CVID: What We've Learned -- 2022 PI Conference

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  • Опубліковано 7 вер 2024

КОМЕНТАРІ • 14

  • @thagrintch
    @thagrintch Рік тому +5

    On behalf of those who are struggling from CVID, thank you for your continued research in this field and shedding light on it in the medical community.

  • @pattipitcher7949
    @pattipitcher7949 Рік тому +3

    Excellent presentation. So clear and informative. Thank you!

  • @satori7880
    @satori7880 Рік тому +3

    Great Doctor ❤

  • @maha77
    @maha77 7 місяців тому +2

    How rare is it to have zero levels of all the antibodies? That is my case, and I can't find any information on how common it is. I have zero count of IgG, IgA, IgM. I do get IVIG infusions so I do have IgG in my system, but without it, my level is zero. Even with the infusions I have complicated issues that do not respond to antibiotics. So hard to find literature on missing all of them.

  • @user-ri7uw2xk7k
    @user-ri7uw2xk7k 6 місяців тому

    Great presentation! Just diagnosed. I have had ton of GI track issues and GI specialist never listen.

  • @kgrfirdjy
    @kgrfirdjy 10 місяців тому

    Fascinating! My sibling and I have hypogammaglobulinemia. I a
    never saw it while working in a hospital as a nurse, but it is more commonly seen at the outpatient hematology // oncology infusion center I go to for IVIG.

  • @dalehulst4128
    @dalehulst4128 10 місяців тому

    Thanks for a GREAT preso! And Q&A!

  • @thagrintch
    @thagrintch Рік тому +1

    Can a person with no B cells and no IgA, but excellent levels of all the other immunoglobulins like IgG, IgM, etc. qualify for IVIG therapy? Would it help them at all?

  • @askabie
    @askabie 4 місяці тому

    Hi Guys,
    Can anybody please answer my question?
    I have recurent infections since I was small kid.
    Now I've got bronchiectasis, ILD also. One doctor decides to check my immune system and strange thing happened. My immunoglobulines are at normal range but my lymphocites B are decrised especially plasmablasts are hardly there.
    How it's possible to have a normal numer of immunoglobulins with nearly no plasmablast?

  • @Butterfly-zs2pc
    @Butterfly-zs2pc Рік тому +1

    Now your talking, juice up the T-Cells to get them to do the work to help the B-Cells. 😊

  • @okatitakkuvaayyindi9495
    @okatitakkuvaayyindi9495 5 місяців тому

    Hi, is it possible in cvid to have low igM , low B cells and normal igG ,igA?

    • @IDFvideos
      @IDFvideos  5 місяців тому

      No, the current criteria for a CVID diagnosis includes low IgG, but it's possible you have another condition.

  • @mitchellle4157
    @mitchellle4157 5 місяців тому

    easy on the diagnosis delay thing: there's well established studies that women are more often dismissed when seeking medical treatment, especially when it comes to things like fatigue and infections. Medical bias is real. (I say that as someone who had a delay of 2 decades...)