IIH support group; April 6 Facilitated by Dr. Athos Patsalides & Gabrielle Mauro, LMSW Northwell Health: North Shore University Hospital Department of Neurosurgery
Dr. P sounded like he really cares deeply about his patients, to the point he is going out of his way to find treatments for his patients. He has my respect. I may soon be one of his patients if accepted. We need a lot more Docs like him.
Amazing!!! I was stented in Northern California in 2018, and had bilateral C1 resection/styloidectomy here 2019. I was in the Zoom today and am going back and watching the first two. Crying tears of joy, feeling no regrets for my decisions. But, I truly wish I’d had this information back then and for the last 3 years. I have spent the last 3 years bouncing ideas and questions off other IIH warriors, which is amazing, but the information your providing here is second to none. Thank you for caring about us. Thank you for communicating with us and for “seeing” us. Sometimes we feel invisible.
I met with Dr P just yesterday about this condition and the fact that i have dealt with it for about 5 yrs. He is personally doing my stenting next month. I feel relieved and actually quite honored to have him as my doctor. It will be nice to be able to read again and to see in low light.
Hi I'm in Los Angeles ,CA I have trouble finding a doctor that understands what I'm go through. Glad to see a doctor that knows what's going on with IIH patients. Ty
Omg best video out there i could find so far about all things iih , thank you!!! Wish I could be one of your patients! I'm afraid mine are uneducated on this condition 😔
I need your help. I have been ill with IIH for 13 years now. Male, Bilateral Stenosis of Transverse sinus. I'm in San Diego and my medical systems, Scripps and V.A. Medical are at a loss for how to treat me. Trying to navigate this with a broken brain has been the most difficult thing in my life. While caring for an elderly mother and an autistic child. I'm drowning and could use assistance, thank you...
I need help. I'm being shuffled around. Live in Dothan alabama and been to Emory also Callahan Eye clinic in Birmingham. Have papilledema, losing sight but LP was low in August and everyone is just ignoring me. I'm weak, off balance, losing vision, pulsative tinnitus and feelings of the the back of my head beating to my heart as well. Creepy feelings in my scalp face and neck as well. I need help
it can be neck curve or high cholesterol in the body tissues that is blocking the flow of blood. we need to change the way we eat. Try plant-based food for 30 days and water.
Dr. P sounded like he really cares deeply about his patients, to the point he is going out of his way to find treatments for his patients. He has my respect. I may soon be one of his patients if accepted. We need a lot more Docs like him.
How did it go
Amazing!!! I was stented in Northern California in 2018, and had bilateral C1 resection/styloidectomy here 2019. I was in the Zoom today and am going back and watching the first two. Crying tears of joy, feeling no regrets for my decisions. But, I truly wish I’d had this information back then and for the last 3 years. I have spent the last 3 years bouncing ideas and questions off other IIH warriors, which is amazing, but the information your providing here is second to none. Thank you for caring about us. Thank you for communicating with us and for “seeing” us. Sometimes we feel invisible.
I met with Dr P just yesterday about this condition and the fact that i have dealt with it for about 5 yrs. He is personally doing my stenting next month. I feel relieved and actually quite honored to have him as my doctor. It will be nice to be able to read again and to see in low light.
how did it go :)
Hi i was wondering did you have a cognitive issues from sinus transverse stenosis?
Thank you Dr. Pats and Gabrille for organizing this.
Having this information out there is so important.
So grateful for you all 🙏🏽
Hi I'm in Los Angeles ,CA
I have trouble finding a doctor that understands what I'm go through. Glad to see a doctor that knows what's going on with IIH patients. Ty
Try Dr Lin, Kristy Pasadena. Stenting Dr Konstas also in Pasadena. I am seeing them and they are educated on this issue.
@@elimcg921did you get the surgery
Thank you so much! This is awesome!
Fascinating!! Thank you.
Thank you so much for sharing the recording! I plan to share this video with family, and look forward to attending the next session.
Thanks Dr. you are awesome
Thank you so much
Thank you for sharing this lecture.
Omg best video out there i could find so far about all things iih , thank you!!! Wish I could be one of your patients! I'm afraid mine are uneducated on this condition 😔
Well done!
I need your help. I have been ill with IIH for 13 years now. Male, Bilateral Stenosis of Transverse sinus. I'm in San Diego and my medical systems, Scripps and V.A. Medical are at a loss for how to treat me. Trying to navigate this with a broken brain has been the most difficult thing in my life. While caring for an elderly mother and an autistic child. I'm drowning and could use assistance, thank you...
It's been 7 years for me. I feel your pain.
@@claregarcia7879did you ever get the surgery
What are your symptoms
Did you have cognitive issues?
Yes, I have had lots of memory, motor and mood difficulties over the years. It's been difficult@@HanieletNickle
IIH ever cause visual snow syndrome?
I need help. I'm being shuffled around. Live in Dothan alabama and been to Emory also Callahan Eye clinic in Birmingham. Have papilledema, losing sight but LP was low in August and everyone is just ignoring me. I'm weak, off balance, losing vision, pulsative tinnitus and feelings of the the back of my head beating to my heart as well. Creepy feelings in my scalp face and neck as well. I need help
I have the same symptoms as you. I went to emergency room to no avail , when you feel sick
It’s exhausting!
Wonder if anyone has reduce problem with treating it like addisons ,balancing hormones.... Nutrient balance also
What causes the narrowing of the jugular vein. Don't we need to determine that are correct also otherwise will the stent work.
it can be neck curve or high cholesterol in the body tissues that is blocking the flow of blood.
we need to change the way we eat. Try plant-based food for 30 days and water.
I wonder that too
Rica etsem Türkçe çeviri eklermisiniz saygılarımla
They wouldn't even address my stenosis problems they found
Same here
Is it safe to lift weights with VSS?
I am from India, how to contact you.