👉👉👉 ✅ Come join me in my new course! 🧠 Brain Retraining 101: For ME/CFS and Long Covid Recovery. Enroll now: raelan-agle-s-school1.teachable.com/p/brain_retraining_101
I just don't know how people do it with no support. How do they even have a roof over their head when this disease prevents you from having stable employment? The depression that comes with it is the worst part. I'm traumatized by the failure that surrounds my life because the quality of my life is entirely degraded. I'm not sure getting over the stress and depression is possible when I'm drowning in medical debt and trying to raise a newborn.
Hey Miranda, you make a great point here. It's one thing knowing in theory the things that might help us and another all together finding ways to bring those things into our life. It sounds like you are facing an incredible amount right now and it's understandable if you're struggling. I think anyone would be in your shoes! I hope you have some support. Sending you all my best with this and I hope you find a way to ease your load soon 💛
Great point. I've had CFS off and on since my late twenties. I do go through periods in which I actually feel recovered, only to have it come back at some point. But besides aging, the big thing I've noticed it's having friends and a support system truly helps. Over the last five years I feel like I'm falling apart and my life with it. It's difficult to even take care of routine, daily chores/responsibilities. I feel like I need to simplify my life as much as possible but am having difficult getting there. Over the last four years I rarely see anyone anymore. I rarely ask anything of anyone and if I do, of course they want paid, which has become more difficult. I've always done things for others but find it hard to find people of the same mindset. So I end up trying to do it on my own. That only causes setback after setback. I feel like I'm caught between a rock and a hard place. I can only continue to pray and hope the Lord will give me grace and help me through these difficult times.
Hi Miranda, I totally understand. I had CFS for almost 6 years. I’m almost 100% but couldn’t work for several years. I’m getting my life back relatively quickly. I used DNRS but you can go with other brain rewiring programs of your choice. In DNRS mood elevation is incorporated as one of the pillars. Please look into it, as many many people with depression have recovered 100%! I wish you well even though I don’t know you, from the bottom of my heart. This is curable!!
🤗💐 I am sorry you have to struggle though this. I too want a baby but i realise im too ill for that and its heartbreaking. I admire and respect you for bringing the child into the world. One day at a time and dont put too much pressure on yourelf. Do as much as you can and thats all you can do. 💕
@@florarix7091 I feel your pain Flora. I m in the same situation. I m 51 now and its becoming harder. I manage on my own,and just do what I can handle. Keeping it simple,and staying at your pace is very important. God bless and stay strong.
To anyone out there, don't give up hope. No one may understand what you're going through, but you will get through this. I had it pretty bad for a long time but came out of it. Don't give up hope.
Hi there, as you state many people don't understand this horrible condition. I have had this coming on for over 40 years and it is getting worse. I am retired now but I have experienced times when I just couldn't go to work, luckily for me my boss understood a bit about my difficulties. My family and most friends can't understand my condition. My siblings keep planning things for me and it just creates a barrier that I can't fight. Somedays I just can't climb the stairs and just sit there crying wondering why I can't move. It starts with what I call " heavy head syndrome" and then the rest of my body starts to ache and I have to lie down but then I have to turn off my phones and all social media contacts. I do get out because I have a border collie and he needs regular exercise and I am lucky I can afford to hire a dog walker in the mornings.
@@Madeley-Mick It's a lonely walk, Mick. I often wonder would I have understood it if it never happened to me - perhaps not! Certainly not fully. Such is life and the human condition, I suppose. In some ways, you get a hard lesson on what it is to live and the nature of suffering, and there's some value in that. Best wishes.
1. Wholistic approach 2. Supporting immune system (avoid toxins, flush lots of water) 3. Connection with family and friends 4. Dont over medicate 5. Plenty of rest and sleep 6. Healthy diet, omit processed foods, omit sugar, flour , Some ate meat some didn't. 7. No need to calorie count 8. Avoid living in fight or flight mode 9. Heal stress response 10. Elicit happiness 11. Gratitude for the illness, it can teach you a lot. 12. Change mindset around what is possible. 13. See changes as opportunity. 14. Work on healing your identity. Be compassionate towards yourself. 🙏
Obviously she hasn’t had it for very long. Over 40 years here. Pretty much no friends or family left, since they all think that it’s “just being lazy” and “needing to think positively” instead of having an actual illness.
Such great info! My friend got Stage 4 melanoma cancer at at 24. Doctors said he had one year to live. He had 100% faith that he would heal. It was amazing. I thought he was in denial. 6 months later he was not only cancer free, his bones and lunges which were supposed to have holes in them, looked as if he never had any cancer at all! Doctors called it a miracle and maybe it was but I think his positive mindset had a part to play in it.
definitely. Doctors are always saying "that's just a placebo". But the wise ones are saying "we need to create placebo-maximized medicine" (!!). That's where the doctor says things to EVOKE the Placebo response, instead of the Nocebo response - which is the opposite and happens a LOT...like a bad spell they cast on the patient. PS. If you google "the X pill" you'll find something that's ALL about evoking the placebo response - openly - people are told its just a sugar pill, but it still seems to change their lives!!
That's amazing, I'm a cancer survivor and I have a theory about dealing with stress, which no one talks about. Common theme I've noticed with cancer patients, as well as myself, a life of chronic stress and toxic people
My sister had total faith that she was going to ‘beat cancer’, and she did twice, and then it killed her. It’s not because she didn’t try hard enough, sometimes you win, sometimes you don’t.
I just got to the point I don't want to socialize. I have a boyfriend who I am so so lucky for, and the few times I get out I chat shortly with folks at the store. I call, txt, email, message NOBODY
Problem with CFS/ME is that many people do ALL these things and still don’t get better. I’m following a healthy diet, sleeping well, meditating daily, setting firmer boundaries with people, taking lots of supplements, tried reverse therapy. Since august I am still not much better and can’t do sports like I used to.
Have you done any work on your gene set up, gene expression, nutritional requirements, possible mould colonisation? All these things can give you a real understanding about “you”. Your healthy diet might not be having the effect you expect, you could still be very deficient in some nutritional needs or even creating more problems by the food you eat For me, my immune system is suddenly reacting to lots of healthy foods I’ve eaten for years - broccoli, grapefruit, oats, nuts, the list is long! By cutting them out I have felt a gradual reduction in inflammation. Mould tests revealed I had extremely high levels of 2 toxins, wreaking havoc with all of my body systems. A functional medicine practitioner is helping me through this. Gene expression testing Confirms the CFS/ME diagnosis. Still work in progress but progress nonetheless 🤞🏻
I have used all of the things you mention to get well, in addition a plant food based high carb low fat diet plus celery juice. Also meditation. After 5 years of this I started year round wild swimming, which seemed to bring all the other things together. After 15-20 years of ME ,I'm well, and have climbed my first mountain in 20 years. Btw I'm 61 😁
Sorry to be ageist, but being in my 50 that's brilliant to hear that recovery is not only for the under 50. Congratulations, I wish you plenty of more mountain climbing and many happy things
@@kathleenmay3530 I'm guessing "wild swimming" would be swimming in lakes, rivers, streams and the ocean - wherever you find a body of water in nature surrounded by plenty of fresh air. In Vancouver, BC there is a Hotel / Spa with an outdoor heated salt water pool, I would count that as wild swimming (fresh air, no chlorine and no ozone as typically found in city recreation pools.). In Harrison Hot Springs, BC, Canada there is a Hotel and also a Public Pool for soaking in the local mineral waters - not wild but close to it.
We are under incredible stress here in the New York area. The cost of housing, food, insurance, etc is overwhelming. Many live paycheck to paycheck. That alone causes anxiety, stress, fatigue!! I’m a nurse and I have to work. I’m thinking of changing careers but I’ve done this for 25 years. I’m ready to run away from this area and move south. My body is constantly in pain, I’m exhausted for years. Nothing helps.
I recovered from long term Lyme Disease which became chronic fatigue/ME (the names are irrelevant really) about two years ago. I still have to be careful and manage myself differently to how I once did. Virtually everything you mention in the video resonates with with the steps I took to recover. I was helped enormously by attending an NHS rehab course for 12 weeks which introduced me to the vagus nerve and really opened my eyes to the damage I had caused, unwittingly, by living a high stress, high carb/high sugar, western lifestyle. I wish I knew then what I know now. Great video for anyone who thinks they might not be able to recover.
So much great information ! I am looking forward to buying the book “Cured.” It is released next year in Canada. I have started to implement many of these changes in my life. I am 30, I have had fibro and Hashimotos for 10 years, and chronic fatigue for 3. The change that started my healing is changing my perspective. Perfectionism and past trauma lived with me everyday. I have to check these things everyday. Today I feel strong. I am building up my strength and stamina through yoga and gardening. I have come to a place where I feel grateful for what these illnesses have taught me about life. I have learned that these illnesses are not some sort of punishment, that my mind does not need to be in torment forever because it is self inflected. Life is not black and white anymore, but it is colourful. My body was telling me I needed to change myself. To take care and nourish myself. To love myself. I am important. And no matter what happens, I am strong enough and brave enough to handle it.
Sorry to burst your bubble but there is no cure for CFS/ME. You can help symptoms and you can "recover" naturally over time, but there is no magic cure for this illness. I am an expert. I have had it 32 years now. I thought I was fully recovered, especially after having felt 100% excellent for 8 years and then I was hit with another relapse out of nowhere. Read my comment above. Good luck.
@@cw7368 I thought I was fully recovered after feeling 100% Excellent for 8 years after my last relapse, but sure enough , out of nowhere I got hit with a relapse again and now it's been 3 months of feeling awful, but I am pulling out of it. I did every single thing mentioned in this video and also have done a LOT more. Holistics, nutritional, exercise, diet, herbal, colonics, detox, acupuncture, psychology ect. ect. ect. you name it I have tried it. I am an expert on the subject of CFS/ME as I got it 32 years ago in 1988. But my relapse still happened and it does not go away spontaneously. And I did nothing out of the ordinary to trigger it. No stress, no cold or virus ect. Unfortunately it stays in remission in our system and some people feel great for years and others not so fortunate. There is no magic cure for CFS/ME though some people do recover naturally over time and some people are helped with their symptoms. I have tried everything on the planet to "cure" my CFS/ME but nothing has made it completely go away or make relapses go away any quicker. Once we get it it is always with us in our system yet for some people it does luckily go into remission for long periods of time until it rears its' ugly head again to remind us it is with us for the rest of our lives. Oh and one time I did the best detox and cleansing program on the planet and took the herbs and supplements that came with it. I eliminated 42 feet of mucoid plaque from my colon, I fasted the last week of the cleanse. Then I stayed an organic vegetarian for one year after the cleanse. It did nothing to make me feel any better or make my relapse go away any quicker or cure my CFS/ME. I have tried everything I tell you. There is no cure at this point and time for CFS/ME. No magic cure, though it can go into remission and symptoms can be helped.
The thing not mentioned is someones life situation, stability, finances, id get better quickly with peace and quiet - but i cant control that, as i type now, there has been 5 door slams - !!!
I suffer daily with debilitating Chronic Disease, but as an immigrant with access to very few resources, family support and no sense of community, I find this list really devastating - these things are simply not accessible to many of us who do not have the privilege of time, financial support, family support or the space and money to invest in removing ourselves from the ‘rat race’ to heal. We are stuck just trying to stay above water…this list is hard to hear - now I am certain there is no hope 😞
Because I have chronic fatigue syndrome; all that I can do is Rest & Sleep, -that is all that this illness allows me to do, so could you explain how Rest & Sleep help chronic fatigue syndrome? That part doesn’t make any sense to me so far.
I stumbled across that on a different channel and actually when your body is in fight or flight mode you cannot rest. It is a vicious cycle because all you can do in those moments is -be desperate. That is why it is crucial to reprogram your brain- and as ridiculous as it sounds tell yourself over and over again that you are not sick. out loud. Your brain needs to believe it to stop producing symptoms.
Definitely resonates with my quick recovery! I did a lot of lymph massage ("abhyanga", Ayurvedic massage), ate easy to digest kitchari (lentils, rice and spices), and realized the illness was the beginning of my transformation into something new and better! :D
This kind of recovery is wonderful when you have that level of financial stability and support. My last 30 years have been an unpredictable roller coaster. Literally. Been back and forth from completely bedbound, unable to speak to working very physical jobs.
I liquidated everything I had and maxed my credit cards. Nobody could take me in. I bought a house with that money (plus some LTD from work) and now live with my boyfriend and 2 cats. We live off his SSI. It's extreme but we are now so blessed. I applied for credit card forgiveness. I am over 40k in debt I can't pay but have a house with no mortgage I can live in until I heal well enough to work again. It has gotten SO MUCH better since setting myself up this way. I admit my boyfriend helped immensely in ensuring I could get out and we get a house. I bought the first affordable one I could get in a safe neighborhood. I was lucky to have the stamina even for that. I hope you find a way. Don't let anyone judge you and keep your plans safe and to yourself. ❤
I recently was diagnosed with CFS after the disease relapsed again after getting Covid. One of my doctors ordered an autonomic nerve test and it showed abnormalities with my parasympathetic function (basically a malfunctioning vagus nerve). I'm now determined to get my body out of fight or flight mode and return to homeostasis to give my body a fair chance at healing.
@@katrinaoliver4167 ua-cam.com/video/L1HCG3BGK8I/v-deo.html ua-cam.com/video/LnV3Q2xIb1U/v-deo.html These exercises really helped me. Could notice a difference in anxiety from one day to another.
I havent heard of that - but as CBT therapist and a person with CFS for 28 years, I intentionally stimulate my PSNS via yoga, progressive muscle relaxation, meditation, and use of steam room and sauna, gentle massage, and i would add, although no expert - cold water therapy. In fact about 24 years ago my motto to myself was 'the achillies heel of CFS is progressive muscle relaxation'. PMR targets the vagal nerve, and PSNS. In addtion to this - the other gigantuntuan impact was a low carb diet - removal of all processed food. Check out Dr Chris Palmer - harvard psychiatrist on cell mitochondria, sugar, processed foods. Cell mitochondira make energy - and also serotonin. So energy improves. I am listening to this womans video and her rediculous description of oxytocin and healing - sounds like a reiki practioner - incidentally that is not a bad practice either for stimulating the soothing system - or PSNS. Charlatan big time. Selling hope. I wouldnt believe anything out her mouth.
super helpful. i love how you condense useful information and present it so clearly. finding your channel marked the beginning of my new CFS recovery initiative, and in the last two months i've gone from feeling about 55% to around 80%. thank you Raelan
Yep, these are the things I've narrowed it down to under my own steam. Getting away from toxic people is number 1 for me. The stress response has to be dealt with and the inflammation addressed early on. When I dealt with these, my healing has come along really well. Great video, I will get that book I think, thank you x
Thanks for sharing this, Joy. It took me a long time to fully appreciate these things but wow are they important! Glad you enjoyed the video and I hope you like the book also 💫
I understand that this video is trying to help. However, two major issues with CFS/ME are insomnia and not being supported by people who don't believe it to be a real illness. It's great to show stories of hope, but please consider how it can create a feeling of hopelessness when people don't have these things.
The vast majority of people around you will not believe it to be a real illness, you have to accept the hard truth of that and not expect support or understanding from them, turn inwards and learn to self comfort and stand firm in the knowledge of your own truth. One or two people will eventually arrive in your life who do comfort and empathise. Cfs/me puts the autonomic nervous system into overdrive, hence the insomnia. I found Pranayama( yogic breathing exercises/yoga Nedra) immensely helpful in bringing it back in line and enabling sleep. Many guided practises on line. Difficult to stay with it when you are in full flare but you will find improvement. Alcohol is absolute and instant poison, a neurotoxin, exacerbating a neuro inflamatory condition. I found mushroom supplements most helpful, Lions mane, also weekly micro dose of psilocybin seemed to help enormously with pain, inflammation, cognitive difficulties and sleep
This is wonderful. I now realise I need to be assertive and compassionate because the major stress comes from aggressive family members that I actually would rather not deal with. Assertiveness makes it easier and less traumatic. I was recently diagnosed with Bile salt malabsorption, something that’s quite under diagnosed and so reducing fat, particularly saturated, has helped a lot. Thank you fo4 your channel xxx
Hey Cat! Good for you for being assertive and setting your boundaries. I completely agree - those energy vampires have to go! Or at the very least start behaving themselves around us 😅 Thanks for sharing a bit of your experience - it's always interesting and helpful 💫
Excellent, thank you. One thing I've noticed is how comments from other people go very deep into my unconscious. eg. I'm suffering from CFS and I've heard people say that you can never get over it, it always comes back. It really helps having people like you saying it is possible to heal.
Great video. I started my healing journey when I saw the illness as a gift. It's a bit like forgiving people who have wronged you, let go of the anger and resentment and move forward on a learning journey to a better you. I now say to myself I don't want to be "healthy" like I was before, I'm redefining what healthy is. Loved the point about identity and compassion. Keep up the good work : )
Raelan, I somehow stumbled upon this video and your channel and I must say you are a breath of fresh air. The points you bring up in this video are so vital not only for the healing of the individual but for society as a whole. What a world we could create if only we all became aware of such principles and began applying them, please keep up the great work and much love.
All these points I have found to be true, still working on the healing my own identity! Progress is definitely not linear. Everyone’s journey is such an individual one. Xx
Really want to add the Gupta programme to the list. It is a wonderful brain retraining programme that has helped me so much. Online programme beautifully done. Coaches very sensitive and professional. Cost reasonable. Give it a go.
It all sounds so simple when you break it down. But most of the time your changing your whole life, your whole being! Recovery takes resilience and openness! Thanks for another great video!
I went no contact with everyone toxic or difficult I knew, and even friends of friends as they were unable to be supportive and understanding. I have my boyfriend. I have my cats. I have myself. For me a huge part of it has been mental duress dealing with toxic people. I learned to tolerate in my childhood and had to unlearn it to get healthy. Im not 100% yet but after 4.5 years, I am able to sleep well and do my own shopping and housekeeping. I even went camping recently. ❤ Stay strong and be good to yourself.
Hello Raelan. I've been watching your videos with interest after a Covid infection in June 2022 and now suffering from chronic fatigue and all the horrible symptoms associated with it. I'm in the pits of despair as to know what to do to recover, despite many physical tests and talking therapy. I haven't worked for 8 months as continually feel exhausted even doing the most mundane tasks. Any further help will be much appreciated! Many thanks.
Very true re animals and their instincts re what to eat or where to go. Us humans also have intuition/instincts, but our over reliance on **intellect** gets in the way big time. This is a big part of why it helps if we meditate often, I think...also why learning a TON can be good, because you get SOOO confused that you stop seeking a 'right diet' or 'right supplement' - and you start listening to yourself and your own body. (Confusion precedes real clarity?). I did 5 diets before I realized its best to just listen to my body.
So glad I found you. Been sick over 4 years now. Recently neurologist said it is fibromyalgia. Giving me meds to treat symptoms. I get so sick from the drugs side effects. The extra pain and sickness from the drugs pokes my PTSD. I just can't do these toxic meds. I am almost a shut in and spend a lot of down time. Can't work. Can hardly do even basic self care most days. Saw your interview with Ken Tamplin. I am a new subscriber to your channel. You make me feel hopeful.
Please read Healing Back Pain by John Sarnos. I truly believe that it will eliminate your fybromyalgia. It requires no medicines and is the most life changing book I have ever read.
I love you Raelan 😭 I truly believe my life started to change after the first video I watched on your channel. Watching this months later, is a reminder of all the things I’ve changed and all the positive things I’m doing. Not cured, but on the right path and certainly grateful for every step so far. Thank you for dragging me through this illness!
Brilliant video, I’ll be listening to the podcast. I thought the last section about seeing yourself with compassion and understanding rather than judgement is particularly important. Listening to Peter Crone talk has been life changing in this respect. Thanks for sharing.
Great info - very inspirational. I bought Dr Rediger's 'Cured' and what an uplifting read, so thanks a lot for that tip. Btw, Raelan, may I suggest an idea for a video? I would be very grateful if you could walk us through the details of your diet during your recovery. What exactly did you eat - and not eat? I have become a vegetarian now + avoid sugar and gluten, and I do find it improves my symptoms. I do though find it very tough to give up diary. Love milk in my coffee and yoghurt, but cheese and butter don't matter to me. Do you think a no-diary diet is a non-negotiable in order to recover? I did once go non-diary for two weeks, but didn't experience much change, but perhaps it lasts longer before improvements occur? Also, I would be very grateful if you would tell us about what supplements you've taken. Thanks again, Raelan, for all the hard work you put into this channel. It means the world to me to know it is feasible to recover even after being sick for 11 years. 🙂❤👍🌹
Hi Anna Maria - I'm so glad you found this helpful. And thanks for the video suggestion - I have added it to my list of upcoming topics. I'm planning on doing a Q&A video soon and will include these questions there 😊 As for dairy, I suspect this is an individual thing. I know that I do better off dairy because I get GI symptoms when I consume it. Perhaps you are ok though! The switch in my coffee was tough at first, but I've come to really love adding in unsweetened vanilla almond milk into mine now. I no longer even miss the milk! But again, I don't know whether or not you need to make the same changes. I wish I had a better answer for you! Best of luck with all of this and thanks so much for your kind words and support 🌷
Everything you have mentioned is soooo true. What makes me angry is that I have to be so strict with my health and lifestyle while others can get away by eating much less healthy and still are fit and strong as an ox. What is wrong with our health that it is so fragile?
First of all I'm deeply grateful for all your research / work to help yourself & others. I bought your book & it is so interesting & not to mention informative. I have had CFS for over 20 years, my background is in the health food industry as I studied to be a Naturopath. I have tried so many diets, supplements & exercise & spent probably thousands of dollars. The key thing that resonates with me & there is so much you have offered is however ( its doing all of these things together over time) I'm half way through your book & I'm looking forward to implementing all these things together. Deeply Grateful, Thank You so Much, Raelan you will be in my daily gratitude xxx Karen
Hi Karen ❤️ I am so sorry to hear that you have been facing this for so long. It's heartbreaking that so many people like yourself have to endure this marathon of illness and recovery. I admire your attitude and think it is so wonderful of you to take the time to share a bit of your journey and also let me know that somethings I've put out there have been helpful in some way. I hope you find all your puzzle pieces and get your fastest path out of this! Much love to you, Karen 💫
I Liked the way you said "Learning from each other" and "Gratification for illness", please keep posting in future and also I enjoyed this video.Sending you Love from India 🇮🇳
Absolutely correct and what I have experienced too. By the way, all things comes down to manage your addiction whatever its to glucose, lack of exercise, sleep-pattern etc. To few people sadly knows about the psychological things and the diet, what tremendous effect that have alone.
This was very helpful thank you. I have been slowly recovering from CFS for the past year and a half. I have made a lot of changes to my diet, mainly eating in line with Ayurvedic principals. I need to take it to the next level and totally eliminate sugar and processed foods. Also need to work on the self compassion! I also have endometriosis and have pretty much healed from this too. I found gratitude very helpful in that process- but struggle to have gratitude for CFS becuase of the severity of it. Work in progress. Thanks for the information ❤
Whats bizzare is I've had ME after a virus in ''95 and almost 30 years on losing my career, friends, house (my fab sister bought the house i live in) I can honestly say I've always been happy, positive, just gone with the flow and absolutely believe in good karms & holistic healing, i practice Buddhism which teaches acceptance and i like the person i am even with my miniscule life. Some of us just dont get better but most will recover anyway - i always knew I'd recover and i still might 😁
What a fantastic summary of all the essentials of healing ❤ I'm going to save this video for when a I need a quick reminder to stay on the right track!
I’m very excited to have found your channel. I really liked what you said about seeing the changes you’re ‘being forced to make’ as an opportunity to better yourself and your life and even the lives of the people around you. I’ve always thought that *provided I get better* this illness will have been a gift. It’s forced to get in touch with my emotional and spiritual side - a part of me I was desperately ignoring. It’s forcing me to finally process grief from a decade ago and build stronger bonds with my parents. Still sucks tho lol
Thank you ever so much for all your inspiring videos, kindness, and very pleasant way of sharing information - most voices on YT overwhelm me, but yours resonates 💖🥺🙏 After 13 years of struggling, I'm finally taking tiny steps to heal. And your videos are a great katalyst!! I couldn't be more grateful. New and loyal subbie here! 💕💕💕😍
Oh Raelan. I’ve been forced back to your door step after a couple year period of semi recovery from a group of symptoms that fall under the CFS heading. I took on a big job offer in another state, and after a month and a half of significant output, I’m crashing hard and floundering at my job. Ugh! 😬
I'm really digging how this included the gifts of chronic illness: you mentioned gratitude, but I would also add patience, clarity (prioritize reshuffle themselves really quickly when you only have certain spoons in a day), and for those who have community around to help them, a deepening connection to our networks of care and support.
i did the gerson cancer diet for just 3-4and after yrs of suffering with fibro. it not only fixed the fibro but i went from not being capable to barely walking across the street to the beach but then walking several MILES down the beach. truly amazing. Docs told me all the things i could not do. I am doing... I still have a problem with cfs part of it but i at least usually have control of it now as it comes and goes. I am have a very hard time staying on veggie diet. i am sure that is part of it why i still have troubled flares of Chronic Fatigue. You can tell people till your blue in face at what worked in such a short time and they just seem to make excuses. docs have them convinced that many are too depressed and I think many might be. but many dont realize it will also help that. And the drugs they use to treat it keeps their body sick more than healthy diet to cure it.
Great video! I’m so glad I found you channel. All the suggestions I have started putting in place. One I’m trying to manage through more meditation and paving is a high stress job. I hope I can still obtain recovery
I want to rest and have a daily morning and evening routine to sleep. The problem is that I have experienced chronic insomnia since the abrupt onset of illness. I have not had restorative sleep since. I’ve tried everything. Raelan, did you pay attention to oxalates, salicylates, etc. in food, when you were healing?
There is a strong link between trauma and chronic illness. One problem we have as a society is recognising that many of us have C-PTSD. This isn’t a judgement of child raising practices but an acceptance that many accepted practices harm children, that they are not the resilient punchbags we believe them to be and we need to recognise this. It was only when I found a psychotherapist who specialised in chronic illness was my C-PTSD diagnosed snd started to make sense. I had been told by my GP and a chronic pain specialist physio that I might be stuck in fight or flight but I couldn’t understand why. Cognitive dissonance had masked the very painful truth. This has given me a very different path forward. Validating ourselves and our experiences can make a big difference to moving forward.
I'm currently bedbound thanks to severe M.E. and I'm trying everything known to man to feel better. I've ordered methylene blue and nicotine patches to try next as I'm heating good things about them. Low dose Naltrexone has helped a lot with pain and brain fog but I want to feel better. I've been ill for 41 years and as well as M.E. I have Hypermobile Ehlers Danlos Syndrome, Fibromyalgia, Osteoarthritis, Postural Orthostatic Tachycardia Syndrome, Scoliosis, COPD, Spondylitis, Spondylosis, PIDS and suspect I have MCAS and PTSD. I strongly believe that, apart from the genetic conditions, that there is a common factor that keeps my body in fight or flight and keeps me feeling ill. I sleep 20+ hours a day some days and other times I don't sleep for days on end and I'm sure I'd feel better if I could just sort out my sleep.
I have noticed Ashwaganda helps me. I found a powdered supplement that has pre-and probiotics, mixed greens, collagen and Ashwaganda. It’s called morning kick. It taste like strawberry lemonade and I really enjoy it along with my morning coffee before I get breakfast. I do many of the things you mentioned. Because I have had hypoglycemia since my teens, I have learned that I cannot be a vegetarian. It is very stressful for me to try to exist on a no meat diet. I am hungry all the time when circumstances force me into it. As long as I have meat or fish two or three times a day, I can do very well with little, if any, need for snacking.
Yes, in fight or flight for almost ten years, but the puzzle is that my job as a marketplace seller on amazon stresses me, and I think getting out would be good for me, but stress has brought me to where I don't have enough energy to work a real work shift anymore so not sure how to proceed. Sure I could take time off to recover but I never do that because falling behind financially adds to the stress, so it's an endless thing.
Some of the comments on here have a rather negative theme going on. The whole idea to recovery is that you absolutely let go of all negative thoughts and malfunctioning ways of being. This. Is. Hard! It's a complete shift in your way of being, thinking and understanding of absolutely everything you know. Letting go of every single thing that does you no good, including a pessimistic mindset. Nevertheless, the feeling of utter hopelessness as a result of the actual physical pain, not to mention emotional, from these diseases is a huge factor which contributes to a negative attitude towards potential healing. The power of the mind is beyond our own understanding or imagination. You can heal you.
sounds like toxic positicity on steroids. :) from: a healthy individual living unhealthy without ME/CFS so sorry that people are going through this, hope medicine catches up
Hi . I am courious how long last those symptoms. I have chronic fatigue symptoms from 2017 , done all medical tests , even twice , or more , looks everything is ok . Is possible to have those symptoms for this long period of time ?
I'm sorry to hear about your health challenges. This seems different for everyone, some people can recover quickly and others unfortunately are unwell for decades. Wishing you all the best and a speedy recovery. :)
I do appreciate you posting this. A question is that I got an ankle sprain on both feet over a year ago that refused to heal and I am wondering if it could be due to the chronic fatigue and stress. If I addressed that issue could it help the feet heal?
That's a good question, John. I wish I knew the answer! I hope you find what you need to resolve this and wishing you all the best with your own health journey. :)
I love your videos! I seriously feel like you are speaking directly to where I'm at in my journey right now. I can totally understand the gratitude for the illness because it is making room for this rebirth of myself who is making smarter choices about the foods I eat that are nourishing. I keep slipping this week but I know that I'm not going to give up. It's way easier to just eat that slice of coconut cream pie but I know I have to conquer this sugar addiction because its killing me so I try not to beat myself up but instead tell myself to try harder tomorrow. Thank you for making such helpful videos that make me stay focused on what I need to do in order to heal and that it might seem hard now but one day it will be easy and i will be kicking myself for not doing it sooner.
I'm so glad you find these videos helpful, Erin! And I suspect that none of us get things perfectly. It's all about progress, not perfection, right?! 😀 I'm so glad you're not beating yourself up anymore about any slips (I used to do that too before I also finally realized how unhelpful it was). It happens! Best of luck with all of this 😁💛
i got rid o my sugar addiction by learning to bake. at first i only used honey to replace sugar and only bought dark 70% choc. Now im ridiculously low carb n other than the 70% choc, no sugar at all as im using stevia and erythritol as sugar substitutes. These apparently are the least harmful (not like aspartame) and suitable for diabetics
👉👉👉 ✅ Come join me in my new course! 🧠 Brain Retraining 101: For ME/CFS and Long Covid Recovery. Enroll now: raelan-agle-s-school1.teachable.com/p/brain_retraining_101
I just don't know how people do it with no support. How do they even have a roof over their head when this disease prevents you from having stable employment? The depression that comes with it is the worst part. I'm traumatized by the failure that surrounds my life because the quality of my life is entirely degraded. I'm not sure getting over the stress and depression is possible when I'm drowning in medical debt and trying to raise a newborn.
Hey Miranda, you make a great point here. It's one thing knowing in theory the things that might help us and another all together finding ways to bring those things into our life. It sounds like you are facing an incredible amount right now and it's understandable if you're struggling. I think anyone would be in your shoes! I hope you have some support. Sending you all my best with this and I hope you find a way to ease your load soon 💛
Great point. I've had CFS off and on since my late twenties. I do go through periods in which I actually feel recovered, only to have it come back at some point. But besides aging, the big thing I've noticed it's having friends and a support system truly helps. Over the last five years I feel like I'm falling apart and my life with it. It's difficult to even take care of routine, daily chores/responsibilities. I feel like I need to simplify my life as much as possible but am having difficult getting there. Over the last four years I rarely see anyone anymore. I rarely ask anything of anyone and if I do, of course they want paid, which has become more difficult. I've always done things for others but find it hard to find people of the same mindset. So I end up trying to do it on my own. That only causes setback after setback. I feel like I'm caught between a rock and a hard place. I can only continue to pray and hope the Lord will give me grace and help me through these difficult times.
Hi Miranda, I totally understand. I had CFS for almost 6 years. I’m almost 100% but couldn’t work for several years. I’m getting my life back relatively quickly. I used DNRS but you can go with other brain rewiring programs of your choice. In DNRS mood elevation is incorporated as one of the pillars. Please look into it, as many many people with depression have recovered 100%! I wish you well even though I don’t know you, from the bottom of my heart. This is curable!!
🤗💐 I am sorry you have to struggle though this. I too want a baby but i realise im too ill for that and its heartbreaking. I admire and respect you for bringing the child into the world. One day at a time and dont put too much pressure on yourelf. Do as much as you can and thats all you can do. 💕
@@florarix7091 I feel your pain Flora. I m in the same situation. I m 51 now and its becoming harder. I manage on my own,and just do what I can handle. Keeping it simple,and staying at your pace is very important.
God bless and stay strong.
To anyone out there, don't give up hope. No one may understand what you're going through, but you will get through this. I had it pretty bad for a long time but came out of it. Don't give up hope.
Hi there, as you state many people don't understand this horrible condition. I have had this coming on for over 40 years and it is getting worse. I am retired now but I have experienced times when I just couldn't go to work, luckily for me my boss understood a bit about my difficulties. My family and most friends can't understand my condition. My siblings keep planning things for me and it just creates a barrier that I can't fight. Somedays I just can't climb the stairs and just sit there crying wondering why I can't move. It starts with what I call " heavy head syndrome" and then the rest of my body starts to ache and I have to lie down but then I have to turn off my phones and all social media contacts. I do get out because I have a border collie and he needs regular exercise and I am lucky I can afford to hire a dog walker in the mornings.
@@Madeley-Mick It's a lonely walk, Mick. I often wonder would I have understood it if it never happened to me - perhaps not! Certainly not fully. Such is life and the human condition, I suppose. In some ways, you get a hard lesson on what it is to live and the nature of suffering, and there's some value in that. Best wishes.
@@barrybrennan2135 Thank you for your kind words Barry, good luck to you too, Mick xx
Thank you for taking the time with your encouragement. I won't give up. Tomorrow is another day.
1. Wholistic approach
2. Supporting immune system (avoid toxins, flush lots of water)
3. Connection with family and friends
4. Dont over medicate
5. Plenty of rest and sleep
6. Healthy diet, omit processed foods, omit sugar, flour , Some ate meat some didn't.
7. No need to calorie count
8. Avoid living in fight or flight mode
9. Heal stress response
10. Elicit happiness
11. Gratitude for the illness, it can teach you a lot.
12. Change mindset around what is possible.
13. See changes as opportunity.
14. Work on healing your identity. Be compassionate towards yourself.
🙏
flour, not flower : )
@@Plethorality 🙄
Obviously she hasn’t had it for very long. Over 40 years here. Pretty much no friends or family left, since they all think that it’s “just being lazy” and “needing to think positively” instead of having an actual illness.
Flowers might help too.
Happiness factor
Lisa 🌺
Such great info! My friend got Stage 4 melanoma cancer at at 24. Doctors said he had one year to live. He had 100% faith that he would heal. It was amazing. I thought he was in denial. 6 months later he was not only cancer free, his bones and lunges which were supposed to have holes in them, looked as if he never had any cancer at all! Doctors called it a miracle and maybe it was but I think his positive mindset had a part to play in it.
definitely. Doctors are always saying "that's just a placebo". But the wise ones are saying "we need to create placebo-maximized medicine" (!!). That's where the doctor says things to EVOKE the Placebo response, instead of the Nocebo response - which is the opposite and happens a LOT...like a bad spell they cast on the patient. PS. If you google "the X pill" you'll find something that's ALL about evoking the placebo response - openly - people are told its just a sugar pill, but it still seems to change their lives!!
That's amazing, I'm a cancer survivor and I have a theory about dealing with stress, which no one talks about. Common theme I've noticed with cancer patients, as well as myself, a life of chronic stress and toxic people
Wow, David! This story just gave me goosebumps. How incredible. Thank you so much for sharing!
@@joytotheworld6804 yes, dr Gabor Mate talks a lot about this!
My sister had total faith that she was going to ‘beat cancer’, and she did twice, and then it killed her. It’s not because she didn’t try hard enough, sometimes you win, sometimes you don’t.
Hard to get much joy into your life when you feel so bad and can hardly socialize.
The problem with CFS is that socializing isn’t possible for many, so why mention it here as a means for psychological well-being?
living alone make it extra difficult, I can attest to that.
Exactly since i have CFS, i have no social life at all… And i also live far for my family.
I can’t maintain friends because I barely get out of bed
I just got to the point I don't want to socialize. I have a boyfriend who I am so so lucky for, and the few times I get out I chat shortly with folks at the store. I call, txt, email, message NOBODY
Problem with CFS/ME is that many people do ALL these things and still don’t get better. I’m following a healthy diet, sleeping well, meditating daily, setting firmer boundaries with people, taking lots of supplements, tried reverse therapy. Since august I am still not much better and can’t do sports like I used to.
Have you done any work on your gene set up, gene expression, nutritional requirements, possible mould colonisation? All these things can give you a real understanding about “you”. Your healthy diet might not be having the effect you expect, you could still be very deficient in some nutritional needs or even creating more problems by the food you eat
For me, my immune system is suddenly reacting to lots of healthy foods I’ve eaten for years - broccoli, grapefruit, oats, nuts, the list is long! By cutting them out I have felt a gradual reduction in inflammation. Mould tests revealed I had extremely high levels of 2 toxins, wreaking havoc with all of my body systems. A functional medicine practitioner is helping me through this. Gene expression testing Confirms the CFS/ME diagnosis. Still work in progress but progress nonetheless 🤞🏻
Your posture is the problem.
Likewise ten years here and bee trying to make friends but harder now many people are unhealthy
@@tomasposkocil3217 can you explain?
Exactly. Useless information from her. We would all be better by now
I have used all of the things you mention to get well, in addition a plant food based high carb low fat diet plus celery juice. Also meditation. After 5 years of this I started year round wild swimming, which seemed to bring all the other things together. After 15-20 years of ME ,I'm well, and have climbed my first mountain in 20 years. Btw I'm 61 😁
Hilary, this is amazing!!! I'm so happy to hear about all the progress that you've made. Great work!💓
Sorry to be ageist, but being in my 50 that's brilliant to hear that recovery is not only for the under 50. Congratulations, I wish you plenty of more mountain climbing and many happy things
Thank you Hilary ..my journey with this is of a similar length to yours, and same age ...Im waiting and longing to break free!
What is wild swimming?
@@kathleenmay3530 I'm guessing "wild swimming" would be swimming in lakes, rivers, streams and the ocean - wherever you find a body of water in nature surrounded by plenty of fresh air.
In Vancouver, BC there is a Hotel / Spa with an outdoor heated salt water pool, I would count that as wild swimming (fresh air, no chlorine and no ozone as typically found in city recreation pools.).
In Harrison Hot Springs, BC, Canada there is a Hotel and also a Public Pool for soaking in the local mineral waters - not wild but close to it.
We are under incredible stress here in the New York area. The cost of housing, food, insurance, etc is overwhelming. Many live paycheck to paycheck. That alone causes anxiety, stress, fatigue!! I’m a nurse and I have to work. I’m thinking of changing careers but I’ve done this for 25 years. I’m ready to run away from this area and move south. My body is constantly in pain, I’m exhausted for years. Nothing helps.
I recovered from long term Lyme Disease which became chronic fatigue/ME (the names are irrelevant really) about two years ago. I still have to be careful and manage myself differently to how I once did. Virtually everything you mention in the video resonates with with the steps I took to recover. I was helped enormously by attending an NHS rehab course for 12 weeks which introduced me to the vagus nerve and really opened my eyes to the damage I had caused, unwittingly, by living a high stress, high carb/high sugar, western lifestyle. I wish I knew then what I know now. Great video for anyone who thinks they might not be able to recover.
Hey Tim, thanks for taking the time to share this. I'm so glad you've found things that work for you 💛
Great that you recovered Tim! I wondered whether you can tell me more about the 12 weeks NHS course and whether you know if it’s still available?
Ditto, what course was it please?
NHS what is it shortage for?
@@agnetahallberg9845 it's the Brittish National Health Service
So much great information ! I am looking forward to buying the book “Cured.” It is released next year in Canada.
I have started to implement many of these changes in my life. I am 30, I have had fibro and Hashimotos for 10 years, and chronic fatigue for 3.
The change that started my healing is changing my perspective. Perfectionism and past trauma lived with me everyday. I have to check these things everyday.
Today I feel strong. I am building up my strength and stamina through yoga and gardening. I have come to a place where I feel grateful for what these illnesses have taught me about life. I have learned that these illnesses are not some sort of punishment, that my mind does not need to be in torment forever because it is self inflected. Life is not black and white anymore, but it is colourful.
My body was telling me I needed to change myself. To take care and nourish myself. To love myself. I am important. And no matter what happens, I am strong enough and brave enough to handle it.
Sorry to burst your bubble but there is no cure for CFS/ME. You can help symptoms and you can "recover" naturally over time, but there is no magic cure for this illness. I am an expert. I have had it 32 years now. I thought I was fully recovered, especially after having felt 100% excellent for 8 years and then I was hit with another relapse out of nowhere. Read my comment above. Good luck.
@@cw7368 I thought I was fully recovered after feeling 100% Excellent for 8 years after my last relapse, but sure enough , out of nowhere I got hit with a relapse again and now it's been 3 months of feeling awful, but I am pulling out of it. I did every single thing mentioned in this video and also have done a LOT more. Holistics, nutritional, exercise, diet, herbal, colonics, detox, acupuncture, psychology ect. ect. ect. you name it I have tried it. I am an expert on the subject of CFS/ME as I got it 32 years ago in 1988. But my relapse still happened and it does not go away spontaneously. And I did nothing out of the ordinary to trigger it. No stress, no cold or virus ect. Unfortunately it stays in remission in our system and some people feel great for years and others not so fortunate. There is no magic cure for CFS/ME though some people do recover naturally over time and some people are helped with their symptoms. I have tried everything on the planet to "cure" my CFS/ME but nothing has made it completely go away or make relapses go away any quicker. Once we get it it is always with us in our system yet for some people it does luckily go into remission for long periods of time until it rears its' ugly head again to remind us it is with us for the rest of our lives. Oh and one time I did the best detox and cleansing program on the planet and took the herbs and supplements that came with it. I eliminated 42 feet of mucoid plaque from my colon, I fasted the last week of the cleanse. Then I stayed an organic vegetarian for one year after the cleanse. It did nothing to make me feel any better or make my relapse go away any quicker or cure my CFS/ME. I have tried everything I tell you. There is no cure at this point and time for CFS/ME. No magic cure, though it can go into remission and symptoms can be helped.
C W Thank you for sharing your experience. Very powerful words. I am also checking my things everyday, past trauma and perfectionism. Now i have hope.
@C W You can get a digital version of 'Cured' at amazon.com for the Kindle-app. I've just bought it.
This all resonates so much! Thanks for taking the time to share this 💫
The thing not mentioned is someones life situation, stability, finances, id get better quickly with peace and quiet - but i cant control that, as i type now, there has been 5 door slams - !!!
I need quiet too!
I suffer daily with debilitating Chronic Disease, but as an immigrant with access to very few resources, family support and no sense of community, I find this list really devastating - these things are simply not accessible to many of us who do not have the privilege of time, financial support, family support or the space and money to invest in removing ourselves from the ‘rat race’ to heal. We are stuck just trying to stay above water…this list is hard to hear - now I am certain there is no hope 😞
AMEN!!!
Because I have chronic fatigue syndrome; all that I can do is Rest & Sleep, -that is all that this illness allows me to do, so could you explain how Rest & Sleep help chronic fatigue syndrome? That part doesn’t make any sense to me so far.
I stumbled across that on a different channel and actually when your body is in fight or flight mode you cannot rest. It is a vicious cycle because all you can do in those moments is -be desperate. That is why it is crucial to reprogram your brain- and as ridiculous as it sounds tell yourself over and over again that you are not sick. out loud. Your brain needs to believe it to stop producing symptoms.
Get the book Medical medium. He explains the cause of cfs.
Target inflammation and support immune system
Gratitude
Experience happiness, joy, connection
Belief in ability to recover
Definitely resonates with my quick recovery! I did a lot of lymph massage ("abhyanga", Ayurvedic massage), ate easy to digest kitchari (lentils, rice and spices), and realized the illness was the beginning of my transformation into something new and better! :D
Yes Vera, this does sound very inline with your journey doesn't it! Thanks for sharing this here - so helpful to know ⭐️💜
@@RaelanAgle 🙏😊🙌✨❤️
@@VeraWilhelmsenmay I know how I feel now ?? Hare you recovered ?
@@aswinaswin9509 Vera talks about her illness and recovery on her youtube channel😊
How do u do this massage?
This kind of recovery is wonderful when you have that level of financial stability and support. My last 30 years have been an unpredictable roller coaster. Literally. Been back and forth from completely bedbound, unable to speak to working very physical jobs.
I liquidated everything I had and maxed my credit cards. Nobody could take me in. I bought a house with that money (plus some LTD from work) and now live with my boyfriend and 2 cats. We live off his SSI. It's extreme but we are now so blessed. I applied for credit card forgiveness. I am over 40k in debt I can't pay but have a house with no mortgage I can live in until I heal well enough to work again. It has gotten SO MUCH better since setting myself up this way. I admit my boyfriend helped immensely in ensuring I could get out and we get a house. I bought the first affordable one I could get in a safe neighborhood. I was lucky to have the stamina even for that. I hope you find a way. Don't let anyone judge you and keep your plans safe and to yourself. ❤
I recently was diagnosed with CFS after the disease relapsed again after getting Covid. One of my doctors ordered an autonomic nerve test and it showed abnormalities with my parasympathetic function (basically a malfunctioning vagus nerve). I'm now determined to get my body out of fight or flight mode and return to homeostasis to give my body a fair chance at healing.
I'm sorry to hear that you are facing this, Patrizia. Thank you for taking the time to share - I had never heard of these tests before.
What is the name of the test??
How do you get out of fight of flight? I’ve been trying for years.
@@katrinaoliver4167 ua-cam.com/video/L1HCG3BGK8I/v-deo.html
ua-cam.com/video/LnV3Q2xIb1U/v-deo.html
These exercises really helped me. Could notice a difference in anxiety from one day to another.
I havent heard of that - but as CBT therapist and a person with CFS for 28 years, I intentionally stimulate my PSNS via yoga, progressive muscle relaxation, meditation, and use of steam room and sauna, gentle massage, and i would add, although no expert - cold water therapy. In fact about 24 years ago my motto to myself was 'the achillies heel of CFS is progressive muscle relaxation'. PMR targets the vagal nerve, and PSNS. In addtion to this - the other gigantuntuan impact was a low carb diet - removal of all processed food. Check out Dr Chris Palmer - harvard psychiatrist on cell mitochondria, sugar, processed foods. Cell mitochondira make energy - and also serotonin. So energy improves.
I am listening to this womans video and her rediculous description of oxytocin and healing - sounds like a reiki practioner - incidentally that is not a bad practice either for stimulating the soothing system - or PSNS. Charlatan big time. Selling hope. I wouldnt believe anything out her mouth.
super helpful. i love how you condense useful information and present it so clearly. finding your channel marked the beginning of my new CFS recovery initiative, and in the last two months i've gone from feeling about 55% to around 80%. thank you Raelan
So glad this was helpful, Jay! And how amazing you've made such great progress so fast. That's incredible! Very happy for you 😀
Yep, these are the things I've narrowed it down to under my own steam. Getting away from toxic people is number 1 for me. The stress response has to be dealt with and the inflammation addressed early on. When I dealt with these, my healing has come along really well. Great video, I will get that book I think, thank you x
Thanks for sharing this, Joy. It took me a long time to fully appreciate these things but wow are they important! Glad you enjoyed the video and I hope you like the book also 💫
I understand that this video is trying to help. However, two major issues with CFS/ME are insomnia and not being supported by people who don't believe it to be a real illness. It's great to show stories of hope, but please consider how it can create a feeling of hopelessness when people don't have these things.
It's DEFINITELY real!!!! Who in their right mind would say otherwise?
The vast majority of people around you will not believe it to be a real illness, you have to accept the hard truth of that and not expect support or understanding from them, turn inwards and learn to self comfort and stand firm in the knowledge of your own truth. One or two people will eventually arrive in your life who do comfort and empathise.
Cfs/me puts the autonomic nervous system into overdrive, hence the insomnia. I found Pranayama( yogic breathing exercises/yoga Nedra) immensely helpful in bringing it back in line and enabling sleep. Many guided practises on line. Difficult to stay with it when you are in full flare but you will find improvement. Alcohol is absolute and instant poison, a neurotoxin, exacerbating a neuro inflamatory condition. I found mushroom supplements most helpful, Lions mane, also weekly micro dose of psilocybin seemed to help enormously with pain, inflammation, cognitive difficulties and sleep
This is wonderful. I now realise I need to be assertive and compassionate because the major stress comes from aggressive family members that
I actually would rather not deal with. Assertiveness makes it easier and less traumatic. I was recently diagnosed with Bile salt malabsorption, something that’s quite under diagnosed and so reducing fat, particularly saturated, has helped a lot. Thank you fo4 your channel xxx
Hey Cat! Good for you for being assertive and setting your boundaries. I completely agree - those energy vampires have to go! Or at the very least start behaving themselves around us 😅 Thanks for sharing a bit of your experience - it's always interesting and helpful 💫
Excellent, thank you. One thing I've noticed is how comments from other people go very deep into my unconscious. eg. I'm suffering from CFS and I've heard people say that you can never get over it, it always comes back. It really helps having people like you saying it is possible to heal.
Agreed, Mike! I struggled with the same. I'm so glad you found this helpful.
Great video. I started my healing journey when I saw the illness as a gift. It's a bit like forgiving people who have wronged you, let go of the anger and resentment and move forward on a learning journey to a better you. I now say to myself I don't want to be "healthy" like I was before, I'm redefining what healthy is. Loved the point about identity and compassion. Keep up the good work : )
Thank you for sharing your thoughts on this, Gareth 💓
Raelan, I somehow stumbled upon this video and your channel and I must say you are a breath of fresh air. The points you bring up in this video are so vital not only for the healing of the individual but for society as a whole. What a world we could create if only we all became aware of such principles and began applying them, please keep up the great work and much love.
You’re awesome! Love what you’re doing for the ME/CFS community!
I literally need to start my morning by watching this every day lol for continued inspiration. Because I believe in this 100 percent
Oh I'm so glad to hear that this was helpful, Erin! And I'm with yah, I believe in it 100% too 🌟
All these points I have found to be true, still working on the healing my own identity! Progress is definitely not linear. Everyone’s journey is such an individual one. Xx
So true, Linda!
Really want to add the Gupta programme to the list. It is a wonderful brain retraining programme that has helped me so much. Online programme beautifully done. Coaches very sensitive and professional. Cost reasonable. Give it a go.
Great to hear the Gupta program has been a game-changer for you, Hilary! Thanks for the recommendation ❤️
does this include severe me/cfs who are bedbound for 20 years and have bad insomnia?
It all sounds so simple when you break it down. But most of the time your changing your whole life, your whole being! Recovery takes resilience and openness! Thanks for another great video!
Well said, Chantelle! They are simple concepts but not at all easy to master. So glad you enjoyed the video!
I went no contact with everyone toxic or difficult I knew, and even friends of friends as they were unable to be supportive and understanding. I have my boyfriend. I have my cats. I have myself. For me a huge part of it has been mental duress dealing with toxic people. I learned to tolerate in my childhood and had to unlearn it to get healthy. Im not 100% yet but after 4.5 years, I am able to sleep well and do my own shopping and housekeeping. I even went camping recently. ❤ Stay strong and be good to yourself.
Hello Raelan. I've been watching your videos with interest after a Covid infection in June 2022 and now suffering from chronic fatigue and all the horrible symptoms associated with it. I'm in the pits of despair as to know what to do to recover, despite many physical tests and talking therapy. I haven't worked for 8 months as continually feel exhausted even doing the most mundane tasks. Any further help will be much appreciated! Many thanks.
Learned more from you in 10 mins than in the last 18 months, thank you!! Penny
Omg yes! Thank you it so does. I will definitely be sharing. Still trying to find my voice again, so glad to borrow your’s for now. Again, Thank you 🥰
💓💓💓
I love how you have a natural prayer 🙏 position several times during the video. ♥️
Thank you for the earnest attention you are giving to exploring this and taking the time and effort to relate it.
Very true re animals and their instincts re what to eat or where to go. Us humans also have intuition/instincts, but our over reliance on **intellect** gets in the way big time. This is a big part of why it helps if we meditate often, I think...also why learning a TON can be good, because you get SOOO confused that you stop seeking a 'right diet' or 'right supplement' - and you start listening to yourself and your own body. (Confusion precedes real clarity?). I did 5 diets before I realized its best to just listen to my body.
Hahaha this had me laughing because it's SO true! Well at least all that confusion wasn't for nothing 😆
So glad I found you. Been sick over 4 years now. Recently neurologist said it is fibromyalgia. Giving me meds to treat symptoms. I get so sick from the drugs side effects. The extra pain and sickness from the drugs pokes my PTSD. I just can't do these toxic meds. I am almost a shut in and spend a lot of down time. Can't work. Can hardly do even basic self care most days. Saw your interview with Ken Tamplin. I am a new subscriber to your channel. You make me feel hopeful.
Catt, I'm so sorry to hear about all of your health challenges, I hope you find your fastest path out of this ❤️
Please read Healing Back Pain by John Sarnos. I truly believe that it will eliminate your fybromyalgia. It requires no medicines and is the most life changing book I have ever read.
@@johnnypolex Thank you. This fybro is tough.
I love you Raelan 😭 I truly believe my life started to change after the first video I watched on your channel. Watching this months later, is a reminder of all the things I’ve changed and all the positive things I’m doing. Not cured, but on the right path and certainly grateful for every step so far. Thank you for dragging me through this illness!
How are u now mate?
Good straight to the point. That was a valuable video.
Nice dense info food.
Much better than hours of conversation.
Thank you
Brilliant video, I’ll be listening to the podcast. I thought the last section about seeing yourself with compassion and understanding rather than judgement is particularly important. Listening to Peter Crone talk has been life changing in this respect. Thanks for sharing.
Glad you enjoyed it, Sarah! And I found that last part on healing identity really powerful as well. Hope you enjoy the podcast as much as I did!
Great info - very inspirational. I bought Dr Rediger's 'Cured' and what an uplifting read, so thanks a lot for that tip. Btw, Raelan, may I suggest an idea for a video? I would be very grateful if you could walk us through the details of your diet during your recovery. What exactly did you eat - and not eat? I have become a vegetarian now + avoid sugar and gluten, and I do find it improves my symptoms. I do though find it very tough to give up diary. Love milk in my coffee and yoghurt, but cheese and butter don't matter to me. Do you think a no-diary diet is a non-negotiable in order to recover? I did once go non-diary for two weeks, but didn't experience much change, but perhaps it lasts longer before improvements occur? Also, I would be very grateful if you would tell us about what supplements you've taken. Thanks again, Raelan, for all the hard work you put into this channel. It means the world to me to know it is feasible to recover even after being sick for 11 years. 🙂❤👍🌹
Hi Anna Maria - I'm so glad you found this helpful. And thanks for the video suggestion - I have added it to my list of upcoming topics. I'm planning on doing a Q&A video soon and will include these questions there 😊 As for dairy, I suspect this is an individual thing. I know that I do better off dairy because I get GI symptoms when I consume it. Perhaps you are ok though! The switch in my coffee was tough at first, but I've come to really love adding in unsweetened vanilla almond milk into mine now. I no longer even miss the milk! But again, I don't know whether or not you need to make the same changes. I wish I had a better answer for you! Best of luck with all of this and thanks so much for your kind words and support 🌷
Everything you have mentioned is soooo true. What makes me angry is that I have to be so strict with my health and lifestyle while others can get away by eating much less healthy and still are fit and strong as an ox. What is wrong with our health that it is so fragile?
I felt the same for years, Johannes! It does feel really unfair.
Yes those people do not have a aggressive strain of EBV, in stage four. That’s what causes CFS.
Medical medium.
First of all I'm deeply grateful for all your research / work to help yourself & others. I bought your book & it is so interesting & not to mention informative. I have had CFS for over 20 years, my background is in the health food industry as I studied to be a Naturopath. I have tried so many diets, supplements & exercise & spent probably thousands of dollars. The key thing that resonates with me & there is so much you have offered is however ( its doing all of these things together over time) I'm half way through your book & I'm looking forward to implementing all these things together. Deeply Grateful, Thank You so Much, Raelan you will be in my daily gratitude xxx Karen
Hi Karen ❤️ I am so sorry to hear that you have been facing this for so long. It's heartbreaking that so many people like yourself have to endure this marathon of illness and recovery. I admire your attitude and think it is so wonderful of you to take the time to share a bit of your journey and also let me know that somethings I've put out there have been helpful in some way. I hope you find all your puzzle pieces and get your fastest path out of this! Much love to you, Karen 💫
Love this so much Raelan. Such a great recap. Every change you mention resonates. And I especially love "seeing changes as an opportunity." ❤️
Glad you enjoyed it as well, Liz! I LOVED this info and it all resonates and reminded me of areas that I need to keep working on ✨
I Liked the way you said "Learning from each other" and "Gratification for illness", please keep posting in future and also I enjoyed this video.Sending you Love from India 🇮🇳
I'm so glad you enjoyed this Swapnil 😊 Thanks for sharing that and yes there are many more videos to come 💫
I have only watched 2 of your videos. Holy Cow you jammed in so much good stuff in under 10 mins. You are awesome.
Thank you so much, Josher!
Excellent synopsis. All excellent ideas. You’re an excellent communicator; very articulate. 🙏
Thank you! I appreciate it a lot 💓
This is so helpful, thankyou. I was diagnosed today and your thoughtful video confirms I am on the right track with how I am going to address it.
I'm rooting for you and your recovery, Amy! 💓
Thank you, Raelan! ❤️
Absolutely correct and what I have experienced too. By the way, all things comes down to manage your addiction whatever its to glucose, lack of exercise, sleep-pattern etc. To few people sadly knows about the psychological things and the diet, what tremendous effect that have alone.
This was very helpful thank you. I have been slowly recovering from CFS for the past year and a half. I have made a lot of changes to my diet, mainly eating in line with Ayurvedic principals. I need to take it to the next level and totally eliminate sugar and processed foods. Also need to work on the self compassion!
I also have endometriosis and have pretty much healed from this too. I found gratitude very helpful in that process- but struggle to have gratitude for CFS becuase of the severity of it. Work in progress.
Thanks for the information ❤
Whats bizzare is I've had ME after a virus in ''95 and almost 30 years on losing my career, friends, house (my fab sister bought the house i live in) I can honestly say I've always been happy, positive, just gone with the flow and absolutely believe in good karms & holistic healing, i practice Buddhism which teaches acceptance and i like the person i am even with my miniscule life. Some of us just dont get better but most will recover anyway - i always knew I'd recover and i still might 😁
What a fantastic summary of all the essentials of healing ❤ I'm going to save this video for when a I need a quick reminder to stay on the right track!
I’m very excited to have found your channel. I really liked what you said about seeing the changes you’re ‘being forced to make’ as an opportunity to better yourself and your life and even the lives of the people around you. I’ve always thought that *provided I get better* this illness will have been a gift. It’s forced to get in touch with my emotional and spiritual side - a part of me I was desperately ignoring. It’s forcing me to finally process grief from a decade ago and build stronger bonds with my parents. Still sucks tho lol
Also I’m not sure it needed to go on for this long 🙄
Thanks Raelan, great summary!❤
I read the book and it was fascinating, I have chronic wide spread pain and chronic fatigue.
Thanks but I don’t agree that macro etc wasn’t important. In many cases of not all bacteria causes these issues that need less carbs
Thank you ever so much for all your inspiring videos, kindness, and very pleasant way of sharing information - most voices on YT overwhelm me, but yours resonates 💖🥺🙏
After 13 years of struggling, I'm finally taking tiny steps to heal. And your videos are a great katalyst!! I couldn't be more grateful. New and loyal subbie here! 💕💕💕😍
Wow, thank you!
@@RaelanAgle Very welcome 😍 and thank You, sweetheart! 💕💕
Thank you for everything you are doing here Raelan!! VG :-)
Oh Raelan. I’ve been forced back to your door step after a couple year period of semi recovery from a group of symptoms that fall under the CFS heading. I took on a big job offer in another state, and after a month and a half of significant output, I’m crashing hard and floundering at my job. Ugh! 😬
I'm really digging how this included the gifts of chronic illness: you mentioned gratitude, but I would also add patience, clarity (prioritize reshuffle themselves really quickly when you only have certain spoons in a day), and for those who have community around to help them, a deepening connection to our networks of care and support.
This is so excellent!! Thanks for sharing this 💛
Great overview! I am reading the book right now and I love this topic. Especially healing your identity!
Glad you enjoyed it! Such a great topic, isn't it? And yes! I can relate to the identity piece very much also. :)
I thank you from the bottom of my heart ♥️ and I am getting the book‼️🙏
Studying spontaneous healing was how Dr. Joe Dispenza started. I wonder if this is similar to his 'change your thoughts change your life' principles?
Thanks so much for this. Subscribed. 🙂
Thank you so much for the sub, Penmaenmawr 💓
Raelan, I so enjoy your Videos. You are so structured and positive - I am very greatful. Keep going 😊♥️
Thank you! That's great to hear, I'm glad the videos have been helpful 💛
Great video! I agree with all of those points, those are things I work on while working on recovery.
It all resonated with my own experience as well, Kathy 😊
i did the gerson cancer diet for just 3-4and after yrs of suffering with fibro. it not only fixed the fibro but i went from not being capable to barely walking across the street to the beach but then walking several MILES down the beach. truly amazing. Docs told me all the things i could not do. I am doing... I still have a problem with cfs part of it but i at least usually have control of it now as it comes and goes. I am have a very hard time staying on veggie diet. i am sure that is part of it why i still have troubled flares of Chronic Fatigue. You can tell people till your blue in face at what worked in such a short time and they just seem to make excuses. docs have them convinced that many are too depressed and I think many might be. but many dont realize it will also help that. And the drugs they use to treat it keeps their body sick more than healthy diet to cure it.
This was so helpful! Defo gunna get the book! Sounds all the things I know I need to do but fearful of! Thanks for the boost!
So glad you found it helpful, Zoe! And I'm thrilled to know you are "boosted" 😀
Great video! I’m so glad I found you channel. All the suggestions I have started putting in place. One I’m trying to manage through more meditation and paving is a high stress job. I hope I can still obtain recovery
Thank you, Brian! You will recover and I'm looking forward to hearing your full recovery journey ❤️
Fantastic list! Great stuff 👌🏾👌🏾
Glad you liked it!
All good advice! Holistic healing mind body spirit are all connected!!❤
As someone currently healing from cfs/me this is all 💯
So great and hopeful!!!
I want to rest and have a daily morning and evening routine to sleep. The problem is that I have experienced chronic insomnia since the abrupt onset of illness. I have not had restorative sleep since. I’ve tried everything.
Raelan, did you pay attention to oxalates, salicylates, etc. in food, when you were healing?
Really helpful and makes a lot of sense
Glad this was helpful, Jude 💛
Yes yes yes, ive sayed this to keep reminding myself how important thes things are😊 thank you ❤
She talks about the keto diet. I've started keto a year ago and it changed my life.
Did not work for me
I did a strict, nutrient dense anti-inflammatory diet, supplementation and eliminated stress. My plethora of symptoms were gone within 2 months.
There is a strong link between trauma and chronic illness. One problem we have as a society is recognising that many of us have C-PTSD. This isn’t a judgement of child raising practices but an acceptance that many accepted practices harm children, that they are not the resilient punchbags we believe them to be and we need to recognise this. It was only when I found a psychotherapist who specialised in chronic illness was my C-PTSD diagnosed snd started to make sense. I had been told by my GP and a chronic pain specialist physio that I might be stuck in fight or flight but I couldn’t understand why. Cognitive dissonance had masked the very painful truth. This has given me a very different path forward. Validating ourselves and our experiences can make a big difference to moving forward.
Ugh I’m so tired of serious I’ll was being dismissed as ‘trauma’
All I can say is I've treated my illness as TMS, and also used curable for over a year plus psychology and my symptoms didnt improve at all
I'm currently bedbound thanks to severe M.E. and I'm trying everything known to man to feel better.
I've ordered methylene blue and nicotine patches to try next as I'm heating good things about them. Low dose Naltrexone has helped a lot with pain and brain fog but I want to feel better.
I've been ill for 41 years and as well as M.E. I have Hypermobile Ehlers Danlos Syndrome, Fibromyalgia, Osteoarthritis, Postural Orthostatic Tachycardia Syndrome, Scoliosis, COPD, Spondylitis, Spondylosis, PIDS and suspect I have MCAS and PTSD.
I strongly believe that, apart from the genetic conditions, that there is a common factor that keeps my body in fight or flight and keeps me feeling ill. I sleep 20+ hours a day some days and other times I don't sleep for days on end and I'm sure I'd feel better if I could just sort out my sleep.
@@ByeByeBellyWhat's TMS please?
I have noticed Ashwaganda helps me. I found a powdered supplement that has pre-and probiotics, mixed greens, collagen and Ashwaganda. It’s called morning kick. It taste like strawberry lemonade and I really enjoy it along with my morning coffee before I get breakfast. I do many of the things you mentioned.
Because I have had hypoglycemia since my teens, I have learned that I cannot be a vegetarian. It is very stressful for me to try to exist on a no meat diet. I am hungry all the time when circumstances force me into it. As long as I have meat or fish two or three times a day, I can do very well with little, if any, need for snacking.
Thanks for sharing 👍😊
Thank you for some great information Raelan x
You are so welcome, Janie ❤️
Yes, in fight or flight for almost ten years, but the puzzle is that my job as a marketplace seller on amazon stresses me, and I think getting out would be good for me, but stress has brought me to where I don't have enough energy to work a real work shift anymore so not sure how to proceed. Sure I could take time off to recover but I never do that because falling behind financially adds to the stress, so it's an endless thing.
That makes sense, a real catch 22. I feel for you and definitely appreciate that removing stress is not so easy 😐
What are DNRS? sorry I am unaware of this term, it is mentioned positively in many of the comments. Thank you.
You are spot on. You may end up being changed from a human to a angel when you get to heaven. Have a great weekend.
Aw what an incredibly kind thing to say! Thanks for that and I hope you are having a wonderful weekend as well ⭐️
Some of the comments on here have a rather negative theme going on. The whole idea to recovery is that you absolutely let go of all negative thoughts and malfunctioning ways of being. This. Is. Hard!
It's a complete shift in your way of being, thinking and understanding of absolutely everything you know. Letting go of every single thing that does you no good, including a pessimistic mindset.
Nevertheless, the feeling of utter hopelessness as a result of the actual physical pain, not to mention emotional, from these diseases is a huge factor which contributes to a negative attitude towards potential healing.
The power of the mind is beyond our own understanding or imagination.
You can heal you.
sounds like toxic positicity on steroids. :)
from: a healthy individual living unhealthy without ME/CFS
so sorry that people are going through this, hope medicine catches up
Hi . I am courious how long last those symptoms. I have chronic fatigue symptoms from 2017 , done all medical tests , even twice , or more , looks everything is ok . Is possible to have those symptoms for this long period of time ?
I'm sorry to hear about your health challenges. This seems different for everyone, some people can recover quickly and others unfortunately are unwell for decades. Wishing you all the best and a speedy recovery. :)
How are you now mate.
Hey raelan can improve gut health helps ?
It helped me LOTS!
Realan please tell me about your supliment for genrel weaknes
Excellent advice!
Glad you found this helpful, Elizabeth!
It is a challenge for me to listen to my own body, and not depend so much as what others are telling me to do.
Ty ty ty ty ty!
I do appreciate you posting this. A question is that I got an ankle sprain on both feet over a year ago that refused to heal and I am wondering if it could be due to the chronic fatigue and stress. If I addressed that issue could it help the feet heal?
That's a good question, John. I wish I knew the answer! I hope you find what you need to resolve this and wishing you all the best with your own health journey. :)
I love your videos! I seriously feel like you are speaking directly to where I'm at in my journey right now. I can totally understand the gratitude for the illness because it is making room for this rebirth of myself who is making smarter choices about the foods I eat that are nourishing. I keep slipping this week but I know that I'm not going to give up. It's way easier to just eat that slice of coconut cream pie but I know I have to conquer this sugar addiction because its killing me so I try not to beat myself up but instead tell myself to try harder tomorrow. Thank you for making such helpful videos that make me stay focused on what I need to do in order to heal and that it might seem hard now but one day it will be easy and i will be kicking myself for not doing it sooner.
I'm so glad you find these videos helpful, Erin! And I suspect that none of us get things perfectly. It's all about progress, not perfection, right?! 😀 I'm so glad you're not beating yourself up anymore about any slips (I used to do that too before I also finally realized how unhelpful it was). It happens! Best of luck with all of this 😁💛
i got rid o my sugar addiction by learning to bake. at first i only used honey to replace sugar and only bought dark 70% choc. Now im ridiculously low carb n other than the 70% choc, no sugar at all as im using stevia and erythritol as sugar substitutes. These apparently are the least harmful (not like aspartame) and suitable for diabetics