Diagnosed at 24 and went with 6 cycles of ABVD and radiation. Now i'm 26. Just had my ct scan and check up yesterday and found out that it came back. I'll be having my chemo again next week with stronger medicines. 😔 Hope everything will go well. 🙏
Hey, I am so sorry to hear about your relapse. I am wishing you the very best as you go back into treatment - hugs to you and thinking of you for sure. -Stephanie
Diagnosed April 2020 and started chemo June 2020. I just finished treatment 11 last week with 1 more to go on the 22 of this month, December. This has been one hell of a ride! Found out after a petscan in August 2020 that I'm in remission.
Just been diagnosed with non Hodgkin’s lymphoma at 22 and waiting for a pet ct scan before I start treatment and I found this video really helpful so thank you xx
Hugh, so sorry to hear about your diagnosis, especially so young. I was diagnosed with NHL at 31. If helpful, we have a bunchmore stories (including of NHL) at www.thepatientstory.com. We'll be releasing more videos so if you subscribe, you'll get notified. Thinking of you. -Stephanie
Had my first advb chemo yesterday for Hodgkin's lymphoma, i get 3 hours every 2 weeks for 4 months then another pet scan to see how im going, im early stage 2A highly favourable and no symptoms so its looking good for me , dont feel to bad and the drugs they give to help with side efects have improved , i still feel a little yuk but thats understandable after a treatment , im sleeping and eating fine and keeping a positive mindset , ive got this✌️im about to turn 44 years old and have lymphocyte rich classic hodgkin's lymphoma it's the most treatable of of the four different subtypes, only 5% of patients get this
My boyfriend is 25 and has been trying for over a year to get a lymphoma diagnosis. Grapefruit sized lymph nodes on neck and nobody can give him answers. Just got a pet scan. It doesn't look good. Thank you for this video, it'll help me prepare to help him.
its been a while since I looked back at my experience with lymphoma (about 6 years). I remember these feelings. I really hope the quality of the medication is better in terms of side effects. I wish this for younger patients who may find it much more challenging to deal with it. I am glad you shared your experience. I felt a lot of the same stuff.
I highly recommend water fasting during chemo treatments. I hardly ever hear about it outside of fasting cycles. But it really does help tremendously in reducing side effects and stressing cancer cells. Its much easier than it sounds too
Your story is similar to the symptoms I've been getting, diagnosed in December 2018 with low grade non hodgkin lymphoma I started my chemo in January 2019 getting my infusion every 3 weeks and I had 8 sessions of chemo which finished in August and now I'm getting maintenance treatment every 8 weeks for next 2 years, biggest problem I've had is the fatigue and hearing you say brushing your teeth could cause you so much fatigue, well I've been getting the same symptoms and even making the bed was a effort, during my chemo I didn't suffer from any nausea but lately I've been getting sick just driving to the shops, hope your keeping well now, I have stage 4 follicular lymphoma
Keith, thanks so much for sharing. We'd love to include a voice like yours on our site, www.thepatientstory.com, and here, too. If you're interested, please fill out this quick survey that helps us get to know you! thepatientstory.typeform.com/to/OJfTUC
My story is in 2018 i got Stage 4. Early 2019 i was cancer clear. 2022 i am looking at pills to end it all. The post fatigue and pain takes your whole life away. Job, exercise, thought, ability. You are made a unich. They do not tell you that before they keep you alive. You are alive, but lose the will to live. No psycologist can give you your body, and therefore your life back.
@@ammaamedi2965 54. I saw a tv documentary about the percentages of survival pist chemo. It delved into the percentages, which were greater, of post chemo health issues. Doctors focus on killing the cancer, not giving you back your life.
I have hodgkings lymphoma 4th stage its being a worst situation for me . I have just completed 6 cycle of chemo and PET CT scan , my report is good now my lymp node is Relapse and now doctors suggested me brentuximab injection...
I’m scared I’ll have to do this with a toddler. I haven’t been Diagnosed yet but the nurses are saying they think it’s lymphoma I have a 10cm mass on my lung so I’ll know after the biopsy 🙃I’m 24 trying to grasp everything
@@kbkb4284 hey I’m doing well I did end up having it, and tomorrow’s my pet scan that determines if I still have it. It was very hard but I can say my journey was easier than most people’s. 🫶🏽🫶🏽
I was diagnosed with HL in 2020, my pet scan are normal now. But i used to have good healthy hair and after the cancer treatment I haven’t got my hair back as they were before ,i am using minoxidil now. Can anyone tell me that will i ever get my normal hair back or not ?
Boiled veggies and cooked chicken and stay away from anything else and only drink water.. STAY AWAY FROM ANY SOFT DRINKS AND SUGAR!. this is the number one cause of all these cancers are people eating all kinds of shit
Hi there! We don't provide medical advice like that - if you have a question about your own health, please seek professional opinion. Best of luck to you. -Stephanie
my bf is steeping 3 leaves of graviola, (it is homeopathic). He drinks it in the morning and night (must be empty stomach). Of course he will be starting chemo, but he is also trying homeopathic remedies. Before his morning tea, he drinks a glass of water with mixed in baking soda and lemon. He will be drinking chicken bone and feet broths too (yes chicken feet is extremely good for you.) I wish you the best, keep your mind clear and positive.
Diagnosed at 24 and went with 6 cycles of ABVD and radiation. Now i'm 26. Just had my ct scan and check up yesterday and found out that it came back. I'll be having my chemo again next week with stronger medicines. 😔 Hope everything will go well. 🙏
Hey, I am so sorry to hear about your relapse. I am wishing you the very best as you go back into treatment - hugs to you and thinking of you for sure. -Stephanie
Had same treatment and it come back in 3 months
Same here also
Bro tell me some side effects you faced after chemo
I hope everything goes perfect for you. 🥹😊 Hopefully, you are able to go into remission soon 🙏🙏
Diagnosed April 2020 and started chemo June 2020. I just finished treatment 11 last week with 1 more to go on the 22 of this month, December. This has been one hell of a ride! Found out after a petscan in August 2020 that I'm in remission.
Veronica, what a wonderful update. Thank you for sharing! ❤️ Stephanie
how are you now... after cemo.. is it a good idea to get cemo Veronica? my father next week will start cemo!
Just been diagnosed with non Hodgkin’s lymphoma at 22 and waiting for a pet ct scan before I start treatment and I found this video really helpful so thank you xx
Hugh, so sorry to hear about your diagnosis, especially so young. I was diagnosed with NHL at 31. If helpful, we have a bunchmore stories (including of NHL) at www.thepatientstory.com. We'll be releasing more videos so if you subscribe, you'll get notified. Thinking of you. -Stephanie
Hy my brother also mycosis fungoids
Had my first advb chemo yesterday for Hodgkin's lymphoma, i get 3 hours every 2 weeks for 4 months then another pet scan to see how im going, im early stage 2A highly favourable and no symptoms so its looking good for me , dont feel to bad and the drugs they give to help with side efects have improved , i still feel a little yuk but thats understandable after a treatment , im sleeping and eating fine and keeping a positive mindset , ive got this✌️im about to turn 44 years old and have lymphocyte rich classic hodgkin's lymphoma it's the most treatable of of the four different subtypes, only 5% of patients get this
My boyfriend is 25 and has been trying for over a year to get a lymphoma diagnosis. Grapefruit sized lymph nodes on neck and nobody can give him answers. Just got a pet scan. It doesn't look good. Thank you for this video, it'll help me prepare to help him.
What's the verdict??
Pet scans should show if it spread
You have to pray day in and day out god works miracle and prayers move mountains
its been a while since I looked back at my experience with lymphoma (about 6 years). I remember these feelings. I really hope the quality of the medication is better in terms of side effects. I wish this for younger patients who may find it much more challenging to deal with it. I am glad you shared your experience. I felt a lot of the same stuff.
I highly recommend water fasting during chemo treatments. I hardly ever hear about it outside of fasting cycles. But it really does help tremendously in reducing side effects and stressing cancer cells. Its much easier than it sounds too
Your story is similar to the symptoms I've been getting, diagnosed in December 2018 with low grade non hodgkin lymphoma I started my chemo in January 2019 getting my infusion every 3 weeks and I had 8 sessions of chemo which finished in August and now I'm getting maintenance treatment every 8 weeks for next 2 years, biggest problem I've had is the fatigue and hearing you say brushing your teeth could cause you so much fatigue, well I've been getting the same symptoms and even making the bed was a effort, during my chemo I didn't suffer from any nausea but lately I've been getting sick just driving to the shops, hope your keeping well now, I have stage 4 follicular lymphoma
Keith, thanks so much for sharing. We'd love to include a voice like yours on our site, www.thepatientstory.com, and here, too. If you're interested, please fill out this quick survey that helps us get to know you! thepatientstory.typeform.com/to/OJfTUC
How r u doing now and watsa ur age
@@ishaa9980 treatment is finished for the moment but getting checked every 3 months now to check nothing is showing up, I'm 60
@@keithmarshall8478 thats great thankyou ❤
Thank you for this video. My husband might have lymphoma. He's still undergoing tests. We'll know soon. I took notes of what you said.
This sounds just like me right now, stage 2b here, 4 sessions in. 5 days after treatment I feel so terrible 😞
My story is in 2018 i got Stage 4.
Early 2019 i was cancer clear.
2022 i am looking at pills to end it all.
The post fatigue and pain takes your whole life away.
Job, exercise, thought, ability.
You are made a unich.
They do not tell you that before they keep you alive. You are alive, but lose the will to live. No psycologist can give you your body, and therefore your life back.
Sorry to hear that❤️can i know how old r u?
@@ammaamedi2965 54. I saw a tv documentary about the percentages of survival pist chemo. It delved into the percentages, which were greater, of post chemo health issues. Doctors focus on killing the cancer, not giving you back your life.
But God will give you everything back if you ask him to help you!
I have Hodgkin's Lymphoma now
Alexandria, I'm sorry to hear this. I hope CC's story (and others) can be helpful to you. -Stephanie
Just diagnosed with it me too and my teeth are starting to be yellow and getting bad😭😓
Thank you! 100% how iv have felt so far
I have hodgkings lymphoma 4th stage its being a worst situation for me . I have just completed 6 cycle of chemo and PET CT scan , my report is good now my lymp node is Relapse and now doctors suggested me brentuximab injection...
I’m scared I’ll have to do this with a toddler. I haven’t been Diagnosed yet but the nurses are saying they think it’s lymphoma I have a 10cm mass on my lung so I’ll know after the biopsy 🙃I’m 24 trying to grasp everything
Similair situation here. How are you doing? I am currently 24 as well.
@@kbkb4284 hey I’m doing well I did end up having it, and tomorrow’s my pet scan that determines if I still have it. It was very hard but I can say my journey was easier than most people’s. 🫶🏽🫶🏽
I was diagnosed with HL in 2020, my pet scan are normal now. But i used to have good healthy hair and after the cancer treatment I haven’t got my hair back as they were before ,i am using minoxidil now. Can anyone tell me that will i ever get my normal hair back or not ?
Did u lost ur beard also?
I av hodgkins lymphoma too stage 3 an am on goin treatment na am 29 soon b 30 on 2 weeks
Thinking of you as you go through treatment. ❤️
@@ThePatientStory thank u .....i av 2 more months left to go
My husband has stage 4 stage what food do you recommend
Glad it was useful!
Boiled veggies and cooked chicken and stay away from anything else and only drink water.. STAY AWAY FROM ANY SOFT DRINKS AND SUGAR!. this is the number one cause of all these cancers are people eating all kinds of shit
Thankyou!
Thank you
After 6 chemo cycles, should lymphoma, swollen lymph nodes be completely squeezed or only partially ? - NHL
Hi there! We don't provide medical advice like that - if you have a question about your own health, please seek professional opinion. Best of luck to you. -Stephanie
I will die before i will do it again. The limfoma came back that's it for me. Hope will end soon!
I pray you will get through.
Sending you well wishes as you deal with this. -Stephanie
Stay strong don't give up xxx
How are u bro, pls guide me iy relapsed for me as well
Pls mention the treatment requested
my bf is steeping 3 leaves of graviola, (it is homeopathic). He drinks it in the morning and night (must be empty stomach). Of course he will be starting chemo, but he is also trying homeopathic remedies. Before his morning tea, he drinks a glass of water with mixed in baking soda and lemon. He will be drinking chicken bone and feet broths too (yes chicken feet is extremely good for you.) I wish you the best, keep your mind clear and positive.
🙏
Are you nhl NON HODGKIN LYMPHOMA