I was recently diagnosed with bethlem myopathy. Knee braces and losing weight has helped greatly but, alas, I know its regressive and won't likely improve any.
Hello Paul, I am also diagnosed with BM. COL6A3. Also a lot of comorbidities. Are you maybe interested in exchanging about the situation? Best wishes! Mario
I was recently diagnosed with bethlem myopathy. Knee braces and losing weight has helped greatly but, alas, I know its regressive and won't likely improve any.
Hello Paul,
I am also diagnosed with BM. COL6A3.
Also a lot of comorbidities.
Are you maybe interested in exchanging about the situation?
Best wishes!
Mario
I'm diagnosed with bethlem myopathy aswell, wish u luck!
@@thatonerandxmLeaf That's sucks. You're in my prayers.
@@paulriles3492 Thank you very much