Farah Hasan's Idiopathic Hypersomnia Story Sharing Event
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- Опубліковано 2 жов 2024
- Please share! Farah Hasan lives in Ontario and is a new graduate student in health science education research. Diagnosed with idiopathic hypersomnia at 21, she will share insights from her journey to diagnosis and treatment. As a speaker with Project Sleep’s Rising Voices of Narcolepsy program, Farah hopes to demystify the symptoms of idiopathic hypersomnia and narcolepsy.
To improve public understanding of narcolepsy, Project Sleep’s Rising Voices of Narcolepsy program trains people with narcolepsy to share their stories through public speaking and writing with local communities, healthcare providers, news outlets, blogs and beyond. Combining the power of real-life stories with expert communication strategies, our Rising Voices of Narcolepsy trained speakers and writers are effectively raising awareness and reducing stigma for all those facing narcolepsy.
Learn more: project-sleep....
That was an incredible description! ❤️🤗
Aside from the hallucination part, I relate to all of this 100%. My irresistible urge to sleep -- and regularly sleeping for over 20 hours straight -- have derailed my academic and professional progress, along with my life in general. The self-blame, not being understood, and thinking that if only one pushes oneself hard enough, everything will be well hits a little too close to home. The speaker should consider herself incredibly lucky to have been taken seriously and diagnosed quickly -- more often than not these symptoms get dismissed as "depression" or "mental illness" or "being a hypochondriac".
That's. What we all with IH suffers from
I hate how people reacts to it
Thank you!!!
Hi, I'm really grateful hearing your story which I can relate to completely. This has affected me my entire life without knowing, I grew up very intelligent even I still am but I fear sleeping at work and all the embarrassments so I stopped applying for the jobs in the field I persued. So now I don't have a stable job which is something I don't like at all since I could be somewhere better . I also got married recently and I was diagnosed with preeclampsia during my pregnancy and lost my baby. This sleeping has affected every area of my life and I really need help to get over this , get a job and study again as I always wish. Is there anywhere you know where I can start from?
Thank you for so much informative descriptions! I just got the same diagnosis at age 55, and am currently in the process to recalling all the sleepy bouts in my life. Seems like I lived through phases of extreme sleepiness on and off. Is that a symptom you have experienced also?