I am 71 and received my diagnosis of PSP almost 8 years ago when my eyes began to freeze up and I was seeing double. The progression has been slow. Now I find that in the last few months, I am stiff, have difficulty sitting and getting out of chairs, have vertigo, cannot look up or down, difficulty multitasking and losing my cooking skills and things that demand concentration. I don’t yet show signs of dementia but I am definitely not at sharp as I was . I cannot read anymore and so I listen to audible books. The light also bothers my eyes tremendously When this disease becomes unmanageable for myself and my husband, and God willing I am still able to make decisions, I shall ask for the right to die with dignity as it is allowed in Canada for incurable diseases which have a bad and painful outcome ! This certainly qualifies. My wishes are in my living will, stating also that I will refuse a feeding tube, or any agressive treatment of my symptoms. I have no control over this illness but I hope to control how I handle it at the end. Courage to all of you and your families ❤️❤️❤️❤️❤️
I am so sorry for the loss of your dear husband and father. My husband, too, died from this illness. Our youngest child was 15. I continue to walk towards life and I bring my husband's memory along with me. I will never forget the suffering of that illness.
It's frustrating to have found this video so long after Jeff's passing. I'm sorry for all the pain and suffering Jeff and his family endured towards the end. I have to state how much Jeff improved my life as a guitar player. The joy he provided while playing w/ Billy Squier, Rod Stewart, etc. will always be cherished by me and millions of other fans. Rest in Peace, Jeff...and thanks for everything.
His work with Rod Stewart was phenomenal. It's just so sad to hear how he suffered from this desease. At 59 yrs old he still have a lot of melody to share to the World.
I had the privilege & honor of working with Jeffry G in my band for several years - he was a virtuoso a gentleman and a generous spirit. When one of his guitars was non functioning properly he would put it in the closet for it to "get better." - he had a great sense of humor too. Love and best wishes to his family - he was a true prince.
My beautiful mother passed away 4/14/2020 from this horrible, devastating disease !!! It robbed her of her life !!! Looking at the symptoms, unfortunately, I could check off every one of those !! She was 80 and fought this illness for 7 long and hard years !! No treatment and cure !! HEARTBREAKING In memory of my mother. Beverly..... I love you. Lori
I’m sorry to hear about your loss. We have just found out this illness when my father was diagnosed with PSP about 4 month ago. We are taking one day at a time.
Going through this now with dad who was incorrectly diagnosed with Parkinson's until a few month ago everything went down hill soooo super fast. He is now in hospital and needs 24 hour once discharged. So heartbreaking!
As someone who has been trying to get a diagnosis (looking like probable autonomic neuropathy/MSA) the not knowing kills you more than the not knowing but they both suck … this was tragic and it happens more than we know even though these diseases are “Rare”. Very sad Jeff was great artist and player !
My dad's is suffering from PSP now and it's 2.5 years we have detected it but every day we will devastating to see his deteriorating Conditions. Great Guy.
This breaks my heart! I actually had no idea one day I was working with Bob Baldwin and just happened to ask has he worked with Jeff because I wanted to work with him one day. And he told me that he passed away. My sincere condolences .He lives on through his music 🎶.
I am sorry for the loss your husband and father. My mother is suffering from PSP for around 15 years. She's nursing home these 5 years,and getting worse. Psp is very tough deseas for the patient and for the family,too.
Yes my mom is also suffering from PSP. And it's been 2 years. Can anyone suggest me the best treatment to alleviate the symptoms? Would you share your patients experience how they fought with it for long time like 15 years.
@@soomansharma3019 My mother's PSP seems to be the slowest progressive type. She is bedridden, but still receiving rehabilitation from a speech therapist and physical therapist. Even after she had a gastric bandage, she was drinking homemade smoothies by mouth. Doctors say that family love is the best medicine.
mY BOYfREND FROM gERMANY IS VERY ILL FOR THIS PSP. tHE FIRST DOCTORS WAS SAYS THAT IT IS AIZHALMER BUT i was KNOWING THAT IT WAS NOT THIS ILL. AFTER DOCTORS WAS SAYS THAT ITS PSP IT WAS 3 END HAF YEARS BEFORE. THE DOTHER AND SON WAS GIVE HIM TO THE SPECJAL HAUSE KNOWING WHAT IS THE ILL. THEY WAS SELD HIS HOUSE AND GIVE HIM TO THIS HOME, I WAS CAN NOT DOING NOTHINK BECAUSE I WAS ONLY HIS WOMEN NOT WIFE, I EVERY MONTH GOING TO HIM FOR 3 DAY FROM POLAND AND HE IS VERY HAPPY BUT I CAN NOT UNDERSTEIN THIS. NOW HE NOT MOVE SPEAKING ONLY LITLLE AND BEAGINNING FORGET OLL/ I can not SEEING THIS THIS CAR IN THIS HOME IS NOT INAF. I LOVE HIM VERY MUCH BUT I CAN NOT THE MORE HELP[ING HIM. I LIVING 1200 KM FROM THIS PLACE AND I GOING TO HIM 16 H BY BUS BECAUSE IS VERY DIPPER THAT FLYING. I LIVING IN HOTEL THIS 3 DAYS THE MORE NOT MANEY. I NOT UNDERSTEND THIS CHILDS NOW ONLY A DOUTCHER ONE TIMES IN THE WEEK COMINKS TO HIM FOR 30 MIN HE WAS EVERYTIME GOOD FATHER THEY ARE WAS ENDED GOOD STUDY I NOT CAN UNDESTEIN THIS SYTUACJON AND NOT CAN AKCEPT THIS. WHAT DOING PLEASE WREATING ME
my lovely men was ill for this very very bed ill/ BEFORE THIS ILL HE WAS LIVE VERY VERY HELTHY AND HE WAS NEVER ILL. after about 7 years this ill he was gone on in the 77 ear old. I NEVER FORGET HIM
I am 71 and received my diagnosis of PSP almost 8 years ago when my eyes began to freeze up and I was seeing double. The progression has been slow. Now I find that in the last few months, I am stiff, have difficulty sitting and getting out of chairs, have vertigo, cannot look up or down, difficulty multitasking and losing my cooking skills and things that demand concentration. I don’t yet show signs of dementia but I am definitely not at sharp as I was . I cannot read anymore and so I listen to audible books. The light also bothers my eyes tremendously When this disease becomes unmanageable for myself and my husband, and God willing I am still able to make decisions, I shall ask for the right to die with dignity as it is allowed in Canada for incurable diseases which have a bad and painful outcome ! This certainly qualifies. My wishes are in my living will, stating also that I will refuse a feeding tube, or any agressive treatment of my symptoms. I have no control over this illness but I hope to control how I handle it at the end. Courage to all of you and your families ❤️❤️❤️❤️❤️
Exactly
Your strength is incredible! Blessings to you. Thank you for sharing.
hows it all going now louise ?
I am so sorry for the loss of your dear husband and father. My husband, too, died from this illness. Our youngest child was 15. I continue to walk towards life and I bring my husband's memory along with me. I will never forget the suffering of that illness.
P
It's frustrating to have found this video so long after Jeff's passing. I'm sorry for all the pain and suffering Jeff and his family endured towards the end. I have to state how much Jeff improved my life as a guitar player. The joy he provided while playing w/ Billy Squier, Rod Stewart, etc. will always be cherished by me and millions of other fans. Rest in Peace, Jeff...and thanks for everything.
His work with Rod Stewart was phenomenal. It's just so sad to hear how he suffered from this desease. At 59 yrs old he still have a lot of melody to share to the World.
There are no words. Simply, a horrific loss. His music will continue to change lives forever. My favorite will always be, My Everything. RIP Jeff.
I love Jeff's music and I will listen to it until I die! So sad!
THE MOST GENTLE TALENTED PERSON I HAD THE HONER TO WORK WITH WHEN HE FIRED UP THAT STRAT THE HOUSE CAME ALIVE
I had the privilege & honor of working with Jeffry G in my band for several years - he was a virtuoso a gentleman and a generous spirit. When one of his guitars was non functioning properly he would put it in the closet for it to "get better." - he had a great sense of humor too. Love and best wishes to his family - he was a true prince.
My beautiful mother passed away 4/14/2020 from this horrible, devastating disease !!! It robbed her of her life !!! Looking at the symptoms, unfortunately, I could check off every one of those !! She was 80 and fought this illness for 7 long and hard years !! No treatment and cure !! HEARTBREAKING
In memory of my mother. Beverly..... I love you. Lori
We are so sorry for your loss.
Absolutely heart breaking , what a loss of a life that had so much more to live . I pray for his family , God bless you and keep you strong.
So sorry for the loss of this husband and father
I’m sorry to hear about your loss. We have just found out this illness when my father was diagnosed with PSP about 4 month ago. We are taking one day at a time.
I'm caring for my partners father who has PSP, my thoughts are with you.x
Going through this now with dad who was incorrectly diagnosed with Parkinson's until a few month ago everything went down hill soooo super fast. He is now in hospital and needs 24 hour once discharged. So heartbreaking!
As someone who has been trying to get a diagnosis (looking like probable autonomic neuropathy/MSA) the not knowing kills you more than the not knowing but they both suck … this was tragic and it happens more than we know even though these diseases are “Rare”. Very sad Jeff was great artist and player !
My dad's is suffering from PSP now and it's 2.5 years we have detected it but every day we will devastating to see his deteriorating Conditions. Great Guy.
hi vic can ask you what you noticed early and now ?
This breaks my heart! I actually had no idea one day I was working with Bob Baldwin and just happened to ask has he worked with Jeff because I wanted to work with him one day. And he told me that he passed away. My sincere condolences .He lives on through his music 🎶.
My father has this disease, it is so hard to watch him incapable of anything seeming to be a prisoner of his body, sad!
is it genetic ?
I am so sorry for the loss of your beloved Jeff Golub..........
My Father is Dealing with this terrific desease since last few months, and it makes me feel so helpless that i am not able to do anything for him..
I am sorry for the loss your husband and father.
My mother is suffering from PSP for around 15 years.
She's nursing home these 5 years,and getting worse.
Psp is very tough deseas for the patient and for the family,too.
My sister died last week from psp..She lived 5 years with psp..so how is your mother now?
How did Jeff Actually die??
I have been diagnosed with PSP
@@sarathsirimanna8964 I am very sorry to hear that.
My mother is bedridden but relatively calm.
Yes my mom is also suffering from PSP. And it's been 2 years. Can anyone suggest me the best treatment to alleviate the symptoms? Would you share your patients experience how they fought with it for long time like 15 years.
@@soomansharma3019 My mother's PSP seems to be the slowest progressive type.
She is bedridden, but still receiving rehabilitation from a speech therapist and physical therapist.
Even after she had a gastric bandage, she was drinking homemade smoothies by mouth.
Doctors say that family love is the best medicine.
Jeff had a wonderful caretaker
So very sad.
mY BOYfREND FROM gERMANY IS VERY ILL FOR THIS PSP. tHE FIRST DOCTORS WAS SAYS THAT IT IS AIZHALMER BUT i was KNOWING THAT IT WAS NOT THIS ILL. AFTER DOCTORS WAS SAYS THAT ITS PSP
IT WAS 3 END HAF YEARS BEFORE. THE DOTHER AND SON WAS GIVE HIM TO THE SPECJAL HAUSE KNOWING WHAT IS THE ILL. THEY WAS SELD HIS HOUSE AND GIVE HIM TO THIS HOME, I WAS CAN NOT DOING NOTHINK
BECAUSE I WAS ONLY HIS WOMEN NOT WIFE, I EVERY MONTH GOING TO HIM FOR 3 DAY FROM POLAND AND HE IS VERY HAPPY BUT I CAN NOT UNDERSTEIN THIS. NOW HE NOT MOVE SPEAKING ONLY LITLLE AND BEAGINNING FORGET OLL/ I can not SEEING THIS THIS CAR IN THIS HOME IS NOT INAF. I LOVE HIM VERY MUCH BUT I CAN NOT THE MORE HELP[ING HIM. I LIVING 1200 KM FROM THIS PLACE AND I GOING TO HIM 16 H BY BUS BECAUSE IS VERY DIPPER THAT FLYING. I LIVING IN HOTEL THIS 3 DAYS THE MORE NOT MANEY. I NOT UNDERSTEND THIS CHILDS NOW ONLY A DOUTCHER ONE TIMES IN THE WEEK COMINKS TO HIM FOR 30 MIN
HE WAS EVERYTIME GOOD FATHER THEY ARE WAS ENDED GOOD STUDY I NOT CAN UNDESTEIN THIS SYTUACJON AND NOT CAN AKCEPT THIS. WHAT DOING PLEASE WREATING ME
@@hannamlozniak1554 I'm carer for a man with psp, you can only do what you can stay strong and take care of yourself.
Annonaceae should be banned from alimentation, they cause similar neurodegenerative diseases.
Pesticides who inhibit mitochondrial complex I too.
V
my lovely men was ill for this very very bed ill/ BEFORE THIS ILL HE WAS LIVE VERY VERY HELTHY AND HE WAS NEVER ILL. after about 7 years this ill he was gone on in the 77 ear old. I NEVER FORGET HIM