Let's Talk to an Adult with Level 2 (Mild/Moderate) Cerebral Palsy: Meet Nathan Todd, Part 1
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- Опубліковано 29 лип 2024
- I am so excited for you to meet Nathan. He is a 36-year-old with Level 2 Cerebral Palsy (CP) on the Gross Motor Function Classification System. He has more involvement in his legs than in his upper body. He has mild to moderate involvement. For him this means, he can stand independently but may need a second to get balanced. He can walk independently and can navigate stairs with a railing. He uses a wheelchair when he has to navigate longer distances. He drives and is very active in social media. Nathan is excited to share his journey as an individual with CP to be able to help others similar to him and parents who have a young child diagnosed with cerebral palsy. Nathan is a wonderful and exciting communicator. I am delighted to have his perspective. A long time ago, I was his physical therapist. This interview is broken up into 10-15 minute segments. Watch this playlist for future segments.
Nathan can be found on Facebook: / thelonelinesscoach . On Instagram: @therealnathantodd. On TikTok: @thelonelinesscoach. On UA-cam: The Loneliness Coach, BadA$$ Boundaries, and Story Time with Mr. Nathan. He can also be found on www.baboundaries.com --his setting boundaries website.
My website is www.pediatricPTexercises.com My Facebook page is Pediatric Physical Therapy Exercises. Do not hesitate to contact me at amysturkey@gmail.com with questions, concerns or favorable reviews! Please note I am unable to provide treatment recommendations for a child I have not personally evaluated.
I also have available 4 children's educational books addressing Autism, Down Syndrome, Cerebral Palsy and Attention Deficit Hyperactivity Disorder. I now also have 3 professional books "Pediatric Physical Therapy Exercises for the Hips", "Pediatric Physical Therapy Exercises for the Knees, and "Pediatric Physical Therapy Exercises for the Ankles." If you have questions or suggestions, feel free to contact me at amysturkey@gmail.com. Please note: I am unable to provide treatment suggestions for a child I have not personally evaluated.
I am so honored to have people from all over the world watch my videos. I have reviewed and corrected the closed captions for this video so that you might understand what I am saying even if you don't speak English. I hope the directions below are helpful to you.
To turn on Captions, click CC in the bottom right corner of the video
To choose a different caption language:
At the bottom right, click Settings. It looks like a wheel.
Click Subtitles/CC.
Select a language.
If the language isn't listed when you click Subtitles/CC:
Click Auto-translate.
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Of course, if the captions are in the way of viewing the details in the video, you can always turn them off in the bottom right-hand corner of your video screen.
Here are the links for my books on Amazon:
"A is for Anxiety"
www.amazon.com/dp/B09LXQ3W6V
"A is for Attention Deficit Hyperactivity Disorder"
www.amazon.com/dp/B08QH9H5HR
"C is for Cerebral Palsy"
www.amazon.com/dp/B088TSJCYP
"D is for Down Syndrome"
www.amazon.com/dp/B079P8HH49
"A is for Autism"
www.amazon.com/dp/B071F4FFTB
"Pediatric Physical Therapy Strengthening Exercises for the Hips"
www.amazon.com/dp/0998156736
"Pediatric Physical Therapy Strengthening Exercises for the Knees"
www.amazon.com/dp/0998156760
"Pediatric Physical Therapy Strengthening Exercises for the Ankles"
www.amazon.com/dp/B08TX2ZCFD
You are the 2nd 3rd person that I've come across stating that people with mild CP that will age faster in there later years. I know that is true. It's not fun having pains plus, not being able to do the things I was able to do in my young years. Thank you.
I am so glad you found this video and commented about your experiences. Thank you
I'm a 47 year old with mild spastic cerebral palsy. I just want to say that we desperately need more doctors and physical therapist that know or can study adults with cerebral palsy. The pain is rediculous and nobody knows how to help.
I am so sorry to hear this. I hope you find an excellent physical therapist to help you.
This is me right now! I am in so much pain and no one believes me! I cry all the time because i have no relief or help! I had a doctor ask me if i was sure if i had cerebral palsy!
I'm 62 and my family Dr has been great but it never goes away what ever dosent hurt dosent work any more lol. P s forgot to say I have it too. Pps every time people tell me I'm an inspiration I want to smack em
Almost 50. It’s hard to find much help
I know exactly how you feel.
I work. In recreation which help to keep walking and can Stillwalkin my 60s
Sounds perfect
I’m a 24 year old and I was diagnosed at 5 and could only walk after surgical procedures I stopped receiving therapy at 8 thank you for the videos it’s helping me understand myself better
I am so glad they are helpful for you. Thank you so much for letting me know.
Thanks for having me❤️
Are you kidding? I was lucky to get to interview you!
Amy turkey you are doing best by having these interviews with these wonderful and beautiful people ....gives hope to alot of people ... love and bless you both....
I am so glad to hear that. Thank you for taking the time to let us know
Thanks for spending time with us.
@@TheLonelinessCoach you are welcome
Hi Nathan and Amy just want to say hi from one cerebral palsy person to another and Amy
as well who seems to be amazing therapist
Keep going mate you have really helped me heaps we cerebral palsy are a tough and resilient people
And to everyone who has commented as well
you make me proud
My name is Daniel i am Australian 41 year old with mild to moderate cerebral palsy mainly just affects my legs
12 weeks premature
And I now realize I’m not the only one struggling
Thank you I now realize how lucky i am I have lived a very hard but very normal life where my parents pretended their was nothing wrong with me 😂
It has been such a blessing i went to a so called normal school
And sort of university it’s called technical and further education TAFE
Got my first degree in mechanical engineering and metal fabrication in 1998.
Then another in 1999 for automotive engineering ie mechanic
Loved bashing normal kids or normys as i call them
Had dirt bikes growing up and dad taught me to shoot at like 6 took me right around Australia at 14
Living in the remote kimberlys 1996 where I found out exactly what I’m made of
He sort of turned me into a disabled rambo 😂
Got photos and all
Thanks dad ROB SHEATHER you da man
Had jobs and girlfriends and got a license for now even owned property in the past
23 years of Martial arts helped me heaps and so did walking massive distances like 17 miles ot 23 kilometres with like 40 50 kg weight and I’m only 42 kg
It’s now pretty well destroyed my spine 😢I thought it was making me tougher 😂
Now I realize how lucky i am thank you so much
Nathan and Amy keep cracking as us aussies say
Get knocked down pick yourself up and dust yourself off
People like you guys are what keep me going thank you so much 💪
Thank you! I let Nathan know of your comment!
You would be fun to interview too!
Thanks for stopping by and sharing.
@@TheLonelinessCoach I love hearing people’s stories
I’m a bit of a freak of nature though in my quest to show everyone how normal I could be I somehow beat most i am now 41
I grew up when it was okay to send disabled people to the
SPASTIC CENTER OF N.S.W
Lived homeless for probably like 15 years that mad me tough and angry
All the good the bad and the ugly with little bits of kindness
Bikies,gangsters,drugs, guns ,women and of course money and property the whole lot
they were the only ones that would employ me
And my beautiful dogs
Got lots of documents and photos and videos
I look back with some embarrassment but it’s what i had to do to survive
Would love to tell my story i am a prime example of what to do or not to do with a disabled person
It got that bad i had to spend years teaching myself medical crap
Basically beat doctors at their own game
The level of incompetence,dishonesty,arrogance and obtuseness I’ve copped
It just boggles the mind
Yes I have paperwork 😅❤
Become better than what they are trained to do
It will cause political crap because a lot has been illegal
Mainly grew weed in the bush it was worth money $
I’m like Forrest gump a bit but the bad version
Police know most of it and think it’s hilarious
And I would really hate for anyone else to live the way I have
I’m just really lucky with a little smart it was not easy 😂
The medical profession though hasn’t been good to me
I just got to meet a professor on the 6/7/23 and actually have some cerebral palsy treatment for the first time since 1992 so 30 years untreated
Her eyes light up instantly it was almost worth all the pain I’ve ever been through
This is SO important! I am 60 years old with mild CP, that went largely ignored from about age 14 on. I thought I had experienced all the limitations I was going to have. Then in my 50s I developed an unexplained early bladder failure. It did not occur to me to even consider premature aging as a result of my cerebral palsy. My urologist just said following extensive testing that he could not explain why someone at my young age has the bladder of an 80-year old. Likewise I had previously gone to a physical therapist around age 50 due to hip and back pain because my hips were out of alignment. When I struggled to perform basic pelvic exercises the male therapist seemed dumfounded and actually said, "I thought you said you had kids? It is similar to that motion. How can you not understand that function?" Said in a guy to guy funny kind of way. I was so humiliated, I never went back to him. Then another physical therapist referred me to a Neuro-physical therapist who was amazing! She was the first person to explain that all of these issues were linked to my cerebral palsy that was presenting advanced symptoms as I got older. So here I was in my 50's suddenly re-engaging in research and information on cerebral palsy as a middle-aged man. I am not sure if I was previously in denial, but I finally had an explanation for my chronic joint pain and bladder failure. I never considered myself disabled because I was not in a wheelchair. I had always had a pronounced limp and loss of muscle control on my left side, with slow motor skills, but my speech and quick wit were always intact. Hearing this news at 57 from a neuro-therapist was a Godsend. I finally had an answer and I cried tears of joy from relief because it wasn't anything stupid I had done to cause that. Rather, it was just who I was. I was born that way, and that brought so much peace of mind. Now I embrace and own my disability and am so glad there is a community of people, like me discussing this. Thank you for sharing this story.
Thank you so much for adding your story
Thanks so much for sharing your story.
@@TheLonelinessCoach the more people share, the less lonely they feel
@@pediatricPTexercises absolutely.
Thanks for sharing your story and insights. You are an inspiration
Yes, he is!
Yvonne, thanks for stopping by!
We love these kinds of comments!
I’m was diagnosed with acquire mild cerebral palsy had 2 strokes the day after birth at 6 weeks old the military doctor told my parents to exercise my limbs in the crawling motions 4 times a day never had a walker or cane or a wheelchair at all my condition is mild spastic cerebral palsy and can walk up and down the stairs im now in my 60$ I still exercising today 4 time a week
Wow! Thanks for adding your story. Sounds like you’re doing great.
I'm a 53-year old with mild cerebral palsy. It's definitely been a hard road but have always pushed through. I've been inactive over the recent years and now I'm very irritated and mad because I have to be on a walker. That happened about two years ago. I'm in the process of going back to PT next week. I haven't been to therapy for like 7 months. My last therapist told me as long as I do my exercises at home consistently I can be off my walk or three months so that is my goal. This walker is a big self-esteem chusher I definitely don't feel like myself so it is a work in progress..💯
I hear your frustration. Sounds like you know what you need to do. Thank you for adding your story
Thank you to both of you. This was interesting and fun to listen to. Looking forward to part 2. Many thanks.
Thanks for joining us.
He was really fun and interesting to talk to. I love being able to hear someone’s perspective that is different from mine.
My boyfriend doesn't have to use anything to walk with BUT he does have a hemiplegic gait
Thanks for adding your story
I am 29 with spastic diplegia I'm a new mom. It's hard to move when people are in front of me. I was walking in independently til 26 sfn made it harder so I use a cane outside
Thanks for adding your story to this
+1 to going to therapy even when it hurts, when you don’t want to. I too, now as an adult, wish I hadn’t stopped therapy as a kid.
Seems to be a common sentiment. Thanks for adding your vote!
@@pediatricPTexercises I’m older and wiser now in my adult years and working with a great therapist, mix of strengthand stretching work ☺️
@@MonikaSalita Wonderful!
Hi. Can you show them walking too please or how they play football, and go up the stairs?
I am just trying to find out more about the levels and how things are for Teenagers and adults at mild level and mild to moderate Thanks.
A level 2 person can walk without an assistive device, cannot run or jump, and must use a railing to climb stairs. Nathan cannot play football. I have videos of him later that I have not released yet walking
@@pediatricPTexercises thank you. I know someone who has mild cp and wants to play football, joins a football disability group but cant keep up or dribble to shoot, so just passes ball to others. Most of the time he just stands there as he cant run. But he can use his right leg to kick ball and do few skills.
I love that!
I walked along time because I had children and had to chase them and took care other people s children a nd my kids kept going. I also exercise 4 times a week. It kept going,
You would be very fun to interview
I have cp and I am 45 years old and I have to wear knee braces and afos because my knees hurt when I walk
If you haven’t done it already, I recommend you consult with a physical therapist who might be able to address the cause of you’re pain. Thank you for your comment.
I would I’m a level 1 I never had trouble with my eyes
You are lucky. Many people with CP have imbalances in their eye muscles as well
I've cerebral palsy. I'm 64 and I have anger issues. I'm not sure if its tiredness issues or just the way people treat me. I can't really walk and I bicycle everywhere. I swim also.
I would like to discuss mild to medium cognitive disabilities as a result of cerebral palsy. Btw I live in the UK.
That sounds interesting. My email is in the description
Thanks for sharing. I’m sure that sometimes anger can be caused by our fatigue. It can be frustrating when our bodies seem to fail or betray us.
After walking and suffering I started to use a chair at 53 I'm 62 now
Thank you for adding your experience
Hi Amiei I was born 68 yrs ago I wAs a home birth born ten days early iwas 7 pounds 9 ozs iwas taken to the. Military hospital where have more know how about brain damage head injuries solders the doctor were working a new medication for strokes and had had 2 strokes sothedoctor gave me the medication itwS a success iwas in the hospital for 2 weeks then sent home for exercise s instructions todo crawling instruction s I made it . I walk at 20 months old sat. 9 oaths old crawled at a year.😊
D
Aren’t you lucky. Must feel great’
Cerebral palsy gave me a vice grip 6/10 still don't recommend
I don’t understand. Can you explain?