Why Prostate Cancer Survivor John Shearron Thinks It’s Important To Do Your Research | PCRI
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- Опубліковано 15 жов 2021
- PCRI's Alex interviews John Shearron, one of our PCRI helpline facilitators and the leader of the Mets Mavericks advanced prostate cancer support group in Chicago, IL. This is part one of their interview, and it focuses on John's personal experiences with prostate cancer. Part two, which will be coming soon, focuses on John's experiences leading the Mets Mavericks support group.
0:22 Can you share about your prostate cancer, for example, how you were diagnosed?
0:52 Was it your family doctor who gave you your first PSA?
1:26 Once you got to your urologist, what were your options?
1:52 How did you know to seek out a second opinion?
2:23 Was Bill Blair the founder of Mets Mavericks, the support group for which you are the leader?
2:37 What is it like for you to work with so many advanced prostate cancer patients who tend to be going through tough times?
5:17 What did you do once you got your pathology back and knew that you had a potentially dangerous prostate cancer?
6:27 What did you end up doing for treatment?
7:11 Did you have to talk your doctor into focal treatment, or was he open to it?
7:59 Were there any side effects from the cryotherapy?
8:31 What was your PSA like after cryotherapy?
8:38 How long did it take for your PSA to go down?
9:20 Did you have to do anything else after your treatment with cryotherapy?
10:23 Did you have to do hormone therapy?
11:26 How was your experience with hormone therapy?
12:26 What kind of exercise were you doing during hormone therapy?
13:52 What was it like when your testosterone came back?
15:09 How long did it take for your testosterone to come back after stopping hormone therapy?
Don’t know your stage? Take the quiz: Visit www.prostatecancerstaging.org
To learn more about prostate cancer visit www.pcri.org
Who we are:
The Prostate Cancer Research Institute (PCRI) is a 501(c)(3) not-for-profit organization that is dedicated to helping you research your treatment options. We understand that you have many questions, and we can help you find the answers that are specific to your case. All of our resources are designed by a multidisciplinary team of advocates and expert physicians, for patients. We believe that by educating yourself about the disease, you will have more productive interactions with your medical professionals and receive better-individualized care. Feel free to explore our website or call our free helpline at 1 (800) 641-7274 with any questions that you have. Our Federal Tax ID # is 95-4617875 and qualifies for maximum charitable gift deductions by individual donors.
The information on the Prostate Cancer Research Institute's UA-cam channel is provided with the understanding that the Institute is not engaged in rendering medical advice or recommendation. The information provided in these videos should not replace consultations with qualified health care professionals to meet your individual medical needs.
#ProstateCancer #ProstateCancerSurvivor #PCRI
I have two grown sons, and as they were growing up I thought it was important to teach them about heroes--men and women who stepped up, sometimes at personal cost, to make the lives of others better. Started with Audie Murphy, Raoul Wallenurg, Corrie ten Boom, and there were many others. I regard folks like John as such a one. These folks selflessly give their personal time, knowledge and parts of their hearts to others. Thanks, John.
First time I’ve seen John but he deserves his cancer free life. 💪🙏👌
I have long been an admirer of John, and catching up with him is one of the highlights of attending the PCRI conferences for me.
Congratulations, John, Alex, and the team for bringing out so clearly the great advantages in knowing all the options you have when dealing with this disease.
Thanks for all that you do Alex. I recently was dx with aggressive cancer. I was able to speak with John today and was so grateful for all his support. I am a 63 year young Hispanic male who is a veteran.
Thank you for helping me understand my disease and the treatments available.
I will fight this disease and support my peers battling this disease.
thank you
Ánimo no te desanimes q el cáncer no te va a ganar tienes corazón de guerrero ánimo y gracias por proternos en USA l m from Bogotá Colombia but God give u they very best wishes and why no they cure..My God bless u always
Thank you, thank you, thank you for being there...together we achieve extraordinary!!!!👍👍👍🤝
You folks are so very much appreciated. Thank you for bringing to the research table such valuable information. This journey is so matrix like. I've been very stressed and deprested. Since I recieved a call from my new doctor about my PSA being very high on November 17. WTF I got on line and started word clearing and found this channel. Watched a few informative segments and responded to information.
The same day I reached out with a few emails and within a few hours recieved a call from John followed with an email. And the journey began. The call from John was wonderful felt like I feel off of the boat and was tossed a life preserver. Since then I watched many sessions with Alex who does such a great job of establishing the flow of the interviews.
It is now 20 of January and a few days from third meeting with the urologists to go over findings...
Thanks for sharing.
Thank you! I finished radiation and still have 4 months of ADT. (I try to do weight bearing exercises every other day.) It was really good to hear what might happen when my testosterone comes back. (The standard of care in my area is not as advanced as it is in other areas. They did not mention exercising and I had to press the doctors to add Cialis to my treatments.) Thank you for being a source of information so that I can have the best recovery possible.
My first PSA was 110 ng/ml 7 years ago at age 68.
After my prostate and seminal vesicles were removed my PSA dropped below 0.01 ng/ml.
After my PSA started rising a year later I had 39 radiation treatments with two 3 month Lupron injections, which dropped my PSA below 0.01 ng/ml again.
After 2 years of a rising PSA, a PSMA PET/CT scan only showed a 1" diameter tumor just above my left hip joint.
After 3 high dose radiation treatments to the tumor my PSA dropped from 4 ng/ml to 2 ng/ml, but starting rising again.
Another PSMA PET/CT scan showed 6 spots of cancer in my lungs and a spot on my T9 vertebrae.
Now after 1.5 years of Lupron and Eligard injections plus Xtandi pills my PSA is less than 0.01 ng/ml again.
Consuming too much meat and milk products was probably the main contributor to increased prostate cancer cell growth rate.
These poor food choices also led to heart attacks resulting in a CABG x5 heart bypass surgery.
Apparently ignorance is not always bliss.
What was your weight like?
PCRI. Thank you for your highly scientific activities (both theoretically and practically) for achieving world wide awareness of prostate cancer issues.
Thanks for sharing..learning so much from these talks..
Thank you for this channel i have subscribed to this very informative about prostate cancer From June 2020 To August 2020 i am so blessed i think my treatment was the best way to go i am glad i went along with my family rather than surgery
Very inspiring. Its been almost 1 month diagnosed with early stage prostate cancer. Waiting for 2 surgeon appts to discuss options. Dr that did biopsy advised removing prostate. Now, i know to ask about cryotherapy & hormone therapy as well. And now i know to call in for advice. Thank you.
Thank you for this video. I love the positivity and light at the end of the tunnel talk while not shying away on what’s ahead. I’m 2 months into ADT, started RT, and waiting for the 18-24 month end. I too started exercise, weight training per Dr Sholz PCRI video advice and am pumped (sorry for the pun) to continue. I also had the pleasure of reaching out to PCRI and happened to get John on the other end of the phone. It’s gratifying to see him in the flesh tell his story and he’s been just great on the phone. He un tangled confusion, supplied info to replace doubt, and was a great resource to help me advocate for myself with my health providers. Stay healthy out there.
If you are like I was at the beginning thinking, “Nah I don’t need to talk to anyone” think again. Do yourself a favor and just share what you are feeling with a PCRI advocate.
Thank you for sharing your story. The more people know the better their chances will be to survive and thrive after being diagnosed with PC.
KC,
We love your attitude and are thankful for the kind words and endorsement of the helpline! I passed it along to John and he was also very grateful.
Would you mind if we put your comment on our website as a testimonial? (either anonymous or with your name.) We hope it may help convince some people to call in. You can call us at 310-743-2116 or email us at Info@pcri.org if you prefer those forms of communication.
@@ThePCRI sure you can. Just use KC from Saratoga CA.
I can’t believe his doctor never contacted him with a PSA score of 12 after his physical. Thank you for sharing his story.
12 IS NOT DANGEROUS
Okay this man's account and his candor has convinced and Blessed me to "SUBSCRIBE".
Hello. Thanks a lot for this impormative vedios. It give us more in about this active prostate. My Husband had prostate cancer last February 26 he has been kidney operation. And the 12 difference test the result he has a cancer. Doctor has given him hormones treatment and after few weeks they given him a chemotherapy also. And last week he undergo another operation again. They put some tube from his kidney to his prostate that he piss workout. But he feel very tires. Hoping and praying chemotherapy and the hormones treatment will help him to survive. Praying for all cancers patients will get well soon.
I really thanks for your kindness to share your experiance. It have been increasing rapidly in Korea too. and I'm going to have a brachy theraphy on Dec.
Hope all goes well!
Hello did you have brachytherapy yet ? Was it LDR permanent seed implant? Or HDR
You guys are awesome....thanks for helping so many confused men...much appreciated
A very clear and useful interview. Thanks.
Excellent interview. Thanks.
Amazing interview...what special people...
Thanks so much for sharing
Knowledge is power
Thanks for sharing
Dr. Shearron,
Thank you for sharing your experience with me and others. I am 76 years old and have been in “watchful waiting” status for two and a half years. My question is to you or anyone else who may be knowledgeable would be appreciated. My question relates to riding a bicycle. I heard you mention that you were an avid bike rider. I too have enjoyed bicycling quite a bit over long distances for multiple days sometimes. Since my diagnosis of PC I stopped riding. I still lift weights and do quite a bit of hiking mostly in the mountains in Northern and Central New Mexico where I reside. I am fairly physically active. I miss bike riding, however. The reason I stopped is that I am concerned about agitating the cancer cells that so far are confined to my prostate. I have asked other urologists if my concern has any validity and they have said basically that the exercise that I would get is better for me than any risk of spreading the cancer. As I mentioned I do get a lot of other forms of exercise so those doctors have really not answered my question about potential spread. I have searched the literature on this subject but have not found anything very definitive. I know that bike riding and horseback riding can promote prostatitis but I am not sure about causing PC or spreading cancer cells from the prostate. Do you have any thoughts on this subject? I do not know about the specific anatomy of the prostate gland and exactly how it is situated in the pelvis but if I am sitting directly on my prostate when straddling a bicycle seat, I would think that my concerns could be valid. However, if I am sitting on my pelvic bones and my prostate is protected by those bones, maybe I am worried for nothing. Again, I would appreciate anyone’s thoughts on this subject. Thanks.
Hello,
I will add this question to our list for future videos. I know Dr. Scholz, the oncologist in most of our other videos, has addressed this somewhat because men commonly ask if biopsies spread prostate cancer. His answer was that there are no rigorous empirical studies looking at the issue, but that the risk seems very small if there is a risk at all, and this is based on the fact that it has been studied in other cancers and patients who get biopsies have better outcomes then ones who do not, and also on our understanding that prostate cancer cells and cell fragments are commonly circulating through the body as part of the body's natural functions, but this does not mean that they are going to metastasize because cancer requires certain genetic features to be able to colonize in other parts of the body. They will always be circulating through the body, but if they lack those genetic features, then they will not put down roots elsewhere. If they possess those features, then they will metastasize regardless if the prostate is physically/mechanically disturbed.
@@ThePCRI Thank you for your response. I do remember reading that there is no definitive evidence that biopsies can disturb or spread cancer cells. It makes sense that is is also unlikely that massaging, pounding, or agitating the prostate through contact with a bicycle seat would be more disruptive than a biopsy. Perhaps I am being overly concerned.
Could you add sub-titles for people with hearing problems? I'm lost without them. Thanks for all your work!
Yes! We will add them today.
Very impressive guy.
Thank u great knowledge 🙏🇨🇮💚
I was diagnosed with prostate cancer in 1993. My PSA was close to 300 and the cancer had spread to every bone in my body. My urologist gave me 6 months to live. My oncologist said that I will be lucky to walk in 3 months. Since surgery was out of the question, my urologist put me on casodex and Lupron shots. Within a year, all cancer disappeared snd my psa was o. This lasted until 2020 when my psa started creeping. First slowly and now an increase of 0.6 every 6 months. Doctor wants me to have the Provenge treatment. Will decide shortly if this is for me. My psa is 2.3 with no spread to other parts of the body.
Wow!! Hope everything is still okay with you. Love your testimony.
Thank you for sharing. Your PSA was close to my current PSA of 267. I'm about to start hormone therapy with additional radiation as part of a 56-month trial. I have metastatic prostate cancer with some prostate cancer in two other areas (lower back and rib). I'm encouraged by your story, Uriel, and wish you well.
Very interesting. So you were metastatc? (like I am). Did your PSA creep up because you were off hormones, or did your body resist hormones?
One time at one of the many appointments with my oncologist (Södersjukhuset, Stockholm, Sweden) she got to witness one of my heat flashes. She directly made me an appointment for acupuncture sessions and a later repeat of them. After that I never had any problems with them.
I’m just concerned about hormonal therapy for my husband because he also suffers from some memory loss. I’ve been told hormonal therapy can affect his memory & he honestly can’t afford to get any worse.
@@lindylou3519 I can feel your pain. I would highly recommend a patient group that meets at least once/month for a few hours. Being in such a group helped me to not give up. I still attend one of those meetings maybe once a year now since I don’t have the same level of questions that I once did when I got my diagnosis.
@@lindylou3519 My case is very complicated. Because to relieve the pain caused by the tumors in my bones I received countless numbers of radiation. Since all of the doctors were confident that I would only live a couple of months they removed the maximum restrictions levels on the amounts of radiation I received. That in turn, due to the extremely high total amount, I developed a rare form in adults: Philadelphia Chromosome positive acute lymphoblastic leukemia (Ph+ALL) Among the treatments I was subjected to, one of them, caused major memory loss in both the short term and the long term. So I don’t remember what shape I was in back then. But that is definitely a question that can be asked if the both of you attend.
Thank you so much, John Shearron, for this account of your journey.
I'm currently 60 and in the sixth month of hormone therapy (Orgovyx and Nubeqa) plus the Lutetium trial for metastatic PC. PSA is down to 13 from 525.
Although T is at 2 (very low), visual sexual response still very high for me. Still sexually active.
Very interested in John's post-cancer life. As mine is metastatic, am looking beyond the current medications (perhaps in 18 months or so) to see if there could be a way to return to non-hormone therapy state. Would not do it without some proven options. As Alex and the Doc often say, new options are opening up constantly.
I have some fatigue and the occasional hot flash, but, overall, with a lot of exercise and very strict eating regime, feeling good and doing well.
Please look up the "SECuRE trial at the NIH.
Couldn't pee. Got me to a doctor. PSA 3.5 my doctor also a prostate patient. First doctor did biopsy Gleason 9 5/4. This doctor sent me to Stephenson Cancer Center in Oklahoma City. The first doctor said I had the hardest prostate he had ever seen, almost broke two needle off. Confirmed Gleason 9. Robotic surgery. 8 hours. Four years later 24 radiation 13 Proton. PSA below .03 now. No function but that life.
Great channel with lots of helpful information. I would also like to add that the woman doing the interview is beautiful.
I am more interested in the non treatment options. At 68 with a Gleason Score of 7 and a PSA of 32.00 ng/mL I have to consider the costs, time, and side effects of treatment. Would some men be better off doing nothing? n my case I am feeling great, I have no symptoms, I do high intensity interval training. I am not afraid of dying; I don't care about how long I live but I do care about the quality of life I have when I am alive.
I will add your question to our list for future videos. Also, our free helpline should be able to provide some information. If you are interested, our contact information is here: pcri.org/helpline.
G.. are u still on same track? I was diagnosed a few months ago and feel like I wrote what you stated. I am 72 and wish you many quality years!
@@christyjeske1828
@@ThePCRI t
My husband has a similar dx with clear pet scan yet a 4+3=7 Gleason score. He feels the same as you and is frustrated at so many conflicting opinions. We would really appreciate a follow up on this question. Thank you.
I love doctors they área Angels thats got sent to help us..blesses to alll of them and l hope can find they cure for cáncer...
Very good video. In the case of PSA and Gleason Scores, the end result of ignorance is not bliss.
I got a second opinion at Dana Farber. Luckily, they concurred with my local urologist after sending my biopsy slides to a genomics lab.
very inspiring
Thanks PCRI - would like to share my experience; diagnosed with PC (PCR, PSA 46), offered surgery or ADT/radiation but decided to go natural medicinal formula from China; during the 1st 6 months PSA dropped to 24, I’m on my 2nd 6 months, feel good.
What's your formula?
@@steveniannelli2756: it’s a long list of ingredients some proprietary in 9 jars, 6 you take twice daily and 3 rectal formulas you use daily with special syringe. It’s not cheap! Search for Dr Song Clinic in China.
@@cathum Just take a ton of cayenne pepper in capsules for 6-8 weeks!! It worked for me and it was really cheap.
@@thomasfholland What does cayenne pepper supposed to do?
Hi Alex,
Great info video. I have been diagnosed of 3+4 and 4+3 and 3+3 prostate cancer. I have an appointment with Radiology Oncologist on 16th Aug.
What questions should I ask and should I get 2nd opinion or get the treatment started.
I'm under the care of Dr. Ro at Kaiser Permanente at Ontario. I opted for radiation treatments. Dr. Ro prescrIbed 28 treatments with the Varian Halcyon photon beam machine. He also prescribed two years of Lupron therapy. I get the hot flashes and the loss of upper body strength. FloMax helps me to urinate better.
i love this video
I meet with my oncologist last week and told him I would be getting off ADT at the one year mark. He would like me to do ADT for two years as I'm in the advanced high risk group. I'm starting month eight. I'm looking forward to my second puberty. As I'm on Orgovyx it should be out of my system in two months. During radiation I did 150 pushups a day, which was what I have done for a couple of years, with ADT I can only do them every other day. My PSA has been at .04 my last two test at three and seven months after 45 IMRT radiation treatments. If it comes back, he said even if it is just up above 1.5, he will order a PSMA scan to find any new cancer and then kill it. I do believe ADT is over used and given too long with the new pet scans available.
OBTY, thank you PCRI for your excellent content. I learned so much about PC that it helped me decide what treatment routes to take.
Thanks for sharing this. I'm also on Orgovyx. With Ubequa. Plus Lutetium targeted radiation trail. PSA down from 525 to 13 or so. Have had 2 of 6 targeted radiation infusions. Would like to go off the hormonal therapy at some point. Or find an alternative.
Hi guys, I’ve been diagnosed with PC last month. My psa is extreme at 71 and Gleason score of 3+4. I will be seeing my urologist to talk about results of my PET scan and options such as surgery etc. The big concern is my psa being so high and the worry that it’s micro spread throughout my body has anyone else had the same issue ? Thanks for your time 👍
Hang in there and keep us posted on your journey to defeat your prostate cancer.
Andy, I was diagnosed with metastatic prostate cancer 6 months ago. PSA was 525. Gleeson 6. Cancer in 7 areas. Nothing on major organs. Went on Orgovyx and Ubequa. Also doing Lutetium trial. PSA now 13. No surgery .
There are many options. Best to see both Urologist and medical oncologist.
Enjoyed this video immensely.
Is this gentleman married? Could he share some insight on how what he went through affected his marriage and how he and his spouse handled it?
He is married, and we have a part two coming out soon where he does go over that a bit as well as his experiences leading an advanced prostate cancer support group in Chicago
I rejected some tests and medications as being too destructive or disruptive to my body.. Don't just automatically go along with whatever an MD tells you.
My husband has had his prostate removed but the doctor said he could see where it broke through he now has A PSA of .044... What should our next step be is it too late to get focal cryotherapy?
I wish you all discussed the small percentage of men on hormone suppression who harm or kill themselves or who have to be institutionalize for a spell. I had to learn about this on my own. Even my oncologist was unaware of this side-effect, so he had no resources to help me cope with it, as he was learning about it due to me. I understand that due to me, new protocols were put in place since it turned out that many across the country were coping with the side-effect. Sadly, a bunch killed themselves.
Great video. John, what is your current medical status. That is if you don't mind me asking. I am a high risk, went through it all, and recently had a lymphadenectomy via Robotic surgery. Thanks to a PSMA scan. Being realistic, will probably have to go through some more hormone therapy, ugh. Not looking forward to that at all. I have made so much progress. I am a competitive master boxer a physician, and to lose all that is nauseating. I have already lost so much due to my disease. Where can I find you brother. I am in Texas
Hello,
We have a helpline, and John is one of our patients advocates who talks with people about their cases. He works on Thursdays, so give us a call or send us an email (link to follow) on a Thursday if you want him to give you call-- pcri.org/helpline.
Hie my friend I need help urgently. I am a prostate cancer patient and my isa is 0.78 is it okay for me to do radio therapy or surgery because I am booked for radio therapy by next month am asking on the size of prostate.
Nov 20 diagnosed after 12 core biopsy. Psa 8.2, gleason 3-4 mostly on one side. Underwent 5 weeks Rad with scans and the brachytherapy a month later. 39 seeds with scans was successful. One shot of Lupron prior but stopping that. What should I do next?
Steve,
One of our helpline facilitators may be able to help you with your question. You can find our contact information here: pcri.org/helpline
I am 73 years old, and my last three PSA scores have been 4.33 (2020), 5.69 (2021), 6.11 (2022). I've lost a lot of my energy, so I decided to see a Urologist and my PSA score was 5.98 with a free = 11% (4/7/2022). The Urologist wants me to come and take a biopsy. My Father had prostate cancer but died of multiple myeloma at the age of 76. Having a biopsy is very invasive and could spread cancer into the blood stream, cause impotence (ED), and make you incontinent. I don't see the purpose of going through all of this unless you tell me your sure I only have a short time to live!
Our helpline may be able to provide you with some useful information. You can find our contact information at pcri.org/helpline. For example has the doctor suggested an mpMRI of the prostate to see if there are any detectable lesions? If there were any, a biopsy would still need to be performed, but they could target the lesion and it would involve fewer needle cores being taken and less risk. We also have a few videos discussing whether a biopsy can spread cancer; the basic premise is that cancer cells are always circulating in the blood, and what determines whether is able to colonize other parts of the body has to do with the cancer's genetic capacity rather than it physically moving elsewhere in the body. Life expectancy, though, is something to consider in deciding whether to investigate further, so that is something our helpline facilitator could discuss with you if you are interested.
It's Not Just The Time You Live But The Pain You Will Suffer Through If The Cancer Metastisizes
@@charlesgair8608 exactly
You Might Want To Talk To The Oncologist About A PSMA Pet Scan. They Can Spot Prostate Cancer All Through The Body .
Sir,
My Dad is having carcinoma prostate(metastatic) and had 18 chemo, them went for oral medication(Enzalutamide 160mg) past 2 months but today the PSA went up to 9.654 from 4.7 exactly 28 days before. His RBC count has also decreased to 2.85. Could you suggest the best solution for the same. Your advice on this regard will be highly appreciated.
What is the mediterranean diet?
Has anyone else encountered doctors, NPs or PAs that are primary care and do no prostate screening other than asking if urine flow is restricted or frequent night urinating??
IMO. When in doubt, consult with a Urologist.
I always ask for a PSA test at my annual check-up! They can't say no.
Was the hormone therapy necessary given he hasn't had a recurrence? That is, did the hemi ablation do the work, not the hormone therapy. Was the hemi ablation the key to his successful treatment, would a focal ablation have been more risky due to higher risk of misjudging the outer edges of the tumor.
It is impossible to know whether it was the focal therapy, the ADT, or both. ADT is sometimes used as adjuvant therapy along with surgery or radiation even when there is no physical evidence of spread outside of the gland because there is still the possibility of micrometastases that are too small to be seen on scans. Doctors will usually calculate the percentage likelihood that there are micrometastases and decide whether or not to give adjuvant hormone therapy based on the risk.
Focal therapies typically have a higher risk of relapse when compared to radical therapies like radical prostatectomy or whole-gland radiation, but patients are typically followed closely so that they can be treated in that event. It is not well known how much higher the risk is and may be heavily dependent on the practitioner performing the focal therapy.
If you want to learn more about John's experience, he works our helpline on Thursdays, so you can call us then if you want to ask him about it. Our contact information is here: pcri.org/helpline
@@ThePCRI Thank you.
Well I am 75 and found my PSA was 5000. Scan showed my cancer was also in my lymph nodes. They did not tell me much other than it was terminal. Started hormone therapy without telling me what that would do. 😮😮 Enlarged breast but not told me they could have prevented. Hot flashes were more than flashes. Day long night and day and clothes were always wet. At my age I would have never had therapy if I had a doctor that told me it was going to destroy my life. huh
Can cryotherapy be done after prostate surgery if the PCA never went down to zero. Now they are telling me to do Radiation to the prostate bed. My surgery was done in Oct 2020 and still have leakage and not able to have sex with giving myself shots. Can you please tell me there anything else out there that came be done without making more side effects l just turned 65 years old and still working.
Thanks Carlos
hi everyone , i;m 61 ,, i had my prostate removed by the robot in july of 2018 , now its 2023 , had pet scans etc , showing nothing returned , my psa was at 142 at the time of the surgery , now its 0.09 , bin on all the meds , casodex , xtandi etc , my body COULD NOT HANDLE THEM , thought i was gonna die , so i quit them ,, on lupron for about 3 years now , lupron is starting to take my body apart piece by piece , thinking of quiting it also , i have no life with this drug , JUST WAS WONDERING IF ANYONE ELSE FELT LIKE THIS WHILE TAKING LUPON .. any comment would be appreciated , god bless and peace
🤞🙏🤞
Still on ADT for about 4 years now…I’m a weak androgynous man
I had radiation and hormone therapy with Lupron. 45 radiation treatments and 24 months of Lupron. Two years later, my testosterone has not returned and I am still weak and tired constantly. I exercise 3 times per week, play golf regularly but I do not feel energetic. Thankfully, the cancer has not returned. I just wish that my testosterone levels would increase !
I have prostate cancer and it got in my lymph nodes my urologist
have not said what can be done.Can it be treated?
Yes, it can. If you have questions about your case you can contact our helpline at pcri.org/helpline.
Same here -- dx in 2019 -- combination of ADT and radiation was prescribed -- PSA now under 0.1
Can someone give me some advice i will talk to my urologist Tuesday 24th i have a psa of 320 and i believe spread to the bones any advice would be good and the likey outcome
Hello,
There was a recently a phase III study presented at ASCO with the ideal treatment protocol with patients with newly diagnosed metastatic disease. You can find our video on it here: ua-cam.com/video/57ehJkVUqMU/v-deo.html
Also, feel free to contact our helpline at pcri.org/helpline.
Injection palmorin 11 ask doctor
So for 20 yrs how'd he survive?
Too bad cyro won't work on bones
15 months after my husbands prostate was removed, his PSA continues to double every 90 days. He’s only 55 and it’s been far from a blessing as they decide what’s next.
Hi ,I hope he's doing fine. I'm going in this April..but what I've read online is, sometimes just leave it alone
Add large amounts vitamin D3 and K2. Get
Vitamin D3 levels to
100 and over it is never toxic. Bruce Hollis PHD
On You tube at UCSD medical school lecture
Alerted us He has kept the cancer at bay with just his regimen after Hifu
@@RH-xd3nx it looks like, he takes hormones?
Sorry to hear that, 😞 . Love and light
Several mistakes
1. INSTEAD OF PROSTATECTOMY 80 biopsies , hig risk of bleeding or sepsis
2. IN THE RADICAL PROSTATECTOMY THE GLEASON.8 PATTERN WOULD BE EVIDENT
3 , 80 percent of prostate cancers are bilateral , even with negative biopsies
4 , CRYOTHERAPY ON JUST ONE LOBE
5. you'll need biopsies from the non treated lobe , how many 40 ? every 2 to 3 years
6. my best wishes but eventually you'll ned RT OR RP
Everyone has their own priorities, and focal therapy, when appropriate, has a much more favorable side effect profile with cure rates that approach those of radical therapy. This happened 15 years ago, and if he was in the same situation today, he probably would not do a saturation biopsy because of the imaging modalities that are available now that were not available then-that is, multiparametric MRI and PSMA PET. He has thankfully been cancer free since, and if a new cancer were to develop that was dangerous enough to require treatment, he could have the remaining portion of gland treated and he will have enjoyed more than 15 years without having incurred the much higher risk of side effects from radical treatment.
My husband found his high psa during routine lab work because he was taking testosterone. Did this man continue taking testosterone?
It sounds like he took female hormones at one time
Prostate removal in a week....moderate to high..and its more on the right side but on both but near the bladder .so we shall see
Hello, if you would like to speak with one of our patient advocates about your case, feel free to contact our helpline at pcri.org/helpline.
How you feelin?
I thought 4+3 is intermediate, not advanced
12 PSA at 45?!? Well I got a 3,280 PSA at 47!!! And that was 14 years ago. Ate a ton of cayenne pepper in capsules daily for 6 weeks, since back then there wasn’t even any chemo. (Today my PSA Is still 0.1)
Redacted: My Gleason score was 9
Redacted 2: Each capsule had a SHU of 40,000, the highest amount available at the time. Today there are capsules with a SHU of 120,000.
So was taking the cayenne pepper capsule all you did as far as therapy goes? My husband is 71, PSA of 38, Gleason score of 2. Just found out 2 months ago…he’s still trying to figure out what he wants to do…which is basically all natural or nothing.
cayyene pepper. lol. thats a new one.
@@lindylou3519 Given that I was so young at the time and otherwise in perfect shape they tried everything available back then (Jan 2008). First, chemical castration and second, hormonal therapy. That’s all that existed back then. The hormonal therapy did reduce my PSA for about 6 months but then I entered into the hormonal refractive phase where the hormonal therapy stopped blocking the PC. Then I was told I would most likely live 2-3 months. That’s when I found the research study done by UCLA using lab animals. I think that study was done back in 2004(?) if I remember correctly. When I showed the study to my oncologist she wouldn’t even read the study and it’s findings since it used rats(?). But my urologist was very interested since by his admission he admitted that they had nothing else to do for me. To this day we still don’t know if there were several factors involved. Was my specific PC extremely sensitive to capsaicin (cayenne pepper molecule) or was it the combination of the hormonal therapy and the cayenne pepper. And there’s even been an oncologist who suggested that this cayenne pepper “treatment” maybe only effected the sensitivity of the PSA test. (That has since been discounted.) Presently I’m being studied by an oncologist who’s been working at the Karolinska Universitets Sjukhuset, to see how long this will reduce the level of PC I have.
Feel free to ask any other questions you might have about what I have gone through.
@@scarface548 lol, my husband would go after this like there’s no tomorrow since he loves hot & spicey! Lol
@@lindylou3519 The daily doses of cayenne pepper are so high that it would likely cause ulcers. Nothing you do lightly. I had to eat yoghurt before and after I took the capsules.