Stairs 4-7-13

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  • Опубліковано 10 кві 2013
  • A patient's experience with ALS.

КОМЕНТАРІ • 96

  • @denaodonnell
    @denaodonnell 10 років тому +172

    Hi, I am Kevin's daughter. He passed away but thank you for watching and trying to help.

    • @TheChildfreeCurlyGirl
      @TheChildfreeCurlyGirl 10 років тому +8

      Hi Dena, sorry to hear about your loss. I watched all his videos. Its incredibly sad.

    • @jeanettesilhouette5678
      @jeanettesilhouette5678 6 років тому +3

      I am so sorry for your loss hun :(

    • @gaylelewis529
      @gaylelewis529 4 роки тому +4

      I'm so sorry for the loss!! What a quick progression from the first video to this one. My heart aches!! I'm so sorry!!

    • @DiscernmentNow
      @DiscernmentNow 4 роки тому +2

      Omygoodness I'm SO SORRY for your loss!! 😭 💙🙏

    • @quitsevensix
      @quitsevensix 4 роки тому +8

      Your Dad was a badass to the end, just pushing forward no matter how hard this nonsense hit him. Amazing series of videos!

  • @helloyall4355
    @helloyall4355 Рік тому +21

    God bless this man! He was so brave and a hero to many people. He fought it to the end. RIP! (05/06/2023- the day i found out he passed.) Watched all the videos & felt so much pain. Bless his family.

    • @johncullers
      @johncullers 10 місяців тому

      Oh my so sad 😢😢😢😢

  • @POSS99
    @POSS99 2 місяці тому +2

    God bless you, kevin.

  • @halgordonmdfacp3246
    @halgordonmdfacp3246 11 місяців тому +7

    He was my BEST friend when we were at USC.
    I miss him everyday !
    Rest easy OD .

  • @temamarshall92
    @temamarshall92 5 місяців тому +2

    He was an amazing men, sharing his journey with the world. Rest well Kevin.

  • @ilike2run2
    @ilike2run2 8 років тому +10

    I don't know this man, but I feel led to say how courageous he is. If he is still here, I pray God will give him comfort and peace. I pray for his family and his friends too. Kevin, thank you for allowing us to see your personal struggle. Thank you letting me write a few words, which I hope brings peace and comfort to all who read them.

  • @ksr622002
    @ksr622002 7 років тому +38

    This is only 3 years and one month after his first symptoms. Wow! this disease moves so fast. How cruel it is. Just awful. RIP Kevin

    • @apacur
      @apacur 8 місяців тому

      His first video said he was diagnosed on 11/8/11

  • @MysticPrairie
    @MysticPrairie 10 років тому +9

    I just watched Kevin's video's. What an incredible brave man!
    I also just saw in the comments he passed away and my heartfelt sympathy to his family and friends. I hope you mainly remember him as the handsome man he was :)
    God Bless xo
    Thank you Kevin for sharing your journey ❤️

  • @Mrbarryofhollywood
    @Mrbarryofhollywood Рік тому +14

    Crying now. My mom chose assisted suicide less than a year after her diagnosis. I’ve developed twitching and I’m scared. Seeing a neurologist soon. Thank you for these videos. The world needs to know how terrible and unfair life can be. I’m glad Kevin was surrounded by loved ones.

    • @nozeycow024
      @nozeycow024 Рік тому +1

      Oh I'm so sorry to hear this. It's so cruel, how are you coping?
      Have you had tests now for the twitching.. X

    • @Mrbarryofhollywood
      @Mrbarryofhollywood Рік тому +1

      @@nozeycow024 my health anxiety is through the roof. Have counseling session in a few days and my first neurology appt on May 30. With each ALS video I watch my paranoia is becoming unbearable.

    • @Mrbarryofhollywood
      @Mrbarryofhollywood Рік тому +1

      @@kittykittyxoxo thank u for responding. I’m in process of getting a psychiatrist for anti anxiety medicine. Each morning my twitching is worse and my mind goes to dark places.

    • @mikejunior5825
      @mikejunior5825 Рік тому +2

      @@Mrbarryofhollywood hey man, i went through this health anxiety hell hole with the twitching. Hope youre doing okay brother.

    • @gwyn6907
      @gwyn6907 11 місяців тому +1

      They could have been a bit more sensitive to there dad they didn’t speak to him once they treated him like a object plus cut out the laughing they were carrying him like he was a sack of potatoes. They should have talked with him reassured him and carried him properly

  • @girishparulkar5935
    @girishparulkar5935 9 років тому +21

    RIP Kevin
    My dad also passed away due to this horrific disease. I hope they find a cure or at least way to slow it down.
    It's not fair that mind becomes prisoner in your own body

  • @robmastro8620
    @robmastro8620 3 роки тому +2

    God rest his soul. Brings back sad memories of myself and my siblings caring for my Mom who died from ALS in 1997 at age 60. Its a humbling experience caring for a loved one afflicted with this. I miss her very much.

  • @tdis7238
    @tdis7238 2 роки тому +2

    RIP Mr. Kevin O. What a brave soul he was to tell his story to the nation. Always came across as extremely positive as he could be with this horrible illness. I will always remember you!!!!!

  • @jeaniecoudriet6201
    @jeaniecoudriet6201 8 років тому +6

    I am so sorry for your families loss! He lasted just as long as my grandfather did! Its just heartbreaking to see them so strong and healthy, then in a short span of time, they just lose everything . You can actually see them change! I miss my grandfather so so much! Again I am so sorry, he really seemed like a great guy!

  • @helenakatrinelarsen277
    @helenakatrinelarsen277 5 років тому +15

    I'm so heartbroken right now. This makes me want to go to medical school and find a cure. Rest in peace beautiful strong soul

    • @tenminutetokyo2643
      @tenminutetokyo2643 3 роки тому +2

      It is caused by sugar consumption. There’s a guy in Portugal who stopped progression entirely by diet change.

    • @thomasjensen6243
      @thomasjensen6243 3 роки тому +5

      @@tenminutetokyo2643 Lou Gehrig's disease is NOT caused by sugar consumption.

    • @deadlift305
      @deadlift305 3 роки тому +1

      The system refuses to identify the culprits and causes; so, no cure or sound treatment, will be found by conventional medicine.

    • @dr.sammypryor
      @dr.sammypryor 3 роки тому +1

      @@tenminutetokyo2643 1 of many possible causes!

    • @purebride8600
      @purebride8600 2 роки тому

      Jesus completely heals all sickness and disease by faith in him ALONE to do so.

  • @MRresievil310
    @MRresievil310 7 років тому +5

    If I ever had this disease (or any other terminal illness), I would spend my last days watching the beauty of our world and smiling ( or trying to smile) over the fact that there are good people out there.

    • @misanthrop1958
      @misanthrop1958 7 років тому +5

      Unfortunately our world is anything but beautiful and the vast majority of people are egotistical , vicious assholes. If I had this disease, I would kill myself to avoid going through that horror.

    • @iamessence6268
      @iamessence6268 5 років тому +1

      Euthanasia would be a good choice. I hope they make it legal in all States.

    • @fwlweb5803
      @fwlweb5803 5 років тому +1

      Why is more compassion is shown for an animal?

  • @dr.sammypryor
    @dr.sammypryor 2 роки тому +2

    Thank God for his sons to help him. I hope all Kevin's children get tested for the genes that cause ALS. As an individual that specializes in ALS, I would suggest this so we can start treatment so at 50 you are not affected by ALS.

    • @dovlab3089
      @dovlab3089 2 роки тому

      I am a female, 37 y.o. have numbness and twitching in the calf muscles, right sided weakness, swaying to the right while walking, ct, brain and cervical mri are fine, can I have als ? Neurologists saying I am ok, but my symptoms aren't going away..
      What should I do ?

  • @chilinsnOball
    @chilinsnOball 8 років тому +7

    courageous for Kevin to let this be shared. It's amazing how his spirit is. I had a chance to meet with several people who had ALS and I was amazed at how they ALL had such incredible attitudes when we spoke. All said that losing independence and having to rely on caregivers and various equipment was the hardest parts. Also very hard was seeing loved ones hurt for them. Such a devastating disease that takes its toll on all involved. People that have suffered ALS deserve Heaven 2.0.

    • @fwlweb5803
      @fwlweb5803 5 років тому

      Losing independence is the most difficult aspect. I'm on the verge of it now & will be making that trip to Colorado soon.

    • @holger9588
      @holger9588 Рік тому

      Pls provide evidence for a "heaven'

    • @cindyjohns6222
      @cindyjohns6222 11 місяців тому

      ​@@holger9588
      Please don't think I'm being rude. Cuz I don't mean it to be.
      Is there any evidence that Heaven does not exist?

  • @quitsevensix
    @quitsevensix 2 місяці тому +1

    The fact that this illness leaves your mind intact is really crap, RIP Sir

  • @sasca854
    @sasca854 6 років тому +7

    Damn, his ALS progressed quick... Horrible. I would not wish this on my worst enemy.

  • @susanwedell7627
    @susanwedell7627 5 років тому +2

    God Bless his family and now he is in peace.

  • @FORTHEBY_BY
    @FORTHEBY_BY 5 років тому +1

    I’ve been looking for a video to compare to my sisters voice. Doctors think,she has ALS and this helped so much. Such a horrible illness! RIP Kevin.

  • @zoeftaga
    @zoeftaga 10 років тому +6

    This is a horrible disease. I am sorry this happened to you. I hope a cure is found

  • @johncullers
    @johncullers 10 місяців тому

    GOD BLESS YOU MY FRIEND BREAKS MY HEART...😢😢😢crying

  • @canadasweetie
    @canadasweetie Рік тому +1

    This is the most debilitating disorder I know of: it is how rapid symptoms progress. It breaks my heart they still don’t have any treatments to keep symptoms at bay or increase life expectancy. 😢

  • @aryananshu5538
    @aryananshu5538 2 місяці тому

    Hoping u r in a better place now🙏🙏🙏

  • @kavcox1
    @kavcox1 10 років тому +3

    Love ya bro..... And God loves you even more !

    • @penisternamusonge2149
      @penisternamusonge2149 3 роки тому +1

      Rest in peace Kevin, have watched your video and saw that my beloved sister has gone through such pain and passed on this year 2nd of august 2020. This such a horrible disease seeing your beloved one becoming a prisoner in his/ her own body. I pray that God reveals the secret behind this disease

  • @donblade5405
    @donblade5405 9 років тому +4

    Kevin- I know you are at peace.. REST in peace my brother.. Such a unfair diease..

  • @fwlweb5803
    @fwlweb5803 5 років тому +8

    Cruel is a word I often hear people use referring to this disease. What's cruel is it's been acknowledged since the 1800's and there's been absolutely no advancement. Negligent seems a more fitting word.

    • @ohdwight
      @ohdwight 5 років тому

      an evil agenda of sufffering and then death is the agenda or else they would do more .

  • @selocanselocan-qr8xi
    @selocanselocan-qr8xi 5 років тому +3

    Allahım sen ALS hastalığına çözüm bulmayı doktorlarımıza nasip et kevin odonnell i cennetine kabul et .selçuk çelik. ordu, türkiye.

  • @TheYengirl
    @TheYengirl 11 років тому +1

    OMG. I just watched your video from 2012.

  • @davidkellar6732
    @davidkellar6732 5 років тому +2

    Strong man believe me

  • @MargieHernandez-um7gg
    @MargieHernandez-um7gg Рік тому

    😢😢😢May God comfort his family.

  • @ftse1
    @ftse1 10 років тому +1

    How long ago did he pass ?

  • @denisepickering9309
    @denisepickering9309 4 роки тому

    What an amazing man his daughter is doing the camera. Just a wonderful guy. We're is his wife.

  • @aaronying4989
    @aaronying4989 4 роки тому

    This is so terrifying. So sad

  • @robertm8318
    @robertm8318 5 років тому +3

    Well... I guess this is what I have to look forward to. Yay.

    • @rp1agufan
      @rp1agufan 4 роки тому +3

      I’m so sorry!!

    • @tenminutetokyo2643
      @tenminutetokyo2643 3 роки тому

      See Cuehlo’s video in ALS. He lives in Portugal He stopped his progression. It is all caused by sugar consumption.

    • @Mr_C5627
      @Mr_C5627 2 роки тому

      @@tenminutetokyo2643 Whats link to video?

  • @ericvigen
    @ericvigen 3 роки тому +3

    As I've seen so far, I guess ALS is a little more common in people originated from west of Europe specially Ireland. Maybe I'm wrong bcz it is just based on a few ALS patients.

  • @justme8204
    @justme8204 2 роки тому

    How is Jason Becker still alive this long with ALS¿¿¿ ... This really is scary ...R.I.P. brother 🖤🖤🖤

  • @shellyortiz1977
    @shellyortiz1977 10 років тому +2

    Im so deeply sorry.your father was a handsome attractive man...saw his videos and it breaks my heart.rest in peace kevin

  • @La_cubana
    @La_cubana 10 місяців тому

    Sad sad 😢
    Just 9 months today my husband pass from ALS SUCKS 😢

  • @thomasjensen6243
    @thomasjensen6243 3 роки тому +1

    They talk about him as if he is not there.....his mind and brain are exactly the same as they were before his nerves died.

    • @laanaalove
      @laanaalove 2 роки тому

      Yeah not a fan of that either I took note of it immediately n was like tikes

    • @laanaalove
      @laanaalove 2 роки тому

      Yikes*

  • @billielewis5562
    @billielewis5562 6 років тому +10

    What a cruel cruel disease

    • @funkyflights
      @funkyflights 4 роки тому

      adele Griffiths .... It really is, it makes no sense, it’s just too much .. We need to find a cure or a way to stop it’s progression...

    • @parthianwarrior1901
      @parthianwarrior1901 4 роки тому

      @@funkyflights big pharma will never allow

    • @funkyflights
      @funkyflights 4 роки тому

      Parthian Zaza .... Remember though, USA is greedy, but other countries have universal system where pharmaceutical is controlled, so they’re the ones that could advance better treatments ...

    • @parthianwarrior1901
      @parthianwarrior1901 4 роки тому

      @@funkyflights I don't know what cause this cruel disease but I don't think there is a cure for this. All countries are coltrolled by the same person but in my opinion a cure may be found after 2040 because new world order will be established in 2040

    • @parthianwarrior1901
      @parthianwarrior1901 3 роки тому

      @Phil Fry central nervous system is too complex they won't

  • @yrock777
    @yrock777 4 роки тому

    Rest easy, sir.

  • @gmogartoff
    @gmogartoff 10 років тому +1

    :"(