Fibromyalgia Management - My Story
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- Опубліковано 26 вер 2024
- I'm Lew Bear and this is my story of fibromyalgia and how I've learnt to manage and control the pain and fatigue with diet. From what I've witnessed I believe fibromyalgia to be many different conditions, all lumped under one umbrella and mine is just one of those conditions
If you suffer with severe muscle stiffness, particularly in the legs and lower back, fatigue, tiredness, occasional lack of clarity in thought, then you might be suffering the form of fibromyalgia I did, and there may be hope if you adapt your diet and cut out all proteins from the family bovidae, which includes beef, lamb, goat and all their dairy products
If you suffer a different form of fibromyalgia, good luck in finding your own way of managing it and my heart is with you x
Most ppl have no idea of a life with fibromyalgia. We can put on a great face, but the pain is usually in one part of my body or another. Thank you, and be well.
Hello I have herbal medicine that will help you get rid of them naturally. Check my video for my information . .
I have fibromyalgia as well and I have gone through the same thing.. people think that my illness is imaginary when I’m dying of pain.. doctors here in America they literally prescribe you OxyContin for the pain like if you were a cancer patient and this is how horrible the pain is! I feel like I’m living in hell. I do not wish this upon my worst enemy. When you are ill you’re not living your just existing. It’s a miserable life.
Hello I have herbal medicine that will help you get rid of them naturally. Check my video for my information .
@@dromocure what's your website
I don't do websites i want too let people know that they are not alone in this world. We all are going through but with God's Love and his protection we are still bless Amen??I'm on UA-cam my name is Tamico Burton. UA-cam
I've been to doctors about my condition and none of them could find what's wrong with me except I had low vitamin D. I wish the medical community could take this illness more seriously.
Good morning Lew.
I am in bed hit by a bus that is Fibromyalgia/CFS/ ME.
Mine is trauma based but I had glandular fever in my teens and never felt right after.
Just had referral to chronic pain clinic after a 4 year wait.
I have lost friends and family are impatient with me. Some days I just don’t want to be here.
Bless you. I hope things improve. Hang in there, you never know when things might change (I certainly never expected anything to get better)
I haven't seen Unrest, but I'll add it to my Netflix list. I did have glandular fever myself though, while at school, which is curious. Didn't matter how many times I told the PE teachers I'd been told by the Dr to not do anything physical for at least 6 months, or how many notes I handed in, I'd have the same argument every session.
@@LewBearMusic Hi there!
Absolutely the same with me at school with Glandular fever a d a parent who just wanted me out of the way. I was so unwell I could hardly stand . I remember everything even though I was just 14, I am 57 now.
Just woken up from keeling over on the sofa around 4pm this afternoon. Then the confusion , and guilt. Luckily I live alone now, which is ok until I need help …. Then there is mine as my family don’t understand . I have 2 friends left , had to give up a job I loved and working for myself , I had to give up my lovely horse and all the long beach walks . I long to swim in the sea but can’t drive now to a good beach. I live on the Severn estuary and it’s currents are dangerous and it’s too silty .
Sorry I am rambling now.
The list is endless isn’t it , the huge domino effect .
Well, Thank You for taking the time to reply .
Take good care ,
Sharon . X
Thank you so much for sharing your story. We are all so different in our bodies but I think this is certainly worth trying. I'm so happy that you have found a way to make yourself feel better. God Bless. Jo
Omg just 5 min in and it was as if you were telling my story, thanks for sharing. Can’t wait till the end
Just remember everyone has a different body and what works for one may not work for another. You have to take into account all other changes in a body over the years as well as fibromyalgia and like l said everyone’s different. If you can get fibromyalgia under control you are extremely lucky there are people who like me have tried everything and bloody nothing works l have a lot of other illnesses in my body that are permanent as well. I have had fibromyalgia since in my twenty’s now l am 64 years old. I was diagnosed at 35 with fibromyalgia. To do with diet l am allergic to so many foods. My pain never ever leaves me.
Avoid the Nightshade family plant foods: White potato’s, peppers, aubergine, chillis, tomatoes.
Also eggs.
Thank you Lew. I am so glad you found happiness during your dark days and how supportive they are .
I wish you The Best Life you can have with this disease .
Have you watched UNREST on Netflix. ? It’s out now. 6/7/21.
Very interesting and also heartbreaking.
We are the missing. This disease takes so much from us we are never out and about like every day people . I am
Lucky if I can leave my house twice a week. Lockdowns were / are my normal.
We are all surviving day to day! Prayers up to u!
This all makes perfect sense
Thank you for sharing ! It's good to see these vids to know I'm not alone . I've had this miserable existence since I was 14 or so sucks dude ... I've been working on it and I've improved but still... not enough . I really just particularly want this poisoning feeling to go away . Feeling jumpy and nerves are a wreck and that constant poisoning feeling coursing through my blood it's like I wake up and drink antifreeze and dirty motor oil or something , nausea every day (but I have a med that is a miracle for that thank lord) , the freaky flashes of Light and weird things , stomache yafda yadda yadda . At this point I've just accepted that this is gonna be my life for the rest of my natural life . 🙃 it is what it is I guess 🤷 I've contemplated death many many times but i can't for some reason . I guess I have to eat the pain and deal with it .
Appreciate the vid brother. God speed and God bless and I hope you find peace with ur disease and to all yall too 🙏 just gotta keep fighting right ?
Never give up🤗
Thank you for your video mate. I've been diagnosed since 2008. Was an electrician, went on disability for 4 years, now I'm a taxi driver struggling every day.
I'm going to try your suggestion. ✌
Good luck. I hope it works
I live in the US and there is an antidepressant which relieves the pain of fibromyalgia. I don’t have depression - the pain specialists had me try it - I didn’t and don’t have depression but within 3 days I felt a difference. Still convinced it wasn’t a ‘real’ thing. - I decided not to take it and pain was immediate - so have taken it for almost 13 years - it’s not perfect - good days/bad days but better than before 🤞
Thank you. So well said. So nice of you to share your story. I can totally relate! Much love❣
God Bless you. Keep it up. I just started the whole no dairy and no red meat diet 2 weeks ago. I’m in a flare now. But I know I just started. And in the whole I feel much better.
very good video. ive recently been diagnosed but have had it for 5 years and at times its drove me to madness...again it all started for me from gastroenteritis and developed from that. i will give no dairy a try mate. all the very best.
I was recently told I might have this, as far as the dairy and meat diets go, I don't have them much. Medication helps at the moment. But I'm constantly tired and sore too.
Good luck in finding your own respite
Thank you for making this video 💝
Oh yes...i worked all my life n felt like a criminal when in my 40s I filed for disability..it was hard having to give up my career, dreams for the future, retirement pension....dealing with the pain until I finally got a 3rd to get it under control
A lot of us who had childhood trauma have fibro. I believe it can go into recession but isn’t curable. Thanks for your story.
I know what you are going through with pain and good and bad days. I have Fibromyalgia. I have cut Dairy and am in process of if doing without Gluten. I have every symptom that It gives and I have always had lots of food allergies and intolerance. I also have Asthma and Arthritis. Life can surely throw Cutve Balls. I live with son and his family, I go for Massages and I do the exercises when I can, which is not often. So yay strong and when you have a good day, just enjoy it. gid Bless.
Ty for this! I've had a similar experience. It's been alittle more than pure hell. I had afew other things as well, a meningioma tumor on my spine, multiple joint necrosis from the lovely steroids the Drs put me on during the tumor removal, leading to bilateral hip replacements. My right shoulder needs replacing as well, but the hips were soooooo bad. I just haven't built up the courage to go in again. My fm seemed to start right after I picked up a tick disease. I was treated for the tick bite w/ antibiotics. And it cleared up according to the blood tests, but the fm pain remained. That was 20 yrs ago. I'm 44 now. Have you ever had a tick BW panel done? It's a thought.
I'm sorry you've had to go through that. Mine sounds like a breeze in comparison. I haven't had a tick BW panel done. It may have been triggered by that, but as I said, I'm basically sorted now - even my immune system is almost back to normal now and a cold for me is just a bit heavier than for an average person, and no longer hits me as hard as the flu.
Take care
@@LewBearMusic God bless
I reacted badly from the vaccine. Symptoms much worse.
PS...you would think that in this day and age with so many millions with FMS that doctors around the world would have figured out that this syndrome does exist, that we all have similar symptoms, that we all dont know each other so arent making it up...wake up medical people and help us instead of telling us we're depressed (we're just so darned frustrated at not being believed not depressed) or that its all in our heads.!!!
I also suffer from this demonic chronic disease. 1st. Let go of all things and persons that serve no purpose!! 2. BE SELFISH!! Love yourself!! I wish you an abundance of inner PEACE!! Start practicing deep slow breathing!! Your TRUTH is all that matters!!
Ah I cant believe it Lew I just spent the last half hour 'talking' to you then the internet dropped out and I lost the lot. Anyway 7 years on and your channel just popped up today in March '22 in Australia. Hope you have the hang of FM now and you are the boss...good luck with that 🤭🤭 love to watch some of your later videos, also hope you were able to eventually qualify for a disability pension. Except for the bankruptcy it was like looking in a mirror. Take care and hope you are Covid free 🤗🦘🦘🦘🦘
I'm basically clear of fm now that I figured out the triggers.
I still have some stamina problems due to so long in agony doing nothing, but it's improving all the time.
Take care x
There is a drug now called Savella, Hope it helps...
Cheers. I'm better just with a managed diet, but hopefully it'll help someone :-)
@@LewBearMusic i agree. drugs are not ideal
Savella has been a game changer for me.
very relatable story. thank you. can you please say exactly what you eat +drink and what you not eat +drink? how you prepared it? (bake or cook/ oil or butter etc)
All I had to cut out was any food from the family of animals bovidae (cows, sheep, goats - never tried buffalo, but probably that too, the meat and the dairy).
Pork and chicken and eggs were all fine.
Try looking up FODMAP diet..but just because 1 person says try this,, dont eat that, doesnt mean it will work for you. Its a process of elimination. Lew cant eat meat, dairy etc. I cant eat much raw fruit, lentils, legumes, garlic onions and many other things...yet Inused to live on them before I got sick. Sadly there is no magic cure, but some things might ease your symptoms. Good luck....My dietitian put me on to FODMAPS and it didnt take me long to find out what irritated me but Im not sure whether thats to do with my FM or my Crohns
Fascinating. I have gout but don’t drink, nor does my brother. My son and Mom have gout and do drink alcohol. I take allopurinal daily, but still have pain. Can only eat 2-4 oz. of fish or chicken daily and once a month can have beef under 4 oz. I’d like to try no red meat and more fish to see if that helps. I have fatty liver disease and am prediabetic. I’ve grown to look forward to sweets once a day and my Dr.thinks that’s a HUGE contributor to my pain. I almost can’t work anymore. I only take two, most three salon customers per day and have to work 6 days to survive on such a short day. Thank God I’m a colorist. My son was a musician but couldn’t get free from the alcohol after 20 years so went back to school and works with computers and data now. Please post any other good ideas. They can tease your Uris acid levels to see if you have gout and take meds.
I feel ya brother. It’s hard getting the diagnosis then you have to navigate how to live with fibro. I felt very alone for a long time as the doctors didn’t / couldn’t help. Thanks for the tip re bovine products, I have low iron levels so have been eating more recently. I discovered coffee, gluten & alcohol make my symptoms worse, if I’m in flare up dairy pushes me over the edge. I’m curious what are the conditions you think fibro is being misdiagnosed as?
I'm sorry your so called friends were too dumb to realize that all illnesses are not visible. I have fm also, but I look totally fine. Some days are really good and others are so not. When I moved, there was a point And time when I cried my eyes out bec I wasn't sure I could complete the move. Ppl never see us when we go through that, so it's easy for them to judge.
I was dating, (which is a nightmare)
But I learned not to tell guys what is wrong with me. In all of their arrogant so called "wisdom" they are probably thinking, great one day in going to have to take care of her. So when I found out that their entire attitude changed after I told them, I stopped telling them. Men are not nearly as understanding about medical conditions as women are.
Ty for sharing.
I've been eating a mostly organic and vegetarian diet in an effort to feel better, every once in a while I do have a good morning, so I take advantage and go to the gym, and I am okay for 60-90 minutes, then all the pain comes rushing back and I am forced to go home and lay down for the remainder of the week, at least. I am trying to get better and stay hopeful, but it is still a constant struggle. (My fibro is accompanied by Hashimoto's, IBS and chronic fatigue syndrome), but I do enjoy all the info, so thank you.
Molly Rosa I'm sorry to hear about your trials Molly. I hope you find a good way to manage it all soon
Molly Rosa your story sounds alot like mine , have you tried juicing? that went straight through my with my sensitive gut,
Does diary include eggs?
Not in my instance, no. Mine was proteins from the family Bovidae, which includes the meat and dairy from cows, sheep, goats, etc.
However, as I'm fairly certain it was coz a virus triggered an immune response against these proteins, for someone else, it could be the immune response triggered it against other things.
For yet other people, the immune system probably plays no part. I'm certain "Fibromyalgia" is at least half a dozen different things lumped together.
Where did you bring energy from fibro to claim for pays?
I'm not 100% sure what you mean, but if I'm to hazard a guess that you mean how did I find the energy to make claims on things like benefits, for the most part, I didn't, but while a lot of people abandoned me, I did have a few good friends who helped out at such times, coz I couldn't concentrate for long enough to do them
@@LewBearMusic well I mean fibre leaves ppl with limited energy (though spectrum is different)...
I didn't have energy to ask for help even ...
couldn't respond phones...
the remaining energy was being spent on urgent things that was keeping my job. because if I had no job, I had nobody nothing
Yes, everyone's different. I was ok with mental energy at times, so long as I rested, but physical energy, I had nothing.
Which was a problem considering I'd never done anything but physical jobs.
I lost my job pretty quickly - from there on in, it was only a matter of time until I lost pretty much everything I owned.
I was lucky a mate let me sleep on his couch for a while
Your speaking is off with the video. Delayed or something causes people not to be able to watch.
so how about now ? are you cured etc?
azaz z In a sense yes, because my symptoms are gone so long as I avoid the beef, lamb etc proteins.
In a sense no because I'm not sure that strictly speaking I ever had fibromyalgia to be cured of it - and I think that is true for a good percentage of people diagnosed with fibromyalgia. I think a lot of doctors are starting to diagnose any pain/fatigue conditions they don't understand as fibromyalgia and my food intolerance is one of them
I imagine a lot of people are intolerant to the same foods as I am, and hopefully they'll find this video and cure/manage themselves. Sadly I also know this wont help a lot of people directly, but by removing one group of people with a different condition wrongly diagnosed, with a bit of luck it will make any new medical trials more accurate for them
so can i ask what your daily diet is like? i tried the juicing thing but it just goes straight through me
Lew Bear yeah that made me think about what you said about whey being in or on cashew nuts?!?! eat eat seeds and nuts everyday, i do have ibs for sure and dairy is a big trigger for me , how about gluten can you tolerate that?
azaz z That was only one brand of salt and pepper cashew nuts, but yeah, it turns up randomly in so much - milk in Tesco own brand pickled onions! Why God, why? lol
I'm fine with gluten (touch wood) but now I take nothing for granted and change can come at any time (it only took a one day virus before)
Lew Bear do you sleep ok at night?
You should take final steps and get rid of all animal products.