What a great conversation! Thank you for doing this one. Understanding the complexity of nutrition is difficult even with the help of a nutritionist/clinician, which many of us don't have access to. Sometimes food and supplementation feel like the only things I *can* control in the midst of being passed around to different clinicians with different opinions.
I was told to take magnesium for migraines but don’t really notice a change but also learned there was different types. That was before my heds diagnosis
So good to have it confirmed that there is no one EDS diet. I didn't catch what Lorna said about histamine, though - should we be doing the low histamine diet or reducing histamine foods if we have MCAS? and I'm glad you said that we should be seeing doctors/etc who know about EDS etc, but how do we get to those on the NHS (can't afford private!)
@@JeannieDiBonHypermobility There's literally like, virtually no coverage in Asia. + even Asian physiology also varies widely - like different reactions to milk, etc.
What a great conversation! Thank you for doing this one. Understanding the complexity of nutrition is difficult even with the help of a nutritionist/clinician, which many of us don't have access to. Sometimes food and supplementation feel like the only things I *can* control in the midst of being passed around to different clinicians with different opinions.
Glad you enjoyed it!
I was told to take magnesium for migraines but don’t really notice a change but also learned there was different types. That was before my heds diagnosis
So helpful!!! Thank you for this, I really needed this information. I've been tempted to succumb to social media nutrition pressures.
So glad this was helpful and from a credible expert in nutrition.
So good to have it confirmed that there is no one EDS diet. I didn't catch what Lorna said about histamine, though - should we be doing the low histamine diet or reducing histamine foods if we have MCAS? and I'm glad you said that we should be seeing doctors/etc who know about EDS etc, but how do we get to those on the NHS (can't afford private!)
Glad this was helpful. There are NHS dieticians - could you get a referral?
Thank you so much for this
Glad it’s useful
Excellent topic and explanation about foods
Thank you so much 🙂
Thank you!
You're welcome!
What if I can't find nutritionists that don't have awareness of EDS - especially as how it affects absorption?
I would check the EDS Society health professional directory.
@@JeannieDiBonHypermobility There's literally like, virtually no coverage in Asia.
+ even Asian physiology also varies widely - like different reactions to milk, etc.
Did you cover FODMAP diets? I missed some and really wondered about that one
I don’t think Lorna is recommending any specific restrictive diet - always good to speak to a nutrition professional.