For years I kept passing a ton of stones, having recurring UTIs, and other issues. They finally discovered that it was indeed Medullary sponge kidney disease (Cystic Congenital Disease of the Kidney) for me. I now have a nephrologist in conjunction to a urologist. I'm understanding the diagnosis better, and learning how to do what I need to do in order to minimize stone formation, and other complications.
Mine are like this .I have Medullary Sponge kidney disease, with nephrocalnosis and stones .Just passed 12 this last wk.Mine are doing better on chanca Piedra. In 2020 I passed 2.5 cm worth of stones they were huge ! I have video .I finally found help after a terrible life of stone passing. I still pass them but there getting smaller and stable. I have passed over 400 stones the since 2016.Great video .
Glad you enjoyed the video! I'm sorry that you've had to deal with this painful disease. I'm glad to hear that you've been having some improvement, and I wish you the best.
Thank you for this information. I also have MSK. I've had a nephrologist for about 14 years that I see yearly. I've been warned that I'm susceptible to stones. Well, over the past two weeks I've been dealing with my first stone that is stuck in the ureter so my new urologist will be removing the stone and placing a stent this week. I hope long term this will decrease pain when I have the inevitable stones.
Does anyone else experience kidney pain with this disease?? I have medullary sponge kidney and always have kidney pain in my left kidney sometimes the pain is unbearable. I’ve been seen by so many specialists and they all tell me I shouldn’t be in pain and that this disease doesn’t cause pain. I’m exhausted 😢
That makes me so mad I too was told I shouldn't have pain all the time. That is a lie Everyday of my life since I was 15 yrs.old. I'm 64 now. I have endure my share of pain. The pain has been so bad that I've passed out. So these dr's that say. We shouldn't have pain all the time apparently has never had MSK U r born with this diease No cure for it.learn to deal with it is what I've been told.and can't get a Dr to help with the pain. If the Dr could feel what we feel they would take a whole bottle of pain pills.
After treating underlying cause for medullary sponge, will the radiological findings of nephrocalcinosis resolve? Or will those calcs persist (indefinitely)?
I have this medullary nephrocalcinosis I’m 35 drs tell me I’m a medical mystery I don’t have any of the factors that cause it but I’m very sick and have been for 14 months now I’ve been passed around to so many specialists no one will help me. Please if u know any doctors who can help me please
I know what you mean, nurse laugh at me like I’m not supposed to have feelings. It’s hard being sick and continuously having infection from kidney stone that won’t come out
Maximum Intensity Projection (MIP) images project the voxel (3D cube of data) with the highest attenuation value throughout the volume onto a single 2D image. It's a great way to evaluate vascular structures and to make pulmonary nodules stand out more on lung windows = bright, high attenuation dots against the dark background of lung.
I get it that you are really smart and stuff but it takes a real smart person to be able to dumb it down so regular people can understand what the f*** you're talking about
For years I kept passing a ton of stones, having recurring UTIs, and other issues.
They finally discovered that it was indeed Medullary sponge kidney disease (Cystic Congenital Disease of the Kidney) for me.
I now have a nephrologist in conjunction to a urologist.
I'm understanding the diagnosis better, and learning how to do what I need to do in order to minimize stone formation, and other complications.
I'm glad that you have a nephrologist and urologist to guide you through the diagnosis, and hopefully reduce your complications.
Mine are like this .I have Medullary Sponge kidney disease, with nephrocalnosis and stones .Just passed 12 this last wk.Mine are doing better on chanca Piedra. In 2020 I passed 2.5 cm worth of stones they were huge ! I have video .I finally found help after a terrible life of stone passing. I still pass them but there getting smaller and stable. I have passed over 400 stones the since 2016.Great video .
Glad you enjoyed the video! I'm sorry that you've had to deal with this painful disease. I'm glad to hear that you've been having some improvement, and I wish you the best.
We sound similar. What help did you find?
@@malishafuller364 the Chanca piedra and serripatase.
Bravo Professor
Thanks!
Thank you for this information. I also have MSK. I've had a nephrologist for about 14 years that I see yearly. I've been warned that I'm susceptible to stones. Well, over the past two weeks I've been dealing with my first stone that is stuck in the ureter so my new urologist will be removing the stone and placing a stent this week. I hope long term this will decrease pain when I have the inevitable stones.
This looks like me ❤ I have MSK and now going over 25 lithotripsys
Me too. I wonder if we qualify for ssdi
Respected sir u r a excellent excellent excellent excellent excellent excellent excellent excellent 🌹teacher ❤️❤️❤️❤️
So nice of you!
Thank you very much
You are welcome!
Thanks ! Superb ! )
Thank you Ivan!
Does anyone else experience kidney pain with this disease?? I have medullary sponge kidney and always have kidney pain in my left kidney sometimes the pain is unbearable. I’ve been seen by so many specialists and they all tell me I shouldn’t be in pain and that this disease doesn’t cause pain. I’m exhausted 😢
That makes me so mad
I too was told I shouldn't have pain all the time. That is a lie
Everyday of my life since I was 15 yrs.old. I'm 64 now. I have endure my share of pain. The pain has been so bad that I've passed out. So these dr's that say. We shouldn't have pain all the time apparently has never had MSK
U r born with this diease
No cure for it.learn to deal with it is what I've been told.and can't get a Dr to help with the pain. If the Dr could feel what we feel they would take a whole bottle of pain pills.
My mother is in the same situation, there isn’t much professional help for pain management sadly :(
After treating underlying cause for medullary sponge, will the radiological findings of nephrocalcinosis resolve? Or will those calcs persist (indefinitely)?
Depending on the cause, treatment may lessen the degree of nephrocalcinosis, but the calcs often persist.
Nicely explained
Thank you so much 🙂
Lively
Thanks!
Wel ekzborated. msk
Thank you!
I have this medullary nephrocalcinosis I’m 35 drs tell me I’m a medical mystery I don’t have any of the factors that cause it but I’m very sick and have been for 14 months now I’ve been passed around to so many specialists no one will help me. Please if u know any doctors who can help me please
I know what you mean, nurse laugh at me like I’m not supposed to have feelings. It’s hard being sick and continuously having infection from kidney stone that won’t come out
Respected sir what’s mean by maximum intensity projection (MIP) image?
Maximum Intensity Projection (MIP) images project the voxel (3D cube of data) with the highest attenuation value throughout the volume onto a single 2D image. It's a great way to evaluate vascular structures and to make pulmonary nodules stand out more on lung windows = bright, high attenuation dots against the dark background of lung.
Ok
I get it that you are really smart and stuff but it takes a real smart person to be able to dumb it down so regular people can understand what the f*** you're talking about