I have been diagnosed with PCT. I recently started having severe abdominal discomfort. Pain scale maybe a 7. Should I be concerned that it is something more than my PCT?
We're sorry to hear that, Crystal! Please email general@porphyriafoundation.org or call 866-APF-3635. Some types of porphyria have acute and cutaneous symptoms, but PCT is not one of them. We are happy to talk further by phone or email :)
The importance of awareness for that of which is rare is behold of great importance since the question,"What is that?" With the emphasis on "that" often hits harder than the ache of that which one may be inflicted. Even when heard from those who work within the medical field. #PorphyriaAwarnessWeek2024
🦋💜
I have been diagnosed with PCT. I recently started having severe abdominal discomfort. Pain scale maybe a 7. Should I be concerned that it is something more than my PCT?
We're sorry to hear that, Crystal! Please email general@porphyriafoundation.org or call 866-APF-3635. Some types of porphyria have acute and cutaneous symptoms, but PCT is not one of them. We are happy to talk further by phone or email :)
The importance of awareness for that of which is rare is behold of great importance since the question,"What is that?" With the emphasis on "that" often hits harder than the ache of that which one may be inflicted. Even when heard from those who work within the medical field. #PorphyriaAwarnessWeek2024