Ataxia Telangiectasia (A-T) Trial Launch

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  • Опубліковано 29 вер 2024
  • March 23, 2022, marks the official launch of the Ataxia Telangiectasia (A-T) trial.
    Thank you to the multidisciplinary efforts of Dr David Coman, Professor Martin Lavin and their teams for their tireless pursuit to find a new treatment option for children with A-T.
    To the families impacted by this genetic condition and organisations such as BrAshA-T Ataxia-Telangiectasia and Rare Voices Australia - this is for you!
    Greg Hunt MP, we are grateful for your heartfelt support and the $2.46 million grant received from the Medical Research Future Fund.
    None of this would be possible without all of you.
    Find out more about A-T and the ongoing trial: ow.ly/JmHA50IpVsG
    Or support us by making a donation today: ow.ly/fbt950IpVta

КОМЕНТАРІ • 6

  • @RavinderSingh-nh7hb
    @RavinderSingh-nh7hb 2 роки тому +8

    My son is suffering from AT and I pray to god something positive will come out of this trial … please save all AT kids … This is Ravi from India …

    • @umadevi9615
      @umadevi9615 Рік тому

      Me babu age yantha andi yala unadu babu ma babu ki same problem

  • @ZubairBashir-rw3yo
    @ZubairBashir-rw3yo 4 місяці тому

    My daughter is suffering from (A-T).is there any updates to how this trial is performing.if it's proving to be successful or not? Plz any update? highly thankful to u.

  • @mannyduran6107
    @mannyduran6107 Рік тому +5

    Is there any updates to how this trial is performing? If it’s proving to be successful or not. Please any update would be greatly appreciated.

  • @sadiamoin5791
    @sadiamoin5791 Рік тому +4

    I have 2 child they both are AT positive my son is not in this world in the age of 6 .6 he death My daughter is 10 year old she can't move her self she is on IVIG injection plz cure for her

  • @etteseb
    @etteseb Місяць тому +1

    Is there any updates on this