I'm a 47 year old with mild spastic cerebral palsy. I just want to say that we desperately need more doctors and physical therapist that know or can study adults with cerebral palsy. The pain is rediculous and nobody knows how to help.
This is me right now! I am in so much pain and no one believes me! I cry all the time because i have no relief or help! I had a doctor ask me if i was sure if i had cerebral palsy!
I'm 62 and my family Dr has been great but it never goes away what ever dosent hurt dosent work any more lol. P s forgot to say I have it too. Pps every time people tell me I'm an inspiration I want to smack em
You are the 2nd 3rd person that I've come across stating that people with mild CP that will age faster in there later years. I know that is true. It's not fun having pains plus, not being able to do the things I was able to do in my young years. Thank you.
I’m a 24 year old and I was diagnosed at 5 and could only walk after surgical procedures I stopped receiving therapy at 8 thank you for the videos it’s helping me understand myself better
Amy turkey you are doing best by having these interviews with these wonderful and beautiful people ....gives hope to alot of people ... love and bless you both....
Hi Nathan and Amy just want to say hi from one cerebral palsy person to another and Amy as well who seems to be amazing therapist Keep going mate you have really helped me heaps we cerebral palsy are a tough and resilient people And to everyone who has commented as well you make me proud My name is Daniel i am Australian 41 year old with mild to moderate cerebral palsy mainly just affects my legs 12 weeks premature And I now realize I’m not the only one struggling Thank you I now realize how lucky i am I have lived a very hard but very normal life where my parents pretended their was nothing wrong with me 😂 It has been such a blessing i went to a so called normal school And sort of university it’s called technical and further education TAFE Got my first degree in mechanical engineering and metal fabrication in 1998. Then another in 1999 for automotive engineering ie mechanic Loved bashing normal kids or normys as i call them Had dirt bikes growing up and dad taught me to shoot at like 6 took me right around Australia at 14 Living in the remote kimberlys 1996 where I found out exactly what I’m made of He sort of turned me into a disabled rambo 😂 Got photos and all Thanks dad ROB SHEATHER you da man Had jobs and girlfriends and got a license for now even owned property in the past 23 years of Martial arts helped me heaps and so did walking massive distances like 17 miles ot 23 kilometres with like 40 50 kg weight and I’m only 42 kg It’s now pretty well destroyed my spine 😢I thought it was making me tougher 😂 Now I realize how lucky i am thank you so much Nathan and Amy keep cracking as us aussies say Get knocked down pick yourself up and dust yourself off People like you guys are what keep me going thank you so much 💪
I’m a bit of a freak of nature though in my quest to show everyone how normal I could be I somehow beat most i am now 41 I grew up when it was okay to send disabled people to the SPASTIC CENTER OF N.S.W Lived homeless for probably like 15 years that mad me tough and angry All the good the bad and the ugly with little bits of kindness Bikies,gangsters,drugs, guns ,women and of course money and property the whole lot they were the only ones that would employ me And my beautiful dogs Got lots of documents and photos and videos I look back with some embarrassment but it’s what i had to do to survive Would love to tell my story i am a prime example of what to do or not to do with a disabled person It got that bad i had to spend years teaching myself medical crap Basically beat doctors at their own game The level of incompetence,dishonesty,arrogance and obtuseness I’ve copped It just boggles the mind Yes I have paperwork 😅❤ Become better than what they are trained to do It will cause political crap because a lot has been illegal Mainly grew weed in the bush it was worth money $ I’m like Forrest gump a bit but the bad version Police know most of it and think it’s hilarious And I would really hate for anyone else to live the way I have I’m just really lucky with a little smart it was not easy 😂 The medical profession though hasn’t been good to me I just got to meet a professor on the 6/7/23 and actually have some cerebral palsy treatment for the first time since 1992 so 30 years untreated Her eyes light up instantly it was almost worth all the pain I’ve ever been through
This is SO important! I am 60 years old with mild CP, that went largely ignored from about age 14 on. I thought I had experienced all the limitations I was going to have. Then in my 50s I developed an unexplained early bladder failure. It did not occur to me to even consider premature aging as a result of my cerebral palsy. My urologist just said following extensive testing that he could not explain why someone at my young age has the bladder of an 80-year old. Likewise I had previously gone to a physical therapist around age 50 due to hip and back pain because my hips were out of alignment. When I struggled to perform basic pelvic exercises the male therapist seemed dumfounded and actually said, "I thought you said you had kids? It is similar to that motion. How can you not understand that function?" Said in a guy to guy funny kind of way. I was so humiliated, I never went back to him. Then another physical therapist referred me to a Neuro-physical therapist who was amazing! She was the first person to explain that all of these issues were linked to my cerebral palsy that was presenting advanced symptoms as I got older. So here I was in my 50's suddenly re-engaging in research and information on cerebral palsy as a middle-aged man. I am not sure if I was previously in denial, but I finally had an explanation for my chronic joint pain and bladder failure. I never considered myself disabled because I was not in a wheelchair. I had always had a pronounced limp and loss of muscle control on my left side, with slow motor skills, but my speech and quick wit were always intact. Hearing this news at 57 from a neuro-therapist was a Godsend. I finally had an answer and I cried tears of joy from relief because it wasn't anything stupid I had done to cause that. Rather, it was just who I was. I was born that way, and that brought so much peace of mind. Now I embrace and own my disability and am so glad there is a community of people, like me discussing this. Thank you for sharing this story.
I’m was diagnosed with acquire mild cerebral palsy had 2 strokes the day after birth at 6 weeks old the military doctor told my parents to exercise my limbs in the crawling motions 4 times a day never had a walker or cane or a wheelchair at all my condition is mild spastic cerebral palsy and can walk up and down the stairs im now in my 60$ I still exercising today 4 time a week
I am 29 with spastic diplegia I'm a new mom. It's hard to move when people are in front of me. I was walking in independently til 26 sfn made it harder so I use a cane outside
I'm a 53-year old with mild cerebral palsy. It's definitely been a hard road but have always pushed through. I've been inactive over the recent years and now I'm very irritated and mad because I have to be on a walker. That happened about two years ago. I'm in the process of going back to PT next week. I haven't been to therapy for like 7 months. My last therapist told me as long as I do my exercises at home consistently I can be off my walk or three months so that is my goal. This walker is a big self-esteem chusher I definitely don't feel like myself so it is a work in progress..💯
Hi. Can you show them walking too please or how they play football, and go up the stairs? I am just trying to find out more about the levels and how things are for Teenagers and adults at mild level and mild to moderate Thanks.
A level 2 person can walk without an assistive device, cannot run or jump, and must use a railing to climb stairs. Nathan cannot play football. I have videos of him later that I have not released yet walking
@@pediatricPTexercises thank you. I know someone who has mild cp and wants to play football, joins a football disability group but cant keep up or dribble to shoot, so just passes ball to others. Most of the time he just stands there as he cant run. But he can use his right leg to kick ball and do few skills.
I've cerebral palsy. I'm 64 and I have anger issues. I'm not sure if its tiredness issues or just the way people treat me. I can't really walk and I bicycle everywhere. I swim also. I would like to discuss mild to medium cognitive disabilities as a result of cerebral palsy. Btw I live in the UK.
If you haven’t done it already, I recommend you consult with a physical therapist who might be able to address the cause of you’re pain. Thank you for your comment.
I walked along time because I had children and had to chase them and took care other people s children a nd my kids kept going. I also exercise 4 times a week. It kept going,
Hi Amiei I was born 68 yrs ago I wAs a home birth born ten days early iwas 7 pounds 9 ozs iwas taken to the. Military hospital where have more know how about brain damage head injuries solders the doctor were working a new medication for strokes and had had 2 strokes sothedoctor gave me the medication itwS a success iwas in the hospital for 2 weeks then sent home for exercise s instructions todo crawling instruction s I made it . I walk at 20 months old sat. 9 oaths old crawled at a year.😊 D
I'm a 47 year old with mild spastic cerebral palsy. I just want to say that we desperately need more doctors and physical therapist that know or can study adults with cerebral palsy. The pain is rediculous and nobody knows how to help.
I am so sorry to hear this. I hope you find an excellent physical therapist to help you.
This is me right now! I am in so much pain and no one believes me! I cry all the time because i have no relief or help! I had a doctor ask me if i was sure if i had cerebral palsy!
I'm 62 and my family Dr has been great but it never goes away what ever dosent hurt dosent work any more lol. P s forgot to say I have it too. Pps every time people tell me I'm an inspiration I want to smack em
Almost 50. It’s hard to find much help
I know exactly how you feel.
You are the 2nd 3rd person that I've come across stating that people with mild CP that will age faster in there later years. I know that is true. It's not fun having pains plus, not being able to do the things I was able to do in my young years. Thank you.
I am so glad you found this video and commented about your experiences. Thank you
I’m a 24 year old and I was diagnosed at 5 and could only walk after surgical procedures I stopped receiving therapy at 8 thank you for the videos it’s helping me understand myself better
I am so glad they are helpful for you. Thank you so much for letting me know.
Amy turkey you are doing best by having these interviews with these wonderful and beautiful people ....gives hope to alot of people ... love and bless you both....
I am so glad to hear that. Thank you for taking the time to let us know
Thanks for spending time with us.
@@TheLonelinessCoach you are welcome
Hi Nathan and Amy just want to say hi from one cerebral palsy person to another and Amy
as well who seems to be amazing therapist
Keep going mate you have really helped me heaps we cerebral palsy are a tough and resilient people
And to everyone who has commented as well
you make me proud
My name is Daniel i am Australian 41 year old with mild to moderate cerebral palsy mainly just affects my legs
12 weeks premature
And I now realize I’m not the only one struggling
Thank you I now realize how lucky i am I have lived a very hard but very normal life where my parents pretended their was nothing wrong with me 😂
It has been such a blessing i went to a so called normal school
And sort of university it’s called technical and further education TAFE
Got my first degree in mechanical engineering and metal fabrication in 1998.
Then another in 1999 for automotive engineering ie mechanic
Loved bashing normal kids or normys as i call them
Had dirt bikes growing up and dad taught me to shoot at like 6 took me right around Australia at 14
Living in the remote kimberlys 1996 where I found out exactly what I’m made of
He sort of turned me into a disabled rambo 😂
Got photos and all
Thanks dad ROB SHEATHER you da man
Had jobs and girlfriends and got a license for now even owned property in the past
23 years of Martial arts helped me heaps and so did walking massive distances like 17 miles ot 23 kilometres with like 40 50 kg weight and I’m only 42 kg
It’s now pretty well destroyed my spine 😢I thought it was making me tougher 😂
Now I realize how lucky i am thank you so much
Nathan and Amy keep cracking as us aussies say
Get knocked down pick yourself up and dust yourself off
People like you guys are what keep me going thank you so much 💪
Thank you! I let Nathan know of your comment!
You would be fun to interview too!
Thanks for stopping by and sharing.
@@TheLonelinessCoach I love hearing people’s stories
I’m a bit of a freak of nature though in my quest to show everyone how normal I could be I somehow beat most i am now 41
I grew up when it was okay to send disabled people to the
SPASTIC CENTER OF N.S.W
Lived homeless for probably like 15 years that mad me tough and angry
All the good the bad and the ugly with little bits of kindness
Bikies,gangsters,drugs, guns ,women and of course money and property the whole lot
they were the only ones that would employ me
And my beautiful dogs
Got lots of documents and photos and videos
I look back with some embarrassment but it’s what i had to do to survive
Would love to tell my story i am a prime example of what to do or not to do with a disabled person
It got that bad i had to spend years teaching myself medical crap
Basically beat doctors at their own game
The level of incompetence,dishonesty,arrogance and obtuseness I’ve copped
It just boggles the mind
Yes I have paperwork 😅❤
Become better than what they are trained to do
It will cause political crap because a lot has been illegal
Mainly grew weed in the bush it was worth money $
I’m like Forrest gump a bit but the bad version
Police know most of it and think it’s hilarious
And I would really hate for anyone else to live the way I have
I’m just really lucky with a little smart it was not easy 😂
The medical profession though hasn’t been good to me
I just got to meet a professor on the 6/7/23 and actually have some cerebral palsy treatment for the first time since 1992 so 30 years untreated
Her eyes light up instantly it was almost worth all the pain I’ve ever been through
Thanks for having me❤️
Are you kidding? I was lucky to get to interview you!
This is SO important! I am 60 years old with mild CP, that went largely ignored from about age 14 on. I thought I had experienced all the limitations I was going to have. Then in my 50s I developed an unexplained early bladder failure. It did not occur to me to even consider premature aging as a result of my cerebral palsy. My urologist just said following extensive testing that he could not explain why someone at my young age has the bladder of an 80-year old. Likewise I had previously gone to a physical therapist around age 50 due to hip and back pain because my hips were out of alignment. When I struggled to perform basic pelvic exercises the male therapist seemed dumfounded and actually said, "I thought you said you had kids? It is similar to that motion. How can you not understand that function?" Said in a guy to guy funny kind of way. I was so humiliated, I never went back to him. Then another physical therapist referred me to a Neuro-physical therapist who was amazing! She was the first person to explain that all of these issues were linked to my cerebral palsy that was presenting advanced symptoms as I got older. So here I was in my 50's suddenly re-engaging in research and information on cerebral palsy as a middle-aged man. I am not sure if I was previously in denial, but I finally had an explanation for my chronic joint pain and bladder failure. I never considered myself disabled because I was not in a wheelchair. I had always had a pronounced limp and loss of muscle control on my left side, with slow motor skills, but my speech and quick wit were always intact. Hearing this news at 57 from a neuro-therapist was a Godsend. I finally had an answer and I cried tears of joy from relief because it wasn't anything stupid I had done to cause that. Rather, it was just who I was. I was born that way, and that brought so much peace of mind. Now I embrace and own my disability and am so glad there is a community of people, like me discussing this. Thank you for sharing this story.
Thank you so much for adding your story
Thanks so much for sharing your story.
@@TheLonelinessCoach the more people share, the less lonely they feel
@@pediatricPTexercises absolutely.
I’m was diagnosed with acquire mild cerebral palsy had 2 strokes the day after birth at 6 weeks old the military doctor told my parents to exercise my limbs in the crawling motions 4 times a day never had a walker or cane or a wheelchair at all my condition is mild spastic cerebral palsy and can walk up and down the stairs im now in my 60$ I still exercising today 4 time a week
Wow! Thanks for adding your story. Sounds like you’re doing great.
I am 29 with spastic diplegia I'm a new mom. It's hard to move when people are in front of me. I was walking in independently til 26 sfn made it harder so I use a cane outside
Thanks for adding your story to this
I work. In recreation which help to keep walking and can Stillwalkin my 60s
Sounds perfect
I'm a 53-year old with mild cerebral palsy. It's definitely been a hard road but have always pushed through. I've been inactive over the recent years and now I'm very irritated and mad because I have to be on a walker. That happened about two years ago. I'm in the process of going back to PT next week. I haven't been to therapy for like 7 months. My last therapist told me as long as I do my exercises at home consistently I can be off my walk or three months so that is my goal. This walker is a big self-esteem chusher I definitely don't feel like myself so it is a work in progress..💯
I hear your frustration. Sounds like you know what you need to do. Thank you for adding your story
Thanks for sharing your story and insights. You are an inspiration
Yes, he is!
Yvonne, thanks for stopping by!
We love these kinds of comments!
+1 to going to therapy even when it hurts, when you don’t want to. I too, now as an adult, wish I hadn’t stopped therapy as a kid.
Seems to be a common sentiment. Thanks for adding your vote!
@@pediatricPTexercises I’m older and wiser now in my adult years and working with a great therapist, mix of strengthand stretching work ☺️
@@MonikaSalita Wonderful!
My boyfriend doesn't have to use anything to walk with BUT he does have a hemiplegic gait
Thanks for adding your story
Thank you to both of you. This was interesting and fun to listen to. Looking forward to part 2. Many thanks.
Thanks for joining us.
He was really fun and interesting to talk to. I love being able to hear someone’s perspective that is different from mine.
Hi. Can you show them walking too please or how they play football, and go up the stairs?
I am just trying to find out more about the levels and how things are for Teenagers and adults at mild level and mild to moderate Thanks.
A level 2 person can walk without an assistive device, cannot run or jump, and must use a railing to climb stairs. Nathan cannot play football. I have videos of him later that I have not released yet walking
@@pediatricPTexercises thank you. I know someone who has mild cp and wants to play football, joins a football disability group but cant keep up or dribble to shoot, so just passes ball to others. Most of the time he just stands there as he cant run. But he can use his right leg to kick ball and do few skills.
I love that!
I've cerebral palsy. I'm 64 and I have anger issues. I'm not sure if its tiredness issues or just the way people treat me. I can't really walk and I bicycle everywhere. I swim also.
I would like to discuss mild to medium cognitive disabilities as a result of cerebral palsy. Btw I live in the UK.
That sounds interesting. My email is in the description
Thanks for sharing. I’m sure that sometimes anger can be caused by our fatigue. It can be frustrating when our bodies seem to fail or betray us.
I have cp and I am 45 years old and I have to wear knee braces and afos because my knees hurt when I walk
If you haven’t done it already, I recommend you consult with a physical therapist who might be able to address the cause of you’re pain. Thank you for your comment.
After walking and suffering I started to use a chair at 53 I'm 62 now
Thank you for adding your experience
I walked along time because I had children and had to chase them and took care other people s children a nd my kids kept going. I also exercise 4 times a week. It kept going,
You would be very fun to interview
I would I’m a level 1 I never had trouble with my eyes
You are lucky. Many people with CP have imbalances in their eye muscles as well
Hi Amiei I was born 68 yrs ago I wAs a home birth born ten days early iwas 7 pounds 9 ozs iwas taken to the. Military hospital where have more know how about brain damage head injuries solders the doctor were working a new medication for strokes and had had 2 strokes sothedoctor gave me the medication itwS a success iwas in the hospital for 2 weeks then sent home for exercise s instructions todo crawling instruction s I made it . I walk at 20 months old sat. 9 oaths old crawled at a year.😊
D
Aren’t you lucky. Must feel great’
Cerebral palsy gave me a vice grip 6/10 still don't recommend
I don’t understand. Can you explain?