A friend's cousin married a man who developed Huntington's after she had their fourth child. His illness got so bad, he had to live in a small house in the back yard for the safety of the children. After he died, her four children (now in their teens) were tested and three had Huntington's. Very tragic!! And, as it turned out, they discovered their grandmother had been donating to the Huntington's Foundation for years and knew there was Huntington's in the family but never told anyone. This tragedy could have been averted if she had just said something.
My brother had juvenile huntingtons disease. He was always so full of life and an amazing kid once he got sick it destroyed me watching him die one day at a time.
My best freind passed away with this absolutely horrible disease,one of her 3 sons has it and her youngest son l would look after all the time when Kaylene was to sick.That same little boy is 25 now and lives with me permanently. Sending all my prayers to the lovely people who have to suffer with this debilitating disease.Breaks my heart.x💔xx
I've had an interest in this condition since 1976! I had a patient with it. She was . In her thirties . I was at the start of my career in nursing. She wasn't treated well by senior staff, and I was sad it seriously affected me. She had very young children who used to visit. I'm 62 retired now, I remember her well. It's a cruel thing and so hard on everyone!
I'm surprised only 215 people give this documentary thumbs up! Even if you don't have Huntington's disease acknowledgement is Powerful. I was diagnosed with inherited genetic disorder from my father who past the faulty Gene to me, my parents were divorced and I didn't see my father until I was in my 30s and then informed that I was carrying of the faulty Gene. I had two beautiful girls and I sadly past the genetic disorder to my second child, which my ex husband clearly blamed me which in the end the marriage broke down. It just broke my heart to watch this documentary and to know that so many people are misdiagnosed it's just heartbreaking. Thank you to all of you in making this documentary, incredibly informative very well directed. God bless you all 🙏 ❤
Your story is so very sad. I wish you so much grace as you travel your road, care for your daughters and watch & wait for any symptoms your daughter may start to exhibit as she ages. So scary. Be brave. Prayers. ❤
I use to do the hair of a young women 35 w 4 girls who all but 1 ended up w Huntington disease and lost her hubby before all that. He loved her so much ❤
Charlene loved her husband which was so obvious in this film. I hope she has learned to live without Mike by her side. You don't stop loving or missing a pivotal person in your life. You are left to navigate without a blueprint of how to do that. Charlene, you all made a beautiful and significant film. I pray for all families facing the ravages of Huntington Disease.
My sister-in-law passed away 5 years ago from HD and the three beautiful children that she and my brother brought into this world, have all tested positive for it now. It’s absolutely heart breaking….
I hope his children have been tested for the gene. The only way to prevent this disease is to not have children if you carry the gene. So many are not tested and continue to have children and it's very sad. I worked as a nurse in a HD facility. I came to love the residents there and made their lives as comfortable as possible. God bless them all as it's a very long and difficult road.
Man, this wrecked my heart. I wish so badly, we have a cure for this disease. So hard watching your loved ones slowly lose the ability to do anything for themselves. We don’t have HD in my family, and I can’t imagine if I bad to watch my family member go through this. I pray we find a cure of this disease.
It truly is sad n hurts! I may or may not be a person with Huntingtons I honestly don’t want to know some do but I don’t want to know my whole family has had it skipping generations
My heart breaks for this family and every one that has a loved one with Hunningtons. It took my high school and beyond sweetheart. His mom lost her husband and four children. One grandchild with juvenile Hunningtons. After her passing more grandchildren are showing symptoms. I pray for a cure.
I was in a relationship with someone who died from this...we had 2 kids...one passed at 19 from JHD & the other one will pass around age 36 like his dad did
I grew up in Pasco county in New Port Richey so I'm familiar with spring Hill and tarpon springs. I work in the medical field doing physical and occupational therapy and have come across this disease process. I remember treating a whole family that had it very sad to see the young kids that were involved as well.
I married into a family who had HD and have watched my sister in law and recently my brother in law die my husband escaped due to having cerebral palsy ❤😢
When you’re having a rough go of it & life is very hard & things really aren’t going your way, no matter how bad things can and do get, it can always be worse, there’s always someone struggling harder than you are. Good health is the measure of wealth. 99.9% of the time A wealthy person that is ill would trade you everything they have for your good health. And that’s a fact. This was really hard to watch. It’s reality and it should be seen by everyone. Wow.
Awful disease! 50/50 chance. You were an angle. Note to people out there…Please! If you KNOW you have the gene, just adopt. Do not pass this on to your poor children.
I’m sorry , I got tested yesterday, I know I have it, I’m pretty sure I have it, always knew I would get it.. I have been a wild child from the beginning.. not that it’s a sign or anything, but I just know deep down something ain’t been right for the last 6 years or so. I stopped taking care of my self, like brushing teeth and showering etc., stopped working, etc..... My mom had it, but she wasn’t wild as a child, so I guess me be feral or carnnel minded all my life may not have anything to do with the Huntingtons. Though I’ve read a lot of guys my age 41 who where wild growing up that got it . My 4 aunts, one uncle, two cousins, and my Cherokee grandma, all had and died . Well one cuz still alive, living in a home in Indy somewhere.. But only my older cousin who died at 41 was wild as I was .. I think a lot of my madness came from seeing it rip apart my family when I was a teen and I knew it was 50/50 so I chose drugs and drinking., and turned my back on God .. love y’all, hope things are working out. Yet I know the battle you take on , on a daily basis.. It’s so very hard. I don’t want to put my dad in the same situation as mom .. so I have a lot of big decisions to make here very soon. Again, love y’all.. please be patient and positive. God bless
How are you doing now? Your story broke my heart. I hope you’re doing well. I’m so sorry uve lost so many family members, my heart goes out to you. God bless you.
Being a wild child isn't going to make you get Huntington's. It is in your genes or it isn't. I'm actually glad you experienced fun even if it was kind of dangerous, too. You will have that fun to look back on should you actually develop this disease. Best wishes.
My father had it. He lived to 74, had it since his 40s. Just know every person is different, and from all my family who had it, their symtoms ran the gamut from being total mental but with no chorea, to having the spasmodic jerking but still being smart as a whip. I am 63, one of 3 daughters and we were prayed over at a church retreat and none of us have it, thank you Jesus! My grandmother lived to 77, had 10 children. It is not necessarily a death sentence. If it is in your genes, suicide is not the answer, Jesus is!
A friend's cousin married a man who developed Huntington's after she had their fourth child. His illness got so bad, he had to live in a small house in the back yard for the safety of the children. After he died, her four children (now in their teens) were tested and three had Huntington's. Very tragic!! And, as it turned out, they discovered their grandmother had been donating to the Huntington's Foundation for years and knew there was Huntington's in the family but never told anyone. This tragedy could have been averted if she had just said something.
What a brave and special lady. I hope she has managed to build a good life for herself now
April 2023. I hope Mike's wife is living a good life these days x
My brother had juvenile huntingtons disease. He was always so full of life and an amazing kid once he got sick it destroyed me watching him die one day at a time.
My best freind passed away with this absolutely horrible disease,one of her 3 sons has it and her youngest son l would look after all the time when Kaylene was to sick.That same little boy is 25 now and lives with me permanently. Sending all my prayers to the lovely people who have to suffer with this debilitating disease.Breaks my heart.x💔xx
thank you for being such a good person in taking care of your husband with HD!! your unselfishness is leaps and bounds
I've had an interest in this condition since 1976! I had a patient with it. She was . In her thirties .
I was at the start of my career in nursing. She wasn't treated well by senior staff, and I was sad it seriously affected me. She had very young children who used to visit. I'm 62 retired now, I remember her well. It's a cruel thing and so hard on everyone!
Charlene is a saint. God bless this family.
I'm surprised only 215 people give this documentary thumbs up! Even if you don't have Huntington's disease acknowledgement is Powerful.
I was diagnosed with inherited genetic disorder from my father who past the faulty Gene to me, my parents were divorced and I didn't see my father until I was in my 30s and then informed that I was carrying of the faulty Gene.
I had two beautiful girls and I sadly past the genetic disorder to my second child, which my ex husband clearly blamed me which in the end the marriage broke down.
It just broke my heart to watch this documentary and to know that so many people are misdiagnosed it's just heartbreaking.
Thank you to all of you in making this documentary, incredibly informative very well directed.
God bless you all 🙏 ❤
Your story is so very sad. I wish you so much grace as you travel your road, care for your daughters and watch & wait for any symptoms your daughter may start to exhibit as she ages. So scary. Be brave. Prayers. ❤
I use to do the hair of a young women 35 w 4 girls who all but 1 ended up w Huntington disease and lost her hubby before all that. He loved her so much ❤
That is so tragic. 💔
Charlene loved her husband which was so obvious in this film. I hope she has learned to live without Mike by her side. You don't stop loving or missing a pivotal person in your life. You are left to navigate without a blueprint of how to do that. Charlene, you all made a beautiful and significant film. I pray for all families facing the ravages of Huntington Disease.
My sister-in-law passed away 5 years ago from HD and the three beautiful children that she and my brother brought into this world, have all tested positive for it now. It’s absolutely heart breaking….
Omg what a strong woman. Where are we now? This was 4 years ago.
I hope his children have been tested for the gene. The only way to prevent this disease is to not have children if you carry the gene. So many are not tested and continue to have children and it's very sad. I worked as a nurse in a HD facility. I came to love the residents there and made their lives as comfortable as possible. God bless them all as it's a very long and difficult road.
Man, this wrecked my heart. I wish so badly, we have a cure for this disease. So hard watching your loved ones slowly lose the ability to do anything for themselves. We don’t have HD in my family, and I can’t imagine if I bad to watch my family member go through this. I pray we find a cure of this disease.
It truly is sad n hurts! I may or may not be a person with Huntingtons I honestly don’t want to know some do but I don’t want to know my whole family has had it skipping generations
My heart breaks for this family and every one that has a loved one with Hunningtons. It took my high school and beyond sweetheart. His mom lost her husband and four children. One grandchild with juvenile Hunningtons. After her passing more grandchildren are showing symptoms. I pray for a cure.
Mike chose the right gal. Xx
Bless you 🙏
United we stand to eradicate all diseases, let’s focus on that instead of fighting amongst ourselves where to spend the money!😢
I was in a relationship with someone who died from this...we had 2 kids...one passed at 19 from JHD & the other one will pass around age 36 like his dad did
💐for Mike.
Thanks for Sharing this private health matter very genuine
Thank you for sharing!☹
I grew up in Pasco county in New Port Richey so I'm familiar with spring Hill and tarpon springs. I work in the medical field doing physical and occupational therapy and have come across this disease process. I remember treating a whole family that had it very sad to see the young kids that were involved as well.
It has to be so sad! If you can't laugh you will cry.
Hopefully, Mike's daughter is spared. ❤
Huntingtons runs in my family it’s so sad n heartbreaking 💔
Love to the family 💜
You will all ways be his girl 😍
I married into a family who had HD and have watched my sister in law and recently my brother in law die my husband escaped due to having cerebral palsy ❤😢
When you’re having a rough go of it & life is very hard & things really aren’t going your way, no matter how bad things can and do get, it can always be worse, there’s always someone struggling harder than you are. Good health is the measure of wealth. 99.9% of the time A wealthy person that is ill would trade you everything they have for your good health. And that’s a fact. This was really hard to watch. It’s reality and it should be seen by everyone. Wow.
So sorry 🙏
What a beautiful woman
Awful disease! 50/50 chance. You were an angle.
Note to people out there…Please! If you KNOW you have the gene, just adopt. Do not pass this on to your poor children.
Where are they from? I love the accents! Job well done, Mike and Charlene.
Sounds like New Hampshire
I’m sorry , I got tested yesterday, I know I have it, I’m pretty sure I have it, always knew I would get it.. I have been a wild child from the beginning.. not that it’s a sign or anything, but I just know deep down something ain’t been right for the last 6 years or so. I stopped taking care of my self, like brushing teeth and showering etc., stopped working, etc..... My mom had it, but she wasn’t wild as a child, so I guess me be feral or carnnel minded all my life may not have anything to do with the Huntingtons. Though I’ve read a lot of guys my age 41 who where wild growing up that got it . My 4 aunts, one uncle, two cousins, and my Cherokee grandma, all had and died . Well one cuz still alive, living in a home in Indy somewhere.. But only my older cousin who died at 41 was wild as I was ..
I think a lot of my madness came from seeing it rip apart my family when I was a teen and I knew it was 50/50 so I chose drugs and drinking., and turned my back on God ..
love y’all, hope things are working out. Yet I know the battle you take on , on a daily basis.. It’s so very hard. I don’t want to put my dad in the same situation as mom .. so I have a lot of big decisions to make here very soon. Again, love y’all.. please be patient and positive. God bless
How are you doing now? Your story broke my heart. I hope you’re doing well. I’m so sorry uve lost so many family members, my heart goes out to you. God bless you.
How are you? Please give us an update 🙏🏽🙏🏽
Being a wild child isn't going to make you get Huntington's. It is in your genes or it isn't. I'm actually glad you experienced fun even if it was kind of dangerous, too. You will have that fun to look back on should you actually develop this disease. Best wishes.
Such an awful disease.
My father had it. He lived to 74, had it since his 40s. Just know every person is different, and from all my family who had it, their symtoms ran the gamut from being total mental but with no chorea, to having the spasmodic jerking but still being smart as a whip. I am 63, one of 3 daughters and we were prayed over at a church retreat and none of us have it, thank you Jesus! My grandmother lived to 77, had 10 children. It is not necessarily a death sentence. If it is in your genes, suicide is not the answer, Jesus is!