Managing liquid ostomy output: Ostomy Care Tips
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- Опубліковано 29 сер 2024
- Liquid or loose output for many ileostomates can be a challenge. Not only can it cause your appliance to leak, but it can also lead to shorter appliance wear time, dehydration, and irritated skin.
In this video, I'll explain some of the causes for liquid output and offer ways to manage it.
More tips in the written article:
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Man you've helped me so much over the past 6 monthes with my temp ileostomy. These videos help so many people feeling hopeless and alone. Thank you for all your giving and knowledge. Subscribed
I'm glad these videos have helped you, Joanne 😊😊 Thank you for watching.
You are so good with all of this. When I feel depressed about all of this, I just watch some of your videos. 🙂
Thanks, Joan. I hope it gets easier for you 😉👍
As someone with a new colostomy I have learned a great deal from your videos. Thanks so much!
You're welcome, Mark!
8 months with my ilestomy and still taking 2 imodiums every day. Doctor told me i can icrease it to 4 at day if i need to, specially at night to try and have less problems with leaking and also eating something starchy before bed. Plus the eaking ring has been a life saver. Almost 2 months without a leak!!! :) :). I still worry and wake up during the night to check my appliance but it is looking better :). Thanks for the video, I always learn something new :).
+misscrisstie Glad to hear that things seem to be manageable! I wish you continued success 😀
I want everyone to be aware of one issue of extended liquid output. I was eating all the foods I normally did since surgery and never had much of an issue. I drank nearly a gallon a day as a minimum. Then I found my output was more and more watery. I could shake my pouch and it was like a bag of water. I actually became dehydrated. So bad I stopped passing urine and had to go to the ER. 2 bags of IV later and 100cc of urine passed and they sent me home. I called my doctor and he couldn't make heads or tails of the issue with all I drank. My surgeon that did my ostomy at Vanderbilt found the answer. It was a bile issue. Two things caused my issue with one being more the cause. 10 years prior I had a major surgery for pancreatic tumors that also cost me my gallbladder. Turns out bile is reabsorbed at the end of your small intestine normally. If you don't have a gallbladder your bile is not stored until you need it. It dumps all the time even when you don't eat. You can often notice oil is in your stool in your pouch prior to passing liquid. That is a sign too much bile is in your system. Switching to a weight loss diabetic diet can contribute or cause this with those with a gallbladder. You eat more meats and veggies avoiding breads and sweats. This can cause a rise in bile. The more bile the more your small intestine needs to absorb and you don't absorb the water. The more I drank the more dehydrated I became. That would make anyone scratch your head. My doctor put me on a cholesterol blocking powder that you can buy over the counter at Wal-Mart. My doctor had me drink 2 glasses of that powder mixed with water every day. I went from liquid to pancaking overnight. It did cause a little cramping but nothing like Imodium does to me. After a few days I dropped back to one glass every other day. My urine output tripled. So this is something some can try. Just look for cholesterol blocking supplements or powder at a drug store or Wal-Mart. Not only will this thicken your output. It can lower your total cholesterol in your blood. I am still on my diabetic weight loss low carb diet. I've lost 60 pounds. Lowered my A1C under 5.0. Now I have issues with slim flaps and clothes too big. Had to break out clothes I had in a box saved. Watch your urine for darker cloudy urine with watery output. You may have the same issue I did.
I never knew the gallbladder issue. I had mine taken out about 25 years ago and often have very thin greenish- yellow output .. Thank you
Thank you so much for all your videos. I have learned so much from you in the last year and a half.
Thanks for watching!
I use instant mash potatoes a small bowl of freshly made up instant mash potatoes thickens me in minutes. It’s my Imodium replacement. Taking too much loperamide regular can come with some horrid side effects such as cramps and wind. So I generally use instant mash potatoes to get a immediate relief to thicken my output prior to sleeping I say that I mean my last meal of the day 6hours before I sleep for sure
+Kirt Andrews I've heard of others using powdered baby oatmeal with success. Glad that powdered oatmeal works!
I do not have a stoma or bag, however a dear friend has has one for many years. I keep up to date on all ostomy products and procedures.
Thank you for this. I have a colostomy with scar tissue problems and on a low residue diet and this is a great help. x
Thank you so much Eric. I have been having horrible thoughts about my up coming bladder removal surgery. How am I going to live like that? You have put my mind at ease. Now I know it is possible to live a full life after surgery. Your videos have given me so much information and confidence that I am sure I can handle it. Thank you once again.
I'm glad you found the channel 😀😀 Best of luck with everything! Happy 2021 👍
Nice video......felt a wise friend was talking ....rather than an irritating health care professional......who normally sound like they are reading from a script.
Have subscribed.......long may your channel grow.
I do my best 😁Thank you so much for watching and subscribing!
I've been dealing with this lately..thank you for this video, my friend!
I hope it's resolved for you soon. But even when it's managed it may come up from time to time (I.e. if you're taking antibiotics) so these tips will help even then 😁
This was very useful I'm only six months in and am having dioralyte for liquid output.ive also lost four stone in weight but I was a size 22 now I'm a 16 my constant isn't worried but my family are quite shocked.
Been like water today but i had a coffee this am which I wouldn't normally do so not sure.
I've been told peanut butter is a good thicker but not sure.
Love from the uk buddy.
Starchy foods help me the most, but peanut butter could also work. Try a few different foods to see which works best for you. Coffee affects people differently too, so timing your Coffee might also help. 👍
I have some unusual interests one of them being learning about things I never really thought to look more into , I always knew some people had surgically installed bags to pass their bowels but I never imagined the amount of (little and big) things that come along with having one. Appreciate you putting out the knowledge out there for the individuals who benefit from having this resource available to them . Personally I was curious about the actual passing of bowels with one (like does one feel it or know) , I did find some information like it just happens but nothing about what sensations or if it feels like how you normally would know you had to “go” . Sorry if that’s allot of text
Hi Haile! Thank you so much for watching and learning :) Regarding sensations, I use to be well aware of anything passing for at least the first year. It wasn't bothersome or painful, but it did get my attention. As the years went on, I'm either just learning to ignore it or it's not noticeable anymore, because it rarely catches my attention now. I wouldn't say it feels anything like going #2 in a traditional sense, but some people do get a similar sensation (and to a certain extent, satisfaction) from the feeling of output leaving their stoma. If you have any other questions you're curious about, please feel free to ask :) Be well.
I have a colostomy, but I only have 5 to 7 feet of small bowel and about 1.5 feet of large bowel. Also, I have an internal fistula that bypasses about 60 percent of the small bowel I do have. Also, I have to hydrate daily by IV with Ringer's Lactate because anytime I drink anything, it comes pouring out of the stoma within 10 to 15 minutes.
Having said all that, even though it's a colostomy, it behaves exactly like an ileostomy. I've found that only questran(Cholestyramine) and immodium helps, but given how many adhesions, narrowing, and scar tissue I have, thickening the output risks a small bowel obstruction. I've had many obstructions over the years(I can't even begin to explain the level of pain that involves) so I have to be extremely careful about thickening up the output.
I've had nine major surgeries, and I've lost count of the minor and moderate surgeries over the years. I'm posting this comment in the hopes that someone, somewhere, is experiencing something similar and could offer any advice. I'm desperate ... lol ...
Crohn's Disease, the gift that keeps on giving.
Thanks in advance
David
P.S
I never heard of a thickening agent that goes into the ostomy bad. Assuming the output is essentially like water, how does it react with the effluent and will it make a real difference? I'm intrigued ...
David, that sounds like such a difficult situation. Get in touch with a short bowel syndrome support group, if you can. They experience the same high volume output, and may have experiences to share.
Regarding the solidifying products to go in the bag, they basically turn liquid output into a gel of sorts. Makes it much easier to manage, in my opinion.
Eric,
Your videos have been extremely helpful. I have had my ostomy for 7 months so I am a new ostomate. My output was so thick like sludge so I started drinking warm water alot and that helped. Canola oil didn't help.
I do clean the bag with water and that helps.
Keep up the good work.
Could you do a video on
A video on how to deal with leaks when out in public. I leaked while waiting to see my dermatologist. I was so embarrassed and a little panicky.
I'm so sorry that happened, Jane.
While not necessarily a how-to video, I think you'll find some value in this video/article showing how I handled a public leak in real-time =) www.veganostomy.ca/untimely-ostomy-leak/
I sometimes eat a serving of unsweetened apple sauce before a meal and found that it will thicken output somewhat.
Glad that works for you, Louise!
I haven't seen any of your videos yet to commenting on using decaffeinated tea and coffee which helps with unnecessary liquid output. Plus with soda which mostly contain High Fructose Corn Syrup or Corn Syrup will produce unnecessary high liquid output also. I know for I have experienced this before knowing better. Just a tip to pass on to others in consideration to help. Thanks you Eric for your videos.
I have mentioned these things in other content (likely the diet related stuff), but there are definitely foods that can make the situation better/worse.
@Renesto Starlight I have no idea, actually. I haven't touched dairy in nearly two decades, but I would imagine there are laws preventing the sale of raw dairy in many places in Canada.
Thanks for another great video. From day one, I have had liquid output. I am having a host of troubles right now and saw my GI Dr. yesterday. I was informed that there will never be a time when it will be thicker. He has suggested that I try a powdered fiber product. The only problem I have discovered is the noise 😕 I have received some looks, but I just ignore it. I use Par Zorb packets if I am going to be gone from home and in a large group, again for the noise, this time for sloshing. I also use them at night to keep the liquid output off of my stoma as I am prone to hyper granulation because my stoma is at times flat and other times sunken in. You have me scared now about using the fiber, though I was told to start small. I will have to do some research and speak to my Dr. again. Thank you for taking the time to,share what you know, it's always good to get advice from someone who has been through it and isn't just guessing. 🎶✌️❤️✌🎶
If your doc suggested fiber powder, then it's a much safer form. Some people take psyllium husks, which expand rapidly as they absorb water, and that can be dangerous!
Noise! That may be a topic I should cover!
I work with children and we all know children are honest lol they don't say anything so far, but I do get looks. I,can handle it though.
I find your videos very informative. Thank you......
Out of 129 medical schools, only 29 have any sort of nutrition classes. That means, YOUR DOCTOR doesn't know squat about nutrition. Unless he makes a special point in learning it on his own. And he would be rare and obvious. Those that do are well known- John Bergman, Joseph Mercola, Joel Wallach. They make a special point of knowing more.
Yes, most MD's won't be well versed in nutrition, which is why a registered dietitian would be my first stop. Preferably one who's worked with patients who have GI disorders or an ostomy.
Maybe i just didnt see it but i didn't hear you mention oral rehydration solutions. They help the jejunum to absorb water and salt to keep hydrated
I cover that in another video, but it's a very good point to bring up. It's not entirely necessary if liquid output is expected (I.e. ileostomy), but I don't think it hurts, either.
Have 3 feet of small intestines. Short bowel syndrome with illeostomy. Anything with sugar goes straight through so the marshmellows don't work for us.
Mashed sweet potatoes. Just a couple of tablespoons full with the meal helps a lot. Add some pumpkin pie spice and a little brown sugar and butter when we n mashing and you have a little dessert to finish off your meal. Or, just have it as a snack. Best served warm.
Sounds delicious, too! 😄😄😄
Thank you so much so helpful
You're welcome!
Getting 7 -8 hours of sleep is a problem for me. I wake up 2 or more times from symptoms such as rapid heart beat, slight headache, ankle cramps, nausea etc. it is hard to know if it’s dehydration, low sodium, low potassium, low magnesium or something else. Any suggestions on how to distinguish between problems and also how to stay hydrated long enough to sleep through the night?
My first suggestion is to get some lab work done (urine and bloodwork). There's no benefit to guessing and it sounds like you might need to speak with your GP to figure out those symptoms. Good luck!
Folks- give metamucil a try- i take two table spoonfuls 3 times a day- really helps to stop the watery output- Loperamide and lomotil and even tincture of opium and opioids did nothing to stop the watery output- metamucil was the only thing I found so far to help. For smelly output two things- try STOP ODOR (from amazon)- great stuff- cheaper than hollister's products and other products- works well- and 2 take peptol bismol which will almost completely neutralize many odors (Some odors like fish can be tough to combat). The good thing about metamucil is that it bulks the output but does not make it sticky and hard to empty- Works similar to the satchels you put in the pouch- the output will be slippery most of the time and empty very easily. I take 2 tablespoons 3 times a day- you might be able to get by with 2 times a day- my output is usually very liquid and i need 3 times a day
Fiber supplements, like Metamucil, may help some people, but be cautious if you've had a history of blockages as they have also been known to cause blockages.
yes you have to be careful especially if your output isn't normally very watery- if it is- then chances are you don't get blocked up easily- My docs are always worried that some medication is going to block me up- but i tell them that would actually be a bit of a blessing, as I've had chronic severe watery output for 30+ years and never ever get blocked up or even have bule up output (until i discovered the metamucil that is)- course I realize they man severe blockage, which would not be pleasant- but it would be really really nice to only have to go to the bathroom just once or twice a day instead of 12-16 times a day. IF your output is always very watery- there's little chance metamucil will block a person up if taken 2 times a day or so- Mu output is still a bit loose- but the metamucil works to remove enough water that it's bulked up more than without it- Taking it 3 times a day works well for me- others should start out with one time a day till they see how it's going to affect them- then work up from there- and yes, be careful if you tend to oscillate between very watery stool and more bulked stool normally=- but I'd say if you suffer severe watery output all the time, and have an iliostomy instead of colostomy, the metamucil should not cause issues as it only cuts down on a certain % of the water in the small intestines
My output is liquid most of the time & changing my bag is an horrendous task.. my ileostomy tends to release output nearly all the time including when i change My bag.. there's never a good time to change it.. so Its messy.. burns my skin & cleaning the skin around my stoma gently so many times in one bag change it is extremely sore
Does it look like this might offer you a solution? stomagienics.com/
Here's a tip... Your doctor can prescribe medication to help thicken or you can buy over the counter imodium at the drug store although the prescription is better. Also, best time for a bag change is early in the morning and DON'T EAT before a bag change!!!! Marshmallows helps slow the output. I am an early bird person and usually up at 5 am. I will have my coffee, my prescribed imodium. Around 6-6:30 am I will eat 5 or 6 marshmallows and around 7am start my bag change. With a mostly liquid output, you must be careful with your sodium levels because they could become dangerously low. I ended up in the hospital for a week because my sodium levels dropped so low I would pass out 2 or 3 times a day. I now take prescription sodium meds. My primary care doctor does lab work every other week to check my sodium levels.
You can use stoma powder to protect your skin. Viva brand paper towels dipped in very warm water are best to use to clean around the stoma. Feels like a soft cloth.
Very helpful!
Glad you think so! 😊
Have a colostomy. Surgery was Feb.2 this year. I went to my daughters bd dinner at a Mexican restaurant. Not a fan but couldn't miss her 21st bd.
I only had salsa n chips, and 2 flour gr.beef tacos.
But a friend called me the next day and told me that Mexican food has Capcaicin? Which can cause severe diarrhea if you have a colostomy.
My bag has filled up 3xs with thin watery output in the past 9 hours? I awoke 2 hours ago with a watery mess on my sheets. I got to my bathroom just as the bag exploded! My bathroom now looks like a slaughter house!
My stoma is red and my tummy is red and fiery! Applied a fresh bag but now at 7 in the morning I'm paranoid and my anxiety is at the nth degree!
I'm exhausted but afraid to fall bk.to sleep. Feel I need to stay awake and police my bag. If it fills quickly again my home care nurse called and sd.i should head to the e.r. I'm the 5 weeks since my surgery I've only mastered applying the bag correctly maybe 5 xs! This has been a hard challenge for me.
I'm petrified and feeling incompetent! I appreciate your vids. Iyho,did the spicy foods I ate 2 days ago cause this downpour or should I head to the e.r. asap?
Gracias for your input.
Catalina
I'm so sorry to hear about this situation. Has spicy food ever been a problem for you? If not, then I don't think the spice is what's caused this sudden change in your bowel movements. The thin water output cab indicate a blockage. Have you passed any solid stool? Is everyone else from the party feeling well?
What do you think of psyllium husks to thicken output ? I have it on hand but don't want to use if it will cause a blockage .
Some people swear by it, but I prefer the powdered version rather than the whole husk. Personally, I go with starches (potatoes, rice, pasta, etc.) to thicken my output. Sometimes using fiber supplements or stool bulking products may have inconsistent results or undesirable consequences. If you are going to try it, start slow and monitor things. Good luck!
Eric Ive had 2 pouch surgeries, i have to go back to an ostomy, i had 24 feet of intestine and when i go back to ostomy i will have 20feet left, i am guessing i may have liquid output, im thinking Questran, imodium and maybe marshmellow pills? any advice would be good thanks
When I had my surgery, I lost my entire colon (approx. 5 feet) and my output is anything but liquid.
I wouldn't worry about modifying or adding anything to your diet until you see how things go once you've healed. An easier solution is to add more starchy foods like potatoes, rice, or pasta as they tend to naturally thicken things up. I'm not a fan of using medication or non-food options to thicken output, unless it's a gelling product that goes into the bag - those work really well!
Best of luck!
I have an illeostomy that produces very watery stool, as a result my one piece appliance doesn't stick to my skin, within one hour it's already pulling out. Please I need a solution for this, how can I make my ostomy bag accommodate the liquid stool?
My preferred method for dealing with liquid output without needing to alter my diet is to use gelling products inside of my bag. But if you're able to modify your diet then adding starchy foods should help to thicken your output, unless you have short bowel syndrome.
4 months in since my surgery... And I have to take 4 to 8 imodium pills a day... I keep trying to find things to eat to help thicken up my output..
Do you have an ileostomy or colostomy? Diet is usually the way, but it depends on a few factors including any medications you might be on, the length of bowel left, type of stoma, etc.
So, I know you have videos on how to prevent, and also how to heal a new stoma suffering from irritation, how can I deal with just "routine" stoma irritation/bleeding due to persistent liquid output, I'd use the stoma powder recommended to stop it but I find that hinders my flange's wear-time and ability to stick properly, and it for some reason causes itching for me.
I'm sorry that you're going through that. For liquid output I always recommend using a gelling product that goes inside of your pouch. It will thicken up the output so the liquid can't erode your skin or the wafer and should help. There are quite a few gelling products available, but you may be able to sample them before purchasing by contacting the various brands. My insurance did cover these products, so hopefully you're also covered in some way. Good luck!
@@VeganOstomy Thank you so much for your insightful advice, I'll need to learn as much as I can especially since I think my mother caught the coronavirus, and it's definitely increased my ostomy anxiety because, she's always been the one who helped change or replaced my appliances for the almost 4 years I've had my ileostomy.... Yes it's been 4 years and my mom still changes my appliances for me, please don't make fun of me, or anybody else in the comments section.😟
Good luck. Sounds like a good learning experience 😀👍
@@VeganOstomy Thank you, maybe I'll let you know how it works out once I do start changing my appliances independently.
Yes, please do! 👏👍👌
What can I use for my ileostomy to control odor? I hate it!
I’ve tried peppermint altoids the Ostomy doctor said some Pts us.
Listerine. But even Ostomy company i used there odor products it still smells.
I’m scheduled for January a reversal.
The most effective product I've used is the Hollister M9 drops, which go into your pouch. You may need to experiment with the quantity that you add, as I find the recommended quantity is not much.
I have ileostomy since 23 days and I’m taking high dose of gasto stop (Imodium)to slow bowel and I’m eating all those you told me on video but still I get high out about 1700ml per day do you have any idea to slow bowel or output and I still have about 5.5m left of small intestine.
Hi Khem. Have you determined how much fluid you intake in a day? You will have more output the more you eat and drink. As long as you are not losing more than you are consuming, then there should be little cause for concern.
Same problem but I drink atleast 4-5 litre water a day.
Chandan Shakya but I drink only about 2 litres
@@khemsharma2889 kyu bhai itna kam kyu
@@khemsharma2889 can you give me your whatsapp I want to talk to you. I have a colostomy since 3 months.
How to use ostomy absorbent tablets
This video will help to explain more about those products: ua-cam.com/video/BS6FnRQrhbs/v-deo.html
Basically, you will put a gelling tablet or sachet into your bag, either through the opening at the bottom or from the hole in the back of the appliance, before you put it on. You can add more if needed, and you'll do this every time you empty your bag (as needed).
The liquid almost seems as if my stoma is releasing it, not so much a bowl issue. Does the stoma itself have fluid in it? If so what to do. Thanks
Stomas will "sweat" liquid to keep it moist, so there is definitely fluid being produced. This fluid wouldn't be enough to fill the bag. How much fluid are you noticing?
Hi Eric it's your friend Patricia from Toronto that gave you all the information about products on Amazon add I am watching this video and I found another ostomy Channel recently who is amazing and she's a female and her channel is let's talk IBD and she just gave me the most amazing tip and I'm sharing it with you because you said about changing bags with liquid and unfortunately it can very messy😢😢😢 her channel is called let's talk IBD and her name is Maggie and she's a nurse her tip for changing your bag is to get the bag you're putting it in ready fold it down and put it over your bag and everything goes right in the bag once you take it off so there's definitely less chance of a mess I have been doing it for about a week and honestly it's another game changer❤❤❤❤ check it out
Hi Patricia. I'm glad you found Maggie's channel! I'm friends with her, and we've met at a few ostomy-related events state side several years back. She's amazing! 😊
@@VeganOstomy yes she is totally amazing and she had her ostomy or ileostomy whatever it is I don't remember what she had but she had it very very young is she from Canada also
Hi Eric I wanted to share a tip of how I clean my under the flange and around the stoma what I use is I buy baby wipes I opened them up let them dry out and it's so soft and they don't sting and I find it's been helping a lot with cleaning that area😊😊😊
I use plain gauze pads because they are pretty inexpensive. But they have to be the non-woven type; the woven ones are horrible for cleaning around the stoma.
@@VeganOstomy yes I find the wipes have been the best because I had a supplier when I lived in Guelph and when I moved to Scarborough they did not have the same product and I just found in the last few months it's something I've tried that's working you have a good day
hi ERIC great video my out put is mainly loose sometimes it thickens but I can have it wear its just pure fluid. when emptying my pouch in the toilet it does tend to go everywhere. Do you have any suggestions on how I could stop it from doing this? I do try to control the contents but its gets really full and just poors out making it harder to control the contents in the pouch. Thank you.
+Ann Thistleton Hi Ann. Have you ever used a gelling product in your bag to thicken things up?
+Vegan Ostomy hi Eric no I've never used anything like a gelling agent.
That might be worth looking into.
You can put toilet paper in the toilet to reduce spatter from liquid contents.
Mm yea that be a good idea thanks for sharing that.
I'm sending you this question regarding a You Tube contributor who titled the video Understanding High Output Pouches / Ostomy Care: by a Nurse Practitioner / Enterostomal Therapy Nurse from St. Michael's Hospital in Canada. I could include the name of this Nurse but for privacy reasons I reserve and yield the disclosure of her name. I have some questions about implementation of homemade ostomy collection applications. The only problem in attempting to contact this nurse is my ISP server is acknowledge the email address is not acceptable to use which was : hoeflokj@smh.ca
this in Canada and since you are in that area possibly you can find the correct email address that I can use to send my questions to. Then again this person may not possibly be associated with St. Michael's Hospital in Canada. If no such possible success in this then I'll have to contact the ostomy product manufacturer anyways. Thanks Eric and I'll see your response sometime soon. Have a Happy One.
Hi Andy, I actually spoke at an event with that nurse, however, I don't have personal contact with her. I do believe she's retired now, so you may need to contact someone else about your inquiry. Good luck!
Mine is like water and and I have had it for a couple of months
If you have an ileostomy then it can be quote liquid for many months before things thicken up, but this has a lot to do with your diet, health, medication, etc. A thickening gel in your bag is a great way to make things easier, but dietary changes can also help.
@@VeganOstomy no I have a colostomy bag and I have had my bag for a few years
Ah, I misunderstood when you said you had it for a couple of months. Can you think of anything in the last few months that might be causing this? New medication? Change in diet? Illness? Etc.?
@@VeganOstomy no
@@nikkihowe5837 I suggest speaking with your nurse or doctor about it, especially if the output is very strong smelling or a color other than what you'd experience as normal. Unusual or unexpected changes to output consistency should be investigated.
I eat raw oatmeal makes it very thick
I actually love raw oatmeal! LOL
try metamucil- for me it bulks up the output BUT it doesn't make it sticky- gives it almost a slippery consistency which is easy to empty
So just switch to a urinary bag.
Unfortunately, not a good option if the output is unpredictability liquid or not liquid enough. Ideally, you don't want liquid ileostomy or colostomy output at all since it's more aggressive and will break down the appliance quickly. There are more appropriate bags with spouts that are better suited for ileostomates, however. 👍
Have you named your stoma? A lot of people do. Me included
I haven't, but you're right that a lot of people do!
A fellow ostemate made this suggestion after I'd had my stoma for a couple of months. It's a wonderful way to talk about/to your stoma. My family all knows Rosie's name and can talk about her with me comfortably. When Rosie is acting up, she has a more formal name, much like your mother probably used your given name and middle name when upset with you.It helps me vent my frustration. Pick a name that you like and I know you'll find it useful. Personalizes this weird change to your body and life.