Fiona shares her experiences with M.E. and the stigma that still surrounds it. Follow us on Instagram and Twitter @ukthisisme. Please watch in HD. Music by Purple Planet and Bensound.
Thank you for your bravery in sharing this and for your willingness, in spite if the inevitable crash. I too am a sufferer --16 years and increasingly worsening.
truly a devastating disability.....the grief.....seems endless. all the loss...and more loss....guilt..depression, it becomes, as you say, about energy...where to find it, when it comes, when it doesn't come. i can only send you love and the feeling of connection i have with you
I want to first of all thank you so very much for sharing, Fiona., as you explained it so well. .ME is such a devastating illness. Your story sounds very similar to mine..mine was induced by a virus, I am also a nurse , and was under extreme pressure for quite a few years prior.[ I have had ME for 20 years. ] I do however want to offer you hope.. I think hope is essential.I have improved from completely bedbound to being able to go out a few times a week, for short periods of time[I also use an electric wheelchair] I do, however, know that we are all different. A treatment can not come soon enough! Again, thank you so much.. please take care, and sending you big hugs.
Thank you for sharing your story. ME really does affect the whole family. You are not alone. We deserve proper recognition and proper care.
Bless you Fiona and thank you for doing this on behalf of ME sufferers everywhere.
Thank you for sharing, and thank you for this video. This was very emotional to watch but is what so many of us are going through. x
Thank you for your bravery in sharing this and for your willingness, in spite if the inevitable crash. I too am a sufferer --16 years and increasingly worsening.
Thank you for sharing! Missing from my life for 9 years.
truly a devastating disability.....the grief.....seems endless. all the loss...and more loss....guilt..depression, it becomes, as you say, about energy...where to find it, when it comes, when it doesn't come. i can only send you love and the feeling of connection i have with you
I want to first of all thank you so very much for sharing, Fiona., as you explained it so well. .ME is such a devastating illness. Your story sounds very similar to mine..mine was induced by a virus, I am also a nurse , and was under extreme pressure for quite a few years prior.[ I have had ME for 20 years. ] I do however want to offer you hope.. I think hope is essential.I have improved from completely bedbound to being able to go out a few times a week, for short periods of time[I also use an electric wheelchair] I do, however, know that we are all different. A treatment can not come soon enough! Again, thank you so much.. please take care, and sending you big hugs.
I also have this awful illness. Thank you for sharing .
Never ever give up Fiona, it’s not in your head, please don’t feel guilty doesn’t help. Best to you from a very fatigued man from Holland
Bless you Fiona for sharing your story. I can relate to all of it. I hope you didn't suffer too much payback from talking about it. xxx
sending you much gratitude, Fiona, for sharing your story. I do hope at some point things can improve for you.