I don’t know if you’ll see this or not, but I am currently going through different tests as my doctors and I suspect ms. I have recently had a couple panic attacks and have had a couple “episodes” of dissociation/derealization not feeling like I’m in my own skin/ experiencing everything in slow mo. Hugs to you. And thank you for sharing your heart and experiences
LOL the part about being prepared to die and then being like ok?? i relate so hard. a year ago my doctors thought i was going to die because the lesions were so severe and in dangerous places. unfortunately for me, i was left disabled even though it was my first attack :( ‘ MS took a good chunk of my vision. I still struggle with panic and depression over it. please keep up with your videos, they have made me feel less alone and less crazy for the things i feel ❤️
Hi, I just stumbled on your channel and’s I wanted to wish you the best of luck and a good outcome with your illness. I will keep in my prayers. God bless!
Just happened upon your videos. Going on 33 years for me now. Basically no symptoms other than some tinnitus, but some horrible attacks and recoveries. Thinking more and more about going south for stem cell treatment. Wishing you well.
I so enjoy your videos! You're so sweet and genuine. I was diagnosed this past June and during that flare had significant anxiety and feelings of depression. Fortunately for me I only had a handful of of panic attacks. My diagnosis story is different than yours of course. I found out I had MS within a day of my first clinical attack. I was so blinded sided that I struggled with thoughts like "if I had MS these last couple years without knowing it, what else is wrong with me!?" I still struggle with this new kind of health anxiety. Anyways, I do feel dissociated sometimes but that's not something that's new for me. I had felt that off and on for most of my life. It's tends to happen when I experience a significant life change like when I move homes, and when I had my two girls. It tends to get better with time.
It is very helpful to know that I’m not alone in this, thank you for sharing your experience. It makes sense that it comes about in times of significant change…
I was diagnosed last June, too! I totally feel the same way--I was diagnosed quickly after optic neuritis, but ended up piecing some anxiety earlier in the pandemic and sleep problems to my MS. I'll go ahead and say that's why I got mostly B's in college, too ;)
The worst part is definately how my brain feels 🤪Hope yours feels better soon like your hands ! Stress and overdoing it definately make things worse.Feeling emotionally numb is sad when your used to feeling things in a big way.But on the bright side you have terrific personality !
I am newly diagnosed with MS and I am in a similar boat. I have fought depression and anxiety before my diagnosis and now that I understand the why behind those feelings, I’m waiting for the depression to come back. It almost feels like the calm before the storm. Hang in there, we got your back.
A call before the storm is the perfect way to describe it. Thank you for sharing, I wish you the best in your MS journey and also at here for you if you need anything 💕
I adore your plants and that they are thriving! I'm glad your hands are doing better as well :) I have anxiety and depression and have since I was 14 or so (I'm now 30) there are times when my anxiety is super high and I'm having panic attacks all the time and then I go times with no panic attacks and I'm just waiting for one to happen which sucks too. This year has been hard on me health wise and mentally and emotionally as well and I'm hoping next year will bring good things to us both!
I feel exactly this strange kind of dissociation, you nailed it Sarah by the description of not living in my own skin...ya its very hard to describe but I feel exactly the same in my brain...I guess it is due to the shock of diagnosis, treatment journey and living and watching for the symptoms almost every day, with tons of blended feelings of hope, and disappointment, optimism and anxiety. I hope this feelings party stabilise and we just get to get back to our normal selves again!
I can definitely relate to your feeling dissociated. 2021 has been a tough year for me as well, as I've been diagnosed with anti-MOG disease (kind of MS-like but where inflammation is confined to the spinal cord and optic nerves). Thanks to medication things seems to be stabilising, but now the fear and anxiety that I experienced for months have been replaced by this numbness or apathy, I don't know... Maybe it's a consequence of stress. But I'm hopeful that with time things will get better. By the way, I enjoy your videos because I love your laugh :-) Lots of good luck! Ciao
Ocrevus made me feel disassociated as well. It also effects my mobility. MS hit me hard in 2020 after the death of my Dad. I was about to be in a wheelchair. I don’t really remember much of the first half of 2021. I am in the middle of switching to Tysabri. Hoping that works better for me. Keep fighting, keep going…. 🧡
Hi! I love your videos. I relate to your story so much. And I can assure you that you are so strong... Even though you face all those struggles, you always smile... That is strength. That is power... I wish I could be like you.♥
I love your new videos explaining your doctors appointments. Can you explain that test where they tickle your feet? Like what do they do and is it really ticklish?
I have bipolar disorder, which causes high highs and low lows. Without them, yeah, it can feel very confusing. I hope that if you haven't yet, you can maybe see a therapist to help you deal
Hey! Thanks, I have two big videos coming out about a year with MS and interviewing my family about the impact on them and I’ve had trouble editing through grad school. Looking to put them out in early March. Things are going well thanks for checking in! Hope things are well with you too!
I don’t know if you’ll see this or not, but I am currently going through different tests as my doctors and I suspect ms. I have recently had a couple panic attacks and have had a couple “episodes” of dissociation/derealization not feeling like I’m in my own skin/ experiencing everything in slow mo. Hugs to you. And thank you for sharing your heart and experiences
LOL the part about being prepared to die and then being like ok?? i relate so hard. a year ago my doctors thought i was going to die because the lesions were so severe and in dangerous places. unfortunately for me, i was left disabled even though it was my first attack :( ‘
MS took a good chunk of my vision. I still struggle with panic and depression over it. please keep up with your videos, they have made me feel less alone and less crazy for the things i feel ❤️
You are never alone ❤️❤️❤️
Hi, I just stumbled on your channel and’s I wanted to wish you the best of luck and a good outcome with your illness. I will keep in my prayers. God bless!
Just happened upon your videos. Going on 33 years for me now. Basically no symptoms other than some tinnitus, but some horrible attacks and recoveries.
Thinking more and more about going south for stem cell treatment.
Wishing you well.
I so enjoy your videos! You're so sweet and genuine. I was diagnosed this past June and during that flare had significant anxiety and feelings of depression. Fortunately for me I only had a handful of of panic attacks. My diagnosis story is different than yours of course. I found out I had MS within a day of my first clinical attack. I was so blinded sided that I struggled with thoughts like "if I had MS these last couple years without knowing it, what else is wrong with me!?" I still struggle with this new kind of health anxiety. Anyways, I do feel dissociated sometimes but that's not something that's new for me. I had felt that off and on for most of my life. It's tends to happen when I experience a significant life change like when I move homes, and when I had my two girls. It tends to get better with time.
It is very helpful to know that I’m not alone in this, thank you for sharing your experience. It makes sense that it comes about in times of significant change…
I was diagnosed last June, too! I totally feel the same way--I was diagnosed quickly after optic neuritis, but ended up piecing some anxiety earlier in the pandemic and sleep problems to my MS. I'll go ahead and say that's why I got mostly B's in college, too ;)
Yes it is normal to feel numb ! I’ve had anxiety and panic attacks for so long I can’t even imagine life without it, I can’t even drink coffee
The worst part is definately how my brain feels 🤪Hope yours feels better soon like your hands ! Stress and overdoing it definately make things worse.Feeling emotionally numb is sad when your used to feeling things in a big way.But on the bright side you have terrific personality !
I am newly diagnosed with MS and I am in a similar boat. I have fought depression and anxiety before my diagnosis and now that I understand the why behind those feelings, I’m waiting for the depression to come back. It almost feels like the calm before the storm. Hang in there, we got your back.
A call before the storm is the perfect way to describe it. Thank you for sharing, I wish you the best in your MS journey and also at here for you if you need anything 💕
I adore your plants and that they are thriving! I'm glad your hands are doing better as well :)
I have anxiety and depression and have since I was 14 or so (I'm now 30) there are times when my anxiety is super high and I'm having panic attacks all the time and then I go times with no panic attacks and I'm just waiting for one to happen which sucks too. This year has been hard on me health wise and mentally and emotionally as well and I'm hoping next year will bring good things to us both!
Thank you Kaity! I wish the best for you this next year 💕
I feel exactly this strange kind of dissociation, you nailed it Sarah by the description of not living in my own skin...ya its very hard to describe but I feel exactly the same in my brain...I guess it is due to the shock of diagnosis, treatment journey and living and watching for the symptoms almost every day, with tons of blended feelings of hope, and disappointment, optimism and anxiety. I hope this feelings party stabilise and we just get to get back to our normal selves again!
Me too 💕
You are incredibly brave!
Love your videos, love your realness, love how you share your raw emotions and thoughts, so relatable😊❤️🤗
I can definitely relate to your feeling dissociated. 2021 has been a tough year for me as well, as I've been diagnosed with anti-MOG disease (kind of MS-like but where inflammation is confined to the spinal cord and optic nerves). Thanks to medication things seems to be stabilising, but now the fear and anxiety that I experienced for months have been replaced by this numbness or apathy, I don't know... Maybe it's a consequence of stress. But I'm hopeful that with time things will get better. By the way, I enjoy your videos because I love your laugh :-) Lots of good luck! Ciao
I’m sorry to hear about your diagnosis 💕. Apathy is a great word to describe it. Thank you! I will laugh all the time just for you
Ocrevus made me feel disassociated as well. It also effects my mobility. MS hit me hard in 2020 after the death of my Dad. I was about to be in a wheelchair. I don’t really remember much of the first half of 2021. I am in the middle of switching to Tysabri. Hoping that works better for me. Keep fighting, keep going…. 🧡
Wishing you the absolute best, it sounds like you are quite the fighter!
You're the best! I hope your doing great. Greatings from Spain :)
Hi Spain!!!
Hi! I love your videos. I relate to your story so much. And I can assure you that you are so strong... Even though you face all those struggles, you always smile... That is strength. That is power... I wish I could be like you.♥
I love your new videos explaining your doctors appointments.
Can you explain that test where they tickle your feet?
Like what do they do and is it really ticklish?
Hope you're doing well! I also have emotional/mind numbness. Can you give us an update video?
I have bipolar disorder, which causes high highs and low lows. Without them, yeah, it can feel very confusing. I hope that if you haven't yet, you can maybe see a therapist to help you deal
(if you want)
I love my therapist! Thank you for the suggestion 💕
Your so beautiful inside and out
You haven’t posted in a while. I hope your doing well in school and with life.
Hey! Thanks, I have two big videos coming out about a year with MS and interviewing my family about the impact on them and I’ve had trouble editing through grad school. Looking to put them out in early March. Things are going well thanks for checking in! Hope things are well with you too!
This disease is rare in India,,I think