3.13. Spasmodic (Laryngeal) Dystonia - Dystonias [Spring Video Atlas]
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- Опубліковано 10 вер 2024
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This video series contains a visual demonstration of various gait and movement disorders
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I go to MASS GENERAL Hosp, Massachusetts every 3, 4 or 5 months for botox shots in my vocal cords. I understand your frustration.
I’ve been living with this condition for 35 years now. Initially I saw a gp who dismissed me as being a time waster. That put me off ever seeking help. I have brief respites from it very occasionally. No apparent reason why, but in those times I no longer feel like a freak. I have noticed that the less at ease I feel with someone, the harder it becomes to speak. If I get really anxious I can barely speak at all. As a result, I shy away from people and situations in order to avoid the embarrassment and shame I feel, and the more negative attention it gets the worse it becomes. It’s a catch 22 and I can honestly say it has held me back from being the person I know I am inside. Funnily enough, I am a professional saxophonist and sing backing vocals in bands. I imagine speaking and singing use different parts of the brain. Is there any organisation in the UK that anyone knows of who I might get in touch with? If so, please drop me a message. I live in hope 🙏
I was siagnosed with this when I was in the Army.. I always sound crackly
See a neurologist. You may be referred to a voice specialist. I am currently receiving Botox injections in my larynx every 3 months. It seems to be helping.
Mine does that. Then my voice goes completely away. Comes back then goes back to crackling back and forth.
Will it go
I think I have this. I first noticed when i was pregnant with my daughter. It has gotten worse over time. I find if I pay attention to it. It gets worse. It's abit difficult to start off a conversation. There's breaks and pauses. trying to say words with the pronunciation like c or k or t. It seems to pause or stutter. Or sometimes tremors
Abductor type spasmodic dysphonia