I don't know how I found this video, but I am so happy I did! As a Nurse, I just cannot tell you how much I admire you! You have been through a battle, both physically and mentally, that most people will never know. And yet, your mindset is not directed towards self pity, but rather towards education of strangers on the internet, and you very likely have saved the lives of people you will never know, all because you shared your journey on UA-cam! You, Sir, are a phenomenal, brave, humorous, intelligent individual! Thank you for using your story for the benefit of others. It is my most sincere hope that you will have a long lifetime with your family and friends! Your children are blessed to have such a wonderful example of how to live with grace and positivity!!
@@NeilWalsh_UN No, no *NO MY FRIEND!* You're quite wrong. Tami is right. Many accolades to you! Her compliment to you is *SO* very deserved! As are all the others in this feed! And like her, I too am SO GLAD that I stumbled upon your video! You are one remarkable person. Thank you for sharing your story of bravery with the world. (by the way, you owe me a drink as I DID watch to the very end) Haha.. As for that part where you recorded the "if you're watching this, unfortunately I'm no longer here" videos, I can totally relate. I did this exact same thing in the summer of 2019. It was to be played at my memorial service in the event that I wouldn't survive, as so many of my doctors had suggested. On February 10th of that year I suffered a massive DVT in my right leg followed by double Pulmonary Embolisms... one in each lung. Three weeks later it was discovered that I had a genetic blood disorder called *Factor V(five) Leiden Mutation* Even though I had been born with this genetic defect, it was dormant all my life... dormant up until a routine gallbladder surgery two days before the DVT, which triggered a cascade of horrible medical events. Weeks later, I was placed on a in-home Hospice Care program and by the end of that summer I had experienced three more PE's. Doctors still don't know how I've survived so many. Even while being on high doses of both Xarelto AND daily Lovenox injections in the belly every 8 hours, I continue to have random clots and PE's. As of this year,, I've now had 7 PE's and you're right! They are painful. AND scary! But I'm still here to complain, somehow... Three years later, I'm no longer under Hospice Care. However I'm still seen monthly by pain management to help manage my very painful conditions & symptoms. The DVT resulted in a massive 27-inch long chain of blood clots that extended from my right calve, up into my abdominal area. I've had 9 Thrombectomy procedures, 2 stents placed in my thigh and an IVC Filter placed in my chest and am currently dealing with *PTS* (Post Thrombotic Syndrome). It has caused several open wounds and skin ulcerations on my right leg and the clots have completely destroyed my vascular system in that limb. Just five months before that DVT I had both an endoscopy and a colonoscopy done back in September, 2018. I had been having signs and symptoms very similar to yours. Even though no tumors or cancer were found that day, they did remove 26 polyps from my colon and 4 from the interior of my stomach lining. 8 were found to be precancerous and I was instructed on that day that I would need to begin having colonoscopy studies annually - at minimum. Well, with all the other medical stuff I've dealt with since then (PE's, all the clots and NOW "sick sinus syndrome" where my heart has several A-Fib, Atrial Flutter and V-tach episodes a day)... well? The annual colonoscopies took a back seat to everything else, needless to say. But about a year ago I noticed I was having occasional belly cramps again, weird pains and random bouts of constipation followed by excessive diarrhea. Then several more days of constipation. I also noticed my clothes weren't as snug and I was going down in shirt sizes. So I saw my GP and he started me on a bowel stimulant, prescription strength Movantik, to help move my bowels. He wrote it off "normal" since I'm on high doses of morphine for pain control. It's 10 months now since I first noticed a change in my restroom habits and the weight loss. To date, I've gone from a size 4× down to a 2× and I've lost over 80 pounds.. mostly due to the fact I barely eat most days. My constipation has gotten to the point that no movement for 10 to 12 days is my new norm ~ followed by 2 to 4 days of painful and uncontrollable diarrhea, then right back to another dry spell of at least a week to 10 or 12 days. 15 days is the longest I've gone and it was pure misery. At this moment, writing this, I am ONCE AGAIN at day number 9 and counting.. and feeling pretty miserable. And no matter how much rest I get, it's never enough. I'm so blasted weak & tired most days, I could cry. None of this is normal for me. Even at my worst while under Hospice Care, I don't remember ever feeling this poorly and overall "unwell". The past several weeks I've been nauseous more than I haven't. My tummy always feels distended and I eat very little. But when I do eat it's usually a softer diet; plain toast, applesauce, yogurt, bananas or applesauce. That's pretty much my go-to. I FINALLY saw a new GP back in July and she immediately wrote a referral for me to be seen by a Gastroenterologist... and I actually will see him for an initial consult this week. Just 3 more days! My biggest fear is that I'll be told there's *Colon Cancer* in there. I'm already dealing with news of a bone tumor above my left knee that they recently discovered kinda accidentally. It's in my left femur bone, my "good" leg. (which turns out now, isn't so good either) lol And I was just told a couple weeks ago THAT tumor came back benign but it will still need to come out as it has characteristics that COULD turn malignant eventually. Ugh! I'm starting to feel like, "Why me?! Where does all of this end?" I can't even wrap my brain around one more bad diagnosis... especially cancer. 😩 But then I watched your video and what you've gone through, and what you'll likely continue to deal with. Not to mention your upbeat and positive attitude with a little dry humor mixed in. You telling your story has helped far more than you could ever know, I'm sure. Including me! So please take the compliments Neil. Seriously. Because you deserve every damn one of them! Isn't it just amazing what some of us have to go through just to remain here on earth? It truly is crazy! But wow, what a rollercoaster ride you've been on... Thank you again for sharing YOUR story... I will keep you and your whole family in my thoughts and prayers. I just turned 55 a few weeks ago.. my wife and I were never able to bear children, unfortunately. But we have several nieces and nephews that look up to us and still depend on. So, like you, I guess I'll continue to fight back for as long as I can, just to stick around. Even though "our kids" are all grown up now, I know I'm still needed from time to time. For gas money, if nothing else! 💰 lol 😆 Sincerely, Troy Daniel Casa Grande, Arizona Southwestern U.S.A. P.S... If *YOU* made it through to the end of *MY* commentary, then it is *me* that owes *you* a drink. LOL 😆 Stay well my friend! And thanks again.
42 just diagnosed super scared, waiting for staging, same symptoms you had bleeding was ignored and exhausted, constipated and difficulty pooing, all where ignored as I thought it was hemorrhoids. I have 3 young kids and a wife who are fully dependent on me financially as I am a self employed, sculptor and woodworker. I am currently at the beach giving our family a week to live normally before I come back to staging, surgery and or chemo/radiation. Your story scares me and makes me really not want to live through all this, so I’m living today awaiting the results which will be awaiting me when I get back from my trip from the beach, I’ve already lived through broken neck and addiction/alcoholism and now I’m able bodied and sober facing this reality with a tremendous dependence on God to heal my cancer and direct the drs, please pray for me as I will be praying for you.
What a remarkable person you are. Your story is inspirational. I was diagnosed with cancer in my rectum and descending colon in August, and had surgery a couple of weeks ago. i have a temporary stoma and am waiting on histology results. My main preoccupation at the moment is how on earth will I be able to work again. Listening to you made it very clear how anything can be possible, although of course, that is dependent on the person, and you my dear man, you must have an incredibly courageous, kind and generous spirit. No wonder your wife didn't let a cancer diagnosis put her off marrying you, she must have known what a diamond she had found. Thank you for sharing.
That’s so kind - thank you Claire! Wish you all the best with recovery and seemingly never-ending scans, bloods and things being stuck up your bum! Best of luck Neil
You are a wonderful communicator, and very inspiring in speaking frankly about your suffering, and the graphic details of your disease. Wish you health and strength, Neil.
Everything about this video is remarkable: the story of what you've gone through, the plain language you use to make your story accessible, the humor you mix in with the extremely sobering facts, the measured way you convey the depth of the emotions you experienced, the important lessons you share (both for viewers and for our societies). Thank you for making the time to make this video; it's the best of what UA-cam can offer. I admire you and wish you all the best.
I had the same cancer in 2016 and after my Ileostomy was removed I went through 5 yrs of hell with constant diarrhea. Ive had no social life at all as u know this all too well. 6 yrs now at age 54 and its finally calming down. Just had a colonoscopy and 5 slow growing polyps were removed. Continued prayers to u on this journey my friend! WE GOT THIS!! ❤
I can’t describe what it feels like to read your post Kim. Both of my resections took 4-5 years to settle - and I had many moments of questioning why I didn’t retain the stoma(s) Wishing you the best! Neil
@@NeilWalsh_UN Thank u my friend and if I would have known the length of time, discomfort, weakness and pain I was going to endure for so long, I too would have kept my colostomy bag. Best wishes to u always! Kim
I'm making my appointment. Ive had symptoms for years. And this video has made me start my journey. I want to thank you for sharing and I praise and admire your strength and courage. Thanks Neil.
Neil, thank you for sharing your story. It was and you are amazing. I’m 78 and had a fast growing meningioma removed a year and a half ago, followed up with 6 weeks of radiation. Bad headaches followed and surgery was done. When they opened my head up the whole area and the titanium mesh was covered with puss (bacteria). Had two more craniotomies tried putting in a cover from Medtronic the pacemaker people and where the previous incisions were cerebral brain fluid would leak out. Took that cover out and it was infected again. So surgeon left out so I have no brain flap. Doctor said he will not do anything else for me. My forehead looks like I was hit with a hard baseball. Left the brain flap out and said he had nothing else to offer me. My short story doesn’t even begin to compare what you have been through, so I have a lot of empathy for you. You are quite an amazing person. Again thank you for your honesty and bravery and sharing your story with us. John from N. C. U. S. A
My husband was just diagnosed with colon cancer and it’s so very scary. Thank you for being so brave. I wish you and your family the very best. Thank you for sharing your story.
You are so brave. I’m here today watching your story because my 26 year old nephew has been diagnosed with stage 4 colon cancer, we are all very afraid. However, your strength and story has given me strength
At 51 I'm going to have my first colonoscopy next week after experiencing symptoms and some abnormal test results. Can't lie, I'm bricking it a bit but watching this has made it sound a bit more manageable. Thanks for the great info 👍
Wow. So glad I found your video. Initially I was getting anxious hearing your story but then I started to feel confident that I could handle whatever I needed to face. Thank you.
Thank you for sharing your story, my son was diagnosed with rectal colon cancer that is spread to his liver. He is 44 years old. You telling your story gives me hope ! My God bless you and your family 🙏🙏
Thank you so much for sharing your absolute bloody rollercoaster of experiences since your 20s. I actually felt very emotional and upset watching it and find it incredible that one person can go through all this in such a short space of time. Your humility and honesty are lessons to us all. Thank you again for being so open about all this. I am also glad you made a most salient point about socialised medical care. More people need to speak out about those systems which don’t grant healthcare as a human right yet purport to be great. You are so much less dogmatic than I am though.
That’s really kind - thank you Emma The healthcare absence that many have is stark. If I wasn’t well-paid I think I’d have died years ago We all need to look-after each other. And that starts with universal healthcare
Ya healthcare is free in Cuba too! Taking away People's Autonomy is never right or injecting them with experimental drugs.Socialized Medicine sucks ask a Canadian Canadian
Absolutely remarkable that you stayed relatively positive and not in shock throughout everything, my mother was recently diagnosed with Stage IV Colorectal Cancer where they have found a tumor 20cm from the rectum causing near obstruction, CT and MRI images later they also have found it made it way to the liver, 3 of them to be exact on both sides of the liver, bilobar liver metastases, I was in complete shock but stayed strong and positive, and so did my mother! She completely accepted it and said she will fight it with all she got, she started Chemotherapy about 2 weeks ago on Xeloda and Eloxatin and she is doing much better! her tumor pain is significantly less and she told me going for number 2 is easier now, after telling the docs they told us this is most likely chemo response and will follow up after all chemo cycles are complete! Please pray for my mother, she's all I got ❤❤
Said a prayer for her. Can relate to your last sentence as my mom is also all I have and she currently has stage 4 breast cancer. Going with her to the doctor later
Neil, you are a gifted storyteller. I could listen to you all day. Your spot-on sense of humor is familiar to many of us who live, or have lived, with cancer. It helps us cope with the serious stuff. I think you could have a second career as a TED speaker or podcaster. Just look at the comments from so many people whom you have inspired, who will actually pick up their phones to make a doctor's appointment in the next weeks or months. You may well have saved a life. Well done!
Omg! God love you!! I too ignored my symptoms for two years. Blood when I wiped, then blood in my underwear, then passing blood clots then tons of mucous, then pain that would land me in bed for a couple days. Oh hell. Fine. I’ll get a colonoscopy. I was 64 and had never had one. Surprise surprise. They took an egg sized tumor out of my sigmoid colon along with an extra 10 or 12 inches just for shits and giggles. Had an ileostomy for a couple of months, lost most of my beautiful long silver hair and gained 30 lbs. WTF! But I’m glad I watched your video because things have changed again in my plumbing and I totally reversed to my old ways of ignoring symptoms and skipping colonoscopies. What exactly is my problem?! You’ve given me a much needed shove to the doctor and I thank you for that. Good luck to you my friend ❤❤❤
Your story, Neil, is incredible. I was on the edge of my seat the whole way through. I am amazed by your ability to cope. I have struggled daily for nine years with two autoimmune diseases, chronic pain, overwhelming fatigue, and medication side effects. Like you, I discovered that my vitamin D was rock bottom. I fractured several bones just from walking. Tests confirm I have osteopenia and likely osteoporosis in both feet to “add to the fun,” caused by medications and low vitamin D. My digestive system is all over the map, mainly from medicine and biological side effects. But because of your video, I will push aside my fears and get the colonoscopy I’ve put off. I hope this comment a year after your post finds you well and happy and bettering the world in your profession. I’m awaiting your TED Talk. Public speaking is your motivational gift from above-all the best to you and yours from Seattle.
I'm horrified by the misery and pain that you have been through. Makes me feel lucky that I "only" have a stage 4 obstructive tumor that has metastasized to half my liver. Everyone needs a colonoscopy! Thanks for the laugh! (Shirt and tie, story.) Hope you're done with the new tumors and can get everything else under control. Thank you for the video!
Oh Fran I’m sorry to read that you’ve got mets…double shit with shit on top 😞 Even the dark moments I hope you still find the humour in this madness. Wishing you all the very best N
WOW, just wow!!! You are a blessed man! Many, like myself, are suffering and even dying from colon cancer because we have no way to get the help we need.
I have all the symptoms. I am in Africa is a central African country called Cameroon. I can't even get diagnosed properly because of the cost. I need help@relaxingsoundsforgoodsleep4653
I really admire your courage to keep on fighting through this horrendous ordeal. Although in some ways, I can relate to the many Hospital visits, and Doctor's appointments etc... as I live with chronic illness, and have to deal with so much pain, and suffering like you do. However, you remain so strong, and incredibly inspiring to other's that may feel like giving up. I am praying for healing, and that God will open doors for you to get some help financially, and I pray that you will be able to share your story with more people around the world. Please take care of yourself, and keep smiling 😃 🙏🇺🇲
Thank you for sharing your story. It may save someone’s life. Your medical journey is astounding. I’m a retired nurse & you describe medical terms and procedures very well--you’ve had so much personal experience with these things. Yet, the emotional toll in dealing with all of this must be so difficult. Glad you have a loving, supportive partner. My 40 y/o BIL had rectal bleeding and abdominal “lumps”(tumors) which he ignored until it was too late. Surgery was open/shut due to so much cancer. He died 2 months after surgery. We miss him still 37 years later. (His parents lived into their 90s.) To public who May read this comment: Don’t ignore rectal bleeding or change in BMs or changed BM frequency no matter your age. Get immediate help & don’t delay.
Thanks for writing Susan and I’m really sorry to read about your brother - terrible news. There was some fascinating research done way back in 2008 showing that men had double the risk of bowel cancer than women and one of the hypotheses was that we present much later because we consciously ignore symptoms and are much less used to routine genitourinary investigations than women. It really spoke to me….. Wishing you all the best Neil
You've gone through alot and here you are a VICTOR!as I prepare myself to undergo the the treatment ooh how I pray that God will walk with me through the journey and also tell my story just to touch someone's heart just like you did to me.
Hi Neil, you mentioned how hard it was to talk about all of this at the start of your video. But I was recently given the Cologard home test kit for colon cancer. I'm 73 now and for well over eight years now I have dealt with rectal bleeding, severe pain, changes in everything with my bowels. But when I told the doctors and was given 6 colonoscopy's nothing was found. NOW, with this test I received word the it is positive for cancer. I'm not too surprised. The symptoms were there all along. But your video helped me to believe I can handle all of this. Thank you so much for sharing your experiences with the world. I'm over here in Creswell, OR, USA. And you have been very helpful. God bless.
From an Australian,im so impressed with you ,why do u still travel you are such a marvel i wish you well im bleeding for months but im 81 and im scared
What an epic saga! I was transfixed listening to it straight through without pause. Your attitude toward what life has thrown at you must be a factor in your surviving (and relatively thriving with family life and productive work) despite the setbacks and rarest of complications along the way. For personal reasons, it is particularly meaningful to me to hear survival stories. But yours is truly off the charts! I bet your wife is special, too, like you. Best wishes for continued years of staying steps ahead of the cancer demon. 💙
Hi Neil. I'm extremely grateful for this video. After my GP, grudgingly, sent me for a CT scan on the 19th November 2024 after over a year of stomach issues, severe constipation then diarrhea (No blood), I received a phone call from him on the 27th asking me to come immediately to the surgery. I knew at that point something had been discovered. Having nursed my Dad through stomach cancer and then prostate cancer to his death in June of 2000, My Mum was diagnosed with Kidney cancer in October of 2000 then died of Lung cancer in 2007.(Again, I had the privilege of Nursing her at home, until her death. I have had a long relationship with cancer and kinda knew the format. I was told that I have an unspecified tumor on the ascending colon which is crushing the bowel. I have been referred under the 14 day pathway. My appointment with the colorectal team is a week today, Tuesday the 10th December 2024. I want to be informed of every single detail, every step of the way. Your video has provided me with some questions that need to be asked. I am 63 years old, and while I have had some serious health issues through my life, I consider myself a very fortunate human being. I have no plans on leaving this planet anytime soon and am prepared to fight for my survival. I hope my comment finds you healthy and well! Kindest regards, Dave (Gloucester UK)
Please write a book about your experiences and consider doing a Ted Talk , you have a gift out of all of your trauma , I see you have gotten an amazing gift to articulate your experience. Others would benefit from hearing your story , you are a great speaker.
My prayers are with you Michael. Hope you get well soon. I have been having fresh red blood at the end of my stools since a little more than a month now. I visited my GP two weeks back and after visual rectal examination he said he can't see anything wrong there and that there's nothing to worry about. On my insistence he has however, given me the contact of the hospital where I can undergo colonoscopy. I am worried what should I do now.
With 45 years of IBD I am in awe of Neil’s courage, his survival is astounding. Twenty plus hours on the loo is excruciating and testing all the resilience that one can muster. I can’t imagine how Neil has dealt with all the complications in addition. Thank you for drawing attention and awareness to this difficult disease. 👏👍🏻
Wow. That is quite a story. I feel horrible for you and all you’ve been through. Yes, you’re right, you should have not ignored those symptoms. But the doctor really is at fault here. You were young, you trusted her and she failed. That really angers me. Glad you survived that doctors dismissal. You are a strong individual and I admire your strength. Thanks for sharing this journey.
Thanks Cherie. Yeah maybe the doctor should’ve proved more but I’m the sort of patient that they’ll maybe see once or twice in their entire career so most of the responsibility was on me……
I never realised what a bad time you have had, since the first time the cancer struck. You are a true fighter and Sabine and the family must be made of strong stuff too. Thank you for sharing this,- I never liked Brocoli before and now you have put me completely off it. Keep safe
You truly are a cancer warrior. I had a colorectal cancer diagnosis 5 years ago and started treatment 4 weeks later. When my oncologist started my treatment I was taking Xeloda, a form of oral chemo, along with radiation daily for 2 months. It’s ironic my insurance company classified Xeloda as a proscription medication and wouldn’t approve it. I was also fortunate to be able to pay out of pocket the $5,000.00 per month. I was stage 2a and your journey makes mine seem like a vacation comparatively speaking. Your positivity and attitude is astounding. Stay strong and positive. Your journey and attitude is amazing and an inspiration to all. ☮️🙏🏻
Wowwwww there’s no words to even explain to you how thankful I am, for making this video. You have been through everything, but yet your sense of humor is exceptional, Woww such an amazing guy . This is very educational , it’s greatly appreciated 🙏🏾. One thing for sure , anyone who watches this video will have more appreciation for health , something we’ve all take for granted . God bless you and your family ❤️❤️🙏🏾
Very interesting to listen to . I’ve had a T3 tumour removed in January with a anterior resection and didn’t need any other treatment as no lymph nodes were effected . On five year surveillance but had to fight for a CT scan in June and my consultant and nurse seemed very annoyed that I wanted more regular checks that they were advising . Currently waiting for Cea blood tests results … Jane
You're amazing Neil, to go through all of that, hold down a good career, have 4 kids & moved around on top or it all. Makes my worries seem silly. My stool test (FIT Test) came back positive for suspected Colorectal Cancer (my bloods were all good) after I went to Docs for anal bleeding that had got worse (I've had anal bleeding for many years, been for two sydmoidoscopies and confirmed hemoroids being the issue) with wind & now a bloated cramping feeling in my stomach. I have to see the Doctor tomorrow & will be referred for a Colonoscopy on a 2 week fastrack. I did wonder whether I should try a private clinic instead of using the NHS hospital. I felt that as I'm now 52 & had my sydmoidoscopy two years ago after alarming blood in the toilet, they should have given me the Colonoscopy back then to check further.
🌻 Thank you so much for sharing your much valued message. Blessings to you and family that your health issues remain under control without future cancer concerns. 🙏
Thank you for sharing your journey with us which has been horrific for you and your family and also the warnings signs for those who have watched your video. We wish you and your family all the very best.
I admire your courage, determination and strength Neil for all that you have came through and are still going through.. It's a privilege to watch this video and appreciate that you are helping others with the signs.. I've had changes in my stool habits over the last year or so and until recently spotting bright red blood in the toilet pan, which initially alerted me to something not being quite right.. To cut along story short I've had several tests and due for a colonoscopy in January 2023..hopefully all will go well with this precedure for me, I hope 🙏🙏 I wish you the very best and thanks again 🙏🙏👍
Wish you the best with the colonoscopy Jon - probably something benign but, even if not, it’s the right thing to do. Well done for listening to your body & wishing you good results. Neil
Man, some story. Your courage is very inspiring. Thanks for sharing your story. Haven't been feeling well myself last few months. So went to my GP and having further investigations. I hope you continue to live a great life and remain cancer free.
Thank you from the USA where i couldnt agree with you more. Just getting a colonoscopy here takes a year or more and a lot of running around. I'm so glad you're hear and unafraid to tell your story. Be blessed! 🌹👍
Thank you so much for sharing your story. You are truly an inspiration! Despite your physical, mental, and emotional ordeals, you are positive, and show such grace and strength. You are so clear and concise while speaking. Your words resonated with me deeply. I couldn’t agree more, early detection is key. God bless you. ❤
My gosh Neil you are so very well spoken and the way you explained all your symptoms was the best I have ever heard you certainly had a tuff time you had the best of Doctors thank god that’s why you are alive today. Please take care from Canada 🇨🇦
Amazing story. Thank you for sharing. The part where you mentioned universal healthcare is 100% spot on. I live in the US and the #1 people go bankrupt here is due a healthcare emergency. It's an embarrassment
This is a remarkable story of your incredible health journey. Your support too from medical professionals around the world has been outstanding. I wish you the very best for the future. Thank you for sharing.
Thank you for sharing your incredible journey, you have given me what I need to continue. I’m at the very beginning of my journey, I know something is wrong and with the support of lots of people I can battle this. All the best to you and your family.
Wow Thank You for sharing your story. You are a walking miracle. I have been experiencing pain that doesn’t go away for almost 2 years don’t know what it is yet but next week I’m having the colonoscopy and an endoscopy so I’ll find out what’s going on.
Thank you for sharing your story with everyone. Because of this video I will be making an appt with my Dr tomorrow as I have EVERY symptom that you listed at the end of your video. The only thing that is different is that i have a distended stomach that is so hard. I have been to the Dr. but they just told me to lose weight. I’m not overweight except for this darn stomach! Thank you again.
Neil you are an amazing person. To tell such a harrowing story with such Grace and calmness. You've been through a lot and I send you healing vibes from Hawaii. I'm grateful to hear your story and I'm so sorry for how you suffered. May you have happiness peace and joy and may you see your children grow up and get married children
I am so sorry. What a strong person you are. Nothing, but best wishes for you. Your story is very moving. Honestly, thank you for your story. I hope it gives some level of comfort for anyone going through this. I know it has me. What a truly amazing way to give off positivity. I hope in my lifetime I can have an ounce of what you have.
I salute you for having the willpower to overcome such a painful condition which is very painful even to imagine. I pray to God that you stay hale and healthy and be there for and with your family. I also pray that every being on this earth remain hale and healthy, and care for each other.
Thank YOU for your eloquent, lucid, intelligent summary of your terrible journey with colo-rectal cancer. You will probably have saved many lives with this. Stay well and enjoy your life.
That was an amazing video. It's definitely food for thought. If only some people will take note .I have diverticulitis of the bowel and it has given me many problems. Now I I'm due for bowl resection.. livr long my friend ❤
What an incredible and inspirational human story. Awful to hear you went through so much but also a testament to today's medical advances. Without the experts you certainly would not have been here. So glad you can try and enjoy yourself and make the most of life. Totally true - everyone needs to think B.O.W.E.L. Blood always needs to be checked and ANYTHING that seems unusual and persists and certainly if it feels something is worse. Glad you got there. Reminder to everyone, you are never too young. In fact someone I know in early 40s has recently been diagnosed with bowl cancer. It is uncommon in younger people but not entirely rare!
Thank you very much for sharing your story. I got hooked from beginning to end. I hope & pray that your complete recovery continues. A friend of mine just got back here in Netherlands from almost 6months of treatment in Heidelberg Germany. He had colon cancer. Was treated but..2yrs later it came back. He was clean for 6years but then came back again last May. After all the pain & struggle to survive he is again now back to Netherlands. He is going to be 57 in 3 weeks time.
Wow you are really really a fabulous man you've been through so much I admire you like you just would not believe it just seemed like it was one thing after another for you and you just kept going I cried I was so touched by your story on your bravery and everything that you've been through I could have been crying thank you for sharing this and helping other people maybe not to go through what you did or not as bad anyway thank God you're still here and thank you so much for this video God bless
I don't know how I found this video, but I am so happy I did! As a Nurse, I just cannot tell you how much I admire you! You have been through a battle, both physically and mentally, that most people will never know. And yet, your mindset is not directed towards self pity, but rather towards education of strangers on the internet, and you very likely have saved the lives of people you will never know, all because you shared your journey on UA-cam! You, Sir, are a phenomenal, brave, humorous, intelligent individual! Thank you for using your story for the benefit of others. It is my most sincere hope that you will have a long lifetime with your family and friends! Your children are blessed to have such a wonderful example of how to live with grace and positivity!!
Thanks Tami that’s really kind - and not sure it’s deserved
Thanks for doing what you do to help the rest of us keep going.
@@NeilWalsh_UN No, no *NO MY FRIEND!* You're quite wrong. Tami is right. Many accolades to you! Her compliment to you is *SO* very deserved! As are all the others in this feed! And like her, I too am SO GLAD that I stumbled upon your video! You are one remarkable person. Thank you for sharing your story of bravery with the world. (by the way, you owe me a drink as I DID watch to the very end) Haha..
As for that part where you recorded the "if you're watching this, unfortunately I'm no longer here" videos, I can totally relate. I did this exact same thing in the summer of 2019. It was to be played at my memorial service in the event that I wouldn't survive, as so many of my doctors had suggested. On February 10th of that year I suffered a massive DVT in my right leg followed by double Pulmonary Embolisms... one in each lung. Three weeks later it was discovered that I had a genetic blood disorder called *Factor V(five) Leiden Mutation* Even though I had been born with this genetic defect, it was dormant all my life... dormant up until a routine gallbladder surgery two days before the DVT, which triggered a cascade of horrible medical events. Weeks later, I was placed on a in-home Hospice Care program and by the end of that summer I had experienced three more PE's. Doctors still don't know how I've survived so many. Even while being on high doses of both Xarelto AND daily Lovenox injections in the belly every 8 hours, I continue to have random clots and PE's. As of this year,, I've now had 7 PE's and you're right! They are painful. AND scary! But I'm still here to complain, somehow...
Three years later, I'm no longer under Hospice Care. However I'm still seen monthly by pain management to help manage my very painful conditions & symptoms. The DVT resulted in a massive 27-inch long chain of blood clots that extended from my right calve, up into my abdominal area. I've had 9 Thrombectomy procedures, 2 stents placed in my thigh and an IVC Filter placed in my chest and am currently dealing with *PTS* (Post Thrombotic Syndrome). It has caused several open wounds and skin ulcerations on my right leg and the clots have completely destroyed my vascular system in that limb.
Just five months before that DVT I had both an endoscopy and a colonoscopy done back in September, 2018. I had been having signs and symptoms very similar to yours. Even though no tumors or cancer were found that day, they did remove 26 polyps from my colon and 4 from the interior of my stomach lining. 8 were found to be precancerous and I was instructed on that day that I would need to begin having colonoscopy studies annually - at minimum. Well, with all the other medical stuff I've dealt with since then (PE's, all the clots and NOW "sick sinus syndrome" where my heart has several A-Fib, Atrial Flutter and V-tach episodes a day)... well? The annual colonoscopies took a back seat to everything else, needless to say.
But about a year ago I noticed I was having occasional belly cramps again, weird pains and random bouts of constipation followed by excessive diarrhea. Then several more days of constipation. I also noticed my clothes weren't as snug and I was going down in shirt sizes. So I saw my GP and he started me on a bowel stimulant, prescription strength Movantik, to help move my bowels. He wrote it off "normal" since I'm on high doses of morphine for pain control. It's 10 months now since I first noticed a change in my restroom habits and the weight loss. To date, I've gone from a size 4× down to a 2× and I've lost over 80 pounds.. mostly due to the fact I barely eat most days. My constipation has gotten to the point that no movement for 10 to 12 days is my new norm ~ followed by 2 to 4 days of painful and uncontrollable diarrhea, then right back to another dry spell of at least a week to 10 or 12 days. 15 days is the longest I've gone and it was pure misery. At this moment, writing this, I am ONCE AGAIN at day number 9 and counting.. and feeling pretty miserable. And no matter how much rest I get, it's never enough. I'm so blasted weak & tired most days, I could cry. None of this is normal for me. Even at my worst while under Hospice Care, I don't remember ever feeling this poorly and overall "unwell".
The past several weeks I've been nauseous more than I haven't. My tummy always feels distended and I eat very little. But when I do eat it's usually a softer diet; plain toast, applesauce, yogurt, bananas or applesauce. That's pretty much my go-to.
I FINALLY saw a new GP back in July and she immediately wrote a referral for me to be seen by a Gastroenterologist... and I actually will see him for an initial consult this week. Just 3 more days! My biggest fear is that I'll be told there's *Colon Cancer* in there. I'm already dealing with news of a bone tumor above my left knee that they recently discovered kinda accidentally. It's in my left femur bone, my "good" leg. (which turns out now, isn't so good either) lol And I was just told a couple weeks ago THAT tumor came back benign but it will still need to come out as it has characteristics that COULD turn malignant eventually. Ugh!
I'm starting to feel like, "Why me?! Where does all of this end?" I can't even wrap my brain around one more bad diagnosis... especially cancer. 😩 But then I watched your video and what you've gone through, and what you'll likely continue to deal with. Not to mention your upbeat and positive attitude with a little dry humor mixed in. You telling your story has helped far more than you could ever know, I'm sure. Including me! So please take the compliments Neil. Seriously. Because you deserve every damn one of them! Isn't it just amazing what some of us have to go through just to remain here on earth? It truly is crazy! But wow, what a rollercoaster ride you've been on...
Thank you again for sharing YOUR story... I will keep you and your whole family in my thoughts and prayers. I just turned 55 a few weeks ago.. my wife and I were never able to bear children, unfortunately. But we have several nieces and nephews that look up to us and still depend on. So, like you, I guess I'll continue to fight back for as long as I can, just to stick around. Even though "our kids" are all grown up now, I know I'm still needed from time to time. For gas money, if nothing else! 💰 lol 😆
Sincerely,
Troy Daniel
Casa Grande, Arizona
Southwestern U.S.A.
P.S... If *YOU* made it through to the end of *MY* commentary, then it is *me* that owes *you* a drink. LOL 😆 Stay well my friend! And thanks again.
😢
God loves you I admire how brave you are ❤
😢
This is the most British description of cancer and near death symptoms I’ve ever heard. Honestly, very informative, dignified and classy.
I repent for ever feeling sorry for myself. I love his dry humor and positive attitude.
Ha! You’re allowed to feel sorry for yourself (“the joy of work” as it could be defined….)
42 just diagnosed super scared, waiting for staging, same symptoms you had bleeding was ignored and exhausted, constipated and difficulty pooing, all where ignored as I thought it was hemorrhoids. I have 3 young kids and a wife who are fully dependent on me financially as I am a self employed, sculptor and woodworker.
I am currently at the beach giving our family a week to live normally before I come back to staging, surgery and or chemo/radiation. Your story scares me and makes me really not want to live through all this, so I’m living today awaiting the results which will be awaiting me when I get back from my trip from the beach, I’ve already lived through broken neck and addiction/alcoholism and now I’m able bodied and sober facing this reality with a tremendous dependence on God to heal my cancer and direct the drs, please pray for me as I will be praying for you.
My prayers go out to you and your family 🙏
Have you now been staged? If so, I hope it's in the early stages and thus better chance of survival
God bless you with 🙏
how's it going?
What a remarkable person you are. Your story is inspirational. I was diagnosed with cancer in my rectum and descending colon in August, and had surgery a couple of weeks ago. i have a temporary stoma and am waiting on histology results. My main preoccupation at the moment is how on earth will I be able to work again. Listening to you made it very clear how anything can be possible, although of course, that is dependent on the person, and you my dear man, you must have an incredibly courageous, kind and generous spirit. No wonder your wife didn't let a cancer diagnosis put her off marrying you, she must have known what a diamond she had found. Thank you for sharing.
That’s so kind - thank you Claire!
Wish you all the best with recovery and seemingly never-ending scans, bloods and things being stuck up your bum!
Best of luck
Neil
Lost my husband to bowel cancer 5 years ago at 57 years old. Symptoms came on suddenly and he fought a really good fight.
I’m sorry to read this Lynn 😞
You are a wonderful communicator, and very inspiring in speaking frankly about your suffering, and the graphic details of your disease. Wish you health and strength, Neil.
Thanks so much!
Everything about this video is remarkable: the story of what you've gone through, the plain language you use to make your story accessible, the humor you mix in with the extremely sobering facts, the measured way you convey the depth of the emotions you experienced, the important lessons you share (both for viewers and for our societies). Thank you for making the time to make this video; it's the best of what UA-cam can offer. I admire you and wish you all the best.
Thanks for sharing, you are a brave man , so strong
I had the same cancer in 2016 and after my Ileostomy was removed I went through 5 yrs
of hell with constant diarrhea. Ive had no social life at all as u know this all too well.
6 yrs now at age 54 and its finally calming down. Just had a colonoscopy and 5 slow
growing polyps were removed. Continued prayers to u on this journey my friend! WE GOT THIS!! ❤
I can’t describe what it feels like to read your post Kim. Both of my resections took 4-5 years to settle - and I had many moments of questioning why I didn’t retain the stoma(s)
Wishing you the best!
Neil
@@NeilWalsh_UN Thank u my friend and if I would have known the length of time, discomfort, weakness and pain I was going to endure for so long, I too would have kept my colostomy bag. Best wishes to u always!
Kim
How many years cancer survivor and what stage
@@prakashsudha1999 Are u asking me or Neil? Mine was stage 4 and Im at 7yrs now 😀
You are AMAZING! You deserve some sort of award for everything you've been through.🏆Thanks for sharing your story. Best of luck to you, sir!
I'm making my appointment. Ive had symptoms for years. And this video has made me start my journey. I want to thank you for sharing and I praise and admire your strength and courage. Thanks Neil.
Thank you. It is my turn now at 45 years old so thank you for being in the lead. Thanks to you I know what to expect, prepare, and avoid.
Neil, thank you for sharing your story. It was and you are amazing. I’m 78 and had a fast growing meningioma removed a year and a half ago, followed up with 6 weeks of radiation. Bad headaches followed and surgery was done. When they opened my head up the whole area and the titanium mesh was covered with puss (bacteria). Had two more craniotomies tried putting in a cover from Medtronic the pacemaker people and where the previous incisions were cerebral brain fluid would leak out. Took that cover out and it was infected again. So surgeon left out so I have no brain flap. Doctor said he will not do anything else for me. My forehead looks like I was hit with a hard baseball. Left the brain flap out and said he had nothing else to offer me. My short story doesn’t even begin to compare what you have been through, so I have a lot of empathy for you. You are quite an amazing person. Again thank you for your honesty and bravery and sharing your story with us. John from N. C.
U. S. A
My husband was just diagnosed with colon cancer and it’s so very scary. Thank you for being so brave. I wish you and your family the very best. Thank you for sharing your story.
Wishing you guys the very best on your journey. I hot my four year cancer anniversary - for the second time - earlier this week 💪
My wife was just diagnosed with colon cancer last week and we're in the beginning stage of this journey.
You are so brave. I’m here today watching your story because my 26 year old nephew has been diagnosed with stage 4 colon cancer, we are all very afraid. However, your strength and story has given me strength
What were his symptoms
How is he now,?
🙏 I thought I had problems, not even close! You, are an inspiration to never give up ❤️
At 51 I'm going to have my first colonoscopy next week after experiencing symptoms and some abnormal test results. Can't lie, I'm bricking it a bit but watching this has made it sound a bit more manageable. Thanks for the great info 👍
Wow. So glad I found your video. Initially I was getting anxious hearing your story but then I started to feel confident that I could handle whatever I needed to face. Thank you.
You are incredibly honest and positive. Thank you for sharing your story. I think this video will really help people.
You did a grand job telling your story, thank you!
Thank you for sharing your story, my son was diagnosed with rectal colon cancer that is spread to his liver. He is 44 years old. You telling your story gives me hope ! My God bless you and your family 🙏🙏
Thank you Neil ..for helping people along the way....what a journey u have had....spoken so clearly and easy to understand...
I'm so sorry you suffered so much. It's so amazing that you survived these horrific health issues.
Thank you so much for sharing your absolute bloody rollercoaster of experiences since your 20s. I actually felt very emotional and upset watching it and find it incredible that one person can go through all this in such a short space of time. Your humility and honesty are lessons to us all. Thank you again for being so open about all this. I am also glad you made a most salient point about socialised medical care. More people need to speak out about those systems which don’t grant healthcare as a human right yet purport to be great. You are so much less dogmatic than I am though.
That’s really kind - thank you Emma
The healthcare absence that many have is stark. If I wasn’t well-paid I think I’d have died years ago
We all need to look-after each other. And that starts with universal healthcare
@@NeilWalsh_UN please answer me 😢😢😢
Ya healthcare is free in Cuba too! Taking away People's Autonomy is never right or injecting them with experimental drugs.Socialized Medicine sucks ask a Canadian Canadian
Absolutely remarkable that you stayed relatively positive and not in shock throughout everything, my mother was recently diagnosed with Stage IV Colorectal Cancer where they have found a tumor 20cm from the rectum causing near obstruction, CT and MRI images later they also have found it made it way to the liver, 3 of them to be exact on both sides of the liver, bilobar liver metastases, I was in complete shock but stayed strong and positive, and so did my mother! She completely accepted it and said she will fight it with all she got, she started Chemotherapy about 2 weeks ago on Xeloda and Eloxatin and she is doing much better! her tumor pain is significantly less and she told me going for number 2 is easier now, after telling the docs they told us this is most likely chemo response and will follow up after all chemo cycles are complete! Please pray for my mother, she's all I got ❤❤
God will be with her 🙏 in the name of the father the son and the holy spirit. Did the CT scans show tumor in colon ?
Wishing your mum (and you!) the very best with this horrid journey.
Prays your way
Said a prayer for her. Can relate to your last sentence as my mom is also all I have and she currently has stage 4 breast cancer. Going with her to the doctor later
🙏🙏🙏💓🙏🙏🙏
Thank for such a superb and open talk. Yes, I watched to the end and will watch it again.
Neil, you are a gifted storyteller. I could listen to you all day. Your spot-on sense of humor is familiar to many of us who live, or have lived, with cancer. It helps us cope with the serious stuff. I think you could have a second career as a TED speaker or podcaster. Just look at the comments from so many people whom you have inspired, who will actually pick up their phones to make a doctor's appointment in the next weeks or months. You may well have saved a life. Well done!
Omg! God love you!! I too ignored my symptoms for two years. Blood when I wiped, then blood in my underwear, then passing blood clots then tons of mucous, then pain that would land me in bed for a couple days. Oh hell. Fine. I’ll get a colonoscopy. I was 64 and had never had one. Surprise surprise. They took an egg sized tumor out of my sigmoid colon along with an extra 10 or 12 inches just for shits and giggles. Had an ileostomy for a couple of months, lost most of my beautiful long silver hair and gained 30 lbs. WTF! But I’m glad I watched your video because things have changed again in my plumbing and I totally reversed to my old ways of ignoring symptoms and skipping colonoscopies. What exactly is my problem?! You’ve given me a much needed shove to the doctor and I thank you for that. Good luck to you my friend ❤❤❤
Thanks for taking the time to write - and there’s never enough use of “shits and giggles” 😃 - now get back to that doc….
Good luck!
Wow...just WOW! Glad you are here to tell us your story!
Your story, Neil, is incredible. I was on the edge of my seat the whole way through. I am amazed by your ability to cope. I have struggled daily for nine years with two autoimmune diseases, chronic pain, overwhelming fatigue, and medication side effects. Like you, I discovered that my vitamin D was rock bottom. I fractured several bones just from walking. Tests confirm I have osteopenia and likely osteoporosis in both feet to “add to the fun,” caused by medications and low vitamin D. My digestive system is all over the map, mainly from medicine and biological side effects. But because of your video, I will push aside my fears and get the colonoscopy I’ve put off. I hope this comment a year after your post finds you well and happy and bettering the world in your profession. I’m awaiting your TED Talk. Public speaking is your motivational gift from above-all the best to you and yours from Seattle.
I'm horrified by the misery and pain that you have been through. Makes me feel lucky that I "only" have a stage 4 obstructive tumor that has metastasized to half my liver. Everyone needs a colonoscopy! Thanks for the laugh! (Shirt and tie, story.) Hope you're done with the new tumors and can get everything else under control. Thank you for the video!
Oh Fran I’m sorry to read that you’ve got mets…double shit with shit on top 😞
Even the dark moments I hope you still find the humour in this madness.
Wishing you all the very best
N
WOW, just wow!!! You are a blessed man! Many, like myself, are suffering and even dying from colon cancer because we have no way to get the help we need.
Do u have colon cancer & can’t get treatment? Why can’t you get treated?
I have all the symptoms. I am in Africa is a central African country called Cameroon. I can't even get diagnosed properly because of the cost. I need help@relaxingsoundsforgoodsleep4653
I really admire your courage to keep on fighting through this horrendous ordeal. Although in some ways, I can relate to the many Hospital visits, and Doctor's appointments etc... as I live with chronic illness, and have to deal with so much pain, and suffering like you do. However, you remain so strong, and incredibly inspiring to other's that may feel like giving up. I am praying for healing, and that God will open doors for you to get some help financially, and I pray that you will be able to share your story with more people around the world. Please take care of yourself, and keep smiling 😃 🙏🇺🇲
Thanks Jeni; wish you the best with your journey
Thank you for sharing your story. It may save someone’s life. Your medical journey is astounding. I’m a retired nurse & you describe medical terms and procedures very well--you’ve had so much personal experience with these things. Yet, the emotional toll in dealing with all of this must be so difficult. Glad you have a loving, supportive partner. My 40 y/o BIL had rectal bleeding and abdominal “lumps”(tumors) which he ignored until it was too late. Surgery was open/shut due to so much cancer. He died 2 months after surgery. We miss him still 37 years later. (His parents lived into their 90s.) To public who May read this comment: Don’t ignore rectal bleeding or change in BMs or changed BM frequency no matter your age. Get immediate help & don’t delay.
Thanks for writing Susan and I’m really sorry to read about your brother - terrible news.
There was some fascinating research done way back in 2008 showing that men had double the risk of bowel cancer than women and one of the hypotheses was that we present much later because we consciously ignore symptoms and are much less used to routine genitourinary investigations than women. It really spoke to me…..
Wishing you all the best
Neil
You've gone through alot and here you are a VICTOR!as I prepare myself to undergo the the treatment ooh how I pray that God will walk with me through the journey and also tell my story just to touch someone's heart just like you did to me.
You are one tough guy. Both mentally and physically. I wish the best for you.
Thank you for posting your very informative video. You are very brave and kind to share your story.
Hi Neil, you mentioned how hard it was to talk about all of this at the start of your video. But I was recently given the Cologard home test kit for colon cancer. I'm 73 now and for well over eight years now I have dealt with rectal bleeding, severe pain, changes in everything with my bowels. But when I told the doctors and was given 6 colonoscopy's nothing was found. NOW, with this test I received word the it is positive for cancer. I'm not too surprised. The symptoms were there all along. But your video helped me to believe I can handle all of this. Thank you so much for sharing your experiences with the world. I'm over here in Creswell, OR, USA. And you have been very helpful. God bless.
From an Australian,im so impressed with you ,why do u still travel you are such a marvel i wish you well im bleeding for months but im 81 and im scared
Please go to doctor And Have a Colonoscopy ASAP!
What an epic saga! I was transfixed listening to it straight through without pause. Your attitude toward what life has thrown at you must be a factor in your surviving (and relatively thriving with family life and productive work) despite the setbacks and rarest of complications along the way. For personal reasons, it is particularly meaningful to me to hear survival stories. But yours is truly off the charts! I bet your wife is special, too, like you. Best wishes for continued years of staying steps ahead of the cancer demon. 💙
Hi Neil. I'm extremely grateful for this video. After my GP, grudgingly, sent me for a CT scan on the 19th November 2024 after over a year of stomach issues, severe constipation then diarrhea (No blood), I received a phone call from him on the 27th asking me to come immediately to the surgery. I knew at that point something had been discovered. Having nursed my Dad through stomach cancer and then prostate cancer to his death in June of 2000, My Mum was diagnosed with Kidney cancer in October of 2000 then died of Lung cancer in 2007.(Again, I had the privilege of Nursing her at home, until her death. I have had a long relationship with cancer and kinda knew the format. I was told that I have an unspecified tumor on the ascending colon which is crushing the bowel. I have been referred under the 14 day pathway. My appointment with the colorectal team is a week today, Tuesday the 10th December 2024.
I want to be informed of every single detail, every step of the way. Your video has provided me with some questions that need to be asked. I am 63 years old, and while I have had some serious health issues through my life, I consider myself a very fortunate human being. I have no plans on leaving this planet anytime soon and am prepared to fight for my survival. I hope my comment finds you healthy and well!
Kindest regards, Dave (Gloucester UK)
Incredible story 🙏🙏😊😊
Thank you for sharing your story ❤ giving me strength and encouragement for my own healing journey.
Love, Laughter and Light to everyone
Wow! You’ve been through the wars!!! Thanks for sharing your journey. This will give a lot of people hope.
Hey man I appreciate you sharing your story. Your courage is beyond admiration.
Please write a book about your experiences and consider doing a Ted Talk , you have a gift out of all of your trauma , I see you have gotten an amazing gift to articulate your experience. Others would benefit from hearing your story , you are a great speaker.
I ignored blood in my stool also. Now I have stage 4 rectal cancer and liver cancer. I hope you and I both get better.
Oh Michael I’m really sorry to read that.
Wishing you all the best with your journey 💪
How was your blood stool I’ve had mine for a month now but it’s bright red only when I wipe plz answer I’m scared
My prayers are with you Michael. Hope you get well soon. I have been having fresh red blood at the end of my stools since a little more than a month now. I visited my GP two weeks back and after visual rectal examination he said he can't see anything wrong there and that there's nothing to worry about. On my insistence he has however, given me the contact of the hospital where I can undergo colonoscopy. I am worried what should I do now.
@@sandythemonk a visual rectal exam which one, Did you do a CT scan ?
With 45 years of IBD I am in awe of Neil’s courage, his survival is astounding. Twenty plus hours on the loo is excruciating and testing all the resilience that one can muster. I can’t imagine how Neil has dealt with all the complications in addition.
Thank you for drawing attention and awareness to this difficult disease. 👏👍🏻
God has been so good to you!!! May you be blessed with so many years to come!!!
Your strength is incredible mate! Keep fighting the good fight. Thank you for your video
Wow. That is quite a story. I feel horrible for you and all you’ve been through. Yes, you’re right, you should have not ignored those symptoms. But the doctor really is at fault here. You were young, you trusted her and she failed. That really angers me. Glad you survived that doctors dismissal. You are a strong individual and I admire your strength. Thanks for sharing this journey.
Thanks Cherie. Yeah maybe the doctor should’ve proved more but I’m the sort of patient that they’ll maybe see once or twice in their entire career so most of the responsibility was on me……
Neil, You are a fighter! I would have given up without even a semblance of a fight.
I never realised what a bad time you have had, since the first time the cancer struck. You are a true fighter and Sabine and the family must be made of strong stuff too. Thank you for sharing this,- I never liked Brocoli before and now you have put me completely off it. Keep safe
Thanks mate!
I’m a nurse and found your video very informative thank you. Take care you are a true inspiration
You truly are a cancer warrior. I had a colorectal cancer diagnosis 5 years ago and started treatment 4 weeks later. When my oncologist started my treatment I was taking Xeloda, a form of oral chemo, along with radiation daily for 2 months. It’s ironic my insurance company classified Xeloda as a proscription medication and wouldn’t approve it. I was also fortunate to be able to pay out of pocket the $5,000.00 per month. I was stage 2a and your journey makes mine seem like a vacation comparatively speaking. Your positivity and attitude is astounding. Stay strong and positive. Your journey and attitude is amazing and an inspiration to all. ☮️🙏🏻
Thanks for a beautiful talk. Super communication on very difficult topics. Thanks for sharing your story. It gives strength to us all.
An incredible journey and superbly presented. Thanks for sharing the information and best wishes.
Wowwwww there’s no words to even explain to you how thankful I am, for making this video. You have been through everything, but yet your sense of humor is exceptional, Woww such an amazing guy . This is very educational , it’s greatly appreciated 🙏🏾.
One thing for sure , anyone who watches this video will have more appreciation for health , something we’ve all take for granted . God bless you and your family ❤️❤️🙏🏾
You are incredible…. I could listen to you talk about anything…. Much love
Why an amazing man enduring this experience. Great communicator. ❤❤
Wow, how brave of you Neil, it’s a hell of a journey. Keep strong and stay positive you are inspirational and save lives by your honesty and openness.
Thanks Janet!
Bravo Neil , you are a tenacious, Courageous warrior, you were spared for a reason , God bless you and your family❤
So unlucky to suffer with so much- but lucky with the care you received & to have a loving family around you.
Very interesting to listen to . I’ve had a T3 tumour removed in January with a anterior resection and didn’t need any other treatment as no lymph nodes were effected . On five year surveillance but had to fight for a CT scan in June and my consultant and nurse seemed very annoyed that I wanted more regular checks that they were advising . Currently waiting for Cea blood tests results … Jane
You're amazing Neil, to go through all of that, hold down a good career, have 4 kids & moved around on top or it all. Makes my worries seem silly.
My stool test (FIT Test) came back positive for suspected Colorectal Cancer (my bloods were all good) after I went to Docs for anal bleeding that had got worse (I've had anal bleeding for many years, been for two sydmoidoscopies and confirmed hemoroids being the issue) with wind & now a bloated cramping feeling in my stomach. I have to see the Doctor tomorrow & will be referred for a Colonoscopy on a 2 week fastrack. I did wonder whether I should try a private clinic instead of using the NHS hospital. I felt that as I'm now 52 & had my sydmoidoscopy two years ago after alarming blood in the toilet, they should have given me the Colonoscopy back then to check further.
My husband has colorectal cancer and this is very informative 👏
Ohh . Can tell me in which stage your husband have colorectal cancer.?
Thank you for being here sir....I wish you well
I wish you the best of luck, thanks for sharing your experience, and thanks for the advice.
🌻 Thank you so much for sharing your much valued message. Blessings to you and family that your health issues remain under control without future cancer concerns. 🙏
Thank you for sharing your journey with us which has been horrific for you and your family and also the warnings signs for those who have watched your video. We wish you and your family all the very best.
Ta Mark - appreciate it
Thank you for sharing your story. You are a true inspiration and very articulate, I admire you so much. I hope you are doing well.
Thanks very much indeed Kathy - appreciate it
I admire your courage, determination and strength Neil for all that you have came through and are still going through.. It's a privilege to watch this video and appreciate that you are helping others with the signs.. I've had changes in my stool habits over the last year or so and until recently spotting bright red blood in the toilet pan, which initially alerted me to something not being quite right.. To cut along story short I've had several tests and due for a colonoscopy in January 2023..hopefully all will go well with this precedure for me, I hope 🙏🙏
I wish you the very best and thanks again 🙏🙏👍
Wish you the best with the colonoscopy Jon - probably something benign but, even if not, it’s the right thing to do. Well done for listening to your body & wishing you good results.
Neil
Man, some story. Your courage is very inspiring. Thanks for sharing your story. Haven't been feeling well myself last few months. So went to my GP and having further investigations. I hope you continue to live a great life and remain cancer free.
Thank you from the USA where i couldnt agree with you more. Just getting a colonoscopy here takes a year or more and a lot of running around.
I'm so glad you're hear and unafraid to tell your story. Be blessed! 🌹👍
Thank you so much for sharing your story. You are truly an inspiration! Despite your physical, mental, and emotional ordeals, you are positive, and show such grace and strength. You are so clear and concise while speaking. Your words resonated with me deeply. I couldn’t agree more, early detection is key. God bless you. ❤
Thanks v much!
My gosh Neil you are so very well spoken and the way you explained all your symptoms was the best I have ever heard you certainly had a tuff time you had the best of Doctors thank god that’s why you are alive today. Please take care from Canada 🇨🇦
Wow! What a story and experience. So glad you're doing okay. Thanks for telling us about your amazing journey.
Thank you for sharing ❤ also your wife is a keeper 😊
Amazing story. Thank you for sharing. The part where you mentioned universal healthcare is 100% spot on. I live in the US and the #1 people go bankrupt here is due a healthcare emergency. It's an embarrassment
This is a remarkable story of your incredible health journey. Your support too from medical professionals around the world has been outstanding. I wish you the very best for the future. Thank you for sharing.
Thank you for sharing your incredible journey, you have given me what I need to continue. I’m at the very beginning of my journey, I know something is wrong and with the support of lots of people I can battle this. All the best to you and your family.
Wow Thank You for sharing your story. You are a walking miracle. I have been experiencing pain that doesn’t go away for almost 2 years don’t know what it is yet but next week I’m having the colonoscopy and an endoscopy so I’ll find out what’s going on.
My God grant you a long life with no more cancer cells to ever be found in your body again. Blessings to you and your family.
A simple, heartfelt Thank You! This video has been so truthful & incredibly helpful as I start my journey through treatment. Wishing you all the best
Thanks so much - wishing you all the very best with your treatment 💪
Thank you for sharing your story with everyone. Because of this video I will be making an appt with my Dr tomorrow as I have EVERY symptom that you listed at the end of your video. The only thing that is different is that i have a distended stomach that is so hard. I have been to the Dr. but they just told me to lose weight. I’m not overweight except for this darn stomach!
Thank you again.
Just cut out sugar, bread, alcohol and potatoes. Eat more roughage, drink plenty water and get active. You will lose your stomach
Neil you are an amazing person. To tell such a harrowing story with such Grace and calmness. You've been through a lot and I send you healing vibes from Hawaii. I'm grateful to hear your story and I'm so sorry for how you suffered. May you have happiness peace and joy and may you see your children grow up and get married children
Thanks Marilyn that’s really kind
Best of health in your future. You’ve earned it! Your an inspiration, sir.
Thanks Peggy!
May the lord God continue to heal you . Please be strong 🙏🙏🙏
I am so sorry. What a strong person you are. Nothing, but best wishes for you. Your story is very moving. Honestly, thank you for your story. I hope it gives some level of comfort for anyone going through this. I know it has me.
What a truly amazing way to give off positivity. I hope in my lifetime I can have an ounce of what you have.
Thanks Andy!
I salute you for having the willpower to overcome such a painful condition which is very painful even to imagine. I pray to God that you stay hale and healthy and be there for and with your family.
I also pray that every being on this earth remain hale and healthy, and care for each other.
Gosh your story hit me so hard!! Thanks for sharing so much!!
Thank YOU for your eloquent, lucid, intelligent summary of your terrible journey with colo-rectal cancer. You will probably have saved many lives with this. Stay well and enjoy your life.
Sarah thanks that’s really kind 😊
Thank you so much! You’re awesome for sharing in such a way I can understand without feeling a panic.
You are doing amazing ❤
That was an amazing video. It's definitely food for thought. If only some people will take note .I have diverticulitis of the bowel and it has given me many problems. Now I I'm due for bowl resection.. livr long my friend ❤
What an incredible and inspirational human story. Awful to hear you went through so much but also a testament to today's medical advances. Without the experts you certainly would not have been here. So glad you can try and enjoy yourself and make the most of life. Totally true - everyone needs to think B.O.W.E.L. Blood always needs to be checked and ANYTHING that seems unusual and persists and certainly if it feels something is worse. Glad you got there. Reminder to everyone, you are never too young. In fact someone I know in early 40s has recently been diagnosed with bowl cancer. It is uncommon in younger people but not entirely rare!
Thank you very much for sharing your story.
I got hooked from beginning to end.
I hope & pray that your complete recovery continues.
A friend of mine just got back here in Netherlands from almost 6months of treatment in Heidelberg Germany. He had colon cancer. Was treated but..2yrs later it came back. He was clean for 6years but then came back again last May. After all the pain & struggle to survive he is again now back to Netherlands. He is going to be 57 in 3 weeks time.
It's moving to see the pain behind a smiling face. I pray for you for healthy and long life. the UN is fortunate to have a mission leader like you.
Wow you are really really a fabulous man you've been through so much I admire you like you just would not believe it just seemed like it was one thing after another for you and you just kept going I cried I was so touched by your story on your bravery and everything that you've been through I could have been crying thank you for sharing this and helping other people maybe not to go through what you did or not as bad anyway thank God you're still here and thank you so much for this video God bless