CEO of EB Research Partnership Michael Hund on Venture Philanthropy | Venture into Cures

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  • Опубліковано 12 гру 2024

КОМЕНТАРІ • 2

  • @azadabedin5912
    @azadabedin5912 Рік тому +1

    My baby is six months old, eight days old and has been suffering from epi dermotysis simplex since birth. I have tried a lot of treatments but there is no benefit. So I am in trouble. I don't know what to do now. Please can you please give me a suggestion what can I do now.

    • @willie1220
      @willie1220 8 місяців тому +1

      Good day, I am 32 years old and have EBS. I want to motivate you to not lose hope. With simplex I am able to live a full life as i became older. My chidlhood was not easy, but currently things are looking good. I hope this for your child as well. He or she will grow up strong.