What is Ataxia?

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  • Опубліковано 1 лис 2024

КОМЕНТАРІ • 322

  • @ataxiafoundation
    @ataxiafoundation 2 місяці тому +2153

    On behalf of people affected by Ataxia, thank you, Bill! Sharing your story will teach so many new people about this rare disease. Let's find a cure!

    • @gr8dvd
      @gr8dvd 2 місяці тому +9

      Such a good communicator too. ❤

    • @TiredMomma
      @TiredMomma Місяць тому +5

      Reminder to anyone that sees this,
      St. Louis (Mo.) Walk N Roll tomorrow, August 7th.

  • @ohcar0line
    @ohcar0line 2 місяці тому +816

    You’ve been teaching me new things for over 25 years, Bill!
    I went to college and studied Geology because of the interest you sparked in me at seven years old.
    I treasure being alive at the same time as you.

    • @punch_bowl_turd3005
      @punch_bowl_turd3005 Місяць тому

      i bet he couldn't tell ya what a woman is now.....

    • @caseys2698
      @caseys2698 Місяць тому +5

      That’s amazing omg 🥺❤

    • @dizzylilthing
      @dizzylilthing Місяць тому

      ​@@punch_bowl_turd3005Can you define woman in a way that includes 50% of the population, doesn't disclude intersex people, doesn't disclude people with birth defects, and doesn't disclude people with indeterminate DNA?
      A woman is someone who identifies with and performs the role of womanhood in their culture, if any.

    • @whoopwhoopbooyeahh
      @whoopwhoopbooyeahh Місяць тому +3

      This is so wonderful, made me tear up. Bill Nye has touched so many lives and is STILL teaching us ❤️

  • @fennec8938
    @fennec8938 2 місяці тому +1163

    I didn’t even know I was subscribed to this channel but I’m glad I am, always nice to see Bill Nye still doing the things they love!

    • @CookieKing0324
      @CookieKing0324 2 місяці тому +3

      Fr

    • @tvviewer4500
      @tvviewer4500 2 місяці тому

      UA-cam pumps channels with fake viewer subs. Be careful

    • @Jaw99
      @Jaw99 2 місяці тому +5

      Fr fr only thing about school I loved was his videos

    • @gbethos5798
      @gbethos5798 2 місяці тому +2

      Newly and happily subscribed!

    • @jav5723
      @jav5723 2 місяці тому +1

      Well, they are legion so... always will be

  • @AshtontheCryptid
    @AshtontheCryptid 2 місяці тому +496

    I caregive for a man with Ataxia. He's one of the sweetest, smartest, and most amazing people I know. Thank you Bill for shedding some light on this heartbreaking disease.

    • @KyleBodo
      @KyleBodo 2 місяці тому +2

      if only he didn’t believe in Malthusian theory

  • @JeffTheCreator9
    @JeffTheCreator9 2 місяці тому +190

    I have the gene mutation in my CAC1NA gene. Because of this I have episodic ataxia type 2. I get loss of balance, coordination, slurred speech and other neurological symptoms in episodes. And they can be triggered by different things like stress, anxiety, caffeine, among other triggers. One moment I can be walking fine. The next I could be bed ridden for the day.
    Just wanted to say thank you for spreading awareness for ataxia. There are many variations. But I often get asked what ataxia is.

    • @VeggieRice
      @VeggieRice 11 днів тому +1

      thanks for sharing this, i think you illuminated my mother's symptoms. She has episodes of vertigo & slurred speech at times. Her doctors made her swear off all caffeine (even chocolate! criminal) but didn't really explain why other than a vague reference to cardiac health, when her heart is relatively very healthy.
      Also noticed problems w fine motor control. Doc tried to say it's arthritis but she has no pain.

  • @rooksgj
    @rooksgj 2 місяці тому +138

    As someone with a form of hereditary ataxia (SCA2), thank you for sharing the knowledge with others.

  • @tarrenroman
    @tarrenroman Місяць тому +27

    In nursing school, ataxia is the one phrase I constantly had to Google over and over again. Thinking of it as “not having a taxi,” just makes so much sense now.

    • @PinkGumballs
      @PinkGumballs 17 днів тому

      same!!!! i wish they taught us that little quirk to remember😂

  • @stephaniehales4043
    @stephaniehales4043 2 місяці тому +139

    Glad you are explaining ataxia and why some of us have problems getting around. No i dont have a sore back or a bad leg. I did not hurt my foot. I have ATAXIA

  • @SuperXavier_R
    @SuperXavier_R 2 місяці тому +169

    My teacher showed us 8th graders one of your episodes from the old Disney show about energy. It was my first time ever actually watching an episode. I was never expecting you to upload a video after 15 years.

    • @PinkGumballs
      @PinkGumballs 17 днів тому

      thats awesome! im glad teachers are still using his old shows. I'm 21 and we used to watch Bill in science class all the time. We even had a Bill Nye club in middle school where we would watch episodes on club day!!

  • @dawnb7585
    @dawnb7585 2 місяці тому +39

    Thank you for talking about this. My father died years ago from a pneumonia complicated by ataxia. It's a terrible degenerative condition.

  • @TankBubbles
    @TankBubbles Місяць тому +13

    Thank you for sharing. I was diagnosed with this in 2024 and we are actively determining which version of the disease I have. I currently out on short term disability and probably going to long term early next year. My life and families life has changed as a result of this. My prayer is these videos will garner further interest in figuring out this disease. Thanks Bill Nye.

  • @dongentle6896
    @dongentle6896 2 місяці тому +11

    Thank you. My first partner, with whom I shared twenty one wonderful years, died of complications of this condition, twenty one years ago. More education is needed.

  • @czerniana
    @czerniana Місяць тому +23

    I have MS and Ataxia issues. Thank you for videos like this so people understand what exactly is going on.

    • @ItsGuffle
      @ItsGuffle Місяць тому +1

      Another MS’er here, I have a lesion on my cerebellum and it’s impacted my walking and right hand movement. This video from Bill was so nice to see! It’s great to educate people on what damage in that area can do for motor skills!

  • @TomT-u1n
    @TomT-u1n 2 місяці тому +14

    It was always a great day in middle school when we got to watch your videos! Now, almost 20 years later, you're still teaching me things!

  • @adityathaker2379
    @adityathaker2379 2 місяці тому +18

    So nice to see you old man. Used to watch the show and that's what inspired me to science. I'm so grateful for whatever you did. Thanks

  • @erinloughran4101
    @erinloughran4101 2 місяці тому +37

    I have Ataxia caused by HOD in my medulla & Ataxia comes from my cerebellum! You’re the best, Bill Nye!

  • @Andesu
    @Andesu 2 місяці тому +49

    I remember supporting a movie about you, and in it you mention not having kids because of the possibility of passing down the ataxia gene. 😢

  • @alfm.7125
    @alfm.7125 Місяць тому +7

    Thank you, Bill! I invited you to support our Ataxia Walk N Roll about a decade ago. I am so happy to see you helping raise awareness. I've been a huge fan of yours since I was a kid and you've just leveled up. You're a national and global treasure for science.

  • @Dessi_playinAstro
    @Dessi_playinAstro 2 місяці тому +29

    Ima bout to show this to my science teacher, he’s a die hard fan and misses your videos!

  • @Larry_The_Clam
    @Larry_The_Clam 2 місяці тому +14

    First video in 15 years and it’s a banger!!!

  • @jblyon2
    @jblyon2 Місяць тому +7

    My Dad has Ataxia due to Parkinson's, which is not that common. He seemed to get Ataxia instead of the uncontrollable shakes that normally present in Parkinson's. Thank you for shedding some light on this condition. It's not easy watching Dad try to cope with it, and I can't even imagine having to live with it every day.

  • @earthling_parth
    @earthling_parth Місяць тому +3

    This just showed up in my recommended and I thought Bill Nye got Ataxia. Never heard of the disease so instantly clicked it and subscribed to the channel. Thanks for everything you have done and everything you're doing Bill. One of the legends who inspired me to appreciate science and engineering.

  • @armageddonready4071
    @armageddonready4071 2 місяці тому +8

    Hey Mr Nye, thank you for a LIFETIME of curiosity. Between you, Mr Wizard, and the Boy Scouts, I think I was able to increase my scores to join the military. Which allowed me to become a o341/o845 without even graduating from high school or having a GED.
    Knowledge IS power.
    To bad I was short on the scores for Mensa, I could use research money for inventions.
    Forever a teacher, thanks “science guy”

  • @swimmyswim417
    @swimmyswim417 Місяць тому +2

    My sister is a TBI survivor with ataxia, thanks for the explanation and awareness!

  • @olliemarie73
    @olliemarie73 Місяць тому +2

    My dad has ataxia, and I rarely see anything about it. I'm gonna send this video to others so they can understand more about it, too! Thank you for breaking it down!

  • @aerialdive
    @aerialdive Місяць тому +3

    a late family friend of mine was born with a kind of ataxia, he was suspected to die at early age and managed to live a fufilling life until he was 52. my dad still has an old jumper that he was given from him. it was a fleecy thing, from the disabled fishermen. i miss you dearly "uncle slime" simon, you can fish as much as you want now.

  • @antoineduquette
    @antoineduquette 2 місяці тому +12

    This is a wonderful initiative, thank you for spreading the word!

  • @paulscountry456
    @paulscountry456 2 місяці тому +14

    I was at a restaurant in Sekiu Wash and I met Bill decades back and what a nice guy I got a photo with him too.

  • @zerotohero14
    @zerotohero14 24 дні тому +1

    Thank you for this, you're always so concise in delivering information.

  • @spherius2account
    @spherius2account 2 місяці тому +18

    Bro just came back after 15 years

  • @evonne315
    @evonne315 Місяць тому +3

    Well done. The taxi bit is perfect for helping remember the name of the disease. But all jokes aside this could be a very debilitating condition. Much love and thanks for bringing this into the light. ❤

  • @wirtification
    @wirtification Місяць тому +3

    Bill, I think our families just might be related by common ancestors. We're both Mayflower descendants and have Nye relatives from Cape Cod and Nantucket in our family tree. I didn't even think of the Nye name being related until you mentioned your ancestor from Massachusetts, where we're from. My Mom and his Dad do all the genealogy and I didn't realize I had Nye ties until we married and shared our family history and found ties. The Nye name is a historical Cape Cod name, especially in Sandwich, MA. My husband is more directly a Nye descendant than I am, on his mothers side, while my ties are a lot further back in time from my mother's side. Pretty cool if our Nye's are related. Keep on being great and thank you for all the knowledge you give, you're the BEST science guy! Stay hydrated... (Did you ever read about Peleg Nye? He's definitely an interesting ancestor.)

  • @kassandrasolon1633
    @kassandrasolon1633 Місяць тому +1

    This is awesome. Ataxia runs in my family as well - all progress and awareness is so precious

  • @SwissMiss138
    @SwissMiss138 Місяць тому

    I am so grateful that you’ve brought Ataxia into the light. My family suffers from SCA3 and we’re studied in the 70s when they called it Machado Joseph Disease ( MJD).

  • @hdskl2150
    @hdskl2150 2 місяці тому +3

    Wow
    Thank you so much for talking about this!! I would love a longer talk on it. My son has mild ataxia from surgery and a stroke. It’s hard to understand or explain!!

  • @LindaR-pn9cz
    @LindaR-pn9cz 2 місяці тому +7

    My name is Caitlin and I am a huge fan of Bill Nye the science guy love his videos 😊

  • @jeffdavies2824
    @jeffdavies2824 2 місяці тому +3

    Thanks for bringing this to light. I think I may have this. I'll do my research and consult my doctor.

  • @bomby_
    @bomby_ 24 дні тому

    My good friend Sam passed away from Friedreich's Ataxia in May. I miss him terribly, he was a wonderful person who didn't deserve the hand he was dealt. Even after he lost all independance he was incredibly positive, kind, and always there for me. Thank you for bringing awareness to this heartbreaking disease.

  • @joan_of_snark
    @joan_of_snark 24 дні тому

    My grandmother struggled with ataxia. It was really tough watching her deteriorate towards the end of her life. Thank you for talking about it!

  • @cassidycarson2505
    @cassidycarson2505 Місяць тому

    Love the sound effects, really took me back to my childhood watching Bill Nye the Science Guy

  • @Hapsby
    @Hapsby Місяць тому +1

    I have ataxia, and it's nice to see Bill Nye getting the word out.

  • @raynojam
    @raynojam Місяць тому

    You have been teaching me almost my whole life and I am still thrilled to learn from you Mr. Nye!

  • @HeyCupertino
    @HeyCupertino 2 місяці тому +1

    Thanks for this vital information, and plug for a useful foundation.
    Crossed Nye in a kite shop on a boardwalk some years ago as my grandparents were aging. Wish we had these resources then.

  • @coltyn2003
    @coltyn2003 Місяць тому +4

    Good to see Bill still posting. I could have sworn I heard he died in a hot air balloon accident.

  • @leoistence4evrnlife
    @leoistence4evrnlife 2 місяці тому +5

    The legend has returned

  • @t-shindalankston3621
    @t-shindalankston3621 2 місяці тому +5

    Great to see yea back Bill!!!

  • @EricJMyrick
    @EricJMyrick 2 місяці тому +38

    Bill Bill Bill Bill!!!!!!! #BillNyeTheScienceGuy #awesome

    • @bethseals9750
      @bethseals9750 2 місяці тому +1

      @EricJMyrick Bill Bill Bill Bill Bill Bill Bill Bill Bill Bill Bill Bill!!!

    • @obsoulete83
      @obsoulete83 2 місяці тому +3

      Science Rules!

    • @christiner5265
      @christiner5265 2 місяці тому +3

      Billllll Nyeeeee theee Scienceeee Guyyyyyyy

  • @Abcb15onScratch
    @Abcb15onScratch Місяць тому +3

    The King has returned!

  • @nixienooo
    @nixienooo Місяць тому +1

    My best friend’s mom has ataxia and so does my cousin. It’s so weird to see them progress from being relatively healthy to needing help with everyday things. Thanks for enlightening more people to it, Bill

  • @melanierosalez6989
    @melanierosalez6989 Місяць тому +1

    Simply great explanation! Thanks Bill Nye.

  • @grrrgrl101
    @grrrgrl101 12 днів тому

    Always learning from you no matter what. Thank you Bill Nye for shedding light on this condition.

  • @RenRei_
    @RenRei_ Місяць тому +2

    As someone with Friedreichs Ataxia, this is really important for mainstream awareness

  • @amydeleon3387
    @amydeleon3387 2 місяці тому +8

    Yay! Awareness is the way to finding a treatment and cure!!

  • @myazo7274
    @myazo7274 Місяць тому

    love that the sound design here is akin to the old bill nye show. keep it up and I hope we can find some solutions to ataxia soon!

  • @29planets
    @29planets 2 місяці тому +5

    Thank you for the awesome explanation :)! Wonderful to see you are still here to entertain haha

  • @couchmaster3773
    @couchmaster3773 Місяць тому +10

    I'm *pretty* sure Ataxia is that disease you get from fighting skeevers that makes lockpicking 25% harder.

  • @WhyIsGhostInTheArena
    @WhyIsGhostInTheArena Місяць тому +1

    Always learning something new

  • @COTWcop
    @COTWcop 2 місяці тому +46

    Bill Nye is back? It’s been 15 years since the last official Vid.

  • @SniperDood99
    @SniperDood99 2 місяці тому

    man back in elementary school bill was definitely different then how he is now. its great too see the legend still here too this day!!

  • @Z1ddee
    @Z1ddee 2 місяці тому +3

    Great to see Bill Nye back! The hot air balloon accident seemed fatal but I guess death isn't really that scary after all!

  • @e_s2978
    @e_s2978 2 місяці тому +10

    Bill Nye. Your videos were one of my favorite parts of elementary school and were one small factor in my decision to become an engineer. I give thanks to God for you, sir, and I pray you and your family find the love, peace, and strength found only in Jesus.

  • @donaldlokken1955
    @donaldlokken1955 Місяць тому

    Love you Bill Nye!! You are the greatest educated teacher in the world!!

  • @saltiestsiren
    @saltiestsiren 2 місяці тому +2

    We definitely tend to take our mobility for granted until we lose it. Doesn't matter how old or young you are either, because there are so many conditions out there that can cause mobility concerns. For a while my range of motion decreased by quite a bit while edema made it difficult to use and feel my legs and arms normally. It was the most frustrating period of my life besides when I was a teenager and had agoraphobia and panic disorder. Not being able to get dressed or brush my teeth normally was godawful. I felt so dang slow. I'm fortunate enough that over the course of a year my mobility returned and the edema went away, and now I only have some minor decreased ROM that still affects certain activities but is nothing like how it was before

  • @SirOreo_
    @SirOreo_ 2 місяці тому +3

    BILL SO GLAS UR BACK

  • @jamesblinzler7421
    @jamesblinzler7421 Місяць тому

    Good to see you Bill, I doubt you remember me but when we met and you signed your book for me, that’s a day I doubt I’ll ever forget. Thanks for being that science guy.

  • @Dell2YT
    @Dell2YT Місяць тому

    Love you Bill Nye ✌️✨
    You were the best thing about grade school 💕 Keep teaching future generations and being really cool 😎

  • @katies7158
    @katies7158 2 місяці тому +1

    Thank you for all you do to communicate science to layman like me. It's wonderful to see that you're still here to teach us!
    But I have to... I'm sorry...
    BILL! BILL! BILL! BILL! BILL NYE THE REAL COOL GUY

  • @WhiterunGuard001
    @WhiterunGuard001 Місяць тому

    Loved this... I had an old feeling of when I was a kid.
    Nostalgia is crazy!!!
    I hate these forms of sickness.... Real Life Curses😢

  • @ppei_w
    @ppei_w 2 місяці тому +7

    bill nye the science guy!!

    • @kirkanos3968
      @kirkanos3968 2 місяці тому

      You mean Bill Nye Not the science guy.

    • @ppei_w
      @ppei_w 2 місяці тому +2

      @@kirkanos3968 i definitely mean bill nye the science guy

  • @Mountain-Man-3000
    @Mountain-Man-3000 Місяць тому

    YOU HAVE A UA-cam CHANNEL??! WHY WAS THIS NOT ADVERTISED TO EVERY MILLENIAL??? Subbed!

  • @trav4v710
    @trav4v710 Місяць тому +1

    It's quite a problem back home in Cyrodiil.

  • @matthewcrome
    @matthewcrome Місяць тому +1

    Knew what this condition was and was so concerned for a second that Bill had ataxia himself. But I'm still greatly saddened that his family members or anyone for that matter has to suffer with this. I'm very happy he's using his platform to raise money and awareness for this condition. Side note: I actually have a condition called ataxic cerebral palsy. It tends to be milder than other forms of cerebral palsy and in my case I'm very mildly affected. But despite being a very different condition than the ataxia Bill is talking about (it's not heritable, genetic, or progressive/degenerative by definition), it's kind of a similar etiology. Results from brain damage to the cerebellum before, during, or shortly after birth and affects balance/coordination/visual-spatial abilities.

  • @maverickmckee9198
    @maverickmckee9198 2 місяці тому +1

    Bill Nye coming out of the woodwork with a wholesome message. The world is trying to right itself.

  • @emmapalya1682
    @emmapalya1682 Місяць тому

    So sorry your family is affected by Ataxia. Wishing you and your family so much health and love!

  • @EC-xx5uq
    @EC-xx5uq Місяць тому

    My dad has this. Thanks for elaborating for those who don't understand

  • @johnnytheyoungmaestro
    @johnnytheyoungmaestro Місяць тому

    I did not know there was a term for limited movement. Very interesting, thank you, Bill! I love going for long walks, it's one of my favorite things to do to keep me busy. :)

  • @ColtonBlumhagen
    @ColtonBlumhagen Місяць тому +1

    I saw this and thought dear god don't be sick Bill.

  • @TheLexikitty
    @TheLexikitty 26 днів тому

    Ataxia as part of my ADOA+, caused by mitochondrial genetic stuff, worse on my right side, thanks for this!

  • @CG_Hali
    @CG_Hali 2 місяці тому +1

    Oh wow! Sorry to hear but informative as I didn't know it was also a genetic disorder of its own. I have ataxia due to chronic fatigue syndrome, when I'm crashing suddenly I can't lift things, walk, lift utensils, my speech is slurred, etc. Cause is the autonomic system going bonkers (dysautonomia) for most of us though. Hope you are getting all the help you need!

  • @jenniferanderson7080
    @jenniferanderson7080 2 місяці тому +1

    More videos Bill! Thank you.

  • @kaitlynleeanna425
    @kaitlynleeanna425 2 місяці тому

    He was a special treat once a month at school ☺️📺 love him!

  • @Royalexotics7269
    @Royalexotics7269 2 місяці тому

    15 years later and then we just got a new vid? Nice to see u!

  • @louise8752
    @louise8752 Місяць тому

    This is great for building awareness, thanks Bill!!

  • @KyleWeirich
    @KyleWeirich 2 місяці тому +1

    I have Friedrich’s Ataxia, do a video going over this incredibly difficult disease to live through

  • @Savanna.Melvin.
    @Savanna.Melvin. Місяць тому

    I had no idea this man was still alive. Hell yeah dude. Very nostalgic

  • @onezerotwo
    @onezerotwo Місяць тому +1

    informative AND I get to hear the motion whooshes again

  • @davidleonardovargascarvaja8292
    @davidleonardovargascarvaja8292 Місяць тому +1

    Great video congrats.

  • @XxRaven_13xX
    @XxRaven_13xX 2 місяці тому +2

    Nice to see THE Bill Nye again 🥲

  • @markh.6687
    @markh.6687 Місяць тому +1

    Nice one, Bill!
    ("Uh, Bill....careful!")

  • @hosting1290
    @hosting1290 2 місяці тому +1

    BILL NYE IS BACK

  • @MarLindaPerez-s1i
    @MarLindaPerez-s1i Місяць тому

    You will always be Bill Nye the Science Guy! You are loved by all, at least my generation, and I'm 60🥰😘

  • @simeonfalafel
    @simeonfalafel 2 місяці тому

    Grateful to you for sharing this information with the people

  • @ABUltra64
    @ABUltra64 2 місяці тому +8

    Science rules!

  • @xXxHornpubPremiumxXx
    @xXxHornpubPremiumxXx 2 місяці тому +1

    Once a science guy
    Forever a science legend

  • @OddOneOut665
    @OddOneOut665 2 місяці тому +2

    It’s ME! Bill NYE! The, uhhh, SCIENCE GUY!!!

  • @OHCxK1ll3rw0lffz_solador
    @OHCxK1ll3rw0lffz_solador Місяць тому

    Im glad that youre back

  • @seabassmcbigfat
    @seabassmcbigfat Місяць тому

    You’re one of my heroes, Bill. ❤

  • @jenford7078
    @jenford7078 12 днів тому

    Still doing the good work. Thanks, Bill!

  • @tmo314
    @tmo314 Місяць тому

    I didn’t even know this was a Bill Nye video when I clicked! 🤩

  • @nemesisend3463
    @nemesisend3463 2 місяці тому +4

    Hes back