Ep. 16 - Mariah

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Today we chatted with Mariah (@endodoula) who shares her story with endometriosis, adenomyosis, pelvic floor dysfunction and mental health struggles. We dive into the complexities and misunderstanding of endometriosis.
Recommendations:
Website: www.bestworstc... go to Clubhouse tab for a private group space.
Coping strategies:
Home is my safe place
Heating pad
Epsom salts and hot bath
Daily cannabis for pain
Sleeping, eating, drink water
Stretch daily
When out of the house bring: portable heating pad, lidocaine patches, vape pen, water.
Planning and preparing for the anxiety from chronic pain
If you ask your doctor to try something (ex: test or treatment) and they say no, ask them to note your request in the chart (it may also change their decision).
Ask for a copy for your doctor’s notes (sometimes things are written that were not discussed or they may have opinions written like combative patient or undiagnosed mental health conditions (when you are just clarifying as asking questions))
Know you are not alone. Someone else is going through similar situations.
Your worth is not wrapped up in your illness