I am 32 and been diagnosed with RP 2 years ago. I am since then not allowed to drive anymore and I have very bad night vision and problem locating small moving objects. I am thankful to all the researchers puting their time and efforts to find a cure. I put all my trust in you scientists and researchers I am sure you will get us out of this misery in near time. The studies results presented here already sound very promising.
I’m curious myself because it’s really challenging to deal with this on a daily basis and stressful but I try to be strong and keep moving forward and not give up.
None of this stuff ever seems to make it past this stage. There’s been “a cure on the horizon” since I was diagnosed 13 years ago I don’t get encouraged by this stuff any more. I appreciate they’re trying but still.
I participated in phase 2 of this trial. Unfortunately I had no improvement but did talk to a couple other participants that saw some improvement. By no means is this a cure but more of a way to preserve what visual cells remain.
Thank you for sharing there will be more options coming your way :-) if you don’t mind me asking what was your vision prior to the clinical trial? Visual acuity, visual field, contrast? Thank you again for sharing.
Thank you so much for such a great job you're doing doctor I am very proud of you I am completely blind now I hope I can still benefit since I can still see the light at the end of the tunnel please can I get your email address I need to contact you directly I have been following your research for nearly 10 years
Hi, thanks for sharing the report, a qq: how long would thise treatment last? I'm a RP patient and have been considering to participate in phase 3 (if theres one) but was told by an RP specialist that some cell based treatment only last for a year, am wondering if there were follow up studies on long term efficacy, thanks!
Hi, I am from India and searching for treatment on RP since long time. I am a college student so I want to know that what care should I take to slow down vision loss ? I am eagerly waiting for treatment....Thank you for giving us a ray of hope...
Hi this is Anamika from India... My father is suffering from this problem Retinitis pigmentosa for the last 12-13 years n he lost his vision. Is there any proper treatment so that my father can see everything as before. Can you please let me know?
Sheesh am 22 and starting to have trouble reading due to blind spots interfering with my ability to accurately process images. Makes it so words seem to move and jiggle lot more than before due to what I assume is my brain trying to fill in the missing information. My sense of anxiety has also slightly increased due to not feeling as confident in perceptual abilities and potentially getting hurt as a result. Godspeed on this research
My name is sagar from Nepal I am 33 years old now I am RP patient since 8 years I am suffering from this disease slowly slowly lost vision how to recover from this disease plz help me I want to know from which country does you belong I am waiting for your consult
Hi Dr. I have an RP and I'm from the Philippines is thier any chance could this treatment be reach her and have a clinical trial. Thank you sir God bless the all your works.
My husband has been diagnosed with RP and while we pursued two series of gene testing already, we've not yet identified the responsible gene. Is there any chance to join a clinical trial such as the ones conducted by Dr. Henri Klassen? At this point we feel there is really not much else we could try, but put our confidence in such studies and hope they will provide the long-waited cure for the disease.
Hello my daughter has been recently diagnosed with RP: due to RP1 mutation I wanted to know how can involve my daughter with the researches I need to find her a gene therapy or treatment so her vision wont get worse please help
Retinitis pigmentosa sir I have it have stanted to see it's Symptoms completely in two years old sir can you cure me please dont wanna be belinds sir please
Sir I am RP patient, my age is 22+, I see 6/9 with glasses, I have done pre LASIK test to do LASIK, mam said after seeing the report, I can do femto LASIK with RP, but my age is 6/9 till 50-60 years. Bishan will remain, then it may change, sir, is it right to do LASIK now and can RP disease be completely treated by gene therapy.
I am 28 and can drive in day time but can’t see at night and In various other lighting conditions. Where can I get the best possible treatment in this world? Im afraid that I’ll loose the ability to see as my age increases
Hello, I’m 29 years old from Texas. I’ve been living with RP for a long time I’ve done lots of research and found this video if there’s any place I can go get treatments please let me know thanks.
There is no any possible treatment in this world yet for retinitis pigmentosa so don't waste your money and time we will have to wait for better treatment till then take vitamin A and do exercise and have faith on your God
hello Any treatment available for retinitis pigmentosa when can we expect treatment of RP genetic syndrome how many more years will take to get treatment of RP
Doctor please help us,🙏🙏🙏 one who is having this issue can understand their problem. Pleased help us up get a treatments We even can't shared our problems to anyone,,people can't understand
I have an RP and I hope there is treatment we all are waiting and hoping please before its too late I’m depressed
I am 32 and been diagnosed with RP 2 years ago. I am since then not allowed to drive anymore and I have very bad night vision and problem locating small moving objects. I am thankful to all the researchers puting their time and efforts to find a cure. I put all my trust in you scientists and researchers I am sure you will get us out of this misery in near time. The studies results presented here already sound very promising.
Lot of help to patient ...god bless your team and member of family
I am in the process of going blind. Thank yu and everybody involved in this important research.🇿🇦😷👍🙏
my wife too, shez getting mentally weak everyday
Me too from philippines i'm 23 years old
Hey dear I know a doctor who can help you she cured my daughter
@@lanapatche1778 hey! How??
@@Jgeg with natural herbs I couldn't afford surgery
I'm eagerly waiting for RP treatment. When will this treatment be avail for patient
I’m curious myself because it’s really challenging to deal with this on a daily basis and stressful but I try to be strong and keep moving forward and not give up.
None of this stuff ever seems to make it past this stage. There’s been “a cure on the horizon” since I was diagnosed 13 years ago
I don’t get encouraged by this stuff any more. I appreciate they’re trying but still.
@@dustyboi8975 THERE IS ALWAYS HOPE AND THIS TREATMENT IS SO CLOSE
I m suffering from childhood and i hope this treatment will come soon.
@@JCourts2k23 hi we should connect i am 40 too
I participated in phase 2 of this trial. Unfortunately I had no improvement but did talk to a couple other participants that saw some improvement. By no means is this a cure but more of a way to preserve what visual cells remain.
Thank you for sharing there will be more options coming your way :-) if you don’t mind me asking what was your vision prior to the clinical trial? Visual acuity, visual field, contrast? Thank you again for sharing.
Thank you for sharing your experience! Hope it preserves your vision. I wonder, do you end up knowing if you received a placebo or treatment? Thanks
Thank you so much for such a great job you're doing doctor I am very proud of you I am completely blind now I hope I can still benefit since I can still see the light at the end of the tunnel please can I get your email address I need to contact you directly I have been following your research for nearly 10 years
Im alden taran from philippine, 32 year old having RP , need help for this eye problem.thank you, welling for clinical trail procedure
Hi, thanks for sharing the report, a qq: how long would thise treatment last? I'm a RP patient and have been considering to participate in phase 3 (if theres one) but was told by an RP specialist that some cell based treatment only last for a year, am wondering if there were follow up studies on long term efficacy, thanks!
Hi, I am from India and searching for treatment on RP since long time. I am a college student so I want to know that what care should I take to slow down vision loss ?
I am eagerly waiting for treatment....Thank you for giving us a ray of hope...
You can try vitamin a supplements. Talk to your doctor. It’s not proven. But can try.
Hi this is Anamika from India... My father is suffering from this problem Retinitis pigmentosa for the last 12-13 years n he lost his vision. Is there any proper treatment so that my father can see everything as before. Can you please let me know?
Sheesh am 22 and starting to have trouble reading due to blind spots interfering with my ability to accurately process images. Makes it so words seem to move and jiggle lot more than before due to what I assume is my brain trying to fill in the missing information. My sense of anxiety has also slightly increased due to not feeling as confident in perceptual abilities and potentially getting hurt as a result. Godspeed on this research
U can also whatsapp me through the same number but please contact me
If you have got any benefit from retinitis pigmentosa then please share to everyone
@@naimamirzamotivation4949 sir could you please call me I'm from India I'm just 18 now I'm so scared please call me or whatsapp me
@@hameedabdulhameed1452 give me your WhatsApp contact number
@@naimamirzamotivation4949 rp treatment kab available hoga in india
I'm Owais Shaikh from Karachi, Pakistan. I have RP and my condition is very bad. Please help me. How can I get treatment?
My name is sagar from Nepal I am 33 years old now I am RP patient since 8 years I am suffering from this disease slowly slowly lost vision how to recover from this disease plz help me I want to know from which country does you belong I am waiting for your consult
Any updates since this video?
Hi Dr. I have an RP and I'm from the Philippines is thier any chance could this treatment be reach her and have a clinical trial. Thank you sir God bless the all your works.
My husband has been diagnosed with RP and while we pursued two series of gene testing already, we've not yet identified the responsible gene. Is there any chance to join a clinical trial such as the ones conducted by Dr. Henri Klassen? At this point we feel there is really not much else we could try, but put our confidence in such studies and hope they will provide the long-waited cure for the disease.
My Ritinites pigmentosa can you help me sir plz
My 19yr old son was just diagnosed with this. Always wondered why his peripheral vision was always off and his night vision always so bad.
Doctor please tell us where we can get the treatment in India
Being dependent with anyone it's really difficult
I have ritinitus pigmentosa you can help me plz ?
Hello my daughter has been recently diagnosed with RP: due to RP1 mutation I wanted to know how can involve my daughter with the researches I need to find her a gene therapy or treatment so her vision wont get worse please help
Retinitis pigmentosa sir I have it have stanted to see it's Symptoms completely in two years old sir can you cure me please dont wanna be belinds sir please
Please let me know what symptoms u have
@@shubhisingh3663 retinitis pigmentosa what you can help me please
@@abhisonu9711 i am asking about your symptoms dear like what trouble you experience with vision due to rp?
@@shubhisingh3663 your do not understand your point I have disease retinitis pigmentosa can you help us please
Kay ap hame jante hain
Sir I am RP patient, my age is 22+, I see 6/9 with glasses, I have done pre LASIK test to do LASIK, mam said after seeing the report, I can do femto LASIK with RP, but my age is 6/9 till 50-60 years. Bishan will remain, then it may change, sir, is it right to do LASIK now and can RP disease be completely treated by gene therapy.
I am 28 and can drive in day time but can’t see at night and In various other lighting conditions. Where can I get the best possible treatment in this world? Im afraid that I’ll loose the ability to see as my age increases
Hello, I’m 29 years old from Texas. I’ve been living with RP for a long time I’ve done lots of research and found this video if there’s any place I can go get treatments please let me know thanks.
in treatment phase 3
When will treatment phase 3 begin? I experience some night blindness, Center vision loss, peripheral loss and color blindness.
@@ashtonstigger8714 I HEARD THIS SEPTEMBER WILL BEGIN
@@umutsaryldz6825 Ok thanks and were do I need to go for that.
@@ashtonstigger8714 no .
How can a patient gets the treatment?
I'm 37 with rp it would be great if some of the questions folks comment would be answered instead just being ignored
I have a friend with RP. Please info hospital in Indonesia can help my friend.
Kita bisa mengobati RP dgn herbal. DiKota Medan.
That's great doctor please i am curiously waiting for treatment of RP which i have been suffering for over 30 years
Please I need help here in Nigeria, I've been diagnosed of RP I don't know what to do, please I don't want to be completely blind.
Im 35 and im RP hope this make a progress because every year my vision decrease 5-10 percent
I am also rp patient I need your help
Good morning doc,is this already available here in Philippines?
Hi sir may rp ka po?
Hello po ako po may RP im 27 and hirap na po ako magbasa
@@gerwindevera1073 yesi am.. could you please help me to look for a cure? Thank you
Hlo doc I'have almost lost my vision due to RP can I get neany benefit by your treatment .
My husband has RP as well. Be very interested to hear an update on available treatments.
My daughter has Retinitis Pigmentosa. Do you have any treatment for her?
I know a doctor who can help her she also cured my daughter
@@lanapatche1778 please tell the doctor
Stop lying.
@@avanomkaraoke621 Lana seems to look like a scammer
I am effected by RP can you help me please
Kya rp ka problem solve ho sakta hai
There is no any possible treatment in this world yet for retinitis pigmentosa so don't waste your money and time we will have to wait for better treatment till then take vitamin A and do exercise and have faith on your God
Doktorr ju lutem a ka mundesi mem tregu shqip rreth kesaj semundje kam burrin me ket semundje nga lindja
i have RP since birth I hope someday I get to see like a normal person
hello
Any treatment available for retinitis pigmentosa
when can we expect treatment of RP genetic syndrome
how many more years will take to get treatment of RP
I want to see world again please what is the option
Kya sir Ham blaind nahi honge
Hope so
very good
Where do we get Phase 3 updates?
Als treatment?
Doctor please help us,🙏🙏🙏 one who is having this issue can understand their problem. Pleased help us up get a treatments
We even can't shared our problems to anyone,,people can't understand
Keep the faith and God bless you.
Hi, where can I get more information about the surgery .
Where can I be treated? Can I get website or phone # . Thanks
Hi i have RP too i am 39 but i have better situation i want to share my reports, where can i share
How did u got better did u do any treatment
i have it no hope of ever getting better have ra and sponeserious trouble live alone no help
I would like to enroll in Phase 3 trial.
your financial interest or the society , that’s because the talk in from the uni
Give yor review here
Me 2
Sir update please. I'm at my last straw. If you please inform me when and how I can get treated.