I've had my port since March of 2018 and have been getting IVIG since September 2018. I get IVIG because of having CIDP. It helps keep my ass out of the hospital. Plus because I received training in doing my port care, running IV fluids and also running IVIG by my home health company I am able to independently run my IVIG on my own. Because of the training that I got and can run it independently I can run it when I want such as at night or on the weekend without having to wait around for a nurse and if I need to go to the store then I can.
@Burjonypa, I feel the same way. I just started ivig infusions for pregnancy I have high natural killer cells and caused my last 2 miscarriages I’m greatful my doc led me to ivig infusions
@IDFVIDEOS ..... my wife has CLL , her cancer Dr has suggested IgIv therapy infusions ...Since Covid and the Vaccines...should we be concerned if the PLASMA DONORS for the Infusions have been vaccinated...ie mrna, spike proteins etc transfering to the Product ...shes unvaxxed and wants to stay that way..Thank You ...very informative video
Plasma used to make IVIG will have antibodies from donors being vaccinated, but not spike proteins or mRNA from the vaccine itself. That said, vaccines, including COVID-19 mRNA vaccines, are proven to be safe and effective. Note that nothing mentioned on this channel should ever be used as a substitute for the medical advice of a physician.
He has an autoimmune disease which means his immunity is in overdrive and now is taking immunosuppressants so I’m still confused. Will anything remove the antibody that is causing the disease specifically Jo-1
Excellent presentation, thank you! Question though, what would it mean for me if I'm only low on IgA, but my doctor said my B cells are extremely low too. All other immunoglobulins are just fine (IgG, IgM, etc.)
I had IVIG for almost 5 to 6 years off and on. It worked great. I was given it because I had numerous autoimmune diseases like PBC, Lupus, MCTD and Polymyositis. In 2013 I had one bad reaction and got Aseptic Meningitis. So I was hospitalized and they fixed the problem but then they put me on Ratuxan which does not hardly work. I have constant fatigue, joint pain, fevers, chills and am constantly getting colds, flus , bronchitis and pneumonia. The last several years have been awful and I am constantly ill. My doctor does not want to put me back on the IVIG due to the incident that occurred in 2013. I disagree with him. Can I try the IVIG again, what are the risks?
Hello, You can go to the IDF website, www.primaryimmune.org, to submit any questions using the Ask IDF feature (the purple icon in the top right hand corner) or go to primaryimmune.org/services/ask-idf Thanks and be well!
Hi Pamela, Thank you for your inquiry about the presentation. Unfortunately, we are only given the end product, not the Powerpoint presentation. We apologize for this inconvenience. Thanks!
I have a relative who recently got the IVIG done and he is getting severe Eczema in his palm, between fingers, stomach and scalp. what is recommended in his case as he was not aware of such side effects. I would appreciate your advise.
Hello, You can go to the IDF website, www.primaryimmune.org, to submit any questions using the Ask IDF feature (the purple icon in the top right hand corner) or go to primaryimmune.org/services/ask-idf Thanks and be well!
Great Job! Thank you for this. It's very comprehensive yet condensed to the most need-to-know information.
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I've had my port since March of 2018 and have been getting IVIG since September 2018. I get IVIG because of having CIDP. It helps keep my ass out of the hospital.
Plus because I received training in doing my port care, running IV fluids and also running IVIG by my home health company I am able to independently run my IVIG on my own. Because of the training that I got and can run it independently I can run it when I want such as at night or on the weekend without having to wait around for a nurse and if I need to go to the store then I can.
Thank God for this procedure IVIG.
@Burjonypa, I feel the same way. I just started ivig infusions for pregnancy I have high natural killer cells and caused my last 2 miscarriages I’m greatful my doc led me to ivig infusions
Excellent, thank you. Those side effect should be explained before infusion.
Thank GOD for the info Thank you
Excellent.
@IDFVIDEOS ..... my wife has CLL , her cancer Dr has suggested IgIv therapy infusions ...Since Covid and the Vaccines...should we be concerned if the PLASMA DONORS for the Infusions have been vaccinated...ie mrna, spike proteins etc transfering to the Product ...shes unvaxxed and wants to stay that way..Thank You ...very informative video
Plasma used to make IVIG will have antibodies from donors being vaccinated, but not spike proteins or mRNA from the vaccine itself. That said, vaccines, including COVID-19 mRNA vaccines, are proven to be safe and effective. Note that nothing mentioned on this channel should ever be used as a substitute for the medical advice of a physician.
He has an autoimmune disease which means his immunity is in overdrive and now is taking immunosuppressants so I’m still confused. Will anything remove the antibody that is causing the disease specifically Jo-1
Excellent presentation, thank you! Question though, what would it mean for me if I'm only low on IgA, but my doctor said my B cells are extremely low too. All other immunoglobulins are just fine (IgG, IgM, etc.)
is there a way to get nursing CE for your course?
I had IVIG for almost 5 to 6 years off and on. It worked great. I was given it because I had numerous autoimmune diseases like PBC, Lupus, MCTD and Polymyositis. In 2013 I had one bad reaction and got Aseptic Meningitis. So I was hospitalized and they fixed the problem but then they put me on Ratuxan which does not hardly work. I have constant fatigue, joint pain, fevers, chills and am constantly getting colds, flus , bronchitis and pneumonia. The last several years have been awful and I am constantly ill. My doctor does not want to put me back on the IVIG due to the incident that occurred in 2013. I disagree with him. Can I try the IVIG again, what are the risks?
Hello,
You can go to the IDF website, www.primaryimmune.org, to submit any questions using the Ask IDF feature (the purple icon in the top right hand corner) or go to primaryimmune.org/services/ask-idf
Thanks and be well!
How can I get these slides? Thanks!
Hi Pamela,
Thank you for your inquiry about the presentation. Unfortunately, we are only given the end product, not the Powerpoint presentation. We apologize for this inconvenience. Thanks!
I have a relative who recently got the IVIG done and he is getting severe Eczema in his palm, between fingers, stomach and scalp. what is recommended in his case as he was not aware of such side effects. I would appreciate your advise.
Hello,
You can go to the IDF website, www.primaryimmune.org, to submit any questions using the Ask IDF feature (the purple icon in the top right hand corner) or go to primaryimmune.org/services/ask-idf
Thanks and be well!
@@IDFvideosm
Omg im going to live off Other people ...need to let that sink in
Love it :}
Me too
Research without treatment