“I've always missed out when I was a kid” - CONVERSATIONS WITH JEN: FT ADAM
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- Опубліковано 27 сер 2024
- Adam and I have pretty much grown up together in the hospital setting. We were blood transfusion buddy's as young teenagers but life happened and we tend to only see each other in passing at the hospital if our appointments are on the same day or if we happen to be hospital inpatients at the same time. It was important for me to get a male perspective of what it's like living with sickle cell and I hope more men will be willing to speak openly about sickle cell in the years to come.
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Credits:
Intro music: Auden Allen / mraudenallen
Camera: Sophia Olaniyan sophiaolaniyan...
My Friend Jen CIC: myfriendjen.co...
Wow, wow, wow, what an absolutely beautiful depiction of such a worthy topic. I'm soo proud of you Adam, what a strong young man. Many points made me emotional as I personally remembered parts 🥺 I have always been proud of you Adam, this is on another level. We need to speak more on such topics. Well done to Jen for your interview style, you're fantastic 👏🏾 👏🏾👏🏾👏🏾
Thank you 🙏🏾 Adam was definitely a great guest to have. I learnt so much about his journey.
👏🏿👏🏿👏🏿 Thank you for your willingness to be vulnerable Adam. This was such valuable insight into your plights and progress over the years, you're nothing short of amazing. You are amazing too Jen, thank you for creating the platform and more importantly for who you are; not only for yourself but for others. Continue to stand strong Queen ✊🏿👑
Aww thank you so much. Comments like this drive me to keep going 😊🙏🏾
Loved this Adam,such a good insight & obviously it's good to hear you speaking about what it has been like and how it is for you personally,this will definitely spread awareness 👍🏾🙏🏾
That’s the goal! 🙌🏾🙌🏾
Great video and conversation. I'm a Sickle Cell Warrior with SB+. Priapism SUCKS!!! lol AR the Prophet made a very detail video documenting his experience with it and how it's treated in the hospital its on UA-cam. My experience is it usually happens at night while just laying down or sleeping. It happens when my lower body is having trouble with circulation. It's painful with like a burning/numbing feeling(hard to explain) and the longer the blood is stuck the worst it gets. The way I handle it is by getting my blood to circulate by having sex with also messages it and helps the blood move, exercises like squats and jumping jacks and a heating pad.
Thanks for sharing this insight into priapism and how you manage it. I hope that we can have more open conversations on this topic going forward.