Researcher uses experience with Long COVID to design study to help others with disease

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КОМЕНТАРІ • 14

  • @pattylinssen1471
    @pattylinssen1471 2 роки тому +6

    I dealt with long haul for a year after alpha 2020 infection, no fun at all, but was finally able to climb out of the hole with the help of a magnificent md/rheumatologist who specializes in functional medicine, and was herself a long hauler. this approach made a huge difference. and again when I got omicron Dec '21, after 3 vaccines and antibodies from the alpha. I would encourage all affected to seek a more holistic approach while the research community searches for more answers.

  • @MrPhotonjockey
    @MrPhotonjockey 2 роки тому +8

    Pacing isn’t a treatment though. Sun exposure/Vit D supplementation appears to help some individuals with long covid.

  • @milenashubas6306
    @milenashubas6306 2 роки тому +4

    This is literally what it feels like to have an autoimmune. You mourn the life that was once yours, you are never the same, but it’s rarely talked about. Long COvid sounds like an autoimmune reaction to me. This is very worrisome, what is this world gonna look like in a couple years with all these cases and the rates of autoimmune increasing. Scary times.

  • @gmbowdle
    @gmbowdle 2 роки тому +13

    Welcome to the world of chronic fatigue syndrome...

    • @bennym1326
      @bennym1326 2 роки тому +4

      😔
      I never knew how debilitating and unknown CFS is, until I developed long covid. I feel like I'm mourning the death of myself.

    • @micheleclark59
      @micheleclark59 2 роки тому +3

      Sounds like a combination of that and Fibromyalgia to me… then my sister who’s been a long hauler over a year was just diagnosed with Fibromyalgia by a Rheumatologist. I thought it sounded familiar…I was given that diagnosis over 15 years ago so I hear you

    • @marionharris5952
      @marionharris5952 2 роки тому +2

      Almost as bad as being dead. But we'll get through this.

  • @rbdesigner725
    @rbdesigner725 2 роки тому +4

    Hi there. I’m 11 months in and using the same method with my Garmin.
    I have a very small Facebook group doing the same led by a doctor who’s on sabbatical while long hauling.

  • @jimtsai7545
    @jimtsai7545 2 роки тому

    Julia, thank you very much for sharing your journey and your research. I wonder if there is an update to your research to help people recover from long covid. Thank you very much.

  • @occasionallygrumpy1066
    @occasionallygrumpy1066 Рік тому

    You should try to use an additional control group of myalgic encephalomyelitis patients since many of the symptoms of long covid: intolerance after exertion, loss of cognition + mental fatigue, delayed post-exertional crash, shortness of breath, muscle and body aches, are very similar to long covid. Many of doctors who have treated it for a long time are already referring to it as the original long covid.

  • @micheleclark59
    @micheleclark59 2 роки тому +3

    Anyone thinking Fibromyalgia? A lot of same symptoms… my sister has been diagnosed with it Post Covid times a year ago

  • @micheleclark59
    @micheleclark59 2 роки тому +1

    WHY would a company request blood samples from Fibromyalgia patients to check for Covid antibodies? Happened to me earlier in pandemic! See a Rheumatologist is my suggestion

  • @ttrihe10
    @ttrihe10 11 місяців тому

    had post-viral- long covid/Chronic Fatigue for six months - did a 40hr fast - and it was gone.... try it - it's like magic

  • @annetessari1004
    @annetessari1004 2 роки тому +2

    vaccinated?