Hello, I’m Ann Marie and I’m 34. I was diagnosed eight years ago. I waited 3 years because the dr told me that my symptoms would disappear. Never did. So after shoulder surgery, i was sent to a spinal surgeon and he did an MRI of my spine. They found MS in my spine then I saw a neurologist who got a brain MRI snd it was confirmed RRMS. I was happy I finally had an answer to my symptoms
So relatable. My diagnosis took some time, but MS was suspected right away. Optic neuritis was the first symptom diagnosed by my optometrist. Then neurologist took 7 years to give me an MS diagnosis. My family did not believe me when I complained about symptoms. They tried to push me to get a job even though I could only walk a mile before starting to limp and needing to sit down. And the drunk-like walking didn't seem to register with them. I wish I didn't have to deal with this at all.
Hello I’d really like to say huge thanks for the share! I’d also wish I could sound really ‘positive’ about relating to your stories, but every time it makes me cry; why... because of the wasted years of so many people being misdiagnosed, misinformed and continuously escalating patient anxiety by assuming anything not obvious, to be a mental health problem! Stereotypically as a female, the problems are always in your own head... an MRI showing brain lesions, completes the punchline fabulously! X
I'm 67. I got told at age 21 I could very possibly have MS (my uncle had it). Another doctor prescribed anti-depressants and from then on I was just running scared, trying to work and train but absolutely in self-denial about having MS. Nobody ever mentioned Benign MS. And it was 20 years later after a late pregnancy with twins that I got myself admitted to hospital, unable to look after babies safely. Then I got diagnosed. But nobody ever mentioned Benign MS as a possibility. Took me another 20 years to be able to afford Gestalt Therapy and I found just having someone take it and me seriously, whether there were symptoms or not., was a lifestyle changer and saver. And I still don't have a name for my type of MS. But thank goodness I had a great Health Visitor after diagnosis, who helped me fill in forms and I got DLA and could spend a chunk on the boys. Life with MS is a lottery!!!
Love this! Just stumbled across the channel. Fellow MSer here. Neat to hear bits of my story in each of you. Im in Nova Scotia Canada, super high rates of MS here but I don't know many people myself with a Dx. I was Dx 2011 with my first physical symptoms., but my mris were very busy.... 14 + lesions on my first mri. Pretty scary stuff.
I'm so glad that I came across this video because I too had physicians and specialists telling me for years that my problems weren’t that big of a deal, that I needed antidepressant, etc. And this is because looked so healthy. I was in the music business since I was 14 silky blonde hair, smooth clear skin bright shiny eyes, in other words always looking very healthy. When I moved to Scotland, from my home in the US, and was there for five years that’s when I started having major MS symptoms. But, when I'd go to clinics and go to doctors most of them really just brushed me aside because I looked so much healthier than the average Scottish person, there was no way that anything I considered an ailment would be anything major. You've really got to stick to your guns, be your own advocate if you can and not let Doctors brainwash you Into thinking that you and your health issues are not important. Thanks to everyone who made this video, your personal experiences are a great comfort to those of us who are living with MS all on our own.
The government have been doing a 30 and 40 year study in Feroe islands.. I’m wondering if anybody with MS has been diagnosed with Guillian barre or had their aluminium levels in their brain checked ? MS is very high in the military as well. That’s why there has been a study on the island. MS and TD higher rate since World War II. The reason how I found out these two conditions may be connected, is I have tea day and two of my children have Tourette’s. I will never stop searching for answers.. Great video and really good subject thank you
@@chris1960 I had Tourette’s as a child and grew out of it around the age of 13 or 14. I’m in my 50s now and last year had a injection of metoclopramide for anti nausea migraine. It fixed my nosy about 16 hours later when I woke up, Some of my old tic had returned. I’ve since learnt from the doctor that this Kind of medication can have side-effects for some people. They are calling it tired of dyskinesia. It feels like to rets to me. Anyhow hey two of my children have Tourette’s so I started to look into where there may have genetically passed it on or whether I may have taken Maxolon during my pregnancies.. When I look up studies on dyskinesia, it takes me to a lot of studies about multiple sclerosis as well. I’m not sure if the two are possibly connected. There are lots of chains in the way of studies but it seems they are not linking the studies to make them into a larger chain. The dots are not being connected.. It’s looking like the dopamine blockers are not good for people like us who have these kind of conditions. Chris do you have MS yourself? Thank you for replying. Sometimes I try to speak about these government studies on links like this and people think I’m anti-v. I’m not. I just think we need to take a closer look at the medications that May trigger Or make our conditions worse.
I can understand people not wanting to assume such an impactful disease as MS if you're still trying to find answers for vague symptoms. But if you were properly diagnosed by a doctor, then you have MS and your family/friends/workplace have to accept this reality. If not and it impacts you negatively, then I'd try to limit contact or cut them out entirely, if possible.
![Resilience in the Face of Multiple Sclerosis Audiobook Narrator Discussion/Interview [Daniel Pagone]](http://i.ytimg.com/vi/tSYXarEfETQ/mqdefault.jpg)
Hello, I’m Ann Marie and I’m 34. I was diagnosed eight years ago. I waited 3 years because the dr told me that my symptoms would disappear. Never did. So after shoulder surgery, i was sent to a spinal surgeon and he did an MRI of my spine. They found MS in my spine then I saw a neurologist who got a brain MRI snd it was confirmed RRMS. I was happy I finally had an answer to my symptoms
So relatable. My diagnosis took some time, but MS was suspected right away. Optic neuritis was the first symptom diagnosed by my optometrist. Then neurologist took 7 years to give me an MS diagnosis. My family did not believe me when I complained about symptoms. They tried to push me to get a job even though I could only walk a mile before starting to limp and needing to sit down. And the drunk-like walking didn't seem to register with them. I wish I didn't have to deal with this at all.
Hello
I’d really like to say huge thanks for the share!
I’d also wish I could sound really ‘positive’ about relating to your stories, but every time it makes me cry; why... because of the wasted years of so many people being misdiagnosed, misinformed and continuously escalating patient anxiety by assuming anything not obvious, to be a mental health problem!
Stereotypically as a female, the problems are always in your own head... an MRI showing brain lesions, completes the punchline fabulously!
X
I'm 67. I got told at age 21 I could very possibly have MS (my uncle had it). Another doctor prescribed anti-depressants and from then on I was just running scared, trying to work and train but absolutely in self-denial about having MS. Nobody ever mentioned Benign MS. And it was 20 years later after a late pregnancy with twins that I got myself admitted to hospital, unable to look after babies safely. Then I got diagnosed. But nobody ever mentioned Benign MS as a possibility. Took me another 20 years to be able to afford Gestalt Therapy and I found just having someone take it and me seriously, whether there were symptoms or not., was a lifestyle changer and saver. And I still don't have a name for my type of MS. But thank goodness I had a great Health Visitor after diagnosis, who helped me fill in forms and I got DLA and could spend a chunk on the boys. Life with MS is a lottery!!!
Great video. So many relatable points. 💕
Super interesting and It just goes to show symptoms and MS journeys are so personal. Everyone is different. Xx
Love this! Just stumbled across the channel. Fellow MSer here. Neat to hear bits of my story in each of you. Im in Nova Scotia Canada, super high rates of MS here but I don't know many people myself with a Dx. I was Dx 2011 with my first physical symptoms., but my mris were very busy.... 14 + lesions on my first mri. Pretty scary stuff.
Oh, what’s this? Relatable content?
Thanks for sharing everyone!
I'm so glad that I came across this video because I too had physicians and specialists telling me for years that my problems weren’t that big of a deal, that I needed antidepressant, etc. And this is because looked so healthy. I was in the music business since I was 14 silky blonde hair, smooth clear skin bright shiny eyes, in other words always looking very healthy. When I moved to Scotland, from my home in the US, and was there for five years that’s when I started having major MS symptoms. But, when I'd go to clinics and go to doctors most of them really just brushed me aside because I looked so much healthier than the average Scottish person, there was no way that anything I considered an ailment would be anything major.
You've really got to stick to your guns, be your own advocate if you can and not let Doctors brainwash you Into thinking that you and your health issues are not important.
Thanks to everyone who made this video, your personal experiences are a great comfort to those of us who are living with MS all on our own.
those you least expect are the best
The government have been doing a 30 and 40 year study in Feroe islands.. I’m wondering if anybody with MS has been diagnosed with Guillian barre or had their aluminium levels in their brain checked ?
MS is very high in the military as well. That’s why there has been a study on the island. MS and TD higher rate since World War II. The reason how I found out these two conditions may be connected, is I have tea day and two of my children have Tourette’s. I will never stop searching for answers..
Great video and really good subject thank you
@@chris1960 I had Tourette’s as a child and grew out of it around the age of 13 or 14. I’m in my 50s now and last year had a injection of metoclopramide for anti nausea migraine. It fixed my nosy about 16 hours later when I woke up, Some of my old tic had returned.
I’ve since learnt from the doctor that this Kind of medication can have side-effects for some people. They are calling it tired of dyskinesia. It feels like to rets to me. Anyhow hey two of my children have Tourette’s so I started to look into where there may have genetically passed it on or whether I may have taken Maxolon during my pregnancies..
When I look up studies on dyskinesia, it takes me to a lot of studies about multiple sclerosis as well.
I’m not sure if the two are possibly connected. There are lots of chains in the way of studies but it seems they are not linking the studies to make them into a larger chain. The dots are not being connected..
It’s looking like the dopamine blockers are not good for people like us who have these kind of conditions.
Chris do you have MS yourself?
Thank you for replying. Sometimes I try to speak about these government studies on links like this and people think I’m anti-v.
I’m not.
I just think we need to take a closer look at the medications that May trigger Or make our conditions worse.
How do you deal with people who don't believe you really have a disease/MS?
I can understand people not wanting to assume such an impactful disease as MS if you're still trying to find answers for vague symptoms. But if you were properly diagnosed by a doctor, then you have MS and your family/friends/workplace have to accept this reality. If not and it impacts you negatively, then I'd try to limit contact or cut them out entirely, if possible.
Read when the body says no by Gabor Mate to understand why you have MS
my Grandmother died from MS she was a ballerina
I got wrong diagnosis for 20 years. Now seconday progressive
I fired my MS nurse