Pam, Your outlook on life inspires me. I was also diagnosed with ALS but over the last few years, it has changed to PLS. I am plagued by survivor's guilt. Your strength and that of your girls is admirable. I also, have 2 girls and although ALS is not our reality we understand. God bless you all.
"relentless caregiving." great no one said you had to do it. what if it was you?? relentless sounds so resentful and angry. i was diagnosed 3 days ago. i am 68. will my small family help me? will they consider crushing medicines and helping me into bed RELENTLESS?? this makes me want to disappear and not burden them until i slowly suffocate. nice. thanks
“No one is promised tomorrow …
So we have to find the joy and laughter today!” ❤
Words to live by-
So sad... what a horrible disease; thank you for sharing this story.
Such a heartbreaking disease. Hopefully a cure will be found soon.
no cure anytime soon
Pam, Your outlook on life inspires me. I was also diagnosed with ALS but over the last few years, it has changed to PLS. I am plagued by survivor's guilt. Your strength and that of your girls is admirable. I also, have 2 girls and although ALS is not our reality we understand. God bless you all.
Beautiful ❣️
MRI is not a diagnostic tool for MND. A EMG perhaps
"relentless caregiving." great no one said you had to do it. what if it was you?? relentless sounds so resentful and angry. i was diagnosed 3 days ago. i am 68. will my small family help me? will they consider crushing medicines and helping me into bed RELENTLESS?? this makes me want to disappear and not burden them until i slowly suffocate. nice. thanks
❤️
😢
Is ALS painful?
frozen in your body sad my husband passed 2 months ago
@@davidfleck9635 sorry for your loss ❤