From Wheelchair to Running / Healing CIDP with No Egg Craig

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  • Опубліковано 22 жов 2024

КОМЕНТАРІ • 105

  • @Kim-cj5uz
    @Kim-cj5uz Рік тому +3

    Hey Craig, I'm a 33 year old female and I just got diagnosed with CIDP about 10 days ago. Sounds like we have/had a lot of the same symptoms which is nice for me to hear. This video is the most down to Earth and inspirational thing I've seen so far. I'm starting my first week of IVIG in 2 days, so I'm hopeful and anxious all at the same time. I've cut out grains, dairy, sugar, and processed foods so far. Hearing your story is really meaningful to me as I try to wrap my head around everything and figure out what my future might look like. Thanks so much for putting this video out.

  • @nadyasharp7609
    @nadyasharp7609 5 років тому +8

    I went vegan 3 years ago when i was diagnosed with Graves Disease. It was so bad i can’t even list all the ailments. Dr wanted to burn out my thyroid and put me on meds for the rest of my life. I said.. let me do some research. I did my research right away and found veganism was the best route for overall health and to help heal autoimmune diseases. Today 3 years later i am healthy happy and the graves is in remission!
    I found that out November of 2018. All blood is normal t-3,t-4, liver, and even my cholesterol dropped 34 points!! And i lost 40 pounds. I was 235 and am now 195. Veganism has changed my life for the better. My family is very happy too. My endocrinologist doctor knows im vegan.. she says, i dont know how you did it but keep doing what your doing. It was really nice to hear your story and to finally share mine. Thank You!

    • @smurfke008
      @smurfke008 5 років тому +2

      Thank you for your story. I have Graves disease also but i'm on medication. This helped me to start a vegan diet. Hope it helps!

    • @VinceLia1
      @VinceLia1  5 років тому

      Hi Didi! Thanks for sharing your story! So glad to hear that you're doing well and have a doctor that supports you. Congrats on all your success.

    • @VinceLia1
      @VinceLia1  5 років тому +1

      Hi smurfke008! Good luck as you start your vegan journey. I have a lot of videos here on the channel that may help you and some free resources on my website.

  • @Victoria_VO
    @Victoria_VO 5 років тому +7

    Craig, my father had guillaime-bere syndrome when I was in college. (30 years ago) the condition back then was very rare, and he had the most severe form. He was very close to being put on a ventilator. With massive doses of prednisone, he was able to have a turn in his health. It took a year to recover, since he was paralyzed from the waist down. He was so determined to get his life back on track, that once he could move himself from the bed to his walker, he would go to the physical therapy room in the middle of the night to double his efforts. I’m not sure if you are familiar with Kessler, but they only had one facility in east orange nj back then. They said they never saw such a quick turnaround before. He is in his 80’s now and doing great. He actually outlived his doctors and they were younger than him at the time. Thank you for sharing your journey. Keep being you, and your determination to be well and healthy. You rock!

    • @VinceLia1
      @VinceLia1  5 років тому +3

      Hi Victoria! Thanks for sharing your story about your dad and glad to hear he is doing so well. There is still so much to learn about these conditions.

  • @pearlbubbles6885
    @pearlbubbles6885 5 років тому +13

    Your story made me cry, your family going vegan too, love your family, so lucky to have a family like your family ❤️

  • @leahvincerouse
    @leahvincerouse 5 років тому +16

    Wow! I have been following No Egg Craig for a while now and never knew how serious his condition was! Yay! Go Vegan! 🙌🏼♥️😃

    • @Starry_Night_Sky7455
      @Starry_Night_Sky7455 5 років тому +2

      Same here. I would never know he went through that at all. It's amazing that his symptoms went dormant, thankfully. Love his channel!

    • @VinceLia1
      @VinceLia1  5 років тому +1

      Hi Leah! Glad we were able to share his story here with you.

    • @VinceLia1
      @VinceLia1  5 років тому +1

      Thanks for watching Bonnie! His channel is awesome.

  • @morethanamazinglove8673
    @morethanamazinglove8673 Рік тому +1

    I really thank you for your testimony! I am sharing this with my patients. Praying this gives him HOPE

  • @melissastojack9837
    @melissastojack9837 3 роки тому +3

    Thank you Vince for having Craig tell his story! Craig, great job making a full recovery! Thank you for sharing and inspiring. I was diagnosed with GBS in May of 2019. Then CIDP shortly after. I made it all the way to intubation in the ICU with a very aggressive case. Fortunately, my amazing RN sister was there to be my guardian angel. It's definitely NOT as fun as is sounds :P But it sure does show you what you're grateful for and who your friends are. Like you, I didn't ask for a prognosis because I KNEW I was getting better!! I am still recovering but like you, have done much better than my neurologist expected. He supports my choices to follow a holistic lifestyle and ween off of IVIG but he isn't from that school of thought. Admittedly, I have difficulty sticking to a whole foods diet. It is a great pleasure and help to find another CIDP Warrior doing things naturally. I'm gearing up to return to work as a flight attendant by November 2021. With the pandemic, the restrictive travel aspects is less annoying. I am looking forward to a healthy self-sustaining body and no more IVIG. Let's raise a glass of kale juice to the first vacation away! --forever grateful to all the amazing friends and family, plus innumerable hospital staff with Memorial Health Care and Cleveland Clinic, that have taken this journey with me!

  • @janicekrol8320
    @janicekrol8320 5 років тому +5

    Found you from No Egg Craig! Great interview. I hearing stories like this when people overcome their illness just from eating healthier 🌱❤️👍🏻
    I went vegan 2 years ago for a nerve issue. It was helping not as much as I liked. 6 months ago I cut out all processed foods and make everything from scratch. I eat raw as much as possible. I feel so much better once I cut out processed foods! Vegan eating has changed my life!

    • @VinceLia1
      @VinceLia1  5 років тому

      Glad you're here! Thanks for sharing your story and glad to hear you've had such a positive experience as well.

  • @usualrenn6729
    @usualrenn6729 3 роки тому +2

    i was diagnosed with CIDP in 2011 at the age of 16. This has inspired me to try going vegan and see if it can help. Thank you so much for sharing this video!

  • @thatgirlinokc3975
    @thatgirlinokc3975 5 років тому +15

    Thank you for sharing this. As you and Craig mentioned at the end, stories about issues like this are less common, but need to be told!
    🌱💚

    • @VinceLia1
      @VinceLia1  5 років тому

      Thanks for watching...glad you enjoyed it and we definitely need to talk about this more.

    • @sofianehra5193
      @sofianehra5193 Рік тому +1

      Hi.....I can totally relate...I too have pulled myself from wheelchair in 2018...to now back on my feet...able to walk 10k -15k steps a day....❤❤

  • @wrshpr4lf
    @wrshpr4lf Рік тому

    This guys outlook is EVERYTHING!

  • @jimwindwalker9143
    @jimwindwalker9143 5 років тому +5

    I have CIDP. Everyday is an exhausting challenge. I use a walker and a cane . My quality of life is in the dumps. I'm getting monthly IVIG and
    Retuxinab every 6 months

  • @agingintobeauty
    @agingintobeauty 5 років тому +4

    No-Egg, The Hummus Connoisseur, has been a great inspiration. My path has mirrored his quite a bit, starting raw frutarrian turned starchivore to processed vegan foods. My health was massively improved in the beginning but sadly, I found I had G6PDD late in life. Hummus, peanuts, soy products - all make my red blood cells crumble.
    I'm trying to go back on the mostly frutarrian path and appreciate hearing Craig talk about it again, as I have great respect for him and am a fan of his whole family. I'm feeling very motivated right now. Thanks for the interview!

    • @VinceLia1
      @VinceLia1  5 років тому

      Thanks for sharing your story and what you've gone through. Hopefully you feel better soon and the motivation you received from this video helps you out! Thanks for watching.

  • @jennyflora3069
    @jennyflora3069 3 роки тому +2

    I was diagnosed with CIDP for 2 months ago. I can relate to so mach but was lucky enough that I was diagnosed and still could wolk arround not a normal wolk but atleast not in a weelchair. Something that is common is that when they tell you they found the problem you feel released coz this condition eats u up from inside and it is so depressing when you dramatically feel how bad you are declining and everything looks normal on the outside. I am on IVG and I am feeling better every day and it's stories like this that makes you feel that there is hope. Thank you for sharing!

    • @Kim-cj5uz
      @Kim-cj5uz 10 місяців тому

      I'd love to chat. I'm 3 months into treatments for CIDP and just needing some hope.

    • @jennyflora3069
      @jennyflora3069 10 місяців тому

      @@Kim-cj5uz I send you love and strength! When I wrote this coment they thought I had CIDP and was on IVIG but after a while they realised that it wasn’t working as it should. It was then discovered I had peoms syndrom. In march of this year I did an autologus transplantation and I am perfectly fine! I hope everthing works out to you too! ❤️

  • @QueenPersephy
    @QueenPersephy 5 років тому +2

    You two are pure joy!

    • @VinceLia1
      @VinceLia1  5 років тому

      Thank you so much. Glad you enjoyed the video.

  • @911Nicolita
    @911Nicolita 5 років тому +3

    I was recently diagnose with MS and have no started treatment yet. Thank you for this video.

  • @curtisfleming7160
    @curtisfleming7160 3 роки тому

    I was diagnosed with CIDP in Dec 2014 at age 48. When I was first diagnosed I had IvIG about once every 3 months (when I felt the numbness / tingling returning). I have progressed to having to have treatment every 10 days, and I no longer recover completely. I still have pretty significant constant leg - feet numbness. I, and my family, are beginning a plant based diet tomorrow. I pray it has a positive effect on my health overall, but mostly that it will impact the severity of my CIPD. This video gives me great hope! Thank you for sharing your success.

    • @bobsapp4119
      @bobsapp4119 3 роки тому +1

      @Curtis Fleming any update? Are you still on the diet?

  • @ethangeigle
    @ethangeigle Рік тому +1

    Im 15 and have CIDP, I cant run or jump as well as I could before. Im going on a vegan diet for a month to see if I get improvement! Wish me luck...!

  • @garya3056
    @garya3056 5 років тому +4

    Awesome! Keep going, Craig...

    • @NoEggCraig
      @NoEggCraig 5 років тому +2

      Thanks Gary!

    • @garya3056
      @garya3056 5 років тому +1

      No Egg Craig ✔️

    • @VinceLia1
      @VinceLia1  5 років тому

      I agree...Craig is awesome and glad we were able to share his story!

  • @KristinHa
    @KristinHa 5 місяців тому

    My husband has CIDP, we have been moving towards a vegetarian diet, really trying to hyper dose veggies and fruit, but mostly cruciferous vegetables. Thinking full on vegetarian or vegan will help even more.

  • @NinjaLawnGuy
    @NinjaLawnGuy 5 років тому +4

    2011 diagnosed with CIDP.
    2019, im still not able to do stairs or hurry without collapse

  • @kennethwalker7768
    @kennethwalker7768 Рік тому +1

    Your story is inspirational and it described my situation with CIDP. I believed my symptoms began during COVID-19; when I stopped eating a lot of meat. I went thru periods where my Primary Care Phys. dx'd Vitamin B12 deficiency. Symptoms with weakness progressed and I was referred to neurology where the real concerns began to worry me. Blood tests, Nerve Conductive Testing, and finally ruling out GBS. Had IVIG for 5 days, returned to PhyThp. Began taking Vitamin B's. Looking forward to minimizing and getting better. Thank you for your story. It gives me an example to model. Any advice?

  • @shanoncollier769
    @shanoncollier769 Рік тому

    I have CIDP too and am not doing well at the moment. I was diagnosed 13 years ago. I was also in the best shape of my life but developed it after receiving an H1N1 flu vaccine (I was a nurse). I need some type of change bc I live by myself and have recently started going downhill again. It's now affecting my upper extremities which is newer for me. I am so depressed at the moment.

  • @jaydarker4133
    @jaydarker4133 5 років тому +4

    I had laundry list of health problems including cancer , high blood pressure, and over weight. Went to my doctor's a week ago and she was shocked that I lost a ton of weight and my blood pressure was good she completely supports my plant based choice.

    • @Kevkev_91
      @Kevkev_91 5 років тому +3

      Good luck on your journey! Hope you have improvements with your cancer as well!

    • @NoEggCraig
      @NoEggCraig 5 років тому +3

      Sounds like you have a good doctor

    • @VinceLia1
      @VinceLia1  5 років тому +2

      Hi Jay! Congrats on making those improvements and having a doctor that supports you. Good luck with everything!

  • @ivangerardopichardo9152
    @ivangerardopichardo9152 Рік тому +1

    Hi! I have CIDP and severe neuropathy on my feet and left foot drop. I need some guidness.

  • @OPETH_OPETH
    @OPETH_OPETH 3 роки тому +2

    I’ve been diagnosed with GBS /CIDP on September 2019. I’ve showed a very good recovery except for my heels which feel like stone in a one heel and sponge 🧽 in the other or sometimes I feel them both stuck in mud or soft sand. Coz of this I still can’t walk independently as I need a walker, neither I can use the stairs. Are these remaining feelings normal? Are they one day gonna disappear? I miss my normal life

  • @MissesDavisdee01
    @MissesDavisdee01 2 роки тому +2

    I was just told I have CIDP. I just had my first round of three-day IVIg treatment and next one scheduled in two weeks. I am a 55 year old female ready to get out of the wheelchair and back to a normal life. I have seen most of Craig's vlogs. I would like more info on Vegan diets. I know there are different types. Any help is appreciated.

  • @TheRickytickytavy
    @TheRickytickytavy 3 роки тому

    I was diagnosed with type 2 diabetes earlier this year, and had to go to the ICU for a few days. Afterwards when I was at home I felt better and started an excersice program. I was doing really good but then suddenly I felt numbness and tingling in my feet and hands and it was getting progressively stronger. After many Dr. Visits and a couple of hospital stays I was finally diagnosed with CIPD as well as a herniated disc in my lower back which compounded the pain, tingling and numbness. I was screaming and yelling at night and couldn't sleep. I finally got some powerful painkillers and was able to handle the pain better but the painkillers make me sick. I have been researching more about these conditions and time again I keep coming up with vegan diet. I will give this a try and see for myself. I will have one last meat meal, because I love meat, and I will go vegan.

  • @gazray08
    @gazray08 3 роки тому

    iv got CIDP, been vegan for 3 years, I can go about 11-12 weeks without treatment, but not sure I can come off medication - not tried yet. thanks for sharing.

  • @MrControversy666
    @MrControversy666 2 роки тому

    I have UC AND CIDP I GOT CIDP By Listening to my gastrologist and taking Remicade. I too got Diagnosed for CIDP in November and cross country runner for 15 years. I had colitis about nine months prior because I quit smoking and my flareups begin I’m back to smoking and my severe ulcerative colitis is in Remission after three years of trying everything but remove my colon which they told me was the only option left. . I too was on prednisone for 60 mg for about eight months and that also caused deterioration in my bones especially my knees

  • @Aliciacyclist
    @Aliciacyclist 5 років тому +4

    Dr Brook Goldner's channel Goodbye Lupus has stories of people she's helped with her protocol of green smoothies and unprocessed vegan diet to heal autoimmune conditions

  • @kevinbaxter7390
    @kevinbaxter7390 4 роки тому +1

    These Syndromes and symptoms effect every individual different. Meself 50yr old male, played rugby cycling weights, then boom 9/12/15 in hospital diagnosis GBS neck down paralysis, agree spinal tap hell. GBS effects physically socially emotionally. Today balance issues, essential tremor in both hands, muscles wastage. The last 14 months was feeling even weaker muscle pain and wastage, fatigued, tingling numbness.. I knew in myself something was wrong. 18/2/2020 diagnosis CIDP so next journey begins!! Get all the information as possible and push your doctors and Neurologist..

  • @neelkanth_shambhu
    @neelkanth_shambhu Рік тому

    Hi Craig 👋 . So what you think how much you recovered till now ?
    Is you going to be fit 100 % ?

  • @elizabetho7654
    @elizabetho7654 5 років тому +5

    Autoimmune (Hashimoto's thyroiditis) here! You're right, you don't hear about autoimmune + vegan cases anecdotally very often. A theory could be that the Paleo movement has grabbed most afflicted with autoimmune conditions. I am trying veganism right now because the paleo diet did not improve my health after 2 + years of trying. They made such great promises! So I'm trying God's original menu 😉
    Thanks for sharing!

    • @Kevkev_91
      @Kevkev_91 5 років тому +2

      Im having crohns and i can tell you in my case the vegan diet helped as well ...a lot! Almost symptom free. When I ate meat it worsened inflammation. So i kinda see a pattern there with the diet.. many people with autoimmune disease experience relieve on a vegan diet. Give it a try! Good luck on your way

    • @NoEggCraig
      @NoEggCraig 5 років тому +3

      Yeah that's definitely a good theory, it grabbed me at first

    • @VinceLia1
      @VinceLia1  5 років тому +2

      Hi Elizabeth! I agree that more people need to talk about these conditions more. I've done a few videos about my journey with colitis and how a vegan diet has helped me. I also have some free resources on my website that may help you!

    • @VinceLia1
      @VinceLia1  5 років тому

      Congrats Kev Kev!

    • @elizabetho7654
      @elizabetho7654 5 років тому +2

      @@VinceLia1 I've seen some of the videos (found you through Wheezy Waiter), but I'll check the site now. Thanks!!

  • @pranayuga
    @pranayuga 5 років тому

    Woo! 🚫🥚 Craig! 🥳 Glad you (and Vince) went #vegan and are doing good now! 🌱

  • @toodie535
    @toodie535 4 роки тому

    HELP! who/what does Craig mention finding, at 12:05??

  • @shananalexander9789
    @shananalexander9789 5 років тому

    I was diagnosed with MS. I have had 4 back surgeries. I too have these symptoms. I’ve described my tingling in my hands and feet as if there is an electrical current going through both. I can even hear it when it happens. The tingling is there but burning feet and hands at the same time. Should I discuss this with my doctor? I’ve had a spinal tap and MRI to be diagnosed with this. I was told by a Chiropractor before I was diagnosed that there was lots of toxins in my body. How he knew I don’t know, but he did. Weakness and heaviness too. Prednisone was given. Lots of it. I went from 115 to 190 pounds from all the Prednisone. Hate that medication so much but it was needed for the inflammation. Then also put on Neuroten (sp). It kept the weight on for years. I sound like a hypochondriac I know, but pain is my norm now.

    • @VinceLia1
      @VinceLia1  5 років тому +1

      Hi Shanan! I would definitely discuss this with your doctor and it's always safe to get multiple opinions as well. I hope you feel better soon.

  • @charwood5197
    @charwood5197 Рік тому

    Excellent book to read for these diseases is “Mastering Diabetes “. It covers many diseases and is well substantiated. It’s vegan of course.

  • @dmizu6419
    @dmizu6419 5 років тому

    I have been dealing with a Lyme disease diagnosis and was just diagnosed with CIDP. I'd tried a vegan diet and didn't do well on it. But I do better on a mostly plant based diet.

    • @tanyaleigh8796
      @tanyaleigh8796 2 роки тому

      humans are not meant to be vegan...sorry

  • @bobsapp4119
    @bobsapp4119 3 роки тому +1

    I have CIDP and I just eat meat, no carbs, just grass fed beef and some organic eggs. Works for me

    • @TheRickytickytavy
      @TheRickytickytavy 3 роки тому

      Is this working?

    • @bobsapp4119
      @bobsapp4119 3 роки тому

      @@TheRickytickytavy seems to be, I'm also on steroids, but i find that when i dont stick to the diet, then the symptoms start to return

    • @TheRickytickytavy
      @TheRickytickytavy 3 роки тому

      @@bobsapp4119 ok. I was on steroids when I was in the hospital. I stopped taking them, it was administered by IV, because the steroids caused me to have cataracts. A lot of people are saying they got better on a vegan diet but I love meat. I think that I will stick to organic chicken breast and eggs see how it goes.

    • @bobsapp4119
      @bobsapp4119 3 роки тому +1

      @@TheRickytickytavy If you are planning to just eat carnivore, then its important to do some research into it. a few important things are 1. eat a lot of fat 2. suppliment electrolytes esp. at the start 3. be aware that there will likely be an uncofortable adaption period.
      I would reccomend searching carnivore diet on reddit and looking at some youtube videos.
      also check out Wim Hof, I have been doing ice baths and his breathwork for a number of months and im sure that helps also

    • @TheRickytickytavy
      @TheRickytickytavy 3 роки тому

      @@bobsapp4119 I think I will eat just chicken breast or fish with salad. I will also take extra vitamins and minerals.
      Do the steroids have a negative affect on you. They did terrible things to me.

  • @juliedevaul6556
    @juliedevaul6556 2 роки тому

    me too

  • @ZE308AC
    @ZE308AC 4 роки тому

    what is good for leaky gut?

  • @jackiemoey4060
    @jackiemoey4060 4 роки тому

    Is egg included in your diet? How about sugar, wheat, milk and cheese?

  • @gwhiz111
    @gwhiz111 2 роки тому +2

    CIDP is named on P fi zers list of adverse reactions.

  • @Starry_Night_Sky7455
    @Starry_Night_Sky7455 5 років тому +2

    Say that CIDP term really fast again. It's just after 7:30

    • @VinceLia1
      @VinceLia1  5 років тому

      Hi Bonnie! It's chronic inflammatory demyelinating polyneuropathy, but Craig says it much better than I can.

  • @lindenbergers
    @lindenbergers 5 років тому +3

    I'd like to find out what it is about meats and dairy that aggravate inflammatory diseases. As I'm sure you've experienced, I went thru probably a month of horrible swelling and inflammation when I stopped eating meat. Something vegans don't warn you about lol.

    • @VinceLia1
      @VinceLia1  5 років тому +1

      That's interesting because my inflammation decreased when I stopped eating meat and dairy. One of the most common things we hear about meat and diary is the high amount of saturated fat can increase inflammation. How did things change for you after that first month?

    • @lindenbergers
      @lindenbergers 5 років тому

      @@VinceLia1 After the initial swelling for a month or more, all the inflammation went away and things went to the new normal with good weight loss that I desperately needed and better overall health. I was just really unprepared for the initial problem. My only issue now, being vegetarian, is I tend to dangerously low on salts on blood tests, so I've had to learn to add electrolyte drinks and actual salt into my diet.

  • @marrallisa
    @marrallisa 4 роки тому +2

    Where can i find more info about this without the guy on the right constantly interrupting with useless and annoying input.... It would be so much better without his annoying comments.

  • @crystalsada6224
    @crystalsada6224 Рік тому +1

    Ok, as a fellow CIDPer things like this make me mad. A vegan diet won’t work for everyone. I’ve known a few people who have tried to cure CIDP with diet only to wind up in the hospital. I cannot live without IVIG weekly. CIDP can go into remission for some people, regardless of what time of diet they are on.

  • @jaigarg1364
    @jaigarg1364 2 роки тому +1

    Hi mate I’m suffering from cidp for last 2 years pls help me