Living with Stroke Survivor Stories - Aphasia

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  • Опубліковано 26 лис 2024

КОМЕНТАРІ • 43

  • @katie6113
    @katie6113 Рік тому +10

    You know he is shouting everything he wants to say in his head, but his tongue and brain are in disconnect. How incredibly frustrating that must be. His wife is a wonderful translator and extremely patient. I hope that they are still in good health!!

  • @marydehaas6206
    @marydehaas6206 2 роки тому +19

    I am a survivor in 2013. I have aphasia . It has been very hard every day BUT you have to practice every day. Sometimes you think that your not getting better. The fact that you are reading this message YOU ARE BETTER. We know that this is a lifetime change and the Aphasia family that will help each other. You do not have to be alone. There are MANY programs not all of them work for you, find one that works for you.

    • @carmella88
      @carmella88 Рік тому +1

      Could you perform tasks like give me thumbs up squeeze my hand lift your arm? When you first had it?

  • @SimonKelk
    @SimonKelk 3 роки тому +34

    Even though he can't talk much this guy looks like he'd be amazing company and a pleasure to be around. He is extremely expressive without language.

    • @ryanmilligan1659
      @ryanmilligan1659 2 роки тому +1

      Agreed. No doubt. He's got a great spirit about him.

  • @AnnaGee347
    @AnnaGee347 2 роки тому +6

    What a sweet couple. I really wish him the absolute best!

  • @KirstyYouHaveADHD
    @KirstyYouHaveADHD 3 роки тому +19

    What a wonderful man and a beautiful woman. So much love is radiating in this video! So wholesome.

  • @PuffyWuzHere
    @PuffyWuzHere Рік тому +3

    I have a patient who had a massive stroke. Its so hard on them and their family. Thank you for making these videos, its amazing to learn from each person's experience to help understand my patient's feelingsand thoughts while they cannot express themselves at this time.

    • @carmella88
      @carmella88 Рік тому

      My brother had a massive stroke did your patient survive

  • @auxiz11
    @auxiz11 Рік тому +4

    35 years old, i couldn't speak well verbally or write..I had in Feb 2023 and I hope I can recover soon. Recovery to all of us in Jesus name.

  • @karenlh5370
    @karenlh5370 Рік тому +1

    I had aphasia from the beginning because when I was born the speech center of my brain was damaged when I was coming out of my mother. It was very hard at the beginning but my parents were proactive and took me to a speech therapist when I was a child and that really helped me. When you're born, you don't have any language so It was hard at the beginning. I went to a speech therapist for a few years. I had expressive aphasia and over the years I have overcome it with the help of God.

  • @hopeh6176
    @hopeh6176 4 роки тому +10

    Blessings to you both this has happened in my family . .All the best you guys are beautiful Steve your smile is Awesome . ..I'm trying my very best you keep going God's love🌻

  • @bethisrael4473
    @bethisrael4473 4 роки тому +5

    You are incredibly brave & inspirational! We are living with post-stroke aphasia, and it’s quite a challenging & frustrating journey, but we are always trying toward improvement. ❤️

  • @brannikoleify
    @brannikoleify 4 місяці тому

    Omg I thank you for this! My dad just had a stroke and Im nervous about his sentences but I’m starting to understand more

  • @lipahaklee3868
    @lipahaklee3868 2 роки тому

    Lovely! It’s so inspiring! Thanks for sharing those precious stories.

  • @marcofranko2
    @marcofranko2 2 роки тому +3

    I was so lucky, surviving two strokes.

  • @StarOasis26
    @StarOasis26 Рік тому +1

    Wow this amazing lady supports Steve in3
    such a loving way. she always knows what he's going to say. I have aphasia 3 strokes back to back within a week from COVID. No one knows how it is I feel trapped inside.I wish I had a woman like that!

    • @carmella88
      @carmella88 Рік тому

      Could you answer questions like blink or squeeze my hand or give thumbs up or hear those around you when it first happened?

    • @StarOasis26
      @StarOasis26 Рік тому +1

      @@carmella88 I progressed significantly and I can do all that, but I cannot talk or express myself. It gets a bit frustrating because you know what you're going to say but cannot do it.

  • @tallykaczynski3257
    @tallykaczynski3257 Рік тому +2

    What about expressive AND receptive aphasia? Married 40 years, but it is difficult!!!!! Plus anger outbursts.

  • @miguelcardenas2413
    @miguelcardenas2413 6 місяців тому

    She’s very awesome as well .

  • @craigmorton677
    @craigmorton677 4 роки тому +4

    thank you for sharing this experience, my father-in-law has this condition, can you recommend a support organisation in australia that understands Aphasia and could assist in an assessment for him as the family is on different wavelengths coping and understanding. I feel if we could get someone to assess him that understands Aphasia we can then offer him support solutions. I have already had a speech pathologist see him and unfortunately it wasn't a match, no one's fault it was a mismatch and I know he felt misperceived. Thank you and good day

  • @japanfanatic1415
    @japanfanatic1415 7 місяців тому

    Genuinely a likeable guy i can tell

  • @jhonesmith8642
    @jhonesmith8642 Рік тому

    Ater an open heart surgery i had cv5 theyput me in s coma woke up all my interior organ working my leg was working too oly my left hand imoh physical therapy myaccent chnged my voice, but ican still bring words i need i planning to see a speach therapist. , my hand is getting better life can be lost in a second i thsnk god that he brought me bsck from surgery and coma. I guess my doctors in lebanon are good yet i know for sure i will never be how i used to be before thestroke.i am 53 born with a bad valve, unlucky

  • @bryceman961
    @bryceman961 Рік тому +1

    What if you can not write at a normal pace and can not verbally make full sentences? Any advice is greatly accepted

  • @princesscolorado5115
    @princesscolorado5115 Рік тому +1

    We have no resources here in the mountains we would have to drive hours

  • @princesscolorado5115
    @princesscolorado5115 Рік тому

    My husband had severe left ischemic stroke and has aphasia and is paralyzed on right side still after one year. It's so hard

    • @carmella88
      @carmella88 Рік тому

      Could your husband ever answer commands when it first happened thumbs up squeeze my hand etc

    • @carmella88
      @carmella88 Рік тому

      Is he in rehab center or home

  • @Schwabian
    @Schwabian 3 роки тому +2

    What a lovely coup,e ..❤️ to u both

  • @tajrine
    @tajrine 2 роки тому +2

    I Am Aphasia
    I had a stroke in March 2019

    • @carmella88
      @carmella88 Рік тому

      Could you ever give commands when it first happened? Thumbs up etc?

  • @JenniferKGraf
    @JenniferKGraf 2 роки тому +1

    She makes an incredible SIRI voice!

  • @carolinasantillan1810
    @carolinasantillan1810 Рік тому

    My father just had a massive stroke that left him with severe global aphasia. We do not know where to start with therapy since it appears that no one is familiarized with this illness (Ecuador). Could you please give us some advice?

    • @YuikoOkashi
      @YuikoOkashi 7 місяців тому

      Hey how is your dad doing?

  • @ineffablemars
    @ineffablemars 2 роки тому

    He looks like he would have been really good looking as a young guy

  • @joanjettboy
    @joanjettboy 11 місяців тому

    ❤❤❤❤

  • @Escekar
    @Escekar Рік тому

    So can they write are read like normal…?? Is it only a spoken language impairment…?

    • @ew7512
      @ew7512 Рік тому

      It really depends on the person. It varies quite a bit.

  • @legendarykitty7498
    @legendarykitty7498 2 роки тому

    ❤️

  • @consetaconover7132
    @consetaconover7132 3 роки тому

    APHASIA/Stroke

  • @alexanderivarsson4146
    @alexanderivarsson4146 4 роки тому +1

    Must be terrible