Sayin it like it is.
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- Опубліковано 28 вер 2024
- My physical and mental state on the last day of my second last round of treatment.
TIMELINE:
AUG 2, 2023 - Diagnosed with brain tumor.
AUG 4, 2023 - Surgery to remove brain tumor.
SEP 14 to OCT 30 2023 - Radiotherapy/Chemotherapy.
NOV 2023 - Four weeks without treatment, followed by an MRI.
DEC 2023 to MAY 2024 - Six months of taking a stronger chemotherapy pill five days per month.
On August 2, 2023, after experiencing increasingly severe symptoms, I was diagnosed with a grade 4 astrocytoma brain tumor.
On August 4, I had surgery to remove the tumor. I was told they removed ninety-five percent of it.
For six weeks from September 14 2023, I underwent five-days-a-week of precision radiation treatment, at the same time as taking 125mg of temozolomide pills daily.
This was followed by five weeks of no treatment.
I am currently 5 months into 6 months of further cancer treatment, in which I am taking temozolomide pills for five days of each month. This dose is 330mg, which is 195mg stronger than the dose I took during radiation.
I am fighting this from my end with a healthy ketogenic diet, and an exercise regime which includes weights, walking and swimming.
If anyone wants to share any helpful tips, success stories, or knows of research on the metabolic approach to cancer that I could be involved in, please leave a comment, or send me an email:
storyofjanesbrain@gmail.com
You are amazing . You are doing so well battling this every day. It is agony physically and mentally but it will end. I think you are a beautiful gentle person and your inner spirit shines out from your “stinky” vessel. Every day you live through this suffering is one day closer to getting back to normality. I’ve just seen your other video too and glad to see that you are a better place. I honestly think you are doing as well as anyone can who has to go through this. Keep going my friend
Thank you Fiona. Your kind and encouraging words mean the world to me. They’re like medicine.
Love your candor. Best wishes for continued healing and gentle moments during this challenging time.
Thank you for your kind words :)
Sending love and healing vibes!
Thanks Deborah! I feel so good today.
I’m having a day like this too. Chemotherapy on hold because pneumonia. Every time I think I’m finally getting something close to normal again it feels like something new comes along and sets me back. At least my wind has always been terrible so nothing to lose there. 😊
My mother just texted me to say, one day at a time. I used to think that saying was meaningless, but with my mind doing its usual thing of running into the future and trying to predict and troubleshoot, it means something to me now! Let’s hope in another few days we’ll both be in a better space, mentally and physically:)
I have seen a lot of videos from doctors here on UA-cam explaining how to starve Cancer.I wish you all the best God bless you
Bless you darling feel your home with tranquility and be as close as you can with your family sending all my love 🌹💐🙏
You are not being winey .You are just being real .My husband had Glioblastoma. Everyday he had to deal with more unpleasant changes. It is a ordeal to be ill without your mind playing tricks on you and all the bodily things that go with it. I wish I could just hold your hand and tell you "the people that love you will keep loving you no matter what," When you are having the worst day they will be glad that you are still with them. Remember ,we were all stinky babies once, and we were still loved.
You are so lovely
Thank you for sharing your journey. This is a difficult part of the treatment and you earned some whine time, as I call it.. I'm also going to just put this out there myself.....do with it as you please....but I'd ask that you take a few quiet moments and start a conversation with God. Ask him to take this load off your mind, to give you a big dose of his compassion and strength to keep going. Do a quick check in with him each day or many times a day, he wants to help you. I'll start the conversation for you, I'll let him know you might be reaching out. 🙂🙂🙂
I would suggest you try some acupuncture. I was an acupuncturist long time ago and now retired. In my life, I have seen that acupuncture can do a lot of good for people who are ill. Chemo use toxic material. Acupuncture does not use any drug and not put the body under any further stress. If the treatment is right, the result could be soon felt. So you do not go to an acupuncture for 30 or 40 times before you see any result. Try it three times, if no improvement, find another acupuncturist who can do the job better. I am not telling you not to follow the Western medicine way for your health. You can have Western treatment and acupuncture at the same time provided your body is not get to the stage of too fragile for any additional load. We need more than one tool to fix our house so it is reasonable that we need more tools to fix our body. It is the old Chinese classic medical text says that if the treatment is right, you should not feel worse. When you use acupuncture to treat any illnesses, that would be what the patient feels. If the patient feels bad, the treatment is wrong. That is my experience too.
Thank you for being so honest about what your going through. I'm sure it will help others in not feeling so alone in what their going through.
🙏🏻Trust & have Faith❤
Praying for you now
Jane, this sounds so profoundly anguished. It's okay, we do imagine that your situation may even be harder than you're letting on. You will persevere, and I can see Jason's love for you. Our prayers for you...
Thank you @nuchbutter. I feel in a fairly constant state of anguish at the moment, but it certainly ratchets up when I feel so unwell. It gets worse when I can’t exercise and get out into nature. Jason is such a blessing. Thank you for your prayers. There must be a purpose in all of this. I just can’t see it yet.
I do hope you and your family are happy and well and living a nice peaceful life.
Sending you love and healing vibes. You are a warrior! ❤❤
Thanks Jennifer 🥰
I'm sorry to see you feeling so down. I really am. I'm not going to say try to keep your chin up.
I thought about you a couple of days ago.
I mentioned before my brother has glioblastoma . He's had his first round of chemo he's feeling great at the moment. But i think as time goes by he is going to suffer with it.
I get down myself sometimes then i feel bad when i think of my brother .
What lifts my mood greatly is gardening but in the uk we have had rain continuously for months.
Well i hope to see you again soon and hopefully you will be feeling a bit better. Jean 🎉
My mama had glioblastoma. Prayer shot your way ♥️
Thanks for your kind words Jean. Gardening is a mood lifter for me too. Fresh air, mild exercise, plus being creative - or even just weeding. Once I start it’s hard to stop, I enjoy it so much.
I’m glad your brother is handling his treatment well. I hope he continues to. My thoughts are with him, and with you.
The chemo affects the bones/bone marrow. I almost always wake up with elbow pain, aching feet, etc.
Yes I produce some noxious gas when I’m on the drug too. But I use it as a tool to bother my parents 😂. I get loose stool especially if I drink too much coffee or red wine. My first week I resorted to man diapers, but I don’t feel like a stinky rat (unless I haven’t showered in a week, a fairly common occurrence).
@CB43 thanks for that! You made me laugh.
Haha no problem. And I would add always push yourself to shower and feel clean and get out of the house every day. Although I’m a hypocrite: I’m a “gym rat” with a home gym, and I’m sometimes home for days at a time. My excuse is that it’s still cold here in Canada 😂.
You’re so right! My shower today changed my life!!
Try not to be so hard on yourself... famous last words because we're all the same. It's not easy but things will improve 🩷