@@sarad6278 this is why I said you need an endoscopy. The problem can be treated. My child was having a hard time till she got an endoscopy and her esophagus was in bad shape. It only takes a few minutes then you wake up and go home.Sjogrens needs attention.
I have been diagnosed in 2006, dry eyes, dry mouth, fatigue, and big GI problems. Used plaquenil affected my eyes. Stopped it, but the effect is staying. Also muscle ache. I use Evoxas, eye drops, Restasis, and ointment at night. Also have constipation and mutility.
I’d be interested in hearing more about the blood testing and learning about each one from you from your perspective of course I can look it up anywhere but I’m wanting to hear it from you
@@heatherr1141 I test positive for anti-SSa/RO, anti-phospholipid antibodies, RA and had a parotid biopsy consistent with Sjögren's. I also had a lymph node in my right breast that was also impacted with white blood cells consistent with Sjögren's.
First comment! Thanks for talking about more than just dry eye!! It’s worse than just that. However, I do have dry eye and had to get my tearducts surgically tied closed to prevent my tears from draining too fast. I also only had a pos ANA at 1:80, and a pos SSB, and a neg lip biopsy 4yrs ago, and then just recently finally had a pos SSA show up with my SSB, and was able to get diagnosed finally! I now also might have lupus developing too, cuz I had a pos ant-dsDNA too. So that’s fun! Yay! 😅
I was diagnosed with sjogrens fibromyalgia and neuropathy 20 yrs ago I had lip biopsy blood test and liptist paper in my eyes now gott RA mctd inflammatory bowel disease urinary inconvenience pituitary tumor osteoporosis eds hyper mobility huge blood cells macrosis breathing differculties slip disks 13 bulging now blood pressure drops when standing only thing keeping me going is my twins
Talking too fast is a problem for me also. You might try clicking on the settings in the video (it’s the gear icon) you can slow the speed of the video.
Would be interested if others have digestive issues.
Yes my grand daughter. She is 30. Get and endoscopy and you may have esophagus problems. She does.
Indeed, major digestive issues. I think it trends towards gastroparesis for me.
Yes! IBS is common with Sjögren's. Swallowing issues too.
@@sarad6278 this is why I said you need an endoscopy. The problem can be treated. My child was having a hard time till she got an endoscopy and her esophagus was in bad shape. It only takes a few minutes then you wake up and go home.Sjogrens needs attention.
Yes. Esophageal, digestion and IBS. I also have systemic scleroderma.
Perfect. Thanks
I have been diagnosed in 2006, dry eyes, dry mouth, fatigue, and big GI problems. Used plaquenil affected my eyes. Stopped it, but the effect is staying. Also muscle ache. I use Evoxas, eye drops, Restasis, and ointment at night. Also have constipation and mutility.
I’d be interested in hearing more about the blood testing and learning about each one from you from your perspective of course I can look it up anywhere but I’m wanting to hear it from you
@@heatherr1141 I test positive for anti-SSa/RO, anti-phospholipid antibodies, RA and had a parotid biopsy consistent with Sjögren's. I also had a lymph node in my right breast that was also impacted with white blood cells consistent with Sjögren's.
First comment! Thanks for talking about more than just dry eye!! It’s worse than just that. However, I do have dry eye and had to get my tearducts surgically tied closed to prevent my tears from draining too fast.
I also only had a pos ANA at 1:80, and a pos SSB, and a neg lip biopsy 4yrs ago, and then just recently finally had a pos SSA show up with my SSB, and was able to get diagnosed finally! I now also might have lupus developing too, cuz I had a pos ant-dsDNA too. So that’s fun! Yay! 😅
I was diagnosed with sjogrens fibromyalgia and neuropathy 20 yrs ago I had lip biopsy blood test and liptist paper in my eyes now gott RA mctd inflammatory bowel disease urinary inconvenience pituitary tumor osteoporosis eds hyper mobility huge blood cells macrosis breathing differculties slip disks 13 bulging now blood pressure drops when standing only thing keeping me going is my twins
Plus my histamine is attacking me lost all my teeth on chemo med lost my hair to fatigue 😢
Great information, but please speak more slowly so I can digest what you are saying.
Talking too fast is a problem for me also. You might try clicking on the settings in the video (it’s the gear icon) you can slow the speed of the video.
@gratefulot360 close caption is helpful for me too.