“Why cant it be follow the butterflies?” made me laugh! Happy Birthday! Every year over 30 is a major achievement with CF isn’t it. Hope you had a lovely day with your little boy :)
Congratulations I have cystic fibrosis myself and I'm turning 32 in may feeling healthy and smashing life like urself definitely true inspiration for people and giving people an insight too cystic fibrosis respect too u Congratulations on turning 31 too 😀🥳
Happy birthday Jet. Just my opinion but I'd take anything the medical profession says with a grain of salt. They treat everyone as a generalisation/stereotype rather than an individual that can have subjective outcomes. You may have touched on this in a previous video and hopefully not too much of a stupid question but Trikafta wasn't an option?
Hey! So I am very much flying solo right now other than lung medication & IV antibiotics, because NOTHING was improving & heading downwards fast and everyone was shrugging and I was desperate so I made a few decisions against their advice and I’ve managed to keep myself a little more stable, only stable but that’s better than dead! Trikafta is a big no for me, and I don’t say that lightly as it did wonders for my lungs but everything else was deteriorating & I wasn’t leaving the house.
“Why cant it be follow the butterflies?” made me laugh!
Happy Birthday! Every year over 30 is a major achievement with CF isn’t it. Hope you had a lovely day with your little boy :)
Wishing you a belated happy birthday and many more to come. 💝💝💝💝💝💝💝
Congratulations I have cystic fibrosis myself and I'm turning 32 in may feeling healthy and smashing life like urself definitely true inspiration for people and giving people an insight too cystic fibrosis respect too u Congratulations on turning 31 too 😀🥳
happy birthday! Can't wait to wish you many more!
Thank you so much!!❤
Happy Birthday Jet, thanks for the update. Keep smiling - you are doing so well. Xx
Thanks so much!🎉
Happy birthday Jet. Just my opinion but I'd take anything the medical profession says with a grain of salt. They treat everyone as a generalisation/stereotype rather than an individual that can have subjective outcomes. You may have touched on this in a previous video and hopefully not too much of a stupid question but Trikafta wasn't an option?
Hey! So I am very much flying solo right now other than lung medication & IV antibiotics, because NOTHING was improving & heading downwards fast and everyone was shrugging and I was desperate so I made a few decisions against their advice and I’ve managed to keep myself a little more stable, only stable but that’s better than dead! Trikafta is a big no for me, and I don’t say that lightly as it did wonders for my lungs but everything else was deteriorating & I wasn’t leaving the house.