Praying for you, this new treatment sounds great!! 🎉 I'm in America, and we do technically have Dotty cookies, but they're packaged in supermarkets as chocolate chip cookies with M&M's on top, they don't have a cool name. It's actually my favorite cookie lol
Hey girl I am using the same bowel programme for gp/Eds and it has been the best and biggest god send to me, it did take me a while to get it approved because of where I live but bought the equipment from a retailer before, nice having not to pay for refills all the time. Life is embarrassing, something I can’t quite get over but never forget that your so wonderful for putting your story out there ❤ been following you since your first video and the trajectory of my Ed’s was very close with yours nice having someone on the same journey, thanks for keeping me sane ❤
Hey lovely 💕🌺 I am so glad to hear it can be approved 😊 thank you for your reassuring words. This disease can be so hard to deal with at times 😞 sending you lots of love 💕
Hi, thanks for the update. I hope the treatment goes well for you. x The cookie looked great. It’s nice that you were able to have solid food for a change. We have those kind of cookies with Smarties on in the UK too. On Monday I had a small amount of food from a roast dinner & was in absolute agony for hours afterwards. The worst part was feeling sick. I also have a lot of trouble with going to no 2. Sorry if this is TMI but a couple of days ago I had VERY bad nausea & then realised that I hadn’t had a no 2 for over 2 weeks. Once I’d been I was ok. (I can’t believe I’m telling you this.😀) I really hate having this. It’s awful. Take care. x
Keeping my fingers crossed that the irrigation system will help you. You are a strong woman. Always impressed by your positivity despite all your struggles.
Hoping this will help! We have monster cookies, which might be sort of similar, but with fewer dots. Do you still go to that Karen Diner? That place looked fun!
Hahaha yeah that Dottie cookie had more than usual. I haven't been to Karen's diner again I think it's more of a you go once sort of thing. Lots of love 💕
Dot cookies? I think we have something similar. It's just a cookie with chocolate candies in it, right? The name varies depending on what candy is used. Well, I hope your GI doctor can help you with this. I'm struggling myself. My doctor is out on maternity leave, and the one covering her patients is making me jump through hoops and trying to pass me off to someone else.
Dotty cookies are cookies with smarties on them. Not sure if you have smarties where you are. I am really sorry to hear that you have been struggling 😢
Thank you much for this. I'm having similar but undiagnosed bowel issues (diagnosed gastroperesis). I'm having a terrible time with the public gastros. He has been absolutely horrible. I now have to wait another 4.5 months just wait for the decision on which feeding tube or TPN I'll get. Back to the video, I'm at the point of researching catheters with water that allows you to literally pump water in. Is that what this device is? (You dont have to share). Ive tried finding the one you mentioned, but it only brings up the colostomy products. My gastros arent even helping with my severe (dangerous at times) dehydration and lack of nutrients, so he wont help with this. I am so glad you have good gastros
Hey lovely 🌺 I am really sorry to hear that you are struggling 😞 I would suggest seeing another gastro. You may be able to find a list of gastros in your country that treat gastroparesis. An online local support group may be helpful also to ask who to see. A lot of these treatments require specialist opinion so I would strongly recommend talking with a gastro first
Praying for you, this new treatment sounds great!! 🎉 I'm in America, and we do technically have Dotty cookies, but they're packaged in supermarkets as chocolate chip cookies with M&M's on top, they don't have a cool name. It's actually my favorite cookie lol
That sounds like the ones 🌺 ours here come mostly in cafes. The cafe culture in Australia is pretty big
Hey girl I am using the same bowel programme for gp/Eds and it has been the best and biggest god send to me, it did take me a while to get it approved because of where I live but bought the equipment from a retailer before, nice having not to pay for refills all the time. Life is embarrassing, something I can’t quite get over but never forget that your so wonderful for putting your story out there ❤ been following you since your first video and the trajectory of my Ed’s was very close with yours nice having someone on the same journey, thanks for keeping me sane ❤
Hey lovely 💕🌺 I am so glad to hear it can be approved 😊 thank you for your reassuring words. This disease can be so hard to deal with at times 😞 sending you lots of love 💕
Hi, thanks for the update. I hope the treatment goes well for you. x
The cookie looked great. It’s nice that you were able to have solid food for a change. We have those kind of cookies with Smarties on in the UK too.
On Monday I had a small amount of food from a roast dinner & was in absolute agony for hours afterwards. The worst part was feeling sick.
I also have a lot of trouble with going to no 2. Sorry if this is TMI but a couple of days ago I had VERY bad nausea & then realised that I hadn’t had a no 2 for over 2 weeks. Once I’d been I was ok. (I can’t believe I’m telling you this.😀)
I really hate having this. It’s awful.
Take care. x
I am so sorry to hear that you have been struggling so much too 😔 lots of love to you 💕
Keeping my fingers crossed that the irrigation system will help you. You are a strong woman. Always impressed by your positivity despite all your struggles.
Thank you lovely 💖 It can be pretty hard don't get me wrong 😔 but I think after years of this I've started to except it a little more. Lots of love 💕
Hoping this will help!
We have monster cookies, which might be sort of similar, but with fewer dots.
Do you still go to that Karen Diner? That place looked fun!
Hahaha yeah that Dottie cookie had more than usual. I haven't been to Karen's diner again I think it's more of a you go once sort of thing. Lots of love 💕
I ended up with a C-tube because my colon stopped working and I was in hospital every other week for a year. It was been a huge game changer.
They have been talking about a C-tube for me too. I have been having the same issue
Dot cookies? I think we have something similar. It's just a cookie with chocolate candies in it, right? The name varies depending on what candy is used. Well, I hope your GI doctor can help you with this. I'm struggling myself. My doctor is out on maternity leave, and the one covering her patients is making me jump through hoops and trying to pass me off to someone else.
Dotty cookies are cookies with smarties on them. Not sure if you have smarties where you are. I am really sorry to hear that you have been struggling 😢
@@AmitysLife We have smarties. We also have M&M as well. Candy coated chocolate for the win, lol.
Thank you much for this. I'm having similar but undiagnosed bowel issues (diagnosed gastroperesis). I'm having a terrible time with the public gastros. He has been absolutely horrible. I now have to wait another 4.5 months just wait for the decision on which feeding tube or TPN I'll get. Back to the video, I'm at the point of researching catheters with water that allows you to literally pump water in. Is that what this device is? (You dont have to share). Ive tried finding the one you mentioned, but it only brings up the colostomy products.
My gastros arent even helping with my severe (dangerous at times) dehydration and lack of nutrients, so he wont help with this.
I am so glad you have good gastros
Hey lovely 🌺 I am really sorry to hear that you are struggling 😞 I would suggest seeing another gastro. You may be able to find a list of gastros in your country that treat gastroparesis. An online local support group may be helpful also to ask who to see. A lot of these treatments require specialist opinion so I would strongly recommend talking with a gastro first
@@AmitysLife thank you.