How I discovered my brain tumour (and survived) Part 1
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- Опубліковано 6 лют 2025
- 🧠 How I Discovered My Brain Tumour (And Survived) 🌟
Discovering a brain tumour is life-changing. But how did I realize something was wrong? What were the signs and symptoms? And how did I get through it all? In this video, I’m sharing my personal journey-from the first red flags to the life-saving surgery and my path to recovery. ❤️
🎥 What you'll learn:
✔️ Common brain tumour symptoms you shouldn't ignore
✔️ How I stayed strong through diagnosis and treatment
✔️ The mindset and tools that helped me survive
Whether you’re facing a diagnosis, supporting someone who is, or simply curious about brain health, this story is for you. Let’s shine a light on the journey of resilience, hope, and healing together. ✨
💬 Got questions or a story to share? Drop them in the comments-I’d love to connect with you!
👉 Don’t forget to subscribe for more videos on brain surgery, recovery, and positivity.
#BrainTumour #BrainSurgeryJourney #SurvivorStory #PositivityJourney #brainhealth
ARE YOU SOMEONE THAT HAS A LOT OF QUESTIONS ABOUT THE BRAIN TUMOUR JOURNEY?
You can easily watch all of my content in this playlist - My Entire Journey • My Entire Journey - Al...
I survived brain surgery, and I'm here to share my journey-no fluff, no clickbait, no sugarcoating. Just authentic and genuine real-life stories from someone who’s been through it all: the dark hours and the brighter days, the ups and downs. I’m dedicating my time to helping others navigate this brain tumour journey, offering real answers and hope to my fellow brain tumour warriors. Rehabilitation and recovery are possible, and you’re not alone.
When I was lying in that hospital bed, all I wanted was to hear from others who’d been through the same, people who made it to the other side. Now, I want to be that person for anyone facing the same challenges.
Please LIKE and SUBSCRIBE so I can help more people with brain tumours, dizziness, anxiety and headaches
*may contain triggering content
Frequently Asked Questions
WHAT TYPE OF TUMOUR DO I HAVE?
A slow growing gangliglioma - we only discovered this after performing brain surgery (as it is in a very tricky to operate section of my cerebellum, so we couldn’t biopsy prior to surgery) - we removed 80% of it and monitor the remaining 20% with MRs
HOW LONG WAS I IN HOSPITAL AFTER SURGERY?
5 weeks in hospital
Followed by 5 weeks in a rehab facility
WHAT ARE MY NEW PHYSICAL CHALLENGES AFTER BRAIN SURGERY?
Severely uncoordinated left hand side of my body (I have stroke like symptoms)
I have challenges walking (especially up and down stairs - I need to hold onto a rail)
I have challenges swallowing food, drink and saliva (sorry gross, I know) - this is know as Dysphagia
I have challenges with my vision - firstly I had severe double vision (Diplopia) and now I have severe dry eye in my left eye
I have daily fatigue - making normal daily tasks quite challenging
WHAT WERE THE TIMELINES FOR MY NEW CHALLENGES AFTER SURGERY?
I taught myself to stand up on my own two feet after 4 weeks
I taught myself to walk again (with a walking stick) after 3 months
I taught myself to walk unassisted after 4 months
I learnt to eat and drink after 3 months
I started to see clearly after 2.5 months
WHAT IS MY PASSION AND GOAL WITH THIS UA-cam CHANNEL
I’m building a community for brain tumour warriors-a free, accessible resource where people can learn from my personal experiences and insights. My channel is designed to be user-friendly, with all videos neatly organized into playlists. For example, if you’re looking for content on headaches, you’ll find it in the ‘Headaches’ playlist. For rehab tips, head to the ‘Rehab Tips’ playlist.
My ultimate goal is for this channel to serve as a lasting tool for anyone navigating brain surgery-whether it’s happening today, happened five years ago, or will happen five years from now. This resource is also for support networks, with a dedicated playlist created specifically for families and caregivers
HOW I DECIDE WHAT TOPICS TO COVER IN MY VIDEOS?
I create videos inspired by the questions asked by fellow warriors in the comments of my videos. If someone asks a question, I’ll make a video dedicated to answering their exact question. If you have any specific questions, don’t forget to ask it in the comments and I’ll make a video reply specifically for you
Leave any questions or topics you would like me to cover here in the comments
Your recent post is great news. 🎉
@ hi there!
Thank you so much for
Are you a fellow warrior?
You are a great inspiration for everyone that knows you Joel. Stay strong!
my first ever youtube comment
thanks brother
i hope you watch more of my video brother
Sending you lots of love your way. ❤️❤️
Thank you Giulia, that means a lot. Hop all is well in your world!!
How many years u had dizziness ? And when the headache started ? After how many years once dizzziness started u came to know about tumour ?
I started to get dizzy and head aches 8 years ago. Do you have symptoms?
I found out about the tumour 6 years ago
Hey buddy ... Not persistent only few days now i am fine ... So cross verified .. nice information
Great news! Look after yourself. I you have your health, you have everything! Take care
Does a brain tumor bring in abnormalities in cbc blood count ?
I have bad headaches one side of temple that radiates to back of neck . But I wear snap back hats every day all day could it be from this ? The pain gets worse when I wear hats
It definitely could! It could be dozens of things, stress, anxiety, dehydration etc
If you’re really concerned tell your doctorate’s you have bad headaches and want an MRI of your brain
I’m
About to release another video on this topic, so keep an eye out
What is the technical term for dizzy doctor so we can find one please
I just went to my regular GP and told them I was dizzy
You need to ask them for an MRI of your brain, if you’re concerned about it being a tumour
Do you have dizziness?
I have a video coming out about this soon, explaining if dizziness is a tumour symptom! keep an eye out for it
Hey man I am 18 and I am experiencing very mild ghost vision which is kind of doublish it happens mostly on white colour objects and goes away when I go near the object I have very high astigmatism and mild dry eyes also but I also get it after wearing glasses it improves a lot after wearing them though. I have no other symptoms no headache no dizziness nothing can this be a tumour ?? I went to a eye specialist he said 99.9% it’s not a tumour
Gday mate
Thanks for checking in
Firstly, my advice would be to listen to the experts (your doctor, surgeon, GP etc)
Secondly, many things can be a sign of a tumour, but many times those same things are not a sign of a tumour, my advice, if its available to you, get an MRI of the brain just to make sure. Not only will it give you peace of mind, but time is the best weapon when dealing with brain tumors
I’ll make a video on this exact question for you asap! I’ll tag you in the video
Have you heard of kaleidoscope vision? I get that!! It’s pretty gnarly
Thanks again for reaching out
Stay happy n healthy 🤙🏽
👍💪🏽💪🏽