End-stage renal failure - a long term condition
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- Опубліковано 5 лип 2024
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Malcolm, who had a cancerous kidney removed and suffered slow failure of the other, talks about haemodialysis and living with this long term condition.
Transcript link - podcast.open.ac.uk/feeds/2094_...
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Study health and social care at the OU www3.open.ac.uk/study/undergra...
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I suffered kidney failure from being an alcoholic ! I collapsed at home and lay unconscious for eleven days before the police rescued me ! I had dialysis at the freeman hospital for about six weeks ! I was extremely lucky and my kidneys started working again ! this was a life changing experience and made me reevaluate my lifestyle and stopped drinking ! the care and treatment I received was amazing ! that was the least I could to to show my appreciation to the staff there !
My friend just died 2 days ago from kidney failure
Damn, you're lucky I thought I would found 2 kidneys.
Sweet people like this gentleman should never have bad outcomes in life. And he is so lucky to have that nice wife with him
Give him a kidney
I am 40 with end stage renal disease and have been on hemodialysis for the past 6 months. Every Tues, Thurs, Sat at 4:30AM. This week I made the switch to peritoneal dialysis at home. I would recommend PD to anyone who likes their independence. I can now travel again! I just have to take a small machine and my supplies along. Plus I don’t have to go in at 4:30AM anymore, which is quite nice.
It cost a lot for people who have nothing..
@@dmmentopa5754 he's must be from Australia. It's all free there
@@brutallyhonestguy5985 Maybe God is able to heal.
How are you doing ?
He makes everything sound peachy with few problems or inconveniences. I’ve been on dialysis for almost 10 years. I’m on it for life. No transplant for me! A new HCA once said “It’s keeping you living.” I corrected her, telling her it keeps you alive and there’s a big difference between living and being alive. The drugs regime is depressing because it’s never just one thing - diabetes, cardiovascular problems etc. The NHS has kept me alive for a long time and I’m very grateful, but dialysis isn’t as rosy as he’s painting it. If you’re contemplating dialysis speak to someone who’s on it, face to face.
Sorry to hear about all this. I'm not on dialysis but based on extensively researching everything it seems like my kidney function is low. I dare not go for a walk, for the pain the next 3 days.
I have a question for you. Which medications in the video are required for the dialysis process to work? Or the meds are specifically prescribed to help with symptoms?
@@artofverity8791 as far as I know, the vitamin replacements are for kidneys. I take several cardio tablets.
@@artofverity8791I'm on dialysis and only take 2 tablets.
why no transplant sir?
@@XOTheEmreOX they won’t transplant because I probably wouldn’t survive the surgery.
I wish he could read a book to me 😂 his voice is soothing
🌞🌞🌞🌞🌞🌞
This patient is clearly from an affluent background unlike many other financially deprived patients who don't have proper support or luxury anywhere next to what this patient has !
Which he most likely had to work hard for.
My father is not from an affluent background, and still receives his dialysis treatment like a human being. But I guess it depends the country you live in.
this seems to be uk nhs looks the same as were i go in uk dont matter what a person did for work he looks middle class to me, nhs covers us all we have paid in taxes for it
Ok keep your communist ideology of if this Trotsky!
Thank you so much for making this video. What an awesome couple and a great attitude. I wish them both the best.
Lovely Video! Apologies for the intrusion, I would love your opinion. Have you thought about - Bonackson Wandalyn Genie (should be on google have a look)? It is an awesome exclusive guide for avoiding dialysis and improve kidney health minus the hard work. Ive heard some awesome things about it and my work colleague after a lifetime of fighting got great results with it.
Bless you, I have a family member on dialysis, he is up for a kidney and pancreas transplant, he is very young, I hope so much that it will all go well, take care.
Nice Video! Sorry for the intrusion, I would love your opinion. Have you researched - Tarbbatigan Charter Access Tip (Have a quick look on google cant remember the place now)? It is a good one off guide for learning the secret to reversing your kidney disease minus the hard work. Ive heard some extraordinary things about it and my work buddy finally got amazing results with it.
Excellent Video! Sorry for chiming in, I would appreciate your initial thoughts. Have you heard about - Renophia Seyoe Rule (do a search on google)? It is a great one off guide for boosting your kidney function minus the hard work. Ive heard some incredible things about it and my work buddy at very last got excellent succe
May he totally fine have faith.
I am a 31 year old diabetic and my blood work is indicative of early kidney disease. I've already decided I'll refuse dialysis if it comes to that. I've never understood the concept of wanting to prolong life. If I have the chance to get out of here, why on earth wouldn't I take it? Glad this fellow is happy with his choice, though.
Type 1 Or Type 2 Diabetic
Never Refuse Dialysis
@@byronchavarria4954 Never tell someone what to do with their own life.
This is reversible. Follow Dr. Ken Berry and reversal will be achieved.
Same here 62 been type 1 52 years have been on all the medications to stop the disease in the kidneys from progressing but it's niw got far worse but like you I just think got to go of somthing so if its my time fought ill health all my life complications of diabetes etc so I think loads would feel the same
I’m very respectful and thankful for you and your wonderful Wife to share your life with acceptance and kindness. Youyou can handle at the moment
I’m on stage 2 and just witness what this man goes through scares me. I’m on a clean diet fighting to get to stage 1.
How much you have improved dear??
Thank you so much for this wonderful documentary about life with end stage renal disease. As a nursing student, it has really helped me understand more about living life with this illness.
Great Video clip! Excuse me for butting in, I would love your initial thoughts. Have you ever tried - Trentvorty Perfection Kidney Theorem (do a search on google)? It is a good one of a kind guide for improving kidney function minus the hard work. Ive heard some incredible things about it and my cousin at very last got excellent success with it.
@@rafaelalejandrosoto428 yeah Fortnite is the goat and bad bunny 🔥
@@rafaelalejandrosoto428 good 🚽💩🧻
You are so strong
Please let older doctors know kidney disease is far from a painless death! Ty for learning more about this devastating illness.
Watched this vid as my dad told me he's on dialysis. Now I need to find out. Great vid and I hope he is doing well. God bless
Hi, I had a kidney transplant in 1995, I'm currently at 18% EGFR, so now at Stage 4, but I'm a positive person, and do lots of walking
So much courage..may God bless u both
I am 29 and just started dialysis in Novemeber and it can be difficult but I try to be positive and think of things that give me hope that help me keep wanting to live.
Your not alone . If you miss a treatment and try to go too many days without it you'll get sick , nauseated . Keep positive and play sports and life is short . Dont let it get you down. Worse things out there .
it felt like a dream I can not believe I'm cured from chronic kidney disease what a great man you are Dr Onyeneke on UA-cam he cured me with his natural herbal medicine
Have faith everything will be alright.
What Causes Dialysis
Damn I’m 30 I thought I just got dealt a shitty hand
Good video , bless you and many more yrs too you ❤️
Very inspiring video ❤😢 we would love an update on Malcolm in 2023,please. 🙏
Thank you for your video! God bless you and your family! Hope you get better and better!
I'm glad it's going well for you! I've had to cut a few sessions short because of RLS. I'll be glad when I get a new kidney. Wait time is forever. Ugh.
I admire his attitude towards it, he really sees the silver lining. This really makes me want to sort my health regime out. O_O
There are many factors in reducing kidney disease naturally . One resource I found that successfully combines these is the Jaylands Kidney Kit (google it if you're interested) without a doubt the best blueprint that I have ever seen. look at all the great info .
Excellent video content! Forgive me for butting in, I would appreciate your initial thoughts. Have you ever tried - Tarbbatigan Charter Access Tip (Sure I saw it on Google)? It is a good exclusive product for learning the secret to reversing your kidney disease without the headache. Ive heard some super things about it and my mate finally got great results with it.
This Guy pretty calm about it as a person who is on dialysis , Im end stage myself , You must roll with it , it will knock you down after treatment many sit in the lobby before driving home , but I usually fall asleep about an hour after , but fell much better the next day or weekends. If the take too much fluids You will cramp like level 10 , I don't let them continue , that's enough for the day.Im in my 50's and most there are much older than me though recently we got in 2 guys in their 40's . These machines take too much minerals from your body , side effects are very dry skin , rashes fatigue ,and bleeding . though a spinal cord injury from years ago doesn't help. This Fellow has a good support an least is able to enjoy a comfortable life , but if your poor , your life is far from that , its whether you even have a meal the next day an must survive on those protein shakes from the center. I wish Him well from one to another an who ever reads this take care of your body , eat right get routine blood tests.
new to diaylis can you u give me some ideas
Sure anything that I can hope to help answer . What questions or ideas do you seek to know ?
Dan how is your treatment going, are you dealing with diabetes as well?
I've been on dialysis for two years and I'm considering stopping treatment. Today was difficult, my husband is tired of me being tired afterwards. It's not easy. I'd rather go home naturally🙏 God bless
hi everyone ,if anyone else trying to find out
improve kidney function
try Franaar Healthy Kidney Formula (just google it ) ? Ive heard some pretty good things about it and my neighbor got excellent success with it.
thank you so much!! this video really helped me. my dad just got admitted to the hospital today for kidney failure . . .
God bless us all who have problems. Yes, I agree that bad health is a huge inconvenience.
Lovely Video! Forgive me for chiming in, I am interested in your opinion. Have you researched - Trentvorty Perfection Kidney Theorem (just google it)? It is a smashing one off guide for improving kidney function without the normal expense. Ive heard some interesting things about it and my old buddy Taylor finally got great results with it.
Thanks for the video content! Sorry for the intrusion, I would appreciate your thoughts. Have you heard about - Tarbbatigan Charter Access Tip (Have a quick look on google cant remember the place now)? It is a great one off product for learning the secret to reversing your kidney disease without the hard work. Ive heard some decent things about it and my BF at last got amazing results with it.
I admire your attitude, it his very heart touching for me. My mom is in the finial stages of kidney failure and is suffering greatly.
What Causes Kidney Failure Is It Acute Or Chronic
Thank you Malcolm.
I am a dialysis nurse and want to clarify something from this video. Renegel is not a protein binder but a phosphate binder. A dialysis patient should be consuming high quality protein (eggs) as prescribed by the nephrologist.
Thankyou for this it is so helpful as my father in law is soon to be on dialysis.
Being diagnosed at 24 with end stage renal failure, only being on dialysis now for 2 years like this dudes view on it, it's something you have to get used to and live with. I did and it's sad seeing these dudes that are 20 years older than me acting up and causing a scene at dialysis...
This was great, thanks, I've been looking for "what happens to the body during kidney failure?" for a while now, and I think this has helped. Have you ever come across - Aiyibestoen Phenomenal Asset - (do a search on google ) ? It is a good one off guide for discovering how to improve your kidney function minus the normal expense. Ive heard some great things about it and my mate got excellent results with it.
Lovely Video clip! Apologies for butting in, I am interested in your initial thoughts. Have you considered - Trentvorty Perfection Kidney Theorem (Sure I saw it on Google)? It is a great one off guide for improving kidney function minus the hard work. Ive heard some awesome things about it and my close friend Aubrey after many years got excellent success with it.
Thanks for the video content! Excuse me for the intrusion, I am interested in your initial thoughts. Have you thought about - Tarbbatigan Charter Access Tip (Have a quick look on google cant remember the place now)? It is a good one off product for learning the secret to reversing your kidney disease minus the normal expense. Ive heard some incredible things about it and my friend Sam finally got great success with it.
I am 21 and inherifed Bartter's Syndrome, a 1/1,000,000 autosomal recessive disease that means my kidneys have trouble balancing electrolytes and potassium and water. I hope I wont need dialysis, but i cant control what the disease does.
does kidney failure hurt? what is ur diet like?
May God bless you
I'm in stage 4. You are inspiring. Thank you for sharing your experiences. It was really helpful. I'm so sick.
Stay strong. Hope you doing ok
You are getting sick because it is time for you to be on dialysis. Go get your blood work done to see. Best wishes
@@KoalaBeer. sweetie. I'm now in stage 5. The dying stage. I don't have much longer. I've chosen not to do dialysis. You can tell you have it by doing blood work to check the function of your kidneys. If you want to know which tests, send another note and I'll tell you. Feel better and good luck. You know, diabetes, gout and other diseases could cause a few of your symptoms. Please see a doctor. Preferably a specialist. 🦋
@@visionlove6497 I'm sorry but you don't know what you're talking about. Be careful with medical advise. Thank you.
@@KoalaBeer. usually you do get fluid buildup bc your kidneys cannot get rid of the water. You don't always have to have the swelling. For example, me personally, I also have a FEW other issues. One being that i Also have an ileostomy.(I have no colon and only feet of my small intestine left). My ostomy puts out allot of water. It runs thru me. Hence, I only weigh 76 lbs. Very very tiny woman.
Ask the doctor to run a kidney function test on you. It's a test of about a couple dozen things. Only one tube blood needed. On that test will be a GFR. A GFR week tell you at what percentage your kidneys work and tell you which stage you are in. There are 5 stages. Each one means something different on how to treat it. His to eat, drink and which meds to take. Very helpful info.
Thank you for your empathy. I've made peace with my decision. My kids are raised and educated and I'm 60 years old. I've suffered enough. I really do appreciate you. In on you tube out of boredom every day if you need to talk. Take care, my friend. I'd love to know your results if you get them done. 🦋
What a brave man.
What a lovely couple. I wonder how they are doing now...
im like this guy too been the same for five years and what ive seen is that when you tell people kidney failiure they are like what? what is that, they are like that is not so bad!there is just not too much info out there about this disease.
Sharing is caring thanks so much
Appreciate u and this
i have been on for 26 months so far.you get use to it.only problem.i am always tired
Was on dialysis for 2 1/2 yrs. Started at 24 yrs old my mom gave me a kidney and I’ve had it for 35 yrs. It’s failing now. I have to make a decision weather to get a transplant again. Dialysis is so rough on me. And you can’t hardly eat anything.
My friend just died from kidney failure 2 days ago he was crying before death
Lovely chap 👍
How is he now? Any news about this gentleman?
Hard to believe I am just seeing this being posted 9 years ago.
But for the women on Social Media making demands about what they are entitled to see and learn.
This is what Marriage is about. Sticking together through trials no fault of their own.
A rare thing to see in today's world.
My wife and i have end stage kidney failure, we walk hand in hand to the dialysis ctr. We get good care there, hardest part is the boredom in the chair for 4.5 hrs. and afterwards feeling your energy sapped. But i stay strong for her.
Ok where is the update?
Which medications in the video are required for the dialysis process to work? Or the meds are specifically prescribed to help with symptoms?
You take phosphate binders when you eat, an 81 mg aspirin once a day to prevent access clotting, a water-soluble multi-vitamin once a day, cinacalcet and/or calcitriol to keep your parathyroid hormone at a proper level, and sometimes epogen and iron injections during treatment - but only if you need it.
just wow
I go tu-thur-sat so I have 3 work days... Work days are busines days...
my gfr reads 11 (stage 5) and i am only 29 years old. i have to do this dialysis thing now. seeing specialist in a few days. i am very scared.
My dad passed away a couple of years ago. My dad had dialysis 3 times a week. I knew my dad had a hard time accepting the condition. Unfortunately this condition runs in dad part of the family. It’s a matter of time before I get this . 😢.
Pray against it and make sure u keep a healthy low sodium diet. Watch ur blood pressure and sugar levels. You will be fine.
why did he die?
@@XOTheEmreOX Kidney Failure
How did he pass? Did he refuse or stop the dialysis treatments?
At 9:20 you say "Too much leaning can be a dangerous thing" I could not disagree more. Keep fighting but look for alternatives. You wife is awesome.
what ur diet like?
Protein binders? I take phosphorus binders. My nephrologist encourages the consumption of protein because dialysis takes it out of the blood. Maybe the machines in the U.S. are different?
I think the Brits just call it that since most dietary phosphorous is in the proteins.
His medication is phosphorus binder
Renegel is a phosphorus binder not protein
i have end stage kidney failure had sepsis heart failure fluid on lungs and the anti biotics finnished off my kidneys with the sepsis,,but i had 4 hours on the machine and was very ill for 3 days after, couldnt eat or drink had a iv drip put in ,i stood my ground and had bloods done has i was feeling ok after 3 days and a week with no dialyisis,only issue with my blood work was creatine levels nothing else ,so i have 2hours on machine 2 times a week,had this for over 4mnths ,i was a mess before ,everything had shut down
My dad been there for 10 years, still surviving
His age???
@@bongcanteen he 49, 50 next year
I wish this could be as easy it is said if I am not that poor. I am very badly helpless and just watching my dad for i couldn't do anything due to financial problem. Forget about the transplant we don't have money for diagnosis 😭🥺😭😭😭😭😭
it felt like a dream I can not believe I'm cured from chronic kidney disease what a great man you are Dr Onyeneke on UA-cam he cured me with his natural herbal medicine
Add oats in protein and vagetables broth.wokindg for me.balance electrolytes.
I came here to watch This Video
when both are Not With Us Now
I'm f 39 have small cyst's on my bile duct, spleen, liver and kidneys. Is this my future?! 🤔 No one's explained it to me
Pray.
My Aunt chose not to have dialysis and died in a few weeks. She didn't want to do it.
My condolences 🙏 if one chooses not to get dialysis, do they leave peaceful without any pain and suffering? Or is it bad?
i just learned that my grandpa's health is getting worse and worse 😥
He is in stage 5???
My sister she does dialysis 4 times daily 7 days a week 🥺
Peritoneal Dialysis
I'm on the old Cyclosporin
I'm 35. I have low kidney function. If I go outside for a walk.... I'm exhausted for 3-4 days. I don't want to go to hospital. I want to have a good life with fun activities. I have to hold back crying tears if i think about this.
Hi, how are you feeling? I hope better. Did you go to the hospital? Are you doing better now?
i was on dialysis for 3 months and hated it. I would get sick and throw up sometimes from too much fluids being pulled, and most days I went home with a splitting headache, but I shouldnt be complaining because I only had to deal with it for 3 months and luckily my kidneys bounced back enough to suffice w/o the need of fluid extract via dialisis. I met fokls that had been on it for a couple decades already and for the rest of their lives. so sad. its better than dying early tho, thank goodness for dialysis.
Ooh my God what you did to reverse
@@febroniakimaro8119 i dont know. i just got lucky. it was an acute diagnosis from way too much ibprofin/advil, so it wasnt already a cronic disease. i was told those are more common to recover from than if a person developed the disease over the years.
Ok dear friend have a goodluck and pray for me am very scared
@@febroniakimaro8119 have you been diagnosed with renal failure as well?
Is that really possible? We're you end stage? Can one in end stage get dialysis and stop it after a while ? Can kidney come back?
The idea of dialysis fills me with dread. My eGFR was 9 when it was last taken and I don't know what I should do for the best. This isn't really any kind of cure, is it, it just defers the awful day.
Do you know of anyone with end-stage CKD who has decided not to undergo dyalisis and taken the conservative care route? If so, could you provide me with a link? Thanks in advance.
interesting points ,if anyone else wants to learn about
kidney failure alternative treatment
try Franaar Healthy Kidney Formula ( search on google ) ? Ive heard some unbelievable things about it and my friend got great results with it.
Pyotr Leflegin it sucks
Would recommend dialysis to be started. It is manageable and one has to look at it as going to work a few times a week.
because i got kidney hydronephrosis that lead to kidney desease
Peoplecan live with one kidney
ummm im 13 and have all kidney failure syntoms
Then get on a good diet , at your age you maybe able to reverse it as long as your kidneys low stage . Wish you all the luck .
Pray and Diet.
Technically, only 1 kidney failed, and the other suffered from cancer
Yeah, I'm not interested in dialysis. Just gonna ride it out.
Nooooo!
He look good probably just started D.
Too soft cannot hear, 4/1000000
its better if you do kidney transplant but its your decision if you have kidney failure
SIT IN THE CHAIR, BUY A COFFIN. THERE ARE WAYS TO KEEP THOSE LITTLE KIDNEYS GOING, DEPENDING ON YOUR AGE. there ARE TO MANY PEOPLE WHO KNOW HOW. LISTEN TO THEIR REMEDIES.