Birth of Steve Gleason's son shortly after Lou Gehrig's disease diagnosis inspired project. For more on this story, click here: abcnews.go.com/blogs/entertain...
Having ALS is bad enough, I am going into my 5th yr. I feel like there is a giant Boa constrictor that is wrapping itself around me starting at my feet. So far it has taken my legs. Arms are weak. I live alone and feel so alone. But the worse part is that because of financial situation I cannot make the best of what time is left. So I wish you Mr Gleason all the joy that can still be yours. Bless you and your family always. Sincerely Diane
a lot of us dont realize how blessed we really are. Just to have the ability to talk is a blessing. Really mesmerizing. God bless this guy and his family.
Your so right! Whatever life throws at us, lets march on! Life hands you lemons... But how do you march on with having ALS? A year ago. I had a stroke, it effected the right side of my body and my short term memory, but i can still physically walk ( with the aid of a cane ) and talk.
My mom was so active before she was diagnosed with an aggressive form of als. She is such a different person now. I miss her so much!!!! Please pray for her everyone cause prayer changes things!!!
IlllIIlIlIIllIIIIllIlII i can pray for god to give the researchers the wisdom to find a cure for this disease and although i havent given specifaclly to the als foundation i always give my 10% to good causes to be a blessing in this world and sometimes i go out of my way and give a little more
This was hard to watch. My dad has been diagnosed with ALS. He too has an acceptance that is hard to understand... When talking with my family after the diagnosis, someone asked "What do we do now?!" My reply was we make sweet memories...
No, you pray to God for healing, and God will lead you to eating raw fruits and leafy greens only. Sunlight, sleep when it is dark, reduce stress, live simple and clean, etccc
My dad was only able to eat for a couple more months after diagnosis... Wouldn't of mattered... No amount of good eating will stop ALS from taking over every inch of your body. I lost my dad this past weekend, so it is strange to see a reply to this right now... The only cure for ALS is death... My dad is now free from ALS and all of its burdens... I prayed to God for peace, comfort, and acceptance... Everyone is different though and should pray for what is in their heart... Everything you mentioned MAY help for ALS not to be triggered or prolong it from being triggered even, but it is in a person's DNA... Once it has been triggered and becomes active, no amount of living right, no amount of drugs, no amount of prayers will keep death from coming... Sorry if any of this sounds hateful, but my emotions are raw right now... We haven't even had his service yet.
I'm deeply sorry for your loss. But he is finally at peace. However, I don't understand why you think we can't stop a disease by completely changing our lifestyle and food if you have not tried it. Many people with MS and ALS were able to reverse their symptoms and remain symptom FREE as long as they stick to a strict regimen. Raw fruits do affect how our DNA functions.
Alynna Bee you're mistaken, once ALS impacts your body, the damage done at that point in time is irreversible. I can't speak for ms as I don't have enough knowledge, but as someone with genetic ALS in my family I know certain things. Maybe there are theories about how certain lifestyle and diet changes can help, but there is no concrete proof.
Alynna: I have done massive research on the disease. There is no reversing the effects of ALS. Alyssa hit the nail on the head when she used the term theories... That is all you are stating... A theory... Do you know by making statements like this to people with ALS or their families, you may somehow give them false hope... That is just cruel if you ask me. I hope that you or no one you know ever has to deal with ALS, but it will probably be only then that you realize just how wrong you are.
i suffer terrible depression but that is all. recently started watching videos on ALS/MND. The bravery it takes to overcome these daily obstacles, and more and more each day, completely blows my mind and constantly brings me to tears. I feel like I'm wasting my life even tho I have zero physical issues.
Jumped into the UA-cam rabbit hole and now my day is shot. Sad and depressed. I hope all of these gents Steve Gleason and Steve Smith make the best of there life
Good friends are hard to find Steve is blessed for having Fujita as he's soul brother. Mr.Fujita Steve is very fortunate to have you as a friend as he does also.
This is so sad to watch. My heart goes not only for Steve Gleason but to all who are suffering and enduring this so call ALS. Hes sweet n humble. Thumbs up for his wife Heartbreaking specially those who are married with kids. 🇲🇾
My son plays on New Orleans Spartans FC alongside Rivers, he’s a true inspiration and his father is as well, it’s heartwarming to see the terrible condition Steve is in but still turns up to the games to see rivers play. Pure joy 😊
Although it is terrible what happened to Steve it can be turned to somewhat of a positive because he is a popular figure that can bring attention to this disease.
Gleason, Frates, Hawking, and many more that diagnose with this terrible disease. Just stay strong & keep fighting, we will support you & fight this battle along your side.
My prayers go out to Steve and his family and anyone else dealing with this difficult situation. I cried watching it. Steve is a very inspiring man. I find it interesting that most people who get this and MS are males of caucasian descent. I'm taking a shot in the dark here, but maybe there is a gene mutation that causes people to overabsorb vitamin D (a survival trait from ancestors being in low light northern areas) and then build up too much calcium and phosphorous and then this causes vitamin B6 depletion, which then causes an autoimmune reaction that starts attacking areas where there is too much calcium and phosphorous build up like the myelin sheath. I have type 1 diabetes, rheumatoid arthritis and fibromyalgia and chronic fatigue and I find that I have less pain and fatigue if I stay on a very low calcium and low phosphorous diet and limit my time in the sun. Basically I eat a quasi paleo diet, so I eat extra lean beef (high in phosphorous, but also very high in the 8 essential amino acids so it benefits more than it costs nutrition wise) with organic coconut oil on it with organic steamed or baked potatoes and a plain salad of Romaine lettuce (high in folate), tomato (high in lycopene), avocado (high in glutathione) and extra virgin organic coconut oil (no vinegar because the acid can attract more calcium into the soft tissue contributing to "soft tissue calcification" I also sometimes put walnuts on the salad. Walnuts are high in phytic acid which helps remove excess phosphorous from the body. It is also important to note, that though Steve enjoys being on the computer, as his access to the world, the lights on it can deplete folate (as does all fluorescent light) so it would be good to spend some time wearing protective glasses. Folate is one of the top three important B vitamins that can help calm an overactive/reactive immune system, along with B6 and B12. Anyone reading this, you might think I am crazy, but since it seems that there is not much help for the condition at this point or much research, it's fair game for anyone to try to guess at what might be happening. I do wish it was not happening. It is not right for this to happen to anyone.
Good to know he is so resilient and good to know how resources such as family, friends, and money to buy technology and care" can make a hug impact in our lives, even facing such a debilitating disease.
It was the 60's and I watched the most vivacious woman, one of my mother's best friends taken slowly down with ALS. Hard to believe that 60 years later and no cure? The gift Steve Gleason and his wife have given to the 5,000 or so who suffer with the eye control computer technology to generate speech is STAGGERING. SUCH A CONTRIBUTION. One small reason God placed Steve on this earth? Losing muscle control is horrific enough, but he gave them all the gift of speech. Wow. And....what, may I ask - are the rest of us doing to help humanity? Humbled indeed. God Bless you Steve.
No, it is not... ALS is ALS.... Sometimes misdiagnosed as the other, but 2 totally different things! Ashley, I am very sorry that your family has to go through this... My daddy had ALS too.
For some reason this video came up in my feed today, and then I saw this comment from 5 years ago and my heart hurt for you, Ashley. I hope you're doing well.
Wow this guy is amazing! I know this is not the place to ask but I am fascinated by the technology. Can someone pls tell me how that computer speaker for him? It's amazing!
Mr and Mrs Gleason may the Lord shine into your lives and give you strength having als is about the worst disease ever ..my brother Rick caram has it. After my brother went on remission 2 times with cancer he has to face this cruel disease. But one thing I do know is God does things his way and as long as you focus on the love of Jesus he will give you everything you need..when I see you Mr and mrs Gleason my eyes get watery and my heart starts to hurt because I wish I could take all this hurt away but just keep the Lord by your side and believe that one day we will all be together as one...by the way you have a wonderful family .
BTW, Gleason retired before the Saints won the Super Bowl. He did get a ring though, (and he deserved it), that block did more to this region than words can express.
Watching this story, im reminded of a song by Daryl Hall called, " Someone like you". A line, " Only you could ever know, how hard it was for me to let you go..."
NeuralStem is a company using stem cells to treat ALS. The treatment is still in clinical trials, but so far it has proven safe and effective. It's not only halted the disease in some patients, but reversed it. For more information, such as how you or a loved one can take part in the trials, you can check NeuralStem's website. To anyone suffering from ALS, I hope you can find help, and that science will soon provide a cure accessible to everyone. Hang in there.
My dad had ALS Bulbar, which is where the muscles start shutting down in the mouth and throat. He lost alot of his ability to think and talk. Lost over 100 pounds in a year. Yet he was still able to walk until the day he died. The VA killed him by giving him too much of a dosage of sedation medication.
+Cajun Spice I don't know what you're referencing to, but as of right now there is a 0% survival rate for ALS. there is no treatment out there to cure this awful disease.
God is good no matter what we go through he bring something amazing out of it! Praise Jesus.. God bless you Steve for all your doing never give up we love you!
just googled it cos i was curious to know too. He's still alive asi of 2019 as far as i can find and was awarded another award. Him and wife had a second kid recently too
He's doing well, considering. He's on a vent, but still living life. January 2021. God is using this man for amazing things yet. Steve is quite an amazing dude!
If I get als I'm not gonna do anything to prolong my life and suffering. I won't get a feeding tube or go on a ventilator. I'm just gonna accept it and go ahead and die. My family and friends will just have to understand that dying was my decision. It isn't their choice.
Thanks so much Dr Alaho Olu on UA-cam first of all for who you are as a person thank you for the wonderful work that you do for people in general no matter where you are I will always listen to your podcast and refer people to you because you care about people and the human body I listen to other people but you talk about the true disturbances disorders that means things that are out of order in the human system thanks 🙏 for curing my Amyotrophic lateral Sclerosis disease (ALS)….
If I had the power to heal ALS with a simple touch that's all I'd do for the rest of my life. I'd travel the world in search of ALS sufferers to cure and I'd ask for nothing in return. I wouldn't care about their race, religion, ethnic background or politics. I wouldn't care about what they might have done in the past or what they might do in the future. I'd heal them for the simple act of healing them and nothing else. I'd never take a day off. God could easily do all this and more. For God banishing ALS in an instant would be effortless. But God never cures anyone with ALS. God's just being mysterious.
Having ALS is bad enough, I am going into my 5th yr. I feel like there is a giant Boa constrictor that is wrapping itself around me starting at my feet. So far it has taken my legs. Arms are weak. I live alone and feel so alone. But the worse part is that because of financial situation I cannot make the best of what time is left. So I wish you Mr Gleason all the joy that can still be yours. Bless you and your family always. Sincerely Diane
i hope there is a support community near you. if i had the financial means, i would help you. bless your heart.
Sorry hun all is well
Hope you haven’t given up and are still fighting Diane
Man, I wish you all the joy there is. Remember Jesus is with you everyday.
als a lousy situation 💪💪💪
a lot of us dont realize how blessed we really are. Just to have the ability to talk is a blessing. Really mesmerizing. God bless this guy and his family.
Your so right! Whatever life throws at us, lets march on! Life hands you lemons... But how do you march on with having ALS? A year ago. I had a stroke, it effected the right side of my body and my short term memory, but i can still physically walk ( with the aid of a cane ) and talk.
My mom was so active before she was diagnosed with an aggressive form of als. She is such a different person now. I miss her so much!!!! Please pray for her everyone cause prayer changes things!!!
Cathy Anderson stay strong prayers your ways
God Bless Gleason and any one who has ALS. I am hoping for a day that there can be a cure found for this.
agreed
@Jesus is Fake you will be judged when you die
My dad died in 97 of ALS it's such a horrible disease. Prayers to him & his family. ❤🙏
I pray for steve and his family and any person or family who has to deal with this
What a class act .the entire group of friends ,relatives,and teammates. How cool is this.
Wow he's an amazing guy I really hope they can find a cure I'm going to be praying
Same here
Valerie Martinez stop praying and start PAYING the ALS foundation to fund the cure research.
IlllIIlIlIIllIIIIllIlII i can pray for god to give the researchers the wisdom to find a cure for this disease and although i havent given specifaclly to the als foundation i always give my 10% to good causes to be a blessing in this world and sometimes i go out of my way and give a little more
+Valerie Martinez ALS is Lyme Disease but the CDC and government cover it up.
+Valerie Martinez Praying does nothing but help you feel better, I'm sorry but it's true.
+Cajun Spice, you're an idiot.
This was hard to watch. My dad has been diagnosed with ALS. He too has an acceptance that is hard to understand... When talking with my family after the diagnosis, someone asked "What do we do now?!" My reply was we make sweet memories...
No, you pray to God for healing, and God will lead you to eating raw fruits and leafy greens only. Sunlight, sleep when it is dark, reduce stress, live simple and clean, etccc
My dad was only able to eat for a couple more months after diagnosis... Wouldn't of mattered... No amount of good eating will stop ALS from taking over every inch of your body. I lost my dad this past weekend, so it is strange to see a reply to this right now... The only cure for ALS is death... My dad is now free from ALS and all of its burdens... I prayed to God for peace, comfort, and acceptance... Everyone is different though and should pray for what is in their heart... Everything you mentioned MAY help for ALS not to be triggered or prolong it from being triggered even, but it is in a person's DNA... Once it has been triggered and becomes active, no amount of living right, no amount of drugs, no amount of prayers will keep death from coming... Sorry if any of this sounds hateful, but my emotions are raw right now... We haven't even had his service yet.
I'm deeply sorry for your loss. But he is finally at peace. However, I don't understand why you think we can't stop a disease by completely changing our lifestyle and food if you have not tried it. Many people with MS and ALS were able to reverse their symptoms and remain symptom FREE as long as they stick to a strict regimen. Raw fruits do affect how our DNA functions.
Alynna Bee you're mistaken, once ALS impacts your body, the damage done at that point in time is irreversible. I can't speak for ms as I don't have enough knowledge, but as someone with genetic ALS in my family I know certain things. Maybe there are theories about how certain lifestyle and diet changes can help, but there is no concrete proof.
Alynna: I have done massive research on the disease. There is no reversing the effects of ALS. Alyssa hit the nail on the head when she used the term theories... That is all you are stating... A theory... Do you know by making statements like this to people with ALS or their families, you may somehow give them false hope... That is just cruel if you ask me. I hope that you or no one you know ever has to deal with ALS, but it will probably be only then that you realize just how wrong you are.
i started crying watching this (it means alot for me cuz i am a die hard saints fan) i will keep you in my prayers steve , and everyone else with ALS
😪 who dat
i suffer terrible depression but that is all. recently started watching videos on ALS/MND. The bravery it takes to overcome these daily obstacles, and more and more each day, completely blows my mind and constantly brings me to tears. I feel like I'm wasting my life even tho I have zero physical issues.
Hope you're doing better
Wow. To go from being a star athlete, to never being able to move again...that is heartbreaking. I hate ALS
such a strong man I pray they find a cure for this disease
Jumped into the UA-cam rabbit hole and now my day is shot. Sad and depressed. I hope all of these gents Steve Gleason and Steve Smith make the best of there life
Good friends are hard to find Steve is blessed for having Fujita as he's soul brother. Mr.Fujita Steve is very fortunate to have you as a friend as he does also.
God bless him, he is an amazing person, God bless him.
This is so sad to watch. My heart goes not only for Steve Gleason but to all who are suffering and enduring this so call ALS. Hes sweet n humble. Thumbs up for his wife
Heartbreaking specially those who are married with kids. 🇲🇾
I'm sending positive vibes to the Mr. gleason and his family, Blessed Be.
My son plays on New Orleans Spartans FC alongside Rivers, he’s a true inspiration and his father is as well, it’s heartwarming to see the terrible condition Steve is in but still turns up to the games to see rivers play. Pure joy 😊
Truly showing his son how to be a man. Priceless!
This man is hero to a city, a city who needed a hero. I can't believe this ugly decease is going to take another wonderful person.
Although it is terrible what happened to Steve it can be turned to somewhat of a positive because he is a popular figure that can bring attention to this disease.
Gleason, Frates, Hawking, and many more that diagnose with this terrible disease. Just stay strong & keep fighting, we will support you & fight this battle along your side.
keep climbing those mountains steve.
praying for him and his beautiful family
God, Bless you Gleason. Love you.
Wow what a Awesome person!!! I respect him highly very inspiring . take care Steve
My prayers go out to Steve and his family and anyone else dealing with this difficult situation. I cried watching it. Steve is a very inspiring man.
I find it interesting that most people who get this and MS are males of caucasian descent. I'm taking a shot in the dark here, but maybe there is a gene mutation that causes people to overabsorb vitamin D (a survival trait from ancestors being in low light northern areas) and then build up too much calcium and phosphorous and then this causes vitamin B6 depletion, which then causes an autoimmune reaction that starts attacking areas where there is too much calcium and phosphorous build up like the myelin sheath. I have type 1 diabetes, rheumatoid arthritis and fibromyalgia and chronic fatigue and I find that I have less pain and fatigue if I stay on a very low calcium and low phosphorous diet and limit my time in the sun.
Basically I eat a quasi paleo diet, so I eat extra lean beef (high in phosphorous, but also very high in the 8 essential amino acids so it benefits more than it costs nutrition wise) with organic coconut oil on it with organic steamed or baked potatoes and a plain salad of Romaine lettuce (high in folate), tomato (high in lycopene), avocado (high in glutathione) and extra virgin organic coconut oil (no vinegar because the acid can attract more calcium into the soft tissue contributing to "soft tissue calcification" I also sometimes put walnuts on the salad. Walnuts are high in phytic acid which helps remove excess phosphorous from the body.
It is also important to note, that though Steve enjoys being on the computer, as his access to the world, the lights on it can deplete folate (as does all fluorescent light) so it would be good to spend some time wearing protective glasses. Folate is one of the top three important B vitamins that can help calm an overactive/reactive immune system, along with B6 and B12.
Anyone reading this, you might think I am crazy, but since it seems that there is not much help for the condition at this point or much research, it's fair game for anyone to try to guess at what might be happening. I do wish it was not happening. It is not right for this to happen to anyone.
Good to know he is so resilient and good to know how resources such as family, friends, and money to buy technology and care" can make a hug impact in our lives, even facing such a debilitating disease.
One word...... Inspiring
God bless him and his familly, I pray for a healing :)
Fuck this made me cry. I feel bad for anyone that has to go through this
It was the 60's and I watched the most vivacious woman, one of my mother's best friends taken slowly down with ALS. Hard to believe that 60 years later and no cure? The gift Steve Gleason and his wife have given to the 5,000 or so who suffer with the eye control computer technology to generate speech is STAGGERING. SUCH A CONTRIBUTION. One small reason God placed Steve on this earth? Losing muscle control is horrific enough, but he gave them all the gift of speech. Wow. And....what, may I ask - are the rest of us doing to help humanity? Humbled indeed. God Bless you Steve.
8 years later and we are still lucky to have Steve
my stepdad has ALS I am only 9 its hard for me
today he got a hospital bed
+ashley davis please make sure your dad is tested for Lyme Disease. ALS is Lyme Disease and there is treatement
No, it is not... ALS is ALS.... Sometimes misdiagnosed as the other, but 2 totally different things! Ashley, I am very sorry that your family has to go through this... My daddy had ALS too.
@@k8lynmae why would you say that??????
For some reason this video came up in my feed today, and then I saw this comment from 5 years ago and my heart hurt for you, Ashley. I hope you're doing well.
@Jesus is Fake no jesus is real, i have ALS too but Jesus is not Santa Claus.
and then are those who live and die from this alone and in silence and without amazing last experiences like these
A very brave man.
Payers to your family 🙏🙏
I was at that MNF game in '06. One of the greatest nights of my life...
IM CRYING!!!!
If I won a millon dollors I know who I'm giving it to
And sorry about my grammer
Wow this guy is amazing!
I know this is not the place to ask but I am fascinated by the technology. Can someone pls tell me how that computer speaker for him? It's amazing!
Try googling it.
All the best for him!!! I know pretty well ALS... due to my father... he passed away 1,5 year ago...
My mother-in-law lost a battle to ALS last year. It's a horrible disease. Sending him positive thoughts and prayers
Sorry for your lost, both of you.
god bless you and your sister.
very sorry.
WE LOVE YOU STEVE!!!! WHO DAT!!!!
Mr and Mrs Gleason may the Lord shine into your lives and give you strength having als is about the worst disease ever ..my brother Rick caram has it. After my brother went on remission 2 times with cancer he has to face this cruel disease. But one thing I do know is God does things his way and as long as you focus on the love of Jesus he will give you everything you need..when I see you Mr and mrs Gleason my eyes get watery and my heart starts to hurt because I wish I could take all this hurt away but just keep the Lord by your side and believe that one day we will all be together as one...by the way you have a wonderful family .
BTW, Gleason retired before the Saints won the Super Bowl. He did get a ring though, (and he deserved it), that block did more to this region than words can express.
God does this some time to see how strong you are to see if you have faith or you just give up
Watching this story, im reminded of a song by Daryl Hall called, " Someone like you". A line, " Only you could ever know, how hard it was for me to let you go..."
NeuralStem is a company using stem cells to treat ALS. The treatment is still in clinical trials, but so far it has proven safe and effective. It's not only halted the disease in some patients, but reversed it. For more information, such as how you or a loved one can take part in the trials, you can check NeuralStem's website. To anyone suffering from ALS, I hope you can find help, and that science will soon provide a cure accessible to everyone. Hang in there.
Stephen Hillenburg would've needed this :-(
My dad had ALS Bulbar, which is where the muscles start shutting down in the mouth and throat. He lost alot of his ability to think and talk. Lost over 100 pounds in a year. Yet he was still able to walk until the day he died. The VA killed him by giving him too much of a dosage of sedation medication.
My fucking hero.
It would be the most amazing thing if we did find a cure!
+FizzyFizzle its Lyme Disease and with treatment can get better
+Cajun Spice I don't know what you're referencing to, but as of right now there is a 0% survival rate for ALS. there is no treatment out there to cure this awful disease.
+Katelyn it's not Lyme disease???
good man my brother died of als is hard to understand
God is good no matter what we go through he bring something amazing out of it! Praise Jesus.. God bless you Steve for all your doing never give up we love you!
Five years on, we can only wonder what level (up to and including gruesome death) he has attained.
just googled it cos i was curious to know too. He's still alive asi of 2019 as far as i can find and was awarded another award. Him and wife had a second kid recently too
He's doing well, considering. He's on a vent, but still living life. January 2021. God is using this man for amazing things yet. Steve is quite an amazing dude!
@@minimedical excellent. We want him to "punch through" the limitations imposed upon him, and keep on trucking.
Maybe we will find an ALS cure. We can only hope and pray.
😢😢😢😢😢
I hope he has as many Machu Picchu as he wants. Blessings
Like, ALS is always a losing battle. So very sad.
very sad
A Falcon's fan
Who the hell disliked the video?!!!
That drunk dude who miss-clicked
I hope that the kid doesn't get it...
This is a lot like the Michael Keaton movie My Life.
So sad
No white flags! Team Gleason!
A Falcons fan probably.
If I get als I'm not gonna do anything to prolong my life and suffering. I won't get a feeding tube or go on a ventilator. I'm just gonna accept it and go ahead and die. My family and friends will just have to understand that dying was my decision. It isn't their choice.
Like and comment if you cried
☺️
hello
Thanks so much Dr Alaho Olu on UA-cam first of all for who you are as a person thank you for the wonderful work that you do for people in general no matter where you are I will always listen to your podcast and refer people to you because you care about people and the human body I listen to other people but you talk about the true disturbances disorders that means things that are out of order in the human system thanks 🙏 for curing my Amyotrophic lateral Sclerosis disease (ALS)….
Who are the 24 sshats that have this video a thumbs down ???
His wife really loves him,but shr looks like she need a long vacation
If I had the power to heal ALS with a simple touch that's all I'd do for the rest of my life. I'd travel the world in search of ALS sufferers to cure and I'd ask for nothing in return. I wouldn't care about their race, religion, ethnic background or politics. I wouldn't care about what they might have done in the past or what they might do in the future. I'd heal them for the simple act of healing them and nothing else. I'd never take a day off. God could easily do all this and more. For God banishing ALS in an instant would be effortless. But God never cures anyone with ALS. God's just being mysterious.