When I worked as a veterinary technician, I learned that Hydrogen Peroxide is great for getting blood out of clothes. Definitely wouldn't wanna drink that stuff. Interesting case! Glad she survived!
My grandma taught me to treat bloody clothes as soon as possible, soak them in LOTS of COLD water, it may take longer, sometime even need to leave over night. But it works. Hope that helps.
I used 3% H2O2 to clean chronic abscesses for 15 years. I used it to burn dead skin off a road rash that wouldn't heal. No way I would even touch 35%! PS I strongly doubt those "studies" that say H2O2 does nothing. Its oxidizing power makes it a fantastic debriding agent, and thus it's quite obviously also good for cleaning wounds and killing bacteria. It reminds me of when some itch cream company sponsored research to "prove" that calamine lotion doesn't help itching - or how Canadian doctors now won't put a drain in an opened abscess because of some study, meaning wound care nurses have to keep sending people back to get cut again and again.
@@asusmctablet9180 What I've heard is that, because of the strong reaction it has with blood and cells, it damages the healthy and living cells at the borders of wounds- the ones that would begin the healing process. I'd also say that, for the small wounds an average person's going to be treating with a first aid kit, there's no need to use it if water is enough! XD Especially because it stings so, so much, for children and animals who don't understand, why go through the extra pain for uncertain benefit, where water and an antiseptic will do?
@Maskie Man Because vaccine injury doesn't exist lmao, and what does is exceedingly rare and minute in comparison to those vaccines have saved and aided. Don't bring your anti-science woo into a legitimate societal issue.
I've been experiencing gaslighting by doctors for 2 years after having undiagnosed COVID and what is now known as long COVID. It's horrible not to be believed.
@@baraness24 yeah, like you said, it's rare. My aunt who's allergic to everything had a severe reaction to first dose and doctors refused to give her the second dose. So basically dumbass anti vaxers like that guy keeps society from reaching herd immunity, so people like my aunt won't have to live in fear anymore.
@@machshfive This is why they first make you sign a waiver regarding your allergies and/or history of allergic reaction to vaccines. This is what makes me laugh about this argument: the prospect of the vaccine being wholly dangerous because some people have allergic reactions to it. I suppose peanuts must be even more dangerous. Where are the Facebook groups advocating for the great peanut ban?
I really appreciate you adding in the information about her abuse both from her mother and doctors. She wasn’t some crazy, stupid woman. She was sick. She was desperate.
@@notmbr maybe you should read it. There isnt a reference to this specific case, just studies about cases like this. Something like this might have happened, but KJ doesnt exist. Most of these Videos are representative, very often they are amalgams of multiple cases.
For those of you questioning why anyone would do something like this I'll give you the answer: chronic illness and pain will make you desperate for relief even if it's just temporary because it's extremely exhausting to live with constant pain, it's all you can think about. You lose enough function you may become desperate enough to try anything. For those dealing with chronic illness and pain, just know that although you feel like a failure, you are one of the strongest people on the planet. It takes great mental and physical strength to push through something so debilitating. I salute you fellow warriors 💜
I've previously had dental pain for longer than a week and even that started to make me desperate for relief. I can only imagine chronic, constant pain.
Did anyone else do the science experiment in school where you put hydrogen peroxide on a piece of liver? It starts bubbling furiously because an enzyme called catalase breaks down the hydrogen peroxide into water and oxygen bubbles. Very cool! The chemical equation: 2 H2O2 => O2 + 2 H2O
@@mrnoobskool1 Ahh thanks so much for checking it out!! I've got plenty more fun and entertaining medical content planned out (think Chubbyemu cases + Doctor Mike reacts + Dr Glaucomflecken skits!) But it's tough finding the time while being a doctor! 😂
It is such a cool experiment. The reason that catalase exists is because your body naturally produces hydrogen peroxide which is really bad for you so your liver gets rid of it for you. I think potatoes also have some catalase for anyone who wants to try outside of school
IN the USA some illnesses like mine mean you basically have to win a lottery to buy the health care you need. Some illnesses demand hours of diagnostic time not to mention $$$$. For most normal people, it just doesn't happen, and we suffer, in my case going on 14 years of barely worth living when at best 10% is all you get, the rest of the time is in misery. You likely have a close neighbor who is bed bound or house bound, suffering in loneliness. Health care MUST be regarded as a human right, not based on having enough money... Putting Profit over People is uncivilized, period.
That's bcuz some work for the CCP meaning the hospitals/ clinics follow there dangerous PROTOCAL which rewards them handsomely $$$_ The good ones left incl. nurses, etc. When crimes go unpunished we end up with massive corruption, 🤔
Yes the real problem is the handling of it...mainly it being unlabeled. But it makes sense there is now a narrative to take H2O2 off the shelves. It is working to kill a lot of the engineered weapons our government makes. You don't see them going after fluoride which has millions of deaths from accidental ingestion or bleach or ammonia etc... no no that's fine drink all that you want. But h2o2 get it off the shelves.... so the war begins....smh
This poor woman. Having her health issues downplayed by loved ones and doctors is something I can unfortunately sympathize with, and the fact that it led her down this path is heartbreaking. When chronic pain and health issues are as bad as hers, you really will look for any type of relief, and these types of unsafe and unregulated alternative medicine practices are just the thing that people like her can easily fall victim to due to desperation. It's such a shame. My heart goes out to her.
I had a girlfriend decades ago who was ignored by doctors and ended up with permanent joint damage from Lyme Disease that doctors said was impossible. When they finally tested for it, it was too late to do anything about, and in her 20s she was walking with a cane. I was present when the doctor finally agreed to test for Lyme and it came back positive. As a young woman, her complaints were routinely dismissed or downplayed by both doctors and nurses, even when other people spoke up on her behalf. I understand the desperation many people feel. Which makes me even more angry at the charlatans who peddle harmful snake oil to them.
@@evonekky3672 - Agreed. This was in the 80s. Many doctors still weren't convinced "normal people" could catch Lyme. I think some doctors in that era weren't fully convinced it was a real disease affecting a non-negligible number of people. It's symptoms were non-specific enough, just like many autoimmune diseases, that her doctor thought it easier to assume she was a hypochondriac. Or whiny. Which, given women typically have a higher pain tolerance than men, is absurd and silly and offensive. I notice today, when I bring my teen daughter to a doctor, the doctors will talk directly to her, occasionally consulting with parents. It's a big improvement.
This is due to misoginy. It's assumed that women will complain a lot by basic pain. It also happens to black women. Doctors assume they can suffer more without breaking, negating pain medicine as well. Sadly...
I have an exceptionally rare genetic muscle disorder, but I got tested for Lyme disease like 5 times before I was correctly diagnosed because no doctor wanted to be the one to miss it. That's good for all the people with Lyme disease. Lupus, too. 🤣🤣🤣🤣 Thyroid disorder and a RA have also been in the list.
As someone with multiple invisible disabilities, all the gaslighting, especially from the mother, shrugging everything off and not taking her seriously, hit me really hard. My symptoms were downplayed and ignored for years
My narcassistic mother did not believe me when I said I was going to have a seizure (I was epileptic) and would tell me to go back to bed etc. Sometimes she did not even take me to the ER when I was convulsing. As an adult she refused to believe I have PTSD even after my profressional diagnosis and she tells everyone I have bipolar and I am avoiding her to attention seek. Some people do not deserve children
@@jasonstewart3748 That's one big prediction, considering you don't know me. I don't want children, anyway. I just want dogs I now work on training service dogs for other disabled people like me, because program dogs can cost 30-50 thousand dollars, and that means many people that need service dogs don't have access to them. I guess I am a bit of a helicopter parent to my dogs though lol
@@freyatries3895 One unreputible doctor discredited one of my conditions once, and she still uses his words to make my conditions feel unimportant, it wasn't until I started passing out and actually injuring myself from falling that she even considered getting any other opinion, even though that's what I'd wanted for almost a year
Man. Hearing about the mother downplaying every symptom, especially during doctor visits, and telling her daughter to just suck it up reminds me of my own experiences with my mother and my Ehlers-Danlos. I too have had symptoms since at least age 6 but I went undiagnosed until I was 23. Medical neglect by a parent is a *serious* issue.
Any neglect by a parent is a crime against God's natural order. Been there. But he can use those things to make you stronger. Every situation is different. I pray for all children. I think someone prayed for me, or I wouldn't be here.
@Julie Olson I hate it when people rationalize that their suffering is part of "God's plan." Why would a caring and loving deity force their children to go through Hell on Earth? Why would your god specifically plan for people to be evil? This is why I'm not a Baptist anymore. It's more understandable to say that bad things happen and your god offers love and compassion to the people. You're just trying to justify your suffering. Suffering doesn't make anyone stronger. My PTSD and heavy dissociative symptoms don't make me stronger. They make me jumpy and make me have flashbacks and trust issues.
@@isthiscereallife Then you got off easy for now. It will get worse. This isn't His doing. He didn't create evil. But He's a good scapegoat when we want an excuse. When you really want relief He'll be there. But you don't want it enough yet. You're still too young, and would rather listen to this world.
@Julie Olson Ah, there we go with the bigoted "you're too worldly" business. I'm disabled, I'm gay, I'm trans, I'm mentally ill, I associate with and am related to Jewish people. How worldly is that for you? Am I satanic enough for you yet? Trust me, without a god in my life I'm much better off than if I would have stuck to the religious extremism that US Christianity tries to push. Religious extremists blamed me for my sexual exploitation as a minor. The fact you're trying to threaten me with your god proves that the Christianity you people push is nothing but zealotry. Your god is not the sadist you so desperately want it to be. Why can you not accept that maybe your god doesn't have a plan for you, that your god may instead shed tears alongside you in your darkest hours--because things in life happen for the sake of chaos, without pattern or reason. That sounds much more like the compassionate god the bible supposes it to be.
@@julieolson1402 What a Great example of toxic gaslighting! Thank you for reminding me why I'm a gay Wiccan transman. I never would have even looked into other religions if it wasn't for the contempt, the gatekeeping and the pithy condescension of good Christian ladies like yourself. Keep up the good work! The more people that good people like yourself drive away from that patriarchal, victim blaming mess so-called "Christians" like yourself have made of Jesus's teachings the better. May the rest of your days be as pleasant as you are. So mote it be.
You're telling my sister's story here. She has been a guinea pig for every RA drug to come out. Thirty five years and she has two artificial knees. She is getting a new shoulder. She is blown up from Prednisone because each drug stops working over a few months time and it is the only thing to relieve pain. She is depressed from all the failures and the older she gets, the more she thinks of ending it all. Only her dog keeps her here.
I have a friend who's a nurse practitioner. She once told me one of the most powerful diagnostic tools she has is just asking people what they think is wrong and hearing them out. Sometimes they're wildly wrong, but apparently most of the time people have a pretty good idea of what's going on with their bodies.
I agree. Listening is important. It gives you a beginning to go on. My husbands bp was always too high and needed bp drug. One fateful month his BP dropped consistently low, 60/40 and lower. Nurse P decided to listen to him say it’s prob a flu. Five more days went by, still very low off his drugs. She kept saying it’s prob flu. He died right in front of me. She should have sent him for a heart consult immediately or hospital. I had kept telling him, think of a car, it can’t run without oil pressure. Something is wrong. I’d called the office repeatedly. No one listened, nurse left for Florida for two years.
That line of thinking while not wrong isn't 100% right either. Hell while I do have auto immune disease and severe psoriatic arthritis because I dressed well, had a great career running the electric grid, and complained about old injuries I was sent to pain mngt were I was able to obtain enough pain killer's strong enough to drop an elephant for a long time until I lost a decade of my life and almost lost my life! Dangerous viscous cycle and hardest thing I ever faced was getting myself clean but I was able to without any intervintion or jail time but 2 year's later I was finally confident again and sober. If opiates are involved please don't let your kids or spouses take this shit unless they are dying or compound fracture occurs because once you go so far the withdrawal will ruin your life because it's so bad you become helpless luckily I remembered how great a life I had and became determined to keep living! Never will I touch another Vicodin or Oxycodone-Oxycontin, fyntenol it's all terrible and you will never vacation or do fun things again once hooked because your either chasing down your nectar score, pawning shit to pay for it after all the money's gone. If I reach 1 of you then I'm succeeding.
@@TexasGrown1978 That's true. I think her point was that listening to the patient is the best place to start, instead of making up your mind and then stubbornly dismissing them. It's probably worth mentioning, too, that she's spent a significant amount of time practicing in parts of the world where she wouldn't have had access to much sophisticated diagnostic equipment, so I think she had to learn a lot more less precise "rule of thumb" types of working, just to be able to do anything at all. In that case, carefully listening to what your patients are feeling and how they interpret those feelings might in many cases literally be the best you can do.
Props to the nurse who suggested seeing a specialist! If it wasn't for them, it would have taken so much longer to be diagnosed. Sad that the nurse didn't feel comfortable sharing their thoughts with the doctor/s.
Nurses are supposed to advocate and stand up if they feel a mistake is being made even if it puts their job at risk.....she backed down.......not great
Doctors and pharmacists often care more about their fragile and inflated egos more than their patients. It's tough to find one who actually gives a damn. Sad, especially considering how much we pay here in America just to get worse care than Cuba.
@@nmxsanchez unfortunately that’s true. The best thing to do is not back down just because they ignore you. It’s your body and you know it best so don’t take no for an answer if you feel something is wrong.
It’s not that easy. Often times, nurses can be talking until blue in the face and doctors still won’t listen because “they know better” and “you’re only a nurse.” Source: a nurse
I was diagnosed at 55 with SLE, I had it since I was 9yrs old. I went to doctors for 15 years, went through 20+ doctors only to be told IT WAS ALL IN MY HEAD. I was afraid that if I was told it was in my head one more time I would harm the doctor who told me that again. So, I went from 26yrs old to 55yrs old without seeing a doctor. Then I had a flare that almost killed me. I survived, but it took 8 years to recover partly enough to do much of anything and left me with damaged lungs and heart. I am a man, and I was told by doctors it was not possible to get SLE as a man, only women get it. I took upwards of 20 ibuprofen a day just to get by for 25 years, the damage that did is still there. I hope more people, especially doctors, learn about SLE. Thank you for this video, may everyone who needs it see it before it is too late.
Try dandelion salads and tea, morning cup of warm lemon water, grated teaspoon of ginger tea, teaspoon of dry turmeric tea...everyday have each of these teas and cut out or extremely down on sugar. Keto diet is very beneficial. Godspeed.
As someone with chronic illness, I appreciate you providing the context for this incident. The whole reason people get caught up in these "alternative medicine" grifts is because they've slipped through the cracks of the healthcare system. When people are desperate for answers and relief, they're vulnerable to these sorts of things. God knows I've gotten all sorts of advice for "treatments", some of which were flat-out absurd, some of which were temptingly plausible. I at least have the advantage of a science background to help me figure out if something's a good idea or not, but people who don't have that are at the mercy of the people they're surrounded by.
She wouldn't do that if doctors that she met were actual good doctors instead of pathetic losers who only act as one. Listening to someone else (her mother) instead of the patient who experience the symptoms is one of the biggest proofs that she met failures instead of doctors. Simple as that.
@@senjusan6359 Or overworked poor sods who could barely keep on their feet, let alone think clearly. Now ... that might be in part because the healthcare systems around the world are being ground down by covid (amplified by idiots) and politicians (elected by idiots), so it comes all back down to stupid people in the end anyway. But not necessarily the direct cause.
@@aenorist2431 This has nothing to do with covid, this kind of situations are happening everyday since the advent of allopathic medicine. This is nothing new, it will happen just like it always did simply because a lot of people who go to study for this profession are doing it mainly for financial reasons. The root of the problem is the love of money my friend.
@Ae Norist This happens a lot. We'll before COVID was a problem. Yes, the way health care is setup right now does not provide optimal results but it should read as obvious that her mother does not live in her body and her statements should be ignored, except where obvious as in "No, I'm not consenting to you doing xyz to my minor daughter". Is her illness the doctor's fault? No. It is their fault that it went on for so long because they can't do the obvious of listening to the * actual * patient.
As someone who’s dealt with chronic health issues and was downplayed by doctors and family for fucking years, it made me want to cry hearing her story. I have permanent damage too. So many people have. So many people have been brushed off by doctors and been called drama queens and hypochondriacs and it’s just so frustrating. It makes me feel really bitter honestly, but especially so when I see those shitty people online who prey on people who don’t know any better. They shell out their snake oil to people too sick to critically think about it. It’s just so frustrating and I see the comments all over Instagram where people post their stories where people are like buy my shady products.
The world of nutrition is chock full of snake oil salesmen. It makes the search for the truth so damn hard. I like to learn about vitamins the body needs and legit anti-tox chemicals, such as garlic being an anti-mercurial and cabbage, cauliflower and broccoli being hormone stabilizers because of Indole-3-Carbinol. But for every piece of truth I've found, I've had to sift through hundreds of lies.
I haven’t been pushed to drinking peroxide or going for snake oil quite yet, but I’m in the same boat. Grew up in a family where you didn’t need to go to the hospital unless you were physically unresponsive or had a shown broken bone. Then I joined the military and the special operations community, which is all about keeping your mouth shut with personal health issues. I had been shot in the chest with a 12 gauge overseas and I walked it off to complete the op, turns out I was pretty close to death by the time I got to the corpsman. These days my wife physically had to force me to the ER after my appendix had burst, I went the next day despite the pain because I figured it was nothing. Same thing when I had bacterial meningitis last year. It’s rough, man. It can be really fucking rough having consistent health problems in a family and community like that, and I still haven’t “grown” out of it. Figure I can be honest since this is UA-cam lol
This story is ridiculously heartbreaking. I can see how someone would get so desperate to just make the pain stop that they'll try anything. (I love the new student notes, BTW. I'm not in any shape or form a medical student, but it's fun to look up and learn for the sake of learning. Probably wouldn't be watching these vids if that weren't the case.)
This is a near exact narrative of my life story. I was called a hypochondriac as a child and turns out my immune system has been attacking my muscles, joints, and liver since I was a child. Moral of my story: take it seriously if your child if tell you that they don't feel well, please LISTEN, BELIEVE, AND INVESTIGATE because you are your child's only advocate 💜
Some of this reminds me of what I had to deal with when my celiac disease went undiagnosed for 20 years because doctors thought I was exaggerating and being dramatic.
i was diagnosed in childhood and have memories of pooing in ice cream containers for samples and eating the most cardboardish gf bread. now the food on the market is much improved... my kids dont tolerate gluten either and they are lucky I have the knowledge of all my years of being dosed by things not expected, like fry oil carrying crumbs or products that changed over the years and now not gf. At 40 i ended up hospital with diverticulitus. This lead me to increasing foods with fiber and pre and probiotics. It's been a blessing and a curse.
I'm sorry you went through that. We need more reform then just insurance reform. We need better medical professionals that care about patients more than their inflated egos.
@@Avrysatos Exactly. Overweight? Stop eating 5 large pizzas a day and drinking gallons of Coke. It couldn’t possibly be a thyroid issue or your hormones so we won’t even do a simple inexpensive blood test. Yeah stop being a couch potato. It amazes me amount of education required and yet almost all we get are douche bags.
I have a friend with autoimmune issues. She’s told me many stories about how people just don’t believe the symptoms she’s having or that it “must be worse in her head”. I feel so bad for having to deal with that when you feel so awful, it must destroy your esteem. (She is an incredibly strong person and still fights hard every day to be “normal”. She’s one of my best friends and is starting to finally get a good sense of self worth from some supportive friends.)
I suffer from recurrent kidney stone disease, which means I form lots and lots of kidney stones and am passing them nearly all the time. You have no idea how maddening it was to hear people say things like, "It's just a kidney stone." Just because I've dealt with the pain so long that I rarely have extreme reactions to it doesn't mean I'm not in so much pain I wish I was dead. If they ever have a stone attack, I hope they remember saying that.
You always take someone's claims of pains and issues seriously. When I was younger, everyone doctors, mom, family, thought I was being overdramatic about about how painful my periods were. My entire young life was spent in really severe pain. But I wasn't bleeding, so they thought I was just being overly dramatic. As an adult, I finally saw a doctor that did take me seriously, and it turns out I had polycystic ovarian syndrome, and the reason I wasn't bleeding was due to a hormone imbalance, and I had a massive buildup, years and years, of uterine lining that was never expelled. Doctor said I was lucky that I didn't develop cervical cancer. At 21 years old.
jesus christ, i'm so sorry you had to deal with that. In australia, most doctors take period stuff super seriously and are more than happy to prescribe hormone medications anytime someone states that they have issues with periods and during my teens it was always so enlightening to hear about how the people I met got their birth control medication and the other ways that birth control helped them. It's a shame this isn't as common as I'd like it to be.
Gosh. I’m so sorry. I know I’m just some rando online, but I really am proud of you for seeking out a good doctor. I sincerely wish you the best in your treatment
I was always told “you’re too young to have back pain.” Got a chest X-ray when I was getting tested for the flu, and it turns out I broke a vertebrae at some point in my life.
Though not a gynaecologist I had diagnosd many of my young female patients with PCOS wen they were referred to with just pain in the lower abdomen and after the scans was I proven right. Though this symptom is often downplayed by many at home and at the medical level quite a lot of young female patients suffer from this nowadays.
Same thing happened to me except it ended up being endometriosis. It can only be diagnosed via laparoscopy, so I had to fight to convince my doctor to look inside. Everything felt so much better once they removed the lesions, and it’s frustrating to think that I could’ve gotten relief sooner if the doctor had listened to me.
I have Hashimoto’s autoimmune disease and before I was diagnosed I remember explaining my symptoms to my doctor and how it was very difficult to swallow/talk, almost as if my tongue was swollen, and how it was even difficult to coordinate walking at times. She said it was all in my head and told me to take an antacid and I suffered for years. I suffered getting an engineering degree with advanced Hashimoto’s disease to the point where I felt barely alive. I really do sympathize with individuals with invisible diseases. Don’t feel like you’re stuck with 1-2 doctors. Fight for yourself always.
What has helped you ? My fiancé has a mass on her thyroid . Same symptoms you wrote. Also losing hair and weight gain . The menstrual cycle has been over e weeks . I had to take her to the er. Apparently she has a cyst as well.
@@Goat_65 I’m so sorry to hear your fiancé is going through that. I also experience odd menstrual cycles and hair loss. What helped me most was being prescribed Levothyroxine. It took a few years to get the appropriate dose that made me feel “normal”. Even still, I don’t have the energy I once did and have strange symptoms here and there. It will always be a battle, I’m afraid. Over the years I have discovered that prolonged stress on the body (emotional, physical, or “nutritional”) causes “flare-ups” or short periods of feeling very ill. To lessen these occurrences I manage daily stress, get a lot of exercise (but give my body more time than others to recover and not push to my limits), carry a water bottle around to hydrate (helps a great deal), and stay away from sugar and breads. My doctor prescribed 1,000 mcg of vitamin B-12 daily that relieved the difficulties with walking. I hope your fiancé can quickly get her symptoms resolved. It can be an exhausting disease to get controlled. If you have any questions please ask. I’ve experimented with many things throughout the years trying to find a sense or normalcy.
@@Goat_65 Also, if the mass is benign, levothyroxine can help prevent the immune system from attacking the thyroid and reduce her mass, or nodule, on her thyroid.
"Her mother downplayed her symptoms" maaaaan I feel that. My mother swore blind through my childhood that I couldn't _possibly_ be lactose intolerant and I was just exaggerating not feeling good after eating something with a lot of lactose. Decades later I use lactase on a regular basis for my lactose intolerance. Doctors need to learn to not instantly take a pushy parent's word for whether a kid has problems.
My pet peeve. When parents do not listen to their children & brush things off. This only exacerbates the child’s inability to fully feel safe and heard. Uneducated & selfish parents are dangerous parents to our children & our future. It is indeed the most challenging of Life’s choices to parent. We all learn and many times in the hardest of ways. Blessings & the best of health to all💜
@@banclaster8086 subscribed to a channel that questions if the nazis were right wing or not. Man I hope you see whats coming before its too late! Otherwise have fun wondering how you got there
teens need a confidential environment to speak to doctors in. the doctor should have said ''we'll have a private chat with her.'' that should be standard
Doctors should always make sure that the actual patient gets to talk. And NEVER just brush things off. Having worked in emergency services I have seen patients being talked over by their partners or parents, to the point that they directly contradicted what the patient stated. Patent states „I have a headache“, other person says „No no, you have just been feeling a little under the weather“. This story makes me really mad. It was so utterly avoidable it is almost comical. Sure, hindsight is always 20/20 but still. This did not need to happen. 😢
Thing with doctors is they can't dismiss what parents say aswell since the parents should know more about the patient and the parent pretty much made the case that her daughter is a Hypochondriac "a person who is abnormally anxious about their health." and evidently came to that conclusion coz when you can't explain the plethora of symptoms the patient described what else can you say? and yes that means the doctors she visited weren't skilled enough to make a diagnosis and the parent made it even harder since it's an Autoimmune disease and that's really hard to diagnose to begin with. Alot of things come in play when it comes to diagnosis and it's nothing to scoff at and imagine going to a police station and getting mixed information you wouldn't know what to do with the contradicting information and forced to a diagnosis considering this mixed information so even if the Doctors made the patient talk the parents observations can't be ruled out just coz they are what they are. It's a rough thing and a sad sight to see and it's the parents fault for being too dismissive portraying her daughter as a Hypochondriac. It's nice when i heard she did make a full recovery, always glad to hear that. This is what happens when loved ones play doctor in the house, like everybody has an opinion regardless of lack of medical training and doctors need DATA and not IDEAS coz they are the one to turn the DATA to IDEAS and not the other way around and they don't need that help coz it just makes things more complicated than what they really are.
I've made a policy of interviewing both parties separately when that happens. Parent/relative/spouse leaves the room while we get the patient's story, and then we can get a brief history from them outside the room. I seriously can't stand people talking over each other when I'm trying to get a brief history - even if they agree with each other. One person speaking at a time, please.
I have lupus too and man I remember my family telling me it was all in my head and to stop being so lazy, and I was just in so much pain both physically and emotionally that I contemplated... well that unaliving thing. My doctors thought it was arthritis and gave me meds that didn't work, it was a horrible time as they didn't really want to diagnosis me with lupus. It didn't change until I had to be hospitalized because I was quite literally near deaths door. Thankfully I am well and still here, taking my meds and living a fairly normal life.
I feel I'm in a similar boat here. I have so many problems and I feel so awful all the time and It's only getting worse. I got pneumonia and lost part of my lung and that impacted my energy levels but nothing too bad. Once you have a bad bout of it you are more likely to catch it again and like clockwork I caught it the next year and then I also got bit by a tick at the same time. I haven't felt the same sense. I guess I feel like I never recovered from the pneumonia, like I feel like I'm coming down with a cold (burning up, achey, lack of energy) daily on top of tons of other problems that looks similar to Psoriatic Arthritis. The doctors say "everything looks fine" but I don't feel fine.
If you come up with chest pains and numbness and are being checked for heart disease, have your blood checked for vitamin deficiencies. Heart attack in 1998, quadra bypass surgery in 2002 in 2012 and the eleventh stent that broke plaque loose and they had to get me back, I decided to throw away my bag of medicine and if I'm going to die I'm not spending any more on chemicals so I threw out the chemicals, a doctor new at the practice did a blood test and found me low on Vitamin B, she put me on B12 shots, from 2012 to 2020 I gt the shots and no heart problems, 2020 a not so knowledgeable southern doctor didn't understand the difference in 2012 and 2020, so he decided I didn't need it and medicare doesn't cover it. They rather pay $100,000 for surgery and after 75 they don't want you drawing social security anyway.
As someone with lupus, this was terrifying. I’ve gotten a lot of unsolicited alt-medical advice from well-meaning people but this was a new one to me. It’s usually just oils, vitamins, and supplements and I always reply “I’ve got an amazing care team of many talented doctors but thanks for your advice“ I don’t think I could let this go without advising how bad of an idea this is. Lupus can be hard to diagnose and treat, and living in pain isn’t easy. My heart goes out to this woman, her life just got a whole lot harder. I’m glad she landed in a great ER.
O2 therapy is very very beneficial and helps with a lot of things I’ve been doing it for 3 years I have extreme candida through my whole body. The o2 therapy has been a life savor. The problem isn’t the food grade peroxide it’s that she didn’t dilute it you literally have to take drops diluted in a lot of water,
I have a question for you. Have you had a lot of stress in your life, or any trauma, or traumatic events? I ask because I was covered with Eczema for the first five years of my life. It’s also an autoimmune disorder. I learned many years later in a college class on Child Growth and Development that Eczema is a psychosomatic (mind to body) reaction to stress. It made perfect sense to me, not in that my early childhood years were stressful, but that my father died test piloting a new jet while still in the Naval Reserves in 1952, and my mother was just 3 months pregnant with me. And with two little boys in tow, I was to be her third Caesarian Section, unheard of in those days, thus quite risky. Suffice it to say, her stress became my stress. So that’s why I’m asking you about stress and trauma. I have heard that stress and trauma cause autoimmune disorders. Austrian (?) Psychiatrist Bessel van der Kolk and Canadian Gabor Mate, MD, have both written books on this issue. And both are here on YT. Your thoughts?
STOP EATING ALL PLANTS. Eat meat and only meat with plenty of fat on it. Try it for 90 days. Many have had autoimmune disorders disappear or at least greatly diminished doing this. You have nothing to lose.
Hope your fight with lupus is going your way. It does not take much time to take a look at HP and its benefits..... if used properly I will absolutely not harm you in any way. This lady messed up really bad and to put the blame on HP is just wrong. Pretty much anything taken in excess will more than likely damage you in some way. This talking head clearly seems to be in big pharma's pocket. HP taken as directed is not in any way dangerous. A friend of mine cured his cancer along with traditional medicine and HP. There is a FACT look it up cancer can not survive in a highly oxygenated blood stream. That is what HP does for you if used properly it oxygenates your blood.
last month I was searching online to see which one would be a better disinfectant for the house: alcohol or peroxide. as I searched about peroxide, I stumbled upon medical grade and food grade peroxide, and saw warnings that food grade peroxide shouldn't even be purchased by households due to safety issues, which included an anecdote of someone accidentally drinking food grade peroxide kept in the fridge (I was also wondering why the heck would someone store peroxide in the fridge), and turns out this video now is about that exact incident :)
It's stored in the fridge because cold temperature slows the natural decomposition so it lasts longer. I do agree that there are very few good reasons to have 35% H2O2 at home. In my case chemistry is a hobby of mine so I have some for that purpose - but drinking it would be crazy. I wear gloves and goggles when using it because when I've gotten a drop on my skin accidentally it forms a callus because it kills some of the skin cells.
@@sbreheny yup, for chemistry purposes and other hobbies, it is definitely okay to keep stock in their respective houses. Most likely, the medical journals discourage regular households from buying and using that strength of peroxide probably due to the stronger fumes during use, and the problems when inexperienced household members spill it onto their skin. so, as a result of the search I did, I settled for both a gallon of isopropyl alcohol and a gallon of 3% peroxide to order. I had to resort to alcohol and peroxide as surface disinfectant in the house because bleach is too cumbersome to prepare, plus the bleach fumes and the leftover diluted bleach only lasts 24-48 hrs in the spray container. :)
@@KatzenwagenTV Why are you in need of a "household dissinfectant", though? I mean, unless you or your relatives suffer from some illness making you prone to infections, like, why dissinfect your home in the first place? A whole gallon of isopropanol is quite a bit, what are you doing with that? No offence, just asking out of curiosity.
@@bagniacz3264 main reason is two elderly parents. another reason is coz my brother, who is a doctor who works at a hospital, prefers to have his shoe soles disinfected before entering the house, so a disinfectant-soaked door mat is used. our mom is also a doctor, private clinic, and she just wants everyone here to be safe not just from covid but also from other stuff. :) one last reason is that the gallon of alcohol and peroxide both cost way cheaper than the regular 500mL and even 1L bottles. :)
I appreciate that Dr. Bernard doesn’t mock these people, and yet barely contains the rage that surely comes with actually knowing how the body works in its incredible complexity
This whole video was mocking alternative health forums. He seems to be focusing on this subject exclusively nowadays....often ignoring the fact that the therapies were not used as suggested, just as conventional therapies can be misused and cause issues.
@@ValCronin Issue is that she somehow cam to this conclusion, because the alternative therapies aren't well defined since there's often little to no genuine data behind them.
@@ValCronin While I'm a bit sad this theme has been going on for so long (I'd like some different stories from time to time), I think it's because he sees a lot of the fallout in his work and is in a position to do something against crazy ideas on Social Media and speculative internet forums. So he has a reason to want to make people a lot more careful. And yes, that may seem like mocking to you as you are apparently a user of alternate health forums (and propably for a reason). But he's trying to get through to you that even if a bunch of doctors misdiagnose you for whatever reason that doesn't mean you should give up and grasp for straws from people who never studied organic chemistry! Or worse: take an alternate medicine too far because you're desperate. The main problem with this and especially internet forums is that it is a whole lot easier to misunderstand or misuse those therapies. A doctor will only prescribe you so much and expect you to report how it goes so he can reevaluate. There will be specific information on how to dose, what kind of side effects there may be (they even list side effects that where never actually reported but could *in theory* arise) and when to be worried or not take the meds. Additionally, someone else will be aware you have a specific prescription. So doctors will have clues if anything does go wrong and "VC is admitted to the ER". You don't have that for "alternate meds" as you call them. No studies exist or if they exist they point out serious problems or lacking effects which is why the med is *not used* in modern medicine. Trust me, the pharma industry is the first to make money if something *is* proven useful. You're free to use yourself as a test bunny for your own illness if you feel the need but always make sure to ask someone with inside knowledge of medicine (attested, so you can be sure they are relativly prone with organic chemistry) before taking alternate medications of any kind or dosage. Or at least go to a professionial "alternate" doctor rather than a forum where you can never be sure "Dr. Sunshine" is really who he claims to be.
@@ValCronin People should check the info in the alternative treatment they're looking for safe or not and true. A quick google search if said treatment is safe or complete Bullock's is enough.
Man, this woman’s case hit really close to home for me. My dad often speaks of his cousin who had lupus, and very sadly ended up taking her own life after years of pain. My mother has rheumatoid arthritis, and is one of the strongest people I know. My heart goes out to this poor woman.
To cure arthritis is simple, 1 TBL spoon BORAX in 1 ltr water, shake it up to dissolve and put in fridge. Each day mix 1 tbl spoon of solution in juice and drink. Usually takes a month. Share, it works!
The PTSD with parents and doctors ignoring/gaslighting is so real. Being diagnosed with Autism at 31 years old caused a grieving period. Parents, stop ignoring your children.
@@angieskidney she doesn't deserve it. Find a new care provider. Likely, the care provider is giving the impression, that your mom doesn't need care, to the insurance company. Get a new care provider fast, record them, report them, do whatever you need to take care of your mom. She deserves real care.
as someone who’s mother kind of gaslit me into thinking that my symptoms were bullshit when it came to mental health, and doctors thinking legit symptoms of what was later found out to be a 4 cm ovarian cyst after multiple times being hospitalized for my anxiety, which was triggered by the physical symptoms i was having, i relate so hardcore with this person’s struggles. i hate it when i’m not heard about my body.
Doctors tend to think women are making things up, there's also a tendency to believe black people exaggerate pain symptoms for some reason. It's bizarre, and it's a big part of why people don't trust doctors. That and the whole wringing-you-out-for-every-dollar-you've-got thing. It's no wonder people fall for these home remedies.
The lifelong struggle of mom chalking all aimnents down to a combination of laziness & hypochondria. & the cause for her denial is likely obscene doctor fees.
@@viktorg6823 If you are serious, just google data on it. There are many publications that suggest people get better care from people that look like them and disenfranchised groups are often considered exaggerative, and their problems are overlooked. It isn't an ALWAYS thing, but it does hinge on implicit (unintended) bias, most frequently. This is cited in both medical societies and from inclusion diversity equity and accessibility (IDEA) aka diversity equity and inclusion (DEI).
as a kid I was always scared of dying from sickness, now I'm scared of dying from negligence or accidents when being treated for sickness. Personally I've had mostly positive experiences in medicine thankfully, but it's still always in the back of my head since I know some people do have the bad experiences
when i was 5 years old my grandfather got sick at Christmas, his birthday, and ended up being prescribed a medication that he was allergic to without proper allergy tests being done before hand and ended up dying as a result. He was an 'old school farmer' who had never gone to the doctor for anything in his life. My mother had begged him to go and see a doctor because I was 'old enough to understand Christmas and she wanted him to be well enough for it and his birthday'. This was early 1980s. My parents are 'old school' themselves and decided the medical mal-practice would be forgiven because the family doctor was a 'family friend' ...but ya needless to say I am extra inquisitive of all medical people. They are human like us and make mistakes and guess like us.
Personally, I've only experienced negligence...but I have a rare form of an already rare disease, so I have their "you're on your own"-remarks justified.
"It's just water with an extra oxygen!" If anyone ever suggests that a single atom can't possibly change a compound enough to worry about, remind them that an atom of a metal that explodes on contact with water can be combined with an atom of a highly lethal gas to make TABLE SALT.
Bro, I researched this 6 years ago, and food-grade H2O2 is to consume as long as you take in the right amount. I mix it with my water starting with 3 drops per drink 8 oz and increasing it by 1 drop till it reaches 23 drops per drink. I did this for more than a year, it didn't kill me. I am not in any way suggesting my routine, it's more of an example to sure you that like any other medicine, overdosing can be lethal
@@georgejosiah8030 The dose makes the poison. You diluted it with water so that it was less toxic to your body and your liver could get rid of it safely. That doesn't mean it's not still toxic though, you just diluted it enough that your liver could manage it without causing major damage to your tissues.
Hey food scientist here! I want to explain what food grade means. First of all it doesn't mean that you can eat it. It just means that it doesn't contain deleterious chemicals like heavy metals. Hydrogen peroxide is often diluted and used as a disinfectant at food service establishments after washing dishes. If hydrogen peroxide is not food grade it can contaminate the dishes with heavy metals and then they will later come in contact with food and may cause health hazards.
I don't think this man gets enough credit for the break down of medical words to a point that's so easy for the everyday person to understand. Much love and respect.
Well should the actors of any shows get accredited with writing the script? As far as I'm concerned it's the same logic, he's reading a pre-written script... And this is in big farmers interest to have his video very popular which is why it was allowed to have a million plus views, which again points to him not writing this and it being a script. Seems like a classical trained dramatic actor to me not a doctor, but that's speculation.
Exactly. He teaches so much about the human body and gave me an actual idea of how it works. Thanks to Chubbyemu I'm thinking twice before eating anything sketchy or drinking stuff that I don't know the exact components of
It took doctors 40 years to diagnose me with lupus. A lot of damage was done before it happened. I had diagnosed myself at around 36 but couldn't get a doctor to agree until I was almost 60. Doctors can be very frustrating to deal with
That’s insane! 🤦🏽♀️ Homeopathic docs and naturalist are also an option and more often than not they often know just as much or even more than mainstream doctors.
Tbh a lot of doctors that are working today shouldn't be doctors anymore. We need some sort of recertification for the incompetent doctors around. All they do is prescribe you anti-biotics. They are many highly intelligent doctors around but most are held up in inaccessible hospitals.
I had all of the same symptoms as KJ, and my family thought I was being a hypochondriac. I ended up having 2 leukemias at the same time. I had to go through a ton of specialists only to be diagnosed by a pathologist during routine thyroid blood work
I was doing groundwater remediation (treatment) for an environmental company in South Florida. I was supposed to pour one (1) gallon of 50% peroxide, down a groundwater monitoring well. I was wearing neoprene gloves, rubber kitchen gloves and on top, heavy chemical resistant rubber gloves. All new. I filled a gallon water jug with the 50% peroxide ready to pour down the well and the peroxide had gotten through all three pairs of gloves, causing terrible burning and itching on my hands. After delivering the payload down the well, I washed my hands under a running water faucett for at least 20 minutes, before the disconfort subcided. I personally stay away from peroxide, unless it's the stuff one gets at the pharmacy.
It's even more sad in her case, because now she still has Lupus AND Rheumatoid Arthritis AND she has some amount of permanent damage from this incident on top of that!
“Food grade” doesn’t mean “safe to eat/drink”, it means “contains no hazardous impurities”. There are food grade chemicals that you can’t even use as small ingredients in a recipe, but they could be used to chemically synthesize something else which COULD be used directly in food.
Exactly. It means like say, they didn't cut it with lead, arsenic, or aluminum sulfates to make it go farther. It means it can be safely used to make cleaners and sanitizers for cleaning surfaces that may come into co tact with food. Like for plastics, it means that it can come into contact with food and *some* heat and not leave toxic chemicals behind or react with the foods. (but that doesn't mean that if your plastic "wooden" spoon melts into your food because you left it in the pot by mistake that you can or should still eat the food.)
@@sicfrynut I mean I'm sure food grade soy lecithin can also be used in edible food. Just that it is also used in non-foods. Soy lecithin is edible, so food grade soy lecithin is too.
Two scientists walk into a bar, One orders "H2O" drinks it and enjoys the water. The other says "Ill have H2O too", drinks it and dies. don't drink Hydrogen Peroxide, She could have used this joke in her life edit: Only in this late hour did I see the meme lord had used this joke before me, F
I went to an engineering college, and one of the first courses they made us take was chemistry lab safety. DO NOT FUCK AROUND WITH PEROXIDES was the number one takeaway. At some concentrations they are so unstable that even being careless while unscrewing the cap can cause a violent reaction.
i gargle with 3% hydrogen peroxide all the time and even sometimes brush my teeth with it. I use it to disinfect my kitchen surfaces. I used it along with iodine to disinfect a serious cut and it worked fine to prevent infection. I've used it to help heal skin rashes and it seems to miraculously do the trick. How it works is something I had no idea about. I know that rocket engines use hydrogen peroxide as part of the fuel system.
@@metaltrombone549 This vid taught me something. Why hydrogen peroxide doesn't come in clear plastic containers. It needs to be shielded from light. I love hydrogen peroxide. I use it as a light disinfectant and occasionally shampoo my hair with it. May be like once a year. These days I'm getting gray hairs so it really doesn't matter about bleaching. If I don't have some in the house, I feel a slight loss.
@@MissAdalia1991 ""Hydrogen peroxide does kill germs, including most viruses and bacteria1. However, it can be too harsh on the tissue surrounding the wound, and applying it may even make it harder for the wound to heal2. A concentration of 3% hydrogen peroxide is an effective disinfectant typically found in stores."
I had an extremely religious woman tell me to stop taking all my meds and say "Here I am God!" HIV meds, high blood pressure meds, testosterone from damage cancer did, and other important ones. I would like to eliminate as many as possible but she was way overboard. I'd be dead by now had I done that!
This story is heartbreaking, but unfortunately all too common. Many of us with chronic illness have been failed by the healthcare system, and out of desperation look to alternative treatments.. Thank you for including the back story of the patient’s mother and doctors gaslighting her. It humanizes her, and is a story I think the majority of those with chronic illness share..
Are we being failed by the healthcare system or the economic system and governance which allows insurance companies to charge us many times more what they pay in more civilized countries
@@isidoreaerys8745 as you could see by the backstory in this video- the healthcare system is just a tiny portion of the issue. Chronic illness awareness is the true fight we need to focus on. That alone will solve the at home, work, AND healthcare constant discrimination that is preventing us from getting the help and treatment we need.
It's demonizing Food Grade H2O. There are safe and effective protocols. I don't think I've ever met anyone in my 42 years that doesn't have a mind of a child
@@isidoreaerys8745 the healthcare system actually needs more competition to push down prices, not regulation that makes smaller clinics/hospitals go bankrupt
I appreciate that unlike another channel I followed recently for perhaps related grim content to mental health; that you don't throw her or anyone under the bus for the choices they ultimately made; driven by what happened and built up to their session in the hospital. I am thankful that you've avoided the temptation of any political or personal tangents to denigrate someone who's ended up so seriously harmed. It's deeply appreciated.
@@meganchristiansen99 No, it's more to deal with criminal psychology. Dr. Grande is more broad. Grande as far as I can tell between his Twitter and UA-cam strictly focuses on content . . . I sadly may be missing information in that case, but I hope you continue to do well.
@@MrAlex_Ravenoh I get what you mean. unfortunately Dr grande tends to do the same thing as those other ones. Its just harder to catch because its part of his sense of humor and comes across as sarcasm/jokes. Unfortunately good psychologists on UA-cam are hard to come by. However Mickey Atkinson's channel has been great from what I've watched so far
Just started watching these insane stories and I’m really enjoying the amount of information and explanations for each video. From learning about the breaking down to actually body reactions most people won’t go the extra mile. Greatly appreciate these videos keep doing your thing doc!!
Just very sad. Had her mother not downplayed her symptoms, it's possible she may have been treated for the lupus earlier, and possibly slowed the onset of joint breakdown...Parent's should take heed not to do what KJ's mother did.
I am a chemical engineer who works in peroxides. Specifically, I work for the company whose SDS sheet you used here (PeroxyChem). I just want to make clear that we do not sell peroxides with the intent of them being consumed for any kind of "health" purpose. They are sold for sanitation purposes, semiconductor manufacturing, rocket fuels, etc, but not for drinking. I realize that you simply used the SDS to show the dangers associated and that it is a HAZMAT, but being that it came up while you were talking about "the kinds of people who sell peroxides as medicine" I just wanted to note that we are emphatically *not* those people. The use of "Food grade" on the label should not be taken to mean that the chemical should be consumed, only that it can be used in food sanitation and production environments (Food grade sodium hydroxide is also sold and used for making pretzels, among other things, but consuming it in a concentrated form is highly dangerous and possibly deadly).
i don't find it difficult to believe at all. If something is listed as "FOOD GRADE", to MANY people who havent WORKED in a food industry, NOR a chemical industry, WHY would we believe differently? When we consider the fact that "peroxide" (in the brown bottle), has been used for over 50 years (that I"M AWARE OF). So yes, when a person is DESPERATE enough to resort to this level of craziness, I can understand her level of thinking. Though she used it in extreme, I remember many years ago, this was a "fad" going around for "sinus infection remedies". Some form of peroxide solution concoction, diluted to a specific percent, that we were supposed to take 1 tsp or 3 tbsp, or something.... When people get desperate, they WILL resort to a different "level" of spectrum. So what is the solution for this woman? Perhaps just "wait, to find a GOOD Dr"?
I use 3% hydrogen peroxide as a mouth wash and gargle. It bubbles all the slime and food particles in your mouth much better than those expensive mouth washes that have alcohol and stuff I can't even pronounce. It plainly states on the directions it's a first aid antiseptic and oral debriding agent. I also soak my mouth guard in peroxide that I sleep with because I have bruxism. I get my peroxide at Walmart for less than a buck verses a 5- or 6-dollar bottle of Listerine. Sometimes If I eat spicey foods I get acid reflux it caused me to have mouth ulcers. Hydrogen Peroxide is a good antiseptic my ulcers are gone in a couple of days. I definitely would never drink Hydrogen peroxide. However, I have seen videos of folks saying they drink peroxide and it healed such and such condition. If you are not medically educated don't be giving advice to people that don't know any better than to believe you.
as somebody who's been brushed off and eye rolled at by doctors for what may or may not be an autoimmune disorder (havent gotten tested yet for this reason lol) I appreciate your subtle dig at the doctors who didnt catch her condition earlier
Ugh big relate. That’s how my shoulder joint got destroyed :/ the first half of this video hurt to hear because i know what that feels like to be brushed off or downplayed even by your own family. And feeling like you need more and more medication to stay “normal.” SLE is a living nightmare, and i say that as someone whose case is pretty mild.
I went to a primary care doctor once because I had been put on "pain management" and was hopelessly addicted to the pain meds. My primary care doc treated me.horribly, I felt stigmatized....I ended up being junky for YEARS after that, feeling afraid, to seek professional help, due to guilt and shame. I FINALLY got broken enough to seek help in 2020, when I felt so hopeless I became suicidal. Been clean over a year now....it's incredible what a poor response from a medical professional can do to a normal person
The thing is, the symptoms of autoimmune diseases are usually non-specific, and there are a lot of people with symptoms that could theoretically be caused by autoimmune disease, but actual autoimmune diseases like SLE are extremely rare. So the doctor has to try and find the one person with a serious autoimmune disease out of dozens or hundreds of patients who have symptoms that could potentially be associated with such disease but don't actually have it. Usually the sign that the non-specific symptoms are in reality something serious are a. they last longer that you'd expect, or b. they evolve into something more serious. In both of these cases the disease will be diagnosed "late", and in hindsight it can be pointed out that those early symptoms that were ignored were the first signs of the disease. This can be very frustrating to the patient, but usually the doctor didn't do it out of malice or neglect (there are asshole doctors as well who genuinely don't care but they are a minority), but because he's met a hundred patients with the same exact symptoms and none of them had any serious illness, and that made him biased
@@exantiuse497 SLE is on the uncommon side, but it does not qualify as a rare disease. UCTD is a catch-all diagnosis for those who are showing some signs in their blood and body that could eventually grow into a full blown autoimmune disease, and it’s a lot more common. If you start someone like that on something benign like plaquenil if it’s looking vaguely like SLE, it can prevent evolution into a full blown disorder. I didn’t meet all the SLE criteria when i rolled up to my first and my current rheumatologist (lol to my misfortune, we got there eventually 😂), but at that point id been ignored to where my shoulder was destroyed, i had awful rashes, was sleeping 18 hours a day, and with that i had a family history of multiple autoimmune diagnoses. Plaquenil took the intensity down a bit and gave him time to keep watching me and it’s an extremely good thing he did. I could have easily been dismissed at that time and I wasn’t. I would’ve had to drop out of school, and based on my bloods that have been course-corrected he saved me from liver and thyroid damage, in addition to more joints that have flared over time. There is no reason to turn a patient away who exists in a grey area. especially if they’ve got something specific to a disease like a malar rash. I understand doctors have a lot moving through their heads and it sucks to have patients that exist outside of a neat box, but writing someone off as anxious or lazy is unacceptable. It may be the case in some, but do some due diligence first.
What I find super cool in all of these videos, is the ingenuity and innovative doctors can be to treat some of the strangest, abstract and difficult cases that you could possibly conjure. Respect to the doctors.
I absolutely relate to KJ being gaslit into believing all of her symptoms weren't as severe as they actually are. I have absolutely no comprehension of what's bad enough to warrant hospital/clinic visits because of my mom telling me I was being an idiot or dramatic. I've had to get over things like bronchitis and a sprained wrist with nothing but otc cold pills and advil. Edit: some of y'all in the replies are actually disgusting. I'm glad you're commenting here because if that crap found its way to someone who was still being effectively gaslit it could damage them beyond repair. I am not soft for wanting to take advantage of the FREE modern medicine I was entitled to as a Canadian minor. I am not ashamed of wishing I was taken seriously. Move on and stop villainizing victims.
@@nmxsanchez unfortunately I'm still going through it, but its a bit better now since I have friends who can actually distinguish a hospital problem vs a home remedy problem. Thank you for the concern though :)
That just made me cry. I'm very glad that you are aware of it now. I understand it too. Gaslit by mom, then again by that online community. She was doing the best she could figure out to do. It's impossible to know who to trust when the professionals aren't on your side either, which happens so often.
@@anne-marie8018 exactly :( it would be so much simpler if they taught stuff like this in schools more readily, or had more free resources to ask questions to professionals. I hope if I ever have kids I never make them feel like this :(
LOOOOOL. Man really crying over having to deal with Bronchitis and a sprained wrist. Crazy how weak you people are. If you were in the position that the woman in the video was you wouldve legit died on day 1
Props to the mom for first letting her child suffer for years only to for thing to end in such a tragic manner... Imagine trying to recover from such severe injuries while already being chronically ill. 10/10 best mom over
It doesn’t even mean much because unless the parent is obviously abusive since the child could remember clearly or grew up where the parent was most abusive to another sibling, it is very likely that the child may buy a #1 Mom/Dad/Parent mug: it’s an obvious source of appreciation and they’re found everywhere.
Sounds like my mother. Diagnosed with Asthenia but we don't know the underlying factors and too broke and weak to afford to go check that out anymore. People have been downplaying me for years on this. I have cut almost everyone off due to this.
@@Mary-Ann_B_Mabaet ....I have been seeing a lot of similar comments on this. Maybe I am just NOTICING them due to my bias or something, but there seem to be a lot of really shitty moms out there!!! WTF?!?!?!?
I can't picture accidentally drinking it. I had to gargle that stuff for a couple weeks after a dental proceedure once. The moment it got near my mouth my nose had a reaction to it telling me not to put it in my mouth. From the moment it entered my mouth to the moment I spat it out into the sink, it felt bad in my mouth. Kind of like all the tissue in my mouth was dry, covered in foam and yet drowning in saliva all at once. Not at all pleasant and a very rapid unpleasant response.
i used to swallow it when i took care of some scratches or smth in my mouth i don't remember but i specifically googled if its safe it was 0.3% btw it tastes very unplesant
A good friend of mine had a terminal lung condition related to pulmonary pneumonitis. She was on oxygen 24/7, antibiotics stopped working and her doctors told her that her only chance for survival would be a double lung transplant. She started drinking 35% Food Grade H202 diluted in distilled water (25 drops of 35% diluted in 8oz. of distilled water) 3 times a day and slept with the same solution in a humidifier next to her pillow at night. In 2-3 weeks, she was off of her oxygen 95% of the time and her stress test and oxygen levels were in normal range. Her doc told her that whatever she was doing to keep doing it. Drinking or inhaling 35% Food Grade peroxide straight/undiluted will cause problems. But when it is diluted properly it can cure terminal health conditions with zero side effects.
Yess!! Really happy to hear this about your friend. I live in Florida and was having faulty air conditioner issues and basically I got a bad fungus in my lungs. I took Mimosa Pudica capsules for 3 days in a row only one a day and was able to get off the oxygen after being on for 3 years. A lot of times when we are diagnosed with chronic luggage issues it's because of a mold, fungus, bacterial or parasite infection. It rid of that and we get rid of the problem. Your friend killed off whatever was compromising her lungs❤ I must also say that I like how you got into such detail about what was done. How many people say something work for somebody & then don't explain anything other than that when they have the solution right in their hand uet they don't give people the recipe. So frustrating....
I had similar experiences as KJ. My mother said I was a hypochondriac and hysterical. She told everybody else that I was an hysterical hypochondriac. I remember her dragging me by the wrist to the doctor, screaming at me all the time that I was going to get such a slapping when he confirmed that I was malingering. An hour later I was in surgery, having a perforated appendix removed. There was the time she locked me into the house when I was running h a high fever and took my siblings to her sister's house got the afternoon. When they came home, I was unconscious. I came to when our doctor was carrying me to his car. He took me to hospital where I was put onto IV antibiotics. I had a serious kidney infection. I'd told my mother I was peeing blood clots. Her response was I'd better not be pregnant. I was 10 years old...There was the broken foot incident. And ...and...and...I was often slapped and screamed at if I got sick. I'm sure the picture is clear. Even now, at 62, I have to fight off fear and shame every time I get sick.
Holy shit. That's horrible. I really hope you escaped that horrific abuse and have been able to heal, even if it's taken a long time. Abuse by a parent is one of the worst things that can happen to us.
I realise that things maybe would have been different back when you were a child (with you being 62, that puts the events you described in the late 60s/early 70s), but damn I was disappointed when your story didn't end with the doctors reporting your mom for negligence and child abuse. I am so, so sorry. I hope you've been able to heal as well as possible.
KJ is a great example of why you should take repeated complaints seriously And to protect them from quacks and charlatans. Desperation will drive anyone to extremes. Ps. As someone who is into vulture culture, I can promise you, you don't want to ingest it. Keep it away from places where you store food, please!
Yep. Separate fridge if you need to refrigerate it, either one you use specifically for medications or one for chemicals. If warning symbols are too discrete, buy or make proper stickers and label the containers. And of course, strongly consider a lock.
Their are so many people that are misdiagnosed, and they suffer horribly or die painfully. A lot is that doctors are in it for the money, especially medicaid. With medicaid though it's like playing russian rullet. You get a random somebody who doesn't listen.
@@rachelmartin3631 You have the same problem in countries with socialised healthcare as well. I believe that it's more along the lines of inexperience with diseases with diffuse symptoms, lack of training in patient-doctor communication (it's only become a thing relatively recently). That is a bad combo when a patient has something which is known to throw diagnostic curve balls or is rare.
@Teukka72 Like how the doctor constantly ignored my mother until her cervical cancer got so bad she was basically a dead woman walking even with treatment...
@@Teukka72 Also, sexism, racism and suchlike also plagues the medical field. Women are less likely to be taken seriously, especially if even more so if not white. And like, heh, if youre afab and struggling with doctors you can get an idea of how BAD it can get. My mum taught me, from struggling to get a clear diagnosis, from suffering because of a male doctor. Dig your heels in. Fight. Because youre fighting for your very life.
This story is especially heartbreaking to me, as I have a very similar story to KJ. It took me years of blood tests and doctors saying all I needed was "a boyfriend" for me to be diagnosed with Hypermobility Syndrome. It was last year, so I still don't know what kind, but what I do know is that not only do I have hypermobility all over, it also has resulted in me developing fibromyalgia. There were times I was so desperate, that I would have tried anything to go a day without being in pain. In part, thanks to your channel, I didn't give into many of these internet hoaxes, as desperate as I still get sometimes. When I feel like I'm about to give in, I immediately see your face saying PRESENTING TO THE EMERGENCY ROOM. Thank you so much for spreading awareness on stories like these, and educating so many of us!
I highly disagree with a medical expert prescribing a "boyfriend" - mostly because pharmacies don't stock boyfriends, which is a shame, pharmaceutical grade boyfriends would probably be better than the ghetto ass street boyfriends that you sometimes spot, but hypermobility syndrome is a difficult thing to diagnose even on a good day, especially if you were already a teenager or adult. I'm sorry that it took so long for a medical expert to figure it out.
I hope over the last couple of years you and your doctors have learned more about the seriousness of hypermobility syndrome, also known as hypermobile Ehlers-Danlos syndrome (hEDS), a genetic disorder which can cause fibromyalgia, along with many other serious problems.
My mom was like this. Had sciatica and numbness in my legs starting at 16, and she downplayed it to doctors or wouldn’t even take me to see them about it. 6 years later and I found out I have DDD and was born with thin disks. Because I didn’t get any treatment or even a diagnosis until a few years ago, I now have bulging disks, herniated disks, arthritis and stenosis in my spine, and very recently one of the bulges broke off of the disk and is pressing into 2 nerves (one being my sciatic nerve) 24/7, non stop. I’m only 26 and my only option is surgery, and that won’t even fix the underlying issue. I live in unrelenting chronic pain that makes it nearly impossible to sleep or eat (lost 15lbs in a month and get an average 2-3 hours a sleep a night). Parents, please believe your kids when they say something isn’t right. Update: long story short, my mom has also never told me who my father really is, I had an idea of who he was but she constantly denied it. Well, the reason I wanted to know is because they have a rare genetic disease in their family that I just recently found I have all the symptoms of. A decade of begging who my father is just so I could get tested for my undiagnosed worsening neurological issues only to find out I may have Friedrich’s Ataxia. With this discovery I’ve cut all contact with my mother. Never have I been more angry with anyone I’ve ever met than with her. My life is ruined, I could’ve gotten treatments years ago only if she put her pride aside and made sure her child was alright, but I guess that’s too much for some people. Hopefully getting tested before the year is out, but please parents, don’t EVER do anything my mother has done. I’m very quickly having to face the horrifying reality that I’ll probably be wheelchair bound in a hand full of tears, not be able to take care of my son alone, and even having to scale back or close my dream business. Fucking terrible news but please take this as a learning lesson from my disaster of a life.
@@xonx209 omg yes. I’m on that and a muscle relaxer to try and help and it freaking sucks. Went through a few different steroid packs to try and help with inflammation before the muscle relaxer. But I had forgotten how foggy brained the gabapentin makes me, and it’s kinda a struggle.
@@olivercharles2930 I’m actually doing a lot better now! Got to see my neurosurgeon and they said they had to get that piece of my disc out asap. Had surgery a few weeks ago and the nerve pain disappeared immediately. Still recovering from them cutting open my back, and I may have some permanent numbness throughout my leg, but that beats being in horrific pain. I know the surgeon was pretty honest about the whole situation and said my DDD was getting worse pretty quickly so I’ll have to have some major surgeries starting in a few years, but right now, I can finally get some sleep and take care of myself again!
Oh man I feel for her. I was ill like this from middle school through until my 20s, I was finally diagnosed with Systemic Lupus at 28 years of age. Sadly, going so long without treatment caused damage to my organs. At 34 I was also diagnosed with Lupus Nephritis.
Whenever Bernard says someone made ‘A’ recovery, my heart always sinks a little. Just knowing that persons life has been changed forever is so sad. I hope the woman in this case continues to fight and makes the most out of her future. 💜
You and me both... :( I kind of expect it whenever he says "brain damage". That usually means the person won't be who they used to be and we can only hope they don't come to regret being their new self.
Generally, when it's ischemic brain damage... it means permanent brain damage. Full recovery is generally out of the question at that point. My guess is that she would learn to speak (that's usually the easiest to recover) and maybe learn to walk again but probably not be able to use her upper limb. That's a grim fate for someone so young
First of all, kudos to that nurse who knew which way to point her for an actual diagnosis. It must have been a huge relief to know she had lupus, but I wish her mother and doctors hadn't gaslighted her so much that she couldn't trust ANY doctors. I had a landlady with lupus once upon a time. Very nice lady who always looked like she was in so much pain. I can't imagine seeing the same symptoms and thinking "oh yeah, she's faking it for attention". Hydrogen peroxide is a really good bathroom and kitchen disinfectant (on surfaces!!!) and I sometimes use the weak supermarket stuff to add to my toothpaste if my mouth feels smelly and germier than usual. I got those diabetes teeths, its too easy to get mouth infections and grossness so a tiny splash on my toothbrush before I add the toothpaste seems to do the trick.
My sister's Lupus/SLE went undiagnosed for about a decade as she got fobbed off by a string of health professionals, each building on the flawed presumptions of the previous practitioners. Many pushed to have her take anti-depressants - one even suggested she start smoking again. Sheer madness. She was eventually diagnosed by an ambulance driver who happened to notice telltale striations in her fingernails and did what the others chose not to - he took the time to piece together her story as medical evidence rather than character evidence...
I find it scary how we don't really know what in the world is happening to our bodies, until it's almost too late most of the times. It's a happy ending that she recovered at the end.
My son nearly died before he was diagnosed with immune disorder. Finding a good doctor should not be such a task. Finally; a couple of his symptoms were seen and unlocked the truth. Family even thought we were “overacting”. Sad
It's terrible when no one will listen. Where I live eastern USA , the hospital near me is supposed to be the best. I know too many people who got messed up there including me. Sometimes people have to doctor shop and then they stick together.
I trust more naturopaths and homepaths than allopathic doctors. Doctors are about meds that simply act like a band aid solution, rather than going to the root cause of the problem.
Hearing all of her symptoms, I couldn't help but think of my dad. He has lupus, and occasionally, he's fallen victim to some alternative treatments. He went vegetarian to try and "cure" it. The diet was a good thing because it got him to eat better, but still he has lupus. He's often fatigued, he was in his 40s when he had to get both of his hips replaced, he has emphysema and sleep apnea, and Reynaud's. His vision was eventually affected. My dad almost died in the hospital dying from infection because his immune system was unable to fight back.
Oh my god! When I had an eating disorder I developed this delusion that I had parasites- I was SURE even after doctors told me I didn’t. I wonder if this was some psychosis from hypoglycemia.
I really feel for this lady. Once you get a psych diagnosis, especially if it's the result of medical doctors being unable to diagnose your symptoms through no fault of your own, you are pretty much damned. You'll forever be a psych patient "trying to get attention." After 10 years in the mental health system in and out of institutions, a psychiatrist came up to me one day and said "there's something different about you, I'm sending you to a neurologist." It took that neurologist literally 10 minutes to correctly diagnose me with a severe B12 deficiency. Even today I have permanent residual neurological damage from that, but injecting B12 every month now has literally saved my life. God bless her and everybody else who has been through this hell.
@@thinkforyourself1357 Homeopathic is the way to go. God gave us everything we need. Doctors and Big Pharma cannot make money off cheap cures. Do your own research.
I can relate to the desperation. After a three year long battle with my uterus, I went through 5 doctors to fin someone who was more interested in my quality of life, even if that meant sacrificing my uterus. I was near having a mental breakdown, and in constant pain and discomfort. I'm now in much better health, physically and mentally.
I feel sorry for her. Even her mom was saying she was "too dramatic" and downplayed her symptoms to the doctors preventing her from getting the best care. You mentioned at the end of the video about how many people have grievances with the healthcare system and it would be nice for you and other UA-cam doctors to think about and discuss in your videos how to rebuild trust between doctors and patients.
I believe the whole attitude of doctors has to change . Most are arrogant and care about money and status , rather than the people they are treating There used to be a time , in past generations where being a doctor was a vocation rather than a business . These doctors cared immensely for their patients . There is hope if student doctors are trained to listen to patients, and talk to them instead of talking down to them , and that being arrogant is not acceptable .
@@cherrymetha3185 i completely agree with you. I am so tired of the 'judgy' attitude of medical people. I have lupus and went undiagnosed until my 40's. Dont dare tell them you are in pain.
First, its all in your head... or stupid 'Captain Obvious' instant and incorrect diagnosis... Most of todays medical system sucks... Wish there were more Drs. like the channel host.
Doctors are humans. We are fallible. Just like everyone else.....things slip past our minds at times for whatever reason. The responsibility and pressure to be perfect are pretty intense. Its not an excuse, but it is a reality. While the case here is presented with all the pertinent information up front, its never this way when interviewing a patient. If she never mentioned the facial rash......SLE is not an easy diagnosis to make. There can be a TON of different symptoms and varying levels of severity. Without that one key symptom not associated with anything else, people can go many years undiagnosed. In a perfect world, we could order hundreds of tests looking for anything and everything. Neither private nor public insurance will pay for almost all of those tests though. We have to operate in a for-profit healthcare system, while also trying to live the Hippocratic Oath of “Do No Harm”. These things are at odds with one another, almost constantly.
The research into Hydrogen Peroxide does not say to do directly. You only use drops in a glass of water and how the heck you could even ever drink a undiluted is ridiculous as it burns and tastes terrible. Alternative treatments, done properly, can be beneficial.
KJ's mother failed her, and her mother bears most of the blame. This proves that not everyone has the right to be a parent, especially if they gaslight their children on a daily basis.
“Not Everyone has the right to be a parents” Okay then, Kim Jong Un, I’ll transport you back to 1947 Germany so you can see how well your little idea works 😂
@@wolfetteplays8894 Shits like the one in this video really don't deserve it. I don't care how authoritarian it is. Child abusers shouldn't be allowed anywhere near kids, nor to produce them.
@@wolfetteplays8894 ...Forced sterilization? I would be the first in line!!! If you have kids, you just threw away a huge chunk of YOUR OWN FREEDOM/LIFE, AWAY!!! Sad but true.
@@wolfetteplays8894 My mom was and still is abusive, which made me realize that not everyone is prepared or ever will be prepared to have children. She is a consequence of an abusive household growing up, I just wished that she had gotten help earlier before she herself got married to an abusive man and decided that children could make the relationship better. Yes, she did want to be a mom, but with her circumstances, she never accepted the help and loving support we all offered her, and in turn, she took out all of her frustrations of being a mother on her daughters. Even when the issues were only between her and my dad, she took out her frustrations on us. I feel like she would've been better off not having any children and just working on herself, at least until she finally learned to overcome her trauma and learn to live with it in a healthy manner. She is unfortunately now a person who most likely has NPD and is diagnosed with codependency, and nobody can ever change that. The only person who can help her change is herself. I can forgive my mom for what she has done to us (I do understand her trauma and I am always sympathetic to her, but she takes advantage of that and tries to manipulate me to make me feel useless.), but I know that she shouldn't have been a mom in the first place. Now imagine the many other children who suffered more severe abuse and sometimes even sexual assault and rape from their own parents, you're saying that everyone deserves to have the right to be parents, when in reality, there's a whole lot of people who proved it themselves that they are not and never will be capable of being good parents. A child isn't a right, they are people too, and treating them like property is dehumanizing. So please, curve your ignorance.
I worked on the Behavioral Med. floor as an RN. One of the patient's was labeled uncooperative and lazy because she would not get out of bed to attend the group therapy sessions. I spent a few minutes with her and listened to her and observed her difficulty moving and some difficulty taking deep breaths.I suspected she had Gillian Barre. because of her difficulty moving and difficulty breathing and called her psychiatrist, told him my concern and suggested a consult. She was properly diagnosed and transferred to the ICU. with this disease.
I've worked along side medical people many years and have seen good and bad. I'm grateful for those like you who investigate and act when they observe this kind of situation. We need more like you out there
My mom was bipolar schizophrenic and physically abusive, but whenever I was sick, she took it extremely seriously and wouldn't play any games... I'm grateful for that... I know she loved me despite her mental issues.. I feel bad for that girl having a mom like that... I couldn't imagine how damaging that is to your psyche
I’ve tried to explain before how hard it can be to get a diagnosis in our medical system. (No one wants to hear it so I leave out the “when you’re a teenager” part of that phrase most times.) I was lucky in a few ways. 1) My parents weren’t hostile about my symptoms. 2) I was insured. 3) I lived in the greater Houston area and had access to specialists. Even with those benefits, it took two years of doctor after doctor; all of which came with stress tests, EKGs, snide comments about my weight (high end of normal), and accusations of hypochondria. After the second cardiologist, even my mom started thinking I was making it up. I finally had one order a tilt test, tell my mom what was happening when I would pass out, and put me on medication. I got better and even went asymptomatic for a while. Even with that success, I still didn’t find out the name of my condition until my GP told me after my symptoms started back up. I was 32 before I ever heard the word Dysautonomia.
yeah my mom is a doctor so I always got treated like my illness was real, but I know people that had parents that treated everything thing with "no big deal" attitude
In my experience doctors push aside autoimmune disorders. I had to fight to get diagnosed with celiac for 4 years, and by the time I finally did, my intestines were so inflamed and damaged that I now have to take medicine (which is $1,200 a month) to get my food to digest properly.
The worst part is that even when doctors are good and do their best, science can fall short. I was transferring care from my pediatrician to a family medicine doctor, and I told him about my mystery condition he was like "yeah that sounds like as of yet undiscovered autoimmune condition or atypical presentation" but I'd already seen all the relevant specialists in my area. Blindly treating me with immunosupressants would be dangerous and unethical outside of an experimental setting, and insurance would never cover it.
I'm currently in the process of (probably) getting diagnosed with celiac. Did you eat a gluten free diet before the diagnoses, or you weren't sure what was going on?
I was in a pretty similar situation myself just a few years ago in my life. I'm extremely used to doctors just saying all my problems and pain is in my mind and i've even been nearly coerced into taking anti-depressants as the all-cure for my problems. It is extremely infuriating to feel bad and you can't do anything about it and for some it might even make them suicidal. I wish certain doctors would actually try to understand their patients instead of just seeing them as a diagnosis
I mean technically all pain is in your mind. A lot of people have wonderful luck with antidepressants. Shouldn’t be a cure-all and probably used with therapy etc. but I wouldn’t knock something until you try it. Be clear with your dr about your reservations and try to work together, the dr is just trying to help you.
Protein deficiency can cause depression and pain. You need more protein than you realize. Red meat can actually heal you. I was vegan 2 years, can fully admit I was dead wrong.
Seeing as I'm stuck in a permanently broken body, I can say this: sure doctors pass you up, but you need to know that Pain is controlled by your brain and you can make your issues worse by having a negative mindset. Anti-Depressants has been shown to help with pain. It's not all in your head, yet your brain does interpret the signals from your nerves. Everyone's pain is complex and multiple things can cause it/affect your body and in turn cause issues. Keep in mind that pain is still tough for scientists and doctors to fix/understand. You can't expect things to just go away when a lot of the time scientists don't even fully understand pain or how the human body functions in certain situations. There's not a cure-all for chronic pain. You have to diagnose why you're hurting, figure out any potential illness/injury, then try try over and over to do different things to provide relief. Giving up really doesn't help your cause. You need to fight to live and do what you can to live with the pain. After 20 years of failed surgeries, lack of pain relief, physical therapy, and many different treatments, I have come to accept that my conditions are permanent. It sucks, but science can't fix me anymore. Doctors all over have told me they've done all they can for me. So if I go into it knowing this pain is a part of me, then I can just live and take it easy. I may be partially-disabled for life, but a mindset of acceptance instead of expecting the pain to just go away can really go a long way in trying to live your life with pain.
" Tap water has impurities?" Try industrial waste and pesticides. Where I live, the govt warned us not to drink the tap water because they found unsafe levels of 16 different industrial waste products. Kidney and reproductive problems, and cancer are common here too.
What a coincidence...just saw a rheumatologist to get tested for autoimmune issues. I'd just stick to the anti-inflammatory diet rather than hydrogen peroxide, poor woman, it's hard to talk to doctors about what's worrying you without feeling like a hypochondriac (my mom had that experience too)
I feel your pain. I was supposed to be referred to a rheumatologist and other specialists for testing over a year ago for symptoms of hypothyroidism, among other things but it never happened. My physician is great but the specialists who do the testing are horrible and refuse to see me. Now I'm using crutches to get around and have a shit load of new symptoms but it's still damn near impossible to get anyone to take me seriously.
@@RaneBoDasch Keep at it baby. I know it feels fruitless. After years of attempting to get referrals to rheum and neurology, it finally happened out of the blue from a doctor I didn't ask for referrals from just a few months ago. See if your GP will refer you to some different specialists. you'll get answers eventually.
@@jessetaylorstudio454 Already tried. Im limited by my insurance. And because I'm not working and Im eligible for government insurance, I cant get a private insurance plan, even though I have the money to pay for it. Im not giving up or giving in though. Just never thought I'd have to beg doctors to do their job.
@@RaneBoDasch Well if money isn't a huge issue for you, I would look outside your town/state (if that's possible for you). Government insurance will cover across the states and you should be able to find some others in network. Keep up the good fight! :)
It really does take a lot of patience and determination to find a doctor that actually listens and takes you seriously sometimes. It took me until I was 30 to finally find one who took a look at all my symptoms and medical history to give me a proper diagnosis instead of just treating symptoms individually.
Thank you Professor Bernard. I think you're the reason why I nowadays tend to use etymology as my initial tool to learn about new "medical words". "-plegia" appears to be a synonym to paralysis with more severity to it in comparison with "-paresis". I really love the explanations you throw in, they can probably be understood by everyone, whilst still speaking solid medicine. Also the note on tap water was cool. I imagine it would be fascinating to see you work with patients. I've always loved those moments I get to teach my fellow students about something that I found interesting. It seems you've found yours. It's contagious. I still haven't begun my clinical terms (Swede here), so naturally I'm drawn to emergency care and surgery. But you're really giving great marketing to toxicology :D Seeing the world in poisons is quite fascinating. So, you've read this far. I'm thinking about making my own medical videos but in Swedish. Pathology shorts:
Im so glad I have a mom who loves me and not that trash parent. My mom says i have a problem of downplaying things when i talk to my doctor and always pushes me to speak up more.
Honestly a large amount of the blame falls on the mother here. That's an almost abusive reaction to her daughter's constant pain and symptoms, and she definitely was a major reason things went this badly. Edit: So I said "almost" abusive to play it safe because of my own complicated family situation making me a poor judge of what is or isn't abusive parenting. Seeing how many people agree that it's abuse though, I will affirm that yes I think it's abusive and extremely fucked up.
Guarantee you the underlying thought process goes "I am a good mother. If she was right about her symptoms all along, and I was wrong, then I am a bad mother. I am a good mother, therefore she's just being dramatic."
This case reminds me so much of the crap I've gone through thanks to a bad mother too! The biggest difference is what we did after finding out the actual medical problems, and that I had to go through a few doctors before finding one that took me seriously and actually wanted to find out what's wrong. It should be considered child abuse or at least neglect for parents to do crap like that. Had I knew what was wrong with me sooner, I could have avoided things getting worse. All the signs and symptoms were VERY obvious too, but since no one told me they were symptoms and weren't normal I didn't know any better. The first symptom I learned was a symptom was a coincidence too. I was at a podiatrist for an ingrown nail when he diagnosed me with Raynaud's after only seeing the discoloration on my feet. It was THAT bad. Another big difference is that I don't direct my anger about my issues at doctors or nurses. All my new doctors and nurses had nothing to do with what happened in the past. Even the few that did ignore symptoms I'm mad at but won't do anything about. Instead, I've lost all respect for my parents due to their poor treatment of me. There were times where I brought up something that I thought was wrong only to be told it's normal when it was in fact a big deal and NOT a normal thing in any way. Being a kid you don't know better and believe what adults tell you so I didn't bring it up again. Also my neither of parents will even apologize for what they did. Hell, they won't even acknowledge what they did and said to me, and still continue to treat me poorly and act like I'm choosing to be disabled. If you didn't know, almost every disabled person would be cured if given the chance to get rid of what's wrong with them.
Obviously your parents don’t understand that there’s absolutely no way that you could choose to be disabled if you are actually suffering from legitimate medical conditions. I hate to say this, but you might have to figure out a way to teach your parents just how wrong they are and they should be taught a lesson for not being very good parents to you.
First year med student here ! the simplest way I could put it is that hemiplegia is complete paralysis of half of the body, while hemiparesis is weakness or loss of strength on one side of the body. I really enjoyed the video, much love
I'm actually reading a book on the medical benefits of ozone and hydrogen peroxide. First thing the book says is NOT to drink 35% food grade and to dilute it. It could be that this girl heard about such a remedy and didn't do her homework regarding risks and protocol.
😥 Traumatic Brain Injury is so terrible. To know that someone is giving advice that leads to this is tragic. The person I know with TBI would do anything to have prevented it. They still struggle with things that most people take for granted, such as remembering verbal instructions, being able to read for long periods of time, and even remembering simple words.
this struck me pretty hard as a teen who suffers from POTs, Juvenile arthritis, and peripheral neuropathy. The doctors often give cocktails of medication that on their own make me sick, once giving me a medication that if they actually bothered to look reacted with another of my meds and caused my blood pressure to tank. I fainted and hit my head on a hard floor.
that's why pharmacist has power of approval on prescriptions. there was a questionnaire sent out to doctors about which antibiotic combos to use for various symptoms/test results/diagnoses and they mostly got it wrong. it's not their fault. too much info. always discuss your scrip with a recently qualified pharmacist. their knowledge is just staggering.
I wish some basic chemistry education was required in the US. I'm certainly more educated on the subject than most at this point (finishing up a BS in chemistry at the moment), but even back in high school I could tell you that concentrated peroxides are incredibly hazardous. For reference, concentrated hydrogen peroxide is used in piranha solution, a mixture which will turn essentially anything organic (including any kind of flesh) into water and carbon dioxide gas quite rapidly. It's also been used as a monopropellant in rockets due to its habit of turning rapidly into hot gas (this is generally done by flowing it over a heated metal catalyst, vaguely similar to the reaction catalyzed by the iron contained in heme).
My mom spent two years bouncing around from specialist to specialist being diagnosed with things she didn't have and being prescribed medication that were expensive and didn't help the problems she was having. Turns out it was food related, and she only found out about it because kooks online suggested diet after diet and my mom desperately tried one after another until one actually made the problem go away. Still don't know what the problem is medically, but she knows what foods to avoid now and doesn't have issues.
This is what I have been saying!! if I had been given and taught a healthy diet I would be living a much different life right now. I have been horribly treated by the medical system. Its often a struggle for me not to be loathingly bitter against doctors and the broken system they work for.
Same. I was having serious neurological problems that doctors kept ignoring. I finally had diagnosis for one, but I got to the point where I couldn't afford medication anymore and the meds had bad side effects. After I lost my insurance, I went online and I ended up finding a naturopathic website that recommended a certain grain-free diet and I tried it and my symptoms miraculously went away. Turns out I had Celiac Disease and cutting out the gluten stopped the neurological symptoms. Celiac runs in my family big time, but at that point only a couple of us had been diagnosed and my blood tests were borderline and thus deemed 'normal.' It would be another 6 years before I finally got diagnosed. Sometimes alternative medicine has really negative consequences, like in the story here, but sometimes it actually helps. I'm able to manage all of my symptoms with diet now. No more medication. It's fantastic.
This story completely resonated with me. I was on these medical-self-help forums back in the day when feeling very unwell but with symptoms too general to be easily diagnosed. It's true that if your symptoms don't fall neatly into a specific disease category doctors will say you're probably suffering from a depression. It takes people years to diagnose autoimmune disorders or endometriosis. Currently you need to really learn to advocate for yourself at the doctor's office and pay for some private medical testing out of pocket to get your diagnosis.
Have you ever looked at your medical records? I've found that if the doctors/nurses don't come to a clear diagnosis, they will sometimes just sort of manufacture one in the notes. Sometimes they call it a mental health problem, sometimes it's just the wrong diagnosis. Or sometimes they just seem to leave out any symtoms they don't feel like dealing with. I've had important symtoms left out of my medical records, ones that I was mentioning over and over, again.
I consider myself EXTREMELY lucky that it only took a decade to get diagnosed with Ankylosing Spondylitis. I've heard horror stories about some guys taking 20+ years to get diagnosed, at which point you've progressed too far to lead a normal life. If I hadn't of met my wife, and her pushed me to get answers, I probably would've taken that long to get diagnosed. I can't count the number of doctors that told me it was in my head and I just needed to suck it up. 2000% agree that if your symptoms don't fit something perfectly most doctors in America just shuffle you out of their office.
This reminds me of me. My parents literally never let me once go to the doctor, not even when I got ran over and couldn't walk for a while. It took me a year to recover.
You do realize that the man who’s video you’re watching is a doctor too, right? You’re tarring Chubbyemu with the same brush here. If you hate doctors so much, why are you even watching this?
As a Lupus patient I wish doctors would listen more when we are telling them what's going on with our bodies. I went misdiagnosed for years which resulted in many health problems and surgeries. Sometimes the need to feel better can make you do some drastic things like she did because after awhile no amount of meds they give you gives relief.
Almost as if doctors aren't perfect and often make mistakes. Check out some stats about how many people die each year as a direct result of malpractice.
To be fair, 95 percent of people with frequent visits are hypochondriacs so when the t percent who are really suffering come in, they're just as dismissive bc they have no way of knowing who's actually sick without a lot of time.
As a rocket scientist, i gotta say, im extremely concerned going into the video knowing that concentrated hydrogen peroxide will oxidize (burn) pretty much anything
As a random guy, burning somethings always needs an oxidizer. How handy to have a liquid containing it. I wonder, would mixing highly concentrated H2O2 with Fe dust actually burn visibly?
Man, the second you said muscle aches, headaches, and a rash on the face, my first thought was lupus. Then you said autoimmune disease and I went yes!! I have SLE myself and experienced what I thought was an eating disorder, horrible headaches, and the classic butterfly face rash and doctors just told me I "wasn't eating enough". Nope. Almost killed me. Always makes me sad when patients end up turning to alternative methods because they didn't get the care they needed in time! Edit: Just to clarify, when I said "doctors" told me I wasn't eating enough, I mostly meant my PCP. Once you start talking to specialists, especially rheumatologists in this case, you start to hear people take you very seriously. Don't discredit the entire medical field, they saved my life!
I'd like some H2O too 😌😌😏😏😏😏😏😏😏😏😏😏
water is tasteful
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I like some H2O3
Dihydrogen monoxide
Bring back old music
When I worked as a veterinary technician, I learned that Hydrogen Peroxide is great for getting blood out of clothes. Definitely wouldn't wanna drink that stuff. Interesting case! Glad she survived!
it is my go to blood stain remover
My grandma taught me to treat bloody clothes as soon as possible, soak them in LOTS of COLD water, it may take longer, sometime even need to leave over night. But it works. Hope that helps.
I used 3% H2O2 to clean chronic abscesses for 15 years. I used it to burn dead skin off a road rash that wouldn't heal. No way I would even touch 35%!
PS I strongly doubt those "studies" that say H2O2 does nothing. Its oxidizing power makes it a fantastic debriding agent, and thus it's quite obviously also good for cleaning wounds and killing bacteria. It reminds me of when some itch cream company sponsored research to "prove" that calamine lotion doesn't help itching - or how Canadian doctors now won't put a drain in an opened abscess because of some study, meaning wound care nurses have to keep sending people back to get cut again and again.
@@asusmctablet9180 What I've heard is that, because of the strong reaction it has with blood and cells, it damages the healthy and living cells at the borders of wounds- the ones that would begin the healing process. I'd also say that, for the small wounds an average person's going to be treating with a first aid kit, there's no need to use it if water is enough! XD
Especially because it stings so, so much, for children and animals who don't understand, why go through the extra pain for uncertain benefit, where water and an antiseptic will do?
@@JoelFeila we keep a spray bottle of it in the laundry area.
medical gaslighting is so dangerous. i feel so bad for everyone who's had their symptoms downplayed :(
@Maskie Man If they are bad doctors. Not all.
@Maskie Man Because vaccine injury doesn't exist lmao, and what does is exceedingly rare and minute in comparison to those vaccines have saved and aided. Don't bring your anti-science woo into a legitimate societal issue.
I've been experiencing gaslighting by doctors for 2 years after having undiagnosed COVID and what is now known as long COVID. It's horrible not to be believed.
@@baraness24 yeah, like you said, it's rare. My aunt who's allergic to everything had a severe reaction to first dose and doctors refused to give her the second dose.
So basically dumbass anti vaxers like that guy keeps society from reaching herd immunity, so people like my aunt won't have to live in fear anymore.
@@machshfive This is why they first make you sign a waiver regarding your allergies and/or history of allergic reaction to vaccines. This is what makes me laugh about this argument: the prospect of the vaccine being wholly dangerous because some people have allergic reactions to it. I suppose peanuts must be even more dangerous. Where are the Facebook groups advocating for the great peanut ban?
I really appreciate you adding in the information about her abuse both from her mother and doctors. She wasn’t some crazy, stupid woman. She was sick. She was desperate.
You don't know that she even exists.
@@jumpinjohnnyruss bruh seriously? Just read the description and citations if you doubt
@@notmbr maybe you should read it. There isnt a reference to this specific case, just studies about cases like this. Something like this might have happened, but KJ doesnt exist.
Most of these Videos are representative, very often they are amalgams of multiple cases.
@@yougotmycheesewizzboy7429 I'll take the word of ChubbyEmu over some random guy in a comment section.
I promise you this is all basic info. There is no Doctor who doesn't already know all of this.
For those of you questioning why anyone would do something like this I'll give you the answer: chronic illness and pain will make you desperate for relief even if it's just temporary because it's extremely exhausting to live with constant pain, it's all you can think about. You lose enough function you may become desperate enough to try anything. For those dealing with chronic illness and pain, just know that although you feel like a failure, you are one of the strongest people on the planet. It takes great mental and physical strength to push through something so debilitating. I salute you fellow warriors 💜
Or maybe she also had an undiagnosed mental disorder to go along with the rest of her conditions...
Feel hugged please, your comment touched me and I'm kinda about to cry as an expression of feeling seen
❤
@Saiki K Fann really? Your profile pic says a lot.
I've previously had dental pain for longer than a week and even that started to make me desperate for relief.
I can only imagine chronic, constant pain.
Did anyone else do the science experiment in school where you put hydrogen peroxide on a piece of liver? It starts bubbling furiously because an enzyme called catalase breaks down the hydrogen peroxide into water and oxygen bubbles. Very cool! The chemical equation: 2 H2O2 => O2 + 2 H2O
Wow that's an interesting experiment, wish we did it in our school. Also I like your channels vids!
yeah that experiment was great, the kid we sacrificed wasn't a big fan though
@@mrnoobskool1 Ahh thanks so much for checking it out!! I've got plenty more fun and entertaining medical content planned out (think Chubbyemu cases + Doctor Mike reacts + Dr Glaucomflecken skits!) But it's tough finding the time while being a doctor! 😂
@@ballboys607 lmaoo I bet he wasn't 😂 although livers can regenerate... 👀👀 (but the kid probably couldn't!)
It is such a cool experiment. The reason that catalase exists is because your body naturally produces hydrogen peroxide which is really bad for you so your liver gets rid of it for you. I think potatoes also have some catalase for anyone who wants to try outside of school
Finding a good doctor who listens to his patients is like winning the lottery.
IN the USA some illnesses like mine mean you basically have to win a lottery to buy the health care you need. Some illnesses demand hours of diagnostic time not to mention $$$$. For most normal people, it just doesn't happen, and we suffer, in my case going on 14 years of barely worth living when at best 10% is all you get, the rest of the time is in misery. You likely have a close neighbor who is bed bound or house bound, suffering in loneliness. Health care MUST be regarded as a human right, not based on having enough money... Putting Profit over People is uncivilized, period.
Isnt that the truth
That's bcuz some work for the CCP meaning the hospitals/ clinics follow there dangerous PROTOCAL which rewards them handsomely $$$_
The good ones left incl. nurses, etc.
When crimes go unpunished we end up with massive corruption, 🤔
@@valerieirvin249 absolutely right.
try being a VA patient....
The fact this lady put hydrogen peroxide in an unlabeled container disguised as distilled water WHEN SHE HAD ROOMMATES IS ABSOLUTELY INSANE
Everything about this story is insane…
I don't know if you picked it up and took a sip you'd know. Just from smell. H2o2 has a very metallic taste mixed with yogurt
@@Weeklong_Seagull Uh bro thats how she died lmao, just taking a sip.
Yes the real problem is the handling of it...mainly it being unlabeled. But it makes sense there is now a narrative to take H2O2 off the shelves. It is working to kill a lot of the engineered weapons our government makes. You don't see them going after fluoride which has millions of deaths from accidental ingestion or bleach or ammonia etc... no no that's fine drink all that you want. But h2o2 get it off the shelves.... so the war begins....smh
@@Weeklong_Seagull thats all it takes my guy lol
This poor woman. Having her health issues downplayed by loved ones and doctors is something I can unfortunately sympathize with, and the fact that it led her down this path is heartbreaking. When chronic pain and health issues are as bad as hers, you really will look for any type of relief, and these types of unsafe and unregulated alternative medicine practices are just the thing that people like her can easily fall victim to due to desperation. It's such a shame. My heart goes out to her.
So true 😢
This breaks my heart for this poor girl. She probably felt alone in this world. 😢
The rash on her face made me think Lupus instantly. I can't believe that she had to deal with it on her own. 😢
lupus 🤝 fibro 🤝EDS 🤝 ME/CFS
"oh, you're fine stop being such a drama queen"
I had a girlfriend decades ago who was ignored by doctors and ended up with permanent joint damage from Lyme Disease that doctors said was impossible. When they finally tested for it, it was too late to do anything about, and in her 20s she was walking with a cane. I was present when the doctor finally agreed to test for Lyme and it came back positive.
As a young woman, her complaints were routinely dismissed or downplayed by both doctors and nurses, even when other people spoke up on her behalf.
I understand the desperation many people feel. Which makes me even more angry at the charlatans who peddle harmful snake oil to them.
Lyme disease is so insidious. Often diagnosed when it is far too late. Horrible.
@@evonekky3672 - Agreed. This was in the 80s. Many doctors still weren't convinced "normal people" could catch Lyme. I think some doctors in that era weren't fully convinced it was a real disease affecting a non-negligible number of people. It's symptoms were non-specific enough, just like many autoimmune diseases, that her doctor thought it easier to assume she was a hypochondriac. Or whiny. Which, given women typically have a higher pain tolerance than men, is absurd and silly and offensive.
I notice today, when I bring my teen daughter to a doctor, the doctors will talk directly to her, occasionally consulting with parents. It's a big improvement.
This is due to misoginy. It's assumed that women will complain a lot by basic pain. It also happens to black women. Doctors assume they can suffer more without breaking, negating pain medicine as well. Sadly...
@@NotGoodAtNamingThings What ever happened to her? Is she okay now?
I have an exceptionally rare genetic muscle disorder, but I got tested for Lyme disease like 5 times before I was correctly diagnosed because no doctor wanted to be the one to miss it. That's good for all the people with Lyme disease. Lupus, too. 🤣🤣🤣🤣 Thyroid disorder and a RA have also been in the list.
As someone with multiple invisible disabilities, all the gaslighting, especially from the mother, shrugging everything off and not taking her seriously, hit me really hard. My symptoms were downplayed and ignored for years
My narcassistic mother did not believe me when I said I was going to have a seizure (I was epileptic) and would tell me to go back to bed etc. Sometimes she did not even take me to the ER when I was convulsing. As an adult she refused to believe I have PTSD even after my profressional diagnosis and she tells everyone I have bipolar and I am avoiding her to attention seek. Some people do not deserve children
Those kinds of mothers are usually Karen’s
Don't hang on that your entire life. You're an adult now and I can see how this can create a helicopter mom and continue that cycle.
@@jasonstewart3748 That's one big prediction, considering you don't know me. I don't want children, anyway. I just want dogs
I now work on training service dogs for other disabled people like me, because program dogs can cost 30-50 thousand dollars, and that means many people that need service dogs don't have access to them. I guess I am a bit of a helicopter parent to my dogs though lol
@@freyatries3895 One unreputible doctor discredited one of my conditions once, and she still uses his words to make my conditions feel unimportant, it wasn't until I started passing out and actually injuring myself from falling that she even considered getting any other opinion, even though that's what I'd wanted for almost a year
Man. Hearing about the mother downplaying every symptom, especially during doctor visits, and telling her daughter to just suck it up reminds me of my own experiences with my mother and my Ehlers-Danlos. I too have had symptoms since at least age 6 but I went undiagnosed until I was 23. Medical neglect by a parent is a *serious* issue.
Any neglect by a parent is a crime against God's natural order. Been there. But he can use those things to make you stronger. Every situation is different. I pray for all children. I think someone prayed for me, or I wouldn't be here.
@Julie Olson I hate it when people rationalize that their suffering is part of "God's plan." Why would a caring and loving deity force their children to go through Hell on Earth? Why would your god specifically plan for people to be evil? This is why I'm not a Baptist anymore.
It's more understandable to say that bad things happen and your god offers love and compassion to the people. You're just trying to justify your suffering. Suffering doesn't make anyone stronger. My PTSD and heavy dissociative symptoms don't make me stronger. They make me jumpy and make me have flashbacks and trust issues.
@@isthiscereallife Then you got off easy for now. It will get worse. This isn't His doing. He didn't create evil. But He's a good scapegoat when we want an excuse. When you really want relief He'll be there. But you don't want it enough yet. You're still too young, and would rather listen to this world.
@Julie Olson Ah, there we go with the bigoted "you're too worldly" business. I'm disabled, I'm gay, I'm trans, I'm mentally ill, I associate with and am related to Jewish people. How worldly is that for you? Am I satanic enough for you yet?
Trust me, without a god in my life I'm much better off than if I would have stuck to the religious extremism that US Christianity tries to push. Religious extremists blamed me for my sexual exploitation as a minor.
The fact you're trying to threaten me with your god proves that the Christianity you people push is nothing but zealotry. Your god is not the sadist you so desperately want it to be. Why can you not accept that maybe your god doesn't have a plan for you, that your god may instead shed tears alongside you in your darkest hours--because things in life happen for the sake of chaos, without pattern or reason. That sounds much more like the compassionate god the bible supposes it to be.
@@julieolson1402 What a Great example of toxic gaslighting! Thank you for reminding me why I'm a gay Wiccan transman. I never would have even looked into other religions if it wasn't for the contempt, the gatekeeping and the pithy condescension of good Christian ladies like yourself.
Keep up the good work! The more people that good people like yourself drive away from that patriarchal, victim blaming mess so-called "Christians" like yourself have made of Jesus's teachings the better.
May the rest of your days be as pleasant as you are. So mote it be.
You're telling my sister's story here. She has been a guinea pig for every RA drug to come out. Thirty five years and she has two artificial knees. She is getting a new shoulder. She is blown up from Prednisone because each drug stops working over a few months time and it is the only thing to relieve pain. She is depressed from all the failures and the older she gets, the more she thinks of ending it all. Only her dog keeps her here.
Medical marijuana helps me.
I'm sorry that all that is happening to her. Poor girl. 😢
@@sethreign8103p with RA? Helps you? Did nothing for my pain.
Holy Cow!
Really? This is about your sister?
@@genevieve-gh3lp Mary Jane always helps
I have a friend who's a nurse practitioner. She once told me one of the most powerful diagnostic tools she has is just asking people what they think is wrong and hearing them out. Sometimes they're wildly wrong, but apparently most of the time people have a pretty good idea of what's going on with their bodies.
AGREED...PEOPLE LIVE IN A BODY...99% OF THE TIME KNOW WHATS GOING ON KEEPING AWAY FROM CONTROL FREIKS THAT HAVE NO CLUE IN THE 1st ANYPLACE ANYWAYS...
HUGE CORRECT TRUTH RIGHT HERE!!!
I agree. Listening is important. It gives you a beginning to go on. My husbands bp was always too high and needed bp drug. One fateful month his BP dropped consistently low, 60/40 and lower. Nurse P decided to listen to him say it’s prob a flu. Five more days went by, still very low off his drugs. She kept saying it’s prob flu. He died right in front of me. She should have sent him for a heart consult immediately or hospital.
I had kept telling him, think of a car, it can’t run without oil pressure. Something is wrong. I’d called the office repeatedly. No one listened, nurse left for Florida for two years.
That line of thinking while not wrong isn't 100% right either. Hell while I do have auto immune disease and severe psoriatic arthritis because I dressed well, had a great career running the electric grid, and complained about old injuries I was sent to pain mngt were I was able to obtain enough pain killer's strong enough to drop an elephant for a long time until I lost a decade of my life and almost lost my life! Dangerous viscous cycle and hardest thing I ever faced was getting myself clean but I was able to without any intervintion or jail time but 2 year's later I was finally confident again and sober. If opiates are involved please don't let your kids or spouses take this shit unless they are dying or compound fracture occurs because once you go so far the withdrawal will ruin your life because it's so bad you become helpless luckily I remembered how great a life I had and became determined to keep living! Never will I touch another Vicodin or Oxycodone-Oxycontin, fyntenol it's all terrible and you will never vacation or do fun things again once hooked because your either chasing down your nectar score, pawning shit to pay for it after all the money's gone. If I reach 1 of you then I'm succeeding.
@@TexasGrown1978
That's true. I think her point was that listening to the patient is the best place to start, instead of making up your mind and then stubbornly dismissing them. It's probably worth mentioning, too, that she's spent a significant amount of time practicing in parts of the world where she wouldn't have had access to much sophisticated diagnostic equipment, so I think she had to learn a lot more less precise "rule of thumb" types of working, just to be able to do anything at all. In that case, carefully listening to what your patients are feeling and how they interpret those feelings might in many cases literally be the best you can do.
Props to the nurse who suggested seeing a specialist! If it wasn't for them, it would have taken so much longer to be diagnosed. Sad that the nurse didn't feel comfortable sharing their thoughts with the doctor/s.
Nurses are supposed to advocate and stand up if they feel a mistake is being made even if it puts their job at risk.....she backed down.......not great
Doctors and pharmacists often care more about their fragile and inflated egos more than their patients. It's tough to find one who actually gives a damn. Sad, especially considering how much we pay here in America just to get worse care than Cuba.
@@nmxsanchez unfortunately that’s true. The best thing to do is not back down just because they ignore you. It’s your body and you know it best so don’t take no for an answer if you feel something is wrong.
It’s not that easy. Often times, nurses can be talking until blue in the face and doctors still won’t listen because “they know better” and “you’re only a nurse.” Source: a nurse
@@Beelzebubby91 That's the kind of thinking that leads people to drinking hydrogen peroxide....
I was diagnosed at 55 with SLE, I had it since I was 9yrs old. I went to doctors for 15 years, went through 20+ doctors only to be told IT WAS ALL IN MY HEAD. I was afraid that if I was told it was in my head one more time I would harm the doctor who told me that again. So, I went from 26yrs old to 55yrs old without seeing a doctor. Then I had a flare that almost killed me. I survived, but it took 8 years to recover partly enough to do much of anything and left me with damaged lungs and heart. I am a man, and I was told by doctors it was not possible to get SLE as a man, only women get it. I took upwards of 20 ibuprofen a day just to get by for 25 years, the damage that did is still there. I hope more people, especially doctors, learn about SLE. Thank you for this video, may everyone who needs it see it before it is too late.
Try dandelion salads and tea, morning cup of warm lemon water, grated teaspoon of ginger tea, teaspoon of dry turmeric tea...everyday have each of these teas and cut out or extremely down on sugar. Keto diet is very beneficial. Godspeed.
As someone with chronic illness, I appreciate you providing the context for this incident. The whole reason people get caught up in these "alternative medicine" grifts is because they've slipped through the cracks of the healthcare system. When people are desperate for answers and relief, they're vulnerable to these sorts of things. God knows I've gotten all sorts of advice for "treatments", some of which were flat-out absurd, some of which were temptingly plausible. I at least have the advantage of a science background to help me figure out if something's a good idea or not, but people who don't have that are at the mercy of the people they're surrounded by.
She wouldn't do that if doctors that she met were actual good doctors instead of pathetic losers who only act as one. Listening to someone else (her mother) instead of the patient who experience the symptoms is one of the biggest proofs that she met failures instead of doctors. Simple as that.
@@senjusan6359 Or overworked poor sods who could barely keep on their feet, let alone think clearly.
Now ... that might be in part because the healthcare systems around the world are being ground down by covid (amplified by idiots) and politicians (elected by idiots), so it comes all back down to stupid people in the end anyway. But not necessarily the direct cause.
@@aenorist2431 This has nothing to do with covid, this kind of situations are happening everyday since the advent of allopathic medicine. This is nothing new, it will happen just like it always did simply because a lot of people who go to study for this profession are doing it mainly for financial reasons.
The root of the problem is the love of money my friend.
@Ae Norist This happens a lot. We'll before COVID was a problem.
Yes, the way health care is setup right now does not provide optimal results but it should read as obvious that her mother does not live in her body and her statements should be ignored, except where obvious as in "No, I'm not consenting to you doing xyz to my minor daughter". Is her illness the doctor's fault? No. It is their fault that it went on for so long because they can't do the obvious of listening to the * actual * patient.
I never understood why people do this when we all have access to reputable health sites. I never do anything without first verifying.
As someone who’s dealt with chronic health issues and was downplayed by doctors and family for fucking years, it made me want to cry hearing her story. I have permanent damage too. So many people have. So many people have been brushed off by doctors and been called drama queens and hypochondriacs and it’s just so frustrating. It makes me feel really bitter honestly, but especially so when I see those shitty people online who prey on people who don’t know any better. They shell out their snake oil to people too sick to critically think about it. It’s just so frustrating and I see the comments all over Instagram where people post their stories where people are like buy my shady products.
The world of nutrition is chock full of snake oil salesmen. It makes the search for the truth so damn hard. I like to learn about vitamins the body needs and legit anti-tox chemicals, such as garlic being an anti-mercurial and cabbage, cauliflower and broccoli being hormone stabilizers because of Indole-3-Carbinol. But for every piece of truth I've found, I've had to sift through hundreds of lies.
Stay strong
I haven’t been pushed to drinking peroxide or going for snake oil quite yet, but I’m in the same boat. Grew up in a family where you didn’t need to go to the hospital unless you were physically unresponsive or had a shown broken bone. Then I joined the military and the special operations community, which is all about keeping your mouth shut with personal health issues. I had been shot in the chest with a 12 gauge overseas and I walked it off to complete the op, turns out I was pretty close to death by the time I got to the corpsman. These days my wife physically had to force me to the ER after my appendix had burst, I went the next day despite the pain because I figured it was nothing. Same thing when I had bacterial meningitis last year. It’s rough, man. It can be really fucking rough having consistent health problems in a family and community like that, and I still haven’t “grown” out of it. Figure I can be honest since this is UA-cam lol
You are so right. This goes the same for mental health issues too. So messed up.
Same here. It really sucks.
This story is ridiculously heartbreaking.
I can see how someone would get so desperate to just make the pain stop that they'll try anything. (I love the new student notes, BTW. I'm not in any shape or form a medical student, but it's fun to look up and learn for the sake of learning. Probably wouldn't be watching these vids if that weren't the case.)
@redxpen they literally said they werent a medical student lol
No need to be a medical student to enjoy learning!
i cant see how tbh.
Where are the student notes?
@@Pet_Hedgehog Good for you. You've never had to deal with any kind of chronic illness or pain.
This is a near exact narrative of my life story. I was called a hypochondriac as a child and turns out my immune system has been attacking my muscles, joints, and liver since I was a child. Moral of my story: take it seriously if your child if tell you that they don't feel well, please LISTEN, BELIEVE, AND INVESTIGATE because you are your child's only advocate 💜
It’s all in your head, mind over matter
Same with my cancer.
Some of this reminds me of what I had to deal with when my celiac disease went undiagnosed for 20 years because doctors thought I was exaggerating and being dramatic.
i was diagnosed in childhood and have memories of pooing in ice cream containers for samples and eating the most cardboardish gf bread. now the food on the market is much improved... my kids dont tolerate gluten either and they are lucky I have the knowledge of all my years of being dosed by things not expected, like fry oil carrying crumbs or products that changed over the years and now not gf. At 40 i ended up hospital with diverticulitus. This lead me to increasing foods with fiber and pre and probiotics. It's been a blessing and a curse.
Doctors are stupid sometimes
7 years and narcolepsy. "Just exercise more. You're just lazy."
I'm sorry you went through that. We need more reform then just insurance reform. We need better medical professionals that care about patients more than their inflated egos.
@@Avrysatos
Exactly. Overweight? Stop eating 5 large pizzas a day and drinking gallons of Coke. It couldn’t possibly be a thyroid issue or your hormones so we won’t even do a simple inexpensive blood test. Yeah stop being a couch potato. It amazes me amount of education required and yet almost all we get are douche bags.
I have a friend with autoimmune issues. She’s told me many stories about how people just don’t believe the symptoms she’s having or that it “must be worse in her head”. I feel so bad for having to deal with that when you feel so awful, it must destroy your esteem.
(She is an incredibly strong person and still fights hard every day to be “normal”. She’s one of my best friends and is starting to finally get a good sense of self worth from some supportive friends.)
My twin sister has a disease and gets tested for Lupus every 3 months. 😭
I suffer from recurrent kidney stone disease, which means I form lots and lots of kidney stones and am passing them nearly all the time. You have no idea how maddening it was to hear people say things like, "It's just a kidney stone." Just because I've dealt with the pain so long that I rarely have extreme reactions to it doesn't mean I'm not in so much pain I wish I was dead.
If they ever have a stone attack, I hope they remember saying that.
@@chthonictonic may she find peace soon friend. I truly wish her the best for that.
@@ManabiLT love you stranger. Can’t imagine what you deal with.
@@chthonictonic have lupus, unfun
You always take someone's claims of pains and issues seriously. When I was younger, everyone doctors, mom, family, thought I was being overdramatic about about how painful my periods were. My entire young life was spent in really severe pain. But I wasn't bleeding, so they thought I was just being overly dramatic. As an adult, I finally saw a doctor that did take me seriously, and it turns out I had polycystic ovarian syndrome, and the reason I wasn't bleeding was due to a hormone imbalance, and I had a massive buildup, years and years, of uterine lining that was never expelled. Doctor said I was lucky that I didn't develop cervical cancer. At 21 years old.
jesus christ, i'm so sorry you had to deal with that. In australia, most doctors take period stuff super seriously and are more than happy to prescribe hormone medications anytime someone states that they have issues with periods and during my teens it was always so enlightening to hear about how the people I met got their birth control medication and the other ways that birth control helped them. It's a shame this isn't as common as I'd like it to be.
Gosh. I’m so sorry. I know I’m just some rando online, but I really am proud of you for seeking out a good doctor. I sincerely wish you the best in your treatment
I was always told “you’re too young to have back pain.”
Got a chest X-ray when I was getting tested for the flu, and it turns out I broke a vertebrae at some point in my life.
Though not a gynaecologist I had diagnosd many of my young female patients with PCOS wen they were referred to with just pain in the lower abdomen and after the scans was I proven right. Though this symptom is often downplayed by many at home and at the medical level quite a lot of young female patients suffer from this nowadays.
Same thing happened to me except it ended up being endometriosis. It can only be diagnosed via laparoscopy, so I had to fight to convince my doctor to look inside. Everything felt so much better once they removed the lesions, and it’s frustrating to think that I could’ve gotten relief sooner if the doctor had listened to me.
I have Hashimoto’s autoimmune disease and before I was diagnosed I remember explaining my symptoms to my doctor and how it was very difficult to swallow/talk, almost as if my tongue was swollen, and how it was even difficult to coordinate walking at times. She said it was all in my head and told me to take an antacid and I suffered for years. I suffered getting an engineering degree with advanced Hashimoto’s disease to the point where I felt barely alive. I really do sympathize with individuals with invisible diseases. Don’t feel like you’re stuck with 1-2 doctors. Fight for yourself always.
What has helped you ? My fiancé has a mass on her thyroid . Same symptoms you wrote. Also losing hair and weight gain . The menstrual cycle has been over e weeks . I had to take her to the er. Apparently she has a cyst as well.
@@Goat_65 I’m so sorry to hear your fiancé is going through that. I also experience odd menstrual cycles and hair loss. What helped me most was being prescribed Levothyroxine. It took a few years to get the appropriate dose that made me feel “normal”. Even still, I don’t have the energy I once did and have strange symptoms here and there. It will always be a battle, I’m afraid. Over the years I have discovered that prolonged stress on the body (emotional, physical, or “nutritional”) causes “flare-ups” or short periods of feeling very ill. To lessen these occurrences I manage daily stress, get a lot of exercise (but give my body more time than others to recover and not push to my limits), carry a water bottle around to hydrate (helps a great deal), and stay away from sugar and breads. My doctor prescribed 1,000 mcg of vitamin B-12 daily that relieved the difficulties with walking. I hope your fiancé can quickly get her symptoms resolved. It can be an exhausting disease to get controlled. If you have any questions please ask. I’ve experimented with many things throughout the years trying to find a sense or normalcy.
@@Goat_65 Also, if the mass is benign, levothyroxine can help prevent the immune system from attacking the thyroid and reduce her mass, or nodule, on her thyroid.
"Her mother downplayed her symptoms" maaaaan I feel that. My mother swore blind through my childhood that I couldn't _possibly_ be lactose intolerant and I was just exaggerating not feeling good after eating something with a lot of lactose. Decades later I use lactase on a regular basis for my lactose intolerance.
Doctors need to learn to not instantly take a pushy parent's word for whether a kid has problems.
My pet peeve. When parents do not listen to their children & brush things off. This only exacerbates the child’s inability to fully feel safe and heard. Uneducated & selfish parents are dangerous parents to our children & our future. It is indeed the most challenging of Life’s choices to parent.
We all learn and many times in the hardest of ways.
Blessings & the best of health to all💜
I don't believe he knows a thing about her mother. This is a typical nonsense YT video by none other than a doctor!
@@banclaster8086 subscribed to a channel that questions if the nazis were right wing or not. Man I hope you see whats coming before its too late! Otherwise have fun wondering how you got there
@@VileOT48 WHAT are you taking about?!!
teens need a confidential environment to speak to doctors in. the doctor should have said ''we'll have a private chat with her.'' that should be standard
Doctors should always make sure that the actual patient gets to talk. And NEVER just brush things off. Having worked in emergency services I have seen patients being talked over by their partners or parents, to the point that they directly contradicted what the patient stated. Patent states „I have a headache“, other person says „No no, you have just been feeling a little under the weather“. This story makes me really mad. It was so utterly avoidable it is almost comical. Sure, hindsight is always 20/20 but still. This did not need to happen. 😢
I 100% agree.
Thing with doctors is they can't dismiss what parents say aswell since the parents should know more about the patient and the parent pretty much made the case that her daughter is a Hypochondriac "a person who is abnormally anxious about their health." and evidently came to that conclusion coz when you can't explain the plethora of symptoms the patient described what else can you say? and yes that means the doctors she visited weren't skilled enough to make a diagnosis and the parent made it even harder since it's an Autoimmune disease and that's really hard to diagnose to begin with. Alot of things come in play when it comes to diagnosis and it's nothing to scoff at and imagine going to a police station and getting mixed information you wouldn't know what to do with the contradicting information and forced to a diagnosis considering this mixed information so even if the Doctors made the patient talk the parents observations can't be ruled out just coz they are what they are. It's a rough thing and a sad sight to see and it's the parents fault for being too dismissive portraying her daughter as a Hypochondriac. It's nice when i heard she did make a full recovery, always glad to hear that. This is what happens when loved ones play doctor in the house, like everybody has an opinion regardless of lack of medical training and doctors need DATA and not IDEAS coz they are the one to turn the DATA to IDEAS and not the other way around and they don't need that help coz it just makes things more complicated than what they really are.
I've made a policy of interviewing both parties separately when that happens. Parent/relative/spouse leaves the room while we get the patient's story, and then we can get a brief history from them outside the room.
I seriously can't stand people talking over each other when I'm trying to get a brief history - even if they agree with each other. One person speaking at a time, please.
@@m0n4rch911 No, she made A recovery, not a FULL recovery.
@@m0n4rch911 the parent isn't the patient. You're duty as a physician is to your patient
I have lupus too and man I remember my family telling me it was all in my head and to stop being so lazy, and I was just in so much pain both physically and emotionally that I contemplated... well that unaliving thing. My doctors thought it was arthritis and gave me meds that didn't work, it was a horrible time as they didn't really want to diagnosis me with lupus. It didn't change until I had to be hospitalized because I was quite literally near deaths door. Thankfully I am well and still here, taking my meds and living a fairly normal life.
I feel I'm in a similar boat here. I have so many problems and I feel so awful all the time and It's only getting worse.
I got pneumonia and lost part of my lung and that impacted my energy levels but nothing too bad. Once you have a bad bout of it you are more likely to catch it again and like clockwork I caught it the next year and then I also got bit by a tick at the same time. I haven't felt the same sense.
I guess I feel like I never recovered from the pneumonia, like I feel like I'm coming down with a cold (burning up, achey, lack of energy) daily on top of tons of other problems that looks similar to Psoriatic Arthritis. The doctors say "everything looks fine" but I don't feel fine.
💔✊✌💗🌈🐢
If you come up with chest pains and numbness and are being checked for heart disease, have your blood checked for vitamin deficiencies. Heart attack in 1998, quadra bypass surgery in 2002 in 2012 and the eleventh stent that broke plaque loose and they had to get me back, I decided to throw away my bag of medicine and if I'm going to die I'm not spending any more on chemicals so I threw out the chemicals, a doctor new at the practice did a blood test and found me low on Vitamin B, she put me on B12 shots, from 2012 to 2020 I gt the shots and no heart problems, 2020 a not so knowledgeable southern doctor didn't understand the difference in 2012 and 2020, so he decided I didn't need it and medicare doesn't cover it. They rather pay $100,000 for surgery and after 75 they don't want you drawing social security anyway.
Depending on age overall 10 per cent of lupus patients are male. Missing that diagnosis is inexcusable.
Easier for THEM to handle 😔
As someone with lupus, this was terrifying. I’ve gotten a lot of unsolicited alt-medical advice from well-meaning people but this was a new one to me. It’s usually just oils, vitamins, and supplements and I always reply “I’ve got an amazing care team of many talented doctors but thanks for your advice“ I don’t think I could let this go without advising how bad of an idea this is. Lupus can be hard to diagnose and treat, and living in pain isn’t easy. My heart goes out to this woman, her life just got a whole lot harder. I’m glad she landed in a great ER.
It’s shocking how much stupidity gets sold as science through fearmongering about things like this…
O2 therapy is very very beneficial and helps with a lot of things I’ve been doing it for 3 years I have extreme candida through my whole body. The o2 therapy has been a life savor. The problem isn’t the food grade peroxide it’s that she didn’t dilute it you literally have to take drops diluted in a lot of water,
I have a question for you. Have you had a lot of stress in your life, or any trauma, or traumatic events? I ask because I was covered with Eczema for the first five years of my life. It’s also an autoimmune disorder. I learned many years later in a college class on Child Growth and Development that Eczema is a psychosomatic (mind to body) reaction to stress. It made perfect sense to me, not in that my early childhood years were stressful, but that my father died test piloting a new jet while still in the Naval Reserves in 1952, and my mother was just 3 months pregnant with me. And with two little boys in tow, I was to be her third Caesarian Section, unheard of in those days, thus quite risky. Suffice it to say, her stress became my stress. So that’s why I’m asking you about stress and trauma. I have heard that stress and trauma cause autoimmune disorders. Austrian (?) Psychiatrist Bessel van der Kolk and Canadian Gabor Mate, MD, have both written books on this issue. And both are here on YT. Your thoughts?
STOP EATING ALL PLANTS. Eat meat and only meat with plenty of fat on it. Try it for 90 days. Many have had autoimmune disorders disappear or at least greatly diminished doing this. You have nothing to lose.
Hope your fight with lupus is going your way. It does not take much time to take a look at HP and its benefits..... if used properly I will absolutely not harm you in any way. This lady messed up really bad and to put the blame on HP is just wrong. Pretty much anything taken in excess will more than likely damage you in some way. This talking head clearly seems to be in big pharma's pocket. HP taken as directed is not in any way dangerous. A friend of mine cured his cancer along with traditional medicine and HP. There is a FACT look it up cancer can not survive in a highly oxygenated blood stream. That is what HP does for you if used properly it oxygenates your blood.
last month I was searching online to see which one would be a better disinfectant for the house: alcohol or peroxide. as I searched about peroxide, I stumbled upon medical grade and food grade peroxide, and saw warnings that food grade peroxide shouldn't even be purchased by households due to safety issues, which included an anecdote of someone accidentally drinking food grade peroxide kept in the fridge (I was also wondering why the heck would someone store peroxide in the fridge), and turns out this video now is about that exact incident :)
Which is sad since then there are people like me that just use it for bleaching color as a side job of a stain removal guy in houses with white carpet
It's stored in the fridge because cold temperature slows the natural decomposition so it lasts longer. I do agree that there are very few good reasons to have 35% H2O2 at home. In my case chemistry is a hobby of mine so I have some for that purpose - but drinking it would be crazy. I wear gloves and goggles when using it because when I've gotten a drop on my skin accidentally it forms a callus because it kills some of the skin cells.
@@sbreheny yup, for chemistry purposes and other hobbies, it is definitely okay to keep stock in their respective houses. Most likely, the medical journals discourage regular households from buying and using that strength of peroxide probably due to the stronger fumes during use, and the problems when inexperienced household members spill it onto their skin. so, as a result of the search I did, I settled for both a gallon of isopropyl alcohol and a gallon of 3% peroxide to order. I had to resort to alcohol and peroxide as surface disinfectant in the house because bleach is too cumbersome to prepare, plus the bleach fumes and the leftover diluted bleach only lasts 24-48 hrs in the spray container. :)
@@KatzenwagenTV Why are you in need of a "household dissinfectant", though? I mean, unless you or your relatives suffer from some illness making you prone to infections, like, why dissinfect your home in the first place? A whole gallon of isopropanol is quite a bit, what are you doing with that? No offence, just asking out of curiosity.
@@bagniacz3264 main reason is two elderly parents. another reason is coz my brother, who is a doctor who works at a hospital, prefers to have his shoe soles disinfected before entering the house, so a disinfectant-soaked door mat is used. our mom is also a doctor, private clinic, and she just wants everyone here to be safe not just from covid but also from other stuff. :) one last reason is that the gallon of alcohol and peroxide both cost way cheaper than the regular 500mL and even 1L bottles. :)
I appreciate that Dr. Bernard doesn’t mock these people, and yet barely contains the rage that surely comes with actually knowing how the body works in its incredible complexity
This whole video was mocking alternative health forums. He seems to be focusing on this subject exclusively nowadays....often ignoring the fact that the therapies were not used as suggested, just as conventional therapies can be misused and cause issues.
@@ValCronin Issue is that she somehow cam to this conclusion, because the alternative therapies aren't well defined since there's often little to no genuine data behind them.
@@ValCronin While I'm a bit sad this theme has been going on for so long (I'd like some different stories from time to time), I think it's because he sees a lot of the fallout in his work and is in a position to do something against crazy ideas on Social Media and speculative internet forums. So he has a reason to want to make people a lot more careful. And yes, that may seem like mocking to you as you are apparently a user of alternate health forums (and propably for a reason).
But he's trying to get through to you that even if a bunch of doctors misdiagnose you for whatever reason that doesn't mean you should give up and grasp for straws from people who never studied organic chemistry!
Or worse: take an alternate medicine too far because you're desperate.
The main problem with this and especially internet forums is that it is a whole lot easier to misunderstand or misuse those therapies. A doctor will only prescribe you so much and expect you to report how it goes so he can reevaluate. There will be specific information on how to dose, what kind of side effects there may be (they even list side effects that where never actually reported but could *in theory* arise) and when to be worried or not take the meds. Additionally, someone else will be aware you have a specific prescription. So doctors will have clues if anything does go wrong and "VC is admitted to the ER". You don't have that for "alternate meds" as you call them. No studies exist or if they exist they point out serious problems or lacking effects which is why the med is *not used* in modern medicine. Trust me, the pharma industry is the first to make money if something *is* proven useful.
You're free to use yourself as a test bunny for your own illness if you feel the need but always make sure to ask someone with inside knowledge of medicine (attested, so you can be sure they are relativly prone with organic chemistry) before taking alternate medications of any kind or dosage. Or at least go to a professionial "alternate" doctor rather than a forum where you can never be sure "Dr. Sunshine" is really who he claims to be.
@@ValCronin People should check the info in the alternative treatment they're looking for safe or not and true. A quick google search if said treatment is safe or complete Bullock's is enough.
@@ValCronin "were not used as suggested" - yeah, should have injected the H2O2 right into the bloodstream...AS SUGGESTED.
Man, this woman’s case hit really close to home for me. My dad often speaks of his cousin who had lupus, and very sadly ended up taking her own life after years of pain. My mother has rheumatoid arthritis, and is one of the strongest people I know. My heart goes out to this poor woman.
I can relate. I've had years of pain just from living with my mother.
Dr. Ardis cured his sister of lupus by treating for parasites.
@@andybilakshow260 I can relate to that! Thank God my for my grandmother!
people with autoimmune diseases shouldn't reproduce, it pollutes the gene pool and will make future generations suffer as well.
To cure arthritis is simple, 1 TBL spoon BORAX in 1 ltr water, shake it up to dissolve and put in fridge. Each day mix 1 tbl spoon of solution in juice and drink. Usually takes a month. Share, it works!
The PTSD with parents and doctors ignoring/gaslighting is so real. Being diagnosed with Autism at 31 years old caused a grieving period.
Parents, stop ignoring your children.
My mom at 71 is getting gaslit by doctors lately and even her insurance broker.
@@angieskidney she doesn't deserve it. Find a new care provider. Likely, the care provider is giving the impression, that your mom doesn't need care, to the insurance company. Get a new care provider fast, record them, report them, do whatever you need to take care of your mom. She deserves real care.
as someone who’s mother kind of gaslit me into thinking that my symptoms were bullshit when it came to mental health, and doctors thinking legit symptoms of what was later found out to be a 4 cm ovarian cyst after multiple times being hospitalized for my anxiety, which was triggered by the physical symptoms i was having, i relate so hardcore with this person’s struggles. i hate it when i’m not heard about my body.
Doctors tend to think women are making things up, there's also a tendency to believe black people exaggerate pain symptoms for some reason. It's bizarre, and it's a big part of why people don't trust doctors. That and the whole wringing-you-out-for-every-dollar-you've-got thing. It's no wonder people fall for these home remedies.
@@funghazi Interesting, do you have citations on that? I'd love to read up on it.
Yeah I can also relate.
The lifelong struggle of mom chalking all aimnents down to a combination of laziness & hypochondria. & the cause for her denial is likely obscene doctor fees.
@@viktorg6823 If you are serious, just google data on it. There are many publications that suggest people get better care from people that look like them and disenfranchised groups are often considered exaggerative, and their problems are overlooked. It isn't an ALWAYS thing, but it does hinge on implicit (unintended) bias, most frequently. This is cited in both medical societies and from inclusion diversity equity and accessibility (IDEA) aka diversity equity and inclusion (DEI).
as a kid I was always scared of dying from sickness, now I'm scared of dying from negligence or accidents when being treated for sickness. Personally I've had mostly positive experiences in medicine thankfully, but it's still always in the back of my head since I know some people do have the bad experiences
It's always weird to see two channels i watch that are totally unrelated, writing comments on each other's videos.
Reasonable, since annual estimate is 250,000 people died from medical errors 7-9k from drug errors.
when i was 5 years old my grandfather got sick at Christmas, his birthday, and ended up being prescribed a medication that he was allergic to without proper allergy tests being done before hand and ended up dying as a result. He was an 'old school farmer' who had never gone to the doctor for anything in his life. My mother had begged him to go and see a doctor because I was 'old enough to understand Christmas and she wanted him to be well enough for it and his birthday'. This was early 1980s. My parents are 'old school' themselves and decided the medical mal-practice would be forgiven because the family doctor was a 'family friend' ...but ya needless to say I am extra inquisitive of all medical people. They are human like us and make mistakes and guess like us.
Personally, I've only experienced negligence...but I have a rare form of an already rare disease, so I have their "you're on your own"-remarks justified.
no point worrying about something you cant change.
"It's just water with an extra oxygen!"
If anyone ever suggests that a single atom can't possibly change a compound enough to worry about, remind them that an atom of a metal that explodes on contact with water can be combined with an atom of a highly lethal gas to make TABLE SALT.
Bro, I researched this 6 years ago, and food-grade H2O2 is to consume as long as you take in the right amount. I mix it with my water starting with 3 drops per drink 8 oz and increasing it by 1 drop till it reaches 23 drops per drink. I did this for more than a year, it didn't kill me. I am not in any way suggesting my routine, it's more of an example to sure you that like any other medicine, overdosing can be lethal
@@georgejosiah8030 But why do you take it?
@@georgejosiah8030 Me too. I've been using it for ages. No problems. Gets rid of flu quick.
@@jaxxx010 Exactly, cause they are about to make it sound as if the moment you decide to try it, then you automatically agree to die
@@georgejosiah8030 The dose makes the poison. You diluted it with water so that it was less toxic to your body and your liver could get rid of it safely. That doesn't mean it's not still toxic though, you just diluted it enough that your liver could manage it without causing major damage to your tissues.
Hey food scientist here! I want to explain what food grade means. First of all it doesn't mean that you can eat it. It just means that it doesn't contain deleterious chemicals like heavy metals. Hydrogen peroxide is often diluted and used as a disinfectant at food service establishments after washing dishes. If hydrogen peroxide is not food grade it can contaminate the dishes with heavy metals and then they will later come in contact with food and may cause health hazards.
Thank you. I did not know that. ❤
@@Villager565 🥰
Thank you for explaining this!
I don't think this man gets enough credit for the break down of medical words to a point that's so easy for the everyday person to understand. Much love and respect.
Well should the actors of any shows get accredited with writing the script? As far as I'm concerned it's the same logic, he's reading a pre-written script... And this is in big farmers interest to have his video very popular which is why it was allowed to have a million plus views, which again points to him not writing this and it being a script. Seems like a classical trained dramatic actor to me not a doctor, but that's speculation.
@@smalltownboi86
Big farmers lmfao 🤣
@@joshuaeah lmao
Exactly. He teaches so much about the human body and gave me an actual idea of how it works. Thanks to Chubbyemu I'm thinking twice before eating anything sketchy or drinking stuff that I don't know the exact components of
@@smalltownboi86 He's a doctor, sir.
It took doctors 40 years to diagnose me with lupus. A lot of damage was done before it happened. I had diagnosed myself at around 36 but couldn't get a doctor to agree until I was almost 60. Doctors can be very frustrating to deal with
That’s insane! 🤦🏽♀️ Homeopathic docs and naturalist are also an option and more often than not they often know just as much or even more than mainstream doctors.
@@TheeGoddessQUEEN I don't believe you.
@@MrSilvo34 I don’t give AF. 🤷🏽♀️
@@TheeGoddessQUEEN Obviously. :)
Tbh a lot of doctors that are working today shouldn't be doctors anymore. We need some sort of recertification for the incompetent doctors around. All they do is prescribe you anti-biotics. They are many highly intelligent doctors around but most are held up in inaccessible hospitals.
I had all of the same symptoms as KJ, and my family thought I was being a hypochondriac. I ended up having 2 leukemias at the same time. I had to go through a ton of specialists only to be diagnosed by a pathologist during routine thyroid blood work
How are you doing today?
You are very pretty it’s a shame a pretty lady like you has to go through such torture 😔
@@SlavicUnionGaming tryna spit game to a women talking about having leukemia
@@comradepolarbear6920 lmao you are mad at slavicgaming
@@KimiW woo woo
I was doing groundwater remediation (treatment) for an environmental company in South Florida. I was supposed to pour one (1) gallon of 50% peroxide, down a groundwater monitoring well. I was wearing neoprene gloves, rubber kitchen gloves and on top, heavy chemical resistant rubber gloves. All new. I filled a gallon water jug with the 50% peroxide ready to pour down the well and the peroxide had gotten through all three pairs of gloves, causing terrible burning and itching on my hands. After delivering the payload down the well, I washed my hands under a running water faucett for at least 20 minutes, before the disconfort subcided. I personally stay away from peroxide, unless it's the stuff one gets at the pharmacy.
I am very sorry that her previous medical history drove her to this decision. It makes me so sad when you have to say “a recovery” and not a full one.
It's even more sad in her case, because now she still has Lupus AND Rheumatoid Arthritis AND she has some amount of permanent damage from this incident on top of that!
Yes, whenever Dr Bernard says "a recovery", my heart sinks.
It was an accident, it could've happened with pharma-medication as well, in fact there are far more overdoses with pharmaceuticals.
“Food grade” doesn’t mean “safe to eat/drink”, it means “contains no hazardous impurities”. There are food grade chemicals that you can’t even use as small ingredients in a recipe, but they could be used to chemically synthesize something else which COULD be used directly in food.
Exactly. It means like say, they didn't cut it with lead, arsenic, or aluminum sulfates to make it go farther. It means it can be safely used to make cleaners and sanitizers for cleaning surfaces that may come into co tact with food. Like for plastics, it means that it can come into contact with food and *some* heat and not leave toxic chemicals behind or react with the foods. (but that doesn't mean that if your plastic "wooden" spoon melts into your food because you left it in the pot by mistake that you can or should still eat the food.)
we use "food grade" soy lecithin in some of our coating batches where i work. so yes, food grade and edible are not close cousins
I wish I would have known that before I ate that food grade stainless steel pipe! Now my stomach hurts!
@@sicfrynut I mean I'm sure food grade soy lecithin can also be used in edible food. Just that it is also used in non-foods. Soy lecithin is edible, so food grade soy lecithin is too.
What a stupid name in that case, and potentially fatally stupid. Who is in charge of this? Why on Earth would anyone keep this as the official name?
Two scientists walk into a bar, One orders "H2O" drinks it and enjoys the water. The other says "Ill have H2O too", drinks it and dies.
don't drink Hydrogen Peroxide, She could have used this joke in her life
edit: Only in this late hour did I see the meme lord had used this joke before me, F
I heard Tritium-water is much safer
oops
Heme* Lord
Wouldn't the bartender have to be a scientist too? A regular bartender is just gonna give both of them water.
@@Patrick-tx7eb rat poison is safe if you arent rat
I went to an engineering college, and one of the first courses they made us take was chemistry lab safety. DO NOT FUCK AROUND WITH PEROXIDES was the number one takeaway. At some concentrations they are so unstable that even being careless while unscrewing the cap can cause a violent reaction.
i gargle with 3% hydrogen peroxide all the time and even sometimes brush my teeth with it. I use it to disinfect my kitchen surfaces. I used it along with iodine to disinfect a serious cut and it worked fine to prevent infection. I've used it to help heal skin rashes and it seems to miraculously do the trick. How it works is something I had no idea about. I know that rocket engines use hydrogen peroxide as part of the fuel system.
@@mdb1239I think you're actually just a bottle of hydrogen peroxide pretending to be a human
@@metaltrombone549 This vid taught me something. Why hydrogen peroxide doesn't come in clear plastic containers. It needs to be shielded from light. I love hydrogen peroxide. I use it as a light disinfectant and occasionally shampoo my hair with it. May be like once a year. These days I'm getting gray hairs so it really doesn't matter about bleaching. If I don't have some in the house, I feel a slight loss.
@@mdb1239 in this video it was said that it's not working as disinfectant against bacteria, maybe you were just lucky
@@MissAdalia1991 ""Hydrogen peroxide does kill germs, including most viruses and bacteria1. However, it can be too harsh on the tissue surrounding the wound, and applying it may even make it harder for the wound to heal2. A concentration of 3% hydrogen peroxide is an effective disinfectant typically found in stores."
Having grown up surrounded by alternative holistic medicine, and now a health professional, I really really appreciate this video
Wish you could go on a lecture circuit
I had an extremely religious woman tell me to stop taking all my meds and say "Here I am God!" HIV meds, high blood pressure meds, testosterone from damage cancer did, and other important ones. I would like to eliminate as many as possible but she was way overboard. I'd be dead by now had I done that!
I hate them so much. Especially when they push their bullshit onto children.
Same
SUPPOSED holistic
SUPPOSED medicine
This story is heartbreaking, but unfortunately all too common. Many of us with chronic illness have been failed by the healthcare system, and out of desperation look to alternative treatments..
Thank you for including the back story of the patient’s mother and doctors gaslighting her. It humanizes her, and is a story I think the majority of those with chronic illness share..
Yes, very much so.
Are we being failed by the healthcare system or the economic system and governance which allows insurance companies to charge us many times more what they pay in more civilized countries
@@isidoreaerys8745 as you could see by the backstory in this video- the healthcare system is just a tiny portion of the issue.
Chronic illness awareness is the true fight we need to focus on. That alone will solve the at home, work, AND healthcare constant discrimination that is preventing us from getting the help and treatment we need.
It's demonizing Food Grade H2O.
There are safe and effective protocols. I don't think I've ever met anyone in my 42 years that doesn't have a mind of a child
@@isidoreaerys8745 the healthcare system actually needs more competition to push down prices, not regulation that makes smaller clinics/hospitals go bankrupt
I appreciate that unlike another channel I followed recently for perhaps related grim content to mental health; that you don't throw her or anyone under the bus for the choices they ultimately made; driven by what happened and built up to their session in the hospital. I am thankful that you've avoided the temptation of any political or personal tangents to denigrate someone who's ended up so seriously harmed. It's deeply appreciated.
Let me guess... Dr grande? He seems so chill at first but then you slowly see the pattern
@@meganchristiansen99 No, it's more to deal with criminal psychology. Dr. Grande is more broad. Grande as far as I can tell between his Twitter and UA-cam strictly focuses on content . . . I sadly may be missing information in that case, but I hope you continue to do well.
@@MrAlex_Ravenoh I get what you mean. unfortunately Dr grande tends to do the same thing as those other ones. Its just harder to catch because its part of his sense of humor and comes across as sarcasm/jokes. Unfortunately good psychologists on UA-cam are hard to come by. However Mickey Atkinson's channel has been great from what I've watched so far
@@MrAlex_Raven What channel ?
Just started watching these insane stories and I’m really enjoying the amount of information and explanations for each video. From learning about the breaking down to actually body reactions most people won’t go the extra mile. Greatly appreciate these videos keep doing your thing doc!!
Just very sad. Had her mother not downplayed her symptoms, it's possible she may have been treated for the lupus earlier, and possibly slowed the onset of joint breakdown...Parent's should take heed not to do what KJ's mother did.
I am a chemical engineer who works in peroxides. Specifically, I work for the company whose SDS sheet you used here (PeroxyChem). I just want to make clear that we do not sell peroxides with the intent of them being consumed for any kind of "health" purpose. They are sold for sanitation purposes, semiconductor manufacturing, rocket fuels, etc, but not for drinking. I realize that you simply used the SDS to show the dangers associated and that it is a HAZMAT, but being that it came up while you were talking about "the kinds of people who sell peroxides as medicine" I just wanted to note that we are emphatically *not* those people. The use of "Food grade" on the label should not be taken to mean that the chemical should be consumed, only that it can be used in food sanitation and production environments (Food grade sodium hydroxide is also sold and used for making pretzels, among other things, but consuming it in a concentrated form is highly dangerous and possibly deadly).
Yep used in lab to clarify food in acid digests.. find it hard to see how she consumed it.... A three percent solutions stings.
i don't find it difficult to believe at all. If something is listed as "FOOD GRADE", to MANY people who havent WORKED in a food industry, NOR a chemical industry, WHY would we believe differently? When we consider the fact that "peroxide" (in the brown bottle), has been used for over 50 years (that I"M AWARE OF). So yes, when a person is DESPERATE enough to resort to this level of craziness, I can understand her level of thinking. Though she used it in extreme, I remember many years ago, this was a "fad" going around for "sinus infection remedies". Some form of peroxide solution concoction, diluted to a specific percent, that we were supposed to take 1 tsp or 3 tbsp, or something.... When people get desperate, they WILL resort to a different "level" of spectrum. So what is the solution for this woman? Perhaps just "wait, to find a GOOD Dr"?
Your comment was both informative and conscientious. Thank You
I use 3% hydrogen peroxide as a mouth wash and gargle. It bubbles all the slime and food particles in your mouth much better than those expensive mouth washes that have alcohol and stuff I can't even pronounce. It plainly states on the directions it's a first aid antiseptic and oral debriding agent. I also soak my mouth guard in peroxide that I sleep with because I have bruxism. I get my peroxide at Walmart for less than a buck verses a 5- or 6-dollar bottle of Listerine. Sometimes If I eat spicey foods I get acid reflux it caused me to have mouth ulcers. Hydrogen Peroxide is a good antiseptic my ulcers are gone in a couple of days. I definitely would never drink Hydrogen peroxide. However, I have seen videos of folks saying they drink peroxide and it healed such and such condition. If you are not medically educated don't be giving advice to people that don't know any better than to believe you.
@@katherineheimnick5340 You do know that he is a trained medical professional, right?
as somebody who's been brushed off and eye rolled at by doctors for what may or may not be an autoimmune disorder (havent gotten tested yet for this reason lol) I appreciate your subtle dig at the doctors who didnt catch her condition earlier
Ugh big relate. That’s how my shoulder joint got destroyed :/ the first half of this video hurt to hear because i know what that feels like to be brushed off or downplayed even by your own family. And feeling like you need more and more medication to stay “normal.” SLE is a living nightmare, and i say that as someone whose case is pretty mild.
I went to a primary care doctor once because I had been put on "pain management" and was hopelessly addicted to the pain meds. My primary care doc treated me.horribly, I felt stigmatized....I ended up being junky for YEARS after that, feeling afraid, to seek professional help, due to guilt and shame.
I FINALLY got broken enough to seek help in 2020, when I felt so hopeless I became suicidal. Been clean over a year now....it's incredible what a poor response from a medical professional can do to a normal person
what are your symptoms ?
The thing is, the symptoms of autoimmune diseases are usually non-specific, and there are a lot of people with symptoms that could theoretically be caused by autoimmune disease, but actual autoimmune diseases like SLE are extremely rare. So the doctor has to try and find the one person with a serious autoimmune disease out of dozens or hundreds of patients who have symptoms that could potentially be associated with such disease but don't actually have it.
Usually the sign that the non-specific symptoms are in reality something serious are a. they last longer that you'd expect, or b. they evolve into something more serious. In both of these cases the disease will be diagnosed "late", and in hindsight it can be pointed out that those early symptoms that were ignored were the first signs of the disease. This can be very frustrating to the patient, but usually the doctor didn't do it out of malice or neglect (there are asshole doctors as well who genuinely don't care but they are a minority), but because he's met a hundred patients with the same exact symptoms and none of them had any serious illness, and that made him biased
@@exantiuse497 SLE is on the uncommon side, but it does not qualify as a rare disease. UCTD is a catch-all diagnosis for those who are showing some signs in their blood and body that could eventually grow into a full blown autoimmune disease, and it’s a lot more common. If you start someone like that on something benign like plaquenil if it’s looking vaguely like SLE, it can prevent evolution into a full blown disorder. I didn’t meet all the SLE criteria when i rolled up to my first and my current rheumatologist (lol to my misfortune, we got there eventually 😂), but at that point id been ignored to where my shoulder was destroyed, i had awful rashes, was sleeping 18 hours a day, and with that i had a family history of multiple autoimmune diagnoses. Plaquenil took the intensity down a bit and gave him time to keep watching me and it’s an extremely good thing he did. I could have easily been dismissed at that time and I wasn’t. I would’ve had to drop out of school, and based on my bloods that have been course-corrected he saved me from liver and thyroid damage, in addition to more joints that have flared over time. There is no reason to turn a patient away who exists in a grey area. especially if they’ve got something specific to a disease like a malar rash. I understand doctors have a lot moving through their heads and it sucks to have patients that exist outside of a neat box, but writing someone off as anxious or lazy is unacceptable. It may be the case in some, but do some due diligence first.
What I find super cool in all of these videos, is the ingenuity and innovative doctors can be to treat some of the strangest, abstract and difficult cases that you could possibly conjure. Respect to the doctors.
I absolutely relate to KJ being gaslit into believing all of her symptoms weren't as severe as they actually are. I have absolutely no comprehension of what's bad enough to warrant hospital/clinic visits because of my mom telling me I was being an idiot or dramatic. I've had to get over things like bronchitis and a sprained wrist with nothing but otc cold pills and advil.
Edit: some of y'all in the replies are actually disgusting. I'm glad you're commenting here because if that crap found its way to someone who was still being effectively gaslit it could damage them beyond repair. I am not soft for wanting to take advantage of the FREE modern medicine I was entitled to as a Canadian minor. I am not ashamed of wishing I was taken seriously. Move on and stop villainizing victims.
I'm sorry you went through that abuse. I hope you're doing well now. Take care!
@@nmxsanchez unfortunately I'm still going through it, but its a bit better now since I have friends who can actually distinguish a hospital problem vs a home remedy problem. Thank you for the concern though :)
That just made me cry. I'm very glad that you are aware of it now. I understand it too. Gaslit by mom, then again by that online community. She was doing the best she could figure out to do. It's impossible to know who to trust when the professionals aren't on your side either, which happens so often.
@@anne-marie8018 exactly :( it would be so much simpler if they taught stuff like this in schools more readily, or had more free resources to ask questions to professionals. I hope if I ever have kids I never make them feel like this :(
LOOOOOL. Man really crying over having to deal with Bronchitis and a sprained wrist. Crazy how weak you people are. If you were in the position that the woman in the video was you wouldve legit died on day 1
Props to the mom for first letting her child suffer for years only to for thing to end in such a tragic manner... Imagine trying to recover from such severe injuries while already being chronically ill. 10/10 best mom over
I bet she has a mug that says "#1 mom" on it.
It doesn’t even mean much because unless the parent is obviously abusive since the child could remember clearly or grew up where the parent was most abusive to another sibling, it is very likely that the child may buy a #1 Mom/Dad/Parent mug: it’s an obvious source of appreciation and they’re found everywhere.
@@iantaakalla8180 in this case the mom definitely bought herself a "#1 mom" mug.
Sounds like my mother. Diagnosed with Asthenia but we don't know the underlying factors and too broke and weak to afford to go check that out anymore. People have been downplaying me for years on this. I have cut almost everyone off due to this.
@@Mary-Ann_B_Mabaet ....I have been seeing a lot of similar comments on this. Maybe I am just NOTICING them due to my bias or something, but there seem to be a lot of really shitty moms out there!!! WTF?!?!?!?
As someone who accidentally drank 3% hydrogen peroxide when I was a kid, I remember how much it hurt. Can't imagine 35%.
yummy
Same!
I can't picture accidentally drinking it. I had to gargle that stuff for a couple weeks after a dental proceedure once. The moment it got near my mouth my nose had a reaction to it telling me not to put it in my mouth. From the moment it entered my mouth to the moment I spat it out into the sink, it felt bad in my mouth. Kind of like all the tissue in my mouth was dry, covered in foam and yet drowning in saliva all at once. Not at all pleasant and a very rapid unpleasant response.
do you remember how'd this happen?
i used to swallow it when i took care of some scratches or smth in my mouth i don't remember
but i specifically googled if its safe
it was 0.3% btw
it tastes very unplesant
A good friend of mine had a terminal lung condition related to pulmonary pneumonitis. She was on oxygen 24/7, antibiotics stopped working and her doctors told her that her only chance for survival would be a double lung transplant. She started drinking 35% Food Grade H202 diluted in distilled water (25 drops of 35% diluted in 8oz. of distilled water) 3 times a day and slept with the same solution in a humidifier next to her pillow at night. In 2-3 weeks, she was off of her oxygen 95% of the time and her stress test and oxygen levels were in normal range. Her doc told her that whatever she was doing to keep doing it. Drinking or inhaling 35% Food Grade peroxide straight/undiluted will cause problems. But when it is diluted properly it can cure terminal health conditions with zero side effects.
Yess!! Really happy to hear this about your friend. I live in Florida and was having faulty air conditioner issues and basically I got a bad fungus in my lungs. I took Mimosa Pudica capsules for 3 days in a row only one a day and was able to get off the oxygen after being on for 3 years. A lot of times when we are diagnosed with chronic luggage issues it's because of a mold, fungus, bacterial or parasite infection. It rid of that and we get rid of the problem. Your friend killed off whatever was compromising her lungs❤
I must also say that I like how you got into such detail about what was done. How many people say something work for somebody & then don't explain anything other than that when they have the solution right in their hand uet they don't give people the recipe. So frustrating....
I had similar experiences as KJ. My mother said I was a hypochondriac and hysterical. She told everybody else that I was an hysterical hypochondriac. I remember her dragging me by the wrist to the doctor, screaming at me all the time that I was going to get such a slapping when he confirmed that I was malingering. An hour later I was in surgery, having a perforated appendix removed. There was the time she locked me into the house when I was running h a high fever and took my siblings to her sister's house got the afternoon. When they came home, I was unconscious. I came to when our doctor was carrying me to his car. He took me to hospital where I was put onto IV antibiotics. I had a serious kidney infection. I'd told my mother I was peeing blood clots. Her response was I'd better not be pregnant. I was 10 years old...There was the broken foot incident. And ...and...and...I was often slapped and screamed at if I got sick. I'm sure the picture is clear. Even now, at 62, I have to fight off fear and shame every time I get sick.
Holy shit. That's horrible. I really hope you escaped that horrific abuse and have been able to heal, even if it's taken a long time. Abuse by a parent is one of the worst things that can happen to us.
I realise that things maybe would have been different back when you were a child (with you being 62, that puts the events you described in the late 60s/early 70s), but damn I was disappointed when your story didn't end with the doctors reporting your mom for negligence and child abuse.
I am so, so sorry. I hope you've been able to heal as well as possible.
That is just heartbreaking, I feel awful that you had to deal with that. Hope you're in a better state mentally and are doing well.
I hope to whatever god is out there that you are no longer around this woman
@@Jellybean_x hopefully she’s deceased (the mother) however the miserable ones are the ones that seem to never die 😩
KJ is a great example of why you should take repeated complaints seriously
And to protect them from quacks and charlatans. Desperation will drive anyone to extremes.
Ps. As someone who is into vulture culture, I can promise you, you don't want to ingest it. Keep it away from places where you store food, please!
Yep. Separate fridge if you need to refrigerate it, either one you use specifically for medications or one for chemicals.
If warning symbols are too discrete, buy or make proper stickers and label the containers.
And of course, strongly consider a lock.
Their are so many people that are misdiagnosed, and they suffer horribly or die painfully. A lot is that doctors are in it for the money, especially medicaid. With medicaid though it's like playing russian rullet. You get a random somebody who doesn't listen.
@@rachelmartin3631 You have the same problem in countries with socialised healthcare as well. I believe that it's more along the lines of inexperience with diseases with diffuse symptoms, lack of training in patient-doctor communication (it's only become a thing relatively recently).
That is a bad combo when a patient has something which is known to throw diagnostic curve balls or is rare.
@Teukka72 Like how the doctor constantly ignored my mother until her cervical cancer got so bad she was basically a dead woman walking even with treatment...
@@Teukka72 Also, sexism, racism and suchlike also plagues the medical field. Women are less likely to be taken seriously, especially if even more so if not white.
And like, heh, if youre afab and struggling with doctors you can get an idea of how BAD it can get.
My mum taught me, from struggling to get a clear diagnosis, from suffering because of a male doctor. Dig your heels in. Fight. Because youre fighting for your very life.
This story is especially heartbreaking to me, as I have a very similar story to KJ. It took me years of blood tests and doctors saying all I needed was "a boyfriend" for me to be diagnosed with Hypermobility Syndrome. It was last year, so I still don't know what kind, but what I do know is that not only do I have hypermobility all over, it also has resulted in me developing fibromyalgia.
There were times I was so desperate, that I would have tried anything to go a day without being in pain. In part, thanks to your channel, I didn't give into many of these internet hoaxes, as desperate as I still get sometimes. When I feel like I'm about to give in, I immediately see your face saying PRESENTING TO THE EMERGENCY ROOM.
Thank you so much for spreading awareness on stories like these, and educating so many of us!
I highly disagree with a medical expert prescribing a "boyfriend" - mostly because pharmacies don't stock boyfriends, which is a shame, pharmaceutical grade boyfriends would probably be better than the ghetto ass street boyfriends that you sometimes spot, but hypermobility syndrome is a difficult thing to diagnose even on a good day, especially if you were already a teenager or adult. I'm sorry that it took so long for a medical expert to figure it out.
Your story makes me so mad, “You just need a boyfriend “ is a horrible thing to say.
I hope over the last couple of years you and your doctors have learned more about the seriousness of hypermobility syndrome, also known as hypermobile Ehlers-Danlos syndrome (hEDS), a genetic disorder which can cause fibromyalgia, along with many other serious problems.
My mom was like this. Had sciatica and numbness in my legs starting at 16, and she downplayed it to doctors or wouldn’t even take me to see them about it. 6 years later and I found out I have DDD and was born with thin disks. Because I didn’t get any treatment or even a diagnosis until a few years ago, I now have bulging disks, herniated disks, arthritis and stenosis in my spine, and very recently one of the bulges broke off of the disk and is pressing into 2 nerves (one being my sciatic nerve) 24/7, non stop. I’m only 26 and my only option is surgery, and that won’t even fix the underlying issue. I live in unrelenting chronic pain that makes it nearly impossible to sleep or eat (lost 15lbs in a month and get an average 2-3 hours a sleep a night).
Parents, please believe your kids when they say something isn’t right.
Update: long story short, my mom has also never told me who my father really is, I had an idea of who he was but she constantly denied it. Well, the reason I wanted to know is because they have a rare genetic disease in their family that I just recently found I have all the symptoms of. A decade of begging who my father is just so I could get tested for my undiagnosed worsening neurological issues only to find out I may have Friedrich’s Ataxia.
With this discovery I’ve cut all contact with my mother. Never have I been more angry with anyone I’ve ever met than with her. My life is ruined, I could’ve gotten treatments years ago only if she put her pride aside and made sure her child was alright, but I guess that’s too much for some people. Hopefully getting tested before the year is out, but please parents, don’t EVER do anything my mother has done.
I’m very quickly having to face the horrifying reality that I’ll probably be wheelchair bound in a hand full of tears, not be able to take care of my son alone, and even having to scale back or close my dream business. Fucking terrible news but please take this as a learning lesson from my disaster of a life.
did your doctor prescribe gabapentin?
@@xonx209 omg yes. I’m on that and a muscle relaxer to try and help and it freaking sucks. Went through a few different steroid packs to try and help with inflammation before the muscle relaxer. But I had forgotten how foggy brained the gabapentin makes me, and it’s kinda a struggle.
Oof, I hope you are doing well, my dude.
@@olivercharles2930 I’m actually doing a lot better now! Got to see my neurosurgeon and they said they had to get that piece of my disc out asap. Had surgery a few weeks ago and the nerve pain disappeared immediately. Still recovering from them cutting open my back, and I may have some permanent numbness throughout my leg, but that beats being in horrific pain. I know the surgeon was pretty honest about the whole situation and said my DDD was getting worse pretty quickly so I’ll have to have some major surgeries starting in a few years, but right now, I can finally get some sleep and take care of myself again!
@@ExistentialNathan That's awesome, I'm so glad to hear this for you❤
Oh man I feel for her. I was ill like this from middle school through until my 20s, I was finally diagnosed with Systemic Lupus at 28 years of age. Sadly, going so long without treatment caused damage to my organs. At 34 I was also diagnosed with Lupus Nephritis.
I'm so sorry you suffered those injuries due to medical negligence. I hope you're doing much better now. Take care Cris!
Whenever Bernard says someone made ‘A’ recovery, my heart always sinks a little. Just knowing that persons life has been changed forever is so sad. I hope the woman in this case continues to fight and makes the most out of her future. 💜
You and me both... :(
I kind of expect it whenever he says "brain damage". That usually means the person won't be who they used to be and we can only hope they don't come to regret being their new self.
I'm rooting for Darwin!
@@wesss9353 I'm rooting for a future where patients are taken more seriously and mistakes like this become a thing of the past but you do you.
Generally, when it's ischemic brain damage... it means permanent brain damage. Full recovery is generally out of the question at that point. My guess is that she would learn to speak (that's usually the easiest to recover) and maybe learn to walk again but probably not be able to use her upper limb. That's a grim fate for someone so young
@@exantiuse497 her brain was already pretty damaged to begin with if she concluded drinking H2O2, literally a cleaning agent, was safe.
First of all, kudos to that nurse who knew which way to point her for an actual diagnosis. It must have been a huge relief to know she had lupus, but I wish her mother and doctors hadn't gaslighted her so much that she couldn't trust ANY doctors.
I had a landlady with lupus once upon a time. Very nice lady who always looked like she was in so much pain. I can't imagine seeing the same symptoms and thinking "oh yeah, she's faking it for attention".
Hydrogen peroxide is a really good bathroom and kitchen disinfectant (on surfaces!!!) and I sometimes use the weak supermarket stuff to add to my toothpaste if my mouth feels smelly and germier than usual. I got those diabetes teeths, its too easy to get mouth infections and grossness so a tiny splash on my toothbrush before I add the toothpaste seems to do the trick.
Yep probably has narcissistic abuse syndrome after being abused by so many people like that
peroxyl, 4 to 4 parts distilled water to 1 part hydrogen peroxide. Measure 4 TBS water to 1 TBS hydrogen peroxide. for a mouth rinse
You can just get the hydrogen peroxide-based orajel mouth wash if you really want to.
My sister's Lupus/SLE went undiagnosed for about a decade as she got fobbed off by a string of health professionals, each building on the flawed presumptions of the previous practitioners. Many pushed to have her take anti-depressants - one even suggested she start smoking again. Sheer madness. She was eventually diagnosed by an ambulance driver who happened to notice telltale striations in her fingernails and did what the others chose not to - he took the time to piece together her story as medical evidence rather than character evidence...
As complex as our bodies are I can't believe people still think we came from a big bang and evolved.
I find it scary how we don't really know what in the world is happening to our bodies, until it's almost too late most of the times. It's a happy ending that she recovered at the end.
Education.
"A woman drank 35% food grade carolina reaper wings, this is what happened to her anus."
why do you watch all the same videos I do?
@@Aya_Brea1998 What in heavens names are you frothing about???
@@mysticmeg111 carolina reaper wings obviously
My son nearly died before he was diagnosed with immune disorder. Finding a good doctor should not be such a task. Finally; a couple of his symptoms were seen and unlocked the truth. Family even thought we were “overacting”. Sad
It's terrible when no one will listen. Where I live eastern USA , the hospital near me is supposed to be the best. I know too many people who got messed up there including me. Sometimes people have to doctor shop and then they stick together.
@@donnalawrence9054nah fr bro it’s ridiculous
I trust more naturopaths and homepaths than allopathic doctors. Doctors are about meds that simply act like a band aid solution, rather than going to the root cause of the problem.
Hearing all of her symptoms, I couldn't help but think of my dad. He has lupus, and occasionally, he's fallen victim to some alternative treatments. He went vegetarian to try and "cure" it. The diet was a good thing because it got him to eat better, but still he has lupus. He's often fatigued, he was in his 40s when he had to get both of his hips replaced, he has emphysema and sleep apnea, and Reynaud's. His vision was eventually affected. My dad almost died in the hospital dying from infection because his immune system was unable to fight back.
I hope he's doing better
@@bburn1793 My dad has gone vegetarian, but he still has lupus. It might help him feel better because he'll be eating healthy, but he isn't cured
unfortunately, autoimmune disease usually hits males harder. I'm wishing your dad the best possible outcome
when she had the rash in the sun, the first thing i thought was lupus. my daughter in law has it.
I hope he feels at least a little better!
Oh my god! When I had an eating disorder I developed this delusion that I had parasites- I was SURE even after doctors told me I didn’t.
I wonder if this was some psychosis from hypoglycemia.
I really feel for this lady. Once you get a psych diagnosis, especially if it's the result of medical doctors being unable to diagnose your symptoms through no fault of your own, you are pretty much damned. You'll forever be a psych patient "trying to get attention." After 10 years in the mental health system in and out of institutions, a psychiatrist came up to me one day and said "there's something different about you, I'm sending you to a neurologist." It took that neurologist literally 10 minutes to correctly diagnose me with a severe B12 deficiency. Even today I have permanent residual neurological damage from that, but injecting B12 every month now has literally saved my life. God bless her and everybody else who has been through this hell.
This hits so hard and so close to home…I’ve been in this exact same situation for the past 7 years.
What type symptoms were you having?
They do this with Morgellons all the time. Trying to keep it secret from the public.
@@thinkforyourself1357 Homeopathic is the way to go. God gave us everything we need. Doctors and Big Pharma cannot make money off cheap cures. Do your own research.
The amount of dismissive doctors is just insane to me
I can relate to the desperation. After a three year long battle with my uterus, I went through 5 doctors to fin someone who was more interested in my quality of life, even if that meant sacrificing my uterus. I was near having a mental breakdown, and in constant pain and discomfort. I'm now in much better health, physically and mentally.
I feel sorry for her. Even her mom was saying she was "too dramatic" and downplayed her symptoms to the doctors preventing her from getting the best care. You mentioned at the end of the video about how many people have grievances with the healthcare system and it would be nice for you and other UA-cam doctors to think about and discuss in your videos how to rebuild trust between doctors and patients.
Look for where Trevor Noah is suing a hospital for botched surgery and read the comments.
I believe the whole attitude of doctors has to change . Most are arrogant and care about money and status , rather than the people they are treating There used to be a time , in past generations where being a doctor was a vocation rather than a business . These doctors cared immensely for their patients .
There is hope if student doctors are trained to listen to patients, and talk to them instead of talking down to them , and that being arrogant is not acceptable .
@@cherrymetha3185 i completely agree with you. I am so tired of the 'judgy' attitude of medical people. I have lupus and went undiagnosed until my 40's. Dont dare tell them you are in pain.
First, its all in your head... or stupid 'Captain Obvious' instant and incorrect diagnosis... Most of todays medical system sucks... Wish there were more Drs. like the channel host.
Doctors are humans. We are fallible. Just like everyone else.....things slip past our minds at times for whatever reason. The responsibility and pressure to be perfect are pretty intense. Its not an excuse, but it is a reality. While the case here is presented with all the pertinent information up front, its never this way when interviewing a patient. If she never mentioned the facial rash......SLE is not an easy diagnosis to make. There can be a TON of different symptoms and varying levels of severity. Without that one key symptom not associated with anything else, people can go many years undiagnosed.
In a perfect world, we could order hundreds of tests looking for anything and everything. Neither private nor public insurance will pay for almost all of those tests though.
We have to operate in a for-profit healthcare system, while also trying to live the Hippocratic Oath of “Do No Harm”. These things are at odds with one another, almost constantly.
People can think irrationally when they are tormented by pain - this is tragic
The research into Hydrogen Peroxide does not say to do directly. You only use drops in a glass of water and how the heck you could even ever drink a undiluted is ridiculous as it burns and tastes terrible. Alternative treatments, done properly, can be beneficial.
KJ's mother failed her, and her mother bears most of the blame. This proves that not everyone has the right to be a parent, especially if they gaslight their children on a daily basis.
“Not Everyone has the right to be a parents”
Okay then, Kim Jong Un, I’ll transport you back to 1947 Germany so you can see how well your little idea works 😂
@@wolfetteplays8894 Go back to 1940s Germany. Try and be a parent there.
@@wolfetteplays8894 Shits like the one in this video really don't deserve it. I don't care how authoritarian it is. Child abusers shouldn't be allowed anywhere near kids, nor to produce them.
@@wolfetteplays8894 ...Forced sterilization? I would be the first in line!!! If you have kids, you just threw away a huge chunk of YOUR OWN FREEDOM/LIFE, AWAY!!! Sad but true.
@@wolfetteplays8894 My mom was and still is abusive, which made me realize that not everyone is prepared or ever will be prepared to have children. She is a consequence of an abusive household growing up, I just wished that she had gotten help earlier before she herself got married to an abusive man and decided that children could make the relationship better. Yes, she did want to be a mom, but with her circumstances, she never accepted the help and loving support we all offered her, and in turn, she took out all of her frustrations of being a mother on her daughters. Even when the issues were only between her and my dad, she took out her frustrations on us. I feel like she would've been better off not having any children and just working on herself, at least until she finally learned to overcome her trauma and learn to live with it in a healthy manner. She is unfortunately now a person who most likely has NPD and is diagnosed with codependency, and nobody can ever change that. The only person who can help her change is herself. I can forgive my mom for what she has done to us (I do understand her trauma and I am always sympathetic to her, but she takes advantage of that and tries to manipulate me to make me feel useless.), but I know that she shouldn't have been a mom in the first place. Now imagine the many other children who suffered more severe abuse and sometimes even sexual assault and rape from their own parents, you're saying that everyone deserves to have the right to be parents, when in reality, there's a whole lot of people who proved it themselves that they are not and never will be capable of being good parents. A child isn't a right, they are people too, and treating them like property is dehumanizing. So please, curve your ignorance.
The mom just downplaying all her symptoms and telling the doctors she doesn’t need help is straight up child abuse
I worked on the Behavioral Med. floor as an RN. One of the patient's was labeled uncooperative and lazy because she would not get out of bed to attend the group therapy sessions. I spent a few minutes with her and listened to her and observed her difficulty moving and some difficulty taking deep breaths.I suspected she had Gillian Barre. because of her difficulty moving and difficulty breathing and called her psychiatrist, told him my concern and suggested a consult. She was properly diagnosed and transferred to the ICU. with this disease.
Good job, Nurse Bonnie--Patient Advocate. Thank God for nurses who care...Nurse Kathy 💖
You're a damn good nurse/human, Bonnie! Thank you!
I've worked along side medical people many years and have seen good and bad. I'm grateful for those like you who investigate and act when they observe this kind of situation. We need more like you out there
thanks so much for caring. She needed you
My mom was bipolar schizophrenic and physically abusive, but whenever I was sick, she took it extremely seriously and wouldn't play any games... I'm grateful for that... I know she loved me despite her mental issues.. I feel bad for that girl having a mom like that... I couldn't imagine how damaging that is to your psyche
I’ve tried to explain before how hard it can be to get a diagnosis in our medical system. (No one wants to hear it so I leave out the “when you’re a teenager” part of that phrase most times.)
I was lucky in a few ways. 1) My parents weren’t hostile about my symptoms. 2) I was insured. 3) I lived in the greater Houston area and had access to specialists.
Even with those benefits, it took two years of doctor after doctor; all of which came with stress tests, EKGs, snide comments about my weight (high end of normal), and accusations of hypochondria. After the second cardiologist, even my mom started thinking I was making it up.
I finally had one order a tilt test, tell my mom what was happening when I would pass out, and put me on medication. I got better and even went asymptomatic for a while. Even with that success, I still didn’t find out the name of my condition until my GP told me after my symptoms started back up. I was 32 before I ever heard the word Dysautonomia.
yeah my mom is a doctor so I always got treated like my illness was real, but I know people that had parents that treated everything thing with "no big deal" attitude
See also: POTS
In my experience doctors push aside autoimmune disorders. I had to fight to get diagnosed with celiac for 4 years, and by the time I finally did, my intestines were so inflamed and damaged that I now have to take medicine (which is $1,200 a month) to get my food to digest properly.
The worst part is that even when doctors are good and do their best, science can fall short. I was transferring care from my pediatrician to a family medicine doctor, and I told him about my mystery condition he was like "yeah that sounds like as of yet undiscovered autoimmune condition or atypical presentation" but I'd already seen all the relevant specialists in my area. Blindly treating me with immunosupressants would be dangerous and unethical outside of an experimental setting, and insurance would never cover it.
I'm currently in the process of (probably) getting diagnosed with celiac. Did you eat a gluten free diet before the diagnoses, or you weren't sure what was going on?
I was in a pretty similar situation myself just a few years ago in my life. I'm extremely used to doctors just saying all my problems and pain is in my mind and i've even been nearly coerced into taking anti-depressants as the all-cure for my problems. It is extremely infuriating to feel bad and you can't do anything about it and for some it might even make them suicidal. I wish certain doctors would actually try to understand their patients instead of just seeing them as a diagnosis
I really feel the last sentence you wrote
I mean technically all pain is in your mind. A lot of people have wonderful luck with antidepressants. Shouldn’t be a cure-all and probably used with therapy etc. but I wouldn’t knock something until you try it. Be clear with your dr about your reservations and try to work together, the dr is just trying to help you.
CBT (therapy) AND meds are probably the best option.
Protein deficiency can cause depression and pain. You need more protein than you realize. Red meat can actually heal you. I was vegan 2 years, can fully admit I was dead wrong.
Seeing as I'm stuck in a permanently broken body, I can say this: sure doctors pass you up, but you need to know that Pain is controlled by your brain and you can make your issues worse by having a negative mindset. Anti-Depressants has been shown to help with pain. It's not all in your head, yet your brain does interpret the signals from your nerves. Everyone's pain is complex and multiple things can cause it/affect your body and in turn cause issues. Keep in mind that pain is still tough for scientists and doctors to fix/understand. You can't expect things to just go away when a lot of the time scientists don't even fully understand pain or how the human body functions in certain situations. There's not a cure-all for chronic pain. You have to diagnose why you're hurting, figure out any potential illness/injury, then try try over and over to do different things to provide relief. Giving up really doesn't help your cause. You need to fight to live and do what you can to live with the pain. After 20 years of failed surgeries, lack of pain relief, physical therapy, and many different treatments, I have come to accept that my conditions are permanent. It sucks, but science can't fix me anymore. Doctors all over have told me they've done all they can for me. So if I go into it knowing this pain is a part of me, then I can just live and take it easy. I may be partially-disabled for life, but a mindset of acceptance instead of expecting the pain to just go away can really go a long way in trying to live your life with pain.
" Tap water has impurities?" Try industrial waste and pesticides. Where I live, the govt warned us not to drink the tap water because they found unsafe levels of 16 different industrial waste products. Kidney and reproductive problems, and cancer are common here too.
What a coincidence...just saw a rheumatologist to get tested for autoimmune issues. I'd just stick to the anti-inflammatory diet rather than hydrogen peroxide, poor woman, it's hard to talk to doctors about what's worrying you without feeling like a hypochondriac (my mom had that experience too)
I feel your pain. I was supposed to be referred to a rheumatologist and other specialists for testing over a year ago for symptoms of hypothyroidism, among other things but it never happened. My physician is great but the specialists who do the testing are horrible and refuse to see me. Now I'm using crutches to get around and have a shit load of new symptoms but it's still damn near impossible to get anyone to take me seriously.
Cutting out gluten can clinically cure some autoimmune disease, also supplements like fish oil can work wonders too
@@RaneBoDasch Keep at it baby. I know it feels fruitless. After years of attempting to get referrals to rheum and neurology, it finally happened out of the blue from a doctor I didn't ask for referrals from just a few months ago. See if your GP will refer you to some different specialists. you'll get answers eventually.
@@jessetaylorstudio454 Already tried. Im limited by my insurance. And because I'm not working and Im eligible for government insurance, I cant get a private insurance plan, even though I have the money to pay for it. Im not giving up or giving in though. Just never thought I'd have to beg doctors to do their job.
@@RaneBoDasch Well if money isn't a huge issue for you, I would look outside your town/state (if that's possible for you). Government insurance will cover across the states and you should be able to find some others in network. Keep up the good fight! :)
It really does take a lot of patience and determination to find a doctor that actually listens and takes you seriously sometimes. It took me until I was 30 to finally find one who took a look at all my symptoms and medical history to give me a proper diagnosis instead of just treating symptoms individually.
Thank you Professor Bernard. I think you're the reason why I nowadays tend to use etymology as my initial tool to learn about new "medical words".
"-plegia" appears to be a synonym to paralysis with more severity to it in comparison with "-paresis".
I really love the explanations you throw in, they can probably be understood by everyone, whilst still speaking solid medicine. Also the note on tap water was cool. I imagine it would be fascinating to see you work with patients.
I've always loved those moments I get to teach my fellow students about something that I found interesting. It seems you've found yours. It's contagious. I still haven't begun my clinical terms (Swede here), so naturally I'm drawn to emergency care and surgery. But you're really giving great marketing to toxicology :D Seeing the world in poisons is quite fascinating.
So, you've read this far. I'm thinking about making my own medical videos but in Swedish. Pathology shorts:
Now I'm sad I don't understand swedish... might be another reason to learn a new language though :D
Im so glad I have a mom who loves me and not that trash parent. My mom says i have a problem of downplaying things when i talk to my doctor and always pushes me to speak up more.
Honestly a large amount of the blame falls on the mother here. That's an almost abusive reaction to her daughter's constant pain and symptoms, and she definitely was a major reason things went this badly.
Edit: So I said "almost" abusive to play it safe because of my own complicated family situation making me a poor judge of what is or isn't abusive parenting. Seeing how many people agree that it's abuse though, I will affirm that yes I think it's abusive and extremely fucked up.
Almost?
Guarantee the mother thinks she's done nothing wrong to this very day
Guarantee you the underlying thought process goes "I am a good mother. If she was right about her symptoms all along, and I was wrong, then I am a bad mother. I am a good mother, therefore she's just being dramatic."
Police usually don’t take these child endangerments reports seriously, we should defund the police
The mother should be prosecuted.
This case reminds me so much of the crap I've gone through thanks to a bad mother too! The biggest difference is what we did after finding out the actual medical problems, and that I had to go through a few doctors before finding one that took me seriously and actually wanted to find out what's wrong.
It should be considered child abuse or at least neglect for parents to do crap like that. Had I knew what was wrong with me sooner, I could have avoided things getting worse. All the signs and symptoms were VERY obvious too, but since no one told me they were symptoms and weren't normal I didn't know any better. The first symptom I learned was a symptom was a coincidence too. I was at a podiatrist for an ingrown nail when he diagnosed me with Raynaud's after only seeing the discoloration on my feet. It was THAT bad.
Another big difference is that I don't direct my anger about my issues at doctors or nurses. All my new doctors and nurses had nothing to do with what happened in the past. Even the few that did ignore symptoms I'm mad at but won't do anything about. Instead, I've lost all respect for my parents due to their poor treatment of me. There were times where I brought up something that I thought was wrong only to be told it's normal when it was in fact a big deal and NOT a normal thing in any way. Being a kid you don't know better and believe what adults tell you so I didn't bring it up again.
Also my neither of parents will even apologize for what they did. Hell, they won't even acknowledge what they did and said to me, and still continue to treat me poorly and act like I'm choosing to be disabled. If you didn't know, almost every disabled person would be cured if given the chance to get rid of what's wrong with them.
Obviously your parents don’t understand that there’s absolutely no way that you could choose to be disabled if you are actually suffering from legitimate medical conditions.
I hate to say this, but you might have to figure out a way to teach your parents just how wrong they are and they should be taught a lesson for not being very good parents to you.
First year med student here !
the simplest way I could put it is that hemiplegia is complete paralysis of half of the body, while hemiparesis is weakness or loss of strength on one side of the body.
I really enjoyed the video, much love
I'm actually reading a book on the medical benefits of ozone and hydrogen peroxide. First thing the book says is NOT to drink 35% food grade and to dilute it. It could be that this girl heard about such a remedy and didn't do her homework regarding risks and protocol.
What kind of book is this?
@@olivercharles2930
The One Minute Cure by Madison Cavanaugh
😥 Traumatic Brain Injury is so terrible. To know that someone is giving advice that leads to this is tragic.
The person I know with TBI would do anything to have prevented it. They still struggle with things that most people take for granted, such as remembering verbal instructions, being able to read for long periods of time, and even remembering simple words.
this struck me pretty hard as a teen who suffers from POTs, Juvenile arthritis, and peripheral neuropathy. The doctors often give cocktails of medication that on their own make me sick, once giving me a medication that if they actually bothered to look reacted with another of my meds and caused my blood pressure to tank. I fainted and hit my head on a hard floor.
My kids have similar.
Lookup quercetin with bromelin
You can get it at vitamin shops. It also works on covid.
@@PriceBalloons What does that mean, 'It also works on covid.'? Works how?
@@PriceBalloons what are you on about
that's why pharmacist has power of approval on prescriptions. there was a questionnaire sent out to doctors about which antibiotic combos to use for various symptoms/test results/diagnoses and they mostly got it wrong. it's not their fault. too much info. always discuss your scrip with a recently qualified pharmacist. their knowledge is just staggering.
@@LQOTW PFM.
Pure Fucking Magic, as there's no other possible mechanism for such activity.
The good doctor is presenting to us on YT where we are now. He has a very enthusiastic attitude and a serious message.
Presenting to the youtube audience 👉
I wish some basic chemistry education was required in the US. I'm certainly more educated on the subject than most at this point (finishing up a BS in chemistry at the moment), but even back in high school I could tell you that concentrated peroxides are incredibly hazardous. For reference, concentrated hydrogen peroxide is used in piranha solution, a mixture which will turn essentially anything organic (including any kind of flesh) into water and carbon dioxide gas quite rapidly. It's also been used as a monopropellant in rockets due to its habit of turning rapidly into hot gas (this is generally done by flowing it over a heated metal catalyst, vaguely similar to the reaction catalyzed by the iron contained in heme).
Agree
The dumbest thing is that even if you counted the extra oxygen atoms that the hydrogen peroxide had, one breath of air would contain so much more
When Dr. Bernard started describing the symptoms I was like; "it's lupus, isn't it?" Then I felt like House was going to pop up behind me and slap me.
SAME OMG I'm so glad I wasn't the only one 😂😂
I miss House
😆🤣
this one time, it really was lupus
I have lupus and definitely recognized it as soon as he was describing the symptoms 😂
My mom spent two years bouncing around from specialist to specialist being diagnosed with things she didn't have and being prescribed medication that were expensive and didn't help the problems she was having. Turns out it was food related, and she only found out about it because kooks online suggested diet after diet and my mom desperately tried one after another until one actually made the problem go away. Still don't know what the problem is medically, but she knows what foods to avoid now and doesn't have issues.
This is what I have been saying!! if I had been given and taught a healthy diet I would be living a much different life right now. I have been horribly treated by the medical system. Its often a struggle for me not to be loathingly bitter against doctors and the broken system they work for.
And what are the foods to avoid?
So which food was causing the problems?
Same. I was having serious neurological problems that doctors kept ignoring. I finally had diagnosis for one, but I got to the point where I couldn't afford medication anymore and the meds had bad side effects. After I lost my insurance, I went online and I ended up finding a naturopathic website that recommended a certain grain-free diet and I tried it and my symptoms miraculously went away. Turns out I had Celiac Disease and cutting out the gluten stopped the neurological symptoms. Celiac runs in my family big time, but at that point only a couple of us had been diagnosed and my blood tests were borderline and thus deemed 'normal.' It would be another 6 years before I finally got diagnosed. Sometimes alternative medicine has really negative consequences, like in the story here, but sometimes it actually helps. I'm able to manage all of my symptoms with diet now. No more medication. It's fantastic.
This story completely resonated with me. I was on these medical-self-help forums back in the day when feeling very unwell but with symptoms too general to be easily diagnosed. It's true that if your symptoms don't fall neatly into a specific disease category doctors will say you're probably suffering from a depression. It takes people years to diagnose autoimmune disorders or endometriosis.
Currently you need to really learn to advocate for yourself at the doctor's office and pay for some private medical testing out of pocket to get your diagnosis.
Have you ever looked at your medical records? I've found that if the doctors/nurses don't come to a clear diagnosis, they will sometimes just sort of manufacture one in the notes. Sometimes they call it a mental health problem, sometimes it's just the wrong diagnosis. Or sometimes they just seem to leave out any symtoms they don't feel like dealing with. I've had important symtoms left out of my medical records, ones that I was mentioning over and over, again.
My wife is now at 26 after 10 years of this finally being taken seriously and treated for her endometriosis. Well to the extent they can anyway.
I consider myself EXTREMELY lucky that it only took a decade to get diagnosed with Ankylosing Spondylitis. I've heard horror stories about some guys taking 20+ years to get diagnosed, at which point you've progressed too far to lead a normal life. If I hadn't of met my wife, and her pushed me to get answers, I probably would've taken that long to get diagnosed. I can't count the number of doctors that told me it was in my head and I just needed to suck it up. 2000% agree that if your symptoms don't fit something perfectly most doctors in America just shuffle you out of their office.
This reminds me of me. My parents literally never let me once go to the doctor, not even when I got ran over and couldn't walk for a while. It took me a year to recover.
but now I have access to doctors and they are all worthless.
You do realize that the man who’s video you’re watching is a doctor too, right? You’re tarring Chubbyemu with the same brush here. If you hate doctors so much, why are you even watching this?
@@ChaosMagnet the doctors I have access to are all worthless, as stated
BS
I hope you have lots of kids and don’t let them go to the doctor either
As a Lupus patient I wish doctors would listen more when we are telling them what's going on with our bodies. I went misdiagnosed for years which resulted in many health problems and surgeries. Sometimes the need to feel better can make you do some drastic things like she did because after awhile no amount of meds they give you gives relief.
Almost as if doctors aren't perfect and often make mistakes. Check out some stats about how many people die each year as a direct result of malpractice.
To be fair, 95 percent of people with frequent visits are hypochondriacs so when the t percent who are really suffering come in, they're just as dismissive bc they have no way of knowing who's actually sick without a lot of time.
@@NovidProductions There's a difference between making mistakes and not taking your patients seriously
I guess a bunch of people have gone carnivore and that eliminates tons of common lupus symptoms.
@@E0003-j9f exactly. They don't listen at all. You gotta find the "right" one for you. That's why. They don't listen
As a rocket scientist, i gotta say, im extremely concerned going into the video knowing that concentrated hydrogen peroxide will oxidize (burn) pretty much anything
As a random guy, burning somethings always needs an oxidizer. How handy to have a liquid containing it.
I wonder, would mixing highly concentrated H2O2 with Fe dust actually burn visibly?
Man, the second you said muscle aches, headaches, and a rash on the face, my first thought was lupus. Then you said autoimmune disease and I went yes!! I have SLE myself and experienced what I thought was an eating disorder, horrible headaches, and the classic butterfly face rash and doctors just told me I "wasn't eating enough". Nope. Almost killed me. Always makes me sad when patients end up turning to alternative methods because they didn't get the care they needed in time!
Edit: Just to clarify, when I said "doctors" told me I wasn't eating enough, I mostly meant my PCP. Once you start talking to specialists, especially rheumatologists in this case, you start to hear people take you very seriously. Don't discredit the entire medical field, they saved my life!
Do you have this under control now? If so, how did you resolve it? Please reply.
I too have lupus hello from Havre de Grace MD USA 🙏 🇺🇸 ♥
That’s why dr house is the mvp for lupus patients. They brought so much attention to it, but probably not enough
@@randombutrelevant ...what? I went to professional nutritionists not random vegans lol. They just didn't understand I had pancreatitis from the lupus
@@randombutrelevant Everyone knows vegetables make lupus worse. The only solution is to adopt a diet that humans aren't adapted to.