bad and I'm not that sensitive to light and sound lately. Got back on Prilosec 40 mg daily keeping my gerd and acid reflux in check. If my gerd is okay my head is okay. It all interacts with each other. Last few days I've been able to feel a bit normal and just wondering when it's going to come back again. Also had a counselor that helped me with coping skills that I am safe and nothing is going to happen. Looking forward to being normal again. Doing vestibular physical therapy and some of the exercises are helping. Can anyone tell me how neurology could help with triple PD. It has to do with the nerves, but no one can tell me. How can a neurologist help and how do I find one that specializes in Vertigo and triple PD. It is very hard. My vpt has been very helpful because she's going through the same thing.
Sorry to hear of your struggles 😢 regarding your question, did you mean to ask how Neuroplasticity helps you to get better? If that's the case it's important to understand that your brain is constantly changing all of the time which is why we are capable of learning new things. You essentially need to retrain the brain to feel steady, balanced and still. You do this by practicing it. Find what allows you to feel this way and practice until you get better at it. Also, PPPD remains because we overfocus on it and give it all of our attention, keeping it a part of our existence. So by doing things you enjoy you can gently distract your attention away from the dizziness. The less you think about dizziness the less you will notice it, the sooner it will go away. Now that is most definitely easier said than done at first but it is possible to find your way out of it. What you focus on you get more of, because you are lighting up the same neural pathways in the brain. Create new neural pathways by creating and practicing your desired sensations. Hope that makes sense and answers your question. I've got plenty of other You Tube Videos that talk about this in more detail 👌🏼
@@balanceyourlifenow1651 I am aware of neuroplasticity, but my question is pertaining to a professional neurologist. I believe triple PD and vertigo deal with vestibular nerve and Vegas nerve, which are nerves. That's what a neurologist specializes in. When I visit my neurologist all she wants to do is push antidepressants and suggested for my vestibular migraines a drug called Nurtec. Which is $2600 for six pills here in America. Since the neurologist deals with nerves I thought she might have some insight and what is causing triple PD. She did a MRIA-C and a brain scan and fortunately it was negative. In other words, she could find nothing. So, when doctors find nothing then why don't they proceed to help us. Why don't ENT and VPT's connect us to professionals that can help us? I'm always finding they have no answers. They don't want to go the extra mile. They see patients almost every day, they talked to different kinds of doctors, it would be nice if they could Network and pull something together. That is my hope.
I agree with all you're saying. PPPD is fairly new, 2014. Lots of doctors don't have the training or experience for dealing with it I'm afraid, and they could definitely do more that's for sure
Even the neurologists don't seem to know much about it, and just recommend antidepressants in my experience. Not very helpful. I think us humans still have a lot to learn about the brain.
Finally I found out what I have! Thank you for the information! I’ve been having this for years now and getting worse. It’s crippling. I can’t do anything 😢and I have tons to do!
For me, being in a car is horrendous.. my rocking ,swaying & balance problems are 24/7 . I only find relief when I’m lying down. The Nausea is just awful & I constantly feel faint. I also get migraines and a have a lot visual issues..not been able to watch tv in years or go into shops due to much visual & audio stimulation . Even talking affects my dizziness.. it makes me feel very unwell. I also have bilateral vestibular loss and visual vertigo also as well as noise sensitivity.
Agreed with the car driving thing, it seems that paying attention to something else helps. My 3pd is a legacy of 2 BPPV attacks I had some years back. After those the 'insult' appears to have confused my cerebellum [the bulb at the lower back of yr brain which handles vestibular inputs of ALL kinds including nerve signals from all over the body, not just ear canals] and it has been struggling ever since. As the name suggests, my 3pd limits head positions when I sleep, if yr tired enough you can drop off through them if you are brave enough. Repeating epley once a month seems to help. Watching TV, playing computer chess has helped. I have to say it was A W E S O M E that me and my 2 sisters all had the BPPV attacks within WEEKS of each other, can't work that out.
Thank you this was interesting 😊 I have the opposite on a couple of things, I feel worse in the morning & I feel worse in n the move. It’s a living hell as I have been locked in this for 8 years. My diagnosis is PPPD/VESTIBULAR MIGRAINE. I find the PPPD to be more debilitating. I have recently started injections for the VM but so far no help, nor has a long list of of medications over the years helped. The stress of breast cancer 3 years ago has made things worse. I work on a busy hospital ward with lots of stimulus & bright lights & unfortunately lighting & computers are my main trigger! 😮
You can definitely be the complete opposite of some of these things, it is varied and different for everyone! These are just some of the things that lots of people ask me about thinking it's just them experiencing it but it's actually very common! Computers and bright lights were the worse for me too. If you have a lot of anxiety that can make you even more sensitive so the key to finding some relief from those symptoms is to work on the anxiety (if applicable). Im sorry you have suffered for so long
Hi ive been dealing with this over a year done so many tests and scans and seen multiple drs but no answer I also have tinnitus pressure and the ear and and jaw is this part of pppd pls
Restaurant’s are still challenging for me. But I’ve replayed some of your quotes in my head such as “I am safe”. You’ve helped me so much to get through my scary symptoms. Thank you
You're welcome! I'm pleased to have helped you in some way. I used to use those affirmations all the time throughout difficult moments, it helped me to stay present and not let myself get carried away in negative "worst case scenario" thoughts 💗
Thanks for this video, I've been diagnosed with pppd. I have all the symptoms you mention apart from mine in worse in the morning which is odd. I'm pleased you mentioned sports etc as this has confused me and my friends and family. I feel better doing things as apposed to sitting like you say. It's very hard to explain to people you have a balance issue when they see you playing football or tennis.
It's definitely possible to feel worse in the morning too, we are all different. And i think that because I could play sports, go to the gym etc I think people thought I was making out my symptoms were worse than what they were which was absolutely not the case! Who would have thought sitting still would be the most challenging thing to do! And I never felt like I had an actual balance problem, it was just that internal feeling of everything moving. So hard to explain or understand unless you've experienced it yourself
Hi Bryan, i too have symptoms that are so much worse in the morning. I began to question if I did actually have PPPD but like Emma says we all seem to be different. Take care.
@@juliegillespie903 Hi Julie, thanks for your message, I hope you feel better soon. I'm 8 month in and still struggling. I find meditation and exercise in the morning helps but sometimes it's just not possible with the symptoms.
@@juliegillespie903 Hi Julie, did you have a triggering event that caused the dizziness or another vestibular condition such as bppv, vestibular migraine or similar? There are a few diagnostic criteria for PPPD. The time of day you feel more symptoms is not one of those criteria. Your Doctors should carefully study your medical history and how the condition evolved. That is a much more important indicator as to whether you have pppd or not. Pppd is also NOT a case of eliminating other conditions
My biggest problem is when I’m walking and then I meet someone along the way and they start talking to me. As I’m standing there I start to feel sickly like I’m going to faint. It’s the most troubling sensation. When I restart walking it goes away. I’d like to know how I can change this. I’ve just started walking again too. It’s the most uncomfortable part of this dizziness.
I feel the rocking and swaying when I am still walking had been my go to for feeling some what normal thanks for reminding me that I am not alone... Going to practice on sitting still
One thing which makes me very curious is the nature of relapse in pppd, you do all the right stuff and you start to heal, everything is good you're walking 5 miles and then a little panic attack type stuff happens or you just wake up with dizziness and now you're at level zero again
Hi, thanks for your advice! I'm Spanish and I developed pppd a year ago; the isrs didn't help, not even the rehabilitation; and the doctors here 99% don't know about pppd; I'm going to take your advice on neuroplasticity; a neurofeedback question can be a way of neuroplasticity? I will try not to be so afraid of the symptoms and not see it as something so horrible; thanks for everything!
Hi Emma, so lovely to see you again. Thank you for such a great video. I’m so much better but I can definitely relate to all of your points and still struggle on and off. The head pressure and neck pain I had at the beginning last year was awful. I also found my longest lasting is the sensitivity to movement when I’m still. It’s such an awful uncomfortable feeling and I still vaguely feel it now sometimes but it is improving luckily. I have to say pppd has been the most trying time for me but although I have good and bad days, I’m definitely getting there. I love your reassuring, informative videos though so thank you. I look forward to more soon hopefully 🙏 x
Thank you for your kind comment! I am so glad you're doing so much better, hang in there 🙏🏼💗 its so normal to finding sitting stil the most challenging, try setting some time aside each day to practice it. Get to know what stillness feels like in your body. So many people avoid it without realising
@@balanceyourlifenow1651 Thank you for your reply, I do tend to avoid it! I will practice taking the time to sit quietly. I used your affirmations you sent me for so long, every morning walking my dog I’d say them and I’ve slowly lost a lot of fear and definitely getting there. Thanks again x
I can't drive at all. Driving has triggered 3 anxiety attacks. I've had to hire and pay a driver since 2016. I seem to be the opposite of what you're saying. Sitting still calms it a bit. Walking, driving, shopping all triggers. And I'm a landscape construction contractor. Very debilitating.
Sorry to hear you can't drive. This video isn't necessarily to say you have to be all these things to have PPPD, but it's often symptoms which people have and they think they are the only ones with it, but its actually very common. There is no one size fits all approach regarding how people describe or notice their symptoms. The PPPD diagnosis typically comes from taking a thorough medical history and looking at how the condition began. Docs will look for a triggering incident such as an illness, head injury, stressful event etc. The incident resolves but the dizzy or not quite right symptoms remain. PPPD is non spinning dizziness that's there for 50% of the time or more for 3 months or longer. Usually worse in an upright position. Nearly always anxiety is experienced either previous to the PPPD or as a result of the PPPD. Shopping centres, busy environments, patterned floors etc all triggers! Hope that helps 🙏🏼
@@balanceyourlifenow1651 Agree entirely. Mine started summer of 2016 after 6 anxiety panic attacks, 3 while driving, 3 at home. During a very stressful time in my life. Spinning ever since. Thank You for your videos !!
Maybe people who can drive live in places with wide open space on the roads? I can't drive. So much visual stimuli! Trees creating light and shadow changes; pedestrians, cyclists, and cars going by; moving past buildings... Bicycling, on the other hand, is possible on a cloudy day on roads that aren't busy. Maybe its because I have a bigger field of view from my bicycle than from a car. But then, of course, people think, "how can you cycle if you have dizziness issues?" Of course, its not that simple.
Hello thanks for the videos...... What about neck pain around C1 and C2 area? And when I'm walking the nonspinning off balance come on and off and when I stand next to someone I have to hold something like if I'm leaning against something to feel comfortable...
Lots of people report neck pain which is likely due to tension or feeling dizzy when turning the head so people avoid doing it which again creates tension. C1 and C2 areas seem to have the biggest involvement for rotation which would make sense of there is tension/ tightness there. For the second part of your comment, try standing still with your eyes closed for a few minutes each day. Breathe, relax, focus, find your core and stand up straight. Find your steadiness from within!
I am not diagnosed completely yet ( after 4 years) but dr mentoobed PPPD. A big help for me is riding the bike. I have problem with straight walking but i xan ride a bike without any problem. I akso can drive.
Hiiii emma so sweet of u atleast u spreading information but I want to know whether symptoms varies every day and when u start noticing that ur symptoms actually reducing??
Yes symptoms can fluctuate day by day and depending on environments and things that trigger you. In terms of symptoms reduction we are all different. Try not to focus on what you're getting rid of try to focus on what you want to feel and do what you can to feel good more often
Yep, thats also true. Everyone experiences things differently, so it's not one or the other. Also possible to have good days and bad days regarding symptoms. There is no one size fits all
Mam my all tests are normal but my vitamin d is extremely low. And i have earthquake like feeling when i put my feet on ground. But it vanishes when i walk or run. Is it pppd?????
Hello, my dizziness is worse/triggered as soon as i start walking outside, but it must be just outside, when i walk inside i am fine. Please is this common for other people too?
Hello how have you been I have also struggled feeling great to going back to feeling dazed and fatigued. How are you symptoms now? Are you mainly 100% most of the time or do you still struggle at times?
I'm great thank you! I feel dizzy free most of the time, sometimes I notice some mild symptoms if I'm stressed, tired or unwell and occasionally when using a computer. It is absolutely nothing like it once was though and I don't have PPPD any more as its not present more than 50% of the time. I actually feel amazing and have had no relapses. Healing is possible! 🙏🏼💗
@@balanceyourlifenow1651 Thank you for responding 🙏 I hope this gets behind me soon and can continue with my normal life it's been a year in a half for me. 😔
How long did it take you to be 100% again? What did you do? My main problem is i get dizzy When im visually stimulated and i have also light sensitivity, im doing vrt for the last 3 weeks and they just told me to start optokinetic exercises
It took me a good couple of years. I was also dizzy when visually stimulated and also had (still have some) light sensitivity. I can't write in a sentence how I got better there are so many little pieces to the puzzle. Check out my other You Tube videos or follow me on Insta @balanceyourlifenow
Yes, they gradually disappeared over time. It took a LONG time but it wasn't like one day they were there then the next they were gone, it took a long time and got less and less as the months passed
I am moving 24/7, pulling, pushing, tocking, bobbing. In a car it stops but i hate being stationery. I cant drive anymore and panic attacks constantly. I struggle to get to appointments and only leave the house for medical appointments. I was doing the VR and seemed to gwt bwtter then ended up in ED after two strange turns that put me hypertensive. Now imback to square one. Just started antidepressants and hoping they settle my nervous system. This is cruel
I’m going to try some somatic counseling because I have so much emotion survival energy trapped in my body that sometimes I’m so anxious and don’t know why. You might check out Irene Lyon on UA-cam. She teaches on healing the nervous system. I’m considering doing one of her classes.
Thank you for this video, I have literally had every single one of these in last 5 months, I agree with everything said here! I have one question though, what’s the key to beating this awful condition? I have started a few exercises of vestibular rehab that I found on UA-cam which has been helpful. I live in Northern Ireland and it’s hard enough to find a vestibular therapist never mind someone who knows what PPPD is!
My doctor says I have pppd, but I recognize actually nothing from the symptoms. I have had vestibular neuritis and I still suffer from intense fatigue that gets triggered in busy surroundings, but Im not dizzy anymore. I don't know what to think of my situation. I'm so tired I still can't work, having a meeting for example is way too difficult for my head still :(
Hi Emma. One of my main symptoms is eye instability. My eyes can’t focus on an object and feels like it’s shifting. Seems like my brain is over relying on my eyes. (I’ve had my eyes checked there’s nothing wrong). Practicing stillness and just letting my brain figure out what’s happening should help correct?
Hi Elena, if you've had all the relevant tests to investigate and all are clear, then yes it's likely you are over relying on your eyes. This happens when our vestibular systems arent working as efficiently as they should so we use our other systems for balance such as the eyes however they are not as great at helping us to balance like our vestibular systems are! Hope that makes sense. The key is to rebuild your sense of balance using proprioception which can be done by doing eyes closed exercises so you are essentially feeling into your body and where you are in space! Keep going! And keep trying to find steadiness and stillness as you go about your day 💗
I am from India and I am suffering from pppd after COVID. Worst part no one in my family believes me they just say I am over reacting sometimes they mock me also
My symptoms came on after COVID as well! Some of my family and others are also very skeptical and judgemental. I know it is not easy. Seeing these videos and comments help to know I am not alone and I am not crazy, (because I often feel like I'm losing my mind at this point). It's been 105 days since everything started. I'm still waiting on referrals for further testing and treatments.
Has anyone else experienced head pressure and constant pressure behind the eyes, this is the symptom that gives me the most worry, along with the dizziness
Just wondering if your symptoms are better? Or if you’ve been diagnosed. My son has the head pressure and pressure behind his right eye, constant nausea. Doctors can’t find anything wrong.
I have had constant pressure in my head, especially the temples, eyes and forehead. I get very dry eyes as well. I have started a medication that is supposed to help as a preventative, as well as vitamins and supplements, and an elimination diet to avoid triggers. I haven't reintroduced anything yet. My Dr isn't sure if I have Vestibular Migraines or PPPD, or both.
Driving is ok most of the time but as soon as I stop at the lights boom it hits hard. Must be the stillness. I feel so dizzy like I'm going to faint or fade away. It's so horrible 😔
I got rid of this by focusing on the license plate in front of me! I would read road signs or anything I could focus on when I was stopped on the road. Eventually my brain learned NOT to focus on the symptoms and they went away
@@Megan_Jennifer Im so glad to hear that you are getting better. Mine is getting worse. I now have it when im driving. I think it may be a combination of panic, fear, derealization and anxiety, as well as pppd. I had an attack when i went into kmart the other night. My eyes started to see bright white and fade away and I thought for sure that this was it and i was dying. I also get this weird feeling in between my ears or brain. I can actually make it vibrate, cant explain it very well but it makes me feel so bad. Its such a horrible feeling. I had to run out of the store and go home. Now I am too scared to leave the house. My life is ruined and I dont know. Its so not fair :(
@@amandar614 Hey there im much better now I can actually stop at most lights now as long as they arent really busy intersections. But since I wrote that comment ive had terrible anxiety where i couldnt even leave the house. Im much better with that too now thanks to my therapist and support workers. I am going out and driving again but its been a lot of work and a lot of struggles. My PPPD was mainly caused by anxiety and stress cause it does come back to a lesser degree at times. You will get there, baby steps
The two can be very similar. The difference is MdDs is triggered specifically be travel e.g. a cruise, long car ride, or flying. PPPD is not triggered in this way, there is typically a triggering incident that causes dizziness but it's not related to travel or motion
I can’t watch tv either. And my computer is much worse for me than my iPad mini. Most if the time when I sit still my upper body starts to move side to side and pretty soon it’s my whole upper body doing it. I can hold it still but as soon as I relax it starts to pick up again.
Hey, my name is Emma too! I think I've been dealing with PPPD for almost a year now (November 25th, 2022) and I'm trying my best to get better by watching these videos made by others who suffered just like I am. Thank you for your advice, and best of luck to everyone else in our boat!
Hey Emma 👋🏼 great name 😉 it's funny how we all remember the date our lives changed forever. I'm glad you are focusing on healing and using lots of my info to help you to heal. If you have any questions feel free to reach out ❤️🫶
did it get better?
@@khushipatel2762 No. :( I'm still suffering (currently in a pretty bad state) with the unknown dizziness. It's not great.
I feel worst im the morning and get better as the day goes by weird 😕 but i have hope & trust god has healing for us
So do I. I feel that my anxiety is higher in the morning for some reason and then starts to mellow out as the day moves forward.
Thank you so much for posting this. This has completely my taken over my life. Almost everything I do I’m anxious about because I don’t want to be dizzy.
Sending love ❤️
Completely understand.
Sarah, are you doing any better now?
Sarah, are you doing better now?
Hi Emma, I am more dizzy when I am standing still. It is horrible. Standing in line is unbearable. I've been experiencing symptom's for over a year, but just recently found PPPD information. Thank you so much for your videos I am glad to hear you are healed. I am using every video I can to improve and appreciate your information. So far doctors do not seem to understand PPPD. I have not had any luck using that route.
I was exactly the same. Standing in line at a supermarket was excruciating for me at times so I totally relate to you. To find your steadiness you need to do alot of exercises with eyes closed, stood or sat still. Find your inner steadiness using your core and finding parts of your body that feel more still. It may be harder to find as the dizziness is more dominant, but calmer sensations are there if you look for and notice them. Anxiety management and working on fear in the environments that make you feel worse is also key. I hope that helps and I wish you a healthy recovery 🫶❤️🙏
@tanmayshaw3442 : how r u now bro?? I am also feeling 24/7 dizziness since 3 months.
I have been dealing with all these symptoms for three years off and on, mostly on, and have been diagnosed with all kinds of things that don't make sense with all the symptoms the way this makes sense with all the symptoms. I am so glad I found your channel, and I'm going to mention PPPD when I see my neurologist next month. Somehow I think that having an actual diagnosis that makes sense and finally knowing what is going on will help in and of itself. Thank you for creating this channel!!!
You're welcome! Knowing that you have a diagnosis can definitely help you to find closure and move forwards
@@balanceyourlifenow1651 you didn't mention derealization.. I notice alot of people have this with pppd. Did you? I hope your still active on these videos Emma
Thank you so much for this! I have every symptom and feel very seen. Doctors have been useless and have ultimately made me feel like i'm going bonkers! This has given me some hope and reassurance xx
I got triple PD October 2021. For 8 months I've been struggling with vestibular migraines, GERD, dizziness, feeling faint, lightheaded, nausea. Was on Xanax and hydroxyzine for a while. Just a Band-Aid. Not on those anymore. It was at the beginning when I was so so desperate. I've been to so many doctors. Got my gallbladder removed April 2022. Finally got off of Prilosec. Was starting to feel better, then got covid end of May 2022. What a setback. It really affected my triple PD. Had to start Prilosec as every time I got nauseated it would affect my nervous and digestive system. My anxiety is not as bad and I'm not that sensitive to light and sound lately. Got back on Prilosec 40 mg daily keeping my gerd and acid reflux in check. If my gerd is okay my head is okay. It all interacts with each other. Last few days I've been able to feel a bit normal and just wondering when it's going to come back again. Also had a counselor that helped me with coping skills that I am safe and nothing is going to happen. Looking forward to being normal again. Doing vestibular physical therapy and some of the exercises are helping.
Can anyone tell me how neurology could help with triple PD. It has to do with the nerves, but no one can tell me. How can a neurologist help and how do I find one that specializes in Vertigo and triple PD. It is very hard. My vpt has been very helpful because she's going through the same thing.
Sorry to hear of your struggles 😢 regarding your question, did you mean to ask how Neuroplasticity helps you to get better? If that's the case it's important to understand that your brain is constantly changing all of the time which is why we are capable of learning new things. You essentially need to retrain the brain to feel steady, balanced and still. You do this by practicing it. Find what allows you to feel this way and practice until you get better at it. Also, PPPD remains because we overfocus on it and give it all of our attention, keeping it a part of our existence. So by doing things you enjoy you can gently distract your attention away from the dizziness. The less you think about dizziness the less you will notice it, the sooner it will go away. Now that is most definitely easier said than done at first but it is possible to find your way out of it. What you focus on you get more of, because you are lighting up the same neural pathways in the brain. Create new neural pathways by creating and practicing your desired sensations.
Hope that makes sense and answers your question. I've got plenty of other You Tube Videos that talk about this in more detail 👌🏼
@@balanceyourlifenow1651 I am aware of neuroplasticity, but my question is pertaining to a professional neurologist. I believe triple PD and vertigo deal with vestibular nerve and Vegas nerve, which are nerves. That's what a neurologist specializes in. When I visit my neurologist all she wants to do is push antidepressants and suggested for my vestibular migraines a drug called Nurtec. Which is $2600 for six pills here in America.
Since the neurologist deals with nerves I thought she might have some insight and what is causing triple PD. She did a MRIA-C and a brain scan and fortunately it was negative. In other words, she could find nothing.
So, when doctors find nothing then why don't they proceed to help us. Why don't ENT and VPT's connect us to professionals that can help us? I'm always finding they have no answers. They don't want to go the extra mile. They see patients almost every day, they talked to different kinds of doctors, it would be nice if they could Network and pull something together. That is my hope.
ua-cam.com/video/tDx8Vxn8nHU/v-deo.html
This really helps me
I agree with all you're saying. PPPD is fairly new, 2014. Lots of doctors don't have the training or experience for dealing with it I'm afraid, and they could definitely do more that's for sure
Even the neurologists don't seem to know much about it, and just recommend antidepressants in my experience. Not very helpful. I think us humans still have a lot to learn about the brain.
Finally I found out what I have! Thank you for the information! I’ve been having this for years now and getting worse. It’s crippling. I can’t do anything 😢and I have tons to do!
For me, being in a car is horrendous.. my rocking ,swaying & balance problems are 24/7 . I only find relief when I’m lying down. The Nausea is just awful & I constantly feel faint. I also get migraines and a have a lot visual issues..not been able to watch tv in years or go into shops due to much visual & audio stimulation . Even talking affects my dizziness.. it makes me feel very unwell. I also have bilateral vestibular loss and visual vertigo also as well as noise sensitivity.
Agreed with the car driving thing, it seems that paying attention to something else helps. My 3pd is a legacy of 2 BPPV attacks I had some years back. After those the 'insult' appears to have confused my cerebellum [the bulb at the lower back of yr brain which handles vestibular inputs of ALL kinds including nerve signals from all over the body, not just ear canals] and it has been struggling ever since. As the name suggests, my 3pd limits head positions when I sleep, if yr tired enough you can drop off through them if you are brave enough. Repeating epley once a month seems to help. Watching TV, playing computer chess has helped. I have to say it was A W E S O M E that me and my 2 sisters all had the BPPV attacks within WEEKS of each other, can't work that out.
Thank you this was interesting 😊 I have the opposite on a couple of things, I feel worse in the morning & I feel worse in n the move. It’s a living hell as I have been locked in this for 8 years. My diagnosis is PPPD/VESTIBULAR MIGRAINE. I find the PPPD to be more debilitating. I have recently started injections for the VM but so far no help, nor has a long list of of medications over the years helped. The stress of breast cancer 3 years ago has made things worse. I work on a busy hospital ward with lots of stimulus & bright lights & unfortunately lighting & computers are my main trigger! 😮
You can definitely be the complete opposite of some of these things, it is varied and different for everyone! These are just some of the things that lots of people ask me about thinking it's just them experiencing it but it's actually very common!
Computers and bright lights were the worse for me too. If you have a lot of anxiety that can make you even more sensitive so the key to finding some relief from those symptoms is to work on the anxiety (if applicable). Im sorry you have suffered for so long
Hi ive been dealing with this over a year done so many tests and scans and seen multiple drs but no answer
I also have tinnitus pressure and the ear and and jaw is this part of pppd pls
Restaurant’s are still challenging for me. But I’ve replayed some of your quotes in my head such as “I am safe”. You’ve helped me so much to get through my scary symptoms. Thank you
You're welcome! I'm pleased to have helped you in some way. I used to use those affirmations all the time throughout difficult moments, it helped me to stay present and not let myself get carried away in negative "worst case scenario" thoughts 💗
Miss you and your videos.. Thank you for still posting.. And yea I have all these.. I was so happy to see this new one..❤️
💗💗
Thanks for this video, I've been diagnosed with pppd. I have all the symptoms you mention apart from mine in worse in the morning which is odd. I'm pleased you mentioned sports etc as this has confused me and my friends and family. I feel better doing things as apposed to sitting like you say. It's very hard to explain to people you have a balance issue when they see you playing football or tennis.
It's definitely possible to feel worse in the morning too, we are all different. And i think that because I could play sports, go to the gym etc I think people thought I was making out my symptoms were worse than what they were which was absolutely not the case! Who would have thought sitting still would be the most challenging thing to do! And I never felt like I had an actual balance problem, it was just that internal feeling of everything moving. So hard to explain or understand unless you've experienced it yourself
Hi Bryan, i too have symptoms that are so much worse in the morning. I began to question if I did actually have PPPD but like Emma says we all seem to be different. Take care.
@@juliegillespie903 Hi Julie, thanks for your message, I hope you feel better soon. I'm 8 month in and still struggling. I find meditation and exercise in the morning helps but sometimes it's just not possible with the symptoms.
Same here.worse in the morn.at times accompanied by palpiations.
@@juliegillespie903 Hi Julie, did you have a triggering event that caused the dizziness or another vestibular condition such as bppv, vestibular migraine or similar? There are a few diagnostic criteria for PPPD. The time of day you feel more symptoms is not one of those criteria. Your Doctors should carefully study your medical history and how the condition evolved. That is a much more important indicator as to whether you have pppd or not. Pppd is also NOT a case of eliminating other conditions
Sometimes we need vision therapy to help our eyes work better together.
Super duper tnx now I understand the true reason of my dizziness
This was so informative and helpful! Wow!!
My biggest problem is when I’m walking and then I meet someone along the way and they start talking to me. As I’m standing there I start to feel sickly like I’m going to faint. It’s the most troubling sensation. When I restart walking it goes away. I’d like to know how I can change this. I’ve just started walking again too. It’s the most uncomfortable part of this dizziness.
I feel the rocking and swaying when I am still walking had been my go to for feeling some what normal thanks for reminding me that I am not alone... Going to practice on sitting still
Yep. Slower movements like walking, standing, sitting etc all seem to be the most challenging for most people.
One thing which makes me very curious is the nature of relapse in pppd, you do all the right stuff and you start to heal, everything is good you're walking 5 miles and then a little panic attack type stuff happens or you just wake up with dizziness and now you're at level zero again
Curious is a good word! It's OK to not understand every sensation in your body. The key is to trust your safe 🙏🏼 ✨️
Bro how you feel when you get that little panic attack??
Is it a sudden vertigo?? Or something else??
Thank you so much.. I really appreciate your knowledge and encouragement! You have described exactly what I'm dealing with.
This is me I get all them and nauseous did you get this brilliant video 👍👍
Hi, thanks for your advice! I'm Spanish and I developed pppd a year ago; the isrs didn't help, not even the rehabilitation; and the doctors here 99% don't know about pppd; I'm going to take your advice on neuroplasticity; a neurofeedback question can be a way of neuroplasticity? I will try not to be so afraid of the symptoms and not see it as something so horrible; thanks for everything!
Good luck! And you're welcome 😊
Hi Emma did you get eye problems like watery eyes etc 😢
Hi Emma, so lovely to see you again. Thank you for such a great video.
I’m so much better but I can definitely relate to all of your points and still struggle on and off.
The head pressure and neck pain I had at the beginning last year was awful. I also found my longest lasting is the sensitivity to movement when I’m still. It’s such an awful uncomfortable feeling and I still vaguely feel it now sometimes but it is improving luckily.
I have to say pppd has been the most trying time for me but although I have good and bad days, I’m definitely getting there.
I love your reassuring, informative videos though so thank you.
I look forward to more soon hopefully 🙏 x
Thank you for your kind comment! I am so glad you're doing so much better, hang in there 🙏🏼💗 its so normal to finding sitting stil the most challenging, try setting some time aside each day to practice it. Get to know what stillness feels like in your body. So many people avoid it without realising
@@balanceyourlifenow1651 Thank you for your reply, I do tend to avoid it! I will practice taking the time to sit quietly.
I used your affirmations you sent me for so long, every morning walking my dog I’d say them and I’ve slowly lost a lot of fear and definitely getting there. Thanks again x
@@Zippy177 wow that's brilliant! Well done. I'm so glad they helped you. They did for me too. Keep going 👏🏼
in my symptoms is when i move like standing walking or even moving my head in different direction i feel dizzy ...
I can't drive at all. Driving has triggered 3 anxiety attacks. I've had to hire and pay a driver since 2016.
I seem to be the opposite of what you're saying. Sitting still calms it a bit. Walking, driving, shopping all triggers.
And I'm a landscape construction contractor. Very debilitating.
Sorry to hear you can't drive. This video isn't necessarily to say you have to be all these things to have PPPD, but it's often symptoms which people have and they think they are the only ones with it, but its actually very common. There is no one size fits all approach regarding how people describe or notice their symptoms. The PPPD diagnosis typically comes from taking a thorough medical history and looking at how the condition began. Docs will look for a triggering incident such as an illness, head injury, stressful event etc. The incident resolves but the dizzy or not quite right symptoms remain. PPPD is non spinning dizziness that's there for 50% of the time or more for 3 months or longer. Usually worse in an upright position. Nearly always anxiety is experienced either previous to the PPPD or as a result of the PPPD. Shopping centres, busy environments, patterned floors etc all triggers! Hope that helps 🙏🏼
@@balanceyourlifenow1651 Agree entirely. Mine started summer of 2016 after 6 anxiety panic attacks, 3 while driving, 3 at home. During a very stressful time in my life. Spinning ever since.
Thank You for your videos !!
Maybe people who can drive live in places with wide open space on the roads? I can't drive. So much visual stimuli! Trees creating light and shadow changes; pedestrians, cyclists, and cars going by; moving past buildings... Bicycling, on the other hand, is possible on a cloudy day on roads that aren't busy. Maybe its because I have a bigger field of view from my bicycle than from a car. But then, of course, people think, "how can you cycle if you have dizziness issues?" Of course, its not that simple.
Hello thanks for the videos...... What about neck pain around C1 and C2 area?
And when I'm walking the nonspinning off balance come on and off and when I stand next to someone I have to hold something like if I'm leaning against something to feel comfortable...
Lots of people report neck pain which is likely due to tension or feeling dizzy when turning the head so people avoid doing it which again creates tension. C1 and C2 areas seem to have the biggest involvement for rotation which would make sense of there is tension/ tightness there. For the second part of your comment, try standing still with your eyes closed for a few minutes each day. Breathe, relax, focus, find your core and stand up straight. Find your steadiness from within!
@@balanceyourlifenow1651 ...Thank you !!!🖤
I am the same way. I’ve developed such bad anxiety going places alone or with someone I’m not comfortable with.
Learn to trust your body! You are safe 🙏🏼 ❤️
Hi Emma I have this 24/7 did your symptoms last this long 😮
I am not diagnosed completely yet ( after 4 years) but dr mentoobed PPPD. A big help for me is riding the bike. I have problem with straight walking but i xan ride a bike without any problem. I akso can drive.
Hiiii emma so sweet of u atleast u spreading information but I want to know whether symptoms varies every day and when u start noticing that ur symptoms actually reducing??
Yes symptoms can fluctuate day by day and depending on environments and things that trigger you. In terms of symptoms reduction we are all different. Try not to focus on what you're getting rid of try to focus on what you want to feel and do what you can to feel good more often
Thank you so much !
You're welcome!
Hi Emma. By month 18 in your recovery, on a percentage level, how would you say the dizziness was at?
What about feeling ok while driving but then terrible when you get out of the car, especially when going 30 or more minutes of driving?
Yep, thats also true. Everyone experiences things differently, so it's not one or the other. Also possible to have good days and bad days regarding symptoms. There is no one size fits all
same problem,when i m driving over 30 minutes,or when i walking at leat over 10 minutes
I am dealing with this as well! Has that gotten any better for you?
Mam my all tests are normal but my vitamin d is extremely low.
And i have earthquake like feeling when i put my feet on ground. But it vanishes when i walk or run.
Is it pppd?????
Hello, my dizziness is worse/triggered as soon as i start walking outside, but it must be just outside, when i walk inside i am fine. Please is this common for other people too?
Hello how have you been I have also struggled feeling great to going back to feeling dazed and fatigued. How are you symptoms now? Are you mainly 100% most of the time or do you still struggle at times?
I'm great thank you! I feel dizzy free most of the time, sometimes I notice some mild symptoms if I'm stressed, tired or unwell and occasionally when using a computer. It is absolutely nothing like it once was though and I don't have PPPD any more as its not present more than 50% of the time. I actually feel amazing and have had no relapses. Healing is possible! 🙏🏼💗
@@balanceyourlifenow1651 Thank you for responding 🙏 I hope this gets behind me soon and can continue with my normal life it's been a year in a half for me. 😔
Hello Emma, you were bad laying down ? Or just sitting
Laying down was fine! Sitting and standing was the challenge
How long did it take you to be 100% again? What did you do? My main problem is i get dizzy When im visually stimulated and i have also light sensitivity, im doing vrt for the last 3 weeks and they just told me to start optokinetic exercises
It took me a good couple of years. I was also dizzy when visually stimulated and also had (still have some) light sensitivity. I can't write in a sentence how I got better there are so many little pieces to the puzzle. Check out my other You Tube videos or follow me on Insta @balanceyourlifenow
@@balanceyourlifenow1651❤
Do you think caffeine makes it worse? Like it's almost guaranteed if I have coffee and I feel a little bit nervous I'm going to get really dizzy
I definitely think it can make it worse for a lot of people. It did for me
Did your symptoms become less and less? Instead of 24/7 as you recovered? Xx
Yes, they gradually disappeared over time. It took a LONG time but it wasn't like one day they were there then the next they were gone, it took a long time and got less and less as the months passed
I am moving 24/7, pulling, pushing, tocking, bobbing. In a car it stops but i hate being stationery. I cant drive anymore and panic attacks constantly. I struggle to get to appointments and only leave the house for medical appointments. I was doing the VR and seemed to gwt bwtter then ended up in ED after two strange turns that put me hypertensive. Now imback to square one. Just started antidepressants and hoping they settle my nervous system.
This is cruel
It can feel so unbelievably cruel when you're in the thick of it. Hang in there. Sending love ❤️
I’m going to try some somatic counseling because I have so much emotion survival energy trapped in my body that sometimes I’m so anxious and don’t know why. You might check out Irene Lyon on UA-cam. She teaches on healing the nervous system. I’m considering doing one of her classes.
Thank you for this video, I have literally had every single one of these in last 5 months, I agree with everything said here! I have one question though, what’s the key to beating this awful condition? I have started a few exercises of vestibular rehab that I found on UA-cam which has been helpful. I live in Northern Ireland and it’s hard enough to find a vestibular therapist never mind someone who knows what PPPD is!
My doctor says I have pppd, but I recognize actually nothing from the symptoms. I have had vestibular neuritis and I still suffer from intense fatigue that gets triggered in busy surroundings, but Im not dizzy anymore. I don't know what to think of my situation. I'm so tired I still can't work, having a meeting for example is way too difficult for my head still :(
I'm sorry to hear you're struggling with extreme fatigue. I hope things improve for you soon 🙏❤️
My mum is suffering from PPPD and your pointers are very relatable . Could you tell me , is it possible to get cured from PPPD completely?
Yes, absolutely!
How’s your mom
I feel dizzy when I’m moving and during head movement and spinning sensation
Hi Emma. One of my main symptoms is eye instability. My eyes can’t focus on an object and feels like it’s shifting. Seems like my brain is over relying on my eyes. (I’ve had my eyes checked there’s nothing wrong). Practicing stillness and just letting my brain figure out what’s happening should help correct?
Hi Elena, if you've had all the relevant tests to investigate and all are clear, then yes it's likely you are over relying on your eyes. This happens when our vestibular systems arent working as efficiently as they should so we use our other systems for balance such as the eyes however they are not as great at helping us to balance like our vestibular systems are! Hope that makes sense. The key is to rebuild your sense of balance using proprioception which can be done by doing eyes closed exercises so you are essentially feeling into your body and where you are in space! Keep going! And keep trying to find steadiness and stillness as you go about your day 💗
Try vision therapy. Different exercises help different things: eye teaming and 3-D, gaze stabilization etc.
I am from India and I am suffering from pppd after COVID. Worst part no one in my family believes me they just say I am over reacting sometimes they mock me also
My symptoms came on after COVID as well! Some of my family and others are also very skeptical and judgemental. I know it is not easy. Seeing these videos and comments help to know I am not alone and I am not crazy, (because I often feel like I'm losing my mind at this point). It's been 105 days since everything started. I'm still waiting on referrals for further testing and treatments.
Has anyone else experienced head pressure and constant pressure behind the eyes, this is the symptom that gives me the most worry, along with the dizziness
I had that constantly but not anymore! ☺️
@@Megan_Jennifer Hi . I hope you see this..
Can you please tell me how did you heal yourself? Was there anything specific that you did?
Just wondering if your symptoms are better? Or if you’ve been diagnosed. My son has the head pressure and pressure behind his right eye, constant nausea. Doctors can’t find anything wrong.
I have had constant pressure in my head, especially the temples, eyes and forehead. I get very dry eyes as well. I have started a medication that is supposed to help as a preventative, as well as vitamins and supplements, and an elimination diet to avoid triggers. I haven't reintroduced anything yet.
My Dr isn't sure if I have Vestibular Migraines or PPPD, or both.
Driving is ok most of the time but as soon as I stop at the lights boom it hits hard. Must be the stillness. I feel so dizzy like I'm going to faint or fade away. It's so horrible 😔
I got rid of this by focusing on the license plate in front of me! I would read road signs or anything I could focus on when I was stopped on the road. Eventually my brain learned NOT to focus on the symptoms and they went away
@@Megan_Jennifer Im so glad to hear that you are getting better. Mine is getting worse. I now have it when im driving. I think it may be a combination of panic, fear, derealization and anxiety, as well as pppd. I had an attack when i went into kmart the other night. My eyes started to see bright white and fade away and I thought for sure that this was it and i was dying. I also get this weird feeling in between my ears or brain. I can actually make it vibrate, cant explain it very well but it makes me feel so bad. Its such a horrible feeling. I had to run out of the store and go home. Now I am too scared to leave the house. My life is ruined and I dont know. Its so not fair :(
@@AL-ru3nkHow are you feeling now? I have the same thing with stopping at lights while driving...Its such a miserable feeling.
@@amandar614 Hey there im much better now I can actually stop at most lights now as long as they arent really busy intersections. But since I wrote that comment ive had terrible anxiety where i couldnt even leave the house. Im much better with that too now thanks to my therapist and support workers. I am going out and driving again but its been a lot of work and a lot of struggles. My PPPD was mainly caused by anxiety and stress cause it does come back to a lesser degree at times. You will get there, baby steps
@@AL-ru3nk That is great to hear! How long did the pppd last for you? Were your symptoms rocking/swaying?
I had a stroke eye and ear bad, so balance is off can't sleep either 2:06
Driving is when its the worst for me.
Hi Emma, I heard somewhere that your dizziness started after drinking alcohol? Is that true because I have a similar onset
Yes I feel better in motion
Yes that's true! I believe I had my drink spiked on a night out and the dizziness started 2 days later. Alcohol has always been a trigger
Is anyone experiencing less symptons when drinking an alcoholic drink? Or is that just the anxiety that is getting less worse?
Depends on how dizzy I am. I think that the alcohol masks it a bit. But sometimes it makes it 100xs worse.
that sounds like MdDS, not PPPD?
The two can be very similar. The difference is MdDs is triggered specifically be travel e.g. a cruise, long car ride, or flying. PPPD is not triggered in this way, there is typically a triggering incident that causes dizziness but it's not related to travel or motion
Driving makes it worse for me.
Hi
I’m suffering from PPPD and I have same symptoms what you said give me ideas to tackle the symptoms
As soon as I sit still I feel my head buzzing and just feel off. What's weird is I can watch videos and scroll on my phone but tv makes it much worse.
I can’t watch tv either. And my computer is much worse for me than my iPad mini. Most if the time when I sit still my upper body starts to move side to side and pretty soon it’s my whole upper body doing it. I can hold it still but as soon as I relax it starts to pick up again.