Hi hoa I so love your doggie looks lassie from the film's! Your lucky in a way to get snow we very rarely get snow where I live in the UK! And the further south we are the less snow! I will comment more on your video later as my sight not the best! ☹️☹️
My dog is actually a miniature version of a lassie it’s a Shetland sheepdog! Any other year I would have considered myself lucky to have snow but it’s hard with the wheelchair I am stuck inside 😅
@@hoaslife please forgive me sometimes my autism makes me say the wrong thing! I should the snow always looks lovely & not that your lucky to have it! I can only imagine what life is like for you using a wheelchair all the time & have to stay indoors! I think it's because I am disabled myself that I care about you and the paralysis! It can't be easy for you one minute your ok then paralyzed but at least you know the warning signs! And there is more chance when your run down! You work so hard doing your school work! I hope this comes out how I mean to say it but because your so mature & know what you want out of life I forget your still at school! All my life I have been a shy person especially around women so I don't want you to think it's a chat up line as that would not be right but you are very attractive! You have a pretty face! And the glasses suit you! Plus your hair is nice! If you have told me this before please forgive me as my brain fog affects my memory! But at what age did you first get paralyzed from the neck down? Thank you 🤗🤗
It worries me that the paralysis symptoms are getting worse,do you think it's because you work to hard & your body is tired? And your video's are not boring I watch them all the way through! Seeing you in the wheelchair all the time makes me thinks how unfair life can be! It's a shame you have not got a wheelchair that can be used in the snow! Hope next year if the doctors are right they might be able to sort out your EDS I so would love to see you walking again! I seen video of paralyzed people using leg braces! My left side is weak because of my brain injury! Hence now the hand brace,and leg brace! My heart goes out to you at Christmas time I expect you want to be out having a good time at parties & dancing! But I am here to chat if you need me 💟💟💟🌹🌹
Your so nice it’s nice having someone who understands what I live ! For my paralysis my neurologist said it’s normal for someone with FND and it is affected by fatigue. I don’t think it’s unfair I feel like my life is this way because I needed to go through that to become me.
Your so nice it’s nice having someone who understands what I live ! For my paralysis my neurologist said it’s normal for someone with FND and it is affected by fatigue. I don’t think it’s unfair I feel like my life is this way because I needed to go through that to become me. I hope you will have a wonderful Christmas with your loved once even with the global situation.
@@hoaslife I have always been told things happen for a reason! How did you tube know when they showed me your channel I would be interested! I was only 2 yrs older than you when I had the brain injury! To wake up 3 days later having a machine breathing for me & only my head would move! My mum was upset,my dad had died 3 yrs earlier from a DVT after having a hip operation! I just cried & cried! I did not want to be a burden on my mum if I stayed like this! The nurses had to do everything for me! That was the first time I had a catheter & nappy like a baby! I had a rigid collar with my breathing tube attached to it! I had to blink once for yes & twice for no! The good thing was they never had to operate on my head! But they were worried about a bone in my neck hence me wearing a neck brace again as my heads gone floppy! As the weeks went on I came off the vent for a few minutes a day! But always stayed on at night! The physio's worked on my hands & legs! My hands were splinted to keep them open! After a couple of months I came off the vent! I could not speak! But like you I could sit in a wheelchair! They put braces on my legs so I could stand! My hands then stayed open all the time & I had speech therapy like I had when I went deaf! I got to walk on crutches! And after 18 mths I was ok again! That's when I must have first been autistic! I had to write things down still do! Brain damage affect my moods I still cry for no reason! And a few years later I started to lose my hearing & got hearing aids! So have had them for at least 30 yrs or so! But it left me with a weak left side! My neck,arm and leg are affected! For some reason I trust you enough to ramble,I know others can read the posts! But I wanted you to see your not alone! I may not be 18 but I know what your going through,seeing you in the wheelchair brings back memories for me! I remember my chair was loaned to me & had a head restraint where I could not move my head & had to keep looking forward & my legs were strapped to the chair! With a urine bag strapped to my leg like now! The only difference is you have quite a bit of movement in your chair & a motor to drive you along! What sticks in my mind when I was allowed to be strapped in to my wheelchair with this portable machine breathing for me was people staring at me! My arms & legs strapped to the chair! Being pushed out in to the hospital garden! Sorry for going on and on that's why I care what happens to you! I would hate for that to be you as your such a nice kind person 😭😭😭😭😭
Hi hoa I so love your doggie looks lassie from the film's! Your lucky in a way to get snow we very rarely get snow where I live in the UK! And the further south we are the less snow! I will comment more on your video later as my sight not the best! ☹️☹️
My dog is actually a miniature version of a lassie it’s a Shetland sheepdog! Any other year I would have considered myself lucky to have snow but it’s hard with the wheelchair I am stuck inside 😅
@@hoaslife please forgive me sometimes my autism makes me say the wrong thing! I should the snow always looks lovely & not that your lucky to have it! I can only imagine what life is like for you using a wheelchair all the time & have to stay indoors! I think it's because I am disabled myself that I care about you and the paralysis! It can't be easy for you one minute your ok then paralyzed but at least you know the warning signs! And there is more chance when your run down! You work so hard doing your school work! I hope this comes out how I mean to say it but because your so mature & know what you want out of life I forget your still at school! All my life I have been a shy person especially around women so I don't want you to think it's a chat up line as that would not be right but you are very attractive! You have a pretty face! And the glasses suit you! Plus your hair is nice! If you have told me this before please forgive me as my brain fog affects my memory! But at what age did you first get paralyzed from the neck down? Thank you 🤗🤗
It worries me that the paralysis symptoms are getting worse,do you think it's because you work to hard & your body is tired? And your video's are not boring I watch them all the way through! Seeing you in the wheelchair all the time makes me thinks how unfair life can be! It's a shame you have not got a wheelchair that can be used in the snow! Hope next year if the doctors are right they might be able to sort out your EDS I so would love to see you walking again! I seen video of paralyzed people using leg braces! My left side is weak because of my brain injury! Hence now the hand brace,and leg brace! My heart goes out to you at Christmas time I expect you want to be out having a good time at parties & dancing! But I am here to chat if you need me 💟💟💟🌹🌹
Your so nice it’s nice having someone who understands what I live ! For my paralysis my neurologist said it’s normal for someone with FND and it is affected by fatigue. I don’t think it’s unfair I feel like my life is this way because I needed to go through that to become me.
Your so nice it’s nice having someone who understands what I live ! For my paralysis my neurologist said it’s normal for someone with FND and it is affected by fatigue. I don’t think it’s unfair I feel like my life is this way because I needed to go through that to become me. I hope you will have a wonderful Christmas with your loved once even with the global situation.
@@hoaslife I have always been told things happen for a reason! How did you tube know when they showed me your channel I would be interested! I was only 2 yrs older than you when I had the brain injury! To wake up 3 days later having a machine breathing for me & only my head would move! My mum was upset,my dad had died 3 yrs earlier from a DVT after having a hip operation! I just cried & cried! I did not want to be a burden on my mum if I stayed like this! The nurses had to do everything for me! That was the first time I had a catheter & nappy like a baby! I had a rigid collar with my breathing tube attached to it! I had to blink once for yes & twice for no!
The good thing was they never had to operate on my head! But they were worried about a bone in my neck hence me wearing a neck brace again as my heads gone floppy! As the weeks went on I came off the vent for a few minutes a day! But always stayed on at night! The physio's worked on my hands & legs! My hands were splinted to keep them open! After a couple of months I came off the vent! I could not speak! But like you I could sit in a wheelchair! They put braces on my legs so I could stand! My hands then stayed open all the time & I had speech therapy like I had when I went deaf! I got to walk on crutches! And after 18 mths I was ok again! That's when I must have first been autistic! I had to write things down still do! Brain damage affect my moods I still cry for no reason! And a few years later I started to lose my hearing & got hearing aids! So have had them for at least 30 yrs or so! But it left me with a weak left side! My neck,arm and leg are affected! For some reason I trust you enough to ramble,I know others can read the posts! But I wanted you to see your not alone! I may not be 18 but I know what your going through,seeing you in the wheelchair brings back memories for me! I remember my chair was loaned to me & had a head restraint where I could not move my head & had to keep looking forward & my legs were strapped to the chair! With a urine bag strapped to my leg like now! The only difference is you have quite a bit of movement in your chair & a motor to drive you along!
What sticks in my mind when I was allowed to be strapped in to my wheelchair with this portable machine breathing for me was people staring at me! My arms & legs strapped to the chair! Being pushed out in to the hospital garden! Sorry for going on and on that's why I care what happens to you! I would hate for that to be you as your such a nice kind person 😭😭😭😭😭