Vocal Cord Dysfunction & Ligamentous Cervical Instability - Ross Hauser, MD
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- Опубліковано 13 гру 2023
- Did you ever wonder who is Dr. Hauser's most complicated case? You'll meet him today while Dr. Hauser discusses vocal cord dysfunction: one of the symptoms connected to ligamentous cervical instability. Kevin, we admire your attitude of gratitude and your persistence finding answers for tough medical questions. Thank you so much for sharing your story. You're amazing and we wish you all the best in continued healing!
The Hauser Neck Center & Caring Medical Florida are located in Fort Myers, Florida in the US. We treat patients who travel to our center from all around the globe, however, please understand that we do not treat all cases. If you are looking for our team to review your case and possibly see you in our center, you can contact us through www.caringmedical.com, call us at 239-308-4773, or email info@caringmedical.com.
*Please understand, we cannot give specific physician referrals or online medical recommendations.
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**DISCLAIMER: As with any medical treatment, no guarantees or claims of cures are made as to the extent of the response to treatment that every person experiences. Every therapy/treatment has patients who experience varying levels of success and failure. Results may not be the same from patient to patient, even with a similar diagnosis, as the body’s internal status is unique to each individual.
Thank you, Dr. Hauser for truly caring and doing all you can to help us all!! I sure wish I lived close enough to see you. Bless you!!!
Thank you for the kind words - we appreciate viewers like you! We are praying for your complete healing and hope to see you in person one day!
TY kevin for sharing your journey. Best wishes to you on your journey to full health.
It’s insane how even as recent as the 90s doctors were being taught that chronic pain was caused by anxiety and depression. We really only began to emerge from the dark ages of understanding chronic pain syndromes in the last few years or so.
It is so unfortunate but we are so glad that we can now educate
This was the most helpful Thorough VCD Informational video I have found period thank you so much for explaining in depth This strongly Undiagnosed condition. I finally got diagnosed today after seeing two other allergist who just told me to take an allergy pill
Oh my goodness!!!! I can’t even begin to express how incredibly fortunate I am to come across your channel!!
I have seen doctors and no one can tell me what’s going on, supposedly the best Doctors at Duke medical!
I use to wake up, gasping for air, it would happen while I was asleep 💤 the most terrifying experience of my life unable to breathe no matter how hard I tried I couldn’t breathe! One day as I was going target with my 5 year old grandson at the time, we experienced the most horrific episode, I say we because it was terrifying for my little gut too left him having nightmares, as we were walking into target I had an attack when I say I had an attack I mean it was horrifying everyone ask what’s wrong, but I couldn’t speak all that came out of my mouth was this horrific sound as you just demonstrated in this video only a 1000 times worse, I remember going down people around me trying to help my grandson crying saying I’m loosing my grandma..,ever since I get this from time to time and they are absolutely a nightmare I feel I can’t wake up from. I am always cleaning my throat at times I go through coughing episodes where I can’t stop, followed by mucus secretion!
I had a sleep study done, which was of no help.
A couple of days ago I had my physical and while my primary care doctor was looking through my records and I was explaining to her about this issue, she said, but you have been diagnosed with VCFD vocal cord fold dysfunction!
I was relieved to finally have an answer, but nothing else was provided.
Can you recommend who I should see to get some help?
I was in Florida visiting family and had one of these episodes again terrifying and with every episode it seems to last longer and more frightening I need help!!!
Please any feedback back would be appreciated.
I’m in NC maybe you know of a doctor in this area I can contact
We are so sorry to hear that you are experiencing this however we are so grateful that you found our channel as well! Vagus nerve dysfunction can affect the larynx which can cause coughing, vocal cord dysfunction and other issues. We have an article on this topic if you'd like to take a look. caringmedical.com/prolotherapy-news/vagus-nerve-related-cervical-dysphagia-laryngeal-stenosis/
We cannot provide any referrals or give any advice especially if we have not yet seen you as a patient as we do our own exams and testing, however it would be wise to get in for a consult at a practice that has a DMX. This is a really useful way to see instability clearly!
We wish you all the best on your regenerative medicine journey and if you find that you can travel back to FL we would absolutely love to help you on your road to healing. :)
CHRONIC PAIN CREATES THE SADDEST HUMAN 😢
Chronic pain is just horrible and unfortunate, but we are so glad that we are able to help people take their lives back!
Awesome Video Doc! I never had neck issues until I came down with a bad cause of strep. Since then I have a lot of clicking,popping, and crunching in my neck along with stiffness. I’ve also came down with Iritus. The doctors can’t seem to find anything. I’ve had x-Rays but they says it’s fine. My next step would be a MRI I guess. It’s seem to have gotten better but isn’t going away and it’s been almost a year.
We are so sorry to hear that you have been dealing with this for about a year. We understand how frustrating it can be to know that something isn't right but are being told by your doctors that everything looks good. Definitely keep advocating for yourself as cervical instability is a degenerative disease meaning it doesn't just go away it actually gets worse. We hear often from patients that all the tests show nothing is wrong so we suggest getting a DMX, this is much more productive than an x-ray as it allows for the providers to see where the instability is when the body is moving!
We are praying for your healing and hope that you can find someone who will listen - if you find that you can travel to FL we would love to help you get an appointment scheduled.
My symptoms:
-throat tightness
-excess wetness, a constant feeling of there is something in my upper throat
-I can inhale, but most of the air doesn't reach lungs
-I can't get most of the air out from exhale (shallow exhales) because the bottom of the throat feels shut
-the throat feels pressurized with air when I try to exhale. during an inhalation, most of the air stays in my throat instead of getting to the lungs
-the inability to get a satisfying breath or inhalation is most severely impaired when I am in a lying flat on my back position, which is how I sleep
-every time I swallow water or any other liquid, I must burp. It's not a digestion issue because it happens every single time, even on an empty stomach. The air goes into my stomach every time I swallow a liquid
When I sleep I lay on my side. I have two pillows. The bottom one is a special neck curve pillow then the top one is a basic pillow. That way from laying on my shoulder my neck gets the right support. I do have to try different positions. Slightly move my head this way or that way and inch or so. And or tilt my head back an inch. I'm not as bad as I was 6 months ago. But physically therapy and using the electric current thing on my neck helped to get my vagus nerve working better again. Before that I was in the hospital with an infection that was shutting down my organs. During that time period I was scared I wouldn't wake up in the morning.
I have 5 bulging discs in my neck from domestic abuse 5 years ago. When I left him I got back in the gym to be healthy 3 years ago and that's when I started noticing I couldn't do certain workouts with the bar on my neck. I couldn't run because of compression. I got chiropractor adjustments. For a year and half when I started getting bad headaches. I was still able to work out I just stayed away from certain ones. Last fall my arms got a crazy neurological itch for three months and that's when I finally got the MRI of my neck. I had tried physical therapy once before that for neck pain. That's when I found out I had the builging disks and it all made sense on what I was dealing with and why being a cosmetologist was so difficult. Then my last chiropractor in February injured me. I had to do research because no doctora were able to help or answer my question. That's how I found your channel and Dr Jeffery Middletons channel. Well I had a CSF leak too. Which led to an infection. I lost my ability to swallow at time. If I sang my throat was sore for days. I was didn't know what was going on but telling doctors my symptoms and they weren't listening. They didn't even listen in the ER in the summer. But my kidneys were at a 60 pre kidney failure. I was always athletic and nothing stopped me. I was still able to barely function and still look normal so the doctor in the ER literally said you look fine. But my symptoms felt like meningitis. I had three rounds of Antibiotics but no one knew why I needed them. My thyroid stopped working and my adrenal glands were shot. Still no doctors helping. I had to pray and prayy way through and ask God to guide me to the next thing I should do for myself or the next doctor to see. I had doctor try to prescribe anxiety meds. I had a doctor say there is no way you have a CSF leak. But the base of my skull hurt extremely bad. And laying down was the only thing that made it better. After the infection in July I've just been healing. I had to quit work and quit college. I was getting a 4.0 the year before and when I got bad I couldn't focus to do homework and my memory vanished. When I told a doctor I had weird thoughts he said that it was probably from the domestic abuse I went through. But yet the year before I was fine. I was literally having to try convince doctors of things. I watched Barbara O'Neil and started trying her homeopathic ways of healing. Because again my prayer life with God he led me to everything I should do and gave me all the answers on what I was dealing with. I can relate that everyday is different. And you can be doing fine and then the next day can be way different. Just my basic house chores dishes and cooking are enough for me. I have twins boys that are 8 and a 16 year old daughter. I keep trying to have the faith I will get back to work and school. But the Nero surgeon I saw in Seattle Washington said last week that no surgical intervention is needed at this time. I can't workout at the gym I can't work and I can barely do my basic house chores. Ive struggled to keep the faith at times. But a friend of mine told me that maybe it's God's protection on me to not get surgery. I have bone spurs that cause the csf leaks. They are healed now but but if I tried to do more physical activity it would leak again. So I'm trying caster oil compresses on my neck with Frankincense to try to dissolve the bone spurs over time. I'm a single mom I have to try to provide for my kids one daym my FMLA just ran out right before Xmas. I may have to get on disability. If everyday is different and I have to be careful how can I live a normal life. So I guess disability is what I have to do for now. Trying to be grateful can get hard. This year has been the hardest year of my life. Mainly because no doctor listened. I ended up going to counseling because of it. Mainly for documentation on what I'm going through. It made me feel like a failure. That I'm basically disabled now. Everyday I watch a sermon. I have a church I go to and they are like family to me. But it's still hard. It was good to watch this video to remind myself to focus on the good things or talents I do have to offer. Now that my brain is getting back to normal after the infection and CSF leaks. I feel like I can focus better. And that's another thing. My brain MRI showed white matter on my frontal lobe. And the radiologist just wrote that it was from headaches. And he made light of it and non of my doctor's have cared about it. But I feel so forgetful. I hope and pray one day I will get back to how I felt last year before it all got bad. Even if I can't work again I just want my clarity back. It's slowly getting there.
Sorry such a long comment and there is probably a lot o left out. But I may be flying to Florida in the next year to see Dr Middleton. And Ive wanted to come see you also Dr Hauser. You and him are the only doctors that have explained exactly what I was dealing with. While my local doctora thought I was crazy. There were times I thought I was crazy too. Because of what the infection and CSF leak was doing to my brain. I praise and thank God he got me through it alive for my children's sake. I was so afraid my kids would wake up to a dead mom last summer Looking back I had every reason to be that afraid because that's how serious it was.
I live low income and money is what's stopping me from getting this handled in Florida. I have Washington state insurance Molina and they also don't cover prolotherapy. So I have to just keep praying to figure out what God wants me to do. But I thank you and appreciate you for getting your knowledge out there into the world. If only other doctors constantly continued their education the health field would be a better place. Your a great doctor and great man! God has you on this earth for a purpose and you are definitely fulfilling your calling!
Also God led me to specific stretches I needed to do for me because I know I have blood flow issues and possible cerebral spinal fluid insufficiency flow. Which you call brain dumping. Doctors keep having me do lay down imaging and I've requested upright imaging. I got one upright MRI of my neck it showed one more bulging disk than the lay down did along with stenosis of the neck and bone spurs. The angiogram, venogram and CT of my neck were laid down. The Seattle neurosurgeon said there is no reason to do upright that's for the lower back not the neck. But I wasn't about to argue with him. So this last month my angiogram, viniogram, and CT showed normal blood flow. But in my opinion of course it did because I'm laying down. That's when I sent a message in my chart asking if we could do it upright now. in Seattle they have an upright one where you can be in neutral positions or tilt to the left or right or turn your head. I live 3 hours away from Seattle. Well the next message back wasn't an answer on if we could do those. His nurse just said that there was no need for surgical intervention at this time and to go back to the pain management Dr and primary care because everything looked fine. And non of my symptoms relate to my bulging disks. So it's very frustrating to have no one I've seen in the northwest have the knowledge you and Dr Middleton have.
My symptoms list is extremely long but I have been getting better and have been having less of them. But I washed my hair wrong a couple weeks ago and it caused my neck to be sore for a week. That's not ok nor is it normal. And this is 10 months after the injury from the chiropractor. Anyways again you know what your doing more than all the doctors I've seen. So thank you for sharing. I will continue to pray about my next steps. I asked the nurse in Seattle to have Dr Nora read my message himself. Because I felt my symptoms and issues are getting overlooked. And if he can't help me to lead me to a doctor that can. He said that in my initial visit. If he couldn't help me he would send me to a doctor who could. So I almost believed in him. We'll see what happens. I also hold my phone up when I'm on it. So I'm not looking down. And I'm on my kids about looking down too 😆. To prevent them from any future neck issues.
Isn't it interesting that no doctor seems to have the answer and that x-rays, MRI's don't show anything major. I have had all the symptoms you mentioned including terrible GERD brought about my tachycardia. I lost 16lbs and was down to skin and bones. Its wasn't until I saw an AO neck chiropractor that my symptoms got better. But he doesn't have all the instruments to deal with cervical instability. I still get tachycardia or vasospasms, especially after I workout and do any repeated motions above my neck. I'm getting a second opinion from Mayo Clinic and they will have to listen to what I have to say. However I'm afraid they'll only be able to treat spinal pain and not nerve functionality. Depending on what happens in the new year, I may end up looking into Caring Medical as I do live in Florida. Take care!@@annewell7026
Sorry, I have trouble reading so couldn't read your whole post. Have you been evaluated for Eagles syndrome or had a DMX to look at your neck curve and any instabilities? it sounds like head position affects your symptoms?
Thanks for explaining VSD so well! I had questions about why it was getting worse when I get sick.
Glad we were able to help provide you with some information!
Do you ever see people that it turns out being something like MS or lupus or something
I see that question a lot in some of the FB support groups I follow for EDS and Eagles syndrome. I basically have all the symptoms of MS without the brain lesions. So an MRI can look for the brain lesions and rule out MS. Not sure about Lupus but there are a lot of overlapping symptoms from what I understand
Probably explains why when I take anxiety meds or supplements my reflux get tremendously better which leads to better breathing and speaking.
Yeah same here
I had problems breathing, similar to an asthma-fit. After consultation with a doctor and a speech therapist it seems i have this vocal cord dysfunction. I also got a mild cough from my son and am now confronted with the fact that i cannot cough anymore (i used to smoke regulary before my fit and coughing was my daily business unfortunatly). The stimulus exists, but it ends in an wheeze and it seems my tongue is cramping. how would one treat this non-coughing and is it actually a symptom of VCD?
I am glad i saw this video. I had a strong emotion one time and i started having wheezy sound. After then some weeks later i had shortness of breath and heaviness around my throat it started affecting my voice. Though i feel better now after medication but i still feel like something is stock on my throat and i have to clear all the time. What do i do to feel better
Hi Regina, we are sorry to hear that you are experiencing this. Although medication is helping now it is covering up the root cause which is likely cervical instability. Prolotherapy can be a great treatment option for those with cervical instability and we would absolutely love to help you!
I’m curious dr Hauser do you get patients that you treat and never have to come back? Like is prolotherpay good for the long term or is it just a bandaid?
Here at Caring Medical we look for the root cause of the problem, not just a bandaid! We have some great patient success stories and graduations on our website and instagram!
Can he sleep with one of those neck ring pillow things you see people use for travel ?
Hi, thanks for the question. I actually just use a small rectangular flat pillow. My head gets locked in place too much when I use any contoured pillows so I try to keep it simple.
I was diagnosed with POTS in early 2021. To date the diagnosis’s have gotten obnoxious: epicardial and microvascular endothelial dysfunction, myocardial bridge in LAD, hypoxemia/central sleep apnea, PVFM (VCD) in left and right, tirads 5 nodules, CKD, and what led me here-chronic cervical & lumbosacral radiculopathy. EMG showed C5-T1 and L5-S1 areas affected with abnormal MUAP & reduced recruitment. Currently waiting on a cervical MRI while I deal with intermittent facial drooping and entire left side arm/leg muscle weakness/numbness. If the MRI is normal, what imaging do you recommend to make sure the cervical spine is not the cause?
Look at Eagles syndrome and see if the symptoms line up with what you are experiencing. If so than see and ENT doctor can will order a CTA of head and neck for the Eagles evaluation. You should also get a DMX to look at your neck curve and any instabilities. Have you been diagnosed with hEDS or HSD?
Thanks, I actually have an ENT follow up on Monday. I don’t have any hyper-mobility but I do find the Eagle’s Syndrome interesting as my left jaw is now lower and abducts. Appreciate your response!
@@becbrew Don't be discouraged if you have a styloid and they say that it doesn't meet criteria so can't be causing your symptoms. Current criteria is only that the styloid be greater than 3.0 cm. I was denied surgery by two Florida surgeons stating that my styloid was not "elongated" and therefore could not be causing my symptoms. They couldn't have been more wrong. I am a year out form surgery now and doing fantastic. My voice is totally back to normal now
I have that.... I am having a problem with not being able to talk loudly and then with a raspy voice.. Also have AFIB, like you mentioned, and swallowing problems in initiating a swallow. Separate of that - I have a weird thing happening that my ENT said he doesn't have an answer for... When sleeping at night, I sometimes have a problem exhaling through my nose. I can inhale ok with no problems, but then on exhale it totally closes off and have to exhale through my mouth. It only happens occasionally but do you have any thoughts on that? It totally wakes me up in a panic. I know I am supposed to go to a speech pathologist but have not done so yet. Oh also... I have a curve in my neck spine - I attribute that to holding a phone in the crook of my neck when trying to type at same time as listening.
Look at Eagles syndrome and see if the symptoms line up with what you are experiencing. If so than see and ENT doctor can will order a CTA of head and neck for the Eagles evaluation. You should also get a DMX to look at your neck curve and any instabilities. Have you been diagnosed with hEDS or HSD?
@@herdmentality101 Thanks for the response. Can you explain all the acronyms? Don't know what they all mean beyond ENT. THx
Hola Doctor, como puedo contactar con usted ?vivo en España pero aqui no hay soluciones, me identifico mucho con este video, soy cantante profesional llevo 3 años muy dolorida e inabilitada. Me hicieron estilectomia en febrero 2023, añgo mejore pero no lo suficiente oara poder volver a tener mi voz bien. Me gustaria poder tener contacto y saber de qué forma puedo tener consulta con usted. Un saludo y muchas gracias por la ayuda y algo de consuelo al saber que no estamos locos... nos da con sus con sus videos la esperanza de tener solucion a éste infierno.
Thank you for sharing part of your story. We are so sorry to hear this, you can contact our office via email at info@caringmedical.com and someone from our clinical team can get to know more about your case to see if you’d be a good fit!
Yay! Another person that mentioned Ehlers-Danlos syndrome, and seems to know what it means! I've been sent to - I kid you not - about 300 specialist and tested for everything under the moon, including vcd which was positive, along with 100 other things.... so their conclusion was... stress. 😮 Lol
Not. I havd EDS and a million things they will never learn, so I'm done with having my body used for science they will never understand!
I'm going to use my voice for other things than teaching them stuff they forget the second I walk out the door while they make hundreds of thousands of dollars a year and I'm not able to work for decades. They can start paying me to show up and test me and learn from me otherwise!
We are so sorry to here this. Unfortunately we hear from a lot of our patients that they were told everything was fine, given prescriptions they didn’t need or it was anxiety and stress induced. Keep advocating for yourself - we pray that you can have complete healing!
Have you been evaluated for Eagles syndrome or had a DMX to look at your neck curve and instabilities?
I am really struggling with voice issues as well. It feels like there is a constant lump in my throat and I’m finding it really difficult to keep my voice consistent. I have physio with the nhs here on the 20th feb so I’m hoping that’ll help. I’m still saving to see you Dr, hopefully come soon.
I don’t know if I have this let me tell you what happend I was at work last year out of no where I had extreme air hunger like I couldn’t get a full breath and very tight throat I’ve had chest x ray shows I have good lungs have just come across this vid doctors say I’m other thinking and I’m fine but I was so happy then this hit me i don’t know if this is what I have but I tick lot of boxes
We would love to get you in for exams and a consult - it would better help determine why you are experiencing these symptoms and allow for us to get to the root cause of your problem!
What about bilateral vocal cord flutter?
Always best to get an evaluation!
I have eagle syndrom and undiagnosed CCI. I have sent you my symptom list. But ı haven't had an answer yet😢. If you ask me to send my ct and mrı scans, ı can send them too.. Thank you
Hi - please give us a call! We try to answer as soon as possible but have a lot of requests. You can even check your spam or junk, sometimes our responses seem to go there