What Are The Levels Of Autism (Different Levels Of Autism?) With

Поділитися
Вставка
  • Опубліковано 26 вер 2024
  • What Are The Levels Of Autism? They are Different Levels Of Autism? Hi indie people, today I am Joined by Stephanie Bethany talking about the 3 levels of autism introduced through the DSM-5. These autism support levels were only introduced recently and as someone who lives in the UK, the terms level 3 autism or autism level 1 is very new to me.
    Also, there were no videos talking about these autism levels, what the different levels of autism actually mean. A description of level 1 autism, level 2 autism & level 3 autism. But also Stephanie and I also share our thoughts on what we think.
    💗 Stephanie Bethany's Channel: / youreagreenllama
    💗 Stephanie's video: • Autism in the US vs th...
    🔔 Subscribe here for more videos: goo.gl/miGtoS
    More Autism Videos? • Autism Videos
    ⭕️Last video: • Autism And ADHD Togeth...
    Learn about autism with my meme reviews: • Autism Meme Review (Th...
    📢 If you like this video help others enjoy it by adding captions in your native language: bit.ly/2m2i2GT
    ☑️ = Affiliate link - Any items purchased through the links with the click mean I received a commission or % of the product cost.
    ☑️ 🇬🇧UK Chewigem website: www.chewigem.c...
    ☑️ 🇨🇦CAN Chewigem website: www.chewigem.c...
    ☑️ 🇺🇸US Chewigem website: www.chewigem.c...
    -----------------------------------------------------------------------------------------------------------
    My social media:
    🔴 Facebook: goo.gl/rTsKu5 (@IndieAndyUK)
    🔴 Twitter: goo.gl/dY8S6A (@IndieAndyUK)
    🔴 Instagram: goo.gl/43Axy9 (@IndieAndyUK)
    -----------------------------------------------------------------------------------------------------------
    🔊Intro & Outro song: Golden (UA-cam Music Library)
    🔊Other music:
    -----------------------------------------------------------------------------------------------------------
    📧: indieandyofficial@gmail.com
    -----------------------------------------------------------------------------------------------------------
    ABOUT ME
    Videos on autism from the perspective of an autistic adult. Sharing my autism experiences to help other autistic people and autism families to improve understanding of autism.
    Hello indie people, I'm Andy and I have Autism Spectrum Disorder (ASD). I make videos on autism from the perspective of an autistic adult. Sharing my autism experiences to help other autistic people and autism families to improve understanding of autism.
    This channel is focused on raising autism awareness & acceptance of autism. To try and change attitudes towards autism, to educate people about autism for those who are new to the autism world.
    **New Videos Weekly: Tues & Fri**
    So if you are on the spectrum, know someone with autism or are working professionally in the autism field and want to learn more about autistic people then consider subscribing and turning on the notification bell to see all future videos.
    Useful links:
    💡 NAS: www.autism.org.uk
    💡 Autism Directory: www.theautismd...
    💡 Autistic Self-Advocacy Network (US/Australia): autisticadvoca...
    💡 Young Minds: www.youngminds...
    💡 Samaritans: www.samaritans...
    #autism #indieandy #levelsofautism
    ☑️ = Affiliate link - Any items purchased through the links with the click mean I received a commission or % of the product cost.

КОМЕНТАРІ • 184

  • @hansisbrucker813
    @hansisbrucker813 5 років тому +157

    Those levels seem to indeed focus on social things but mostly omit things like executive functioning.

    • @IndieAndy
      @IndieAndy  5 років тому +29

      Hmm yeah I guess the reasoning behind why it's based around social stuff is because autism is neurological and the way we interact with people will need to be factored into the levels I guess. Though I do feel that they don't take executive functioning into the mix honestly.

    • @amandamandamands
      @amandamandamands 2 роки тому +7

      The levels totally focus on how well you interact with neurotypicals and in their style. You need to have the other things to get diagnosed at any level but it is only the social things that determine the level. The other frustrating thing is that most countries seem to use the levels to decide how much support you need. Level 1 you get nothing or very little as you can communicate 'normally' and most are 'high functioning' so there can't be any issues.

  • @curlypuff
    @curlypuff Рік тому +35

    I've heard of an even newer version of levels which is assigning levels to different aspects of autism. I can't remember exactly what the three different groups were but for instance you could be level one with social deficits but level three in sensory issues. I think that's probably the best way of doing it.

    • @stevemcgee99
      @stevemcgee99 Рік тому +8

      That would be more intelligent, considering the concept is a spectrum.

    • @curlypuff
      @curlypuff 8 місяців тому

      @HollySweden didn't ask

    • @essennagerry
      @essennagerry 5 місяців тому

      Do you remember where you heard about it? I'd love to watch a youtube video about it haha

    • @auburneytuckerson2959
      @auburneytuckerson2959 Місяць тому

      Right.

  • @greenghoul157
    @greenghoul157 4 роки тому +14

    I'm grateful for the support I've been given that helped me cope with autism, I used to struggle with it and I was poorly treated but I feel like I barely have any social problems now

    • @vickibird7411
      @vickibird7411 Рік тому +1

      I am sooooooo glad to read your comment. It has given me hope for son. Thank you for sharing.

  • @Jwet1100
    @Jwet1100 3 роки тому +22

    I would consider myself level 1 High Functioning but i feel i need much much more support than is commonly stated that we need. I don't do very well on my own at all.. I was diagnosed at 29, and I'm now 30. It's no wonder i'm too traumatized by the world, 3 decades with no knowledge or help and still even after a diagnosis no one knows what to do with me. I wanna stay in my shell and never come out. When i'm in burnout which can last for a long time can make me feel like i'm borderline level 2.

    • @amandamandamands
      @amandamandamands 2 роки тому +5

      I feel you, I was diagnosed level 1 at the age of 48. I have been considered 'high functioning' for most of my life but have consistently had what I now know are burn outs (and had meltdowns most days). That I can communicate in a way that neurotypicals can understand has nothing to do with how draining it is to do so or that I have time blindness or executive functioning issues.

    • @vickibird7411
      @vickibird7411 Рік тому +2

      @@amandamandamands thank you for sharing. Your comment has been helpful as I try to help my son navigate this whole new world.

  • @krishoward7750
    @krishoward7750 4 роки тому +6

    Thank you very much for putting this out there to the public. I am not diagnosed autistic, but I have family that is. And to hear a perspective straight from somebody who has been diagnosis ed with any level of autism is like hearing directly from an expert. I have to admit its difficult for me to place my family members neatly into the currently established levels. My family was diagnosed in 1970's before there were established levels. they are high functioning, having family and children. Whereas a niece who is only 3 has been diagnosed as Level 3. Very wide spectrum that my family populates. Thank you again. Very much appreciated!!

    • @IndieAndy
      @IndieAndy  4 роки тому +2

      Aww glad you got something from the video but just to say that the levels are only an indicator and shouldn't be the main label. What I mean is that someone could be diagnosed as level 1 but have areas of difficult that would make them level 2. Hope this helps 👍

  • @bealestcat
    @bealestcat 4 роки тому +12

    Thank you for explaining the different types. My granddaughter has been diagnosed this week with Level 2. Your explanation of Level 2 is exactly her. She is 8 yrs old but language skills at 4 year 10 month. She talks to you and not with you (that was a perfect description) She can mimic her teacher (scripting communication). I do have hope she will improve as she ages.

    • @officialtsathenamontreux2886
      @officialtsathenamontreux2886 3 роки тому +8

      I'm a level two adult who is 30 years old and I can tell you that we do improve. I have learned to function as an adult much better but I still have to have plenty of support in place. I'm pretty much a 10 year old in a 30 year old body but I manage to survive as an adult and make friends. I didn't even know how to befriend people as a child. As far as independence goes I sometimes slack with housework but if I have someone motivating me I tend to get things done.

    • @Catlily5
      @Catlily5 5 місяців тому

      I am a level 2 adult. I can communicate with people. Not gracefully but I can have conversations.

  • @rondarawson6236
    @rondarawson6236 4 роки тому +21

    I can be functioning at what I think is a high level.....but the next minute....I feel like I cant think or I just go completley blank...I feel like sometimes I'm a basic computer spitting out information....or just plain empty of emotion or reasoning...This can make people mad at me...because It looks as if I change my mind or suddenly I dont like them as I jump from variating levels throughout the day...

  • @marymurphy1429
    @marymurphy1429 4 роки тому +10

    It's better than functioning labels, but I'm not sure I like it, mostly because it can change. It might get better, like you said, but it could also get worse. I used to be considered high functioning or level 1, but around freshman year of highschool a combination of a lot of factors that I'm not going to get into right now really made my ability to cope with my environment a lot lower. While I'm doing better now than I was back then it's still not quite the same as it was before then, so I'm considered level 2 now. I need a lot more support than I used too and my autism is a lot more noticeable to other people.
    And it might change again at some point. I could return to the way I used to be, or I could get even worse. I don't know what the future holds. The levels suggest that my ability to function is relatively stable. It's not. It's constantly changing because of a variety of factors, my environment, what's expected of me, my mental health. Sometimes it just fluctuates for seemingly no reason.
    The human brain is weird and complex, and because of this autism is too. You can't put that kind of complexity into three simple categories. I know why functioning labels or support levels could be useful or needed in some situations, but in general I don't like them.

    • @IndieAndy
      @IndieAndy  4 роки тому +2

      I do agree with you heavily. I'm very aware that things can change and our ability to cope with stuff can increase/decrease depending on what's happening. So for me these levels and the functioning labels aren't that great. I just think it's really for professionals and people who are not that knowledgeable about autism to get a quick understanding of things. Though I think I feel these can be good but like you, I disagree them for the same reasons really.
      Thank you for sharing your thoughts, I really liked hearing what you think 👍

  • @whitneymason406
    @whitneymason406 3 роки тому +6

    My son was diagnosed with autism when he was 2.5 years old. He wasn't give a level, but everyone says he has "severe" autism so I'm assuming he'd be classified as a 3. I understand why they have these levels but I do think it can kind of put the person in a box. I've also heard that the levels aren't necessarily permanent for everyone, especially when they are diagnosed young because some skills they test them on they haven't acquired yet. I'm currently going through the diagnosis process myself as an adult and I'm interested to see if they assign me a level or not. Very nice collab and thank you for sharing this topic!

    • @whitneymason406
      @whitneymason406 Рік тому

      @ozkane5955 good! He's got an AAC device he's learning to use to communicate. He's got some new skills like blowing bubbles and can get some items of clothing on by himself!

  • @jamesstenning8867
    @jamesstenning8867 4 роки тому +2

    I have ADHD and had a really hard childhood partly because of it. So it hit me hard when people started saying my son had it and I'm currently going through all the channels to help him. Thanks for the help

  • @vickibird7411
    @vickibird7411 Рік тому +1

    Thank you soooo much! Just a mom trying to figure out how to support and help my 12 year old with new autistic diagnosis. Love from Canada!

  • @misspat7555
    @misspat7555 3 місяці тому +1

    I think there is a better system for categorizing ANY adult’s need for support; the system of “activities of daily living (ADL’s)” and “instrumental activities of daily living” (IADL’s) used to assess the frail elderly. ADL’s are things like being able to move about, use the toilet, and feed yourself. Someone who can’t consistently perform these tasks clearly requires 24-hour care from another person to be safe and healthy. “IADL’s” are things like being able to make the phone calls and appointments to get a wheelchair so you can move about safely; go shopping to buy toilet paper and toilet bowl cleaner; or cook spaghetti. Someone who can reliably do ADL’s but not IADL’s can probably live alone, but with frequent intervention to help with “adulting”, so to speak. A third level could be the ability to perform IADL’s in specific, low-stress circumstances for a time (for example, in my sophomore year of college, living in a dorm; or, living alone in an efficiency apartment working a job specifically tailored to one’s strengths), but precarious in that “independent adult” position and prone to lose the ability to do IADL’s or even some ability to do ADL’s in a crisis, such as academic failure, job loss, relationship failure, or being evicted so the building can be “upgraded” and the rent doubled. Voila, level 3, 2, and 1 functioning, respectively; applies to any disabled adult, not just autistic people, too! Level 2 might need intervention 2-3 times a week; level 1 might need it once per week; all this intervention could be done daylight weekdays (possibly on Saturdays if a level 1 is holding down a full-time job), making it much cheaper than level 3 intervention. ☺️👍❤️

  • @ducky4889
    @ducky4889 4 роки тому +4

    I was diagnose with autism since I was 8 I'm now 22 I have an almost 3 year old I just been told he has level 2 autism and this helps!

  • @Cruzy1892
    @Cruzy1892 5 років тому +5

    Fantastic video :) Comparing myself to these traits I am mainly 1 but there’s a little bit of 2 in me as well

  • @bonnievandenburg3113
    @bonnievandenburg3113 4 роки тому +5

    I appreciate your video explaining the levels because no one ever explained to me what it meant that my son was a level 3/2 when he had his initial diagnosis when he was 3. I also agree with the thought that, with support or a lack of support, an autistic can move up or down in levels. My son, I believe is still riding between 2 and 3 but I think he is now leaning towards 2. I have this position as a parent of a 7 year old moderate/severe autistic where I have completely accepted a future in which he never leaves my home and care but a hope that he can chase ambitions elsewhere and I am prepared emotionally and mentally to support him which ever direction his life and abilities take him. Thank you for your video because it reaffirms my hope that he can, with support, overcome his struggles so that he can utilize his talents to live his best life!

    • @IndieAndy
      @IndieAndy  4 роки тому +1

      Hi Bonnie! See I think it's really bad that the professionals didn't take the time to explain. Because I feel that if they did, then people would feel more confident in there abilities etc.
      But yeah I agree with you that it's important just to support your son and just do what you can do. All the best to you Bonnie 👍

    • @melmanuel9483
      @melmanuel9483 3 роки тому

      I agree. My child diagnosed 2/3 last year June since than she improved a lot. Sometimes I had a feeling that maybe she is in between 1/2 or maybe 2. To be honest Sometimes the level just doesn't make sense to me but yes i believe with the right supports and tools a child can either improve the level or decrease or maintain on the same level. We have lots and lots of toys in our house.

  • @sandraryan7713
    @sandraryan7713 4 роки тому +2

    Very interesting. We are just starting our journey. I will be watching. Thank you both. You are amazing

  • @IndieAndy
    @IndieAndy  5 років тому +3

    Hi Indie People! Go and check out the video we did over on Stephanie's channel:
    💗 Stephanie's video: ua-cam.com/video/7iRcbi4YhpI/v-deo.html
    If you want to see more of my videos, check out this playlist: ua-cam.com/play/PLU7asIuC9SU_QzuO2ADSzy2do8i7_XUWi.html

  • @williamchilds216
    @williamchilds216 4 роки тому +51

    I'm level 2 and, to be fair, I may be classed as level 3 at school, level 1/2 at home and level 2 out and about.
    School - I haven't spoken a word and I do normally nod/shake my head at questions but other times I just shrug because I don't know all the other things about the question (say if they asked to do something, I would shrug my shoulders because what is it I was meant to do, who with, where, why did I need to do it, etc, etc). I am always stimming, I rock, I crack my knuckles, I tap the desk, all that jazz. I never start conversations, ever, even to ask for things, I sat for ten minutes during an exam because I needed a thesaurus and another time the exam caught me 'cheating' (basically I turned of the calculator on the computer and turned it on and the exam said I cheated).
    home - I don't stop talking but it's only ever about birds. I stim but not as much as at school.
    Outside - Never start interactions, stimming is just cracking knuckles or fiddling with fidget toys, only answer to direct questions.
    I think this sums up that the levels need to be super specific to levels in different situations because you could be classed as level 3 but at school you are a level 2, or a level 1 in a therapeutic environment but a level 3 in a shopping park or something.

    • @IndieAndy
      @IndieAndy  4 роки тому +10

      Yeah I kind of agree that yes the level system could be more specific but also I don't feel it's designed for that and it's just there to give a general idea of what someones needs are.

    • @cakedoow9509
      @cakedoow9509 3 роки тому +2

      Every bit of space that has more then 10 people makes me panic however it becomes bearable if I have a shield or an easy access to escape
      Examples
      Shield=few people I trust or know like to take the lead end up being at the front and take the brunt of any impact including physical contact so we can all go out and I can still enjoy myself.
      Escape=classroom or areas with only 1exit I would notify someone or a teacher if I was unable to handle being in such a in closed space and also let them know that if I walked up and left the area do not be alarmed I’m either getting some fresh air from my claustrophobia or was overwhelmed and need a short break... many opposed to this, but I didn’t give them a reason not to trust me.

    • @williamchilds216
      @williamchilds216 3 роки тому

      @@shreemayastha3798 I mean, I was young but babies are obviously different. It's best to wait another year or two before you can see properly. Babies tend to have months, weeks, etc where they may become more overloaded as they still can't understand the world around them.

    • @vickibird7411
      @vickibird7411 Рік тому

      @@cakedoow9509 thank you I will try some of your ideas with my son and his teacher. your sharing is appreciated.

  • @Mueue
    @Mueue 3 роки тому +26

    My son was officially diagnosed with level 2 autism today. I didn’t even know about the levels until they said that. I was so confused but I guess level 1 is mild, level 3 is severe and the 2nd is of course in between.

    • @Almay20
      @Almay20 Рік тому +4

      How is your son?

  • @BlackLabsLikeRuleDog
    @BlackLabsLikeRuleDog 5 місяців тому

    Back when my brothers were diagnosed in 2001, it was “classic Autism” (nonverbal), Asperger’s, or PDD-NOS (many symptoms but verbal but doesn’t obsess like Asperger’s). And I know we’re moving away from “high/low functioning.” So I appreciate anything that explains the modern terms!!!

    • @joemoon1943
      @joemoon1943 4 місяці тому

      I want to share about a herbal recommendations I got about Dr Oyalo on UA-cam and his herbal remedy which work perfectly on my sons autism. speech and social skill has improved till now.

  • @lindak3468
    @lindak3468 4 роки тому +1

    I didn't understand what was wrong with me. I was told it was another issue for yrs then heard her say what she was doing & I thought omg that's me & began to cry cause for many,many yrs I've held this inside feeling so alone at times I wanted to die. Thank so much & I've subscribed & eager to hear more from you.

  • @jamespalmer2689
    @jamespalmer2689 3 місяці тому

    Andy and Steph you are both great advocates for autism and I loved how you tried to break it down. I am a practising art therapist and interested in reducing self harming via the uses of art therapy and I seek any info that demonstrate (hopefully with data) how effective art therapy is a useful intervention.
    I have issues with medical models (sure they have a place at some level and at some times), and I like the personalised thoughts and feelings from the autism community. Sure this can complicate it for a general perspective however, I like to get to know the person as an individual. I am also thinking of running autism groups for children as a way for them to express their needs and also connect with others to normalise autism for them.
    I'd love to chat more if you have time and interest.
    Take care
    James : D

  • @conmangamer
    @conmangamer 5 років тому +8

    i have autism lm mostly level 3 wen i was kid level 2 i work 5 days a week i work at a medical clinic doing data entry on the computer Monday to Friday i conder my slfe high fofson autism im in spcal olmics , i love your videos im glad i fond your videos . i ben telling more peple abut autism im more open abut it now , i fond it schking how lots of pepel dote undersand ausitm or centy overlad yester day i had centy overload and i wore nose conlon hedphoes today im not overhlmed anny more , you have good viedos you make best viedos :)

  • @momicadelicious
    @momicadelicious 8 місяців тому

    Great video. My grandson was just diagnosed and this put a lot of things into perspective.

  • @darbydelane4588
    @darbydelane4588 3 місяці тому

    I miss you, Andy! Great to hear your voice today.🙏🏾❤️

  • @DiariesofaDisabledmom
    @DiariesofaDisabledmom 4 роки тому +5

    Me and my son are autistic. My son got diagnosed with level 2 autism with level 3 traits and I was just like what? 🤷 Didn't realize how socially I was behind until watching your guys videos lol

    • @IndieAndy
      @IndieAndy  4 роки тому +2

      Hmm I think that the levels are good for getting a general idea but I feel that traits can fluctuate depending on the situation. So for example at a gig for example, I would be a 1 as even though it's busy, I power on through. But if its shopping and I've got abit of sensory problems, that could be a 2. I don't feel that the levels help in that aspect.

    • @DiariesofaDisabledmom
      @DiariesofaDisabledmom 4 роки тому

      @@IndieAndy totally agree

  • @johnsonsfamilyof4
    @johnsonsfamilyof4 4 роки тому +3

    I have two children with Autism. I was never told anything about level's. I was just told my daughter has mild autism and should grow up to live on her own and to not worry. I was also to never expect my son to leave home. Today I was asked what level autism my children are and I had no clue what they were talking about. I'm so happy I found this video. Thank you so much for explaining the level's of Autism.

    • @IndieAndy
      @IndieAndy  4 роки тому +1

      Aww it's not a problem at all, I'm glad that you found this video useful.

    • @IndieAndy
      @IndieAndy  4 роки тому

      Just as an additional bit of information about labels, I think this video may be helpful for you too which is about functioning labels: ua-cam.com/video/CbddATsdG24/v-deo.html

  • @haileyscomment
    @haileyscomment 5 років тому +4

    Great video! I didn’t know about the levels

    • @IndieAndy
      @IndieAndy  5 років тому

      Aww it is a very new thing that's been introduced to the states and other places ☺️

  • @ar12.
    @ar12. 3 роки тому +4

    I’m lv1 and am just trying to improve social interactions and expand my interests a bit more but I’m 16 and getting better no medication for 3 years.

    • @IndieAndy
      @IndieAndy  3 роки тому

      Just got to keep on trying my dude 🙂

  • @Michelle-le3ey
    @Michelle-le3ey 2 роки тому

    This video is great!! thank you so much for sharing your insights

  • @propstfamily8650
    @propstfamily8650 2 роки тому +2

    I agree with everything said...it's so vague and autism can vary so much from one thing to the next....my son can one minute seem so very autistic and other times someone would have no idea he is unless I tell them he is. But solely based on his verbal communication skills he is deemed severe but he was actually Reading books to us at age 3.. And is reading at at very advanced level now at age 4 however he can't tell me how his day at school went to just ask him .I feel like placing a level on him feels very restricting on expectations of a person....that you would assume overall less of him which makes me sad by it.

  • @Laurenmazlyn
    @Laurenmazlyn 6 місяців тому

    This video was very helpful. Thank you.

  • @london2day2002
    @london2day2002 2 роки тому

    Thank you so much guys. That was so useful.

  • @gabriellalaplace
    @gabriellalaplace 4 роки тому +3

    I'm not sure if I have ASD Level 1. According to the criteria, I have deficits beginning a conversation and keeping a conversation going. Also , I don't try to make new friends I just use Social Media, to make my interests clear. A long time ago, I chose to do so, since, the medical literature says I have a deficit as in it is abnormal to act like this. So I just put my interests on my social media. And type what I think on different websites, whenever I get the chance. I looked up what inflexibility in behavior was, and I do not change my views or behavior, so that's what I learned today. I learned what restrictive interests are. It's when you know a lot about a topic. So thats what I do. I don't have any repetitive behaviors. I'm not sure if I'm bad at planning and organization. I guess I'm not good or bad at those. I wasn't able to find a lot of examples of what that means in relation to autism. I did autism Canada's screening test sometime ago and got 38. The high risk section was from 30 to 50. Other things that were not apart of ASD Level 1 criteria. I have aphantasia, I have alexithymia and I can't public speak. They just passed me in College and University. Also, I'm terrible at driving in the U.S.A. I don't live there anymore (I'm from a small island). I'm not sure if driving has to do with Motor Skills which deficits are a part of autism or were part of autism.

    • @IndieAndy
      @IndieAndy  4 роки тому

      Hmm to be honest it's easy to read into something and overthink about a topic especially when it comes to a condition that you think you might have or not.

  • @Just_a_ghost713
    @Just_a_ghost713 2 роки тому +1

    I'm level 1 but my communication skill has gotten good throughout high school.

  • @yeetvc
    @yeetvc Рік тому +1

    I’m level 2 👍 this video is really good

  • @tayfunloritz6620
    @tayfunloritz6620 4 роки тому +5

    I think the levels are very interesting. But it implies that the spectrum is linear which it definitely isn't. I'm autistic and i'm definitely not able to place myself in one of the three levels. I'm very nonverbal and will only talk to someone in person if it's necessary and it's really hard for me to use words to express myself. But i write a lot. And i sing because it makes me calm down. So where does this put me? I'm completely caught off guard when something is different than normally and will not know what to do at all and when it's something bigger, sensory overload is just waiting to happen. But when everything is "normal" i can get on with my day without any help. What level does that make me? I could go on but my point is, although it's a good idea in general, it's just really working in theory. Maybe someone could combine it with the spectrum spider?

  • @jwmmitch
    @jwmmitch 2 роки тому +2

    From the way the levels were described it feels like people that are completely NT having basically zero idea what it's actually like to be autistic laying out the criteria for how "aspies" are supposed to be. Like... can we get some ND people to weigh in on this? Please

  • @MatthewC33199
    @MatthewC33199 4 роки тому +4

    I was diagnosed with Level 2 ASD a little over 6 months ago at age 19. Personally I think Level 1 fits me better as I usually am not "visibly autistic" to the casual observer (unless I'm having a meltdown, really obsessive, or stimming), but the people who know me personally and the disability services I have worked with over the years know that I have challenges. However, the clinician who diagnosed me probably knows more about the differences between levels than I do, so I don't want to write that diagnosis off completely. Also I have a lot of co-morbid mental illnesses that often come with autism (generalized anxiety disorder, OCD, depression, eating disorders) that make it very difficult for me to function in life, and sometimes it's hard to tell whether it's autism that makes it hard for me to function or mental illness. I am now 20 and cannot live independently the same way some kids my age in college or in the workforce can. I don't know if that makes me Level 2 by the simple virtue that I need a lot of support to function. I do think there is a major difference between those who are verbal and can function in day-to-day life vs. those with no or limited speech who need major lifelong support because of their autism (and everyone in between), and just lumping it all together doesn't make sense to me. When we had Asperger's, PDD-NOS, and autistic disorder (as well as other conditions considered to be forms of autism such as CDD, Fragile X, and Rett's syndrome) there was still a distinction between "high-functioning" (Asperger's, PDD-NOS and some forms of autistic disorder) and "low functioning" ("classic" autistic disorder), but because of the overlap between the separate disorders it was confusing and many clinicians saw all of these as variants of the same disorder, hence the creation of ASD as a catch-all diagnosis. Personally I think there should be levels AND separate classifications like Asperger's (as subtypes of ASD), because there are differences between these conditions (e.g. "Aspies" are usually highly verbal), but they can range from mild to severe, even in "higher-functioning" cases. (Like someone severely impacted by Asperger's is going to be very different from someone severely impacted by autistic disorder, if that makes sense.) But that's just my input.

    • @IndieAndy
      @IndieAndy  4 роки тому +1

      Hi there. I feel like the level system is there just for professionals to easy identify a person's needs. But I don't think that it's very healthy personally.
      Also just to say that I think having all of those subtypes like Asperger's does create even more confusion because to me, they isn't a difference between someone who was diagnosed with Asperger's or Autism. Also the high & low functioning label debate is something I talked about here: ua-cam.com/video/CbddATsdG24/v-deo.html
      I do appreciate you sharing your thoughts 👍

    • @lunareclipse3692
      @lunareclipse3692 2 роки тому +2

      It doesn’t matter what you seem like. It matters how much support you need and what your difficulties are.

    • @ReineDeLaSeine14
      @ReineDeLaSeine14 Рік тому

      The problem was that I technically shouldn’t have been diagnosed with Asperger’s Syndrome because I had a language delay, but it was more palatable than classic autism and more accessible than PDD-NOS.

    • @Catlily5
      @Catlily5 Рік тому

      ​@Demian ALIKA You are trying to grab money with fake promises to desperate parents.

  • @sarinalight7422
    @sarinalight7422 2 роки тому

    Thank you both

  • @thaismenezes7279
    @thaismenezes7279 4 роки тому +7

    Your eyes really stand out

    • @IndieAndy
      @IndieAndy  4 роки тому +3

      Ooh that's a nice thing to say thank you! Have to thank my mum for them as her eyes are weird like mine 😂

  • @Tigerblade2002
    @Tigerblade2002 Рік тому

    Well put, guys! I absolutely hate how people may interpret these definitions...

  • @jonathanzickefoose6459
    @jonathanzickefoose6459 4 роки тому +1

    I am glad I find your channel I am on the spectrum but it’s sound more of a level 1 and 2 but mostly level 2 is where I am at

  • @The-Autistic-Strategist
    @The-Autistic-Strategist 8 місяців тому

    Maybe we need a system (like this) but designed to slide from day to day (or even throughout the day) something simple that we can communicate.
    Example. Having a low functioning day. Say “I’m a 3” or something similar and simple that’s easy to say that gets the point across.
    Or “today I’m operating at level 1”
    This measuring system (I feel) might have potential. It just needs to be better fleshed out and maybe have more levels added.
    If I understand the current level system correctly. I’d estimate that on average I operate at level 1 but can often overlap or dip into level 2 with occasional momentary instances of level 3.

    • @The-Autistic-Strategist
      @The-Autistic-Strategist 8 місяців тому

      Simply a number system to help communicate or identify your functionality level in the moment.
      Similar to the common question
      “On a scale from 1 to 10, how would you rate your pain?”

  • @ginalatreille2522
    @ginalatreille2522 2 роки тому

    I think that it also depends on who diagnoses you. But yes I find the different levels are not very precise because I find that they don't have the whole picture of what someone goes through inside because it's difficult to communicate everything effectively.

  • @natalieedelstein
    @natalieedelstein 3 роки тому +1

    That intro cracked me up! Well done!
    (The level thing is ridiculous in my opinion. Autism isn't a video game to level up in, and frankly it's all about how apparent and palatable is your autism to me when it comes to ticking off a level box. It furthermore unnecessarily pathologizes autism by defining allistic traits as acceptable and worth including in our design considerations of our society. The reality is if my disability is burdensome to you, it's probably because my needs were being disregarded and I'm not being included, not a result of some ridiculous leveling of autism. Just as there aren't 3 levels of allistic people and it would be ridiculous to say so, there aren't 3 levels of autistic people.)

  • @mkureth
    @mkureth 3 місяці тому

    I’m not sure if this comment will be helpful or hurtful. I am ASD L1. To clarify “substantial” support, it coincides with “substantially” limits in the legal definition of a disability until ADA federal law. Therefore, I (and others with ASD L1) am not “legally disabled” and do not have any rights or protections under law. A person with ASD L2 and ASD L3 requires “substantial support” and are “substantially limited” which meets the legal definition of a disability.

    • @mkureth
      @mkureth 3 місяці тому

      *under ADA federal law (not until)

  • @amalfareed6260
    @amalfareed6260 4 роки тому +5

    I missed most of andy speaking bc of his shirt

    • @IndieAndy
      @IndieAndy  4 роки тому

      Hi there! Sorry if the t-shirt was distracting.

  • @jennifermarielaracavazosma6234
    @jennifermarielaracavazosma6234 2 роки тому

    Neat listening. Thanks.

  • @aaronbarker2295
    @aaronbarker2295 Рік тому

    I feel sorry for the people on level 1, because they get mixed with all the very mild cases.
    But then they could act very strange in public, but then they don’t need care.
    But I would say their situation is needing more understanding.
    And I’m not speaking on behalf of myself, I’m level 2

  • @anonymous-cx7ng
    @anonymous-cx7ng 2 роки тому

    I think I might have autism level 3 because mine is extreme I also have extreme depression, But I have a high IQ and I’m verbal I don’t speak a lot tho I go days without speaking and before I went months without speaking

  • @zk1801
    @zk1801 2 роки тому

    Great insight

  • @IaconDawnshire
    @IaconDawnshire 10 місяців тому

    I got Diagnosed before the levels were brought in. All I know is that I have PDD-NOS

  • @OrlandNavarro
    @OrlandNavarro 5 років тому +1

    Im lv. 1 since when i was a kid till now

    • @IndieAndy
      @IndieAndy  5 років тому +1

      Aww that's cool dude!

  • @jennifermarielaracavazosma6234
    @jennifermarielaracavazosma6234 2 роки тому

    Good time boundaries from the coach are the most effective at stopping frustrated reactions to having ones time taxed too heavily.
    That's our lifetime. We're poor. It's cold..my screen is painfully bright and small. The bed is broke and hurts my back. It got tossed by a large, loud, nonstop monster mouth who wants a consulting or advice business.
    No being forever indebted to your priceless add Visa. No thanks.
    I'll opt an independent personally productive path, less vice. I make drawrings. Thanks

  • @crimsonfilms7710
    @crimsonfilms7710 5 років тому +4

    I always learn stuff here!

  • @celiathompson8801
    @celiathompson8801 Рік тому

    I’ve been diagnosed with borderline autism, level 1, and I sometimes have nonverbal episodes

    • @rahbeeuh
      @rahbeeuh Рік тому +1

      *situational mutism may be a more appropriate phrasing

  • @connorrousseau9972
    @connorrousseau9972 3 роки тому

    When I was diagnosed it was based off of high or low and aspergers was still there, I was told I am low functioning asd with other issues, now I'm told I'm 2.5 level. What I don't understand is being told u are under two levels , I am told I'm level 2 and 3 but because I learned to speak but deal with social phobia and seldctive Justin so I do have an asd device and I can do mg own cloths and shower, now I'm not sever sever asd,so they diagnosed me level 2.5 , how is that a thing?

  • @NotAriaDontLookAtMyName
    @NotAriaDontLookAtMyName 3 роки тому

    I think it was too vague like i identify with traits from all of those 'levels'. And i agree that somedays i'm very high functioning whilst others i literally cant even talk because i'm having a really bad meltdown. Just like other days my brain can be focusing very hard and understand social cues whilst others i can not understand anything. For me it really does depend on how my brain's functioning that day and i really think doctors or neurotypicals need to understand that.

  • @ReversedTech
    @ReversedTech 3 роки тому

    When I got diagnosed they said I had low levels of ASD so, I don't know what level that would be :/ As I have heard many things like Low-Functioninh, Aspergers, High Functioning, Mild (not in order)

  • @joditucker2485
    @joditucker2485 5 років тому +1

    are there videos on types of professions? I ask this because my one child would like to be an engineer and mechanic and the other would like to be a youtuber or do something with video games. in this newer age of computers it seems there are many opportunities for occupations that people arent aware of.

    • @IndieAndy
      @IndieAndy  5 років тому +1

      Ooh yes absolutely! More than likely you can find videos about what the jobs entail. But as a UA-camr myself, I'd definitely have a more stable job first because I don't get paid anything for it at the moment & it's a very unstable income. Also you are effectively self-employed as well so that's a risk. Definitely as a hobby it is brilliant!

    • @joditucker2485
      @joditucker2485 5 років тому +1

      @@IndieAndy thank you

  • @wendme
    @wendme 3 роки тому

    I feel like my son is a mixture of all. For sure level 1 and 2

  • @Ari-rb4zc
    @Ari-rb4zc 3 роки тому +1

    I think I am level 2

  • @guineapigslive2120
    @guineapigslive2120 5 років тому +1

    My son is 10 and just got diagnosed with level 2 autism, adhd and odd worh mild anxiety. I have no idea what the future holds

    • @IndieAndy
      @IndieAndy  5 років тому +5

      I can imagine that it's a time full of uncertainly but just being there for your son and just doing what you can is enough.

    • @elsagarcia3962
      @elsagarcia3962 4 роки тому +3

      My son was also just diagnosed with autism this year, he is two. He receives about 15 hours of therapy every week. I also don’t know what his future holds as far as language development among other things. However, I do know this: he is amazing, smart, funny, caring and my job is to be the most supportive and positive person in his life not because he needs it but, because he deserves just like any other kid. Lakin, your son is going to be ok because he has you.

    • @IndieAndy
      @IndieAndy  4 роки тому

      Hi Elsa! I really love your attitude here with this. Yes it can be tricky being autistic from my own experiences but you can never write someone off until they've had the chance/opportunity to experience life you know. Being there and being encouraging is the most important role of a parent from what I make of it (I don't have kids so I'm just assuming this).

  • @Yosetime
    @Yosetime Рік тому

    I think it's great for people to share their knowledge and experiences on UA-cam. I would suggest though that you provide more specific information that is not wishy washy and is backed by some sort of resource that you cite. Saying things like "I don't really know' just after giving a vague and short description of the different levels was disappointing. You say the levels, give the shortest explanation possible for each, but cannot explain the nuances of each nor the combination diagnosis. That all makes you seem like you really don't know enough to be sharing on UA-cam. Also, for the guy, if you are going to talk about a problem that you have, like autism (I think) you need to introduce yourself very clearly in context to the video. I just couldn't figure out if you were autistic or not or why you were making this video. Remember that people viewing for the first time do not know you or your motives or abilities in making videos.

    • @rahbeeuh
      @rahbeeuh Рік тому

      Hi. Idk if y'know this or not but the guy in the video, Andy was Autistic and unfortunately he died a year or so ago.

  • @TenguXx
    @TenguXx 3 місяці тому

    I am highly suspicious of any attempts to categorize autistic people in this way. They are always made from the perspective of allistic people observing autistic people, and never about the experience of the autistic person. The only kind of categorization that I can think of that I might be willing to use is something like high masking or low masking, or maybe just masked and unmasked. That's what is really being communicated by these labels: how the autistic person appears to other people. The reality of support needs and functional abilities is much more complicated and situational than any of these labelling systems can account for.

  • @jamesthepassionateyoutuber9059
    @jamesthepassionateyoutuber9059 2 роки тому

    Has the DSM 5 always diagnosed autism with these 3 levels or is this just a recent thing?

  • @OfLegionReal
    @OfLegionReal 3 роки тому

    I feel like im level 1 im not good in social places and I do repeat words over and over again.

  • @zk1801
    @zk1801 2 роки тому

    It seems like new DSM 5 isnt as all encompassing in its definition of Autism as we would hope. Hopefully these are faults that will get corrected over time

  • @Savi_I
    @Savi_I 7 місяців тому

    As someone with autism I have 1 and 2 symptoms

  • @melissathemelon9888
    @melissathemelon9888 3 роки тому

    I got diagnosed with level 2

  • @jamesmoranthefascinatingyo1764
    @jamesmoranthefascinatingyo1764 2 роки тому

    Does everyone diagnosed with autism get a level diagnosed with it?

  • @Indiana1193
    @Indiana1193 3 роки тому

    Hi my older daughter has autism spectrum type three

  • @cristopherbrandomartinez5426
    @cristopherbrandomartinez5426 7 місяців тому

    Stepheny bethony
    That rhymes 😊

  • @peggysullivan6760
    @peggysullivan6760 3 роки тому

    I think my grandson who is 3 years old is level 2 😥

  • @misscurlykim
    @misscurlykim 4 роки тому +1

    Thanks for this video! I'm level 1. :) I'm a 24 female and live independently. I was diagnosed when I was 14 and I was in all mainstream schools. I LOVED listening to level 2 because I get so annoyed and can't stand listening to people on level 2, they make me angry haha! And people on level 3, I feel very uncomfortable around. Though, I don't understand why I feel uncomfortable/annoyed around other autistic people who are on a higher level than me. I sound like I'm being very rude about people on level 2 but, I don't mean to be. Maybe that's part of my autism. I wouldn't usually say what I actually think if I think it's rude. I sound really autistic typing this, haha!
    I've also never had sensory toys and stuff. Just LSA's. I never used to rock until I met another autistic person who did and I copied her when I was alone and realised it helps me. I stim a LOT now when I'm alone, I'm starting to feel ok stinking in public but, I avoid it in front of my family because they don't understand. I have so much to say to you and you're a complete stranger and so is anyone else who reads my comment!

    • @IndieAndy
      @IndieAndy  4 роки тому +2

      Aww it does sound abit rude to talk about people in that way BUT I get what you mean. Sometimes we might not get people or understand them even if they have the same condition which is totally fine! Guess why you might feel uncomfortable is because you see a more "normal" version of people which is fine but I think that you shouldn't compare yourself to others & just be yourself 👍
      Aww well that's good! It's really good to hear that you are finding ways to help yourself. Even if your family isn't necessary aware of it then it's fine because as well as it helps you then that's the important thing. Aww well I might be a stranger but this space is for everyone to share whatever they comfortable in sharing, no judgement here 👍

  • @tristantheoofer2
    @tristantheoofer2 3 роки тому

    tbh im probs inbetween le level 1 and 2 asd

  • @RegnStövel
    @RegnStövel 11 місяців тому

    You know. You don't need to use the tuber voice. You don't need the 'So guys..." And "Lets go go guys!" just talk.

  • @caitlinlyons8376
    @caitlinlyons8376 4 роки тому +2

    When I was diagnosed they said I was in between level 1 and 2, I still don’t understand because there’s 3 levels, how can I be in between

    • @IndieAndy
      @IndieAndy  4 роки тому +3

      The reason could be that some thing you may find difficult are level 1 or level 2. However just to be clear here that this can fluctuate massively depending on what's going on for you. So some days you might be level 1 but others level 2 again depending on what's happening. It's very confusing and I tend not to refer to the level system that much because it confuses things greatly!

    • @caitlinlyons8376
      @caitlinlyons8376 4 роки тому +1

      Thanks for explaining to me 👍🏻

    • @IndieAndy
      @IndieAndy  4 роки тому

      Aww it's alright. To be honest, I just say I'm autistic and the whole level thing I don't ever mention because of the fact it's so confusing 😂

  • @karenwaxman2768
    @karenwaxman2768 3 роки тому +1

    Diagnosed w Level one and trying to get supports and have no idea what to ask for lol.

  • @jacob-4595
    @jacob-4595 2 місяці тому

    What are your levels?

  • @futuremillionaire4747
    @futuremillionaire4747 3 роки тому +1

    Me! 4:00

  • @PJ-xs3jx
    @PJ-xs3jx 2 роки тому

    The levels may be problematic for multiple reasons but the misunderstanding and confusion around what the variance is caused by is an issue that goes beyond Autism.
    In fact, it permeates all areas of life I have explored, a vast area, the mind & body of this "Level Three Autistic" but since we're regarded as imbeciles, and wilfully ignored, I have to ask...Can you hear the canaries, they're all crying, crying 🐙🤍🌈

  • @TheDisordersCare
    @TheDisordersCare 3 роки тому

    Respect

  • @DarkAngel-cj6sx
    @DarkAngel-cj6sx Рік тому

    I didn't know autistic people talked!!!

  • @ethieanmcpherson3050
    @ethieanmcpherson3050 2 роки тому +1

    Slk is the same

  • @DarkAngel-cj6sx
    @DarkAngel-cj6sx Рік тому

    So only level 1 talks?

    • @rahbeeuh
      @rahbeeuh Рік тому +1

      No. Most Autistic people can speak. Whether or not they speak "well" is another point entirely. Although, more often than not level 3 Autistics will, but not always, be non-speaking.

  • @salgado8835
    @salgado8835 5 років тому +2

    Lol at the intro 😆😂

    • @IndieAndy
      @IndieAndy  5 років тому +1

      Haha yeah just had to really!

  • @skeletoncigscry1ng857
    @skeletoncigscry1ng857 2 роки тому

    I have level 1 and that’s nothing what my life is.

  • @Clixpro123
    @Clixpro123 Рік тому

    I have autism

  • @ethieanmcpherson3050
    @ethieanmcpherson3050 2 роки тому +1

    All is the same

  • @StephanieBethany
    @StephanieBethany 5 років тому +60

    Thanks for having me on your channel, Andy! So excited to be able to share about the autism levels together with you!

    • @IndieAndy
      @IndieAndy  5 років тому +11

      Aww no thank you for coming over onto the channel 😁👍

  • @ReiverBlue1971
    @ReiverBlue1971 5 років тому +23

    First impression would be that being able to clarify the "severity" of autism would be a good thing, the second impression would be, how would that even be possible considering it's a spectrum? The only solution I could see would be a simple and loose system where people would fall into certain bracket considering their level of independence PLUS any special issues (that don't normally fall into the bracket conveniently). Beyond support requirements is there any other need for a form of classification (other than we're ALL damned awesome!)? Personally I would return to the whole education of NTs thing. I suspect people are just scared of something they don't understand (I know I was as the slow realisation came that I am autistic but now I'm (lucky enough to be) happy about it). Yes, a meltdown can be surprising and unexpected but so can someone being drunk and obnoxious (I once did both at the same time and the police were very nice about it!).

    • @IndieAndy
      @IndieAndy  5 років тому +2

      Hi Matt! I think you gave some great points here! Since making this video, I personally feel that it's really hard to catalogue people into a group of scenarios etc. But I feel this system is based on NTs needs a sense of knowing what a person's situation in a simple way... hence labels or categories etc. Guess having a less structured type of system would be better that is more inclusive would be better but I do accept that any kind of system like this is flawed in its foundations.

  • @topsyturvygirl
    @topsyturvygirl 4 місяці тому +1

    I don’t like these labels actually. I went to Oxford university but can’t work or live alone but I can talk to anyone about anything. Mainly because I have such an epic memory and have learnt how to do this. I can’t work because I burn out all the time and find it all too confusing and complicated, usually ending up with a suicide attempt. On my own I just can’t seem to look after myself, my weight just plummets. So where would I fit?

  • @elvisbz
    @elvisbz 3 роки тому +2

    I do think that all this classifing forgets about the Enviromental Factor..which I do think is the most important...someone who had parents that became their teachers and get involved..and others wich only one parent, low resources, perhaps denying the dignosis and delaying any therapy...I Know some of this..which is very sad, because we know the firs 5 years of life are crucial to cerebral development then from 5 to 8..if you deny the diagnosis or condition or sympthoms ...and try to do somenthing later, you wasted 8 precious years...

  • @SovereignExile
    @SovereignExile 3 роки тому +4

    I recently got clinically diagnosed with level one Autism + ADHD. This is still pretty confusing because I feel like I *_HAVE_* to fulfill all symptoms within a given category. I'm still trying to internalize that everyone's symptoms can vary in severity, as it's all a literal spectrum.
    Like, I'm level one but I identify with the social communication someone with level two would have [can only talk about their special interest, bad at reciprocating with conversations.] I'm gonna see if I can join some form of online community so I can learn more.

    • @allanbrito13
      @allanbrito13 3 роки тому

      I feel the same way honestly. I was recently diagnosed with level 2. I'm fully independent like level 1 but communication is an issue like level 2

  • @truantverreaux5483
    @truantverreaux5483 Місяць тому

    so as a person who is trying to learn more about the intricacies of autism it can be very confusing when its put into very simple terms, i kind of wish there was a video just explaining just, everything a person with autism might experience in general, and also what a person who is not autistic can do to help when things are overwhelming, how to better communicate, what roadblocks might come up in daily life, and what things can be done to alleviate difficult situations etc. its been hard.
    also knowing that things fluctuate for someone can be helpful to know, so like in one day things can go from being more difficult to navigate to easier can be helpful in what to expect and being prepared for what to do to help or not make things more difficult

  • @jennyjumpjump
    @jennyjumpjump 8 місяців тому

    My thoughts are that it's meant as a shorthand for caregivers and doctors. A snapshot. Not meant for defining your potential. Especially with young children.

  • @elainewilliams4147
    @elainewilliams4147 Місяць тому

    U both are so amazing God bless you and grant you all your hearts desires.

  • @monojeons
    @monojeons 3 роки тому +1

    is this safer than the high-functioning and low-functioning labels of autism?